Creative Commons Attribution-ShareAlike 2.0 UK: England & Wales Sun, 20 May 2012 23:20:35 +0000 http://answers.ankylosing.org/ Ankylosing Spondylitis webmaster@answers.ankylosing.org webmaster@answers.ankylosing.org en-us Question: I thought it might be fun to see who has the most medical professionals currently working for them on their AS. For example I have two: A rheumatologist and an ophthalmologist. Others might include therapists or surgeons. Please indicate a number and list them. No prizes for winners. How about it? http://answers.ankylosing.org/122068/i-thought-it-might-be-fun-to-see-who-has-the-most-medical-professionals-currently-working-for-them-on/ Tue, 03 Apr 2012 08:32:07 +0000 Asked by Stephen 2 months ago http://answers.ankylosing.org/122068/i-thought-it-might-be-fun-to-see-who-has-the-most-medical-professionals-currently-working-for-them-on/ Question: I am just learning to use this site -Thanks to all who answered my 1st question. I have changed GP's and the first thing he did was order an MRI I am waiting for the results. He hasn't changed my meds but doubled my hydrocodon until the results come back and he has more blood work. He has already mentioned a rheumatologihst in a nearby town and said if he send me to pain management it would also be in another town. At least this one seems to know alittle about AS - I hope? http://answers.ankylosing.org/121762/i-am-just-learning-to-use-this-site-thanks-to-all-who-answered-my-1st-question-i-have-changed-gps/ Mon, 26 Mar 2012 21:13:26 +0000 Asked by Pam Johnson 2 months ago http://answers.ankylosing.org/121762/i-am-just-learning-to-use-this-site-thanks-to-all-who-answered-my-1st-question-i-have-changed-gps/ Question: Help! Anyone in Colorado! I moved here in July & have had NO luck finding a GP to help me (or believe me) & my medical issues. I must have a GP on my side to get referrals to specialist. I've changed 2x's already, with no luck. Anyone know of GP, pain docs or rheumy's in state? It's been 6 months & I'm going downhill fast & continuously because no one will help me! http://answers.ankylosing.org/115830/help-anyone-in-colorado-i-moved-here-in-july-have-had-no-luck-finding-a-gp-to-help-me-or-believe/ Sun, 15 Jan 2012 19:27:51 +0000 Asked by Kerry Monique Gaude' 5 months ago http://answers.ankylosing.org/115830/help-anyone-in-colorado-i-moved-here-in-july-have-had-no-luck-finding-a-gp-to-help-me-or-believe/ Question: Hi I was recently told that my L4 and sacrum have fused and that i may have ankylosing spondylitis. I am in EXTREME pain! I saw a DO yesterday who said I need a rheumatologist I cant get an appointment till NOVEMBER 16th! I cannot walk, sit or sleep I am in a lot of pain! The DO gave me voltaren and was going to give me tramadol but I have a bad reaction to it. Im still in a lot of pain where can I get help? I cant stay like this till november! http://answers.ankylosing.org/104793/hi-i-was-recently-told-that-my-l4-and-sacrum-have-fused-and-that-i-may-have-ankylosing-spondylitis-i/ Fri, 02 Sep 2011 15:29:25 +0000 Asked by Heather Gamble 9 months ago http://answers.ankylosing.org/104793/hi-i-was-recently-told-that-my-l4-and-sacrum-have-fused-and-that-i-may-have-ankylosing-spondylitis-i/ Question: When I see a medical professional, I take a piece of paper with my health information on it. It includes my name and address, a recent photo, all of my diagnoses, a list of all my meds with their dosages, and contact info for all of my doctors. It also includes emergency contact info. This helps when the doctor's assistant asks all those annoying questions before I'm allowed to see the doctor. After the first annoying question I simply hand over the paper? http://answers.ankylosing.org/95259/when-i-see-a-medical-professional-i-take-a-piece-of-paper-with-my-health-information-on-it-it-includes/ Thu, 07 Jul 2011 04:19:23 +0000 Asked by Stephen 11 months ago http://answers.ankylosing.org/95259/when-i-see-a-medical-professional-i-take-a-piece-of-paper-with-my-health-information-on-it-it-includes/ Question: Going to see GP again tomorrow. Starting to feel like I'm annoying her. The rheumy isn't returning her calls. GP made the initial dx of AS, but has offered nothing but NSAIDs and wait. Meanwhile, the tinnitus, and buzzing in feet and hands has gotten worse. Pain in joints is often horrid. I'm at my breaking point. Looking for suggestions as to how to be taken more seriously by GP. Not sure anymore if this is AS... Wondering about seeing a neurologists. Suggestions? http://answers.ankylosing.org/95245/going-to-see-gp-again-tomorrow-starting-to-feel-like-im-annoying-her-the-rheumy-isnt-returning-her/ Wed, 06 Jul 2011 22:16:06 +0000 Asked by Gullyabb 11 months ago http://answers.ankylosing.org/95245/going-to-see-gp-again-tomorrow-starting-to-feel-like-im-annoying-her-the-rheumy-isnt-returning-her/ Question: Any one know of any good doctors in the san diego area? http://answers.ankylosing.org/92996/any-one-know-of-any-good-doctors-in-the-san-diego-area/ Sat, 18 Jun 2011 05:01:53 +0000 Asked by Kelly 1 year ago http://answers.ankylosing.org/92996/any-one-know-of-any-good-doctors-in-the-san-diego-area/ Question: We're moving to Mississippi! Any recommendations for a Rheumy there? (This is a long shot, I know) http://answers.ankylosing.org/87926/were-moving-to-mississippi-any-recommendations-for-a-rheumy-there/ Wed, 25 May 2011 16:16:50 +0000 Asked by Catherine Terry 1 year ago http://answers.ankylosing.org/87926/were-moving-to-mississippi-any-recommendations-for-a-rheumy-there/ Question: I just wondered if anyone has experienced increasing or continuing pain and negative CRP and Sed rate? If so did any of your doctors say anything informative about this enigma? http://answers.ankylosing.org/81440/i-just-wondered-if-anyone-has-experienced-increasing-or-continuing-pain-and-negative-crp-and-sed-rat/ Sun, 03 Apr 2011 05:25:32 +0000 Asked by Roman Reid 1 year ago http://answers.ankylosing.org/81440/i-just-wondered-if-anyone-has-experienced-increasing-or-continuing-pain-and-negative-crp-and-sed-rat/ Question: We need to have doctors that specialize in AS. I have a Rheumy, but she only ask about how bad the pain in my joints feel. No one says anything about other symptoms that could be apart of the disease that I should be aware of. Primary care doctor says that she knows of the disease but can tell me anything about it. Does anyone sometimes feel like we're flying blind with this disease. Sorry, I just had to vent this morning? http://answers.ankylosing.org/80450/we-need-to-have-doctors-that-specialize-in-as-i-have-a-rheumy-but-she-only-ask-about-how-bad-the-pain/ Fri, 01 Apr 2011 11:49:27 +0000 Asked by Tiffany 1 year ago http://answers.ankylosing.org/80450/we-need-to-have-doctors-that-specialize-in-as-i-have-a-rheumy-but-she-only-ask-about-how-bad-the-pain/ Question: Giving up, letting go & changing outlook on life. I've got multiple conditions, but Dr's only care about their specialty. I've spent 3 yrs (4 operations) dedicating my life to stop the deteriation which started at 8yo. Only definite from dr's is joints are deteriorating & won't stop. Pain mgmt isn't working, sleeping 20hrs/day & barely functioning. Trying to finish 10 yr BS degree & will never work. Decided I'm going to let go & try to enjoy the time I have left. Psych dr's agree. Feedback? http://answers.ankylosing.org/79470/giving-up-letting-go-changing-outlook-on-life-ive-got-multiple-conditions-but-drs-only-care-about/ Wed, 30 Mar 2011 23:15:46 +0000 Asked by Kerry Monique Gaude' 1 year ago http://answers.ankylosing.org/79470/giving-up-letting-go-changing-outlook-on-life-ive-got-multiple-conditions-but-drs-only-care-about/ Question: I get short of breath by not doing anything sometimes, but it seems like it comes and goes. I tell all my dr.s when they ask about it and they act like its nothing...I hope you all have some good answers? http://answers.ankylosing.org/49632/i-get-short-of-breath-by-not-doing-anything-sometimes-but-it-seems-like-it-comes-and-goes-i-tell-all/ Sun, 03 Oct 2010 16:52:18 +0000 Asked by Julie 2 years ago http://answers.ankylosing.org/49632/i-get-short-of-breath-by-not-doing-anything-sometimes-but-it-seems-like-it-comes-and-goes-i-tell-all/ Question: How many people have a rheumie with a good "bedside manner"? Is it just around me (Western PA) that they are all cold and clinical? http://answers.ankylosing.org/47657/how-many-people-have-a-rheumie-with-a-good-bedside-manner/ Sat, 25 Sep 2010 17:16:40 +0000 Asked by Amy Picklo 2 years ago http://answers.ankylosing.org/47657/how-many-people-have-a-rheumie-with-a-good-bedside-manner/ Question: Today it is too much! My pain level is far worse after the bad PT visit yesterday, yet my pain doc insists that I do PT. I'm juggling 5 medical offices trying to find someone new to see whilst trying to power through the pain at work today.AWFUL? http://answers.ankylosing.org/47304/today-it-is-too-much-my-pain-level-is-far-worse-after-the-bad-pt-visit-yesterday-yet-my-pain-doc-insists/ Wed, 22 Sep 2010 19:52:23 +0000 Asked by Rose Bigham 2 years ago http://answers.ankylosing.org/47304/today-it-is-too-much-my-pain-level-is-far-worse-after-the-bad-pt-visit-yesterday-yet-my-pain-doc-insists/ Question: Waited 3 months for 1st appt with rhuemy and its in 3 days but I feel the best I have felt in months, and worried that if I'm still feeling this way on Tues, the doc wont take me seriously. 2 weeks ago my pain was the worst ever, any suggestions? http://answers.ankylosing.org/46635/waited-3-months-for-1st-appt-with-rhuemy-and-its-in-3-days-but-i-feel-the-best-i-have-felt-in-months/ Fri, 17 Sep 2010 19:55:26 +0000 Asked by Me 2 years ago http://answers.ankylosing.org/46635/waited-3-months-for-1st-appt-with-rhuemy-and-its-in-3-days-but-i-feel-the-best-i-have-felt-in-months/ Question: Anyone know a good dr. In Shreveport? http://answers.ankylosing.org/44832/anyone-know-a-good-dr-in-shreveport/ Fri, 03 Sep 2010 17:25:38 +0000 Asked by Lauren 2 years ago http://answers.ankylosing.org/44832/anyone-know-a-good-dr-in-shreveport/ Question: I've only had AS a year-ish but I'm already fed up with the quack docs and vague-ness of the AS sites. The SAA website says most people can live normal lives..then in another section says "AS is a crippling disease". Sorry but that's contradictory? http://answers.ankylosing.org/41674/ive-only-had-as-a-year-ish-but-im-already-fed-up-with-the-quack-docs-and-vague-ness-of-the-as-sites/ Wed, 11 Aug 2010 14:34:50 +0000 Asked by Kristin 2 years ago http://answers.ankylosing.org/41674/ive-only-had-as-a-year-ish-but-im-already-fed-up-with-the-quack-docs-and-vague-ness-of-the-as-sites/ Question: How often do you meet with your rheumatologist (or other specialist)? Do you wish you could meet more or less often? http://answers.ankylosing.org/23194/how-often-do-you-meet-with-your-rheumatologist-or-other-specialist/ Sat, 03 Jul 2010 15:58:16 +0000 Asked by Chris Bennett 2 years ago http://answers.ankylosing.org/23194/how-often-do-you-meet-with-your-rheumatologist-or-other-specialist/ Question: Anyone else have some hesitation in asking for "help" with your pain management? So far my Rheumy gave me Humira, but stopped short of anything for my symptoms (despite my subtle inquiry). http://answers.ankylosing.org/22188/anyone-else-have-some-hesitation-in-asking-for-help-with-your-pain-management/ Fri, 25 Jun 2010 22:29:42 +0000 Asked by Tim 2 years ago http://answers.ankylosing.org/22188/anyone-else-have-some-hesitation-in-asking-for-help-with-your-pain-management/ Question: I think all of us have had issues with difficult doctors at least once. What do you do when you feel a doctor is being dismissive or even rude about your diagnoses or pain? http://answers.ankylosing.org/20970/i-think-all-of-us-have-had-issues-with-difficult-doctors-at-least-once-what-do-you-do-when-you-feel/ Fri, 25 Jun 2010 16:30:31 +0000 Asked by Christine Farr Fritts 2 years ago http://answers.ankylosing.org/20970/i-think-all-of-us-have-had-issues-with-difficult-doctors-at-least-once-what-do-you-do-when-you-feel/