Creative Commons Attribution-ShareAlike 2.0 UK: England & Wales Sun, 20 May 2012 23:24:30 +0000 http://answers.ankylosing.org/ Ankylosing Spondylitis webmaster@answers.ankylosing.org webmaster@answers.ankylosing.org en-us Question: Does anyone else have AS in combination with Ulcerative Colitis? My doctor says the two often happen at the same time. I have been experimenting with a gluten-free diet on and off to some success. I generally experience less pain when I don't eat wheat products. It doesn't seem to have any effect on my colitis though. My doctor has given me Naproxen which is good for the back pain but I have to be very careful about how much I take because of my bowel issue. I'm actually considering marijuana... http://answers.ankylosing.org/130218/does-anyone-else-have-as-in-combination-with-ulcerative-colitis/ Wed, 16 May 2012 01:38:21 +0000 Asked by Pete Carmichael 5 days ago http://answers.ankylosing.org/130218/does-anyone-else-have-as-in-combination-with-ulcerative-colitis/ Question: It's been a while...I had to have emergency surgery for some OB problems, but I have a question.I've been treated by the Chronic Pain dept here for the past year and they have me on pain meds while I'm trying out Enbrel for 6 months from my Rheumy (I've had to stop that because of the incisions from surgery still open so I won't start that up for another month). I have been diagnosed with Fibromyalgia as well as Spondyloarthropathy.What pain meds are you on and for what? http://answers.ankylosing.org/128400/its-been-a-whilei-had-to-have-emergency-surgery-for-some-ob-problems-but-i-have-a-questionive/ Wed, 09 May 2012 08:37:20 +0000 Asked by Sasha 2 weeks ago http://answers.ankylosing.org/128400/its-been-a-whilei-had-to-have-emergency-surgery-for-some-ob-problems-but-i-have-a-questionive/ Question: Is anyone taking Indocin? I just got my prescription, but I don't like all the warnings with it. How is it working for you? Should I just stick with IB 800's? http://answers.ankylosing.org/124731/is-anyone-taking-indocin-i-just-got-my-prescription-but-i-dont-like-all-the-warnings-with-it-how/ Wed, 25 Apr 2012 16:43:27 +0000 Asked by Hollie Godfrey 4 weeks ago http://answers.ankylosing.org/124731/is-anyone-taking-indocin-i-just-got-my-prescription-but-i-dont-like-all-the-warnings-with-it-how/ Question: Hi. My Rhemy wants me to take Embrel but I always get sick alot. I hear that Embrel lowers your immune system and could cause cancer. My Question is it worth the risk of trading pain for getting sick more? And how long do you take Embrel for? Is it for life? http://answers.ankylosing.org/123158/hi-my-rhemy-wants-me-to-take-embrel-but-i-always-get-sick-alot-i-hear-that-embrel-lowers-your-immune/ Wed, 18 Apr 2012 22:54:16 +0000 Asked by John Johnson 1 month ago http://answers.ankylosing.org/123158/hi-my-rhemy-wants-me-to-take-embrel-but-i-always-get-sick-alot-i-hear-that-embrel-lowers-your-immune/ Question: Hi all two things: 1. How do I get my messages? 2. Has anyone taken Dilaudid? My PM prescribed 2mg and it's not working and I've been headachy, I was just wondering about others experience's with it. http://answers.ankylosing.org/123074/hi-all-two-things-1-how-do-i-get-my-messages-2-has-anyone-taken-dilaudid/ Tue, 17 Apr 2012 04:09:29 +0000 Asked by Kimberlee Holinka 1 month ago http://answers.ankylosing.org/123074/hi-all-two-things-1-how-do-i-get-my-messages-2-has-anyone-taken-dilaudid/ Question: Talk to me about pregnancy and AS...? I want to have a couple children and having AS has obviously changed my priorities. I feel like I want to get off all the meds even tho I still hurt quite a bit, and try to get pregnant especially since I don't want any complications when my sacroilliac joints and spine completely fuses... Suggestions? Tips? Complications? http://answers.ankylosing.org/122822/talk-to-me-about-pregnancy-and-as-i-want-to-have-a-couple-children-and-having-as-has-obviously-changed/ Thu, 12 Apr 2012 21:45:05 +0000 Asked by Amber Salgy 1 month ago http://answers.ankylosing.org/122822/talk-to-me-about-pregnancy-and-as-i-want-to-have-a-couple-children-and-having-as-has-obviously-changed/ Question: Suggestions for non-narcotic, non-NSAID pain relief medications? I've been dx w/ gastroparesis, often caused by narcs & have decided to do the 8 wk trial off of narcs to determine if they cause the gastroparesis. Now I'm in terrible pain, narcs barely made it tolerable. My stomach is terribly sensitive. Tried marijuana, acupuncture, massage to no avail. Suggestions? http://answers.ankylosing.org/122052/suggestions-for-non-narcotic-non-nsaid-pain-relief-medications/ Mon, 02 Apr 2012 17:02:25 +0000 Asked by Kerry Monique Gaude' 2 months ago http://answers.ankylosing.org/122052/suggestions-for-non-narcotic-non-nsaid-pain-relief-medications/ Question: My doctor has taken me off all my medication except my patches to get ready to start me on a trial (if i pass the criteria needs) of an injection into the veins every 2 months... I dont know the name of it or anything can anyone help with some info please. It has only been available in america in the last 4 - 5 years? http://answers.ankylosing.org/121972/my-doctor-has-taken-me-off-all-my-medication-except-my-patches-to-get-ready-to-start-me-on-a-trial-if/ Sat, 31 Mar 2012 23:28:59 +0000 Asked by Kylie 2 months ago http://answers.ankylosing.org/121972/my-doctor-has-taken-me-off-all-my-medication-except-my-patches-to-get-ready-to-start-me-on-a-trial-if/ Question: I have a weird question now. I have been getting daily ocular migraines (aura) for a while now. Can this be related to inflammatory problems as in AS? http://answers.ankylosing.org/121932/i-have-a-weird-question-now-i-have-been-getting-daily-ocular-migraines-aura-for-a-while-now-can-this/ Fri, 30 Mar 2012 18:10:53 +0000 Asked by Rhonda Trimble 2 months ago http://answers.ankylosing.org/121932/i-have-a-weird-question-now-i-have-been-getting-daily-ocular-migraines-aura-for-a-while-now-can-this/ Question: My rhuemy wants me to try Humira injections. From the posts I've seen on here, I'm pretty sure I'm going to give it a try. My questions for all of you are: Did you have to continue on your daily NSAID's or did you stop them once the Humira kicked in? How long did it take for you to notice pain reduction after starting Humira? Has anyone had to stop Humira because they were undergoing surgery?(having my half my thyroid gland removed in the summer or fall) http://answers.ankylosing.org/121893/my-rhuemy-wants-me-to-try-humira-injections-from-the-posts-ive-seen-on-here-im-pretty-sure-im-going/ Thu, 29 Mar 2012 23:22:47 +0000 Asked by Lisa Bird 2 months ago http://answers.ankylosing.org/121893/my-rhuemy-wants-me-to-try-humira-injections-from-the-posts-ive-seen-on-here-im-pretty-sure-im-going/ Question: I finally got diagnosed, and had my first injection of humira 40 mgs. My new Doc said he'll give it a few weeks, and if the pain isn't better we will do injections weekly. Any side effects I should know about? I had some nausea this week, and kind of felt like I had the flu, not body aches, just weakness. Am I going to lose my hair with that much drug? : ( http://answers.ankylosing.org/120925/i-finally-got-diagnosed-and-had-my-first-injection-of-humira-40-mgs-my-new-doc-said-hell-give-it-a/ Thu, 15 Mar 2012 20:20:28 +0000 Asked by Carla 2 months ago http://answers.ankylosing.org/120925/i-finally-got-diagnosed-and-had-my-first-injection-of-humira-40-mgs-my-new-doc-said-hell-give-it-a/ Question: After a very rough night, I was getting ready for work this morning and I realized that I did not take ANY of my meds yesterday! How could that have happened? No wonder I am suffering today. I routinely miss my morning dose of NSAID just because I forget that it is in my pocket waiting for me to eat breakfast. Anyone have any advice for keeping on schedule or a good way to remind myself? http://answers.ankylosing.org/120874/after-a-very-rough-night-i-was-getting-ready-for-work-this-morning-and-i-realized-that-i-did-not-take/ Wed, 14 Mar 2012 19:18:12 +0000 Asked by C Langdon 2 months ago http://answers.ankylosing.org/120874/after-a-very-rough-night-i-was-getting-ready-for-work-this-morning-and-i-realized-that-i-did-not-take/ Question: Very, very interesting results in the Phase IV trial of Roche's RoActremra: www.inpharm.com/news/171608/roche-s-roactemra-beats-humira-a It says '...achieved a significantly greater reduction in disease activity after six months, when compared to patients taking Humira.' Indicated for AS - any of you heard about it from your docs? http://answers.ankylosing.org/120429/very-very-interesting-results-in-the-phase-iv-trial-of-roches-roactremra-a-hrefhttpwwwinpharmcomnews171608roche-s-roactemra-beats-humira-arthritis-study/ Fri, 09 Mar 2012 05:34:27 +0000 Asked by Chapps 3 months ago http://answers.ankylosing.org/120429/very-very-interesting-results-in-the-phase-iv-trial-of-roches-roactremra-a-hrefhttpwwwinpharmcomnews171608roche-s-roactemra-beats-humira-arthritis-study/ Question: Has anyone had to stop taking humira or other biologics due to side effects? What meds did you switch to, and how did everything go? http://answers.ankylosing.org/118629/has-anyone-had-to-stop-taking-humira-or-other-biologics-due-to-side-effects/ Mon, 27 Feb 2012 06:09:34 +0000 Asked by Kathryn 3 months ago http://answers.ankylosing.org/118629/has-anyone-had-to-stop-taking-humira-or-other-biologics-due-to-side-effects/ Question: Apremilast is a new med in trial right now, mostly for psoriasis. But in the UK, they're also using it in a trial for AS patients. Is anyone here in a trial for Apremilast for AS? If so, how's it going? http://answers.ankylosing.org/115591/apremilast-is-a-new-med-in-trial-right-now-mostly-for-psoriasis-but-in-the-uk-theyre-also-using-it/ Wed, 11 Jan 2012 21:32:44 +0000 Asked by Chapps 5 months ago http://answers.ankylosing.org/115591/apremilast-is-a-new-med-in-trial-right-now-mostly-for-psoriasis-but-in-the-uk-theyre-also-using-it/ Question: Anyone trying to manage without meds? I was diagnosed 2 years ago and have been trying to manage with exercise and some diet modifications.. Its hard, and im wondering if there are other people out there doing the same? http://answers.ankylosing.org/113397/anyone-trying-to-manage-without-meds/ Tue, 29 Nov 2011 22:57:25 +0000 Asked by Kelly 6 months ago http://answers.ankylosing.org/113397/anyone-trying-to-manage-without-meds/ Question: Anyone on fentanyl patches? Do they work for you at all? I started at 25 mcg a month ago and I'm in so much pain that suicide is an option! May I ask your dose? http://answers.ankylosing.org/112963/anyone-on-fentanyl-patches-do-they-work-for-you-at-all/ Tue, 22 Nov 2011 18:46:10 +0000 Asked by Amy Picklo 6 months ago http://answers.ankylosing.org/112963/anyone-on-fentanyl-patches-do-they-work-for-you-at-all/ Question: Hi everyone - hope you are all ok, my doc has put me on 600mg of Ibuprofen x3 per day for now, but it's giving me tummy ache and bad indigestion - am I right in thinking that I can't take an indigestion remedy (Gavisgon etc.) while I'm taking the ibuprofen? http://answers.ankylosing.org/107612/hi-everyone-hope-you-are-all-ok-my-doc-has-put-me-on-600mg-of-ibuprofen-x3-per-day-for-now-but-its/ Mon, 17 Oct 2011 20:04:10 +0000 Asked by Tanya de Lacy 8 months ago http://answers.ankylosing.org/107612/hi-everyone-hope-you-are-all-ok-my-doc-has-put-me-on-600mg-of-ibuprofen-x3-per-day-for-now-but-its/ Question: Sitting here at a pity party (alone of course) thinking how the hell did I get here and wondering what the friggin future holds. Pain meds are starting to become less and less effective. I have lingering pain even with percocet but don't want to take to many and not wake up one day. The pain is still tolerable but the fatigue is horrible and seems to be worse between pills. Is that a sign my body is craving the narcotic? http://answers.ankylosing.org/107465/sitting-here-at-a-pity-party-alone-of-course-thinking-how-the-hell-did-i-get-here-and-wondering-what/ Sun, 16 Oct 2011 06:45:33 +0000 Asked by Michael Rowley 8 months ago http://answers.ankylosing.org/107465/sitting-here-at-a-pity-party-alone-of-course-thinking-how-the-hell-did-i-get-here-and-wondering-what/ Question: Hi My Rheumatolgist Suggested that I start taking Humari but the possiable Side Affects worries me. I get sick about 3 to 5 times a year and for the past sevreal years I have been having Hands that Shake alot that is possiable of a Neurological Disorder. Tell me what you Think? http://answers.ankylosing.org/106263/hi-my-rheumatolgist-suggested-that-i-start-taking-humari-but-the-possiable-side-affects-worries-me-i/ Mon, 26 Sep 2011 20:24:51 +0000 Asked by John Johnson 8 months ago http://answers.ankylosing.org/106263/hi-my-rheumatolgist-suggested-that-i-start-taking-humari-but-the-possiable-side-affects-worries-me-i/ Question: Sulfasalazine has gotten me out of bed and decreased my fevers, hip pain, and severe fatigue. However, 50% of my days are still "flare days", where I can't do anything but lay in bed, SI/hip killing me, and generalized aches with low grade fevers. Is this a good result, or can I expect better and demand more aggressive medication management? http://answers.ankylosing.org/105905/sulfasalazine-has-gotten-me-out-of-bed-and-decreased-my-fevers-hip-pain-and-severe-fatigue-however/ Tue, 20 Sep 2011 03:49:31 +0000 Asked by Tricia Carsley 9 months ago http://answers.ankylosing.org/105905/sulfasalazine-has-gotten-me-out-of-bed-and-decreased-my-fevers-hip-pain-and-severe-fatigue-however/ Question: Has anyone used the BuTrans patches? I have been on 40mg Oxycontin 1 every 12 hours for about a year but at my visit last week she told me to begin taking 1 oxy per day to "taper off" and start using 5mg BuTrans patches. I'm just wondering how well they would work vs. Taking the pills. http://answers.ankylosing.org/105603/has-anyone-used-the-butrans-patches/ Wed, 14 Sep 2011 19:28:37 +0000 Asked by Christine Farr Fritts 9 months ago http://answers.ankylosing.org/105603/has-anyone-used-the-butrans-patches/ Question: Hi I am getting some great Answers. So is there in medicaton out there that stops the Disease in it's tracks or I have had this Disease for over 20 years is the Damage done? http://answers.ankylosing.org/104725/hi-i-am-getting-some-great-answers-so-is-there-in-medicaton-out-there-that-stops-the-disease-in-its/ Thu, 01 Sep 2011 04:13:10 +0000 Asked by John Johnson 9 months ago http://answers.ankylosing.org/104725/hi-i-am-getting-some-great-answers-so-is-there-in-medicaton-out-there-that-stops-the-disease-in-its/ Question: Has anyone used Sulfazine Befor? If so what r the Pros and Cons? I just Started taking it week and half ago. http://answers.ankylosing.org/104722/has-anyone-used-sulfazine-befor-if-so-what-r-the-pros-and-cons/ Thu, 01 Sep 2011 01:54:01 +0000 Asked by John Johnson 9 months ago http://answers.ankylosing.org/104722/has-anyone-used-sulfazine-befor-if-so-what-r-the-pros-and-cons/ Question: Looking for some candid answers. Am on Tramadol and Hydrocodone for the pain for about 2 years, since I moved I have to establish care with new docs, but you even mention those drugs and get looked at like a druggy. I tried to do without for 2 1/2 weeks, and was seriously contemplating suicide because of the intense constant pain and some serious life issues. I am also dependant on Sulfasalazine to get out of bed, but have I become too dependant on the meds? Withdrawals weren't bad, just pain . http://answers.ankylosing.org/104390/looking-for-some-candid-answers-am-on-tramadol-and-hydrocodone-for-the-pain-for-about-2-years-since/ Tue, 30 Aug 2011 06:12:59 +0000 Asked by Tricia Carsley 9 months ago http://answers.ankylosing.org/104390/looking-for-some-candid-answers-am-on-tramadol-and-hydrocodone-for-the-pain-for-about-2-years-since/ Question: Anyone ever been on Plaquenil? What were your experiences and did you have eye problems? I have many autoimmune abnormalities and 99% sure have AS but since there's no actual fusion yet they won't classify me with it- even though I know I have it. Inflammation w/o fusion just means matter of time. http://answers.ankylosing.org/101114/anyone-ever-been-on-plaquenil-what-were-your-experiences-and-did-you-have-eye-problems/ Mon, 15 Aug 2011 23:46:26 +0000 Asked by Kristin 10 months ago http://answers.ankylosing.org/101114/anyone-ever-been-on-plaquenil-what-were-your-experiences-and-did-you-have-eye-problems/ Question: HI Amori99, you sound like me 18 years ago. Metatarsal pain, nerve pain-both feet, dozens of nerve block injections (still) orthotics, otc and several custom pairs. They need recovering now too. Years of epidurals, P.T. , aqua therapy neurontin, lexapro, you name it, regular visits to the podiatrist. I just happened to pass this page and I saw your description. I don't know much about these sites and signing up, but if you want to write me, I'm at Thanks... J.P? http://answers.ankylosing.org/100421/hi-amori99-you-sound-like-me-18-years-ago-metatarsal-pain-nerve-pain-both-feet-dozens-of-nerve-block/ Thu, 11 Aug 2011 18:59:29 +0000 Asked by Jp 10 months ago http://answers.ankylosing.org/100421/hi-amori99-you-sound-like-me-18-years-ago-metatarsal-pain-nerve-pain-both-feet-dozens-of-nerve-block/ Question: Hi all as sufferers,am new here but had as over 20 years,found out a had as when it was too late spine had already fused .been on humira adalimumab for year and a half is anyone else takin adalimumab injections? http://answers.ankylosing.org/100246/hi-all-as-sufferersam-new-here-but-had-as-over-20-yearsfound-out-a-had-as-when-it-was-too-late-spine/ Mon, 08 Aug 2011 16:49:58 +0000 Asked by Mick Knox 10 months ago http://answers.ankylosing.org/100246/hi-all-as-sufferersam-new-here-but-had-as-over-20-yearsfound-out-a-had-as-when-it-was-too-late-spine/ Question: Just wanted to post something positive for a change. My dr. Put me on cymbalta about 5 weeks ago to help with lower back pain and depression. I'm so excited at the difference it has made in my life? http://answers.ankylosing.org/99589/just-wanted-to-post-something-positive-for-a-change-my-dr-put-me-on-cymbalta-about-5-weeks-ago-to-help/ Tue, 02 Aug 2011 15:28:33 +0000 Asked by Karen 10 months ago http://answers.ankylosing.org/99589/just-wanted-to-post-something-positive-for-a-change-my-dr-put-me-on-cymbalta-about-5-weeks-ago-to-help/ Question: This article really peaked my interest, pissed me off royally as well. It's all about the bottom line. www.hrreporter.com/articleview?&articleid=10345&headline=spe http://answers.ankylosing.org/99252/this-article-really-peaked-my-interest-pissed-me-off-royally-as-well-its-all-about-the-bottom-line/ Mon, 01 Aug 2011 04:52:36 +0000 Asked by Tammy Martin 10 months ago http://answers.ankylosing.org/99252/this-article-really-peaked-my-interest-pissed-me-off-royally-as-well-its-all-about-the-bottom-line/ Question: Quick one, just curious has anyone notice any changes in their bodies when they're late their treatments? MD forgot to refill my Simponi and now she's on vacation until mid September, mean time ouch! Anyone notice any changes if they're late too? SI is driving me batty. http://answers.ankylosing.org/99234/quick-one-just-curious-has-anyone-notice-any-changes-in-their-bodies-when-theyre-late-their-treatments/ Sun, 31 Jul 2011 23:37:00 +0000 Asked by Tammy Martin 10 months ago http://answers.ankylosing.org/99234/quick-one-just-curious-has-anyone-notice-any-changes-in-their-bodies-when-theyre-late-their-treatments/ Question: I'm back. Ortho vist went well. MRI w/ injection scheduled for 8/1 for the quarter sized lesion on right proximal femur. 50 mg of prednisone for 5 days, if improved pain by friday, will give more for taper dose. Depending on how I feel friday and results of MRI, will do another full lower body MRI to see if ruptured disc, fractured fused SI joints, etc. Not understanding why couldn't do everything on first MRI? Said something about the predisone and swelling. Ideas? http://answers.ankylosing.org/98356/im-back-ortho-vist-went-well-mri-w-injection-scheduled-for-81-for-the-quarter-sized-lesion-on-right/ Wed, 27 Jul 2011 22:42:50 +0000 Asked by Carla 11 months ago http://answers.ankylosing.org/98356/im-back-ortho-vist-went-well-mri-w-injection-scheduled-for-81-for-the-quarter-sized-lesion-on-right/ Question: So, my insurance denied Enbrel and my rheumy started me on indomethicin. I got sick the first couple of times that I took it but then started taking it before bed and it was working great for a few days. Then...I found out I was pregnant. I called my rheumy, who said to stop the indomethicin and that there is nothing I can take now. My pain isnt too bad at the moment, but I'm only about six weeks along so I'm wondering if any of you who have gone through pregnancy with AS have any advice? Thanks http://answers.ankylosing.org/97151/so-my-insurance-denied-enbrel-and-my-rheumy-started-me-on-indomethicin-i-got-sick-the-first-couple/ Thu, 21 Jul 2011 22:24:56 +0000 Asked by Lenore 11 months ago http://answers.ankylosing.org/97151/so-my-insurance-denied-enbrel-and-my-rheumy-started-me-on-indomethicin-i-got-sick-the-first-couple/ Question: Do Any of you take indomethacin (or have you previously)? I got it today because my insurance company said I need to try another non-steroidal med before they'll approve me starting on Enbrel. My pharmacist told me to make sure to take it with food and drink plenty of water. I did this, taking the pill after a fairly big lunch and after drinking a bunch of water, but I'm finding myself feeling very dizzy and wonky now. Is this normal? Will it go away? It is not making work very easy, haha! http://answers.ankylosing.org/95481/do-any-of-you-take-indomethacin-or-have-you-previously-i-got-it-today-because-my-insurance-company/ Sun, 10 Jul 2011 21:30:58 +0000 Asked by Lenore 11 months ago http://answers.ankylosing.org/95481/do-any-of-you-take-indomethacin-or-have-you-previously-i-got-it-today-because-my-insurance-company/ Question: For those not finding success on biologics, or who are unable to afford them: Have you tried trental? This is a drug from the 1970s that makes red blood cells slipperier. It's called a blood flow enhancer. A friend has tried it with great success. It has similar benefits to the biologics but is not as powerful, but it has only mild side effects. Best of all it's a generic and cheap! Anyone tried trental? http://answers.ankylosing.org/95243/for-those-not-finding-success-on-biologics-or-who-are-unable-to-afford-them-have-you-tried-trental/ Wed, 06 Jul 2011 21:48:55 +0000 Asked by Stephen 11 months ago http://answers.ankylosing.org/95243/for-those-not-finding-success-on-biologics-or-who-are-unable-to-afford-them-have-you-tried-trental/ Question: I have an appointment with Dr on Tuesday and I am hoping to get off TNF's for a while. I am currently on Humira and have been on Enbrel in the past and I feel that both medication are effecting me emotionally. I am keeping a journal and I am finding on day 2 or 3 of med cycle I get very depressed and overly sensitive. Has any one else found this? Anyone else not on TNF's what are you taking to help with AS? http://answers.ankylosing.org/95221/i-have-an-appointment-with-dr-on-tuesday-and-i-am-hoping-to-get-off-tnfs-for-a-while-i-am-currently/ Wed, 06 Jul 2011 13:53:01 +0000 Asked by Amy Arndt 11 months ago http://answers.ankylosing.org/95221/i-have-an-appointment-with-dr-on-tuesday-and-i-am-hoping-to-get-off-tnfs-for-a-while-i-am-currently/ Question: Does anyone have recommendations on what pain meds to take?I kinda felt attacked when I said I was on long acting Oxycotin 2x a day and Percocet when needed.I've been on Motrin 800mg every 4 hours, was on Nabutone and on Tramodol. Any suggestions so I don't have to be on narcotics? http://answers.ankylosing.org/94272/does-anyone-have-recommendations-on-what-pain-meds-to-take/ Tue, 28 Jun 2011 23:44:06 +0000 Asked by Sasha 12 months ago http://answers.ankylosing.org/94272/does-anyone-have-recommendations-on-what-pain-meds-to-take/ Question: I am taking 20 mg of Oxycontin in the morning and 20 mg of Oxycontin at night for the pain right now. It's not working as well as it had in the past, but I haven't started the MTX or TNF's yet, can't until 7/25, so controlling the pain.I take 10mg Percocet for the breakthrough pain.When I signed the pain med contract they said I should take 2 Senokot a night (veggie based laxative) to help with the constipation.I have to take 3 or 4 and twice a day to go? http://answers.ankylosing.org/94201/i-am-taking-20-mg-of-oxycontin-in-the-morning-and-20-mg-of-oxycontin-at-night-for-the-pain-right-now/ Tue, 28 Jun 2011 09:48:26 +0000 Asked by Sasha 12 months ago http://answers.ankylosing.org/94201/i-am-taking-20-mg-of-oxycontin-in-the-morning-and-20-mg-of-oxycontin-at-night-for-the-pain-right-now/ Question: Right now they haven't started MTX or TNF's I have a phone appt on Wed, still don't know if I should try MTX or TNF's, which one should I push for?I won't be able to start anything until July 25 when my mother gets back from her Alaskan Cruise, I'm not comfortable nor is she for me to start something without her being here in case there are horrible side effects as I have a dog to take care of (that's going to be hard enough having to walk him). http://answers.ankylosing.org/94200/right-now-they-havent-started-mtx-or-tnfs-i-have-a-phone-appt-on-wed-still-dont-know-if-i-should/ Tue, 28 Jun 2011 09:45:12 +0000 Asked by Sasha 12 months ago http://answers.ankylosing.org/94200/right-now-they-havent-started-mtx-or-tnfs-i-have-a-phone-appt-on-wed-still-dont-know-if-i-should/ Question: Head count, wondering who has been on Simponi the longest? Looking for long term side effects. Response is well but still not sure what to expect as impact down the road. Also, anyone on another DMARDs while in it? My answer; 16 months now http://answers.ankylosing.org/93977/head-count-wondering-who-has-been-on-simponi-the-longest-looking-for-long-term-side-effects-response/ Sun, 26 Jun 2011 15:28:15 +0000 Asked by Tammy Martin 12 months ago http://answers.ankylosing.org/93977/head-count-wondering-who-has-been-on-simponi-the-longest-looking-for-long-term-side-effects-response/ Question: My dr. Just prescribed cymbalta to help manage my pain and emotional status while battling this disease. Anyone else taking cymbalta. If so, what type of side effects have you had and how is it working for you. I've read some forums online where many people say it has really helped them except the side effects are tough for the first 2-3 weeks? http://answers.ankylosing.org/93862/my-dr-just-prescribed-cymbalta-to-help-manage-my-pain-and-emotional-status-while-battling-this-disease/ Sat, 25 Jun 2011 13:42:40 +0000 Asked by Karen 12 months ago http://answers.ankylosing.org/93862/my-dr-just-prescribed-cymbalta-to-help-manage-my-pain-and-emotional-status-while-battling-this-disease/ Question: So I was asking all of you guys about TNF's and after a half an hour phone call with my doc, he's ordered blood work, urine and possibly another MRI of my SI joint since it didn't show it was done and maybe a CT of my neck... He wants to start me off with MTX now instead of jumping to TNF's because there's more risks that come with TNF's, what do you all think? Has MTX worked for you? Did you start with it and then add TNF's? http://answers.ankylosing.org/93594/so-i-was-asking-all-of-you-guys-about-tnfs-and-after-a-half-an-hour-phone-call-with-my-doc-hes-ordered/ Thu, 23 Jun 2011 04:14:48 +0000 Asked by Sasha 12 months ago http://answers.ankylosing.org/93594/so-i-was-asking-all-of-you-guys-about-tnfs-and-after-a-half-an-hour-phone-call-with-my-doc-hes-ordered/ Question: So my Rhem emailed me and said I have hemangiomas, have you had that as a diagnosis? He wants to start me on TNF blockers, what would you suggest as the best one? I get very nauseous and dizzy right now so I don't know what's causing that and I have to take Phenegran and Meclazine. I'd love and appreciate any feedback. Thanks! http://answers.ankylosing.org/93096/so-my-rhem-emailed-me-and-said-i-have-hemangiomas-have-you-had-that-as-a-diagnosis-he-wants-to-start/ Sat, 18 Jun 2011 23:01:38 +0000 Asked by Sasha 1 year ago http://answers.ankylosing.org/93096/so-my-rhem-emailed-me-and-said-i-have-hemangiomas-have-you-had-that-as-a-diagnosis-he-wants-to-start/ Question: I'm on 15 mg of Morophine 2x a day, 5 mgPercocet 2 pills 4x a day and Muscle Relaxers 3x a day but the Morophine doesn't seem to be working and the Percocet lasts shorter than it did. I have a phone appt with my doc tomorrow, should I increase the MG of Morophine, I'm going to increase the percocet from 5mg to 10mg, and they're considering Oxycontin instead of the Morophine, any suggestions? http://answers.ankylosing.org/92437/im-on-15-mg-of-morophine-2x-a-day-5-mgpercocet-2-pills-4x-a-day-and-muscle-relaxers-3x-a-day-but-the/ Tue, 14 Jun 2011 04:20:23 +0000 Asked by Sasha 1 year ago http://answers.ankylosing.org/92437/im-on-15-mg-of-morophine-2x-a-day-5-mgpercocet-2-pills-4x-a-day-and-muscle-relaxers-3x-a-day-but-the/ Question: Do any of you have Fibromyalgia as well as AS? Or RA and AS? What are your specific symptoms? I'm sorry I'm asking so many questions, I have a second MRI on Monday of my neck and middle spine and it's with contrast because they saw something. They said they also see degeneration in my spine and bulging discs, is this a result of AS?I don't know the terms for the parts of the neck and spine. I just want to push for a diagnosis and stop being a damn guinea pig and pushed aside. http://answers.ankylosing.org/89911/do-any-of-you-have-fibromyalgia-as-well-as-as-or-ra-and-as-what-are-your-specific-symptoms-im-sorry/ Wed, 08 Jun 2011 06:05:38 +0000 Asked by Sasha 1 year ago http://answers.ankylosing.org/89911/do-any-of-you-have-fibromyalgia-as-well-as-as-or-ra-and-as-what-are-your-specific-symptoms-im-sorry/ Question: Pain medications... I found myself a new physician, yesterday. I meet with him June 27th, he specializes in treating chronic pain. Anyway, I am meeting with him to discuss a second opinion rheumy, pain medication, and just every little question I can think of and write down. I wanted to know what kind of pain meds you are all on. I am not taking anything for pain right now, just Naproxen for inflammation and Nortriptyline to help with sleep. Thanks in advance? http://answers.ankylosing.org/89219/pain-medications-i-found-myself-a-new-physician-yesterday-i-meet-with-him-june-27th-he-specializes/ Thu, 02 Jun 2011 18:20:16 +0000 Asked by Lindsay Cairns 1 year ago http://answers.ankylosing.org/89219/pain-medications-i-found-myself-a-new-physician-yesterday-i-meet-with-him-june-27th-he-specializes/ Question: How long does it usually take for symptoms to subside with Sulfasalazine, for those that have tried the drug. I've been on it for a couple weeks, gradually increasing my dose and have not had any more fevers, and way less lethargic. The swelling in my ankles and severe back pain is still there, but I was able to get out of bed without help today. I am praying the drug is working but skeptical I am just having a good week. I would really like to hear some experiences from others. Thanks? http://answers.ankylosing.org/87727/how-long-does-it-usually-take-for-symptoms-to-subside-with-sulfasalazine-for-those-that-have-tried-the/ Mon, 23 May 2011 23:42:41 +0000 Asked by Tricia Carsley 1 year ago http://answers.ankylosing.org/87727/how-long-does-it-usually-take-for-symptoms-to-subside-with-sulfasalazine-for-those-that-have-tried-the/ Question: I am STILL trying to get in to see a rheumatologist after nearly a year. (Aren't insurance companies grand?) Since my regular doctors won't prescribe TNF blockers, they are having me try Celebrex. I have had great results with prednisone, but have never had any relief with over the counter NSAIDS. Has anyone found relief with Celebrex? Did you have any problems with the drug? Thanks in advance :) http://answers.ankylosing.org/86588/i-am-still-trying-to-get-in-to-see-a-rheumatologist-after-nearly-a-year-arent-insurance-companies/ Fri, 13 May 2011 01:39:25 +0000 Asked by Taylor Davis 1 year ago http://answers.ankylosing.org/86588/i-am-still-trying-to-get-in-to-see-a-rheumatologist-after-nearly-a-year-arent-insurance-companies/ Question: Anyone on longterm hydrocodone or oxycodone therapy? Does it work? Any side effects? http://answers.ankylosing.org/86021/anyone-on-longterm-hydrocodone-or-oxycodone-therapy-does-it-work/ Sat, 07 May 2011 10:42:49 +0000 Asked by Stephen 1 year ago http://answers.ankylosing.org/86021/anyone-on-longterm-hydrocodone-or-oxycodone-therapy-does-it-work/ Question: There is a strong possibility that my 14-year-old son has AS. He has been suffering from chronic back pain and headaches. Both his dad and grandfather have AS. Any advice on meds for teenagers? He took NSAIDs (Naproxen) for a year, but that put him in the hospital with gastric bleeding. Also, I'd appreciate any advice on keeping him positive. http://answers.ankylosing.org/84717/there-is-a-strong-possibility-that-my-14-year-old-son-has-as-he-has-been-suffering-from-chronic-back/ Sun, 24 Apr 2011 15:20:23 +0000 Asked by Cindy Hoffman 1 year ago http://answers.ankylosing.org/84717/there-is-a-strong-possibility-that-my-14-year-old-son-has-as-he-has-been-suffering-from-chronic-back/ Question: I was told by my rhumy that MTX does not work for patients with AS and will only prescribe Humira. I see several posts where people are using or have used MTX. My GP does not want me on either and insists that poisoning my immune system is not an option. I know there is no guarantee either will work but would prefer to try MTX first. Anyone having positive results with it? http://answers.ankylosing.org/84659/i-was-told-by-my-rhumy-that-mtx-does-not-work-for-patients-with-as-and-will-only-prescribe-humira-i/ Sat, 23 Apr 2011 20:10:54 +0000 Asked by Michael Rowley 1 year ago http://answers.ankylosing.org/84659/i-was-told-by-my-rhumy-that-mtx-does-not-work-for-patients-with-as-and-will-only-prescribe-humira-i/ Question: I need suggestions on good pain meds. What works for people? I've tried: Oxycontin, Oxycodone, Percs, Tylenol 3, Vicodin & Dilaudid; NSAIDs thru Indomethycin; nerve drugs: Neurontin, Lyrica, & Cymbalta; Flexeril for muscle relaxer. Oxycodone works best that I've tried. Suggestions? http://answers.ankylosing.org/81963/i-need-suggestions-on-good-pain-meds-what-works-for-people/ Mon, 04 Apr 2011 09:53:03 +0000 Asked by Kerry Monique Gaude' 1 year ago http://answers.ankylosing.org/81963/i-need-suggestions-on-good-pain-meds-what-works-for-people/ Question: I have had AS for two years now and have had minimal pain while taking an anti-inflammatory. Last visit my dr. And I discussed me moving to Enbrel because the pain has slowly increased and what used to work no longer does. I am nervous about taking Enbrel. At what point did anyone decide that it was time to make the jump? http://answers.ankylosing.org/74710/i-have-had-as-for-two-years-now-and-have-had-minimal-pain-while-taking-an-anti-inflammatory-last-visit/ Sun, 20 Mar 2011 23:09:00 +0000 Asked by Philip Martinez 1 year ago http://answers.ankylosing.org/74710/i-have-had-as-for-two-years-now-and-have-had-minimal-pain-while-taking-an-anti-inflammatory-last-visit/ Question: This is not a question. I wanted to share a review on my pain medication. My Pain Management Dr. Started me on Nucynta 100mg four times a day about 4 months ago. I want to say this med has been a life saver. It has my pain managed to a 4 on most days. It took about a month to start feeling the difference but now am functioning more than not. The only bad side effects is the slight nausea & itching. If you haven't found the right one ask your Dr. About Nucynta? http://answers.ankylosing.org/70611/this-is-not-a-question-i-wanted-to-share-a-review-on-my-pain-medication-my-pain-management-dr-started/ Tue, 08 Mar 2011 06:54:50 +0000 Asked by Christee Damron 1 year ago http://answers.ankylosing.org/70611/this-is-not-a-question-i-wanted-to-share-a-review-on-my-pain-medication-my-pain-management-dr-started/ Question: I am having big time pain and grinding in both SI joints. It makes sitting almost impossible and I have a lot of numbness going down my left leg into my foot. I am wondering if others with AS have anything like this and what can be done about the chronic discomfort and pain? Also, have you ever had bad side effects from methotrexate? http://answers.ankylosing.org/70593/i-am-having-big-time-pain-and-grinding-in-both-si-joints-it-makes-sitting-almost-impossible-and-i-have/ Tue, 08 Mar 2011 00:27:07 +0000 Asked by Marji Page 1 year ago http://answers.ankylosing.org/70593/i-am-having-big-time-pain-and-grinding-in-both-si-joints-it-makes-sitting-almost-impossible-and-i-have/ Question: Has anyone taken Savella? What r ur opinions on the med? http://answers.ankylosing.org/70584/has-anyone-taken-savella/ Mon, 07 Mar 2011 21:32:00 +0000 Asked by La Randa Stout Merlette 1 year ago http://answers.ankylosing.org/70584/has-anyone-taken-savella/ Question: Has anyone been through Humira, Enbrel, Simponi, Cimiza, and Remicade with no or negative results? If so, what was your next course of action? This is the current situation I find myself in. http://answers.ankylosing.org/70467/has-anyone-been-through-humira-enbrel-simponi-cimiza-and-remicade-with-no-or-negative-results-if/ Sun, 06 Mar 2011 03:18:00 +0000 Asked by Denise Cornell 1 year ago http://answers.ankylosing.org/70467/has-anyone-been-through-humira-enbrel-simponi-cimiza-and-remicade-with-no-or-negative-results-if/ Question: I am new to this site and want to say hello! I have AS and Fibro. Was diagnosed in 2005. Docs say I have had it since I was about 15 but took 15 yrs to diagnose. Had to wait for the SI joints to completely fuse. Does anyone have trouble getting docs to do x-rays or mris after diagnoses? I am really interested in knowing about Savella also, from anyone who is or has taken it? Thanks! http://answers.ankylosing.org/69443/i-am-new-to-this-site-and-want-to-say-hello-i-have-as-and-fibro-was-diagnosed-in-2005-docs-say-i-have/ Wed, 02 Mar 2011 00:03:51 +0000 Asked by La Randa Stout Merlette 1 year ago http://answers.ankylosing.org/69443/i-am-new-to-this-site-and-want-to-say-hello-i-have-as-and-fibro-was-diagnosed-in-2005-docs-say-i-have/ Question: Hi. Feeling despondent. My shoulders are agony. Can't sleep except for on my back and I always roll. Also want to scream whenever my arms move, which for the average person is a lot. NSAIDS not helping. Suggestions, please? http://answers.ankylosing.org/68345/hi-feeling-despondent-my-shoulders-are-agony-cant-sleep-except-for-on-my-back-and-i-always-roll/ Sat, 26 Feb 2011 05:30:02 +0000 Asked by Sam 1 year ago http://answers.ankylosing.org/68345/hi-feeling-despondent-my-shoulders-are-agony-cant-sleep-except-for-on-my-back-and-i-always-roll/ Question: I had been on tramadol for about 15 years then had a seizure two days ago. While investigating causes the only thing that jumped out was the tramadol. I've stopped taking it but I'm wondering if anyone else has had a seizure or even heard of anyone else having one while on tramadol? http://answers.ankylosing.org/67817/i-had-been-on-tramadol-for-about-15-years-then-had-a-seizure-two-days-ago-while-investigating-causes/ Fri, 18 Feb 2011 02:23:46 +0000 Asked by Stephen DeGraff 1 year ago http://answers.ankylosing.org/67817/i-had-been-on-tramadol-for-about-15-years-then-had-a-seizure-two-days-ago-while-investigating-causes/ Question: Update: So, I met w/ the PA and we determined that Humira is not working. She wants me to go right to Remicade infusions. I see folks here that have taken Humira weekly or went to Enbrel, etc.....not right to infusions! Also, I had to ask for a pain med. Humira is not working and I am in constant PAIN! She told me they dont prescribe pain pills, the regimen alone should make me feel better. She gave to me for now....advice on next steps reccomendations rather than infusions? http://answers.ankylosing.org/64603/update-so-i-met-w-the-pa-and-we-determined-that-humira-is-not-working-she-wants-me-to-go-right-to/ Sat, 05 Feb 2011 19:52:09 +0000 Asked by Jenni 1 year ago http://answers.ankylosing.org/64603/update-so-i-met-w-the-pa-and-we-determined-that-humira-is-not-working-she-wants-me-to-go-right-to/ Question: I went to my rheumy the other day. I made a list of all my "symptoms" whether I thought they were related to my AS or not, and her and I both realized the Plaquenil wasn't cutting it! I now have a bottle of the lowest dose Methotrexate pills on my counter but am so nervous to take them! I have two kids to take care of and can't be out of commission for a few days... What kinds of symptoms have you guys had? Am I freaking myself out for no reason?! http://answers.ankylosing.org/64379/i-went-to-my-rheumy-the-other-day-i-made-a-list-of-all-my-symptoms-whether-i-thought-they-were-related/ Thu, 03 Feb 2011 01:02:19 +0000 Asked by Suzanne Szymon Budd 1 year ago http://answers.ankylosing.org/64379/i-went-to-my-rheumy-the-other-day-i-made-a-list-of-all-my-symptoms-whether-i-thought-they-were-related/ Question: F/U with my rhuemy 2marrow. I want him to refill my hydro but I am worried that he wont -- b/c I am not sure if it is norm. To take a TNF and a pain med..... Taking humira since oct. And I do not feel great, I feel ok. I need the pain meds to keep me going or I hurt so bad! Thoughts? http://answers.ankylosing.org/64330/fu-with-my-rhuemy-2marrow-i-want-him-to-refill-my-hydro-but-i-am-worried-that-he-wont-bc-i-am-not/ Wed, 02 Feb 2011 15:41:36 +0000 Asked by Jenni 1 year ago http://answers.ankylosing.org/64330/fu-with-my-rhuemy-2marrow-i-want-him-to-refill-my-hydro-but-i-am-worried-that-he-wont-bc-i-am-not/ Question: Has anyone had a platelet building treatments. My Hemo & Rheumy have been working together & think that possibly my low platelets are keeping my bio's from working. They want to possibly start building my platelets through treatment. Any advice would be appreciated? http://answers.ankylosing.org/63985/has-anyone-had-a-platelet-building-treatments-my-hemo-rheumy-have-been-working-together-think-that/ Sat, 29 Jan 2011 17:01:41 +0000 Asked by Amanda 1 year ago http://answers.ankylosing.org/63985/has-anyone-had-a-platelet-building-treatments-my-hemo-rheumy-have-been-working-together-think-that/ Question: Hi, I have a new norspan patch 5mg I take 20mg methotrexate every Friday night. Last Friday was fine but this friday it's made me vomit all day saturday just wondering anyone else had this experience mixing methotrexate & norspan? http://answers.ankylosing.org/63110/hi-i-have-a-new-norspan-patch-5mg-i-take-20mg-methotrexate-every-friday-night-last-friday-was-fine/ Sat, 22 Jan 2011 14:56:49 +0000 Asked by Sarah 1 year ago http://answers.ankylosing.org/63110/hi-i-have-a-new-norspan-patch-5mg-i-take-20mg-methotrexate-every-friday-night-last-friday-was-fine/ Question: I have no health insurance and I have been in more pain than ever lately. My hips, knees, and legs just feel like they are broken...easiest way to explain the pain. Does anyone have any home remedies that they have found to help? Besides NSAIDS! http://answers.ankylosing.org/62923/i-have-no-health-insurance-and-i-have-been-in-more-pain-than-ever-lately-my-hips-knees-and-legs-just/ Thu, 20 Jan 2011 14:57:00 +0000 Asked by Jessica Allen 1 year ago http://answers.ankylosing.org/62923/i-have-no-health-insurance-and-i-have-been-in-more-pain-than-ever-lately-my-hips-knees-and-legs-just/ Question: Does anyone here take sulfasalazine? Are there any meds that help with fatigue? http://answers.ankylosing.org/62008/does-anyone-here-take-sulfasalazine/ Mon, 10 Jan 2011 02:48:09 +0000 Asked by Kelly 1 year ago http://answers.ankylosing.org/62008/does-anyone-here-take-sulfasalazine/ Question: WA State AS people: The state legislature is about to make it much more difficult for chronic pain sufferers (like us) to get narcotics. See: www.kuow.org/program.php?id=21621 (and more, continued). Please contact your elected officials! http://answers.ankylosing.org/61831/wa-state-as-people-the-state-legislature-is-about-to-make-it-much-more-difficult-for-chronic-pain-sufferers/ Fri, 07 Jan 2011 23:11:26 +0000 Asked by Rose Bigham 1 year ago http://answers.ankylosing.org/61831/wa-state-as-people-the-state-legislature-is-about-to-make-it-much-more-difficult-for-chronic-pain-sufferers/ Question: Has another with insurance ever been able to get help from a co like celebrex? I have ins but still costs me around $500 a month for celebrex. Last time I tried to get help, years ago, They were only helping people without insurance.... http://answers.ankylosing.org/60274/has-another-with-insurance-ever-been-able-to-get-help-from-a-co-like-celebrex/ Sat, 18 Dec 2010 01:40:55 +0000 Asked by Melissa Temple 2 years ago http://answers.ankylosing.org/60274/has-another-with-insurance-ever-been-able-to-get-help-from-a-co-like-celebrex/ Question: I'm new to AS my Dr has referred me to a rheumy but the wait is over a year (Ak). He discussed my case with the rheumy and they want me to start a TNF blocker, I have to go back in this wk, are tnf meds essential for preventing fusion? http://answers.ankylosing.org/59908/im-new-to-as-my-dr-has-referred-me-to-a-rheumy-but-the-wait-is-over-a-year-ak-he-discussed-my-case/ Mon, 13 Dec 2010 08:35:40 +0000 Asked by Cara Guikema 2 years ago http://answers.ankylosing.org/59908/im-new-to-as-my-dr-has-referred-me-to-a-rheumy-but-the-wait-is-over-a-year-ak-he-discussed-my-case/ Question: Any problems with taking plaquenil? http://answers.ankylosing.org/59680/any-problems-with-taking-plaquenil/ Fri, 10 Dec 2010 12:37:56 +0000 Asked by Julie 2 years ago http://answers.ankylosing.org/59680/any-problems-with-taking-plaquenil/ Question: I had bad insomnia last night after starting Salazopyrin. Could someone who's been on it tell me if that's going to be a permanent feature, or whether it's just during the phasing in period? It's around 11pm now and I'm nowhere near sleep. http://answers.ankylosing.org/59471/i-had-bad-insomnia-last-night-after-starting-salazopyrin-could-someone-whos-been-on-it-tell-me-if-thats/ Tue, 07 Dec 2010 20:34:03 +0000 Asked by Sam 2 years ago http://answers.ankylosing.org/59471/i-had-bad-insomnia-last-night-after-starting-salazopyrin-could-someone-whos-been-on-it-tell-me-if-thats/ Question: I have unusually severe AS - particularly for a woman. I've had cauda equina, Reiters and severe flare-ups in my spine and shoulders. I'm starting Salazopyrin (sulphasalazine), but the side-effects look hectic. What can I expect? http://answers.ankylosing.org/59366/i-have-unusually-severe-as-particularly-for-a-woman-ive-had-cauda-equina-reiters-and-severe-flare-ups/ Mon, 06 Dec 2010 16:12:58 +0000 Asked by Sam 2 years ago http://answers.ankylosing.org/59366/i-have-unusually-severe-as-particularly-for-a-woman-ive-had-cauda-equina-reiters-and-severe-flare-ups/ Question: Any info why you need to be cautious with antibiotics while on Remicade & Methotrexate? Going to the Dentist for a deep cleaning & wants to do prophylactic antibiotics can anyone relate is there anything i need to know? http://answers.ankylosing.org/59261/any-info-why-you-need-to-be-cautious-with-antibiotics-while-on-remicade-methotrexate/ Sun, 05 Dec 2010 03:08:02 +0000 Asked by Heather Winkler 2 years ago http://answers.ankylosing.org/59261/any-info-why-you-need-to-be-cautious-with-antibiotics-while-on-remicade-methotrexate/ Question: Muscle relaxants: What have you tried, and what are you taking? I have been taking Soma (Carisprodol) for years but my pain doc wants me off of it. He's asked me to try Tizanidine, or Zanaflex. Does anyone know this one? Is it effective? Thx! http://answers.ankylosing.org/59192/muscle-relaxants-what-have-you-tried-and-what-are-you-taking-i-have-been-taking-soma-carisprodol/ Sat, 04 Dec 2010 06:13:12 +0000 Asked by Rose Bigham 2 years ago http://answers.ankylosing.org/59192/muscle-relaxants-what-have-you-tried-and-what-are-you-taking-i-have-been-taking-soma-carisprodol/ Question: My hands and feet hurt more than my spine or si joints. Anyone else have this problem? Can I take anything that specifically targets the enthesis? I am on mtx but nothing else at this point. http://answers.ankylosing.org/59020/my-hands-and-feet-hurt-more-than-my-spine-or-si-joints-anyone-else-have-this-problem-can-i-take-anything/ Thu, 02 Dec 2010 02:22:31 +0000 Asked by Marsha Heins 2 years ago http://answers.ankylosing.org/59020/my-hands-and-feet-hurt-more-than-my-spine-or-si-joints-anyone-else-have-this-problem-can-i-take-anything/ Question: Does anyone have swelling from meds? I am trying to figure out if it is the NSAID I am taking. I was off of all my meds for a couple weeks (minor surgery) and although the pain was worse some of the swelling was decreased. Any thoughts? http://answers.ankylosing.org/58912/does-anyone-have-swelling-from-meds/ Wed, 01 Dec 2010 14:25:05 +0000 Asked by Sara Sheibley 2 years ago http://answers.ankylosing.org/58912/does-anyone-have-swelling-from-meds/ Question: OK Enbrel users - talk to me. I am switching this month from Simponi (1 x a month) to Enbrel (4 x a month). What should i look out for with the Enbrel? http://answers.ankylosing.org/58846/ok-enbrel-users-talk-to-me-i-am-switching-this-month-from-simponi-1-x-a-month-to-enbrel-4-x-a-month/ Tue, 30 Nov 2010 17:52:45 +0000 Asked by Jennafer Ross 2 years ago http://answers.ankylosing.org/58846/ok-enbrel-users-talk-to-me-i-am-switching-this-month-from-simponi-1-x-a-month-to-enbrel-4-x-a-month/ Question: Does anyone else suffer hair loss? I'm wondering if it has anything to do with the meds I'm on (Plaquinil for AS and a few others for Bi-Polar II Disorder), or if it's the AS itself. http://answers.ankylosing.org/58631/does-anyone-else-suffer-hair-loss/ Sun, 28 Nov 2010 01:01:00 +0000 Asked by Suzanne Szymon Budd 2 years ago http://answers.ankylosing.org/58631/does-anyone-else-suffer-hair-loss/ Question: I've been on Remicade for over 4 years - it has changed my life. But... I find myself even after all this time wanting so much for it to not be true that I need it. Is there anyone else who has considered stopping? BTW - infusion tomorrow. http://answers.ankylosing.org/57743/ive-been-on-remicade-for-over-4-years-it-has-changed-my-life-but-i-find-myself-even-after-all/ Mon, 15 Nov 2010 23:17:06 +0000 Asked by Jenna 2 years ago http://answers.ankylosing.org/57743/ive-been-on-remicade-for-over-4-years-it-has-changed-my-life-but-i-find-myself-even-after-all/ Question: Ever get tired of getting diagnosed with something vague? 3 new ones in 2 weeks to include idiopathic distal neuropathy (switching from enbrel to humira), food allergies & arthritis of the foot. Elimination diet, PT and med changes. Stressful! http://answers.ankylosing.org/56536/ever-get-tired-of-getting-diagnosed-with-something-vague/ Thu, 04 Nov 2010 16:15:31 +0000 Asked by Sara Sheibley 2 years ago http://answers.ankylosing.org/56536/ever-get-tired-of-getting-diagnosed-with-something-vague/ Question: Does anyone have alot of issues in taking most if not all medications prescribed , i have had most except for the humira and enbrel. This is my problem what if one of these two don't work? Then what are the options because i cant live like this http://answers.ankylosing.org/56283/does-anyone-have-alot-of-issues-in-taking-most-if-not-all-medications-prescribed-i-have-had-most-except/ Wed, 03 Nov 2010 07:34:09 +0000 Asked by Janetk 2 years ago http://answers.ankylosing.org/56283/does-anyone-have-alot-of-issues-in-taking-most-if-not-all-medications-prescribed-i-have-had-most-except/ Question: I will be starting my Humira in a couple of days with the injector pens .Any tips on the best way and place to do it would be appreciated? http://answers.ankylosing.org/56153/i-will-be-starting-my-humira-in-a-couple-of-days-with-the-injector-pens-any-tips-on-the-best-way-and/ Tue, 02 Nov 2010 18:26:54 +0000 Asked by Sheridan 2 years ago http://answers.ankylosing.org/56153/i-will-be-starting-my-humira-in-a-couple-of-days-with-the-injector-pens-any-tips-on-the-best-way-and/ Question: I have my hearing next week, I am so nerveous.. The med. That I have been on makes me so I can't remember things the the 2 hr. Ride is going to kill me... Any advice you can give. Say a prayer and wish me some luck? http://answers.ankylosing.org/55438/i-have-my-hearing-next-week-i-am-so-nerveous-the-med-that-i-have-been-on-makes-me-so-i-cant-remember/ Fri, 29 Oct 2010 14:46:45 +0000 Asked by Julie 2 years ago http://answers.ankylosing.org/55438/i-have-my-hearing-next-week-i-am-so-nerveous-the-med-that-i-have-been-on-makes-me-so-i-cant-remember/ Question: My pain has been increasing over the past few weeks, and it's really interfering with my daily activities. My next appointment with the rheumy isn't until December. What type of medicine can I/should I ask my orthopedic doctor for in the meantime? http://answers.ankylosing.org/54351/my-pain-has-been-increasing-over-the-past-few-weeks-and-its-really-interfering-with-my-daily-activities/ Sun, 24 Oct 2010 05:49:49 +0000 Asked by Jeff B 2 years ago http://answers.ankylosing.org/54351/my-pain-has-been-increasing-over-the-past-few-weeks-and-its-really-interfering-with-my-daily-activities/ Question: I am going on the 3rd to a Neuro. To rule out MS. After that Dr. Is wanting to put me on Imuran. Has anyone else taken this medication? He said Imuran or Humira. I've read all the posts on Humira but saw none on Imuran. Any help would be great. http://answers.ankylosing.org/54069/i-am-going-on-the-3rd-to-a-neuro-to-rule-out-ms-after-that-dr-is-wanting-to-put-me-on-imuran-has/ Fri, 22 Oct 2010 20:59:59 +0000 Asked by Christee Damron 2 years ago http://answers.ankylosing.org/54069/i-am-going-on-the-3rd-to-a-neuro-to-rule-out-ms-after-that-dr-is-wanting-to-put-me-on-imuran-has/ Question: Going to start Remicade next week and was a little concerned about the building up of antibodies against it- What is that all about? I hear people talking about it- Does that happen with all TNF's or just Remacade? http://answers.ankylosing.org/54047/going-to-start-remicade-next-week-and-was-a-little-concerned-about-the-building-up-of-antibodies-against/ Fri, 22 Oct 2010 18:15:19 +0000 Asked by Heather Winkler 2 years ago http://answers.ankylosing.org/54047/going-to-start-remicade-next-week-and-was-a-little-concerned-about-the-building-up-of-antibodies-against/ Question: Biologic injection sites: Can you inject it anywhere other than thighs/stomach? Perhaps hip/tush? http://answers.ankylosing.org/52463/biologic-injection-sites-can-you-inject-it-anywhere-other-than-thighsstomach/ Fri, 15 Oct 2010 06:11:54 +0000 Asked by Kathryn 2 years ago http://answers.ankylosing.org/52463/biologic-injection-sites-can-you-inject-it-anywhere-other-than-thighsstomach/ Question: Saw doc today and now waiting for rheumy appointment! He's given me Naproxen, codiene and cocodamol. It says on the pack use for 3 days-can cause addiction, he's given me 210 tablets and I've taken for 2 weeks without a break. Should I be worried? http://answers.ankylosing.org/52109/saw-doc-today-and-now-waiting-for-rheumy-appointment-hes-given-me-naproxen-codiene-and-cocodamol/ Wed, 13 Oct 2010 10:45:04 +0000 Asked by Abbsi 2 years ago http://answers.ankylosing.org/52109/saw-doc-today-and-now-waiting-for-rheumy-appointment-hes-given-me-naproxen-codiene-and-cocodamol/ Question: How many of you have contacted pharmas to ask for free or reduced price medications? Did you succeed? What did the process involve? http://answers.ankylosing.org/50486/how-many-of-you-have-contacted-pharmas-to-ask-for-free-or-reduced-price-medications-did-you-succeed/ Wed, 06 Oct 2010 15:00:30 +0000 Asked by Chris Bennett 2 years ago http://answers.ankylosing.org/50486/how-many-of-you-have-contacted-pharmas-to-ask-for-free-or-reduced-price-medications-did-you-succeed/ Question: I was recently diagnosed with UnDif Sponylitis and Sacroiliac Dysfunction and have been prescribed Sulfasalazine. I have not taken my RX yet because I am not sure it's the right thing to do. Please help me decide what to do? http://answers.ankylosing.org/47818/i-was-recently-diagnosed-with-undif-sponylitis-and-sacroiliac-dysfunction-and-have-been-prescribed-sulfasalazine/ Mon, 27 Sep 2010 03:10:04 +0000 Asked by Amanda 2 years ago http://answers.ankylosing.org/47818/i-was-recently-diagnosed-with-undif-sponylitis-and-sacroiliac-dysfunction-and-have-been-prescribed-sulfasalazine/ Question: Heartburn. Horrible. Have any of you had this as a result of meeds or the AS? http://answers.ankylosing.org/47013/heartburn-horrible-have-any-of-you-had-this-as-a-result-of-meeds-or-the-as/ Tue, 21 Sep 2010 03:48:17 +0000 Asked by Chapps 2 years ago http://answers.ankylosing.org/47013/heartburn-horrible-have-any-of-you-had-this-as-a-result-of-meeds-or-the-as/ Question: I am in a pickle! I recently started Humira and after the third dose, I began to have chest pain with exertion and my pain levels rose in every joint. I began treatment with Cipro, thinking I had a respiratory infection. Now I have terrible rash!Help? http://answers.ankylosing.org/46803/i-am-in-a-pickle-i-recently-started-humira-and-after-the-third-dose-i-began-to-have-chest-pain-with/ Sun, 19 Sep 2010 00:04:40 +0000 Asked by Julie Evans 2 years ago http://answers.ankylosing.org/46803/i-am-in-a-pickle-i-recently-started-humira-and-after-the-third-dose-i-began-to-have-chest-pain-with/ Question: I am switching from Humira to Simponi. Does anyone know how I can donate my extra meds? http://answers.ankylosing.org/46795/i-am-switching-from-humira-to-simponi-does-anyone-know-how-i-can-donate-my-extra-meds/ Sat, 18 Sep 2010 21:22:43 +0000 Asked by As Sufferer 2 years ago http://answers.ankylosing.org/46795/i-am-switching-from-humira-to-simponi-does-anyone-know-how-i-can-donate-my-extra-meds/ Question: Has anyone been prescribed Cimzia for their BIO? If so how long have you been on it, any side affects, and anything else you can tell me? I have been through Humira, Enbrel, and Simponi respectively. http://answers.ankylosing.org/46222/has-anyone-been-prescribed-cimzia-for-their-bio-if-so-how-long-have-you-been-on-it-any-side-affects/ Tue, 14 Sep 2010 18:22:03 +0000 Asked by Denise Cornell 2 years ago http://answers.ankylosing.org/46222/has-anyone-been-prescribed-cimzia-for-their-bio-if-so-how-long-have-you-been-on-it-any-side-affects/ Question: I have recently started Humira. The first four days after taking Humira I have great results, then it dumps me. I feel like I did before taking any meds. Plus I get agonizing headaches. I am also taking sulfasalazine. Any advice or experiences? http://answers.ankylosing.org/45431/i-have-recently-started-humira-the-first-four-days-after-taking-humira-i-have-great-results-then-it/ Mon, 06 Sep 2010 16:06:41 +0000 Asked by Julie Evans 2 years ago http://answers.ankylosing.org/45431/i-have-recently-started-humira-the-first-four-days-after-taking-humira-i-have-great-results-then-it/ Question: Has anyone taken humira or the like and have the pain go away then be able to stay off it for awhile? http://answers.ankylosing.org/44918/has-anyone-taken-humira-or-the-like-and-have-the-pain-go-away-then-be-able-to-stay-off-it-for-awhile/ Fri, 03 Sep 2010 23:56:46 +0000 Asked by Sheridan 2 years ago http://answers.ankylosing.org/44918/has-anyone-taken-humira-or-the-like-and-have-the-pain-go-away-then-be-able-to-stay-off-it-for-awhile/ Question: Was diginosed recently at 57 but have had severe hip , back and now neck pain for 5 years . No let up . Treated with opiates and now they want to try humira .Would I need both ,do you think? http://answers.ankylosing.org/44881/was-diginosed-recently-at-57-but-have-had-severe-hip-back-and-now-neck-pain-for-5-years-no-let-up/ Fri, 03 Sep 2010 19:26:08 +0000 Asked by Sheridan 2 years ago http://answers.ankylosing.org/44881/was-diginosed-recently-at-57-but-have-had-severe-hip-back-and-now-neck-pain-for-5-years-no-let-up/ Question: I have too much neck pain,and my doctor told me i have spondylitis can you tell me what is spondylitis and what should do to prevent this disease?it is curable or it will be for life long. http://answers.ankylosing.org/44206/i-have-too-much-neck-painand-my-doctor-told-me-i-have-spondylitis-can-you-tell-me-what-is-spondylitis/ Tue, 31 Aug 2010 05:59:36 +0000 Asked by Mirza 2 years ago http://answers.ankylosing.org/44206/i-have-too-much-neck-painand-my-doctor-told-me-i-have-spondylitis-can-you-tell-me-what-is-spondylitis/ Question: Started Methotrexate bout 2 & a half to 3 months ago and lower back feels like it is really improving but now i have ALOT of pain in my feet,hands & my neck sound familiar to anyone else? http://answers.ankylosing.org/43625/started-methotrexate-bout-2-a-half-to-3-months-ago-and-lower-back-feels-like-it-is-really-improving/ Sat, 28 Aug 2010 16:05:20 +0000 Asked by Heather Winkler 2 years ago http://answers.ankylosing.org/43625/started-methotrexate-bout-2-a-half-to-3-months-ago-and-lower-back-feels-like-it-is-really-improving/ Question: Started on Methotrexate about 2 mo ago and I am having problems with inflammation and heard you can't take Ibuprophen with Methotrexate. What other anti-inflammatory's can you take? http://answers.ankylosing.org/42681/started-on-methotrexate-about-2-mo-ago-and-i-am-having-problems-with-inflammation-and-heard-you-cant/ Tue, 17 Aug 2010 19:50:32 +0000 Asked by Heather Winkler 2 years ago http://answers.ankylosing.org/42681/started-on-methotrexate-about-2-mo-ago-and-i-am-having-problems-with-inflammation-and-heard-you-cant/ Question: I was diagnosed with AS 2 years ago. I've been on several different NSAID's, and am currently am on Celebrex with no relief. My rheumy wants to try me on Plaquenil next. Has anyone been on this, and if so, how did it work? http://answers.ankylosing.org/42583/i-was-diagnosed-with-as-2-years-ago-ive-been-on-several-different-nsaids-and-am-currently-am-on-celebrex/ Tue, 17 Aug 2010 01:57:38 +0000 Asked by Suzanne Szymon Budd 2 years ago http://answers.ankylosing.org/42583/i-was-diagnosed-with-as-2-years-ago-ive-been-on-several-different-nsaids-and-am-currently-am-on-celebrex/ Question: I have As. I have just had a bad chest infection. I keep getting a dry mouth and have fluid gradually coming up, but am still dry. Then when I am asleep I am still aware of this and wake up suddenly, almost feels like i am drowning !? Anyone get this http://answers.ankylosing.org/42320/i-have-as-i-have-just-had-a-bad-chest-infection-i-keep-getting-a-dry-mouth-and-have-fluid-gradually/ Sun, 15 Aug 2010 06:22:35 +0000 Asked by Jovigirl Claire Wood 2 years ago http://answers.ankylosing.org/42320/i-have-as-i-have-just-had-a-bad-chest-infection-i-keep-getting-a-dry-mouth-and-have-fluid-gradually/ Question: Has anyone had trouble with salsalate. I know it sounds crazy but every time I take this NSAID I hurt worse? http://answers.ankylosing.org/41611/has-anyone-had-trouble-with-salsalate-i-know-it-sounds-crazy-but-every-time-i-take-this-nsaid-i-hurt/ Wed, 11 Aug 2010 10:48:48 +0000 Asked by Kimberlee Jarvis 2 years ago http://answers.ankylosing.org/41611/has-anyone-had-trouble-with-salsalate-i-know-it-sounds-crazy-but-every-time-i-take-this-nsaid-i-hurt/ Question: My spine is much worse than I thought it was. It hasn't fused but there is a lot of osteoarthritis and even a disk missing. I'm about to start Methrotrexate and I'm scared. Anyone have any thoughts/advice/experience? http://answers.ankylosing.org/40518/my-spine-is-much-worse-than-i-thought-it-was-it-hasnt-fused-but-there-is-a-lot-of-osteoarthritis-and/ Sun, 01 Aug 2010 18:24:16 +0000 Asked by Beckyg 2 years ago http://answers.ankylosing.org/40518/my-spine-is-much-worse-than-i-thought-it-was-it-hasnt-fused-but-there-is-a-lot-of-osteoarthritis-and/ Question: Im starting Enbrel soon... Any advice? Side effects? Good or bad? http://answers.ankylosing.org/39028/im-starting-enbrel-soon-any-advice-side-effects/ Mon, 26 Jul 2010 18:20:45 +0000 Asked by Amber:) 2 years ago http://answers.ankylosing.org/39028/im-starting-enbrel-soon-any-advice-side-effects/ Question: What medication has anyone found that actually works? http://answers.ankylosing.org/25932/what-medication-has-anyone-found-that-actually-works/ Fri, 23 Jul 2010 17:43:40 +0000 Asked by Debby 2 years ago http://answers.ankylosing.org/25932/what-medication-has-anyone-found-that-actually-works/ Question: Does anyone know what the difference is between the injectable methotrextate and the pill form; other than the obvious fact one is liquid and one is solid? http://answers.ankylosing.org/25867/does-anyone-know-what-the-difference-is-between-the-injectable-methotrextate-and-the-pill-form-other/ Fri, 23 Jul 2010 02:37:32 +0000 Asked by Denise Cornell 2 years ago http://answers.ankylosing.org/25867/does-anyone-know-what-the-difference-is-between-the-injectable-methotrextate-and-the-pill-form-other/ Question: Neurtine or lyrca? Which works best for nerve pain? Thanks! http://answers.ankylosing.org/24563/neurtine-or-lyrca-which-works-best-for-nerve-pain/ Tue, 13 Jul 2010 02:43:27 +0000 Asked by Kimberly 2 years ago http://answers.ankylosing.org/24563/neurtine-or-lyrca-which-works-best-for-nerve-pain/ Question: When first placed on meds, did you feel your symptoms worsen due to the an internal battle between meds and disease? http://answers.ankylosing.org/23441/when-first-placed-on-meds-did-you-feel-your-symptoms-worsen-due-to-the-an-internal-battle-between-meds/ Mon, 05 Jul 2010 18:51:25 +0000 Asked by Lori 2 years ago http://answers.ankylosing.org/23441/when-first-placed-on-meds-did-you-feel-your-symptoms-worsen-due-to-the-an-internal-battle-between-meds/ Question: Cure or Treatment Theory...Tell me what you think? Auto Immune Disease is your Immune System Turning on your body. When you're sick, the immune system goes into hyperdrive...Cont. Below.... http://answers.ankylosing.org/23392/cure-or-treatment-theorytell-me-what-you-think/ Mon, 05 Jul 2010 11:25:07 +0000 Asked by Jessica Farrell 2 years ago http://answers.ankylosing.org/23392/cure-or-treatment-theorytell-me-what-you-think/ Question: List your course of treatment. Include your medications, treatments, etc. It may help someone who is not improving or feeling relief on their current treatment bring up something new to their doctors? http://answers.ankylosing.org/23166/list-your-course-of-treatment-include-your-medications-treatments-etc-it-may-help-someone-who-is/ Sat, 03 Jul 2010 07:46:36 +0000 Asked by Jessica Farrell 2 years ago http://answers.ankylosing.org/23166/list-your-course-of-treatment-include-your-medications-treatments-etc-it-may-help-someone-who-is/ Question: Any experience with Fentynyl Patches? Started today, 25mcg/HR Patch. Still taking Hydrocodone 7.5, 3x a day, and Tramadol 100mg 3x a day. This combo seems to be working. http://answers.ankylosing.org/22695/any-experience-with-fentynyl-patches/ Wed, 30 Jun 2010 05:43:49 +0000 Asked by Gizmo 2 years ago http://answers.ankylosing.org/22695/any-experience-with-fentynyl-patches/ Question: Plaquinal - pigment loss in your hair? Color my hair red, within one month, I have white streaks. I'm a natural blonde. http://answers.ankylosing.org/22234/plaquinal-pigment-loss-in-your-hair/ Sat, 26 Jun 2010 19:31:51 +0000 Asked by Amy Picklo 2 years ago http://answers.ankylosing.org/22234/plaquinal-pigment-loss-in-your-hair/ Question: Im on Methotrexate and have been for 2 months with no relief ..the only thing ive notice is that i have really bad underarm oder :( ..i about to give up on this treament..Has anyone been on this with any luck? Suggestions? http://answers.ankylosing.org/20726/im-on-methotrexate-and-have-been-for-2-months-with-no-relief-the-only-thing-ive-notice-is-that-i-have/ Wed, 23 Jun 2010 20:30:48 +0000 Asked by Amber:) 2 years ago http://answers.ankylosing.org/20726/im-on-methotrexate-and-have-been-for-2-months-with-no-relief-the-only-thing-ive-notice-is-that-i-have/