What kind of support does everyone have? I am 60 and live alone. I do have a 30 year old son who is wonderful about helping out and he came over today to help plant the garden. I try not to rely on him too much but there are just some things I can't do anymore. I am a very independent person so it really drives me crazy. I want to retire out of the area which means moving away from my only support. How does everyone else cope?
Asked by Chris Lowthian support
Now that I am back on Sulfasalazine I'm having some good days that I can at least get out of bed. I have some realistic goals with my riding, but wanting to know does it make it worse if you push yourself on the bad days? Or is it better to rest and take advantage of those good days? The pain never stops, but overall I am feeling better though I will never feel "normal" and am coming to grips with that.
Asked by Tricia Carsley fatigue support pain
I would just like to say, "thank you" to all of you. I am 32 now, but I have known something was wrong with me since I was about 15 or so. This might sound horrible to say, but I'm glad I'm not in this alone. You all are terrific, and have given me a much better outlook, in just a few short days. I think this is a disease that needs to be brought to the public's attention, because as it would seem to me, research is not properly representing the demographics I am seeing represented here?
Asked by Robert D support thankful Support Group
Help! Anyone in Colorado! I moved here in July & have had NO luck finding a GP to help me (or believe me) & my medical issues. I must have a GP on my side to get referrals to specialist. I've changed 2x's already, with no luck. Anyone know of GP, pain docs or rheumy's in state? It's been 6 months & I'm going downhill fast & continuously because no one will help me!
Asked by Kerry Monique Gaude' pain management doctors support
Those of you in relationships: Are your sig. Others supportive and understanding, or no? Seems like there are lots of stories of spouses not understanding, to the point of almost emotional cruelty. For those of you less-supportive relationships: Is anyone in counseling? Has it helped? If no to either question: Why not? Us single folk are wondering about how partnership works when AS is in it. Thx!
Asked by Rose Bigham support relationship
I'm married, with a 3-year-old daughter and 9-year-old stepson. My AS is affecting them more and more. How are families coping with AS? Where and how do partners/spouses find support for themselves? For children of spondy patients? How have you explained AS to a young child?
Asked by Jessica Hartwell parenting support relationship
Needing some support. I was diagnosed with AS in August, after it felt like my whole body was falling apart. I've been on 2 different NSAIDS and nothing is working. My pain is unbearable that I'm in tears all the time. I go back to the rheumy this Thursday so hopefully we'll find something that helps. Now, I have something new going on. My primary doctor found a lipoma (tumor) on my right side, between my ribs and hip. I have to go see a surgeon to have it removed and biopsied?
Asked by LeeAnn Fine support
I need help i dont know what to do i fell and fractured my foot i have my cane but i fell 2 times last night i cant hold my weight my balance is so bad crutches come today but not sure that i have the stength or balance to use them dont know what to do crawling is safest i cant take anymore falls depression is so bad cant stop crying?
Asked by Shelley Leppaluoto support
How many of you out there have supportive partners or family members. These people have a very important role in the day to day living of a person with ankylosing spondylitis. I'm interested to read your stories. Michael Candy?
Asked by Michael Candy support
Hi everyone, just having a bad day, need cheering up! Aching and in pain, trying not to take time off work sick as being threatened with 'capability' procedings! Just feeling a bit low.. So anyone got any good jokes?
Asked by Kentishbelle support
