Has anyone ever heard of SAPHO syndrome? I was researching and came across it. None of my rheumy's have ever mentioned it but the symptoms are identical, SI joint inflammation, and, strangely, ACNE! Look at the article on wikipedia for SAPHO syndrome. Buten.wikipedia.org/wiki/SAPHO_syndrome
Asked by Kristin ankylosing spondylitis si joints rheumatologist
Hi, I was recently diagnoses with AS, SI Joint Dysfunction, nerve damage and Hashimoto's Thyroiditis, I am waiting on a rheumatologist appt and will be tested for RA as well. Between the first 4 issues I am trying to deal with inflammation, stiffness and severe pain on a weekly basis, at least 3 days a week. Exercise sometimes makes me feel better and many times causes the si joint to spasm and cause pain and inability to stand. Suggestions would be greatly appreciated?
Asked by Nicole as si joints pain
Has anyone every tried using a SI joint support? I had tried a "belt" type support before but found the pressure on my back, pelvis and SI joints to be too much, lately i've started looking at them again because I really would just like some relief. There is one made by BREG that looks very interesting, I always had great luck with their knee braces when I was younger. I am just not sure because i've heard mixed things about bracing a back that may already be trying to fuse! Anyone?
Asked by Lindsay Cairns si joints fusion back brace
Hello everyone. Been a long time. Not much has changed. Still no Rheumy in our town. I got dx with Iritis and put on fluormetholone drops, return in 3 wks. Also have bumps in my hair and hair line that itch and scab up, and bumpy rash down both legs. Hoping one of my other doctors will put it all together soon. Pain in si joints (and other joints) is horrible, fatigue is worse, rt leg goes out and I fall, but none of them ask why? :( Sorry to vent...
Asked by Carla symptoms si joints pain
Does anyone else have extreme tenderness on their back and back of legs? Mine are so bad that my clothes hurt touching me. I had a SI injection in Monday. Things got worse. Any ideas?
Asked by Daniel Garcia si joints pain
My SI joints have been a real problem for a while now. I've had SI injections 3x this year and no relief. Any suggestions?
Asked by Daniel Garcia si joints
Good news, no bone cancer. Other news, new doctor said SI joints aren't "completely fused", but he wouldn't even try to get a needle in to do injections. Can't people get one story straight? New MRI in the morning to see if ruptured disc causing groin pain, hip pain, down the leg pain, etc. Maybe it's SI joints, he says, but lets see. Asked if it's AS for sure, now says, "why would you want that label?" SO frustrated! New appointment Friday AM.
Asked by Carla si joints pain back pain
Okay, so i've been away from here for a bit. We have been struggling for a few years trying to get a diagnosis.. With not enough proof to get a diagnosis of AS. I had a CT scan 3 weeks ago which finally showed something. Both left and right SI joints are full of osteophytes and both have considerable joint space narrowing, though the right is worse than the left in both cases. Anyway My doc wants me to get SI joint injections... Anyone else have them? Tell me about it, i'm really anxious.
Asked by Lindsay Cairns as si joints ct scan
Quick one, just curious has anyone notice any changes in their bodies when they're late their treatments? MD forgot to refill my Simponi and now she's on vacation until mid September, mean time ouch! Anyone notice any changes if they're late too? SI is driving me batty.
Asked by Tammy Martin medication si joints simponi
My SI joints are severely affected by AS to the point of making it difficult for me to sit and walk. I also have a lot of sciatic like pain I assume is from the inflamed SI joints. Does anyone else have this issue? If so, what test did you have to confirm it? MRI, xray, CT scan...? Also, what is working for you for pain and also to make sitting a little easier? I've tried just about everything.
Asked by Marji Page si joints pain tests
