Now that I am back on Sulfasalazine I'm having some good days that I can at least get out of bed. I have some realistic goals with my riding, but wanting to know does it make it worse if you push yourself on the bad days? Or is it better to rest and take advantage of those good days? The pain never stops, but overall I am feeling better though I will never feel "normal" and am coming to grips with that.
Asked by Tricia Carsley fatigue support pain
Am feeling bad right now. I've been in an intense flare for about ten days, and I've gone to whole foods only to try to reduce the inflammation. The pain is starting to wear me down, though. I am having terrible Sjogren's symptoms and other glands in my body have begun to fail. I'm so discouraged. Does anyone else have multiglandural autoimmune syndrome?
Asked by Amori99 fatigue inflammation multiglandular syndrom
Fatigue flares! Just saw my pain doc and he doesn't yet believe that barometric pressure/seasonal changes can cause pain and fatigue flares. He suggested I may have narcolepsy or that I may need a sleep study to explain why these sudden fatigue fits happen and cause me to drop asleep a few times per month. Sigh. We are going to try tapering one of my meds which can cause drowsiness to see if it changes things. My rheumy point-blank said that *all* of his patients react to pressure. Sigh?
Asked by Rose Bigham fatigue pain pressure
Dramatic sinus congestion + fatigue flare. Is this common? I was down most of yesterday, working from the couch and doing very little. About 8pm my sinuses suddenly congested so badly I couldn't breathe through my nose! I sniffed Afrin, took a Mucinex D, put on a Breathe-right strip, and went to bed. I slept for nearly 24 hours (!). If it wasn't for the dog I wouldn't have left the house at all! Has anyone else mapped sinus congestion and fatigue? Is that a thing?
Asked by Rose Bigham symptoms fatigue sinus
Sitting here at a pity party (alone of course) thinking how the hell did I get here and wondering what the friggin future holds. Pain meds are starting to become less and less effective. I have lingering pain even with percocet but don't want to take to many and not wake up one day. The pain is still tolerable but the fatigue is horrible and seems to be worse between pills. Is that a sign my body is craving the narcotic?
Asked by Michael Rowley fatigue medication advice
Hi everyone, does anyone have any suggestions on how to boost energy levels and combat some of the tiredness? It's really getting me down! My doc has put me on Ibuprofen so far, but no pain meds as yet, with children to look after it's a real battle for me at the moment! Thanks!
Asked by Tanya de Lacy fatigue
Asking for a course of steroids? When is that called for? I have had increasing pain/fatigue flares lately and I'm trying to work full time. I slept 15 hours the other night and was a wreck when I finally woke; fevers, upset stomach, everything hurt AND brain fog. Seeing rheumy later. Is it reasonable to ask for 5-7 days of prednisone to get a boost?
Asked by Rose Bigham fatigue flare steroids
Omg,all a want to do is sleep wake up 2hours lata a want to go to bed .lol?
Asked by Mick Knox fatigue
How I love this AS community! Just spent time with dad who asks, once again, why it is that my knee has flared up. "Just did." Then he asks what we can do to "fix me"- by which he means energy work/healing. I said: "If there was energy work or remote healing that could "fix me", then one of the 30 million of us would have found it by now." Dad wants me to be healthy but every time he says there is nothing wrong with me, he denies that I am in pain, fatigued, etc. ARGH! Suggestions?
Asked by Rose Bigham fatigue emotions general question
Hi Friends, All of us dealing with this disease need to be there for each other.It's painful and depressing! Try and let your families know how you feel if possible.I'm lucky to have a supportive husband and great kids.One problem I have,I don't look sick! Everyone thinks I look great.Anyone having issues with hair loss,excessive bruising,brittle cracked nails,fatigue,rash on my face-under nasal area and entire chin area..fluid like blisters.Dermat. Said Shingles.?
Asked by Elaine R. fatigue bruising rash
