Creative Commons Attribution-ShareAlike 2.0 UK: England & Wales Sun, 20 May 2012 23:26:11 +0000 http://answers.ankylosing.org/ Ankylosing Spondylitis webmaster@answers.ankylosing.org webmaster@answers.ankylosing.org en-us Question: So had a remicade infusion 2 days ago (not the first one) and since yesterday I am feeling bruised all over, like really tender to touch - my back, ribs, stomach, arms, legs etc. I haven't done any out of the ordinary exercise either. It's also been keeping me awake :( any suggestions on how to relieve the pain or what it could be? http://answers.ankylosing.org/129761/so-had-a-remicade-infusion-2-days-ago-not-the-first-one-and-since-yesterday-i-am-feeling-bruised-all/ Mon, 14 May 2012 02:41:41 +0000 Asked by Pippo 7 days ago http://answers.ankylosing.org/129761/so-had-a-remicade-infusion-2-days-ago-not-the-first-one-and-since-yesterday-i-am-feeling-bruised-all/ Question: What does your rib pain feel like? My entire rib cage feel bruised. Same with the top of my hip bones, usually my hip pain is in the joint (like where your leg connects to you hip). This bruised feeling is new asthe majority of my pain is in my joints (shoulder, wrists, hips, feet, hands, ect!) http://answers.ankylosing.org/129092/what-does-your-rib-pain-feel-like/ Fri, 11 May 2012 16:48:23 +0000 Asked by Hayley Columbo 1 week ago http://answers.ankylosing.org/129092/what-does-your-rib-pain-feel-like/ Question: It's been a while...I had to have emergency surgery for some OB problems, but I have a question.I've been treated by the Chronic Pain dept here for the past year and they have me on pain meds while I'm trying out Enbrel for 6 months from my Rheumy (I've had to stop that because of the incisions from surgery still open so I won't start that up for another month). I have been diagnosed with Fibromyalgia as well as Spondyloarthropathy.What pain meds are you on and for what? http://answers.ankylosing.org/128400/its-been-a-whilei-had-to-have-emergency-surgery-for-some-ob-problems-but-i-have-a-questionive/ Wed, 09 May 2012 08:37:20 +0000 Asked by Sasha 2 weeks ago http://answers.ankylosing.org/128400/its-been-a-whilei-had-to-have-emergency-surgery-for-some-ob-problems-but-i-have-a-questionive/ Question: How much do you think your diet affects your AS? I'm on the low starch diet for the past few months. Before that, paleo. There's no denying that a good diet makes you healthier. But overall, from what i could tell diet does not affect AS significantly. Initially it seemed to work, less sharp pain, but the last few weeks everything just worsened- I'm very stiff with a lot of pain- which leads me to conclude people might just be ascribing cause & effect where is none- what is your experience? http://answers.ankylosing.org/128181/how-much-do-you-think-your-diet-affects-your-as/ Tue, 08 May 2012 15:24:02 +0000 Asked by Kerry 2 weeks ago http://answers.ankylosing.org/128181/how-much-do-you-think-your-diet-affects-your-as/ Question: Now that I know what is wrong with me, I feel like I can start re-building my strength. My question is, has anyone else noticed that the pain gets worse when you exercise? I know it is supposed to help, but it seems that the longer I keep trying, the worse it gets. I am doing very simple strengthening and walking around a block with a slight hill. It is killing me! Or is it just that the Humira isn't working any more? http://answers.ankylosing.org/123647/now-that-i-know-what-is-wrong-with-me-i-feel-like-i-can-start-re-building-my-strength-my-question-is/ Sun, 22 Apr 2012 02:57:37 +0000 Asked by Sunflower 1 month ago http://answers.ankylosing.org/123647/now-that-i-know-what-is-wrong-with-me-i-feel-like-i-can-start-re-building-my-strength-my-question-is/ Question: Greetings to my fellow AS'ers. I have not posted much as of late, just been reading and checking in silently :) Pain is feeding my depression, depression is feeding my pain. Going in for a HIDA scan for some type of possible duct blockage/inevitable gall bladder removal. I have to go off quite a few of my meds for weeks before the surgery and being this flare is horrible as it is, I am not looking forward to it. Please just remember me in your prayers if you would. Blessings~? http://answers.ankylosing.org/122934/greetings-to-my-fellow-asers-i-have-not-posted-much-as-of-late-just-been-reading-and-checking-in-silently/ Sun, 15 Apr 2012 06:08:50 +0000 Asked by Kim Buracker Armstrong 1 month ago http://answers.ankylosing.org/122934/greetings-to-my-fellow-asers-i-have-not-posted-much-as-of-late-just-been-reading-and-checking-in-silently/ Question: I'm wondering how many of you have severe hip and leg pain? I can deal with how my back hurts most days, but it's my hip and leg that really get me the pain goes all the way down to my foot. Is anyone else like this? Went to the pain management doc for the first time and he said it may be from fusion in my back so getting my first MRI and when I get the results from that he said that he would give me an epidural that would help alleviate the pain in my leg. http://answers.ankylosing.org/122460/im-wondering-how-many-of-you-have-severe-hip-and-leg-pain-i-can-deal-with-how-my-back-hurts-most-days/ Mon, 09 Apr 2012 05:21:36 +0000 Asked by Kimberlee Holinka 1 month ago http://answers.ankylosing.org/122460/im-wondering-how-many-of-you-have-severe-hip-and-leg-pain-i-can-deal-with-how-my-back-hurts-most-days/ Question: During times of extreme or unusual stress, along with a flare up of PA and now AS, I get a steady, harsh pain that goes from lower back through to lower abdomen. Is this common and what helps? http://answers.ankylosing.org/122098/during-times-of-extreme-or-unusual-stress-along-with-a-flare-up-of-pa-and-now-as-i-get-a-steady-harsh/ Tue, 03 Apr 2012 20:10:20 +0000 Asked by Brande Pearson Wood 2 months ago http://answers.ankylosing.org/122098/during-times-of-extreme-or-unusual-stress-along-with-a-flare-up-of-pa-and-now-as-i-get-a-steady-harsh/ Question: Hi- Dealing with for past 6 months or so, strange sharp pain in groin area. Randomly attacks then leaves. Where leg and "private area" meet... That part where leg bends. Like where underwear line runs... Feels like blood getting stopped/clot or lymph node exploding.... Anyone? See below http://answers.ankylosing.org/122055/hi-dealing-with-for-past-6-months-or-so-strange-sharp-pain-in-groin-area-randomly-attacks-then-leaves/ Mon, 02 Apr 2012 20:52:39 +0000 Asked by Kristin 2 months ago http://answers.ankylosing.org/122055/hi-dealing-with-for-past-6-months-or-so-strange-sharp-pain-in-groin-area-randomly-attacks-then-leaves/ Question: Have you ever found yourself wanting to invite people to come along with you to movies/plays/vacations/etc. But then decided not to invite anyone and just plan to go alone because if you have to cancel because of AS at least you are only letting yourself down and noone else? I find myself doing this a lot lately.... http://answers.ankylosing.org/121691/have-you-ever-found-yourself-wanting-to-invite-people-to-come-along-with-you-to-moviesplaysvacationsetc/ Sun, 25 Mar 2012 17:37:26 +0000 Asked by Susan Skelly 2 months ago http://answers.ankylosing.org/121691/have-you-ever-found-yourself-wanting-to-invite-people-to-come-along-with-you-to-moviesplaysvacationsetc/ Question: I was wondering if any of you suffer from prostatitis caused by your AS? My Doc's keeps saying they don't think this is what is causing it, but it seems as if every time the pain from the AS is bad I get prostatitis. http://answers.ankylosing.org/121459/i-was-wondering-if-any-of-you-suffer-from-prostatitis-caused-by-your-as/ Tue, 20 Mar 2012 17:13:06 +0000 Asked by Duke 2 months ago http://answers.ankylosing.org/121459/i-was-wondering-if-any-of-you-suffer-from-prostatitis-caused-by-your-as/ Question: I finally got diagnosed, and had my first injection of humira 40 mgs. My new Doc said he'll give it a few weeks, and if the pain isn't better we will do injections weekly. Any side effects I should know about? I had some nausea this week, and kind of felt like I had the flu, not body aches, just weakness. Am I going to lose my hair with that much drug? : ( http://answers.ankylosing.org/120925/i-finally-got-diagnosed-and-had-my-first-injection-of-humira-40-mgs-my-new-doc-said-hell-give-it-a/ Thu, 15 Mar 2012 20:20:28 +0000 Asked by Carla 2 months ago http://answers.ankylosing.org/120925/i-finally-got-diagnosed-and-had-my-first-injection-of-humira-40-mgs-my-new-doc-said-hell-give-it-a/ Question: I can't walk without an incredible amount of pain, I am constantly afraid of sneezing, it hurts to laugh. I can't stand up straight. I can't hold my children, I can't even walk holding their hand bc they might hurt me. I can't dress them, change their diapers. I am so itchy from taking Percocet and I'm at the higher end of that medicine, getting little to no relief and afraid of the next step. What was the next step for you? What pain medicine worked best for you? http://answers.ankylosing.org/120908/i-cant-walk-without-an-incredible-amount-of-pain-i-am-constantly-afraid-of-sneezing-it-hurts-to-laugh/ Thu, 15 Mar 2012 15:07:00 +0000 Asked by Abby Webster 2 months ago http://answers.ankylosing.org/120908/i-cant-walk-without-an-incredible-amount-of-pain-i-am-constantly-afraid-of-sneezing-it-hurts-to-laugh/ Question: Now that I am back on Sulfasalazine I'm having some good days that I can at least get out of bed. I have some realistic goals with my riding, but wanting to know does it make it worse if you push yourself on the bad days? Or is it better to rest and take advantage of those good days? The pain never stops, but overall I am feeling better though I will never feel "normal" and am coming to grips with that. http://answers.ankylosing.org/120402/now-that-i-am-back-on-sulfasalazine-im-having-some-good-days-that-i-can-at-least-get-out-of-bed-i-have/ Thu, 08 Mar 2012 17:20:09 +0000 Asked by Tricia Carsley 3 months ago http://answers.ankylosing.org/120402/now-that-i-am-back-on-sulfasalazine-im-having-some-good-days-that-i-can-at-least-get-out-of-bed-i-have/ Question: My pain today is unreal! I need to know how to cope with it. It has been a week since my last injection of Humira....please give me some ideas! I want to cry? http://answers.ankylosing.org/120066/my-pain-today-is-unreal-i-need-to-know-how-to-cope-with-it-it-has-been-a-week-since-my-last-injection/ Tue, 06 Mar 2012 04:35:40 +0000 Asked by Hollie Godfrey 3 months ago http://answers.ankylosing.org/120066/my-pain-today-is-unreal-i-need-to-know-how-to-cope-with-it-it-has-been-a-week-since-my-last-injection/ Question: When you're having a flare are your teeth super sensitive and sometimes just ache? http://answers.ankylosing.org/118787/when-youre-having-a-flare-are-your-teeth-super-sensitive-and-sometimes-just-ache/ Tue, 28 Feb 2012 17:34:27 +0000 Asked by Susan Skelly 3 months ago http://answers.ankylosing.org/118787/when-youre-having-a-flare-are-your-teeth-super-sensitive-and-sometimes-just-ache/ Question: OMG my hands. What do you all do about hand pain and hand stiffness? My hands have ached from time to time over the was years, but they are the worst they've ever been right now. Somewhat swollen but not like sausage fingers, and painful.. Typing this hurts, writing hurts, doing anything with my hands hurts. Anyone try a paraffin hand bath thingy? Did it help? Anything else you can recommend? Does anyone use anything topical for their hand pain? Thanks http://answers.ankylosing.org/118620/omg-my-hands-what-do-you-all-do-about-hand-pain-and-hand-stiffness-my-hands-have-ached-from-time-to/ Sun, 26 Feb 2012 22:02:20 +0000 Asked by Lindsay Cairns 3 months ago http://answers.ankylosing.org/118620/omg-my-hands-what-do-you-all-do-about-hand-pain-and-hand-stiffness-my-hands-have-ached-from-time-to/ Question: I am not a fan of needles at all! Do you think this will be a problem with my pm doc? Will he not take my interest in my treatment seriously? First appt with pm on 3-6, need some advice. http://answers.ankylosing.org/118559/i-am-not-a-fan-of-needles-at-all-do-you-think-this-will-be-a-problem-with-my-pm-doc-will-he-not-take/ Sat, 25 Feb 2012 23:57:02 +0000 Asked by Snowwhite79 3 months ago http://answers.ankylosing.org/118559/i-am-not-a-fan-of-needles-at-all-do-you-think-this-will-be-a-problem-with-my-pm-doc-will-he-not-take/ Question: Hello, I was diagnosed with AS a little over a year ago but have had issues with my back and hips since I was in my teens. I have tried Enbrel and it did bring down some of the swelling. And I can't take any anti-inflammatory meds due to stomach issues. However, my pain has increased greatly. I can't find a pain specialist, that accepts my ins., to help manage my pain and my Rheumy and PCP are unwilling to assist with it. Anyone know of anything else that may help? Or any other type of doctors? http://answers.ankylosing.org/118473/hello-i-was-diagnosed-with-as-a-little-over-a-year-ago-but-have-had-issues-with-my-back-and-hips-since/ Fri, 24 Feb 2012 03:09:37 +0000 Asked by Tiffany Ann 3 months ago http://answers.ankylosing.org/118473/hello-i-was-diagnosed-with-as-a-little-over-a-year-ago-but-have-had-issues-with-my-back-and-hips-since/ Question: Such weird stuff going on. I've had a deep achy pain in my upper right back like bra strap level or higher & pain in left middle finger & pain in left lower back, above pelvis sorta near kidney... Everything is like a ghost pain but keeps persisting. Is something serious about to happen, like rheumatic fever or a flare? http://answers.ankylosing.org/118051/such-weird-stuff-going-on-ive-had-a-deep-achy-pain-in-my-upper-right-back-like-bra-strap-level-or-higher/ Thu, 16 Feb 2012 01:19:21 +0000 Asked by Kristin 3 months ago http://answers.ankylosing.org/118051/such-weird-stuff-going-on-ive-had-a-deep-achy-pain-in-my-upper-right-back-like-bra-strap-level-or-higher/ Question: Hi, I was recently diagnoses with AS, SI Joint Dysfunction, nerve damage and Hashimoto's Thyroiditis, I am waiting on a rheumatologist appt and will be tested for RA as well. Between the first 4 issues I am trying to deal with inflammation, stiffness and severe pain on a weekly basis, at least 3 days a week. Exercise sometimes makes me feel better and many times causes the si joint to spasm and cause pain and inability to stand. Suggestions would be greatly appreciated? http://answers.ankylosing.org/117983/hi-i-was-recently-diagnoses-with-as-si-joint-dysfunction-nerve-damage-and-hashimotos-thyroiditis/ Tue, 14 Feb 2012 23:19:47 +0000 Asked by Nicole 3 months ago http://answers.ankylosing.org/117983/hi-i-was-recently-diagnoses-with-as-si-joint-dysfunction-nerve-damage-and-hashimotos-thyroiditis/ Question: I was just diagnosed with AS and am going to see the Rheumatologist for the first time on Tuesday. I have "impressive" (moderate) arthritis in my SI joints at 32. I also see a spine specialist who actually diagnosed the AS and demanded to see my mom who demonstrated similar symptoms. My question is what do I ask the Rhuematologist? I'm getting more anxious and concerned as the appt nears. I know he'll be doing the HLA B 27 test at the appt, but that's about it. Hate the unknown. http://answers.ankylosing.org/117785/i-was-just-diagnosed-with-as-and-am-going-to-see-the-rheumatologist-for-the-first-time-on-tuesday-i/ Sat, 11 Feb 2012 03:22:33 +0000 Asked by Danielle Henkel 4 months ago http://answers.ankylosing.org/117785/i-was-just-diagnosed-with-as-and-am-going-to-see-the-rheumatologist-for-the-first-time-on-tuesday-i/ Question: Does anyone have any suggestions for extreme pain relief? It hurts to walk, to sit, to lay down. I feel like my hips are broken. That is the best way to explain it...I cannot turn over in bed without screaming and crying. I just got done with a Medrol Dose Pack, I am taking Arthrotec 75mg, and there doesn't seem to be any relief in sight. I am not on any TNF drugs at the moment, but hope to in the next couple of months. Until I can get started on some treatment, any suggestions? http://answers.ankylosing.org/117516/does-anyone-have-any-suggestions-for-extreme-pain-relief/ Tue, 07 Feb 2012 02:14:26 +0000 Asked by Jessica Allen 4 months ago http://answers.ankylosing.org/117516/does-anyone-have-any-suggestions-for-extreme-pain-relief/ Question: Does anyone else feel like the skin over their joints is bruised? The skin over my shoulders, lower back, hips, and sternum feels bruised, but they shouldn't be. http://answers.ankylosing.org/116761/does-anyone-else-feel-like-the-skin-over-their-joints-is-bruised/ Sat, 28 Jan 2012 20:43:27 +0000 Asked by Kathryn 4 months ago http://answers.ankylosing.org/116761/does-anyone-else-feel-like-the-skin-over-their-joints-is-bruised/ Question: Please help. I went to the ER yesterday because the pain was too great, the vicodin was not touching it, and I had new symptoms, and I was scared. Hands were swollen like sausages and shinny. Face, cheeks red and hot. Sore in my nose x 2 mths, drains clear fluid. Morphine 4 cc worked for 30 mins. Blood work came back NEG. ANA will be back 3-5 days. So much sharp stabbing pain, and ESR neg...how? So confused and frustrated. http://answers.ankylosing.org/115994/please-help-i-went-to-the-er-yesterday-because-the-pain-was-too-great-the-vicodin-was-not-touching/ Wed, 18 Jan 2012 13:19:08 +0000 Asked by Carla 4 months ago http://answers.ankylosing.org/115994/please-help-i-went-to-the-er-yesterday-because-the-pain-was-too-great-the-vicodin-was-not-touching/ Question: Hi everyone! I hope you all had a great Christmas! Just contain yourselves and do not overdo it on New Years Eve. LOL I have been diagnosed wit Lupus also. I have a long list of Auto Immune diseases, Lupus, AS, RA, Inclusion Body Myositis, Sjhogrens (hmm, spelling) and some other less important ones. I was wondering if anyone else here seems to have a lot of other Auto Immune Diseases and not just a couple, I am aware you never seem to have just one. Happy New Year to all of you? http://answers.ankylosing.org/114919/hi-everyone-i-hope-you-all-had-a-great-christmas-just-contain-yourselves-and-do-not-overdo-it-on-new/ Fri, 30 Dec 2011 14:32:07 +0000 Asked by Bonnie Breneman 5 months ago http://answers.ankylosing.org/114919/hi-everyone-i-hope-you-all-had-a-great-christmas-just-contain-yourselves-and-do-not-overdo-it-on-new/ Question: Does anyone here "throw their back out" or neck often? Because of AS? http://answers.ankylosing.org/114682/does-anyone-here-throw-their-back-out-or-neck-often/ Sat, 24 Dec 2011 04:55:28 +0000 Asked by Kelly 5 months ago http://answers.ankylosing.org/114682/does-anyone-here-throw-their-back-out-or-neck-often/ Question: What does it feel like, and how do you know if your bones are starting to fuse? http://answers.ankylosing.org/113398/what-does-it-feel-like-and-how-do-you-know-if-your-bones-are-starting-to-fuse/ Tue, 29 Nov 2011 23:00:58 +0000 Asked by Kelly 6 months ago http://answers.ankylosing.org/113398/what-does-it-feel-like-and-how-do-you-know-if-your-bones-are-starting-to-fuse/ Question: Does anyone experience sharp pain in their ankles when walking or have an ankle "give out" on them? I am trying to figure out if this is AS related or something new. Thanks! http://answers.ankylosing.org/112476/does-anyone-experience-sharp-pain-in-their-ankles-when-walking-or-have-an-ankle-give-out-on-them/ Tue, 15 Nov 2011 22:47:07 +0000 Asked by Daryl Morris 7 months ago http://answers.ankylosing.org/112476/does-anyone-experience-sharp-pain-in-their-ankles-when-walking-or-have-an-ankle-give-out-on-them/ Question: Flare control: Just wondering if anyone here has a regimen for controlling your flare ups, whether it's prescribed by your Rheumy or just what you've come to rely on? I've had an ongoing flare for well over a week and it's pretty miserable despite pain meds. I'm curious if anyone has their own method for quelling inflammation or if your Rheumy starts you on steroids for particularly bad bouts, etc. Unfortunately, my Rheumy isn't very attuned to treating AS, and my choices are limited. http://answers.ankylosing.org/112398/flare-control-just-wondering-if-anyone-here-has-a-regimen-for-controlling-your-flare-ups-whether-its/ Mon, 14 Nov 2011 20:21:39 +0000 Asked by Tim 7 months ago http://answers.ankylosing.org/112398/flare-control-just-wondering-if-anyone-here-has-a-regimen-for-controlling-your-flare-ups-whether-its/ Question: Hello everyone. Been a long time. Not much has changed. Still no Rheumy in our town. I got dx with Iritis and put on fluormetholone drops, return in 3 wks. Also have bumps in my hair and hair line that itch and scab up, and bumpy rash down both legs. Hoping one of my other doctors will put it all together soon. Pain in si joints (and other joints) is horrible, fatigue is worse, rt leg goes out and I fall, but none of them ask why? :( Sorry to vent... http://answers.ankylosing.org/112356/hello-everyone-been-a-long-time-not-much-has-changed-still-no-rheumy-in-our-town-i-got-dx-with-iritis/ Mon, 14 Nov 2011 01:45:12 +0000 Asked by Carla 7 months ago http://answers.ankylosing.org/112356/hello-everyone-been-a-long-time-not-much-has-changed-still-no-rheumy-in-our-town-i-got-dx-with-iritis/ Question: Not diagnosed but have a lot of sx that fit. Anyone else think so? 4 yrs ago, developed bad joint, muscle pain, daily fevers and fatigue. Fast forward to May of this year, have all the above sx but have developed severe low back and SI joint pain that wraps around to my hips, groin and down my thighs. Pain is like a nagging, agonizing, burning toothache. I've also developed bad heel pain. CRP off the charts. Will be seeing my rheumy on Wed. For more testing,etc. http://answers.ankylosing.org/112288/not-diagnosed-but-have-a-lot-of-sx-that-fit-anyone-else-think-so/ Sun, 13 Nov 2011 18:23:51 +0000 Asked by Olivia Wendt Sundby 7 months ago http://answers.ankylosing.org/112288/not-diagnosed-but-have-a-lot-of-sx-that-fit-anyone-else-think-so/ Question: For the past month or so when I first get out of bed and after sitting for awhile, i have this awful pain in my right foot & a bit in left). But it is across the top at the widest part. When I have to walk down the stairs in the morning, I cannot place my feet flat on the step - I have to walk down as if I am on tip toe or it kills! After a few minutes of moving around I am good - til the next time. What is that! Never had it before. Related to sciatica maybe? http://answers.ankylosing.org/111927/for-the-past-month-or-so-when-i-first-get-out-of-bed-and-after-sitting-for-awhile-i-have-this-awful/ Tue, 08 Nov 2011 01:27:42 +0000 Asked by Kimberley Harvey Pierce 7 months ago http://answers.ankylosing.org/111927/for-the-past-month-or-so-when-i-first-get-out-of-bed-and-after-sitting-for-awhile-i-have-this-awful/ Question: Hi all as sufferers,my as is getting worse the pain and stiffniss in my fingers is bad.only thing that eases pain is me good old hot water bottle? http://answers.ankylosing.org/111026/hi-all-as-sufferersmy-as-is-getting-worse-the-pain-and-stiffniss-in-my-fingers-is-badonly-thing-that/ Sat, 05 Nov 2011 10:39:56 +0000 Asked by Mick Knox 7 months ago http://answers.ankylosing.org/111026/hi-all-as-sufferersmy-as-is-getting-worse-the-pain-and-stiffniss-in-my-fingers-is-badonly-thing-that/ Question: Lower back pain behind kidneys around the cartilage area. Left hip pain (throbs, radiates thru buttock & thigh down 2 knee). Neck pain(always cracking it 2 relieve the pressure) , shoulder(sharp pain when lifting arm overhead) , elbows(burning sensation) , constant headaches. Naproxen helps 4 headaches only. Had several cortizone shots & prednisone, pain comes back. On sulfasalazine 4 one wk so far but read it can take up to 3 months to c results. HLA-B27+ but not diagnosed 4 anything yet. Help? http://answers.ankylosing.org/108176/lower-back-pain-behind-kidneys-around-the-cartilage-area-left-hip-pain-throbs-radiates-thru-buttock/ Tue, 25 Oct 2011 21:15:16 +0000 Asked by Sal Piskorz 7 months ago http://answers.ankylosing.org/108176/lower-back-pain-behind-kidneys-around-the-cartilage-area-left-hip-pain-throbs-radiates-thru-buttock/ Question: Does anyone else have extreme tenderness on their back and back of legs? Mine are so bad that my clothes hurt touching me. I had a SI injection in Monday. Things got worse. Any ideas? http://answers.ankylosing.org/107954/does-anyone-else-have-extreme-tenderness-on-their-back-and-back-of-legs/ Sat, 22 Oct 2011 04:25:21 +0000 Asked by Daniel Garcia 8 months ago http://answers.ankylosing.org/107954/does-anyone-else-have-extreme-tenderness-on-their-back-and-back-of-legs/ Question: Fatigue flares! Just saw my pain doc and he doesn't yet believe that barometric pressure/seasonal changes can cause pain and fatigue flares. He suggested I may have narcolepsy or that I may need a sleep study to explain why these sudden fatigue fits happen and cause me to drop asleep a few times per month. Sigh. We are going to try tapering one of my meds which can cause drowsiness to see if it changes things. My rheumy point-blank said that *all* of his patients react to pressure. Sigh? http://answers.ankylosing.org/107802/fatigue-flares-just-saw-my-pain-doc-and-he-doesnt-yet-believe-that-barometric-pressureseasonal-changes/ Thu, 20 Oct 2011 00:17:53 +0000 Asked by Rose Bigham 8 months ago http://answers.ankylosing.org/107802/fatigue-flares-just-saw-my-pain-doc-and-he-doesnt-yet-believe-that-barometric-pressureseasonal-changes/ Question: This is my last post? http://answers.ankylosing.org/107717/this-is-my-last-post/ Wed, 19 Oct 2011 10:31:02 +0000 Asked by Steve 8 months ago http://answers.ankylosing.org/107717/this-is-my-last-post/ Question: Ok so on the recommendation of many i made an appointment with a pain clinic...they called me last week to get me in sooner and my appointment is tomorrow morning. Im kinda nervous because their book of paperwork says their main focus is joint injections and well thanks to you tube and my fear of needles im now terrified! It also says they do not manage narcotics? Huh? (thats what i said) but then the very next page is an opioid contract? What should i expect? http://answers.ankylosing.org/107006/ok-so-on-the-recommendation-of-many-i-made-an-appointment-with-a-pain-clinicthey-called-me-last-week/ Mon, 10 Oct 2011 23:41:57 +0000 Asked by Heather Gamble 8 months ago http://answers.ankylosing.org/107006/ok-so-on-the-recommendation-of-many-i-made-an-appointment-with-a-pain-clinicthey-called-me-last-week/ Question: WHERE ARE THE MODERATORS?!?!?! I really cant be the only person here who came to ask an AS related question but decided why bother because id rather not wind up with 20 some posts about a miracle diet! This site used to be helpful i used to take solace here in knowing that other people had the same issues. Now i cant even bother to ask a legitimate question for fear ill just get trolled...trolls on every post...lotsa troll questions...somebody fix this please! http://answers.ankylosing.org/106832/where-are-the-moderators/ Fri, 07 Oct 2011 20:13:50 +0000 Asked by Heather Gamble 8 months ago http://answers.ankylosing.org/106832/where-are-the-moderators/ Question: I started Humira in June. The pain during injections (pen) seems to be getting worse. I've been injecting in my thighs. Has anyone gone from their thighs to stomach and noticed less pain? http://answers.ankylosing.org/105636/i-started-humira-in-june-the-pain-during-injections-pen-seems-to-be-getting-worse-ive-been-injecting/ Thu, 15 Sep 2011 12:58:48 +0000 Asked by Stacy 9 months ago http://answers.ankylosing.org/105636/i-started-humira-in-june-the-pain-during-injections-pen-seems-to-be-getting-worse-ive-been-injecting/ Question: So my 13 year old 2 day ago started complaining about tail bone pain. Guess this is not a question, but stating a worry? http://answers.ankylosing.org/105616/so-my-13-year-old-2-day-ago-started-complaining-about-tail-bone-pain-guess-this-is-not-a-question-but/ Thu, 15 Sep 2011 01:06:33 +0000 Asked by Rhonda Trimble 9 months ago http://answers.ankylosing.org/105616/so-my-13-year-old-2-day-ago-started-complaining-about-tail-bone-pain-guess-this-is-not-a-question-but/ Question: So i went to a DO who thinks i may have AS i made an appointment with a rheumy but oct 12th is the earliest appointment i could get. What can i expect as far as the rheumy appointment goes? I have a major phobia about doctors and im kinda scared. So anyone know what kind of tests to expect and such? Also im still in a lot of pain im taking ibuprofen any suggestions on how to get through it till i can get to the rheumatologist? http://answers.ankylosing.org/105268/so-i-went-to-a-do-who-thinks-i-may-have-as-i-made-an-appointment-with-a-rheumy-but-oct-12th-is-the-earliest/ Sat, 10 Sep 2011 20:55:13 +0000 Asked by Heather Gamble 9 months ago http://answers.ankylosing.org/105268/so-i-went-to-a-do-who-thinks-i-may-have-as-i-made-an-appointment-with-a-rheumy-but-oct-12th-is-the-earliest/ Question: Anyone have tingling, burning.. Lack of feeling in their hands? I started last night with spasm in my neck and thoracic spine and ribs for absolutely no reason what so ever. I had a hard time sleeping, took some pain meds and that helped a bit. Now this morning the spasm seems to have settled from my neck but still in upper back and my hands feel tingly or hot or... Not completely normal. Anyone else have this feeling in their hands when having pain and spasm in thoracic spine? http://answers.ankylosing.org/105244/anyone-have-tingling-burning-lack-of-feeling-in-their-hands/ Sat, 10 Sep 2011 11:25:37 +0000 Asked by Lindsay Cairns 9 months ago http://answers.ankylosing.org/105244/anyone-have-tingling-burning-lack-of-feeling-in-their-hands/ Question: Anyone have severe back spasms and/or severe back and hip pain after remicade treatment? I've been on remicade for 1 year and after my most recent treatment i've been in this condition. I'm taking muscle relaxers and norco regularly just to be able to function. My rheumy doesn't feel like its associated with my psoriatic arthritis but more of a spasm. http://answers.ankylosing.org/105143/anyone-have-severe-back-spasms-andor-severe-back-and-hip-pain-after-remicade-treatment/ Thu, 08 Sep 2011 15:22:35 +0000 Asked by Karen 9 months ago http://answers.ankylosing.org/105143/anyone-have-severe-back-spasms-andor-severe-back-and-hip-pain-after-remicade-treatment/ Question: Hi I was recently told that my L4 and sacrum have fused and that i may have ankylosing spondylitis. I am in EXTREME pain! I saw a DO yesterday who said I need a rheumatologist I cant get an appointment till NOVEMBER 16th! I cannot walk, sit or sleep I am in a lot of pain! The DO gave me voltaren and was going to give me tramadol but I have a bad reaction to it. Im still in a lot of pain where can I get help? I cant stay like this till november! http://answers.ankylosing.org/104793/hi-i-was-recently-told-that-my-l4-and-sacrum-have-fused-and-that-i-may-have-ankylosing-spondylitis-i/ Fri, 02 Sep 2011 15:29:25 +0000 Asked by Heather Gamble 9 months ago http://answers.ankylosing.org/104793/hi-i-was-recently-told-that-my-l4-and-sacrum-have-fused-and-that-i-may-have-ankylosing-spondylitis-i/ Question: Looking for some candid answers. Am on Tramadol and Hydrocodone for the pain for about 2 years, since I moved I have to establish care with new docs, but you even mention those drugs and get looked at like a druggy. I tried to do without for 2 1/2 weeks, and was seriously contemplating suicide because of the intense constant pain and some serious life issues. I am also dependant on Sulfasalazine to get out of bed, but have I become too dependant on the meds? Withdrawals weren't bad, just pain . http://answers.ankylosing.org/104390/looking-for-some-candid-answers-am-on-tramadol-and-hydrocodone-for-the-pain-for-about-2-years-since/ Tue, 30 Aug 2011 06:12:59 +0000 Asked by Tricia Carsley 9 months ago http://answers.ankylosing.org/104390/looking-for-some-candid-answers-am-on-tramadol-and-hydrocodone-for-the-pain-for-about-2-years-since/ Question: Can you tell me about your stiffness? I am pretty new to all this, and I get days.. Like today. Where honestly I feel like my whole body does not want to move, where i'm so stiff, breathing is hard, walking is hard, standing is hard. BUt it's not like excruciating pain, or anything like that... I just feel stiff all over, head to toe... Anyone? http://answers.ankylosing.org/103320/can-you-tell-me-about-your-stiffness/ Thu, 25 Aug 2011 17:14:38 +0000 Asked by Lindsay Cairns 10 months ago http://answers.ankylosing.org/103320/can-you-tell-me-about-your-stiffness/ Question: HI Amori99, you sound like me 18 years ago. Metatarsal pain, nerve pain-both feet, dozens of nerve block injections (still) orthotics, otc and several custom pairs. They need recovering now too. Years of epidurals, P.T. , aqua therapy neurontin, lexapro, you name it, regular visits to the podiatrist. I just happened to pass this page and I saw your description. I don't know much about these sites and signing up, but if you want to write me, I'm at Thanks... J.P? http://answers.ankylosing.org/100421/hi-amori99-you-sound-like-me-18-years-ago-metatarsal-pain-nerve-pain-both-feet-dozens-of-nerve-block/ Thu, 11 Aug 2011 18:59:29 +0000 Asked by Jp 10 months ago http://answers.ankylosing.org/100421/hi-amori99-you-sound-like-me-18-years-ago-metatarsal-pain-nerve-pain-both-feet-dozens-of-nerve-block/ Question: I moved from Boston to Colorado. I had scripts to cover my pain meds while I got a new Dr. Laws in CO wouldn't except the scripts. Can't see Dr til 17th coz of insurance issues. Keep going to ER, only to get 1-2days of meds & sent home. Advice? Plz! I've never been in so much pain! http://answers.ankylosing.org/100079/i-moved-from-boston-to-colorado-i-had-scripts-to-cover-my-pain-meds-while-i-got-a-new-dr-laws-in-co/ Sun, 07 Aug 2011 04:51:33 +0000 Asked by Kerry Monique Gaude' 10 months ago http://answers.ankylosing.org/100079/i-moved-from-boston-to-colorado-i-had-scripts-to-cover-my-pain-meds-while-i-got-a-new-dr-laws-in-co/ Question: I have been out of my sulfasalazine for several weeks, and can't get in to a rheumatologist till the 22. I know I should have planned the move better and set it up ahead of time, but I didn't so here I am. My ankles are swelling up the size of watermelons, and my back is killing me. Am already taking NSAIDs so I am looking for suggestions to get by until I see the rheumy. I HAVE to work in the meantime? http://answers.ankylosing.org/99897/i-have-been-out-of-my-sulfasalazine-for-several-weeks-and-cant-get-in-to-a-rheumatologist-till-the/ Thu, 04 Aug 2011 00:39:50 +0000 Asked by Tricia Carsley 10 months ago http://answers.ankylosing.org/99897/i-have-been-out-of-my-sulfasalazine-for-several-weeks-and-cant-get-in-to-a-rheumatologist-till-the/ Question: Good news, no bone cancer. Other news, new doctor said SI joints aren't "completely fused", but he wouldn't even try to get a needle in to do injections. Can't people get one story straight? New MRI in the morning to see if ruptured disc causing groin pain, hip pain, down the leg pain, etc. Maybe it's SI joints, he says, but lets see. Asked if it's AS for sure, now says, "why would you want that label?" SO frustrated! New appointment Friday AM. http://answers.ankylosing.org/99601/good-news-no-bone-cancer-other-news-new-doctor-said-si-joints-arent-completely-fused-but-he-wouldnt/ Tue, 02 Aug 2011 16:10:35 +0000 Asked by Carla 10 months ago http://answers.ankylosing.org/99601/good-news-no-bone-cancer-other-news-new-doctor-said-si-joints-arent-completely-fused-but-he-wouldnt/ Question: I am starting a new job in one week. I've decided to declare that I need my service animal 2-3 days/week, but not to elaborate further about my condition just yet. This will be my first new job ever. Any advice? I plan to pace myself as much as I can ... While trying to build a good reputation out of the gate ... Finding that balance will be a challenge. http://answers.ankylosing.org/97548/i-am-starting-a-new-job-in-one-week-ive-decided-to-declare-that-i-need-my-service-animal-2-3-daysweek/ Mon, 25 Jul 2011 04:10:41 +0000 Asked by Rose Bigham 11 months ago http://answers.ankylosing.org/97548/i-am-starting-a-new-job-in-one-week-ive-decided-to-declare-that-i-need-my-service-animal-2-3-daysweek/ Question: Hello everyone, been along time. Spent yesterday in the ER after leg going out and missing the couch when sitting. Xrays didn't show any fractures, but did show a "lesion" on hip bone. Wouldn't discuss with me, only referred me back to ortho on 26th. Increased meds to Norco 10. Asked if I had any problems with incontinence. Any ideas about Lesions or incontinence? http://answers.ankylosing.org/96686/hello-everyone-been-along-time-spent-yesterday-in-the-er-after-leg-going-out-and-missing-the-couch/ Tue, 19 Jul 2011 13:38:18 +0000 Asked by Carla 11 months ago http://answers.ankylosing.org/96686/hello-everyone-been-along-time-spent-yesterday-in-the-er-after-leg-going-out-and-missing-the-couch/ Question: Current drama... See below and any advice is appreciated! Thanks? http://answers.ankylosing.org/96092/current-drama-see-below-and-any-advice-is-appreciated-thanks/ Sat, 16 Jul 2011 03:20:34 +0000 Asked by Kristin 11 months ago http://answers.ankylosing.org/96092/current-drama-see-below-and-any-advice-is-appreciated-thanks/ Question: I am so confused. I am HLA-B27 Positive. I have neck pain, herniated and degenerative disc, (hip, knee, elbow, shoulder, ankle and wrist pain). I am having trouble walking and cutting up my own food due to my knees and wrists. My doctor said its not AS because I have no joint damage or visible swelling. I am in pain constantly and my neck is basically deformed at this point. It leans so far forward it feels like I cant hold my head up. Doctor thought maybe lupus but ANA is negative. Please help? http://answers.ankylosing.org/96087/i-am-so-confused-i-am-hla-b27-positive-i-have-neck-pain-herniated-and-degenerative-disc-hip-knee/ Sat, 16 Jul 2011 02:21:01 +0000 Asked by Kourtenay 11 months ago http://answers.ankylosing.org/96087/i-am-so-confused-i-am-hla-b27-positive-i-have-neck-pain-herniated-and-degenerative-disc-hip-knee/ Question: I have noticed that if I eat sweets, my pain is worse. I was told to look out for this by a friend that has lupus. I am still convinced that my re last infusion in 2009 might be one of the reasons i have this now. Grr? http://answers.ankylosing.org/95651/i-have-noticed-that-if-i-eat-sweets-my-pain-is-worse-i-was-told-to-look-out-for-this-by-a-friend-that/ Wed, 13 Jul 2011 04:33:42 +0000 Asked by Tina 11 months ago http://answers.ankylosing.org/95651/i-have-noticed-that-if-i-eat-sweets-my-pain-is-worse-i-was-told-to-look-out-for-this-by-a-friend-that/ Question: Hi, my son is 10 and has been dx with Juv. Spondy but has alot of symptoms like an adult would have w/ AS. He took his 1st Remicade infusion and did well. But has any one moved to a drier state , like Arizona? We live I'n Florida w/ high humidity. Wondering if it helped anyone http://answers.ankylosing.org/95391/hi-my-son-is-10-and-has-been-dx-with-juv-spondy-but-has-alot-of-symptoms-like-an-adult-would-have-w/ Fri, 08 Jul 2011 17:07:59 +0000 Asked by Beth Davis 11 months ago http://answers.ankylosing.org/95391/hi-my-son-is-10-and-has-been-dx-with-juv-spondy-but-has-alot-of-symptoms-like-an-adult-would-have-w/ Question: Has anyone else tried Elavil (Amitriptyline)? My doctor started me on it three weeks ago to help with the anxiety and to help me sleep. She also said that it has been used for many years to treat nerve pain. I've noticed a big difference in both my mood and pain levels. I still have the usual stiffness and pain up and down the spine, but those annoying little aches and pains are gone. I would say that I feel better overall and it has helped with my energy levels. http://answers.ankylosing.org/95261/has-anyone-else-tried-elavil-amitriptyline/ Thu, 07 Jul 2011 05:51:33 +0000 Asked by Michael Rowley 11 months ago http://answers.ankylosing.org/95261/has-anyone-else-tried-elavil-amitriptyline/ Question: Can anyone tell me the difference between AS and cervical spondylosis? I have read about that too in my research; I don't have joint pain but the pain is in my spine. http://answers.ankylosing.org/95252/can-anyone-tell-me-the-difference-between-as-and-cervical-spondylosis/ Thu, 07 Jul 2011 01:19:45 +0000 Asked by Paula 11 months ago http://answers.ankylosing.org/95252/can-anyone-tell-me-the-difference-between-as-and-cervical-spondylosis/ Question: I got this email from my doctor today, he made me go in on Friday for an Emergency CT scan with contrast: The CT scan of your neck shows numerous small lymph nodes in the neck. They said the size of the nodes are not remarkable but the number of nodes are. I think the next step is to get a biopsy of the nodes. I will contact Head and Neck surgery on Tuesday so that they may evaluate you ASAP for a biopsy. Has anyone had this, he is checking for cancers as well? http://answers.ankylosing.org/94855/i-got-this-email-from-my-doctor-today-he-made-me-go-in-on-friday-for-an-emergency-ct-scan-with-contrast/ Mon, 04 Jul 2011 04:31:43 +0000 Asked by Sasha 11 months ago http://answers.ankylosing.org/94855/i-got-this-email-from-my-doctor-today-he-made-me-go-in-on-friday-for-an-emergency-ct-scan-with-contrast/ Question: Has anyone had a pain pump implanted? Does it work better than all of the freaking pills everyday? http://answers.ankylosing.org/94715/has-anyone-had-a-pain-pump-implanted/ Sat, 02 Jul 2011 18:35:16 +0000 Asked by As Sufferer 12 months ago http://answers.ankylosing.org/94715/has-anyone-had-a-pain-pump-implanted/ Question: Does anyone have recommendations on what pain meds to take?I kinda felt attacked when I said I was on long acting Oxycotin 2x a day and Percocet when needed.I've been on Motrin 800mg every 4 hours, was on Nabutone and on Tramodol. Any suggestions so I don't have to be on narcotics? http://answers.ankylosing.org/94272/does-anyone-have-recommendations-on-what-pain-meds-to-take/ Tue, 28 Jun 2011 23:44:06 +0000 Asked by Sasha 12 months ago http://answers.ankylosing.org/94272/does-anyone-have-recommendations-on-what-pain-meds-to-take/ Question: I am taking 20 mg of Oxycontin in the morning and 20 mg of Oxycontin at night for the pain right now. It's not working as well as it had in the past, but I haven't started the MTX or TNF's yet, can't until 7/25, so controlling the pain.I take 10mg Percocet for the breakthrough pain.When I signed the pain med contract they said I should take 2 Senokot a night (veggie based laxative) to help with the constipation.I have to take 3 or 4 and twice a day to go? http://answers.ankylosing.org/94201/i-am-taking-20-mg-of-oxycontin-in-the-morning-and-20-mg-of-oxycontin-at-night-for-the-pain-right-now/ Tue, 28 Jun 2011 09:48:26 +0000 Asked by Sasha 12 months ago http://answers.ankylosing.org/94201/i-am-taking-20-mg-of-oxycontin-in-the-morning-and-20-mg-of-oxycontin-at-night-for-the-pain-right-now/ Question: Bruce my 10 year has Juvenile Spondylitis w/ Enthesitis related arthritis and Ulcerative Colitis. Been on MTX which made him foggy. Enbrel which only worked for 8 weeks and exacerbated the UC. Now were on Oriencia since Feb and doesnt work, Aug looking at Remicade, any one have bad painin shin/knee? No sleep for him, too http://answers.ankylosing.org/93980/bruce-my-10-year-has-juvenile-spondylitis-w-enthesitis-related-arthritis-and-ulcerative-colitis-been/ Sun, 26 Jun 2011 15:42:59 +0000 Asked by Beth Davis 12 months ago http://answers.ankylosing.org/93980/bruce-my-10-year-has-juvenile-spondylitis-w-enthesitis-related-arthritis-and-ulcerative-colitis-been/ Question: Had liver biopsy, results are "liver congestion" and specimen being sent to Mayo Clinic for further interpretation. Freaking out. Could AS cause liver inflammation or damage? Online it says this could be heart related. I have fast heart rate but heart doc did tests that show no problems. Help?!? http://answers.ankylosing.org/93905/had-liver-biopsy-results-are-liver-congestion-and-specimen-being-sent-to-mayo-clinic-for-further-interpretation/ Sat, 25 Jun 2011 23:30:00 +0000 Asked by Kristin 12 months ago http://answers.ankylosing.org/93905/had-liver-biopsy-results-are-liver-congestion-and-specimen-being-sent-to-mayo-clinic-for-further-interpretation/ Question: My SI joints are severely affected by AS to the point of making it difficult for me to sit and walk. I also have a lot of sciatic like pain I assume is from the inflamed SI joints. Does anyone else have this issue? If so, what test did you have to confirm it? MRI, xray, CT scan...? Also, what is working for you for pain and also to make sitting a little easier? I've tried just about everything. http://answers.ankylosing.org/93632/my-si-joints-are-severely-affected-by-as-to-the-point-of-making-it-difficult-for-me-to-sit-and-walk/ Thu, 23 Jun 2011 13:55:10 +0000 Asked by Marji Page 12 months ago http://answers.ankylosing.org/93632/my-si-joints-are-severely-affected-by-as-to-the-point-of-making-it-difficult-for-me-to-sit-and-walk/ Question: Are there any medications with minimal side effects? I have tried a very strict diet, yoga, and herbs but i am afraid that is not enough.. I am scared to take medication though. Any thoughts? http://answers.ankylosing.org/92995/are-there-any-medications-with-minimal-side-effects/ Sat, 18 Jun 2011 04:51:21 +0000 Asked by Kelly 1 year ago http://answers.ankylosing.org/92995/are-there-any-medications-with-minimal-side-effects/ Question: My doctor referred me to see a Neurologist and I am going to see her July 11th to go over my symptoms and medication. I told her that I believe my headaches are from the neck pain and I think the muscle relaxant that I am on, baclofen, may be causing the headaches. I have another appt on July 13th to have botox injections in the back of my head to help stop the headaches, as they start pretty bad and develop into migraines for days, has anyone else had this problem, this treatment? http://answers.ankylosing.org/92898/my-doctor-referred-me-to-see-a-neurologist-and-i-am-going-to-see-her-july-11th-to-go-over-my-symptoms/ Fri, 17 Jun 2011 11:39:58 +0000 Asked by Sasha 1 year ago http://answers.ankylosing.org/92898/my-doctor-referred-me-to-see-a-neurologist-and-i-am-going-to-see-her-july-11th-to-go-over-my-symptoms/ Question: Wondering if anyone else has problems using household chemicals such as comet, 409, kaboom, ect. I have started to notice on cleaning day that I am at my worst for pain. With AS being an auto-immune disease it makes sense that the chemicals could be a contributing factor? http://answers.ankylosing.org/92476/wondering-if-anyone-else-has-problems-using-household-chemicals-such-as-comet-409-kaboom-ect-i-have/ Tue, 14 Jun 2011 10:28:59 +0000 Asked by Terry Eldred 1 year ago http://answers.ankylosing.org/92476/wondering-if-anyone-else-has-problems-using-household-chemicals-such-as-comet-409-kaboom-ect-i-have/ Question: I am moving to a colder climate, as I cannot stand the heat. I am wondering if anyone has issues with the arthritis and cold weather? http://answers.ankylosing.org/92452/i-am-moving-to-a-colder-climate-as-i-cannot-stand-the-heat-i-am-wondering-if-anyone-has-issues-with/ Tue, 14 Jun 2011 06:11:56 +0000 Asked by Tricia Carsley 1 year ago http://answers.ankylosing.org/92452/i-am-moving-to-a-colder-climate-as-i-cannot-stand-the-heat-i-am-wondering-if-anyone-has-issues-with/ Question: RIB PAIN Does anyone have any meaningful way of dealing with the ache in your ribs? I get through about half the day (typically) without much pain and then it starts to ache like i've gone a round in the ring with Tyson. Other than drugs, has anyone found anything that helps allieviate these annoying symptoms. Sometimes it HURTS and it's actual pain but much of the time it's just an ache, a heaviness like i've been squished! http://answers.ankylosing.org/92258/rib-pain-does-anyone-have-any-meaningful-way-of-dealing-with-the-ache-in-your-ribs/ Mon, 13 Jun 2011 18:49:27 +0000 Asked by Lindsay Cairns 1 year ago http://answers.ankylosing.org/92258/rib-pain-does-anyone-have-any-meaningful-way-of-dealing-with-the-ache-in-your-ribs/ Question: I'm going in for a second MRI tomorrow where they have to inject contrast for my cervical and throasic spine, it's going to be open, them having to put a big brace on me and strapping me down to the table so I don't move made me have a panic attack and just break down crying, I have been a wreck all day today, they gave me valium for before the MRI but I can't seem to calm my nerves, can anyone help or does anyone have any suggestions? I'd really appreciate them :( http://answers.ankylosing.org/91356/im-going-in-for-a-second-mri-tomorrow-where-they-have-to-inject-contrast-for-my-cervical-and-throasic/ Mon, 13 Jun 2011 01:11:41 +0000 Asked by Sasha 1 year ago http://answers.ankylosing.org/91356/im-going-in-for-a-second-mri-tomorrow-where-they-have-to-inject-contrast-for-my-cervical-and-throasic/ Question: What do you do for the pain when you're at home and sitting down like watching TV or reading? What do you do in bed to help the pain? I can't lay flat so that's not even an issue but when I do on my side my hip hurts, my chest has started to hurt and not to be graphic but my nipple on that side has started to hurt, and if I'm on the side too long that hand/arm goes numb. What heating packs have you found work for you? Hand held massager recommendations? http://answers.ankylosing.org/90266/what-do-you-do-for-the-pain-when-youre-at-home-and-sitting-down-like-watching-tv-or-reading-what-do/ Sat, 11 Jun 2011 05:15:48 +0000 Asked by Sasha 1 year ago http://answers.ankylosing.org/90266/what-do-you-do-for-the-pain-when-youre-at-home-and-sitting-down-like-watching-tv-or-reading-what-do/ Question: Do any of you have Fibromyalgia as well as AS? Or RA and AS? What are your specific symptoms? I'm sorry I'm asking so many questions, I have a second MRI on Monday of my neck and middle spine and it's with contrast because they saw something. They said they also see degeneration in my spine and bulging discs, is this a result of AS?I don't know the terms for the parts of the neck and spine. I just want to push for a diagnosis and stop being a damn guinea pig and pushed aside. http://answers.ankylosing.org/89911/do-any-of-you-have-fibromyalgia-as-well-as-as-or-ra-and-as-what-are-your-specific-symptoms-im-sorry/ Wed, 08 Jun 2011 06:05:38 +0000 Asked by Sasha 1 year ago http://answers.ankylosing.org/89911/do-any-of-you-have-fibromyalgia-as-well-as-as-or-ra-and-as-what-are-your-specific-symptoms-im-sorry/ Question: The Rhem. Gave me a suspected DX of spondyloarthropathy. I had a 3 part MRI this week but had a panic attack with the neck so I had the neck and lower back done and have to go back for the middle, what is fusion and what if the MRI doesn't show it? Will Methotrexate help it? He wants me on that? I read that it's for R.A though. What has helped you?I want to make sure I'm educated before I go on anything. What are the uvetitis flares I'm hearing about I see the Eye doc in a week as well. http://answers.ankylosing.org/89557/the-rhem-gave-me-a-suspected-dx-of-spondyloarthropathy-i-had-a-3-part-mri-this-week-but-had-a-panic/ Sun, 05 Jun 2011 09:05:14 +0000 Asked by Sasha 1 year ago http://answers.ankylosing.org/89557/the-rhem-gave-me-a-suspected-dx-of-spondyloarthropathy-i-had-a-3-part-mri-this-week-but-had-a-panic/ Question: Not so much of a qustion, but I have my hearing today for disability, I hurt so bad I don't even feel like going. I don't like to wish ill on anyone. Sometimes I wish the people that have been hired to judge people like us would have a week of the pain that we have almost every day of our lives? http://answers.ankylosing.org/89333/not-so-much-of-a-qustion-but-i-have-my-hearing-today-for-disability-i-hurt-so-bad-i-dont-even-feel/ Fri, 03 Jun 2011 13:54:27 +0000 Asked by Tim Cassidy 1 year ago http://answers.ankylosing.org/89333/not-so-much-of-a-qustion-but-i-have-my-hearing-today-for-disability-i-hurt-so-bad-i-dont-even-feel/ Question: Pain medications... I found myself a new physician, yesterday. I meet with him June 27th, he specializes in treating chronic pain. Anyway, I am meeting with him to discuss a second opinion rheumy, pain medication, and just every little question I can think of and write down. I wanted to know what kind of pain meds you are all on. I am not taking anything for pain right now, just Naproxen for inflammation and Nortriptyline to help with sleep. Thanks in advance? http://answers.ankylosing.org/89219/pain-medications-i-found-myself-a-new-physician-yesterday-i-meet-with-him-june-27th-he-specializes/ Thu, 02 Jun 2011 18:20:16 +0000 Asked by Lindsay Cairns 1 year ago http://answers.ankylosing.org/89219/pain-medications-i-found-myself-a-new-physician-yesterday-i-meet-with-him-june-27th-he-specializes/ Question: Stress at home, work, and recent personal experience with discrimination has really got me down. I am quickly losing faith in God and humanity. These are the days I really wonder why, and what can be done to change it? It's hard to see anything positive when everything hurts, emotionally, spiritually, and physically. Here's a prayer with what little I have left that a few things go right to change my outlook and find the positive I still hope this life has to offer http://answers.ankylosing.org/89050/stress-at-home-work-and-recent-personal-experience-with-discrimination-has-really-got-me-down-i-am/ Wed, 01 Jun 2011 10:46:13 +0000 Asked by Tricia Carsley 1 year ago http://answers.ankylosing.org/89050/stress-at-home-work-and-recent-personal-experience-with-discrimination-has-really-got-me-down-i-am/ Question: So...I've recently found out that my SI joints are at a fusion 3 (0 being normal and 4 being completely fused). I guess this explains why nothing, not even minimal exercise, helps with my pain. I've tried the "magical diets", TNF drugs, NSAIDS, and I'm trying to get into a clinical trial...Anyone have any wonderful ideas for pain relief? Anyone at this stage in their AS? It's very frustrating. Heat is way too painful...so heating pads are out of the question... http://answers.ankylosing.org/88319/soive-recently-found-out-that-my-si-joints-are-at-a-fusion-3-0-being-normal-and-4-being-completely/ Sat, 28 May 2011 01:31:48 +0000 Asked by Jessica Allen 1 year ago http://answers.ankylosing.org/88319/soive-recently-found-out-that-my-si-joints-are-at-a-fusion-3-0-being-normal-and-4-being-completely/ Question: I do not have a formal diagnoses yet, just Spondylitis with disk herniation on the cervical, thoracic, AND lumbar of my back at only 35. Back pain is excrutiating and until I tested positive for the HLA-B27 gene. I also have tendonities and plantar fasciatis. As an RN I make a terrible patient. MD has put me on Sulfasalazine, has anyone had any luck with this drug in thier treatment? I have been miserable for 2 years and just want my life back. Hydroxychloroquine was already tried http://answers.ankylosing.org/86396/i-do-not-have-a-formal-diagnoses-yet-just-spondylitis-with-disk-herniation-on-the-cervical-thoracic/ Wed, 11 May 2011 02:55:12 +0000 Asked by Tricia Carsley 1 year ago http://answers.ankylosing.org/86396/i-do-not-have-a-formal-diagnoses-yet-just-spondylitis-with-disk-herniation-on-the-cervical-thoracic/ Question: Ok VERY frustrated, feel like my doctors think I am a big fat joke, I have continual pain in upper back MRI normal, and SI pain controlled by HUMIRA. Any suggestions? Those with fibro how did you get diagnosis? Thanks http://answers.ankylosing.org/85752/ok-very-frustrated-feel-like-my-doctors-think-i-am-a-big-fat-joke-i-have-continual-pain-in-upper-back/ Thu, 05 May 2011 06:03:39 +0000 Asked by Roman Reid 1 year ago http://answers.ankylosing.org/85752/ok-very-frustrated-feel-like-my-doctors-think-i-am-a-big-fat-joke-i-have-continual-pain-in-upper-back/ Question: Swelling... SO this morning I woke up around 1 am with horrible inflammatory pain in the heels of my feet... Not unusual for me... But my back was sore, and my hips and my feet... And my neck was stiff... Anyway my husband was giving me a nice gentle back rub and said my neck was swollen, right at the base where it meets your shoulders, the little bump that's there. I told him he was imagining things.. But it is indeed swollen and hot. Something I should worry about? http://answers.ankylosing.org/85703/swelling-so-this-morning-i-woke-up-around-1-am-with-horrible-inflammatory-pain-in-the-heels-of-my/ Wed, 04 May 2011 19:46:44 +0000 Asked by Lindsay Cairns 1 year ago http://answers.ankylosing.org/85703/swelling-so-this-morning-i-woke-up-around-1-am-with-horrible-inflammatory-pain-in-the-heels-of-my/ Question: I've just been diagnosed with AS, so I'm still on the learning curve about what pain is AS and what isn't. I will occasionally have sudden excruciating pain stem from one joint. Today it was my right knee. I was standing, went to put pressure on my leg and pain shot through my leg. Is this normal? http://answers.ankylosing.org/84733/ive-just-been-diagnosed-with-as-so-im-still-on-the-learning-curve-about-what-pain-is-as-and-what-isnt/ Sun, 24 Apr 2011 21:54:16 +0000 Asked by Stacy 1 year ago http://answers.ankylosing.org/84733/ive-just-been-diagnosed-with-as-so-im-still-on-the-learning-curve-about-what-pain-is-as-and-what-isnt/ Question: So I had a bone scan...normal, upper back still hurts rheumy says not inflammation and too see a pyshiotrist (sp) its worst with activity, from my scapula to both ribs, what's next MRI? http://answers.ankylosing.org/84335/so-i-had-a-bone-scannormal-upper-back-still-hurts-rheumy-says-not-inflammation-and-too-see-a-pyshiotrist/ Wed, 20 Apr 2011 06:27:14 +0000 Asked by Roman Reid 1 year ago http://answers.ankylosing.org/84335/so-i-had-a-bone-scannormal-upper-back-still-hurts-rheumy-says-not-inflammation-and-too-see-a-pyshiotrist/ Question: I can't seem to control my emotions anymore, it's all too much and I get angry with people too easily, then I cry, then I feel stupid. Then I remember I have AS and it's painful, I seem to push the pain aside until it blows up in my face. Does anyone feel like this and how do you deal with it? http://answers.ankylosing.org/84020/i-cant-seem-to-control-my-emotions-anymore-its-all-too-much-and-i-get-angry-with-people-too-easily/ Sat, 16 Apr 2011 12:52:57 +0000 Asked by Carmen 1 year ago http://answers.ankylosing.org/84020/i-cant-seem-to-control-my-emotions-anymore-its-all-too-much-and-i-get-angry-with-people-too-easily/ Question: For those of you who take pain meds with TNF inhibitors, how do you know the TNFs are working? Fatigue? Additional pain http://answers.ankylosing.org/83543/for-those-of-you-who-take-pain-meds-with-tnf-inhibitors-how-do-you-know-the-tnfs-are-working-fatigu/ Mon, 11 Apr 2011 01:08:36 +0000 Asked by Roman Reid 1 year ago http://answers.ankylosing.org/83543/for-those-of-you-who-take-pain-meds-with-tnf-inhibitors-how-do-you-know-the-tnfs-are-working-fatigu/ Question: Hi, I wad diagnosed about 6 weeks ago. My insurance just approved Enbrel because nothing else worked. I would like to know if I should start taking any vitamins or supplements, also what else can I do for my pain? At this point I miss at least 2 days of work. Thank you for any advice. http://answers.ankylosing.org/82260/hi-i-wad-diagnosed-about-6-weeks-ago-my-insurance-just-approved-enbrel-because-nothing-else-worked/ Tue, 05 Apr 2011 03:10:21 +0000 Asked by Anna Blaszkiewicz 1 year ago http://answers.ankylosing.org/82260/hi-i-wad-diagnosed-about-6-weeks-ago-my-insurance-just-approved-enbrel-because-nothing-else-worked/ Question: I just wondered if anyone has experienced increasing or continuing pain and negative CRP and Sed rate? If so did any of your doctors say anything informative about this enigma? http://answers.ankylosing.org/81440/i-just-wondered-if-anyone-has-experienced-increasing-or-continuing-pain-and-negative-crp-and-sed-rat/ Sun, 03 Apr 2011 05:25:32 +0000 Asked by Roman Reid 1 year ago http://answers.ankylosing.org/81440/i-just-wondered-if-anyone-has-experienced-increasing-or-continuing-pain-and-negative-crp-and-sed-rat/ Question: Feeling really flat today. Cortisone injections into hips and shoulder, but the pain doesn't go away. I'm so tired of being sore all the time and being tired all the time. My medical insurance won't cover TNFs and all I'm told is to "find a NSAID that works best and stick to that". I'm really, really despondent? http://answers.ankylosing.org/79688/feeling-really-flat-today-cortisone-injections-into-hips-and-shoulder-but-the-pain-doesnt-go-away/ Thu, 31 Mar 2011 08:00:29 +0000 Asked by Sam 1 year ago http://answers.ankylosing.org/79688/feeling-really-flat-today-cortisone-injections-into-hips-and-shoulder-but-the-pain-doesnt-go-away/ Question: I have had 3 treatments of remicade and it doesn't seem to be helping...on my next infusion, they are going to up the dosage but I'm worried. How long has it takenany of you for the remicade to start working? I'm getting frustrated and a lot more depressed and it's scaring me that I'm in so much pain that isn't letting up at all maybe getting worse. http://answers.ankylosing.org/79206/i-have-had-3-treatments-of-remicade-and-it-doesnt-seem-to-be-helpingon-my-next-infusion-they-are/ Tue, 29 Mar 2011 22:40:33 +0000 Asked by Becki 1 year ago http://answers.ankylosing.org/79206/i-have-had-3-treatments-of-remicade-and-it-doesnt-seem-to-be-helpingon-my-next-infusion-they-are/ Question: Not trying to depress anyone, but do you ever just want to give up? You get so tired of the pain, no matter what you do the pain still comes back. Im not one to just sit or lay and do nothing. I get so tired of it. This mess is so expensive I get tired of spending the money on it. Im not depressed just get tired of it. I would rather be fighting cancer, at least you know your fighting for something to get better. Sorry not trying to depress anyone. http://answers.ankylosing.org/75608/not-trying-to-depress-anyone-but-do-you-ever-just-want-to-give-up/ Fri, 25 Mar 2011 15:32:18 +0000 Asked by Tim Cassidy 1 year ago http://answers.ankylosing.org/75608/not-trying-to-depress-anyone-but-do-you-ever-just-want-to-give-up/ Question: I have had AS for two years now and have had minimal pain while taking an anti-inflammatory. Last visit my dr. And I discussed me moving to Enbrel because the pain has slowly increased and what used to work no longer does. I am nervous about taking Enbrel. At what point did anyone decide that it was time to make the jump? http://answers.ankylosing.org/74710/i-have-had-as-for-two-years-now-and-have-had-minimal-pain-while-taking-an-anti-inflammatory-last-visit/ Sun, 20 Mar 2011 23:09:00 +0000 Asked by Philip Martinez 1 year ago http://answers.ankylosing.org/74710/i-have-had-as-for-two-years-now-and-have-had-minimal-pain-while-taking-an-anti-inflammatory-last-visit/ Question: Lower Rt. Abdomen pain for months now. All tests are normal except colonoscopy said "inflammation in small intestine and inflammation in colon" but just general. Can you have crohn's without presence of actual ulcers? Doc won't diagnose crohns http://answers.ankylosing.org/74635/lower-rt-abdomen-pain-for-months-now-all-tests-are-normal-except-colonoscopy-said-inflammation-in/ Sun, 20 Mar 2011 18:23:02 +0000 Asked by Kristin 1 year ago http://answers.ankylosing.org/74635/lower-rt-abdomen-pain-for-months-now-all-tests-are-normal-except-colonoscopy-said-inflammation-in/ Question: Got my first appointment with a homeopathic doctor in April, just wondering if anyone can tell me what to expect and if any of you guys have seen this type of Doc before? http://answers.ankylosing.org/73799/got-my-first-appointment-with-a-homeopathic-doctor-in-april-just-wondering-if-anyone-can-tell-me-what/ Fri, 18 Mar 2011 06:29:25 +0000 Asked by Roman Reid 1 year ago http://answers.ankylosing.org/73799/got-my-first-appointment-with-a-homeopathic-doctor-in-april-just-wondering-if-anyone-can-tell-me-what/ Question: HI I have had severe pain in my back and ankles for 4 years now and as I look back the pain seems a little less but I cant tell if it is going away or am I just getting used to it? http://answers.ankylosing.org/72376/hi-i-have-had-severe-pain-in-my-back-and-ankles-for-4-years-now-and-as-i-look-back-the-pain-seems-a-little/ Mon, 14 Mar 2011 18:38:53 +0000 Asked by Bryan Lewis 1 year ago http://answers.ankylosing.org/72376/hi-i-have-had-severe-pain-in-my-back-and-ankles-for-4-years-now-and-as-i-look-back-the-pain-seems-a-little/ Question: Anyone w/Gallbladder issues or common bile duct issues? Having sharp pains in diaphragm area... Thinking I may need GB out.... http://answers.ankylosing.org/71891/anyone-wgallbladder-issues-or-common-bile-duct-issues/ Sun, 13 Mar 2011 18:01:44 +0000 Asked by Kristin 1 year ago http://answers.ankylosing.org/71891/anyone-wgallbladder-issues-or-common-bile-duct-issues/ Question: I'm relatively new. I was referred to a rheumy October 2010. I tested positive to HLA-B27 & diagnosed with AS, Fibro, & Positional Sleep Apnea. Each day I take 300mg Lyrica &150mg Voltaren. I take 500mg Robaxin 4X day as needed. Of course I have ongoing issues, esp pain & tension in shoulders & neck, but the past 4 days my left hand fingers have been a bit numb, my index finger feels like a tourniquet is pinching it off, & I get strong spasms in my lower chest. Any suggestions for relief? Input? http://answers.ankylosing.org/70637/im-relatively-new-i-was-referred-to-a-rheumy-october-2010-i-tested-positive-to-hla-b27-diagnosed/ Tue, 08 Mar 2011 13:55:39 +0000 Asked by Melissa Rochette Levanduski 1 year ago http://answers.ankylosing.org/70637/im-relatively-new-i-was-referred-to-a-rheumy-october-2010-i-tested-positive-to-hla-b27-diagnosed/ Question: I went to my Rheumy and he said that my pain is most likely cause from my biomechanics being screwed up from my weak ankles and said that there is nothing anyone else can do while i am show most symptoms of AS please help? http://answers.ankylosing.org/70514/i-went-to-my-rheumy-and-he-said-that-my-pain-is-most-likely-cause-from-my-biomechanics-being-screwed/ Sun, 06 Mar 2011 19:58:19 +0000 Asked by Bryan Lewis 1 year ago http://answers.ankylosing.org/70514/i-went-to-my-rheumy-and-he-said-that-my-pain-is-most-likely-cause-from-my-biomechanics-being-screwed/ Question: I am wondering if anyone has the same symptoms I do. For many years, off and on, I get pain, usually sharp, just under my left breast ... (center to outside of breast area ... Just under that). It is usually brief but sometimes I get it several times repeatedly. Sometimes I will get it off and on for a few days or week or so and other times go many months without it. Doctors originally said it was my anemia, gerd, asthma, etc. Over the past few years the diagnosis is "musculo-skeletal."? http://answers.ankylosing.org/70474/i-am-wondering-if-anyone-has-the-same-symptoms-i-do-for-many-years-off-and-on-i-get-pain-usually/ Sun, 06 Mar 2011 07:05:24 +0000 Asked by Sherry 1 year ago http://answers.ankylosing.org/70474/i-am-wondering-if-anyone-has-the-same-symptoms-i-do-for-many-years-off-and-on-i-get-pain-usually/ Question: Has anyone had issues with pain on the outside of their ankle? The pain feels like it's deep in. Water therapy seemed to make it worce. Was thinking tendon related but not sure. Pain is bad enough to wake me up at night. Any suggestions or ideas? http://answers.ankylosing.org/70471/has-anyone-had-issues-with-pain-on-the-outside-of-their-ankle/ Sun, 06 Mar 2011 04:35:53 +0000 Asked by Kimberly 1 year ago http://answers.ankylosing.org/70471/has-anyone-had-issues-with-pain-on-the-outside-of-their-ankle/ Question: I am exhausted, I thought I was getting better but I can't get moving again and the pain is coming back. Pain killers make me sick now. Anyone taking Enbrel - do you ever feel completely free from pain and can you do things like normal people and not feel like you are dying afterwards (or you have to sleep for a day to recover)? http://answers.ankylosing.org/69978/i-am-exhausted-i-thought-i-was-getting-better-but-i-cant-get-moving-again-and-the-pain-is-coming-back/ Thu, 03 Mar 2011 15:49:33 +0000 Asked by Carmen 1 year ago http://answers.ankylosing.org/69978/i-am-exhausted-i-thought-i-was-getting-better-but-i-cant-get-moving-again-and-the-pain-is-coming-back/ Question: For those of you that are teetering about trying Humira, do it! I had tried everything except the TNF blockers had I still had a lot of pain. Just did my third injection and I feel so much better! Hopefully this will continue for a while! It has definately changed my life? http://answers.ankylosing.org/69218/for-those-of-you-that-are-teetering-about-trying-humira-do-it-i-had-tried-everything-except-the-tnf/ Mon, 28 Feb 2011 15:50:51 +0000 Asked by Lisa Davis 1 year ago http://answers.ankylosing.org/69218/for-those-of-you-that-are-teetering-about-trying-humira-do-it-i-had-tried-everything-except-the-tnf/ Question: Hi. Feeling despondent. My shoulders are agony. Can't sleep except for on my back and I always roll. Also want to scream whenever my arms move, which for the average person is a lot. NSAIDS not helping. Suggestions, please? http://answers.ankylosing.org/68345/hi-feeling-despondent-my-shoulders-are-agony-cant-sleep-except-for-on-my-back-and-i-always-roll/ Sat, 26 Feb 2011 05:30:02 +0000 Asked by Sam 1 year ago http://answers.ankylosing.org/68345/hi-feeling-despondent-my-shoulders-are-agony-cant-sleep-except-for-on-my-back-and-i-always-roll/ Question: Does anyone else have pain in fingers and hands that does not included swelling or heat. Every online resource describes swelling but my hands/toes/fingers/knees just hurt, sometimes it is so bad its hard to write? http://answers.ankylosing.org/68312/does-anyone-else-have-pain-in-fingers-and-hands-that-does-not-included-swelling-or-heat-every-online/ Fri, 25 Feb 2011 22:38:13 +0000 Asked by Roman Reid 1 year ago http://answers.ankylosing.org/68312/does-anyone-else-have-pain-in-fingers-and-hands-that-does-not-included-swelling-or-heat-every-online/ Question: Does anyone take Endone? How long have you been on it? How much do you take in a week? I just started it and have had 3 in two days but it works so well. I am trying not to use it but not sure how much is too much. Cant stand the pain anymore and endone works. http://answers.ankylosing.org/67845/does-anyone-take-endone-how-long-have-you-been-on-it-how-much-do-you-take-in-a-week/ Fri, 18 Feb 2011 13:22:05 +0000 Asked by Carmen 1 year ago http://answers.ankylosing.org/67845/does-anyone-take-endone-how-long-have-you-been-on-it-how-much-do-you-take-in-a-week/ Question: I just got a scrip for cymbalta to help with pain management, does anyone here have experience with adjunct such as this thanks in advance? http://answers.ankylosing.org/64544/i-just-got-a-scrip-for-cymbalta-to-help-with-pain-management-does-anyone-here-have-experience-with-adjunct/ Sat, 05 Feb 2011 04:26:25 +0000 Asked by Roman Reid 1 year ago http://answers.ankylosing.org/64544/i-just-got-a-scrip-for-cymbalta-to-help-with-pain-management-does-anyone-here-have-experience-with-adjunct/ Question: I have had AS for 16 years, and finished Enbrel 5 weeks ago, waiting to try something new. I have had a stabbing pain in my upper chest (no problems with heart), but in the last 48 hours my chest has become very tender to the touch and feels like it is raw, sometimes with a burning sensation. Any ideas what this could be. My next rheumy appt is three months away. My hip was really tender at the w/end but has now subsided? http://answers.ankylosing.org/64280/i-have-had-as-for-16-years-and-finished-enbrel-5-weeks-ago-waiting-to-try-something-new-i-have-had/ Tue, 01 Feb 2011 20:18:10 +0000 Asked by Gill Brookes 1 year ago http://answers.ankylosing.org/64280/i-have-had-as-for-16-years-and-finished-enbrel-5-weeks-ago-waiting-to-try-something-new-i-have-had/ Question: My lower back/spine is hurting bad. I'm having pain at times going from my back to my hip down into my toes. The pain is so bad I cry every time I try to move. I've tried ice, tens unit, lodicane patches, vicodine and nothing seems to be helping. Need advice please? http://answers.ankylosing.org/64000/my-lower-backspine-is-hurting-bad-im-having-pain-at-times-going-from-my-back-to-my-hip-down-into-my/ Sat, 29 Jan 2011 19:07:42 +0000 Asked by Kimberly 1 year ago http://answers.ankylosing.org/64000/my-lower-backspine-is-hurting-bad-im-having-pain-at-times-going-from-my-back-to-my-hip-down-into-my/ Question: Any one every tried chiopractic care for their lower back, hip, siatic nerve pain. I tried PT and for about 3-4 wks, not much help. I've never had much sucsess with PT. Pain is just getting worce? http://answers.ankylosing.org/63502/any-one-every-tried-chiopractic-care-for-their-lower-back-hip-siatic-nerve-pain-i-tried-pt-and-for/ Wed, 26 Jan 2011 22:29:39 +0000 Asked by Kimberly 1 year ago http://answers.ankylosing.org/63502/any-one-every-tried-chiopractic-care-for-their-lower-back-hip-siatic-nerve-pain-i-tried-pt-and-for/ Question: I have no health insurance and I have been in more pain than ever lately. My hips, knees, and legs just feel like they are broken...easiest way to explain the pain. Does anyone have any home remedies that they have found to help? Besides NSAIDS! http://answers.ankylosing.org/62923/i-have-no-health-insurance-and-i-have-been-in-more-pain-than-ever-lately-my-hips-knees-and-legs-just/ Thu, 20 Jan 2011 14:57:00 +0000 Asked by Jessica Allen 1 year ago http://answers.ankylosing.org/62923/i-have-no-health-insurance-and-i-have-been-in-more-pain-than-ever-lately-my-hips-knees-and-legs-just/ Question: Its late and I need to go to bed. Anyone ever just sit in their chair afraid to move their legs cause you just don't want to endure the pain its going to cause when you go to stand up? http://answers.ankylosing.org/62650/its-late-and-i-need-to-go-to-bed-anyone-ever-just-sit-in-their-chair-afraid-to-move-their-legs-cause/ Mon, 17 Jan 2011 06:26:46 +0000 Asked by Denise Brown 1 year ago http://answers.ankylosing.org/62650/its-late-and-i-need-to-go-to-bed-anyone-ever-just-sit-in-their-chair-afraid-to-move-their-legs-cause/ Question: Daily anxiety about health taking over my life...new strange symptoms...see below? http://answers.ankylosing.org/61910/daily-anxiety-about-health-taking-over-my-lifenew-strange-symptomssee-below/ Sun, 09 Jan 2011 06:39:35 +0000 Asked by Kristin 1 year ago http://answers.ankylosing.org/61910/daily-anxiety-about-health-taking-over-my-lifenew-strange-symptomssee-below/ Question: I've had pain in my right ankle on and off. Today is the worst ever - can't even walk on it. Did some research and could it be OA? What can I do for it? http://answers.ankylosing.org/61657/ive-had-pain-in-my-right-ankle-on-and-off-today-is-the-worst-ever-cant-even-walk-on-it-did-some/ Wed, 05 Jan 2011 18:40:46 +0000 Asked by Amy Picklo 1 year ago http://answers.ankylosing.org/61657/ive-had-pain-in-my-right-ankle-on-and-off-today-is-the-worst-ever-cant-even-walk-on-it-did-some/ Question: Hi there. Happy holidays to everyone. Quick question... Does anyone have advice on neuropathic pain? I have no feeling in part of my left foot - nerve damage in my spine - but the skin's been on fire for a while now. http://answers.ankylosing.org/60967/hi-there-happy-holidays-to-everyone-quick-question-does-anyone-have-advice-on-neuropathic-pain/ Mon, 27 Dec 2010 08:29:16 +0000 Asked by Sam 2 years ago http://answers.ankylosing.org/60967/hi-there-happy-holidays-to-everyone-quick-question-does-anyone-have-advice-on-neuropathic-pain/ Question: Family still doesn't get it. Ow, my heels are really hurting. Mom: Why? Me: Plantar Fasciitis. Mom: Well, at least it will go away soon. Me: What? No, mine are permanent, mainly. Mom: Why? Me: Here, once again, are links to info about AS. http://answers.ankylosing.org/60746/family-still-doesnt-get-it-ow-my-heels-are-really-hurting-mom-why-me-plantar-fasciitis-mom-well/ Thu, 23 Dec 2010 05:08:25 +0000 Asked by Rose Bigham 2 years ago http://answers.ankylosing.org/60746/family-still-doesnt-get-it-ow-my-heels-are-really-hurting-mom-why-me-plantar-fasciitis-mom-well/ Question: Heartbroken! 6 wks on Enbrel, no results. My doc now doesn't think it's AS, coz I have many other skeletal problems. HE GAVE UP! Said go to pain clinic & lose weight! I don't want drugs, I want a solution! And I can't lose weight in pain & fatigue? http://answers.ankylosing.org/60542/heartbroken-6-wks-on-enbrel-no-results-my-doc-now-doesnt-think-its-as-coz-i-have-many-other-skeletal/ Tue, 21 Dec 2010 04:40:56 +0000 Asked by Kerry Monique Gaude' 2 years ago http://answers.ankylosing.org/60542/heartbroken-6-wks-on-enbrel-no-results-my-doc-now-doesnt-think-its-as-coz-i-have-many-other-skeletal/ Question: The last 3 days I've had extream hip/buttock/tailbone/SI joint pain on the left side. The pain seems to be getting worce. Only slept 3 hrs last night, pain meds aren't really touching the pain, ice helps a little. Any suggestions? http://answers.ankylosing.org/60163/the-last-3-days-ive-had-extream-hipbuttocktailbonesi-joint-pain-on-the-left-side-the-pain-seems/ Thu, 16 Dec 2010 13:51:05 +0000 Asked by Kimberly 2 years ago http://answers.ankylosing.org/60163/the-last-3-days-ive-had-extream-hipbuttocktailbonesi-joint-pain-on-the-left-side-the-pain-seems/ Question: Have those of you on Humira been able to reduce your use of NSAIDs? That's not working so well for me - I forgot my Voltaren this morning and could barely use my hands or raise my arms by mid-day. My doc wants me off them, if possible. http://answers.ankylosing.org/59988/have-those-of-you-on-humira-been-able-to-reduce-your-use-of-nsaids/ Tue, 14 Dec 2010 05:52:36 +0000 Asked by Chapps 2 years ago http://answers.ankylosing.org/59988/have-those-of-you-on-humira-been-able-to-reduce-your-use-of-nsaids/ Question: Working out? I used go to the gym 3-5x/wk. I'm pretty much limited to swimming only, due to all the deteriation of my joints. Recently, my fatigue and pain are off the chart! How do you deal with overcoming symptoms to get moving? http://answers.ankylosing.org/59597/working-out/ Thu, 09 Dec 2010 07:49:07 +0000 Asked by Kerry Monique Gaude' 2 years ago http://answers.ankylosing.org/59597/working-out/ Question: I woke up to a very. Bad. Day., pain-wise. The right knee is swollen and pain and everything aches. I feel a bit like a truck hit me. If it were not for the dog I wouldn't have gotten out of bed today. How do you cope on the Very Bad Days? http://answers.ankylosing.org/59240/i-woke-up-to-a-very-bad-day-pain-wise-the-right-knee-is-swollen-and-pain-and-everything-aches-i/ Sat, 04 Dec 2010 20:32:27 +0000 Asked by Rose Bigham 2 years ago http://answers.ankylosing.org/59240/i-woke-up-to-a-very-bad-day-pain-wise-the-right-knee-is-swollen-and-pain-and-everything-aches-i/ Question: This morning my right side feels like it has been hit with a baseball bat- extremely painful when I move the arm & tender to touch - anyone else had this? Used to AS but broke down this morning. http://answers.ankylosing.org/57638/this-morning-my-right-side-feels-like-it-has-been-hit-with-a-baseball-bat-extremely-painful-when-i-move/ Sun, 14 Nov 2010 11:25:51 +0000 Asked by Jackie Aitchison 2 years ago http://answers.ankylosing.org/57638/this-morning-my-right-side-feels-like-it-has-been-hit-with-a-baseball-bat-extremely-painful-when-i-move/ Question: Does anyone else here feel like their doctors think you are a druggie when you try to get something for your pain? http://answers.ankylosing.org/57278/does-anyone-else-here-feel-like-their-doctors-think-you-are-a-druggie-when-you-try-to-get-something-for/ Mon, 08 Nov 2010 14:45:06 +0000 Asked by Jason Ferguson 2 years ago http://answers.ankylosing.org/57278/does-anyone-else-here-feel-like-their-doctors-think-you-are-a-druggie-when-you-try-to-get-something-for/ Question: How can this mess work so fast when you take meds to slow it down. Starting about a month ago, if I wake up on my left side my hip is killing me. Like it has gone to sleep and hurts at the same time. I wake up from it hurting. Anyone else? http://answers.ankylosing.org/56960/how-can-this-mess-work-so-fast-when-you-take-meds-to-slow-it-down-starting-about-a-month-ago-if-i-wake/ Sat, 06 Nov 2010 20:51:27 +0000 Asked by Tim Cassidy 2 years ago http://answers.ankylosing.org/56960/how-can-this-mess-work-so-fast-when-you-take-meds-to-slow-it-down-starting-about-a-month-ago-if-i-wake/ Question: Having chest pains today. How do you differentiate between AS pains and something more serious? They did an EKG was normal and a D dimer was negative. I'm still scared though, what if the AS is scarring my lungs? Is it just AS rib pain? http://answers.ankylosing.org/56395/having-chest-pains-today-how-do-you-differentiate-between-as-pains-and-something-more-serious-they/ Wed, 03 Nov 2010 22:35:09 +0000 Asked by Kristin 2 years ago http://answers.ankylosing.org/56395/having-chest-pains-today-how-do-you-differentiate-between-as-pains-and-something-more-serious-they/ Question: Painful Achilles Tendon, my rt is worse then my lt. If I tip toe to reach something it pops very loud and is so painful, I workout as much as I can. It feels as though my tendon is going to break sometimes! Anyone else with this problem? http://answers.ankylosing.org/55244/painful-achilles-tendon-my-rt-is-worse-then-my-lt-if-i-tip-toe-to-reach-something-it-pops-very-loud/ Thu, 28 Oct 2010 18:37:50 +0000 Asked by Adrienne Holeman 2 years ago http://answers.ankylosing.org/55244/painful-achilles-tendon-my-rt-is-worse-then-my-lt-if-i-tip-toe-to-reach-something-it-pops-very-loud/ Question: My pain has been increasing over the past few weeks, and it's really interfering with my daily activities. My next appointment with the rheumy isn't until December. What type of medicine can I/should I ask my orthopedic doctor for in the meantime? http://answers.ankylosing.org/54351/my-pain-has-been-increasing-over-the-past-few-weeks-and-its-really-interfering-with-my-daily-activities/ Sun, 24 Oct 2010 05:49:49 +0000 Asked by Jeff B 2 years ago http://answers.ankylosing.org/54351/my-pain-has-been-increasing-over-the-past-few-weeks-and-its-really-interfering-with-my-daily-activities/ Question: How do people cope with the limitations of pain? I'm only 27 and my heart/brain want to do so much, but my body can't handle it. In fact, it can hardly "doing" anything at all. http://answers.ankylosing.org/53949/how-do-people-cope-with-the-limitations-of-pain/ Fri, 22 Oct 2010 05:42:07 +0000 Asked by Kerry Monique Gaude' 2 years ago http://answers.ankylosing.org/53949/how-do-people-cope-with-the-limitations-of-pain/ Question: I've had AS now for 20 years. I can't do much of anything as any little mis step or bump in the road causes intense pain. I've always been a strong willed person but, I just can't take much more of this. Need encouraging words... Please? http://answers.ankylosing.org/53325/ive-had-as-now-for-20-years-i-cant-do-much-of-anything-as-any-little-mis-step-or-bump-in-the-road/ Tue, 19 Oct 2010 08:55:26 +0000 Asked by Gary 2 years ago http://answers.ankylosing.org/53325/ive-had-as-now-for-20-years-i-cant-do-much-of-anything-as-any-little-mis-step-or-bump-in-the-road/ Question: I had been on Enbrel for almost 2 years after some issues with it I moved to Humira this week I am finding that I am getting almost complete relief from the stiffness however my pain level seems to be higher than usual, any thoughts on this? http://answers.ankylosing.org/52889/i-had-been-on-enbrel-for-almost-2-years-after-some-issues-with-it-i-moved-to-humira-this-week-i-am-finding/ Sun, 17 Oct 2010 02:26:20 +0000 Asked by Amy Arndt 2 years ago http://answers.ankylosing.org/52889/i-had-been-on-enbrel-for-almost-2-years-after-some-issues-with-it-i-moved-to-humira-this-week-i-am-finding/ Question: Does anyone have unusual pains in odd places? I had one in mid back in a localized area, It was painful to touch and it felt like a knife was stabbed in and twisting. Then randomly in different area's arms, legs, ect. http://answers.ankylosing.org/52199/does-anyone-have-unusual-pains-in-odd-places/ Wed, 13 Oct 2010 21:57:09 +0000 Asked by Adrienne Holeman 2 years ago http://answers.ankylosing.org/52199/does-anyone-have-unusual-pains-in-odd-places/ Question: From an article on About.com:Fibromyalgia can occur as a primary syndrome characterized by muscular pain or as a secondary syndrome to other rheumatic diseases. It is possible to have fibromyalgia syndrome as well as another rheumatic disease? http://answers.ankylosing.org/51357/from-an-article-on-aboutcomfibromyalgia-can-occur-as-a-primary-syndrome-characterized-by-muscular-pain/ Sat, 09 Oct 2010 20:07:06 +0000 Asked by Lisa Davis 2 years ago http://answers.ankylosing.org/51357/from-an-article-on-aboutcomfibromyalgia-can-occur-as-a-primary-syndrome-characterized-by-muscular-pain/ Question: I hurt so bad and feel so tired today, only people here understands. I don't like to complain to my wife but people here knows what im saying. If we looked like we felt people would know we felt bad. It is a good thing I don't look like I feel today? http://answers.ankylosing.org/50806/i-hurt-so-bad-and-feel-so-tired-today-only-people-here-understands-i-dont-like-to-complain-to-my-wife/ Thu, 07 Oct 2010 18:11:31 +0000 Asked by Tim Cassidy 2 years ago http://answers.ankylosing.org/50806/i-hurt-so-bad-and-feel-so-tired-today-only-people-here-understands-i-dont-like-to-complain-to-my-wife/ Question: Does anyone get sore hands .I have had problems with my right hand .Swollen and so sore you cannot touch it .I get it often with various degrees of pain .I was very late being diginosed and the AS is very advanced? http://answers.ankylosing.org/49683/does-anyone-get-sore-hands-i-have-had-problems-with-my-right-hand-swollen-and-so-sore-you-cannot-touch/ Sun, 03 Oct 2010 22:10:47 +0000 Asked by Sheridan 2 years ago http://answers.ankylosing.org/49683/does-anyone-get-sore-hands-i-have-had-problems-with-my-right-hand-swollen-and-so-sore-you-cannot-touch/ Question: I have been having pain in my left side under my ribcage that is getting worse over the last year. Hurts when I take a deep breath, or move suddenly, or sometimes stabbing pain like when I lean forward. Xrays and ultrasound but nothing. Anyone else? http://answers.ankylosing.org/49248/i-have-been-having-pain-in-my-left-side-under-my-ribcage-that-is-getting-worse-over-the-last-year-hurts/ Sat, 02 Oct 2010 10:09:10 +0000 Asked by Bj 2 years ago http://answers.ankylosing.org/49248/i-have-been-having-pain-in-my-left-side-under-my-ribcage-that-is-getting-worse-over-the-last-year-hurts/ Question: I really hate to ask this question, but for those of you on Humira, have you ever had a reaction where you get initial relief and then your AS symptoms come back *much* worse than before? That's what I'm experiencing now. http://answers.ankylosing.org/48437/i-really-hate-to-ask-this-question-but-for-those-of-you-on-humira-have-you-ever-had-a-reaction-where/ Wed, 29 Sep 2010 22:12:47 +0000 Asked by Chapps 2 years ago http://answers.ankylosing.org/48437/i-really-hate-to-ask-this-question-but-for-those-of-you-on-humira-have-you-ever-had-a-reaction-where/ Question: Have any of you taken Humira, had a great day and then had your body fight back even harder a day or so later? I had the injection (my third) yesterday morning, had a *great* day and then woke up at 3 am with the worst back pain yet. Frustrating. http://answers.ankylosing.org/48356/have-any-of-you-taken-humira-had-a-great-day-and-then-had-your-body-fight-back-even-harder-a-day-or/ Wed, 29 Sep 2010 14:45:21 +0000 Asked by Chapps 2 years ago http://answers.ankylosing.org/48356/have-any-of-you-taken-humira-had-a-great-day-and-then-had-your-body-fight-back-even-harder-a-day-or/ Question: Hot feet?Does anyone else have REALLY sore feet? Not just plantar fasciitis but every muscle in each foot just HURTS all the time. I saw my good PT/massage therapist (yay!) and she noticed my feet are HOT to the touch. Anyone else? Sore/hot feet? http://answers.ankylosing.org/48043/hot-feetdoes-anyone-else-have-really-sore-feet-not-just-plantar-fasciitis-but-every-muscle-in-each/ Tue, 28 Sep 2010 04:15:12 +0000 Asked by Rose Bigham 2 years ago http://answers.ankylosing.org/48043/hot-feetdoes-anyone-else-have-really-sore-feet-not-just-plantar-fasciitis-but-every-muscle-in-each/ Question: AS was added to my list of diagnoses last Dec. How do you tell the difference between the pain caused by each one? I now have had MRIs of cervical, thoracic, & lumbar. Not one has come back w/less than 3 bad discs. How do we get ahead of the disease? http://answers.ankylosing.org/47500/as-was-added-to-my-list-of-diagnoses-last-dec-how-do-you-tell-the-difference-between-the-pain-caused/ Fri, 24 Sep 2010 06:48:39 +0000 Asked by Cheryl K. Moralez 2 years ago http://answers.ankylosing.org/47500/as-was-added-to-my-list-of-diagnoses-last-dec-how-do-you-tell-the-difference-between-the-pain-caused/ Question: Today it is too much! My pain level is far worse after the bad PT visit yesterday, yet my pain doc insists that I do PT. I'm juggling 5 medical offices trying to find someone new to see whilst trying to power through the pain at work today.AWFUL? http://answers.ankylosing.org/47304/today-it-is-too-much-my-pain-level-is-far-worse-after-the-bad-pt-visit-yesterday-yet-my-pain-doc-insists/ Wed, 22 Sep 2010 19:52:23 +0000 Asked by Rose Bigham 2 years ago http://answers.ankylosing.org/47304/today-it-is-too-much-my-pain-level-is-far-worse-after-the-bad-pt-visit-yesterday-yet-my-pain-doc-insists/ Question: Frustrating PT visit! I don't think she understands AS at all! Went in with neck and back hurting a lot. Left with back and neck still hurting a lot. I tried to explain about flares and how they come out of nowhere . . I don't think she gets it? http://answers.ankylosing.org/47206/frustrating-pt-visit-i-dont-think-she-understands-as-at-all-went-in-with-neck-and-back-hurting-a-lot/ Wed, 22 Sep 2010 02:10:13 +0000 Asked by Rose Bigham 2 years ago http://answers.ankylosing.org/47206/frustrating-pt-visit-i-dont-think-she-understands-as-at-all-went-in-with-neck-and-back-hurting-a-lot/ Question: I found an image online that gave % of occurrence for non-back joints inflamming. I've been so "lucky" as to be impacted by the exotic ones like fingers, wrist, toes etc. How many of you have pain in other joints? http://answers.ankylosing.org/46800/i-found-an-image-online-that-gave-of-occurrence-for-non-back-joints-inflamming-ive-been-so-lucky/ Sat, 18 Sep 2010 22:54:51 +0000 Asked by As Sufferer 2 years ago http://answers.ankylosing.org/46800/i-found-an-image-online-that-gave-of-occurrence-for-non-back-joints-inflamming-ive-been-so-lucky/ Question: Waited 3 months for 1st appt with rhuemy and its in 3 days but I feel the best I have felt in months, and worried that if I'm still feeling this way on Tues, the doc wont take me seriously. 2 weeks ago my pain was the worst ever, any suggestions? http://answers.ankylosing.org/46635/waited-3-months-for-1st-appt-with-rhuemy-and-its-in-3-days-but-i-feel-the-best-i-have-felt-in-months/ Fri, 17 Sep 2010 19:55:26 +0000 Asked by Me 2 years ago http://answers.ankylosing.org/46635/waited-3-months-for-1st-appt-with-rhuemy-and-its-in-3-days-but-i-feel-the-best-i-have-felt-in-months/ Question: Migraines - anyone get them? I have severe tightness in my neck. Fusing? http://answers.ankylosing.org/46212/migraines-anyone-get-them/ Tue, 14 Sep 2010 17:18:37 +0000 Asked by Amy Picklo 2 years ago http://answers.ankylosing.org/46212/migraines-anyone-get-them/ Question: Predicting the pain flares: Has anyone had any luck? I am keeping a journal of food, meds, weather, energy expended to try to see what triggers a pain flare. Then this week I had high fever and BAD flare out of the blue. Can one track triggers? http://answers.ankylosing.org/45827/predicting-the-pain-flares-has-anyone-had-any-luck/ Fri, 10 Sep 2010 19:00:54 +0000 Asked by Rose Bigham 2 years ago http://answers.ankylosing.org/45827/predicting-the-pain-flares-has-anyone-had-any-luck/ Question: Barometric pressure, the weather, and AS/US: What's the deal? Does anyone have a prevailing theory about flare ups due to weather changes or rise/drop in barometric pressure? I have see conflicting reports. Thoughts? http://answers.ankylosing.org/44397/barometric-pressure-the-weather-and-asus-whats-the-deal-does-anyone-have-a-prevailing-theory-about/ Tue, 31 Aug 2010 21:24:34 +0000 Asked by Rose Bigham 2 years ago http://answers.ankylosing.org/44397/barometric-pressure-the-weather-and-asus-whats-the-deal-does-anyone-have-a-prevailing-theory-about/ Question: Back from Physical therapy. Dr's referral said since both SI joints are fused, pain HAS to be coming from somewhere else. Fusion = no pain. I have same pain before and after fusion. Anyone? http://answers.ankylosing.org/44393/back-from-physical-therapy-drs-referral-said-since-both-si-joints-are-fused-pain-has-to-be-coming/ Tue, 31 Aug 2010 20:57:21 +0000 Asked by Carla 2 years ago http://answers.ankylosing.org/44393/back-from-physical-therapy-drs-referral-said-since-both-si-joints-are-fused-pain-has-to-be-coming/ Question: Ankles, toes and feet killing me this summer. Anyone else? Causes? http://answers.ankylosing.org/43580/ankles-toes-and-feet-killing-me-this-summer-anyone-else/ Fri, 27 Aug 2010 21:48:17 +0000 Asked by Amy Picklo 2 years ago http://answers.ankylosing.org/43580/ankles-toes-and-feet-killing-me-this-summer-anyone-else/ Question: I'm not sure what's wrong with me. It seems like everyone else just has issues with their back and hips, but it seems like every joint in my body hurts. My jaws and fingers are particularly annoying developments? http://answers.ankylosing.org/43565/im-not-sure-whats-wrong-with-me-it-seems-like-everyone-else-just-has-issues-with-their-back-and-hips/ Fri, 27 Aug 2010 15:36:47 +0000 Asked by As Sufferer 2 years ago http://answers.ankylosing.org/43565/im-not-sure-whats-wrong-with-me-it-seems-like-everyone-else-just-has-issues-with-their-back-and-hips/ Question: Why do so many websites say people can lead a normal life with AS? I'm a type A personality and not a whiner but this illness is completely disruptive to my life. I'm in constant pain. I'm always tired. This is not normal! http://answers.ankylosing.org/42952/why-do-so-many-websites-say-people-can-lead-a-normal-life-with-as/ Fri, 20 Aug 2010 01:27:58 +0000 Asked by As Sufferer 2 years ago http://answers.ankylosing.org/42952/why-do-so-many-websites-say-people-can-lead-a-normal-life-with-as/ Question: My husband just started Remicade, he is on his 2nd infusion and his pain level is through the roof and the headaches are horrible, anyone experience similar things or have any advice? http://answers.ankylosing.org/42706/my-husband-just-started-remicade-he-is-on-his-2nd-infusion-and-his-pain-level-is-through-the-roof-and/ Tue, 17 Aug 2010 22:19:46 +0000 Asked by Devona Tate 2 years ago http://answers.ankylosing.org/42706/my-husband-just-started-remicade-he-is-on-his-2nd-infusion-and-his-pain-level-is-through-the-roof-and/ Question: Returned from Ortho visit. Said since both SI joints are fused, they shouldn't be painful. Feels I have piriformis muscle syndrome, and ordered physical therapy. Anyone else have this? No dignosis out of him, just that it's probably genetic. http://answers.ankylosing.org/41152/returned-from-ortho-visit-said-since-both-si-joints-are-fused-they-shouldnt-be-painful-feels-i-have/ Mon, 09 Aug 2010 18:59:34 +0000 Asked by Carla 2 years ago http://answers.ankylosing.org/41152/returned-from-ortho-visit-said-since-both-si-joints-are-fused-they-shouldnt-be-painful-feels-i-have/ Question: Ankle pain: What does yours feel like? Do you have deformities or constant injury? I need to know. http://answers.ankylosing.org/40627/ankle-pain-what-does-yours-feel-like-do-you-have-deformities-or-constant-injury/ Tue, 03 Aug 2010 04:34:14 +0000 Asked by Jennifer Winter 2 years ago http://answers.ankylosing.org/40627/ankle-pain-what-does-yours-feel-like-do-you-have-deformities-or-constant-injury/ Question: How many of you have taken Remicade and developed antibodies? I've just recently had this happen, and it feels like I'm starting all the way back at square 1. Actually, the symptoms feel far worse than they did before I started the Remi. What next? http://answers.ankylosing.org/40616/how-many-of-you-have-taken-remicade-and-developed-antibodies/ Tue, 03 Aug 2010 00:12:48 +0000 Asked by Chapps 2 years ago http://answers.ankylosing.org/40616/how-many-of-you-have-taken-remicade-and-developed-antibodies/ Question: Has anybody gained or lost any weight on any medicine for A.S.? I have gained so much weight in the last ten yrs. I keep saying that if I could get around better then maybe I could lose some of it. I am new to all of this. I am in so much pain.. http://answers.ankylosing.org/40365/has-anybody-gained-or-lost-any-weight-on-any-medicine-for-as/ Sat, 31 Jul 2010 12:39:43 +0000 Asked by Julie 2 years ago http://answers.ankylosing.org/40365/has-anybody-gained-or-lost-any-weight-on-any-medicine-for-as/ Question: Does anyone have severe pain in their feet first thing in the morning? The first time I get out of bed every day, it feels like if I put my full weight on my feet all at once they are going to explode. The pain lessens over about 10 min. http://answers.ankylosing.org/40026/does-anyone-have-severe-pain-in-their-feet-first-thing-in-the-morning/ Tue, 27 Jul 2010 08:07:55 +0000 Asked by Me 2 years ago http://answers.ankylosing.org/40026/does-anyone-have-severe-pain-in-their-feet-first-thing-in-the-morning/ Question: Does anyone have a temper-pedic bed? It's time for me to get a new bed, and I'm wondering if spending the extra money to get one will help my back pain. My uncle swears by his, but they are so expensive. Any suggestions? http://answers.ankylosing.org/38953/does-anyone-have-a-temper-pedic-bed/ Mon, 26 Jul 2010 06:44:55 +0000 Asked by Me 2 years ago http://answers.ankylosing.org/38953/does-anyone-have-a-temper-pedic-bed/ Question: Lately my neck has been killing me, and it seems to turn into a headache that wraps around my head. Is this common for any other ASer? Any advice on how to get any relief? http://answers.ankylosing.org/30478/lately-my-neck-has-been-killing-me-and-it-seems-to-turn-into-a-headache-that-wraps-around-my-head-is/ Sun, 25 Jul 2010 01:20:31 +0000 Asked by Kellychristal 2 years ago http://answers.ankylosing.org/30478/lately-my-neck-has-been-killing-me-and-it-seems-to-turn-into-a-headache-that-wraps-around-my-head-is/ Question: I'm is so much pain, I've been in a flare up for 4 days. My mom has to help me get out of bed. I don't have insurance so going to the dr to get help is difficult... What should i do? I'm on Humira, oxycodone, and morphine... http://answers.ankylosing.org/25668/im-is-so-much-pain-ive-been-in-a-flare-up-for-4-days-my-mom-has-to-help-me-get-out-of-bed-i-dont/ Wed, 21 Jul 2010 07:53:43 +0000 Asked by Becki 2 years ago http://answers.ankylosing.org/25668/im-is-so-much-pain-ive-been-in-a-flare-up-for-4-days-my-mom-has-to-help-me-get-out-of-bed-i-dont/ Question: Does anyone experience increased pain/flares for a period after treatment with Remicade or another TNF inhibitor? I always get up to two weeks of bloody hell after my infusion, flaring up all over the place, after which it calms down. Frustrating. http://answers.ankylosing.org/25663/does-anyone-experience-increased-painflares-for-a-period-after-treatment-with-remicade-or-another-tnf/ Wed, 21 Jul 2010 03:57:56 +0000 Asked by Chapps 2 years ago http://answers.ankylosing.org/25663/does-anyone-experience-increased-painflares-for-a-period-after-treatment-with-remicade-or-another-tnf/ Question: Neurtine or lyrca? Which works best for nerve pain? Thanks! http://answers.ankylosing.org/24563/neurtine-or-lyrca-which-works-best-for-nerve-pain/ Tue, 13 Jul 2010 02:43:27 +0000 Asked by Kimberly 2 years ago http://answers.ankylosing.org/24563/neurtine-or-lyrca-which-works-best-for-nerve-pain/ Question: Anyone have any idea's or suggestions? I have been having nerve pain on the side of my right knee going down towards my ankle. Today the pain is bad, feels like it is inside my knee. My leg from knee down went limp for about an hour I couldn't walk. http://answers.ankylosing.org/24561/anyone-have-any-ideas-or-suggestions/ Tue, 13 Jul 2010 02:34:43 +0000 Asked by Kimberly 2 years ago http://answers.ankylosing.org/24561/anyone-have-any-ideas-or-suggestions/