Question about your regular Rheumy routine (alliteration anyone?): I was diagnosed just over 2 years ago. After the first several months, my routine has become pretty settled: CBC, liver panel, sed rate check, doc manually measures my chest expansion as well as the amount of stretch in my back. At some point past the initial MRIs confirming bilateral SI fusion, I expected another round of x-rays or MRIs. Do any of your docs follow-up with imaging on some type of annual or other basis?
Asked by Tim as treatment ankylosing spondylitis rheumatologist
Anyone on fentanyl patches? Do they work for you at all? I started at 25 mcg a month ago and I'm in so much pain that suicide is an option! May I ask your dose?
Asked by Amy Picklo as treatment pain management medication
NO STARCH DIET: Testimonials... Please have a read through the testimonials in this link. If they don't convince you that the NSD is not bulls**t then nothing will. Some of them mention links to books, but like I said before you don't need to buy them and you can contact me via e mail and I will answer any questions you have.... TAKE CONTROL AND TAKE YOUR LIFE BACK! Bon voyage :) Steve.... www.kickas.org/ubbthreads/ubbthreads.php?ubb=showflat&Number
Asked by Steve as as treatment no pain meds again
The NO STARCH DIET... Has anyone tried it and if so how successful were you on it? I've joined this site today and had a good look through and not seen it mentioned once! I've been dabbling with it for 2 years and since strictly adhering to it 6 months ago my AS is now in remission. Try it folks!
I have Cervical and Lumbar Spondylosis and my legs are numb most of the time. I can just about walk about with a stick, but in severe pain. I seem to be allergic to just about every type of medication. I also have two fractured vertebrae in my neck. My doctor will not refer me back to the specialist, as he says there is nothing they can do evey though the pain makes me feel sick. He says I am wasting his time and he has others to see! What can I do?
Asked by Rosalie Jackson as as treatment ankylosing spondylitis
Anyone on Remicade and Cellcept? Is this something new or just for those that nothing else has worked?
Asked by Becky as treatment
So the doctor today said that I have a suspected diagnosis of spondyloarthropathy, but that's like the large title and AS is under it as well as other inflammation of the spine. One doc said she thinks it's AS and Fibromyalgia, I have another MRI of my spine next week and ESR is still up and HLA-b27 is present. He wanted to start me on Methotrexate and the side effects scared the crap outta me. Is anyone on that or have the been on it and did it help, side effects? How was AS diag?
Asked by Sasha as ankylosing spondylitis as symptoms
I have a doctor appt with the Rheum tomorrow, I saw him 3 weeks ago and he did an HLA-B27 test which tested positive, ESR is elevated to double the normal rate and the CRP should be at .5 and is at 3.2, shows protein too high. When you were diagnosed with AS what were your symptoms? Did Prednisone help? I can't type all my symptoms it won't allow me to, too many characters so please help me.
Asked by Sasha as as and medication as treatment
I tested positive for the HLA-b27 antigen and the Rhem. Said I could have AS. I have horrible lower back pain that has started to radiate to my left buttock and thigh, my knees hurt, my joints pop, I can simply step and feel a shooting pain my foot, have started getting headaches that don't go away, I'm so tired but can't sleep enough, I get night sweats and my body gets so hot yet I'm cold at night (my body is hot to the touch but no fever). Please help with anything, I'm so lost?
Asked by Sasha as as and medication as symptoms
Hello ppl, i have AS since summer 2010, everything went great, i found it on a early stage and started to make the specific exercises, making some specific blood tests to see if AS is going active or not. The problem is that i stopped doing the specific exercises since 2-3 months, i gained in weight, i also have Seborrhoeic dermatitis and Adult attention deficit disorder, i am sleeping very little 6-7 hours, feeling so tired, i can`t even play soccer, my fav sport?
Asked by Robert Cristian as as treatment motivation
