Creative Commons Attribution-ShareAlike 2.0 UK: England & Wales Sun, 20 May 2012 23:30:51 +0000 http://answers.ankylosing.org/ Ankylosing Spondylitis webmaster@answers.ankylosing.org webmaster@answers.ankylosing.org en-us Question: Do any of you work full time with A.S.? If so, how do you deal/manage with fatigue and stress? I'm really struggling mentally and physically. Any tips or advice is really appreciated! http://answers.ankylosing.org/126917/do-any-of-you-work-full-time-with-as-if-so-how-do-you-dealmanage-with-fatigue-and-stress/ Fri, 04 May 2012 03:49:23 +0000 Asked by Jamie 2 weeks ago http://answers.ankylosing.org/126917/do-any-of-you-work-full-time-with-as-if-so-how-do-you-dealmanage-with-fatigue-and-stress/ Question: Debate: Fit too work = As a machine operator, last 20Yrs, I lifted, 60" X 40" ave size, to chest height, 3,000 sheets plus 3,000 boards per shift, to laminate, reaching all parts, top section highest point, 25 + ft from the ground. And yet "NASS" say with the right medication most are able to (work full time), but avoid carrying heavy shopping? Surly this needs to be addressed what work we can do, and classify disabled/partially disabled for conditions of the spine ""your thoughts"" http://answers.ankylosing.org/121442/debate-fit-too-work-as-a-machine-operator-last-20yrs-i-lifted-60-x-40-ave-size-to-chest-height/ Tue, 20 Mar 2012 08:58:35 +0000 Asked by Mr Terence King 2 months ago http://answers.ankylosing.org/121442/debate-fit-too-work-as-a-machine-operator-last-20yrs-i-lifted-60-x-40-ave-size-to-chest-height/ Question: I was wondering if anyone has been fired because they have missed so much work. I have been put on probation because I missed so many days last year. I have been working at the same bank for 20 years as a secretary. I was never off very much until the last few years because of my health getting worse. I am not ready yet to file for disability but I was just wondering if they can really let me go for health reasons? http://answers.ankylosing.org/117515/i-was-wondering-if-anyone-has-been-fired-because-they-have-missed-so-much-work-i-have-been-put-on-probation/ Tue, 07 Feb 2012 02:07:47 +0000 Asked by Sabrina Griffin 4 months ago http://answers.ankylosing.org/117515/i-was-wondering-if-anyone-has-been-fired-because-they-have-missed-so-much-work-i-have-been-put-on-probation/ Question: I have to have a whinge, I know you will listen to me, but have you ever said to someone that you have a AS and this means you aren't able to work full time anymore. Then a little while later they say 'Well, aren't you going to look for more work?' I don't think they were listening in the first place. http://answers.ankylosing.org/115060/i-have-to-have-a-whinge-i-know-you-will-listen-to-me-but-have-you-ever-said-to-someone-that-you-have/ Tue, 03 Jan 2012 01:43:50 +0000 Asked by Carmen 5 months ago http://answers.ankylosing.org/115060/i-have-to-have-a-whinge-i-know-you-will-listen-to-me-but-have-you-ever-said-to-someone-that-you-have/ Question: Has any one had any issues with employers not accommodating to your situation? I got hired on a part time job that would other wise be perfect for me however they have a strict rule that employees are not allowed to sit at all. I asked if it would be okay if I sat every once and a while if the situation were appropriate and they said no, they actually write people up for sitting down. I've only worked 2 days (4 hours) a day and I'm in a lot of pain. During my interview, I told them about my disa http://answers.ankylosing.org/104646/has-any-one-had-any-issues-with-employers-not-accommodating-to-your-situation/ Wed, 31 Aug 2011 04:31:24 +0000 Asked by Lorraine Teeter 9 months ago http://answers.ankylosing.org/104646/has-any-one-had-any-issues-with-employers-not-accommodating-to-your-situation/ Question: Hi. For those of you who are still working I was just wondering what type of jobs you have & how you are affected by them. My brother was just diagnosed & is not bad enough for disability. But he drives a truck for a living and works a lot of hours. I'm thinking maybe he could try changing careers. But I'm not sure what a person with AS is capable of. I've been on disability myself for years. So I'm no help to him. Thanks? http://answers.ankylosing.org/100013/hi-for-those-of-you-who-are-still-working-i-was-just-wondering-what-type-of-jobs-you-have-how-you/ Sat, 06 Aug 2011 03:27:42 +0000 Asked by Melissa Temple 10 months ago http://answers.ankylosing.org/100013/hi-for-those-of-you-who-are-still-working-i-was-just-wondering-what-type-of-jobs-you-have-how-you/ Question: I'm starting to be afraid for my future. I'm a single patent with no family nearby. My symptoms are worsening. So sore and tired all the time. I have a stressful job that I absolutely need. Two kids to get through college. I have no savings. Just got health insurance. Haven't been to the doctor in 6 years in order to do it. Now I need to wait as long as possible so I'm not accused of having a pre-existing condition. Worried about 5 years from now. Wish I had a plan. Anyone else have these fears? http://answers.ankylosing.org/99973/im-starting-to-be-afraid-for-my-future-im-a-single-patent-with-no-family-nearby-my-symptoms-are-worsening/ Fri, 05 Aug 2011 02:34:18 +0000 Asked by Anne 10 months ago http://answers.ankylosing.org/99973/im-starting-to-be-afraid-for-my-future-im-a-single-patent-with-no-family-nearby-my-symptoms-are-worsening/ Question: I have been out of my sulfasalazine for several weeks, and can't get in to a rheumatologist till the 22. I know I should have planned the move better and set it up ahead of time, but I didn't so here I am. My ankles are swelling up the size of watermelons, and my back is killing me. Am already taking NSAIDs so I am looking for suggestions to get by until I see the rheumy. I HAVE to work in the meantime? http://answers.ankylosing.org/99897/i-have-been-out-of-my-sulfasalazine-for-several-weeks-and-cant-get-in-to-a-rheumatologist-till-the/ Thu, 04 Aug 2011 00:39:50 +0000 Asked by Tricia Carsley 10 months ago http://answers.ankylosing.org/99897/i-have-been-out-of-my-sulfasalazine-for-several-weeks-and-cant-get-in-to-a-rheumatologist-till-the/ Question: How many sufferers of Ankylosing Spondylitis have had to give up work due to the condition? Also if you do work with the disease, how do you manage and how supportive is your employer to your needs? http://answers.ankylosing.org/96872/how-many-sufferers-of-ankylosing-spondylitis-have-had-to-give-up-work-due-to-the-condition/ Wed, 20 Jul 2011 14:00:45 +0000 Asked by Michael Candy 11 months ago http://answers.ankylosing.org/96872/how-many-sufferers-of-ankylosing-spondylitis-have-had-to-give-up-work-due-to-the-condition/ Question: For those still working - anyone else have a boss who is intolerant of your disability almost to the point of discrimination? I wish this guy would put in writing the things he says verbally, but no such luck. He tells me that I suck every single day. Even with my disability I am a strong performer, but this guy just has it out for me. I'm interviewing elsewhere but in the meantime I have Spondy pain AND have to suffer this jerk. Any suggestions for surviving this negativity? http://answers.ankylosing.org/89979/for-those-still-working-anyone-else-have-a-boss-who-is-intolerant-of-your-disability-almost-to-the/ Wed, 08 Jun 2011 18:08:16 +0000 Asked by Rose Bigham 1 year ago http://answers.ankylosing.org/89979/for-those-still-working-anyone-else-have-a-boss-who-is-intolerant-of-your-disability-almost-to-the/ Question: I'm going back to work tomorrow after two months off from what I presume was and still is my first major flare. My doc and I just randomly picked that date presuming I'd be 'better' by now. I am fortunate that I have the sick leave I do. I could easily take a few more weeks off, but I feel too guilty. With anti-inflammatories I am functioning okay around the house. Still pain, but manageable. For those of you still able to work, do you struggle with the guilt when you take sick leave? http://answers.ankylosing.org/89650/im-going-back-to-work-tomorrow-after-two-months-off-from-what-i-presume-was-and-still-is-my-first-major/ Mon, 06 Jun 2011 00:57:16 +0000 Asked by Gullyabb 1 year ago http://answers.ankylosing.org/89650/im-going-back-to-work-tomorrow-after-two-months-off-from-what-i-presume-was-and-still-is-my-first-major/ Question: My question today is this: If I can show that my job caused or exacerbates my condition, I'm entitled to compensation. I know the disease is of 'unknown etimology', but I am convinced that my onset of symptoms came because of some intense pressure going on at work. I'm in law enforcement and while stress is usual, this was somewhat extreme. Anyone have credible sources/links showing a connection between symptoms and stress triggers? Thanks http://answers.ankylosing.org/88426/my-question-today-is-this-if-i-can-show-that-my-job-caused-or-exacerbates-my-condition-im-entitled/ Sat, 28 May 2011 18:25:59 +0000 Asked by Gullyabb 1 year ago http://answers.ankylosing.org/88426/my-question-today-is-this-if-i-can-show-that-my-job-caused-or-exacerbates-my-condition-im-entitled/ Question: Just curious i have been thinking alot about what to do about work and my future i have a somewhat physical job and it does cause some increased pain now but manageable, how has everyone else been dealing with work anyone have to change jobs because of it progressively getting worst or were you able to manage for several years. I just got diagnosed last week? http://answers.ankylosing.org/83348/just-curious-i-have-been-thinking-alot-about-what-to-do-about-work-and-my-future-i-have-a-somewhat-physical/ Fri, 08 Apr 2011 10:41:18 +0000 Asked by John J 1 year ago http://answers.ankylosing.org/83348/just-curious-i-have-been-thinking-alot-about-what-to-do-about-work-and-my-future-i-have-a-somewhat-physical/ Question: If I had known that I had AS when i was younger I would have pick a profession I could still be able to work in. Who made the same OOPS? http://answers.ankylosing.org/63453/if-i-had-known-that-i-had-as-when-i-was-younger-i-would-have-pick-a-profession-i-could-still-be-able/ Wed, 26 Jan 2011 14:34:47 +0000 Asked by Tiffany 1 year ago http://answers.ankylosing.org/63453/if-i-had-known-that-i-had-as-when-i-was-younger-i-would-have-pick-a-profession-i-could-still-be-able/ Question: I did because I'm only part time and I will contiue to work part time as long as I can for my boss and he understand that..and it will be 2 yr.s in march since I applied for SSDI. Just had my hearing on Nov.3 and still waiting for a answer? http://answers.ankylosing.org/62734/i-did-because-im-only-part-time-and-i-will-contiue-to-work-part-time-as-long-as-i-can-for-my-boss-and/ Tue, 18 Jan 2011 12:41:28 +0000 Asked by Julie 1 year ago http://answers.ankylosing.org/62734/i-did-because-im-only-part-time-and-i-will-contiue-to-work-part-time-as-long-as-i-can-for-my-boss-and/ Question: Anyone here a dancer or a an athlete? What do you do when you have a flare? Or just dont feel well for months at a time? http://answers.ankylosing.org/61378/anyone-here-a-dancer-or-a-an-athlete-what-do-you-do-when-you-have-a-flare/ Sat, 01 Jan 2011 09:45:34 +0000 Asked by Kelly 2 years ago http://answers.ankylosing.org/61378/anyone-here-a-dancer-or-a-an-athlete-what-do-you-do-when-you-have-a-flare/ Question: Put my notice in a work yesterday just couldent put my self trough it any more i was working shifts 7 on the trout god knows what im going to do know little help would be good pls? http://answers.ankylosing.org/60580/put-my-notice-in-a-work-yesterday-just-couldent-put-my-self-trough-it-any-more-i-was-working-shifts-7/ Tue, 21 Dec 2010 13:22:09 +0000 Asked by James 2 years ago http://answers.ankylosing.org/60580/put-my-notice-in-a-work-yesterday-just-couldent-put-my-self-trough-it-any-more-i-was-working-shifts-7/ Question: Why do so many websites say people can lead a normal life with AS? I'm a type A personality and not a whiner but this illness is completely disruptive to my life. I'm in constant pain. I'm always tired. This is not normal! http://answers.ankylosing.org/42952/why-do-so-many-websites-say-people-can-lead-a-normal-life-with-as/ Fri, 20 Aug 2010 01:27:58 +0000 Asked by As Sufferer 2 years ago http://answers.ankylosing.org/42952/why-do-so-many-websites-say-people-can-lead-a-normal-life-with-as/ Question: What kind of changes have you guys made to your work schedule to allow for "bad days"? http://answers.ankylosing.org/20043/what-kind-of-changes-have-you-guys-made-to-your-work-schedule-to-allow-for-bad-days/ Fri, 18 Jun 2010 13:22:26 +0000 Asked by Sheila 2 years ago http://answers.ankylosing.org/20043/what-kind-of-changes-have-you-guys-made-to-your-work-schedule-to-allow-for-bad-days/ Question: Does anyone have information on Social Security benefits or disability? Are those with AS eligible? I still work but have reduced hours- how long do you have to be diagnosed, how bad etc? What about financial aide for medical bills? Any tips? http://answers.ankylosing.org/19588/does-anyone-have-information-on-social-security-benefits-or-disability-are-those-with-as-eligible-i/ Tue, 15 Jun 2010 04:01:43 +0000 Asked by Janet C 2 years ago http://answers.ankylosing.org/19588/does-anyone-have-information-on-social-security-benefits-or-disability-are-those-with-as-eligible-i/