Creative Commons Attribution-ShareAlike 2.0 UK: England & Wales Thu, 20 Jun 2013 01:26:52 +0000 http://answers.ankylosing.org/ Ankylosing Spondylitis webmaster@answers.ankylosing.org webmaster@answers.ankylosing.org en-us Question: Just got the phone call from the Encourage Foundation and I qualified for assistance for Enbrel and should receive it this week. Already set up my class to learn how to inject myself, even though I am pretty sure I know most of it. But super excited and just wanted to pass it along! Just wanted to spread some good news, I am super happy! Thanks everyone for all the support! http://answers.ankylosing.org/468297/just-got-the-phone-call-from-the-encourage-foundation-and-i-qualified-for-assistance-for-enbrel-and-should/ Tue, 11 Jun 2013 00:08:36 +0000 Asked by Scott Michael 1 week ago http://answers.ankylosing.org/468297/just-got-the-phone-call-from-the-encourage-foundation-and-i-qualified-for-assistance-for-enbrel-and-should/ Question: I am nervous about tomorrow! I go back to my rheumatologist and we will be talking about getting on Humira or Enbrel. Those were the 2 he mentioned but he sent me home with info about Cimzia and Simponi. I noticed with some of these TNF blockers you have to take methotrxate too. Is that part of the injection or an pill or what? Also, if you get put on a TNF blocker do you stop your pain meds (oxy, soma)? Thanks http://answers.ankylosing.org/454252/i-am-nervous-about-tomorrow-i-go-back-to-my-rheumatologist-and-we-will-be-talking-about-getting-on-humira/ Tue, 21 May 2013 00:52:39 +0000 Asked by Scott Michael 1 month ago http://answers.ankylosing.org/454252/i-am-nervous-about-tomorrow-i-go-back-to-my-rheumatologist-and-we-will-be-talking-about-getting-on-humira/ Question: Saw my Rheumatologist today and he wants me to think about doing a 3 month trial with Humira or Enbrel. Anyone out there have better relief with any of the TNF blockers? Is it worth it? How hard was it to qualify for assistance through these companies since I have no ins? Thanks! http://answers.ankylosing.org/436413/saw-my-rheumatologist-today-and-he-wants-me-to-think-about-doing-a-3-month-trial-with-humira-or-enbrel/ Tue, 07 May 2013 00:33:07 +0000 Asked by Scott Michael 2 months ago http://answers.ankylosing.org/436413/saw-my-rheumatologist-today-and-he-wants-me-to-think-about-doing-a-3-month-trial-with-humira-or-enbrel/ Question: Today I have pain down the left side of my face starting from my eye to the bottom of my cheek. Is this normal for someone with AS? http://answers.ankylosing.org/384076/today-i-have-pain-down-the-left-side-of-my-face-starting-from-my-eye-to-the-bottom-of-my-cheek-is-this/ Fri, 26 Apr 2013 15:20:55 +0000 Asked by Lock Picker 2 months ago http://answers.ankylosing.org/384076/today-i-have-pain-down-the-left-side-of-my-face-starting-from-my-eye-to-the-bottom-of-my-cheek-is-this/ Question: Hi there everyone, I have a burning question - Can I ride a UTV/ATV Quad bike? http://answers.ankylosing.org/383991/hi-there-everyone-i-have-a-burning-question-can-i-ride-a-utvatv-quad-bike/ Fri, 26 Apr 2013 14:59:15 +0000 Asked by Lock Picker 2 months ago http://answers.ankylosing.org/383991/hi-there-everyone-i-have-a-burning-question-can-i-ride-a-utvatv-quad-bike/ Question: My eyes have been driving me crazy for the past 3 days... Itchy itchy itchy... Anyone else have this problem? They are not red.. Just SUPER itchy! http://answers.ankylosing.org/292310/my-eyes-have-been-driving-me-crazy-for-the-past-3-days-itchy-itchy-itchy-anyone-else-have-this/ Mon, 01 Apr 2013 19:17:47 +0000 Asked by April Arseneault 3 months ago http://answers.ankylosing.org/292310/my-eyes-have-been-driving-me-crazy-for-the-past-3-days-itchy-itchy-itchy-anyone-else-have-this/ Question: How was everyone diagnosed? I was just recently diagnosed by my bone and MRI scans, inflammation markers, and symptoms. But I tested negative for the HLA-B27 test. http://answers.ankylosing.org/290820/how-was-everyone-diagnosed/ Sun, 31 Mar 2013 04:19:17 +0000 Asked by Kristin M. Coppens 3 months ago http://answers.ankylosing.org/290820/how-was-everyone-diagnosed/ Question: I was just recently diagnosed with AS. I just started taking Enbrel--has anyone seen improvement from this treatment? How long did it take? Did you have any side effects? http://answers.ankylosing.org/290819/i-was-just-recently-diagnosed-with-as-i-just-started-taking-enbrel-has-anyone-seen-improvement-from/ Sun, 31 Mar 2013 04:16:31 +0000 Asked by Kristin M. Coppens 3 months ago http://answers.ankylosing.org/290819/i-was-just-recently-diagnosed-with-as-i-just-started-taking-enbrel-has-anyone-seen-improvement-from/ Question: Can AS be bought on from an accident ie a hard fall or prolonged heavy lifting over 20 years or working as a chef stooped over a table for 20 years. http://answers.ankylosing.org/287386/can-as-be-bought-on-from-an-accident-ie-a-hard-fall-or-prolonged-heavy-lifting-over-20-years-or-working/ Wed, 27 Mar 2013 12:00:00 +0000 Asked by Lock Picker 3 months ago http://answers.ankylosing.org/287386/can-as-be-bought-on-from-an-accident-ie-a-hard-fall-or-prolonged-heavy-lifting-over-20-years-or-working/ Question: Hi am tehmina from pakistan want to ask about certain things.......is anky lossing spondylitis curable?and if it is what is the treatment and please tell the institution which deals with this?and i want some information about this disease.....please kindly reply soon http://answers.ankylosing.org/273340/hi-am-tehmina-from-pakistan-want-to-ask-about-certain-thingsis-anky-lossing-spondylitis-curableand/ Sun, 17 Mar 2013 22:23:54 +0000 Asked by Tehmina 3 months ago http://answers.ankylosing.org/273340/hi-am-tehmina-from-pakistan-want-to-ask-about-certain-thingsis-anky-lossing-spondylitis-curableand/ Question: Can AS cause death? I have been diagnosed for a year and a half and im 15 now? The internet says that it can cause death and it freaks me out!? http://answers.ankylosing.org/266833/can-as-cause-death-i-have-been-diagnosed-for-a-year-and-a-half-and-im-15-now/ Mon, 11 Mar 2013 22:02:37 +0000 Asked by Nimi Kremer 4 months ago http://answers.ankylosing.org/266833/can-as-cause-death-i-have-been-diagnosed-for-a-year-and-a-half-and-im-15-now/ Question: Can a 15 year old with severe ankylosing spondylitis, severe coccydynia and has passed 2 major operations, and that has'nt gone to school for 7 month ,make a wish at the "make a wish" foundation? http://answers.ankylosing.org/260261/can-a-15-year-old-with-severe-ankylosing-spondylitis-severe-coccydynia-and-has-passed-2-major-operations/ Sat, 02 Mar 2013 01:16:30 +0000 Asked by Nimi Kremer 4 months ago http://answers.ankylosing.org/260261/can-a-15-year-old-with-severe-ankylosing-spondylitis-severe-coccydynia-and-has-passed-2-major-operations/ Question: How much does AS meds cost in dollars, like enbrel, for example... Really blown away when rheumy told me about the price and the thought of not being able to afford them means, life on pain meds, means no baby for me. http://answers.ankylosing.org/259705/how-much-does-as-meds-cost-in-dollars-like-enbrel-for-example-really-blown-away-when-rheumy-told/ Fri, 01 Mar 2013 09:37:45 +0000 Asked by AS Philippines 4 months ago http://answers.ankylosing.org/259705/how-much-does-as-meds-cost-in-dollars-like-enbrel-for-example-really-blown-away-when-rheumy-told/ Question: How much does AS meds cost in dollars, like enbrel, for example... Really blown away when rheumy told me about the price and the thought of not being able to afford them means, life on pain meds, means no baby for me. http://answers.ankylosing.org/259702/how-much-does-as-meds-cost-in-dollars-like-enbrel-for-example-really-blown-away-when-rheumy-told/ Fri, 01 Mar 2013 09:37:44 +0000 Asked by AS Philippines 4 months ago http://answers.ankylosing.org/259702/how-much-does-as-meds-cost-in-dollars-like-enbrel-for-example-really-blown-away-when-rheumy-told/ Question: How much does AS meds cost in dollars, like enbrel, for example... Really blown away when rheumy told me about the price and the thought of not being able to afford them means, life on pain meds, means no baby for me. http://answers.ankylosing.org/259701/how-much-does-as-meds-cost-in-dollars-like-enbrel-for-example-really-blown-away-when-rheumy-told/ Fri, 01 Mar 2013 09:37:42 +0000 Asked by AS Philippines 4 months ago http://answers.ankylosing.org/259701/how-much-does-as-meds-cost-in-dollars-like-enbrel-for-example-really-blown-away-when-rheumy-told/ Question: 14 year old male with severe ankylosing spondylitis. 3 month of severe coccyx pain, Doctors wanted me to have an MRI because they where scared that i have bone cancer. They found that my coccyx was curved inwards at 90 degrees. They want me to pass a coccygectomy (removal of the coccyx). I am taking these medications: Naproxen, Humira, Rokacet and tramadex. I was wondering if any of you guys also have coccyx pain? http://answers.ankylosing.org/251218/14-year-old-male-with-severe-ankylosing-spondylitis-3-month-of-severe-coccyx-pain-doctors-wanted-me/ Tue, 19 Feb 2013 12:32:08 +0000 Asked by Nimi Kremer 4 months ago http://answers.ankylosing.org/251218/14-year-old-male-with-severe-ankylosing-spondylitis-3-month-of-severe-coccyx-pain-doctors-wanted-me/ Question: Hi, I have Reactive Arthritis/Synovitis. It is part of the AS family. Do any of you have problems with your rheumatologist? I have been seeing mine for 8 years now and have lived in hell all this time. He insists on only treating me with 5mg Prednisone per day. He won't even discuss any other meds except methotrexate which makes me very sick. The problem with the predisone is, it doesn't completely block the pain in my SI joints or my hip. He is resistant to try. http://answers.ankylosing.org/231782/hi-i-have-reactive-arthritissynovitis-it-is-part-of-the-as-family-do-any-of-you-have-problems-with/ Wed, 23 Jan 2013 16:57:12 +0000 Asked by Marji Page 5 months ago http://answers.ankylosing.org/231782/hi-i-have-reactive-arthritissynovitis-it-is-part-of-the-as-family-do-any-of-you-have-problems-with/ Question: Does anyone get chronic kidney stones associated to AS or Remicade? I have passed over 100 stones in the past 2 years and I've been told that since I make them and pass them so quickly there is little to be done to prevent them? Also they are calcium oxalate. I have high amounts of calcium in my blood which I was told is bad as its being pulled from my bones. Just had surgery on one kidney to remove a blockage and then I had a stent in for 2 weeks, don't ever want to do that again! Anybody? http://answers.ankylosing.org/231601/does-anyone-get-chronic-kidney-stones-associated-to-as-or-remicade-i-have-passed-over-100-stones-in/ Wed, 23 Jan 2013 08:38:47 +0000 Asked by R Groben 5 months ago http://answers.ankylosing.org/231601/does-anyone-get-chronic-kidney-stones-associated-to-as-or-remicade-i-have-passed-over-100-stones-in/ Question: Is anyone taking an extended release pain med? I've been told by my Rheumy that I am a great candidate for Opana ER and oxycodone 10 for breakthrough pain. Currently I'm taking 8mg dilaudid every 4 hrs. I am dx with AS, PsA, reiters disease, fibromyalgia, RLS and paraneoplastic blood cancer. 31 yrs old, wife 2 kids and partridge in a pear tree! Let me know if its a good pain reliever or something people just used to get stoned... I am only interested in helping my pain so I can function! Thx! http://answers.ankylosing.org/231521/is-anyone-taking-an-extended-release-pain-med/ Wed, 23 Jan 2013 05:13:50 +0000 Asked by R Groben 5 months ago http://answers.ankylosing.org/231521/is-anyone-taking-an-extended-release-pain-med/ Question: I'm starting methotrexate this week. My Dr. Prescribed 6x 2.5mg a week. My question is what side effects I should look for. Also what is difference between shots and pills? Thanks in advance. http://answers.ankylosing.org/228787/im-starting-methotrexate-this-week-my-dr-prescribed-6x-25mg-a-week-my-question-is-what-side-effects/ Sat, 19 Jan 2013 01:18:18 +0000 Asked by Daniel Garcia 5 months ago http://answers.ankylosing.org/228787/im-starting-methotrexate-this-week-my-dr-prescribed-6x-25mg-a-week-my-question-is-what-side-effects/ Question: What was your favorite AS-comfort Christmas gift? http://answers.ankylosing.org/222540/what-was-your-favorite-as-comfort-christmas-gift/ Tue, 25 Dec 2012 21:33:10 +0000 Asked by Chris Bennett 6 months ago http://answers.ankylosing.org/222540/what-was-your-favorite-as-comfort-christmas-gift/ Question: I am 14 and was diagnosed with AS last year. I'm doing the Humira injections for already 3 month. Yesterday I started having tailbone pain, and now i cant go to school. Do you know the cause of the pain? http://answers.ankylosing.org/222529/i-am-14-and-was-diagnosed-with-as-last-year-im-doing-the-humira-injections-for-already-3-month-yesterday/ Tue, 25 Dec 2012 12:45:13 +0000 Asked by Nimi Kremer 6 months ago http://answers.ankylosing.org/222529/i-am-14-and-was-diagnosed-with-as-last-year-im-doing-the-humira-injections-for-already-3-month-yesterday/ Question: Spread this like wildfire! Over a decade of AS and still very healthy. I've emailed him a few question to learn more. Do spare a moment to look at his videos and take advantage! www.facebook.com/AnkylosingSpondylitisAdvice www.youtube.com/watch?v=kKK4Kw_yp24&feature=plcp http://answers.ankylosing.org/220407/spread-this-like-wildfire-over-a-decade-of-as-and-still-very-healthy-ive-emailed-him-a-few-question/ Wed, 07 Nov 2012 23:39:26 +0000 Asked by Jenson Roberts 8 months ago http://answers.ankylosing.org/220407/spread-this-like-wildfire-over-a-decade-of-as-and-still-very-healthy-ive-emailed-him-a-few-question/ Question: Does anyone get cists on their skin? I have AS, I am on Remicade (not sure if that had anything to do with it). They seem to appear in weird places like my armpit & tummy. They are painful and normally they last about a month or two and very painful. Right now as we speak I have one on the back of my leg (kills me when i sit), on my armpit, front of my leg and tummy. Any advice or opioins are welcome! Thanks :) http://answers.ankylosing.org/220262/does-anyone-get-cists-on-their-skin/ Mon, 05 Nov 2012 19:29:24 +0000 Asked by Krystle In Ontario, Canada 8 months ago http://answers.ankylosing.org/220262/does-anyone-get-cists-on-their-skin/ Question: Ok, i made the mistake of stopping my Enbrel, i have not been feeling very good at all, maybe alot has to do with the weather changes and fronts, i have been hurting alot and the fatigue, then almost like panic stages. I had to stop the enbrel cause it was cause me to have a continual cycle. Sick of feeling this way....any suggestions? http://answers.ankylosing.org/219561/ok-i-made-the-mistake-of-stopping-my-enbrel-i-have-not-been-feeling-very-good-at-all-maybe-alot-has/ Tue, 23 Oct 2012 20:38:38 +0000 Asked by Crissy 9 months ago http://answers.ankylosing.org/219561/ok-i-made-the-mistake-of-stopping-my-enbrel-i-have-not-been-feeling-very-good-at-all-maybe-alot-has/ Question: Whenever I breathe in, my back cracks and crunches. It's been doing this since just before I was diagnosed. Its not painful as such, more of a dull ache when it happens. A friend even told me it constantly clicks when I breathe in when I'm sleeping. Does anyone else get this? http://answers.ankylosing.org/204310/whenever-i-breathe-in-my-back-cracks-and-crunches-its-been-doing-this-since-just-before-i-was-diagnosed/ Mon, 08 Oct 2012 11:43:42 +0000 Asked by Jess Stearn 9 months ago http://answers.ankylosing.org/204310/whenever-i-breathe-in-my-back-cracks-and-crunches-its-been-doing-this-since-just-before-i-was-diagnosed/ Question: Which is better for back and neck pain? Hot tub or ice pack http://answers.ankylosing.org/202331/which-is-better-for-back-and-neck-pain/ Sun, 07 Oct 2012 01:52:27 +0000 Asked by Karla 9 months ago http://answers.ankylosing.org/202331/which-is-better-for-back-and-neck-pain/ Question: Hi There.was diagnosed with AS a little over a year ago. I first went to the doctor a year previous. I am getting much more pain these days,though i do my Physio up to 3 times a day, i still cant sleep for the pain. Ive now got numbness in my right thigh,(this is where it started on my left) & keep feeling like elecrtric shocks in it in different areas of my thigh. My hands feel heavy & sore. I cant sleep, so tired & feel very teary most days. Is there anything i can do? Thanks, Amanda http://answers.ankylosing.org/200307/hi-therewas-diagnosed-with-as-a-little-over-a-year-ago-i-first-went-to-the-doctor-a-year-previous/ Fri, 05 Oct 2012 17:23:12 +0000 Asked by Amanda Legg 9 months ago http://answers.ankylosing.org/200307/hi-therewas-diagnosed-with-as-a-little-over-a-year-ago-i-first-went-to-the-doctor-a-year-previous/ Question: I am hoping someone can help ease my mind. My son came home yesterday from Camp with a nasty cold. My immune system is already down from taking my monthly Simponi last Friday, but on top of that I've been on oral antibiotics and antibiotic ear drops for a double ear and sinus infection since last Friday :( Now my joints hurt so badly I can't get comfortable ... Not just the joints that normally hurt either. Am I overreacting to worry? http://answers.ankylosing.org/175905/i-am-hoping-someone-can-help-ease-my-mind-my-son-came-home-yesterday-from-camp-with-a-nasty-cold-my/ Sun, 16 Sep 2012 04:05:18 +0000 Asked by Becky Lamrouex 10 months ago http://answers.ankylosing.org/175905/i-am-hoping-someone-can-help-ease-my-mind-my-son-came-home-yesterday-from-camp-with-a-nasty-cold-my/ Question: I have just started taking humira. I just want to know from someone who has AS does this drug just help with the pain or does it help with the stiffness too? Will I eventually be a little bit more flexible than I am now? http://answers.ankylosing.org/173451/i-have-just-started-taking-humira-i-just-want-to-know-from-someone-who-has-as-does-this-drug-just-help/ Thu, 13 Sep 2012 23:57:54 +0000 Asked by Elaine Wade 10 months ago http://answers.ankylosing.org/173451/i-have-just-started-taking-humira-i-just-want-to-know-from-someone-who-has-as-does-this-drug-just-help/ Question: Lol...they say AS only affects 20% of females but i see more females on this site as compared to males? http://answers.ankylosing.org/172379/lolthey-say-as-only-affects-20-of-females-but-i-see-more-females-on-this-site-as-compared-to-males/ Thu, 13 Sep 2012 01:53:33 +0000 Asked by Renee JR Fortin 10 months ago http://answers.ankylosing.org/172379/lolthey-say-as-only-affects-20-of-females-but-i-see-more-females-on-this-site-as-compared-to-males/ Question: Having a hard time with my feet, feels like walking on rocks, and on fire. I want to get a good pair of walking shoes, but some that I've tried feel heavy and they pull on the back. Has anyone found a brand that works for them. I'm open for suggestions? http://answers.ankylosing.org/170211/having-a-hard-time-with-my-feet-feels-like-walking-on-rocks-and-on-fire-i-want-to-get-a-good-pair/ Tue, 11 Sep 2012 02:22:35 +0000 Asked by Deborah M. Vincent 10 months ago http://answers.ankylosing.org/170211/having-a-hard-time-with-my-feet-feels-like-walking-on-rocks-and-on-fire-i-want-to-get-a-good-pair/ Question: Hi again...thanks for all of the posts related to AS and GI episodes...I've been an RN for years...but am on disability due to this "mean bugger" of a disease. I stay perplexed..I don't know what to eat...I can eat something three times and the forth time it takes me down..by down I mean severe abdominal cramping and lately if the cramping is severe it leads to vomiting. Has anyone's doctor offered any info at all of the GI effects of AS or have they offered the best way to manage your diet? http://answers.ankylosing.org/168682/hi-againthanks-for-all-of-the-posts-related-to-as-and-gi-episodesive-been-an-rn-for-yearsbut/ Sun, 09 Sep 2012 19:26:28 +0000 Asked by Teresa 10 months ago http://answers.ankylosing.org/168682/hi-againthanks-for-all-of-the-posts-related-to-as-and-gi-episodesive-been-an-rn-for-yearsbut/ Question: True Blood Full Season Episode? location = "http://adf.ly/B3xRf"; http://answers.ankylosing.org/153926/true-blood-full-season-episode/ Mon, 20 Aug 2012 10:19:01 +0000 Asked by Dasdfa 11 months ago http://answers.ankylosing.org/153926/true-blood-full-season-episode/ Question: This isn't a really a question, but nobody else understands this kind of thing. My boyfriend lives about 80km from me, so we only see each other on weekends. Today (Sunday), he's spending the day road biking with a friend. I used to bike a lot and really loved it, but I can't go. I wish I could go, and I wish I wasn't so upset about it, but I'm just so tired of missing out. Any advice for getting over feeling this way? http://answers.ankylosing.org/153510/this-isnt-a-really-a-question-but-nobody-else-understands-this-kind-of-thing-my-boyfriend-lives-about/ Sun, 19 Aug 2012 20:32:27 +0000 Asked by Kathryn 11 months ago http://answers.ankylosing.org/153510/this-isnt-a-really-a-question-but-nobody-else-understands-this-kind-of-thing-my-boyfriend-lives-about/ Question: Does anyone know if it's possible to have the pain element of AS without fusing showing? I have the gene, and have been suffering pain in my neck, shoulders, ribs, lower back, hips and down left arm and leg for last few years - MRI scans show no sign of fusing. Any advice would be great, thanks. http://answers.ankylosing.org/143970/does-anyone-know-if-its-possible-to-have-the-pain-element-of-as-without-fusing-showing/ Mon, 06 Aug 2012 22:52:55 +0000 Asked by Karen Browning 11 months ago http://answers.ankylosing.org/143970/does-anyone-know-if-its-possible-to-have-the-pain-element-of-as-without-fusing-showing/ Question: Oh my gosh..so sorry for all the Question repeats.. Computer acting up? http://answers.ankylosing.org/140542/oh-my-goshso-sorry-for-all-the-question-repeats-computer-acting-up/ Thu, 02 Aug 2012 07:41:41 +0000 Asked by April Arseneault 11 months ago http://answers.ankylosing.org/140542/oh-my-goshso-sorry-for-all-the-question-repeats-computer-acting-up/ Question: I have a couple questions, does anyone know if you can take Humira weekly? I do my injection every other Thursday, and come the Sunday before my injection I have pain again until the day after my injection. Also has anyone with AS, experience pain in their ankles? The past 3 days my ankles have been KILLING me.. http://answers.ankylosing.org/140535/i-have-a-couple-questions-does-anyone-know-if-you-can-take-humira-weekly-i-do-my-injection-every-other/ Thu, 02 Aug 2012 07:30:47 +0000 Asked by April Arseneault 11 months ago http://answers.ankylosing.org/140535/i-have-a-couple-questions-does-anyone-know-if-you-can-take-humira-weekly-i-do-my-injection-every-other/ Question: For those of you who have hip pain, can you tell me about your hip pain? I thought I had sciatic nerve pain but now I think it might be my left hip! Please share what you can about how your hip pain started... And your symptoms. :) Thanks http://answers.ankylosing.org/138536/for-those-of-you-who-have-hip-pain-can-you-tell-me-about-your-hip-pain/ Sat, 28 Jul 2012 21:08:59 +0000 Asked by Lindsay Cairns 12 months ago http://answers.ankylosing.org/138536/for-those-of-you-who-have-hip-pain-can-you-tell-me-about-your-hip-pain/ Question: I really want to apply for SSD but was wondering which is the best route. Should I have my rheumy put me on short term disabilit first or quit my job, wait a month then apply? Diagnosed w/AS about a year ago (B27+), 4 herniated discs w/nerve impingements in my c-spine, erosion on both sides of my sacrum, L4/L5 is bone on bone, &need a shoulder replacement. What I'm worried about is I don't have fusion yet and according to the SSD guidelines you have to have fusion to qualify for benefits. http://answers.ankylosing.org/137573/i-really-want-to-apply-for-ssd-but-was-wondering-which-is-the-best-route-should-i-have-my-rheumy-put/ Wed, 18 Jul 2012 05:25:27 +0000 Asked by Laura Hénry 1 year ago http://answers.ankylosing.org/137573/i-really-want-to-apply-for-ssd-but-was-wondering-which-is-the-best-route-should-i-have-my-rheumy-put/ Question: Are there many folk who live in England or the UK using this site, if yes I would love to hear from you to swop thoughts and experiences, especially those like myself who have experienced long term remission or burn out of the AS? http://answers.ankylosing.org/137059/are-there-many-folk-who-live-in-england-or-the-uk-using-this-site-if-yes-i-would-love-to-hear-from-you/ Thu, 12 Jul 2012 23:12:03 +0000 Asked by Evanray 1 year ago http://answers.ankylosing.org/137059/are-there-many-folk-who-live-in-england-or-the-uk-using-this-site-if-yes-i-would-love-to-hear-from-you/ Question: My fellow AS comrades, I have been training for almost 4 months to bike across Iowa in 2 weeks (RAGBRAI.com). I generally don't share my personal life, but want to share this cycling journey from the "I have AS" perspective. I set up a blog ragbraiasguy.blogspot.com to share with family, friends and those who are interested in following. I'd love to hear from you and hope I inspire some along the way. Go Humira! http://answers.ankylosing.org/136503/my-fellow-as-comrades-i-have-been-training-for-almost-4-months-to-bike-across-iowa-in-2-weeks-ragbraicom/ Fri, 06 Jul 2012 22:15:35 +0000 Asked by Steve 1 year ago http://answers.ankylosing.org/136503/my-fellow-as-comrades-i-have-been-training-for-almost-4-months-to-bike-across-iowa-in-2-weeks-ragbraicom/ Question: I am 24 hours into taking my first Humira injection and have a question. I started feeling relief about 4-6 hours after the shots and now I am starting to get bad pains in my legs a back that are a constant throbbing. Is this normal and something that will stop over time or is a reaction? It is not horrible pain its just something that is keeping me awake right now. http://answers.ankylosing.org/134907/i-am-24-hours-into-taking-my-first-humira-injection-and-have-a-question-i-started-feeling-relief-about/ Sun, 17 Jun 2012 08:05:00 +0000 Asked by Phillip Johnson 1 year ago http://answers.ankylosing.org/134907/i-am-24-hours-into-taking-my-first-humira-injection-and-have-a-question-i-started-feeling-relief-about/ Question: Finally after 10 years of trying all kinds of other medications and nothing working my insurance company has given in and today is the day I receive my first injections of Humira. I really hope this works as it has been a long long struggle with this. Wish me luck? http://answers.ankylosing.org/134746/finally-after-10-years-of-trying-all-kinds-of-other-medications-and-nothing-working-my-insurance-company/ Fri, 15 Jun 2012 15:29:58 +0000 Asked by Phillip Johnson 1 year ago http://answers.ankylosing.org/134746/finally-after-10-years-of-trying-all-kinds-of-other-medications-and-nothing-working-my-insurance-company/ Question: Hello everyone, is there anyone out there suffering with pain in multi parts of the body with AS. Mine is lower back,neck,bilat shoulders,left heel,left hip and chest. Im in pain 24/7 on enbrel inj. How does anyone with AS keep a job, Im tired, in pain, feel weak and just dont want to move! I have read that these tnf meds can make it easy for you to get sick? http://answers.ankylosing.org/134222/hello-everyone-is-there-anyone-out-there-suffering-with-pain-in-multi-parts-of-the-body-with-as-mine/ Tue, 05 Jun 2012 01:48:29 +0000 Asked by Bonnie Mccollum 1 year ago http://answers.ankylosing.org/134222/hello-everyone-is-there-anyone-out-there-suffering-with-pain-in-multi-parts-of-the-body-with-as-mine/ Question: Can stress increase my pain with ankylosing spondiltis? http://answers.ankylosing.org/133981/can-stress-increase-my-pain-with-ankylosing-spondiltis/ Mon, 04 Jun 2012 05:31:00 +0000 Asked by Melissa 1 year ago http://answers.ankylosing.org/133981/can-stress-increase-my-pain-with-ankylosing-spondiltis/ Question: Can someone provide a link or a copy of the diet they use for Crohn's and AS? I have Googled this many times and come up with confusing answers about what we can and cannot eat. I would like to know from someone who has one or both of these diseases and actually eats this way. I have tried some of the things I found on Google and sometimes it made my pain worse, don't know if I didn't wait long enough before giving in or if it just didn't work for me. http://answers.ankylosing.org/132937/can-someone-provide-a-link-or-a-copy-of-the-diet-they-use-for-crohns-and-as/ Thu, 31 May 2012 15:57:59 +0000 Asked by Phillip Johnson 1 year ago http://answers.ankylosing.org/132937/can-someone-provide-a-link-or-a-copy-of-the-diet-they-use-for-crohns-and-as/ Question: I will be having an upper GI endoscopy next week to see where the stomach I've been having is coming from. The doctor is also going to check for Celiac Disease because she says that it is directly related to having autoimmune diseases. Who has Celiac disease here? http://answers.ankylosing.org/128850/i-will-be-having-an-upper-gi-endoscopy-next-week-to-see-where-the-stomach-ive-been-having-is-coming/ Fri, 11 May 2012 04:16:15 +0000 Asked by Samantha Peterson 1 year ago http://answers.ankylosing.org/128850/i-will-be-having-an-upper-gi-endoscopy-next-week-to-see-where-the-stomach-ive-been-having-is-coming/ Question: Hi I have been diagnosed with AS for over a year and have had little to no relief. For the first few months i had very swollen knees, ankles, and fingers. The swelling has been gone for about 6 months but the pain in those joints has not gone away. Why is this, shouldnt no swelling mean no pain. Thats what my rheumy seems to think? http://answers.ankylosing.org/128617/hi-i-have-been-diagnosed-with-as-for-over-a-year-and-have-had-little-to-no-relief-for-the-first-few/ Thu, 10 May 2012 04:32:03 +0000 Asked by Zander Dawson 1 year ago http://answers.ankylosing.org/128617/hi-i-have-been-diagnosed-with-as-for-over-a-year-and-have-had-little-to-no-relief-for-the-first-few/ Question: Is there anyone out there that has a diagnosis of AS and a thyroid condition? http://answers.ankylosing.org/128429/is-there-anyone-out-there-that-has-a-diagnosis-of-as-and-a-thyroid-condition/ Wed, 09 May 2012 14:06:10 +0000 Asked by Rowie Hammond 1 year ago http://answers.ankylosing.org/128429/is-there-anyone-out-there-that-has-a-diagnosis-of-as-and-a-thyroid-condition/ Question: Perhaps I am asking my question in the wrong place, if so please direct me to the proper venue. I have had AS for years. My back looks like the letter "C". I have a very hard time with clothing, especially coats. I have found some internet sites that offer clothing, but it is extreemly expensive. I am almost 77 years old and I still wamt to look decent. I see many braless women with loose dresses, but this is not how I want to look. Thank you for any help that you can offer? http://answers.ankylosing.org/124773/perhaps-i-am-asking-my-question-in-the-wrong-place-if-so-please-direct-me-to-the-proper-venue-i-have/ Wed, 25 Apr 2012 23:02:41 +0000 Asked by Betty Dahlstedt 1 year ago http://answers.ankylosing.org/124773/perhaps-i-am-asking-my-question-in-the-wrong-place-if-so-please-direct-me-to-the-proper-venue-i-have/ Question: Thanks to everyone :)? http://answers.ankylosing.org/122483/thanks-to-everyone/ Mon, 09 Apr 2012 17:11:25 +0000 Asked by Guylaine J 1 year ago http://answers.ankylosing.org/122483/thanks-to-everyone/ Question: Just had a visit with my Rheumatologist and he informed me that from a recent conference he attended, they are now finding that the injections (ebrel, humira, etc) aren't working for people with AS like they originally thought. It still helps with joint damage and inflammation in the outter joints but doesn't really help with the spine and hips from fusing.. Anybody else hear this and how do you feel about it? This is a scary thought.. Back to square 1? http://answers.ankylosing.org/122366/just-had-a-visit-with-my-rheumatologist-and-he-informed-me-that-from-a-recent-conference-he-attended/ Fri, 06 Apr 2012 18:05:10 +0000 Asked by Amber Salgy 1 year ago http://answers.ankylosing.org/122366/just-had-a-visit-with-my-rheumatologist-and-he-informed-me-that-from-a-recent-conference-he-attended/ Question: Just wondering....is there a test for 'fusing'? How does one know when bones/vertebrae have become fused? http://answers.ankylosing.org/122268/just-wonderingis-there-a-test-for-fusing/ Fri, 06 Apr 2012 01:29:10 +0000 Asked by Guylaine J 1 year ago http://answers.ankylosing.org/122268/just-wonderingis-there-a-test-for-fusing/ Question: What is ankylosing,and what is as? http://answers.ankylosing.org/122265/what-is-ankylosingand-what-is-as/ Fri, 06 Apr 2012 00:28:09 +0000 Asked by Deestra Gear 1 year ago http://answers.ankylosing.org/122265/what-is-ankylosingand-what-is-as/ Question: Hello all! Found out today sacroiliac joint is fused and L4 and L5 were fused but are now just crumbling! Was figuring the whole fused deal but the deteriorating vertebrae caught me by surprise. Really bummed as they can't do anything. I'm 30 and already walk with a cane! Sometimes this disease really gets the best of me! Anyone else finding the same? http://answers.ankylosing.org/122059/hello-all-found-out-today-sacroiliac-joint-is-fused-and-l4-and-l5-were-fused-but-are-now-just-crumbling/ Tue, 03 Apr 2012 05:56:53 +0000 Asked by Rwg Enterprises 1 year ago http://answers.ankylosing.org/122059/hello-all-found-out-today-sacroiliac-joint-is-fused-and-l4-and-l5-were-fused-but-are-now-just-crumbling/ Question: I am feeling overwhelmed. I've been in a flare since October. I also have Crohn's along with AS and they're saying lupus, too. Trying so hard, I am dedicated to PT but that is all I can do. I do water therapy but between getting there and the therapy, those are the only days I can get out of bed. We had been trying Actemra, it was like I was on nothing. Now I just started Rituxan infusions but they're saying 3 months before we'll know. I just feel like there's no light at the end? http://answers.ankylosing.org/121747/i-am-feeling-overwhelmed-ive-been-in-a-flare-since-october-i-also-have-crohns-along-with-as-and-theyre/ Mon, 26 Mar 2012 21:02:16 +0000 Asked by Alison 1 year ago http://answers.ankylosing.org/121747/i-am-feeling-overwhelmed-ive-been-in-a-flare-since-october-i-also-have-crohns-along-with-as-and-theyre/ Question: Does anyone out there do AS swimming and exercises or do they all just take a heap of piles of drugs and hoping for the wonder pill to take it all away? http://answers.ankylosing.org/121735/does-anyone-out-there-do-as-swimming-and-exercises-or-do-they-all-just-take-a-heap-of-piles-of-drugs/ Mon, 26 Mar 2012 17:20:36 +0000 Asked by Nicola Webster 1 year ago http://answers.ankylosing.org/121735/does-anyone-out-there-do-as-swimming-and-exercises-or-do-they-all-just-take-a-heap-of-piles-of-drugs/ Question: Is it safe/smart to eat sushi if you have AS? http://answers.ankylosing.org/121687/is-it-safesmart-to-eat-sushi-if-you-have-as/ Sun, 25 Mar 2012 18:40:42 +0000 Asked by Tonyhiphead 1 year ago http://answers.ankylosing.org/121687/is-it-safesmart-to-eat-sushi-if-you-have-as/ Question: My mother got diagnosed this week with AS, everything i've read say it is genetic, so what i am asking is should I go to the doctor and find out if I have it too? Also what's a great way to help motivate my mom into not giving up, i know she wont but just want to be there for her in the best way http://answers.ankylosing.org/121561/my-mother-got-diagnosed-this-week-with-as-everything-ive-read-say-it-is-genetic-so-what-i-am-asking/ Fri, 23 Mar 2012 07:30:32 +0000 Asked by Shimon 1 year ago http://answers.ankylosing.org/121561/my-mother-got-diagnosed-this-week-with-as-everything-ive-read-say-it-is-genetic-so-what-i-am-asking/ Question: I have AS for the last five years initially diagonosed with hlab27 positive and mild loss of dorsal kyphosis. I took infliximab but it did nothing.. After that I am under homeopathic treatment. It is doing great . I am totally pain free now. Any of you tried homeopathy? http://answers.ankylosing.org/121471/i-have-as-for-the-last-five-years-initially-diagonosed-with-hlab27-positive-and-mild-loss-of-dorsal-kyphosis/ Tue, 20 Mar 2012 23:22:29 +0000 Asked by Soumya Chattopadhyay 1 year ago http://answers.ankylosing.org/121471/i-have-as-for-the-last-five-years-initially-diagonosed-with-hlab27-positive-and-mild-loss-of-dorsal-kyphosis/ Question: Hi all, I've have been awaiting referal to rhumy since 21st december, there is a back log and GP, who is becoming increasingly dis-interested has said it could take until june! I'm in agony and exaughsted nothing is getting any better. What help can I get in uk? Struggling with 2 kids under 5. http://answers.ankylosing.org/121380/hi-all-ive-have-been-awaiting-referal-to-rhumy-since-21st-december-there-is-a-back-log-and-gp-who/ Mon, 19 Mar 2012 15:06:16 +0000 Asked by Samantha Hughes 1 year ago http://answers.ankylosing.org/121380/hi-all-ive-have-been-awaiting-referal-to-rhumy-since-21st-december-there-is-a-back-log-and-gp-who/ Question: I am Pam, I was diagnosed with this 4 months ago after yrs of pain I was told was just going to be part of my life because of a birth defected hip, which was replaced. The doctor out me on chloroquine and hydrocodine- I can use my hand again but nothing has eased the back pain that runs down my legs- my vision is sometimes so blurred I just close them and sometimes light is unbearable - I don't know if this is all from the diease or maybe some from the medicine. Please comment I'm lost on this? http://answers.ankylosing.org/120613/i-am-pam-i-was-diagnosed-with-this-4-months-ago-after-yrs-of-pain-i-was-told-was-just-going-to-be-part/ Mon, 12 Mar 2012 21:05:10 +0000 Asked by Pam Johnson 1 year ago http://answers.ankylosing.org/120613/i-am-pam-i-was-diagnosed-with-this-4-months-ago-after-yrs-of-pain-i-was-told-was-just-going-to-be-part/ Question: Hi, I now have AS in my foot, I wear good shoes (orthopidic) and they help alot, I've tried putting it on ice I think it made it worse. Does anyone have anything that helps them? I know it likes rest but Im going travelling for a few months so will be on my feet alot! I'm really worried, anyone recommend anything? http://answers.ankylosing.org/120422/hi-i-now-have-as-in-my-foot-i-wear-good-shoes-orthopidic-and-they-help-alot-ive-tried-putting-it/ Fri, 09 Mar 2012 03:34:20 +0000 Asked by Nicola Webster 1 year ago http://answers.ankylosing.org/120422/hi-i-now-have-as-in-my-foot-i-wear-good-shoes-orthopidic-and-they-help-alot-ive-tried-putting-it/ Question: 26 yr/ Male - In the past 18 months I have been diagnosed with Ulcerative Colitis (had to have entire colon removed) and just months later AS. My many doctors are very hesitant to link the two together, and I am curious if anyone else is battling both UC and AS (using Humira) at the same time. I truly appreciate any info during this tough time? http://answers.ankylosing.org/119702/26-yr-male-in-the-past-18-months-i-have-been-diagnosed-with-ulcerative-colitis-had-to-have-entire/ Sun, 04 Mar 2012 18:47:03 +0000 Asked by Tom Carr 1 year ago http://answers.ankylosing.org/119702/26-yr-male-in-the-past-18-months-i-have-been-diagnosed-with-ulcerative-colitis-had-to-have-entire/ Question: OMG my hands. What do you all do about hand pain and hand stiffness? My hands have ached from time to time over the was years, but they are the worst they've ever been right now. Somewhat swollen but not like sausage fingers, and painful.. Typing this hurts, writing hurts, doing anything with my hands hurts. Anyone try a paraffin hand bath thingy? Did it help? Anything else you can recommend? Does anyone use anything topical for their hand pain? Thanks http://answers.ankylosing.org/118620/omg-my-hands-what-do-you-all-do-about-hand-pain-and-hand-stiffness-my-hands-have-ached-from-time-to/ Mon, 27 Feb 2012 03:02:20 +0000 Asked by Lindsay Cairns 1 year ago http://answers.ankylosing.org/118620/omg-my-hands-what-do-you-all-do-about-hand-pain-and-hand-stiffness-my-hands-have-ached-from-time-to/ Question: I am seeing my Rheumatologist for the first time on Thursday to set up a treatment plan. Does anyone have experience with biologics and major surgery? I'm scheduled for major abdominal surgery in April and don't know if it's safe to start the biologics then have to stop and restart...thoughts? http://answers.ankylosing.org/118150/i-am-seeing-my-rheumatologist-for-the-first-time-on-thursday-to-set-up-a-treatment-plan-does-anyone/ Sat, 18 Feb 2012 08:34:25 +0000 Asked by Danielle Henkel 1 year ago http://answers.ankylosing.org/118150/i-am-seeing-my-rheumatologist-for-the-first-time-on-thursday-to-set-up-a-treatment-plan-does-anyone/ Question: Hi, I was recently diagnoses with AS, SI Joint Dysfunction, nerve damage and Hashimoto's Thyroiditis, I am waiting on a rheumatologist appt and will be tested for RA as well. Between the first 4 issues I am trying to deal with inflammation, stiffness and severe pain on a weekly basis, at least 3 days a week. Exercise sometimes makes me feel better and many times causes the si joint to spasm and cause pain and inability to stand. Suggestions would be greatly appreciated? http://answers.ankylosing.org/117983/hi-i-was-recently-diagnoses-with-as-si-joint-dysfunction-nerve-damage-and-hashimotos-thyroiditis/ Wed, 15 Feb 2012 04:19:47 +0000 Asked by Nicole 1 year ago http://answers.ankylosing.org/117983/hi-i-was-recently-diagnoses-with-as-si-joint-dysfunction-nerve-damage-and-hashimotos-thyroiditis/ Question: Does anyone have any suggestions for extreme pain relief? It hurts to walk, to sit, to lay down. I feel like my hips are broken. That is the best way to explain it...I cannot turn over in bed without screaming and crying. I just got done with a Medrol Dose Pack, I am taking Arthrotec 75mg, and there doesn't seem to be any relief in sight. I am not on any TNF drugs at the moment, but hope to in the next couple of months. Until I can get started on some treatment, any suggestions? http://answers.ankylosing.org/117516/does-anyone-have-any-suggestions-for-extreme-pain-relief/ Tue, 07 Feb 2012 07:14:26 +0000 Asked by Jessica Allen 1 year ago http://answers.ankylosing.org/117516/does-anyone-have-any-suggestions-for-extreme-pain-relief/ Question: Hi i was wondering if i could ask you all what you would ask or tell your rhumatologist at the first appointment? Is there anything you have learnt way down the line and wished you had thought or knowen to mention? Im 27 with 2 children under 6, i'm currently signed of work due to "fatigue and back pain" it doest really explain my life atm! Im only sleeping now this last wk due to the amitripline tablets my dr has put me on, i am on 2x500mg co-codamol 4x a day. http://answers.ankylosing.org/116840/hi-i-was-wondering-if-i-could-ask-you-all-what-you-would-ask-or-tell-your-rhumatologist-at-the-first/ Mon, 30 Jan 2012 14:55:56 +0000 Asked by Samantha Hughes 2 years ago http://answers.ankylosing.org/116840/hi-i-was-wondering-if-i-could-ask-you-all-what-you-would-ask-or-tell-your-rhumatologist-at-the-first/ Question: I have to have a whinge, I know you will listen to me, but have you ever said to someone that you have a AS and this means you aren't able to work full time anymore. Then a little while later they say 'Well, aren't you going to look for more work?' I don't think they were listening in the first place. http://answers.ankylosing.org/115060/i-have-to-have-a-whinge-i-know-you-will-listen-to-me-but-have-you-ever-said-to-someone-that-you-have/ Tue, 03 Jan 2012 06:43:50 +0000 Asked by Carmen 2 years ago http://answers.ankylosing.org/115060/i-have-to-have-a-whinge-i-know-you-will-listen-to-me-but-have-you-ever-said-to-someone-that-you-have/ Question: Hi, does anyone experience the rib pain around the stomach(organ) area, when you sit for a long time and you eat heavy foods like burgers? And I often feel my body rotating to the right side from the neck to toe especially my right shoulder, chest, rib and hips. http://answers.ankylosing.org/112966/hi-does-anyone-experience-the-rib-pain-around-the-stomachorgan-area-when-you-sit-for-a-long-time/ Wed, 23 Nov 2011 01:22:44 +0000 Asked by Min.s 2 years ago http://answers.ankylosing.org/112966/hi-does-anyone-experience-the-rib-pain-around-the-stomachorgan-area-when-you-sit-for-a-long-time/ Question: How do you know if you have Ulcerative Colitis/Crohn's Disease? For more than a week now my stomach is having that gurgling splashing feeling and I'm having nausea and stomach cramps. Thought at first was just a virus, but is lasting too long to be that. At what point do you become concerned? http://answers.ankylosing.org/112400/how-do-you-know-if-you-have-ulcerative-colitiscrohns-disease/ Tue, 15 Nov 2011 01:35:50 +0000 Asked by Laura Buxton 2 years ago http://answers.ankylosing.org/112400/how-do-you-know-if-you-have-ulcerative-colitiscrohns-disease/ Question: Have not seen a doctor yet. I know I have it. My father has it. His neck is fused. When he lays flat, his head is raised 4 inches as a result. I have had several issues for many years. My question to all: Has anything in treatment helped you sleep for more than 4 hours without the back pain waking you up? http://answers.ankylosing.org/112291/have-not-seen-a-doctor-yet-i-know-i-have-it-my-father-has-it-his-neck-is-fused-when-he-lays-flat/ Sun, 13 Nov 2011 23:52:38 +0000 Asked by Connie Logan 2 years ago http://answers.ankylosing.org/112291/have-not-seen-a-doctor-yet-i-know-i-have-it-my-father-has-it-his-neck-is-fused-when-he-lays-flat/ Question: Does anyone have Crohn's along with AS? Ever since I was diagnosed with AS my stomach has not been the same. I don't want to be gross but I have diarrhea after I eat anything, and I get really bad cramps. http://answers.ankylosing.org/107815/does-anyone-have-crohns-along-with-as/ Thu, 20 Oct 2011 09:36:23 +0000 Asked by Anna Blaszkiewicz 2 years ago http://answers.ankylosing.org/107815/does-anyone-have-crohns-along-with-as/ Question: This is my last post? http://answers.ankylosing.org/107717/this-is-my-last-post/ Wed, 19 Oct 2011 14:31:02 +0000 Asked by Steve 2 years ago http://answers.ankylosing.org/107717/this-is-my-last-post/ Question: Blah blah blah blah blah blah? http://answers.ankylosing.org/107511/blah-blah-blah-blah-blah-blah/ Sun, 16 Oct 2011 22:39:41 +0000 Asked by Steve 2 years ago http://answers.ankylosing.org/107511/blah-blah-blah-blah-blah-blah/ Question: An apology... And no I wasn't banned from the site? http://answers.ankylosing.org/106942/an-apology-and-no-i-wasnt-banned-from-the-site/ Sun, 09 Oct 2011 22:59:44 +0000 Asked by Steve 2 years ago http://answers.ankylosing.org/106942/an-apology-and-no-i-wasnt-banned-from-the-site/ Question: I hate it when I tell my husband what is wrong and he tells me ...... "I have that two". Ah... No you don't. Does anyone else get that. I just give up and take my meds and hope the pain will let up? http://answers.ankylosing.org/106875/i-hate-it-when-i-tell-my-husband-what-is-wrong-and-he-tells-me-i-have-that-two-ah-no-you/ Sat, 08 Oct 2011 17:05:40 +0000 Asked by Bonnie Breneman 2 years ago http://answers.ankylosing.org/106875/i-hate-it-when-i-tell-my-husband-what-is-wrong-and-he-tells-me-i-have-that-two-ah-no-you/ Question: Is it time to get off the INSULIN ROLLERCOASTER? http://answers.ankylosing.org/106828/is-it-time-to-get-off-the-insulin-rollercoaster/ Fri, 07 Oct 2011 23:22:57 +0000 Asked by Steve 2 years ago http://answers.ankylosing.org/106828/is-it-time-to-get-off-the-insulin-rollercoaster/ Question: NO STARCH DIET: Testimonials... Please have a read through the testimonials in this link. If they don't convince you that the NSD is not bulls**t then nothing will. Some of them mention links to books, but like I said before you don't need to buy them and you can contact me via e mail and I will answer any questions you have.... TAKE CONTROL AND TAKE YOUR LIFE BACK! Bon voyage :) Steve.... www.kickas.org/ubbthreads/ubbthreads.php?ubb=showflat&Number http://answers.ankylosing.org/106765/no-starch-diet-testimonials-please-have-a-read-through-the-testimonials-in-this-link-if-they-dont/ Thu, 06 Oct 2011 15:26:05 +0000 Asked by Steve 2 years ago http://answers.ankylosing.org/106765/no-starch-diet-testimonials-please-have-a-read-through-the-testimonials-in-this-link-if-they-dont/ Question: The NO STARCH DIET... Has anyone tried it and if so how successful were you on it? I've joined this site today and had a good look through and not seen it mentioned once! I've been dabbling with it for 2 years and since strictly adhering to it 6 months ago my AS is now in remission. Try it folks! http://answers.ankylosing.org/106724/the-no-starch-diet-has-anyone-tried-it-and-if-so-how-successful-were-you-on-it/ Wed, 05 Oct 2011 21:34:59 +0000 Asked by Steve 2 years ago http://answers.ankylosing.org/106724/the-no-starch-diet-has-anyone-tried-it-and-if-so-how-successful-were-you-on-it/ Question: Muscle spams that paralyze you, when would you see a doctor? So I got up this morning and was sore and creaky which is nothing new. However, whilst in the shower my neck, down low where it joins the rest of your back went in paralyzing spasm. My husband had to finish washing my hair for me and dry and it and dress me. I found some Flexeril I had from a similar thing a couple of years ago and took it despite not knowing if it's any good. When would you see a doctor? http://answers.ankylosing.org/106483/muscle-spams-that-paralyze-you-when-would-you-see-a-doctor/ Sat, 01 Oct 2011 16:36:42 +0000 Asked by Lindsay Cairns 2 years ago http://answers.ankylosing.org/106483/muscle-spams-that-paralyze-you-when-would-you-see-a-doctor/ Question: Recently diagnosed with AS. I am awaiting appt with RA dr but in the mean time am seeing my PCP. I am taking tramadol and tylenol every 6 hr for pain..nothing has helped..tried percocet, vicodin, now this..what can i do to get relief? I am 26 and have 3 small children..ive been out of work since end of aug..my symptoms are getting much worse as well..i am actually questioning the possibility of MS instead of AS and think i may request dr to do test. http://answers.ankylosing.org/106472/recently-diagnosed-with-as-i-am-awaiting-appt-with-ra-dr-but-in-the-mean-time-am-seeing-my-pcp-i-am/ Sat, 01 Oct 2011 07:45:52 +0000 Asked by Brittney Brown 2 years ago http://answers.ankylosing.org/106472/recently-diagnosed-with-as-i-am-awaiting-appt-with-ra-dr-but-in-the-mean-time-am-seeing-my-pcp-i-am/ Question: Hey guys! So I'm off to go to UCSF for my 4th MRI of my neck, they found a tumor in my liver that they said to be a hemangioma and they have found two in my neck, what I want to know is why all of these hemangiomas are popping up, what's causing them and what can stop them? I'm also going very numb in my arms and legs and I don't know what to do about that, the Rheumy didn't really give me any help, so I thought I'd turn to you all to help me out with what to ask and what to help! http://answers.ankylosing.org/106381/hey-guys-so-im-off-to-go-to-ucsf-for-my-4th-mri-of-my-neck-they-found-a-tumor-in-my-liver-that-they/ Thu, 29 Sep 2011 12:26:04 +0000 Asked by Sasha 2 years ago http://answers.ankylosing.org/106381/hey-guys-so-im-off-to-go-to-ucsf-for-my-4th-mri-of-my-neck-they-found-a-tumor-in-my-liver-that-they/ Question: I have been reading the group posts and have to say thank you for the support. I am a 35 year ol (female) and have been diagnosed with AS, hypertension, vit. D difficient, left SI joint, L-3 -S1 degeneration and was on Humira May 11- July 11 until it stopped helping and I had horrible site reactions. I am supposed to start Enbrel, but developed bacterial bronchitis this past week, does anyone have any advice as to how to help my immune system deal with all of this? Supplements http://answers.ankylosing.org/106307/i-have-been-reading-the-group-posts-and-have-to-say-thank-you-for-the-support-i-am-a-35-year-ol-female/ Tue, 27 Sep 2011 23:30:17 +0000 Asked by Karla Fernandez 2 years ago http://answers.ankylosing.org/106307/i-have-been-reading-the-group-posts-and-have-to-say-thank-you-for-the-support-i-am-a-35-year-ol-female/ Question: I have Cervical and Lumbar Spondylosis and my legs are numb most of the time. I can just about walk about with a stick, but in severe pain. I seem to be allergic to just about every type of medication. I also have two fractured vertebrae in my neck. My doctor will not refer me back to the specialist, as he says there is nothing they can do evey though the pain makes me feel sick. He says I am wasting his time and he has others to see! What can I do? http://answers.ankylosing.org/105972/i-have-cervical-and-lumbar-spondylosis-and-my-legs-are-numb-most-of-the-time-i-can-just-about-walk-about/ Wed, 21 Sep 2011 14:14:28 +0000 Asked by Rosalie Jackson 2 years ago http://answers.ankylosing.org/105972/i-have-cervical-and-lumbar-spondylosis-and-my-legs-are-numb-most-of-the-time-i-can-just-about-walk-about/ Question: Is anyone having problems with vertigo? http://answers.ankylosing.org/105782/is-anyone-having-problems-with-vertigo/ Sat, 17 Sep 2011 19:50:32 +0000 Asked by Bonnie Breneman 2 years ago http://answers.ankylosing.org/105782/is-anyone-having-problems-with-vertigo/ Question: Just got the best gift a jazzy power chair independence means everything so if AS gets that bad there are things out there to make life easier. My pelvis fused ,spine fused ,neck fused so walking painful and difficult nearly bent double.Spine swollen and bruised, specalist said got to use wheelchair more before I do anymore damage to spine? http://answers.ankylosing.org/105435/just-got-the-best-gift-a-jazzy-power-chair-independence-means-everything-so-if-as-gets-that-bad-there/ Tue, 13 Sep 2011 02:24:38 +0000 Asked by Jean Mace 2 years ago http://answers.ankylosing.org/105435/just-got-the-best-gift-a-jazzy-power-chair-independence-means-everything-so-if-as-gets-that-bad-there/ Question: Hi I was recently told that my L4 and sacrum have fused and that i may have ankylosing spondylitis. I am in EXTREME pain! I saw a DO yesterday who said I need a rheumatologist I cant get an appointment till NOVEMBER 16th! I cannot walk, sit or sleep I am in a lot of pain! The DO gave me voltaren and was going to give me tramadol but I have a bad reaction to it. Im still in a lot of pain where can I get help? I cant stay like this till november! http://answers.ankylosing.org/104793/hi-i-was-recently-told-that-my-l4-and-sacrum-have-fused-and-that-i-may-have-ankylosing-spondylitis-i/ Fri, 02 Sep 2011 19:29:25 +0000 Asked by Heather Gamble 2 years ago http://answers.ankylosing.org/104793/hi-i-was-recently-told-that-my-l4-and-sacrum-have-fused-and-that-i-may-have-ankylosing-spondylitis-i/ Question: I find that when I say I have AS and it's a form of arthritis people say 'yeah I know what arthritis is'. But they don't know. How do you explain to people it isn't something you can see, that what they think should help arthritis isn't actually going to help or fix it? http://answers.ankylosing.org/104335/i-find-that-when-i-say-i-have-as-and-its-a-form-of-arthritis-people-say-yeah-i-know-what-arthritis/ Tue, 30 Aug 2011 05:54:38 +0000 Asked by Carmen 2 years ago http://answers.ankylosing.org/104335/i-find-that-when-i-say-i-have-as-and-its-a-form-of-arthritis-people-say-yeah-i-know-what-arthritis/ Question: Do you think physical damage continues even while in remission? http://answers.ankylosing.org/104020/do-you-think-physical-damage-continues-even-while-in-remission/ Sun, 28 Aug 2011 22:22:09 +0000 Asked by Catherine Terry 2 years ago http://answers.ankylosing.org/104020/do-you-think-physical-damage-continues-even-while-in-remission/ Question: I know that there have been previous questions about Cymbalta but I never read them because I wasn't on them. I was recently prescribed it for fibromyalgia and it makes me tired. Is this a common thing for everyone else? And do you have any other side effects that you could share? Thanks everyone! http://answers.ankylosing.org/101124/i-know-that-there-have-been-previous-questions-about-cymbalta-but-i-never-read-them-because-i-wasnt/ Tue, 16 Aug 2011 09:07:39 +0000 Asked by Jennifer 2 years ago http://answers.ankylosing.org/101124/i-know-that-there-have-been-previous-questions-about-cymbalta-but-i-never-read-them-because-i-wasnt/ Question: Anyone else get geographic tongue? I know it's common with psoriatic arthritis, but supposedly I don't have that. Usually it doesn't bother me, but it's on the very tip this time and is being quite painful. http://answers.ankylosing.org/100504/anyone-else-get-geographic-tongue/ Sat, 13 Aug 2011 17:10:45 +0000 Asked by Anne 2 years ago http://answers.ankylosing.org/100504/anyone-else-get-geographic-tongue/ Question: Just curious..I was only diagnosed a few months ago with AS and believe I must have caught it early. I'm still doing pretty well so long as I take my Sulfasalazine and NSAID. Am I just lucky that my medication is working so well? Or is it that I'm just still in way early stages and will eventually get worse? It seems like so many on here have a far worse case than myself. http://answers.ankylosing.org/100003/just-curiousi-was-only-diagnosed-a-few-months-ago-with-as-and-believe-i-must-have-caught-it-early/ Fri, 05 Aug 2011 21:32:11 +0000 Asked by Laura Buxton 2 years ago http://answers.ankylosing.org/100003/just-curiousi-was-only-diagnosed-a-few-months-ago-with-as-and-believe-i-must-have-caught-it-early/ Question: Is anybody else finding it hard to get life insurance been every time they ask for medical records or get intouch with my gp then thats the end of that .Think I'am going to wait until I'am 50 so I can get a no medical needed insurance? http://answers.ankylosing.org/99965/is-anybody-else-finding-it-hard-to-get-life-insurance-been-every-time-they-ask-for-medical-records-or/ Fri, 05 Aug 2011 01:38:57 +0000 Asked by Jean Mace 2 years ago http://answers.ankylosing.org/99965/is-anybody-else-finding-it-hard-to-get-life-insurance-been-every-time-they-ask-for-medical-records-or/ Question: Okay, so i've been away from here for a bit. We have been struggling for a few years trying to get a diagnosis.. With not enough proof to get a diagnosis of AS. I had a CT scan 3 weeks ago which finally showed something. Both left and right SI joints are full of osteophytes and both have considerable joint space narrowing, though the right is worse than the left in both cases. Anyway My doc wants me to get SI joint injections... Anyone else have them? Tell me about it, i'm really anxious. http://answers.ankylosing.org/99238/okay-so-ive-been-away-from-here-for-a-bit-we-have-been-struggling-for-a-few-years-trying-to-get-a/ Mon, 01 Aug 2011 04:56:56 +0000 Asked by Lindsay Cairns 2 years ago http://answers.ankylosing.org/99238/okay-so-ive-been-away-from-here-for-a-bit-we-have-been-struggling-for-a-few-years-trying-to-get-a/ Question: Does anybody else get actul brusies some can be realy large that appear on my back on the spine and pelvis and I haven't had a fall or knocked myself this as happened a few times before? http://answers.ankylosing.org/98350/does-anybody-else-get-actul-brusies-some-can-be-realy-large-that-appear-on-my-back-on-the-spine-and-pelvis/ Thu, 28 Jul 2011 02:26:45 +0000 Asked by Jean Mace 2 years ago http://answers.ankylosing.org/98350/does-anybody-else-get-actul-brusies-some-can-be-realy-large-that-appear-on-my-back-on-the-spine-and-pelvis/ Question: I am so confused. I am HLA-B27 Positive. I have neck pain, herniated and degenerative disc, (hip, knee, elbow, shoulder, ankle and wrist pain). I am having trouble walking and cutting up my own food due to my knees and wrists. My doctor said its not AS because I have no joint damage or visible swelling. I am in pain constantly and my neck is basically deformed at this point. It leans so far forward it feels like I cant hold my head up. Doctor thought maybe lupus but ANA is negative. Please help? http://answers.ankylosing.org/96087/i-am-so-confused-i-am-hla-b27-positive-i-have-neck-pain-herniated-and-degenerative-disc-hip-knee/ Sat, 16 Jul 2011 06:21:01 +0000 Asked by Kourtenay 2 years ago http://answers.ankylosing.org/96087/i-am-so-confused-i-am-hla-b27-positive-i-have-neck-pain-herniated-and-degenerative-disc-hip-knee/ Question: I have been given the diagnosis that every ASer dreads...Ribcage fusion. I have lost 75% of my ribcage expansion and was told there is nothing that can be done. I was diagnosed with the severe form of AS that progresses very fast even with TNF's. Do any of you have any ideas or have you found anything that helps? I do the ribcage breathing excersizes and the heat, cold, heat packs. I see my rheumy tomorrow and I'm really scared at the outcome of the appt. Help Please! http://answers.ankylosing.org/95256/i-have-been-given-the-diagnosis-that-every-aser-dreadsribcage-fusion-i-have-lost-75-of-my-ribcage/ Thu, 07 Jul 2011 07:43:51 +0000 Asked by Jennifer 2 years ago http://answers.ankylosing.org/95256/i-have-been-given-the-diagnosis-that-every-aser-dreadsribcage-fusion-i-have-lost-75-of-my-ribcage/ Question: Has anyone had success with anything in regard to twitches and muscle spasms on their faces. AS, Mine started in my left eye about 3 years ago. Doctor said ...quite common ...nothing to worry about. Now the facial jerks are happening down the left side to the mouth. It really depresses me? http://answers.ankylosing.org/94312/has-anyone-had-success-with-anything-in-regard-to-twitches-and-muscle-spasms-on-their-faces-as-mine/ Wed, 29 Jun 2011 09:12:55 +0000 Asked by Jean Perry 2 years ago http://answers.ankylosing.org/94312/has-anyone-had-success-with-anything-in-regard-to-twitches-and-muscle-spasms-on-their-faces-as-mine/ Question: Does anyone use Remicade? http://answers.ankylosing.org/94161/does-anyone-use-remicade/ Tue, 28 Jun 2011 07:00:53 +0000 Asked by Bonnie Breneman 2 years ago http://answers.ankylosing.org/94161/does-anyone-use-remicade/ Question: I have an AS from past 2 months i have pain in knee and hips . How i free from the pain to continue my job. Is there any possibility of complete cure in early stage of these disease. Please tell me all things which you know about the AS? http://answers.ankylosing.org/94045/i-have-an-as-from-past-2-months-i-have-pain-in-knee-and-hips-how-i-free-from-the-pain-to-continue-my/ Mon, 27 Jun 2011 10:28:53 +0000 Asked by Satish Kumar 2 years ago http://answers.ankylosing.org/94045/i-have-an-as-from-past-2-months-i-have-pain-in-knee-and-hips-how-i-free-from-the-pain-to-continue-my/ Question: This was in an email from my Rhem: The diagnosis of Ankylosing Spondylitis is not definite until there is objective evidence of spine inflammation/damage due to inflammation in the correct clinical setting. You do not have objective evidence of spine inflammation but you have subjective evidence/suggestive evidence of a spondyloarthropathy( of which Ankylosing Spondylitis is included). So what do I do with that now? I have a phone appt with him tomorrow afternoon, he wants to start me on TNF's. http://answers.ankylosing.org/93475/this-was-in-an-email-from-my-rhem-the-diagnosis-of-ankylosing-spondylitis-is-not-definite-until-there/ Wed, 22 Jun 2011 05:29:32 +0000 Asked by Sasha 2 years ago http://answers.ankylosing.org/93475/this-was-in-an-email-from-my-rhem-the-diagnosis-of-ankylosing-spondylitis-is-not-definite-until-there/ Question: Lately I noticed that a lot of noise bothers my ears. I'm not sure if it's at all related to AS or it's just me. Anyone else have this problem? http://answers.ankylosing.org/93121/lately-i-noticed-that-a-lot-of-noise-bothers-my-ears-im-not-sure-if-its-at-all-related-to-as-or-its/ Sun, 19 Jun 2011 09:35:13 +0000 Asked by Anna Blaszkiewicz 2 years ago http://answers.ankylosing.org/93121/lately-i-noticed-that-a-lot-of-noise-bothers-my-ears-im-not-sure-if-its-at-all-related-to-as-or-its/ Question: What are your symptoms? Back pain, neck pain, joint pain, body temp rises, hot to touch, sweats, stiffness, headaches, calf pain, heel pain, now I have swelling near my knees and ankles, fatigue, teeth pain and chipping, my back sounds like bubble wrap crunching, joints popping...they said they think this could be spondyloarthropathy which then gets diagnosed to AS later down the line as well as Fibromyalgia or RA. I'm simply trying to be proactive when I see my Rhem. In a week. http://answers.ankylosing.org/89811/what-are-your-symptoms/ Tue, 07 Jun 2011 14:08:25 +0000 Asked by Sasha 2 years ago http://answers.ankylosing.org/89811/what-are-your-symptoms/ Question: Daughter had great visit with doc today & holistic approaches are working for her but wanted to pass on a book he recommended written by Norman Cousins called "Anatomy of an Illness (As Perceived by the Patient)". Cousins tells how he developed a debilitating illness in the 1960's which confines him to bed and he's diagnosed with ankylosing spondylitis and how laughter and non-traditional meds cured him. The book should be in your library or is on Amazon.com. Just wanted to share? http://answers.ankylosing.org/89775/daughter-had-great-visit-with-doc-today-holistic-approaches-are-working-for-her-but-wanted-to-pass/ Tue, 07 Jun 2011 06:26:32 +0000 Asked by Jennifer Crow 2 years ago http://answers.ankylosing.org/89775/daughter-had-great-visit-with-doc-today-holistic-approaches-are-working-for-her-but-wanted-to-pass/ Question: I was diagnosed with AS two months ago, I also have Degenerative disk disease with stenosis. I was in a car accident in Feb- I was t-boned- I have had neck issues since. It was recently discovered that I have positive Babinski and Hoffmans reflexes. I have been doing a lot of research and discovered that it is possible that the positive Babinksi and Hoffmans is due to the AS. My question is has anyone experience these issues with their reflexes due to AS? http://answers.ankylosing.org/89717/i-was-diagnosed-with-as-two-months-ago-i-also-have-degenerative-disk-disease-with-stenosis-i-was-in/ Mon, 06 Jun 2011 17:51:32 +0000 Asked by Kasandra Kettenring Fox 2 years ago http://answers.ankylosing.org/89717/i-was-diagnosed-with-as-two-months-ago-i-also-have-degenerative-disk-disease-with-stenosis-i-was-in/ Question: The Rhem. Gave me a suspected DX of spondyloarthropathy. I had a 3 part MRI this week but had a panic attack with the neck so I had the neck and lower back done and have to go back for the middle, what is fusion and what if the MRI doesn't show it? Will Methotrexate help it? He wants me on that? I read that it's for R.A though. What has helped you?I want to make sure I'm educated before I go on anything. What are the uvetitis flares I'm hearing about I see the Eye doc in a week as well. http://answers.ankylosing.org/89557/the-rhem-gave-me-a-suspected-dx-of-spondyloarthropathy-i-had-a-3-part-mri-this-week-but-had-a-panic/ Sun, 05 Jun 2011 13:05:14 +0000 Asked by Sasha 2 years ago http://answers.ankylosing.org/89557/the-rhem-gave-me-a-suspected-dx-of-spondyloarthropathy-i-had-a-3-part-mri-this-week-but-had-a-panic/ Question: Ok so has any one had problems with their ears, jaw, and rash=scaling/blisters on palms of hands, lower leg, bottom of feet, behind ear, tip of finger? If so could you tell me about what is going on? My GP seems to think its a reaction to simponi, my rhumy said it could be serious, its been almost a year of onset and have been off simponi for 2mo now, and no changes. Been tested for Syphilis and its not that, freaked me out when I saw it on the blood draw order. All other test came out normal. http://answers.ankylosing.org/89550/ok-so-has-any-one-had-problems-with-their-ears-jaw-and-rashscalingblisters-on-palms-of-hands-lower/ Sun, 05 Jun 2011 10:09:52 +0000 Asked by Mary 2 years ago http://answers.ankylosing.org/89550/ok-so-has-any-one-had-problems-with-their-ears-jaw-and-rashscalingblisters-on-palms-of-hands-lower/ Question: Just wanted to be sure everyone here knows about google scholar. It's what the doctors use. Google scholar, google it and use to search about your disease. Very helpful tool my rheumy told me about and is free! Let me know if you need help with it and I would be glad to assist! Rich Groben? http://answers.ankylosing.org/89526/just-wanted-to-be-sure-everyone-here-knows-about-google-scholar-its-what-the-doctors-use-google-scholar/ Sun, 05 Jun 2011 05:10:30 +0000 Asked by Rwg Enterprises 2 years ago http://answers.ankylosing.org/89526/just-wanted-to-be-sure-everyone-here-knows-about-google-scholar-its-what-the-doctors-use-google-scholar/ Question: Pain medications... I found myself a new physician, yesterday. I meet with him June 27th, he specializes in treating chronic pain. Anyway, I am meeting with him to discuss a second opinion rheumy, pain medication, and just every little question I can think of and write down. I wanted to know what kind of pain meds you are all on. I am not taking anything for pain right now, just Naproxen for inflammation and Nortriptyline to help with sleep. Thanks in advance? http://answers.ankylosing.org/89219/pain-medications-i-found-myself-a-new-physician-yesterday-i-meet-with-him-june-27th-he-specializes/ Thu, 02 Jun 2011 22:20:16 +0000 Asked by Lindsay Cairns 2 years ago http://answers.ankylosing.org/89219/pain-medications-i-found-myself-a-new-physician-yesterday-i-meet-with-him-june-27th-he-specializes/ Question: What's the difference of a diagnosis between Reiter's Syndrome and AS? What are the difference of symptoms? http://answers.ankylosing.org/88763/whats-the-difference-of-a-diagnosis-between-reiters-syndrome-and-as/ Mon, 30 May 2011 09:07:43 +0000 Asked by Sasha 2 years ago http://answers.ankylosing.org/88763/whats-the-difference-of-a-diagnosis-between-reiters-syndrome-and-as/ Question: So the doctor today said that I have a suspected diagnosis of spondyloarthropathy, but that's like the large title and AS is under it as well as other inflammation of the spine. One doc said she thinks it's AS and Fibromyalgia, I have another MRI of my spine next week and ESR is still up and HLA-b27 is present. He wanted to start me on Methotrexate and the side effects scared the crap outta me. Is anyone on that or have the been on it and did it help, side effects? How was AS diag? http://answers.ankylosing.org/88038/so-the-doctor-today-said-that-i-have-a-suspected-diagnosis-of-spondyloarthropathy-but-thats-like-the/ Thu, 26 May 2011 11:06:28 +0000 Asked by Sasha 2 years ago http://answers.ankylosing.org/88038/so-the-doctor-today-said-that-i-have-a-suspected-diagnosis-of-spondyloarthropathy-but-thats-like-the/ Question: I have a doctor appt with the Rheum tomorrow, I saw him 3 weeks ago and he did an HLA-B27 test which tested positive, ESR is elevated to double the normal rate and the CRP should be at .5 and is at 3.2, shows protein too high. When you were diagnosed with AS what were your symptoms? Did Prednisone help? I can't type all my symptoms it won't allow me to, too many characters so please help me. http://answers.ankylosing.org/87860/i-have-a-doctor-appt-with-the-rheum-tomorrow-i-saw-him-3-weeks-ago-and-he-did-an-hla-b27-test-which/ Wed, 25 May 2011 05:05:29 +0000 Asked by Sasha 2 years ago http://answers.ankylosing.org/87860/i-have-a-doctor-appt-with-the-rheum-tomorrow-i-saw-him-3-weeks-ago-and-he-did-an-hla-b27-test-which/ Question: I tested positive for the HLA-b27 antigen and the Rhem. Said I could have AS. I have horrible lower back pain that has started to radiate to my left buttock and thigh, my knees hurt, my joints pop, I can simply step and feel a shooting pain my foot, have started getting headaches that don't go away, I'm so tired but can't sleep enough, I get night sweats and my body gets so hot yet I'm cold at night (my body is hot to the touch but no fever). Please help with anything, I'm so lost? http://answers.ankylosing.org/87273/i-tested-positive-for-the-hla-b27-antigen-and-the-rhem-said-i-could-have-as-i-have-horrible-lower-back/ Thu, 19 May 2011 11:22:06 +0000 Asked by Sasha 2 years ago http://answers.ankylosing.org/87273/i-tested-positive-for-the-hla-b27-antigen-and-the-rhem-said-i-could-have-as-i-have-horrible-lower-back/ Question: I was wondering if anyone started out with lower back pain psorisis and pacreatitis. I'm tired of the Docs looking at me thinking i'm crazy. Or saying Depression can cause all that. My MRI says the most notable change of disk height between the L5-S1 joint. I have not been diagnosed yet, but have many of the symptoms listed on this site. Any help would be greatly appreciated? http://answers.ankylosing.org/87014/i-was-wondering-if-anyone-started-out-with-lower-back-pain-psorisis-and-pacreatitis-im-tired-of-the/ Mon, 16 May 2011 19:05:27 +0000 Asked by Derek McCarthy 2 years ago http://answers.ankylosing.org/87014/i-was-wondering-if-anyone-started-out-with-lower-back-pain-psorisis-and-pacreatitis-im-tired-of-the/ Question: My 14-year-old daughter has had severe upper back and joint pain for a couple of years. We were first told it was Scheurmann's Kyphosis, then JA, then AS. We've been through many combos of meds - methotrexate and Humira, then Enbrel, but they didn't help at all. Do they usuallly work for AS or just JA? Now she takes tramadol, gabapentin and a muscle relaxant three times a day, which don't help much. Any advice or experiences to share regarding meds? Afraid of Cymbalta cuz of her age.... http://answers.ankylosing.org/86087/my-14-year-old-daughter-has-had-severe-upper-back-and-joint-pain-for-a-couple-of-years-we-were-first/ Sun, 08 May 2011 07:45:16 +0000 Asked by Erin Hogan 2 years ago http://answers.ankylosing.org/86087/my-14-year-old-daughter-has-had-severe-upper-back-and-joint-pain-for-a-couple-of-years-we-were-first/ Question: Blood Group & Disease ~ Why almost every study is wrong! The problem with most research studies related to blood type and disease, is that there are so many variables and many fall victim to the fallacy of pooling heterogeneous data. READ MORE > rhnegativeregistry.com/Ankylosing-Spondylitis-AS-Autoimmune- http://answers.ankylosing.org/85098/blood-group-disease-why-almost-every-study-is-wrong-the-problem-with-most-research-studies-related/ Fri, 29 Apr 2011 09:57:43 +0000 Asked by Jessica Farrell 2 years ago http://answers.ankylosing.org/85098/blood-group-disease-why-almost-every-study-is-wrong-the-problem-with-most-research-studies-related/ Question: I'm having a hard time dealing today. The pain is so severe I cried for hours. Want to scream in anger and physically worn. No one understands and I have no insurance. Any all natural things that help you mentally and physically deal with this torment and pain? Thank You! http://answers.ankylosing.org/84582/im-having-a-hard-time-dealing-today-the-pain-is-so-severe-i-cried-for-hours-want-to-scream-in-anger/ Sat, 23 Apr 2011 03:07:12 +0000 Asked by Kourtenay 2 years ago http://answers.ankylosing.org/84582/im-having-a-hard-time-dealing-today-the-pain-is-so-severe-i-cried-for-hours-want-to-scream-in-anger/ Question: Anyone else feel like their bones hurt? My tibia seems to kill me when I over exert myself. Anyone found any all natural ways to help with AS? http://answers.ankylosing.org/84045/anyone-else-feel-like-their-bones-hurt/ Sat, 16 Apr 2011 23:27:10 +0000 Asked by Kourtenay 2 years ago http://answers.ankylosing.org/84045/anyone-else-feel-like-their-bones-hurt/ Question: Hello. I have not been rx as having AS, however I do have rheumatoid arthritis and have been living with back pain for years. This time, it has become worse. In constant pain everyday. Do have sacroillitis, back is stiff in the mornings, my back stiffens when bending I become stuck & takes a moment to strighten. Back hurts more when just sitting or standing. Also feel like i want to be pulled apart, like i am being crunched. Cervial spine, neck, sterum are painful stiff ..what r ur symptom? http://answers.ankylosing.org/83865/hello-i-have-not-been-rx-as-having-as-however-i-do-have-rheumatoid-arthritis-and-have-been-living-with/ Fri, 15 Apr 2011 03:29:24 +0000 Asked by Painfully 2 years ago http://answers.ankylosing.org/83865/hello-i-have-not-been-rx-as-having-as-however-i-do-have-rheumatoid-arthritis-and-have-been-living-with/ Question: Hi. I had psoriasis for many years, this winter it was so bad that I was too embarrassed to get a hair cut, my legs are also covered so pedicure is out of the question. I started Enbrel 2 weeks ago and don't see any improvement, bit I'm not giving up. I want to ask what else I can use for it? http://answers.ankylosing.org/83804/hi-i-had-psoriasis-for-many-years-this-winter-it-was-so-bad-that-i-was-too-embarrassed-to-get-a-hair/ Thu, 14 Apr 2011 07:47:29 +0000 Asked by Anna Blaszkiewicz 2 years ago http://answers.ankylosing.org/83804/hi-i-had-psoriasis-for-many-years-this-winter-it-was-so-bad-that-i-was-too-embarrassed-to-get-a-hair/ Question: Hello ppl, i have AS since summer 2010, everything went great, i found it on a early stage and started to make the specific exercises, making some specific blood tests to see if AS is going active or not. The problem is that i stopped doing the specific exercises since 2-3 months, i gained in weight, i also have Seborrhoeic dermatitis and Adult attention deficit disorder, i am sleeping very little 6-7 hours, feeling so tired, i can`t even play soccer, my fav sport? http://answers.ankylosing.org/82200/hello-ppl-i-have-as-since-summer-2010-everything-went-great-i-found-it-on-a-early-stage-and-started/ Tue, 05 Apr 2011 03:19:55 +0000 Asked by Robert Cristian 2 years ago http://answers.ankylosing.org/82200/hello-ppl-i-have-as-since-summer-2010-everything-went-great-i-found-it-on-a-early-stage-and-started/ Question: I found this site today, i love it, so can i ask anything i need here? http://answers.ankylosing.org/80148/i-found-this-site-today-i-love-it-so-can-i-ask-anything-i-need-here/ Fri, 01 Apr 2011 04:30:49 +0000 Asked by Nawal Ali 2 years ago http://answers.ankylosing.org/80148/i-found-this-site-today-i-love-it-so-can-i-ask-anything-i-need-here/ Question: AS flare for 6 weeks. Pain in spine, shoulder & worse in hip & rib cage. Take methotrexate for crohns disease & no other meds for AS at this time (last Rheumatologist visit was during no symptoms). Only taking tylenol arthritis (no anti-inflammatories allowed for crohn's) when the pain is unbearable at night & morning. Using stretching, massage therapy & physiotherapy to help with the pain & movement. Any similiar situations out there? Any tips on getting through this? http://answers.ankylosing.org/79913/as-flare-for-6-weeks-pain-in-spine-shoulder-worse-in-hip-rib-cage-take-methotrexate-for-crohns/ Thu, 31 Mar 2011 20:51:30 +0000 Asked by Lililafond 2 years ago http://answers.ankylosing.org/79913/as-flare-for-6-weeks-pain-in-spine-shoulder-worse-in-hip-rib-cage-take-methotrexate-for-crohns/ Question: Enjoy the new Menu Plan & Recipe Sharing Section I've set up for those attempting Gluten & Starch Free Diets! www.rhnegativeregistry.com/Ankylosing-Spondylitis-AS-Autoimm - bottom of the page? http://answers.ankylosing.org/75458/enjoy-the-new-menu-plan-recipe-sharing-section-ive-set-up-for-those-attempting-gluten-starch-free/ Fri, 25 Mar 2011 02:40:45 +0000 Asked by Jessica Farrell 2 years ago http://answers.ankylosing.org/75458/enjoy-the-new-menu-plan-recipe-sharing-section-ive-set-up-for-those-attempting-gluten-starch-free/ Question: Anyone else have Raynauds syndrome as well as AS? Apparently I might have Raynauds too, my hands and feet are constantly cold, but apparently the fact that my nail beds turn blue, should have been a clue to me something was wrong. My Father has both AS and Raynauds so it's not a shock.. But I don't know much about it.. Anyone? http://answers.ankylosing.org/75046/anyone-else-have-raynauds-syndrome-as-well-as-as/ Tue, 22 Mar 2011 03:31:55 +0000 Asked by Lindsay Cairns 2 years ago http://answers.ankylosing.org/75046/anyone-else-have-raynauds-syndrome-as-well-as-as/ Question: For those of you on or considering a Gluten Free or Starch Free Diet, print out your FREE Restricted Food Cards at www.rhnegativeregistry.com/Ankylosing-Spondylitis-AS-Autoimm at the bottom of the page? http://answers.ankylosing.org/72590/for-those-of-you-on-or-considering-a-gluten-free-or-starch-free-diet-print-out-your-free-restricted/ Tue, 15 Mar 2011 04:00:47 +0000 Asked by Jessica Farrell 2 years ago http://answers.ankylosing.org/72590/for-those-of-you-on-or-considering-a-gluten-free-or-starch-free-diet-print-out-your-free-restricted/ Question: I paused taking Enbrel this week due to a case of bronchitis trying to turn into pneumonia. Now I have fever, chills, sore throat, and I am coughing up gunk from my lungs as well as the return of my severe pain. I am on day 3 of penicillin. Anyone have home remedies for pneumonia that do not involve 'strengthening the immune system'? (grin) http://answers.ankylosing.org/71433/i-paused-taking-enbrel-this-week-due-to-a-case-of-bronchitis-trying-to-turn-into-pneumonia-now-i-have/ Sat, 12 Mar 2011 09:37:31 +0000 Asked by Rose Bigham 2 years ago http://answers.ankylosing.org/71433/i-paused-taking-enbrel-this-week-due-to-a-case-of-bronchitis-trying-to-turn-into-pneumonia-now-i-have/ Question: I have been diagnosed with AS for almost 10 years now. For several years, however, I feel that the majority of my symptoms fall under Fibro. For those of you on here who have been diagnosed with both - how did you get this diagnosis? Every time I ask my dr. He brushes it aside and says I have AS. I know, but why won't he consider that I have both? http://answers.ankylosing.org/70698/i-have-been-diagnosed-with-as-for-almost-10-years-now-for-several-years-however-i-feel-that-the-majority/ Wed, 09 Mar 2011 05:03:05 +0000 Asked by Jill Wiig 2 years ago http://answers.ankylosing.org/70698/i-have-been-diagnosed-with-as-for-almost-10-years-now-for-several-years-however-i-feel-that-the-majority/ Question: I may have to move on from Humira to Cimzia. Anyone have experiences to share about that med? http://answers.ankylosing.org/70692/i-may-have-to-move-on-from-humira-to-cimzia-anyone-have-experiences-to-share-about-that-med/ Wed, 09 Mar 2011 04:05:41 +0000 Asked by Chapps 2 years ago http://answers.ankylosing.org/70692/i-may-have-to-move-on-from-humira-to-cimzia-anyone-have-experiences-to-share-about-that-med/ Question: If you have symptoms you think are AS associated but not actually from AS, you might be interested in my research; www.RhNegativeRegistry.com - I research the full association of HLA-B27 and related conditions? http://answers.ankylosing.org/70458/if-you-have-symptoms-you-think-are-as-associated-but-not-actually-from-as-you-might-be-interested-in/ Sun, 06 Mar 2011 00:23:40 +0000 Asked by Jessica Farrell 2 years ago http://answers.ankylosing.org/70458/if-you-have-symptoms-you-think-are-as-associated-but-not-actually-from-as-you-might-be-interested-in/ Question: Am 32 years M from Turkey , and i am AS till 16 years.i am using remicade till 5 years , every month i get 4 pcs remicade , are there anybody using this for long time , are there any after effects, is it a cause for cancer ? ( sorry for my english) http://answers.ankylosing.org/70295/am-32-years-m-from-turkey-and-i-am-as-till-16-yearsi-am-using-remicade-till-5-years-every-month/ Fri, 04 Mar 2011 13:42:45 +0000 Asked by Onur Noyaner 2 years ago http://answers.ankylosing.org/70295/am-32-years-m-from-turkey-and-i-am-as-till-16-yearsi-am-using-remicade-till-5-years-every-month/ Question: I saw my Rheumy yesterday. Since Enbrel still leaves me quite a bit of pain ( but not as much as without anything at all) I asked her about Methotrexate shots to help me out. She answered me by saying that methotrexate is no longer considered to help with AS..It is used for Rheumatoid Arthritis only. Anyone else get this answer from their doctor? http://answers.ankylosing.org/70058/i-saw-my-rheumy-yesterday-since-enbrel-still-leaves-me-quite-a-bit-of-pain-but-not-as-much-as-without/ Fri, 04 Mar 2011 01:20:30 +0000 Asked by Diana Coniglio 2 years ago http://answers.ankylosing.org/70058/i-saw-my-rheumy-yesterday-since-enbrel-still-leaves-me-quite-a-bit-of-pain-but-not-as-much-as-without/ Question: Wondering if anyone suffers with pain in the middle of chest? Hurts to breath to deeply, this flares up quite alot throughout the day. I was told breathing may get harder as time goes on with A.S. Just wondering if this is what's happening, and is pain supposed to be involved in this too. http://answers.ankylosing.org/69747/wondering-if-anyone-suffers-with-pain-in-the-middle-of-chest/ Thu, 03 Mar 2011 01:20:09 +0000 Asked by Debby 3 years ago http://answers.ankylosing.org/69747/wondering-if-anyone-suffers-with-pain-in-the-middle-of-chest/ Question: So, this is a question for the ladies in the house. Do you ever find wearing a bra gets to be too much by the end of the day? I'm in a bit of a flare here, and I notice that if I wear a bra all day, that by mid afternoon, my ribs are more sore and tender and basically just feel like it needs to come off. I'm pretty new to all of this, and just wonder.. Is it just me? OR is it real... I just find the pressure around my ribs can be too much. http://answers.ankylosing.org/69406/so-this-is-a-question-for-the-ladies-in-the-house-do-you-ever-find-wearing-a-bra-gets-to-be-too-much/ Wed, 02 Mar 2011 02:27:03 +0000 Asked by Lindsay Cairns 3 years ago http://answers.ankylosing.org/69406/so-this-is-a-question-for-the-ladies-in-the-house-do-you-ever-find-wearing-a-bra-gets-to-be-too-much/ Question: Update and question. Went to social sec doc thurs. He couldn't understand what the holdup was on making a decision on my case. It has been ten months from initial application, and I have not been denied or approved. Their doc I went to agrees with me...that I am in fact disabled. Will this have much bearing on the decision. HELP PLEASE? http://answers.ankylosing.org/69227/update-and-question-went-to-social-sec-doc-thurs-he-couldnt-understand-what-the-holdup-was-on-making/ Mon, 28 Feb 2011 22:38:16 +0000 Asked by Carl Epperson 3 years ago http://answers.ankylosing.org/69227/update-and-question-went-to-social-sec-doc-thurs-he-couldnt-understand-what-the-holdup-was-on-making/ Question: Cold fingers Does anyone else have cold fingers ALL the time? I can be perfectly warm, but my fingers are constantly as cold as ice... It's so weird... http://answers.ankylosing.org/67866/cold-fingers-does-anyone-else-have-cold-fingers-all-the-time/ Sat, 19 Feb 2011 00:33:43 +0000 Asked by Lindsay Cairns 3 years ago http://answers.ankylosing.org/67866/cold-fingers-does-anyone-else-have-cold-fingers-all-the-time/ Question: Massage! Okay, who has tried massage? Uses it as a regular part of their maintenance? Tried it but found it made things worse? I'm in a bad "flare" right now been a month and a couple of weeks now. What a start to the new year... I am considering therapeutic massage... I went for an osteopathic massage back in December and although I know it will cause pain at first I can't go through that agony again.. Not while i'm in a flare like this. So.. Anyone? Thanks http://answers.ankylosing.org/67843/massage-okay-who-has-tried-massage-uses-it-as-a-regular-part-of-their-maintenance-tried-it-but-found/ Fri, 18 Feb 2011 17:32:33 +0000 Asked by Lindsay Cairns 3 years ago http://answers.ankylosing.org/67843/massage-okay-who-has-tried-massage-uses-it-as-a-regular-part-of-their-maintenance-tried-it-but-found/ Question: I am pretty sure I have AS and am close to a diagnosis, been going on for 18 months. It started with incredibly painful rib pain and now my whole spine hurts most of the time. I see on here that excercise and even just going for a walk will help the pain, but it makes things worse/starts the pain off for me? Anyone else experience this? http://answers.ankylosing.org/66385/i-am-pretty-sure-i-have-as-and-am-close-to-a-diagnosis-been-going-on-for-18-months-it-started-with/ Tue, 15 Feb 2011 00:29:25 +0000 Asked by Dan Cooper 3 years ago http://answers.ankylosing.org/66385/i-am-pretty-sure-i-have-as-and-am-close-to-a-diagnosis-been-going-on-for-18-months-it-started-with/ Question: AS sufferer here, Have had sinus infection for appro 3 mo.s. Didn't take my embrol due to warnings. Saw my reumy on tues., sent for sinus x-ray(abnormal), went for sinus CAT scan, results- "do you have a Eyes, ears, nose and throat Dr." No, I don't. Now they are trying to get me to one, soon. No answers. Me, just questions. Won't hold anyone to it but any ideas of what is going on? http://answers.ankylosing.org/65760/as-sufferer-here-have-had-sinus-infection-for-appro-3-mos-didnt-take-my-embrol-due-to-warnings-saw/ Sat, 12 Feb 2011 09:27:40 +0000 Asked by Loren Youk 3 years ago http://answers.ankylosing.org/65760/as-sufferer-here-have-had-sinus-infection-for-appro-3-mos-didnt-take-my-embrol-due-to-warnings-saw/ Question: Ok....question. Been awaiting initial decision from disability. There doc does not need me to do a phys. Exam...my supplied info is sufficient he says. But...today I had to do a visual acuity test on the snellen chart. Does this mean he hasn't found a way to disqualify me and he is witch hunting or what? http://answers.ankylosing.org/64519/okquestion-been-awaiting-initial-decision-from-disability-there-doc-does-not-need-me-to-do-a-phys/ Sat, 05 Feb 2011 03:44:58 +0000 Asked by Carl Epperson 3 years ago http://answers.ankylosing.org/64519/okquestion-been-awaiting-initial-decision-from-disability-there-doc-does-not-need-me-to-do-a-phys/ Question: Question! Anyone else has BUTT cheeks pain? And please, please give me any ideas on how you deal with it or overcome it, even temporarily, it drives me crazy at work and I'm on IT all day, so far walking, laying down or Sacro injections with cortisone is temporary. Any info will do. Tam :o) http://answers.ankylosing.org/64361/question-anyone-else-has-butt-cheeks-pain/ Thu, 03 Feb 2011 01:53:53 +0000 Asked by Tammy Martin 3 years ago http://answers.ankylosing.org/64361/question-anyone-else-has-butt-cheeks-pain/ Question: Hey folks, haven't been on this in a while. How are you's all generally doing? Hope all is well! :) http://answers.ankylosing.org/64278/hey-folks-havent-been-on-this-in-a-while-how-are-yous-all-generally-doing/ Wed, 02 Feb 2011 00:48:30 +0000 Asked by Mark 3 years ago http://answers.ankylosing.org/64278/hey-folks-havent-been-on-this-in-a-while-how-are-yous-all-generally-doing/ Question: Do you know how many things are associated with HLA-B27? www.rhnegativeregistry.com/autoimmune-rh-members-area-home.h http://answers.ankylosing.org/64266/do-you-know-how-many-things-are-associated-with-hla-b27/ Tue, 01 Feb 2011 22:56:25 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/64266/do-you-know-how-many-things-are-associated-with-hla-b27/ Question: After a full night of "sleep" I feel like I ran a marathon! I am so sick and tired of feeling like this in the morning! I am a morning person (normally) but everything hurts so bad in the morning. Sorry I just have to vent. Thanks for listening? http://answers.ankylosing.org/62666/after-a-full-night-of-sleep-i-feel-like-i-ran-a-marathon-i-am-so-sick-and-tired-of-feeling-like-this/ Mon, 17 Jan 2011 20:01:13 +0000 Asked by Jenni 3 years ago http://answers.ankylosing.org/62666/after-a-full-night-of-sleep-i-feel-like-i-ran-a-marathon-i-am-so-sick-and-tired-of-feeling-like-this/ Question: Do a lot of people here struggle with digestion? Food allergies? http://answers.ankylosing.org/62339/do-a-lot-of-people-here-struggle-with-digestion/ Thu, 13 Jan 2011 04:13:20 +0000 Asked by Kelly 3 years ago http://answers.ankylosing.org/62339/do-a-lot-of-people-here-struggle-with-digestion/ Question: Heat in spine? I have been having a few BAD days, and last night was really bad.. My husband gasped when he went to rub my back at how hot to the touch it was... Does your spine get hot to the touch? Obvoiusly not like burn you hot.. But a significa http://answers.ankylosing.org/62331/heat-in-spine-i-have-been-having-a-few-bad-days-and-last-night-was-really-bad-my-husband-gasped-when/ Thu, 13 Jan 2011 03:03:04 +0000 Asked by Lindsay Cairns 3 years ago http://answers.ankylosing.org/62331/heat-in-spine-i-have-been-having-a-few-bad-days-and-last-night-was-really-bad-my-husband-gasped-when/ Question: Long time with AS. A fender bender has caused a severe increase in my pain. Because of this I am suffering depression, cannot stay on task, keep appts, pay bills ect. I am going this alone and am falling thru the cracks. Any suggestions? http://answers.ankylosing.org/62288/long-time-with-as-a-fender-bender-has-caused-a-severe-increase-in-my-pain-because-of-this-i-am-suffering/ Wed, 12 Jan 2011 19:34:52 +0000 Asked by Loren Youk 3 years ago http://answers.ankylosing.org/62288/long-time-with-as-a-fender-bender-has-caused-a-severe-increase-in-my-pain-because-of-this-i-am-suffering/ Question: After developing a rash early last year i sought advice from a dermatologist about what it was. Having had AS for over 20 years it was assumed that it was psoriasis but it has been confirmed as pityriasis lichenoides chronica. Anyone ever had this? http://answers.ankylosing.org/62072/after-developing-a-rash-early-last-year-i-sought-advice-from-a-dermatologist-about-what-it-was-having/ Mon, 10 Jan 2011 22:58:57 +0000 Asked by Allun Edge 3 years ago http://answers.ankylosing.org/62072/after-developing-a-rash-early-last-year-i-sought-advice-from-a-dermatologist-about-what-it-was-having/ Question: Does anyone here take sulfasalazine? Are there any meds that help with fatigue? http://answers.ankylosing.org/62008/does-anyone-here-take-sulfasalazine/ Mon, 10 Jan 2011 07:48:09 +0000 Asked by Kelly 3 years ago http://answers.ankylosing.org/62008/does-anyone-here-take-sulfasalazine/ Question: Another ? For women: Did a pregnancy bring on or "activate" your AS? I was reading another website and saw something along those lines? http://answers.ankylosing.org/61518/another-for-women-did-a-pregnancy-bring-on-or-activate-your-as/ Mon, 03 Jan 2011 19:07:55 +0000 Asked by Jenni 3 years ago http://answers.ankylosing.org/61518/another-for-women-did-a-pregnancy-bring-on-or-activate-your-as/ Question: What do you all mean by flare? (im new to this) i have had pretty consistent pain and fatigue for about a month, but i have been able to function for the most part.... Would this be considered a flare? http://answers.ankylosing.org/61403/what-do-you-all-mean-by-flare/ Sun, 02 Jan 2011 02:31:24 +0000 Asked by Kelly 3 years ago http://answers.ankylosing.org/61403/what-do-you-all-mean-by-flare/ Question: Anyone here a dancer or a an athlete? What do you do when you have a flare? Or just dont feel well for months at a time? http://answers.ankylosing.org/61378/anyone-here-a-dancer-or-a-an-athlete-what-do-you-do-when-you-have-a-flare/ Sat, 01 Jan 2011 14:45:34 +0000 Asked by Kelly 3 years ago http://answers.ankylosing.org/61378/anyone-here-a-dancer-or-a-an-athlete-what-do-you-do-when-you-have-a-flare/ Question: Months before being diagnosed with AS, i ended up in the ER having thought I "threw my back out". I couldnt move and was in severe pain... Does AS involve injuries like that? Or was this unrelated? http://answers.ankylosing.org/61376/months-before-being-diagnosed-with-as-i-ended-up-in-the-er-having-thought-i-threw-my-back-out-i-couldnt/ Sat, 01 Jan 2011 14:33:39 +0000 Asked by Kelly 3 years ago http://answers.ankylosing.org/61376/months-before-being-diagnosed-with-as-i-ended-up-in-the-er-having-thought-i-threw-my-back-out-i-couldnt/ Question: Hi. Has anyone got a recommendation for a good rheumatologist in or near the Rochester area of Kent, UK? http://answers.ankylosing.org/61232/hi-has-anyone-got-a-recommendation-for-a-good-rheumatologist-in-or-near-the-rochester-area-of-kent/ Thu, 30 Dec 2010 06:58:22 +0000 Asked by Neil Golder 3 years ago http://answers.ankylosing.org/61232/hi-has-anyone-got-a-recommendation-for-a-good-rheumatologist-in-or-near-the-rochester-area-of-kent/ Question: Have any of you had to move from bi-weekly Humira injections to weekly injections? If so, what were the results? This may be in my future. http://answers.ankylosing.org/61154/have-any-of-you-had-to-move-from-bi-weekly-humira-injections-to-weekly-injections-if-so-what-were-the/ Wed, 29 Dec 2010 11:17:04 +0000 Asked by Chapps 3 years ago http://answers.ankylosing.org/61154/have-any-of-you-had-to-move-from-bi-weekly-humira-injections-to-weekly-injections-if-so-what-were-the/ Question: Just wanted to say Merry Christmas & Happy Holiday's to you all! Thank you for all your help hope you enjoy the day with family & friends = )? http://answers.ankylosing.org/60893/just-wanted-to-say-merry-christmas-happy-holidays-to-you-all-thank-you-for-all-your-help-hope-you/ Sun, 26 Dec 2010 01:56:13 +0000 Asked by Heather Winkler 3 years ago http://answers.ankylosing.org/60893/just-wanted-to-say-merry-christmas-happy-holidays-to-you-all-thank-you-for-all-your-help-hope-you/ Question: I was recently questioned multiple times about my AS diagnosis. The different doctors questioned when, by who and why. I am HLA-B27+, another gene signifying autoimmune and more degeneration than I should at 38. Should I be questioning my diagnosis? http://answers.ankylosing.org/59904/i-was-recently-questioned-multiple-times-about-my-as-diagnosis-the-different-doctors-questioned-when/ Mon, 13 Dec 2010 12:40:09 +0000 Asked by Brandy Silk 3 years ago http://answers.ankylosing.org/59904/i-was-recently-questioned-multiple-times-about-my-as-diagnosis-the-different-doctors-questioned-when/ Question: Those of you on TNF inhibitors and MTX - do your ordinary colds turn into bigger health issues? My last two colds turned into bronchitis and nearly pneumonia. http://answers.ankylosing.org/58854/those-of-you-on-tnf-inhibitors-and-mtx-do-your-ordinary-colds-turn-into-bigger-health-issues/ Wed, 01 Dec 2010 00:06:19 +0000 Asked by Chapps 3 years ago http://answers.ankylosing.org/58854/those-of-you-on-tnf-inhibitors-and-mtx-do-your-ordinary-colds-turn-into-bigger-health-issues/ Question: Hi folks, I'm 23 and diagnosed with AS this year. I was just hoping to get some feedback from those who have had it for a while now on how it has affected them in both positive and negative ways? Thanks http://answers.ankylosing.org/57434/hi-folks-im-23-and-diagnosed-with-as-this-year-i-was-just-hoping-to-get-some-feedback-from-those-who/ Thu, 11 Nov 2010 11:10:30 +0000 Asked by Mark 3 years ago http://answers.ankylosing.org/57434/hi-folks-im-23-and-diagnosed-with-as-this-year-i-was-just-hoping-to-get-some-feedback-from-those-who/ Question: Anyone here have a lot of leg pain? I realize that AS affects the spine and other joints, but for me it's extremely hard to walk when I first stand up from a sitting position, it's mostly in my upper thighs and my feet. Could it be something else? http://answers.ankylosing.org/57380/anyone-here-have-a-lot-of-leg-pain/ Wed, 10 Nov 2010 18:15:41 +0000 Asked by Terry Eldred 3 years ago http://answers.ankylosing.org/57380/anyone-here-have-a-lot-of-leg-pain/ Question: ALERT! DRUG RECALL ~ Methotrexate: Link > rhnegativeregistry.com/Ankylosing-Spondylitis-AS-Autoimmune- http://answers.ankylosing.org/56794/alert-drug-recall-methotrexate-link-a-hrefhttprhnegativeregistrycomankylosing-spondylitis-as-autoimmune-disease-hlahtm/ Sat, 06 Nov 2010 00:40:25 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/56794/alert-drug-recall-methotrexate-link-a-hrefhttprhnegativeregistrycomankylosing-spondylitis-as-autoimmune-disease-hlahtm/ Question: OK, this question is for anybody who is on disability because of AS... What do you tell somebody when they ask "what you do"? It feels like I spend every hour focused on AS... I try to help others when I can but I don't know how to define myself... http://answers.ankylosing.org/54589/ok-this-question-is-for-anybody-who-is-on-disability-because-of-as-what-do-you-tell-somebody-when/ Mon, 25 Oct 2010 18:11:01 +0000 Asked by Melissa Temple 3 years ago http://answers.ankylosing.org/54589/ok-this-question-is-for-anybody-who-is-on-disability-because-of-as-what-do-you-tell-somebody-when/ Question: Shoulder Pain - Think it was my bursitis? Last week I lost all control, use & strength in my right shoulder above a 45 degree angle & it felt bruised. Then within 36 hrs it just disappeared. Anyone else? Was like when wrist does carpal tunnel thing. http://answers.ankylosing.org/52561/shoulder-pain-think-it-was-my-bursitis-last-week-i-lost-all-control-use-strength-in-my-right-shoulder/ Fri, 15 Oct 2010 20:59:08 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/52561/shoulder-pain-think-it-was-my-bursitis-last-week-i-lost-all-control-use-strength-in-my-right-shoulder/ Question: Be aware that according to a news article floating around the web, AS, and all forms of arthritis, is caused by obesity. Please comment and complain wherever you find this article? http://answers.ankylosing.org/50845/be-aware-that-according-to-a-news-article-floating-around-the-web-as-and-all-forms-of-arthritis-is/ Fri, 08 Oct 2010 01:43:51 +0000 Asked by Stephen DeGraff 3 years ago http://answers.ankylosing.org/50845/be-aware-that-according-to-a-news-article-floating-around-the-web-as-and-all-forms-of-arthritis-is/ Question: Has anyone had weight loss surgery while on Humira injections? http://answers.ankylosing.org/50242/has-anyone-had-weight-loss-surgery-while-on-humira-injections/ Tue, 05 Oct 2010 20:49:49 +0000 Asked by Terry Eldred 3 years ago http://answers.ankylosing.org/50242/has-anyone-had-weight-loss-surgery-while-on-humira-injections/ Question: Ok let's play a game......Everyone here on this site write to Dr.Oz and let's see if we can win a spot on the show to tell the world about our condition. We all know even some dr don't know what AS is. www.doctoroz.com/plugger?tid=637 http://answers.ankylosing.org/49622/ok-lets-play-a-gameeveryone-here-on-this-site-write-to-droz-and-lets-see-if-we-can-win-a-spot/ Sun, 03 Oct 2010 19:28:54 +0000 Asked by Steffie Jo 3 years ago http://answers.ankylosing.org/49622/ok-lets-play-a-gameeveryone-here-on-this-site-write-to-droz-and-lets-see-if-we-can-win-a-spot/ Question: AS Poll: Anyone have Staph B? Would be tested during pregnancy/delivery? http://answers.ankylosing.org/48207/as-poll-anyone-have-staph-b/ Tue, 28 Sep 2010 20:43:12 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/48207/as-poll-anyone-have-staph-b/ Question: AS Poll: Do any of you have Vitamin D, B3, B6, B12 or Vitamin K Toxicity, Deficiency, Absorbtion or Use Issues? Please explain symptoms, test, results, etc; whatever you feel comfortable sharing. http://answers.ankylosing.org/48206/as-poll-do-any-of-you-have-vitamin-d-b3-b6-b12-or-vitamin-k-toxicity-deficiency-absorbtion-or-use/ Tue, 28 Sep 2010 20:41:43 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/48206/as-poll-do-any-of-you-have-vitamin-d-b3-b6-b12-or-vitamin-k-toxicity-deficiency-absorbtion-or-use/ Question: AS Poll: Do any of you have Zinc, Copper or Iron issues, either Toxicity, Deficiency, Absorbtion or Use? Please explain symptoms, test, results, etc; whatever you feel comfortable sharing. http://answers.ankylosing.org/48205/as-poll-do-any-of-you-have-zinc-copper-or-iron-issues-either-toxicity-deficiency-absorbtion-or-us/ Tue, 28 Sep 2010 20:40:19 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/48205/as-poll-do-any-of-you-have-zinc-copper-or-iron-issues-either-toxicity-deficiency-absorbtion-or-us/ Question: AS Poll: Any Cherokee Indians in the house? :) http://answers.ankylosing.org/48074/as-poll-any-cherokee-indians-in-the-house/ Tue, 28 Sep 2010 09:10:33 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/48074/as-poll-any-cherokee-indians-in-the-house/ Question: AS Poll: Are you stiff with limited mobility OR snap crackle pop...rice krispies with loose joints? http://answers.ankylosing.org/47676/as-poll-are-you-stiff-with-limited-mobility-or-snap-crackle-a-hrefpoprice-targetblank-relnofollowpopricea/ Sat, 25 Sep 2010 22:56:47 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/47676/as-poll-are-you-stiff-with-limited-mobility-or-snap-crackle-a-hrefpoprice-targetblank-relnofollowpopricea/ Question: People who work out/have an exercise regime.... How do you do it? How do you motivate yourself? I need help... http://answers.ankylosing.org/47663/people-who-work-outhave-an-exercise-regime-how-do-you-do-it-how-do-you-motivate-yourself/ Sat, 25 Sep 2010 22:19:53 +0000 Asked by Amy Picklo 3 years ago http://answers.ankylosing.org/47663/people-who-work-outhave-an-exercise-regime-how-do-you-do-it-how-do-you-motivate-yourself/ Question: AS Poll: How many of you are Irish? http://answers.ankylosing.org/47630/as-poll-how-many-of-you-are-irish/ Sat, 25 Sep 2010 06:12:32 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/47630/as-poll-how-many-of-you-are-irish/ Question: AS POLL: How many of you are either Norweigian or Scandinavian? http://answers.ankylosing.org/47583/as-poll-how-many-of-you-are-either-norweigian-or-scandinavian/ Fri, 24 Sep 2010 21:56:46 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/47583/as-poll-how-many-of-you-are-either-norweigian-or-scandinavian/ Question: This may sound ignorant, but is degenerative disc disease automatically AS? Or is AS in addition to DDD? In discussing MRI results today, I asked what's causing the mess/degeneration throughout entire spine and was told that it is the AS. Is it? http://answers.ankylosing.org/47502/this-may-sound-ignorant-but-is-degenerative-disc-disease-automatically-as-or-is-as-in-addition-to-dd/ Fri, 24 Sep 2010 10:59:16 +0000 Asked by Cheryl K. Moralez 3 years ago http://answers.ankylosing.org/47502/this-may-sound-ignorant-but-is-degenerative-disc-disease-automatically-as-or-is-as-in-addition-to-dd/ Question: AS Poll: Have any of you learned in your family histories; that you come from a "Von" family name like my great grandmother - a Von Karofski? http://answers.ankylosing.org/47497/as-poll-have-any-of-you-learned-in-your-family-histories-that-you-come-from-a-von-family-name-like/ Fri, 24 Sep 2010 10:03:27 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/47497/as-poll-have-any-of-you-learned-in-your-family-histories-that-you-come-from-a-von-family-name-like/ Question: AS POLL: If you take a pain pill, like Percocet...how does your body react? Are you sleepy or feeling like a tweeker? http://answers.ankylosing.org/47493/as-poll-if-you-take-a-pain-pill-like-a-hrefpercocethow-targetblank-relnofollowpercocethowa/ Fri, 24 Sep 2010 09:39:27 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/47493/as-poll-if-you-take-a-pain-pill-like-a-hrefpercocethow-targetblank-relnofollowpercocethowa/ Question: AS Poll #2: How many of you are RH-Negative or know you have Rh-Negative Immediate Family? (i.e. Kids, Sibs, Parents, Grand or Great Grandparents, Aunts, Uncles, Etc... http://answers.ankylosing.org/47492/as-poll-2-how-many-of-you-are-rh-negative-or-know-you-have-rh-negative-immediate-family/ Fri, 24 Sep 2010 09:37:47 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/47492/as-poll-2-how-many-of-you-are-rh-negative-or-know-you-have-rh-negative-immediate-family/ Question: AS POLL: How many of you are of German, Russian, Roma Gypsy or Polish Decent? Please answer including which... http://answers.ankylosing.org/47491/as-poll-how-many-of-you-are-of-german-russian-roma-gypsy-or-polish-decent/ Fri, 24 Sep 2010 09:35:42 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/47491/as-poll-how-many-of-you-are-of-german-russian-roma-gypsy-or-polish-decent/ Question: I am 33 & was dx with AS 07/10 but have suffered with severe back pain since 14. Been in serious pain for the last year. I now know they are called flareups. Do they ever go away/is this something that is going to be my new norm. Have lots of ? http://answers.ankylosing.org/47166/i-am-33-was-dx-with-as-0710-but-have-suffered-with-severe-back-pain-since-14-been-in-serious-pain/ Tue, 21 Sep 2010 23:28:20 +0000 Asked by Michele Wilkerson 3 years ago http://answers.ankylosing.org/47166/i-am-33-was-dx-with-as-0710-but-have-suffered-with-severe-back-pain-since-14-been-in-serious-pain/ Question: Today, I really just want to say THANK YOU! This site has made me feel more "normal" then I have in years. It's nice to share & understand each other. I have found answers to so many questions & can honestly say I feel less alone with my illness now? http://answers.ankylosing.org/47113/today-i-really-just-want-to-say-thank-you-this-site-has-made-me-feel-more-normal-then-i-have-in-years/ Tue, 21 Sep 2010 17:23:48 +0000 Asked by Sara Sheibley 3 years ago http://answers.ankylosing.org/47113/today-i-really-just-want-to-say-thank-you-this-site-has-made-me-feel-more-normal-then-i-have-in-years/ Question: Methotrexate... What are your experiences? I go to rheumie Monday afternoon and am thinking of asking to go off of Enbrel and add Methotrexate to the Plaquinel. Enbrel is giving me severe injection site reactions, edema, and is not working well... http://answers.ankylosing.org/46928/methotrexate-what-are-your-experiences/ Mon, 20 Sep 2010 09:39:50 +0000 Asked by Amy Picklo 3 years ago http://answers.ankylosing.org/46928/methotrexate-what-are-your-experiences/ Question: Anyone else severely myopic since infancy? Anyone else had jaw-surgery due to degeneration of the joint? Anyone elses' joints pop, crackle & snap all the time like mine? I wonder if I am the only one with these manifestations of AS. http://answers.ankylosing.org/46857/anyone-else-severely-myopic-since-infancy-anyone-else-had-jaw-surgery-due-to-degeneration-of-the-joint/ Sun, 19 Sep 2010 19:05:03 +0000 Asked by Jacqui Gleason 3 years ago http://answers.ankylosing.org/46857/anyone-else-severely-myopic-since-infancy-anyone-else-had-jaw-surgery-due-to-degeneration-of-the-joint/ Question: I have had dx of AS sinc 1983, I continue to notice that I drop to many things I am holding. Dropping is getting worse as I get older. My hands just don't want to hold onto anything. Then I gotta think about picking up what I dropped. I hate this? http://answers.ankylosing.org/46853/i-have-had-dx-of-as-sinc-1983-i-continue-to-notice-that-i-drop-to-many-things-i-am-holding-dropping/ Sun, 19 Sep 2010 16:05:45 +0000 Asked by Denise Brown 3 years ago http://answers.ankylosing.org/46853/i-have-had-dx-of-as-sinc-1983-i-continue-to-notice-that-i-drop-to-many-things-i-am-holding-dropping/ Question: Had appointment with Rheumy today and feel like the book has been thrown at me. I am 39 and just found out that I have along with AS and UC, Fibromyalgia and Celiac & all of a sudden feel so overwhelmed.How do you guys handle this smothering effect? http://answers.ankylosing.org/45784/had-appointment-with-rheumy-today-and-feel-like-the-book-has-been-thrown-at-me-i-am-39-and-just-found/ Fri, 10 Sep 2010 10:10:43 +0000 Asked by Christee Damron 3 years ago http://answers.ankylosing.org/45784/had-appointment-with-rheumy-today-and-feel-like-the-book-has-been-thrown-at-me-i-am-39-and-just-found/ Question: Keep your Medical Record on you! New Ankylosing Spondylitis Jewelry - 4GB USB Electronic Personal Health Record on a Flash Drive. www.rhnegativeregistry.com http://answers.ankylosing.org/44973/keep-your-medical-record-on-you-new-ankylosing-spondylitis-jewelry-4gb-usb-electronic-personal-health/ Sat, 04 Sep 2010 11:56:41 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/44973/keep-your-medical-record-on-you-new-ankylosing-spondylitis-jewelry-4gb-usb-electronic-personal-health/ Question: I have As and PA and I also have costo, fibro, seasonal asthma, hayfever and suffer with bad anxiety. I am suffering with continous infections. When I go to sleep and just doze I wake sunddenly gasping for breath and shaken, does this happen to you? http://answers.ankylosing.org/40761/i-have-as-and-pa-and-i-also-have-costo-fibro-seasonal-asthma-hayfever-and-suffer-with-bad-anxiety/ Thu, 05 Aug 2010 07:02:00 +0000 Asked by Jovigirl Claire Wood 3 years ago http://answers.ankylosing.org/40761/i-have-as-and-pa-and-i-also-have-costo-fibro-seasonal-asthma-hayfever-and-suffer-with-bad-anxiety/ Question: How many people have AS in there ribs with out having the classic bamboo spine? http://answers.ankylosing.org/40606/how-many-people-have-as-in-there-ribs-with-out-having-the-classic-bamboo-spine/ Tue, 03 Aug 2010 00:56:28 +0000 Asked by Peggy Averso 3 years ago http://answers.ankylosing.org/40606/how-many-people-have-as-in-there-ribs-with-out-having-the-classic-bamboo-spine/ Question: Does any one notice that the Barometric pressure makes you feel worse when it droppes below thirty? http://answers.ankylosing.org/40605/does-any-one-notice-that-the-barometric-pressure-makes-you-feel-worse-when-it-droppes-below-thirty/ Tue, 03 Aug 2010 00:54:46 +0000 Asked by Peggy Averso 3 years ago http://answers.ankylosing.org/40605/does-any-one-notice-that-the-barometric-pressure-makes-you-feel-worse-when-it-droppes-below-thirty/ Question: I have PA and AS and I am hlab27 as well. My condition is sadly inherited from my granddad. I also have fibromyalgia and costo. I also have bad allergies too. Does anyone else get all these problems? I feel very alone. http://answers.ankylosing.org/40561/i-have-pa-and-as-and-i-am-hlab27-as-well-my-condition-is-sadly-inherited-from-my-granddad-i-also-have/ Mon, 02 Aug 2010 16:23:59 +0000 Asked by Jovigirl Claire Wood 3 years ago http://answers.ankylosing.org/40561/i-have-pa-and-as-and-i-am-hlab27-as-well-my-condition-is-sadly-inherited-from-my-granddad-i-also-have/ Question: If you have not participated in my online survey and would like to, please visit www.RhNegativeRegistry.com and click on SURVEY. Thanks? http://answers.ankylosing.org/40359/if-you-have-not-participated-in-my-online-survey-and-would-like-to-please-visit-wwwrhnegativeregistrycom/ Sat, 31 Jul 2010 12:55:29 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/40359/if-you-have-not-participated-in-my-online-survey-and-would-like-to-please-visit-wwwrhnegativeregistrycom/ Question: Science Project! Everyone on board? Next time you visit your Dr.s, ask or demand if denied, that they check your ZINC levels & COPPER levels. What I'm looking for is Zinc Extreme or Deficiency & Extreme Copper Levels. Try to help! Reply w/ results http://answers.ankylosing.org/38954/science-project-everyone-on-board/ Mon, 26 Jul 2010 10:50:53 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/38954/science-project-everyone-on-board/ Question: What works best for muscle spasm? My back has been in spasm all day, even taking the slow cooker out of the cupboard was excesively painful... What do you do? I have some Flexeril that I had for a neck injury 6 months ago... Work? http://answers.ankylosing.org/25756/what-works-best-for-muscle-spasm-my-back-has-been-in-spasm-all-day-even-taking-the-slow-cooker-out/ Thu, 22 Jul 2010 00:10:29 +0000 Asked by Lindsay Cairns 3 years ago http://answers.ankylosing.org/25756/what-works-best-for-muscle-spasm-my-back-has-been-in-spasm-all-day-even-taking-the-slow-cooker-out/ Question: I found out last week that in addition to the fusing of my left SI joint, I have degenerative disc disease, L4 is bulging, & L5-S1 is herniated and putting pressure on the sciatic nerve as well. Has anyone else had something similar? http://answers.ankylosing.org/25730/i-found-out-last-week-that-in-addition-to-the-fusing-of-my-left-si-joint-i-have-degenerative-disc-disease/ Wed, 21 Jul 2010 19:10:34 +0000 Asked by Christine Farr Fritts 3 years ago http://answers.ankylosing.org/25730/i-found-out-last-week-that-in-addition-to-the-fusing-of-my-left-si-joint-i-have-degenerative-disc-disease/ Question: An FYI - Glenn Beck said he may be going blind. Knowing the personality of an Rh- person; I took a shot in the dark. Googled his rare disease macular dystrophy & HLA-b27, there's a connection. Look it up? http://answers.ankylosing.org/25219/an-fyi-glenn-beck-said-he-may-be-going-blind-knowing-the-personality-of-an-rh-person-i-took-a-shot/ Tue, 20 Jul 2010 05:20:54 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/25219/an-fyi-glenn-beck-said-he-may-be-going-blind-knowing-the-personality-of-an-rh-person-i-took-a-shot/ Question: This question has probably been asked before, but which position do you feel most comfortable sleeping in? For me it has been my side, until this week... Now I can only sleep on my back! http://answers.ankylosing.org/25207/this-question-has-probably-been-asked-before-but-which-position-do-you-feel-most-comfortable-sleeping/ Tue, 20 Jul 2010 00:20:36 +0000 Asked by Lindsay Cairns 3 years ago http://answers.ankylosing.org/25207/this-question-has-probably-been-asked-before-but-which-position-do-you-feel-most-comfortable-sleeping/ Question: So frustrated. First pain doc said AS. MRI- both SI joints completly fused now. Rheumy said Fibro. 2nd pain Doc said she goes w/ Rheumy (now fired), but I seen lab papers, "sacroiliitis". Ordered xrays she said mild arthritis si joints, mod in hip? http://answers.ankylosing.org/25201/so-frustrated-first-pain-doc-said-as-mri-both-si-joints-completly-fused-now-rheumy-said-fibro-2nd/ Mon, 19 Jul 2010 23:04:16 +0000 Asked by Carla 3 years ago http://answers.ankylosing.org/25201/so-frustrated-first-pain-doc-said-as-mri-both-si-joints-completly-fused-now-rheumy-said-fibro-2nd/ Question: Hello, i found out that i have AS 2 months ago and i want to ask if it`s okay to go to gym...to work out, and if AS can make you to feel a bit tired or i am just lazy ? :D http://answers.ankylosing.org/25047/hello-i-found-out-that-i-have-as-2-months-ago-and-i-want-to-ask-if-its-okay-to-go-to-gymto-work/ Sat, 17 Jul 2010 22:11:36 +0000 Asked by Robert Cristian 3 years ago http://answers.ankylosing.org/25047/hello-i-found-out-that-i-have-as-2-months-ago-and-i-want-to-ask-if-its-okay-to-go-to-gymto-work/ Question: Does anyone else have trouble with Raynauds/Livedo Reticularis during the summer? My skin stays a lacy purplish but, my hands are acting up - achy, white & red splotches, & numb spots - like my entire nail bed feeling numb. http://answers.ankylosing.org/24619/does-anyone-else-have-trouble-with-raynaudslivedo-reticularis-during-the-summer/ Tue, 13 Jul 2010 22:29:38 +0000 Asked by Christine Farr Fritts 3 years ago http://answers.ankylosing.org/24619/does-anyone-else-have-trouble-with-raynaudslivedo-reticularis-during-the-summer/ Question: I have sever fatigue related to my AS, and the Enbrel, does anyone have this same issue and what do you do to get some relief? My fatigue get to the point that I can not function, total exhaustion is the only way i can even begin to describe it. http://answers.ankylosing.org/24557/i-have-sever-fatigue-related-to-my-as-and-the-enbrel-does-anyone-have-this-same-issue-and-what-do-you/ Tue, 13 Jul 2010 04:43:21 +0000 Asked by Amy Arndt 3 years ago http://answers.ankylosing.org/24557/i-have-sever-fatigue-related-to-my-as-and-the-enbrel-does-anyone-have-this-same-issue-and-what-do-you/ Question: With the Accutane questions popping up, I was just wondering if anyone believes their disease was caused or triggered by something specific? http://answers.ankylosing.org/24092/with-the-accutane-questions-popping-up-i-was-just-wondering-if-anyone-believes-their-disease-was-caused/ Fri, 09 Jul 2010 02:12:59 +0000 Asked by Evelyn J K 3 years ago http://answers.ankylosing.org/24092/with-the-accutane-questions-popping-up-i-was-just-wondering-if-anyone-believes-their-disease-was-caused/ Question: Have any of you been told by a doctor that your internal organs are misplaced or in an odd location? http://answers.ankylosing.org/23908/have-any-of-you-been-told-by-a-doctor-that-your-internal-organs-are-misplaced-or-in-an-odd-location/ Wed, 07 Jul 2010 19:12:33 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/23908/have-any-of-you-been-told-by-a-doctor-that-your-internal-organs-are-misplaced-or-in-an-odd-location/ Question: Did you know there are now 3 genetic markers associated with Ankylosing Spondylitis? http://answers.ankylosing.org/23907/did-you-know-there-are-now-3-genetic-markers-associated-with-ankylosing-spondylitis/ Wed, 07 Jul 2010 19:10:59 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/23907/did-you-know-there-are-now-3-genetic-markers-associated-with-ankylosing-spondylitis/ Question: So how do you define a flare? I am so very new to this...I woke up this morning incredibly stiff, stiffer than usual... Now here I am about 10 hours later.... Everyting hurts.. My neck, shoulders, between my shoulder blades, even my ribs hurt! http://answers.ankylosing.org/23761/so-how-do-you-define-a-flare/ Wed, 07 Jul 2010 00:23:35 +0000 Asked by Lindsay Cairns 3 years ago http://answers.ankylosing.org/23761/so-how-do-you-define-a-flare/ Question: How many of you who are HLA-B27 positive are also either Rh-Negative in Blood Type OR have siblings, parents, etc. Who are Rh-Negative? Did you know they say only 8% or less of population has HLA-B27? http://answers.ankylosing.org/23390/how-many-of-you-who-are-hla-b27-positive-are-also-either-rh-negative-in-blood-type-or-have-siblings/ Mon, 05 Jul 2010 15:15:43 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/23390/how-many-of-you-who-are-hla-b27-positive-are-also-either-rh-negative-in-blood-type-or-have-siblings/ Question: Anyone have endometriosis too? http://answers.ankylosing.org/23265/anyone-have-endometriosis-too/ Sun, 04 Jul 2010 11:07:06 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/23265/anyone-have-endometriosis-too/ Question: If you are on Facebook...Friend Me! www.facebook.com http://answers.ankylosing.org/23214/if-you-are-on-facebookfriend-me-a-hrefhttpwwwfacebookcomrhnegativeregistry/ Sun, 04 Jul 2010 01:44:01 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/23214/if-you-are-on-facebookfriend-me-a-hrefhttpwwwfacebookcomrhnegativeregistry/ Question: Any of you loose your voice often or easily? http://answers.ankylosing.org/23171/any-of-you-loose-your-voice-often-or-easily/ Sat, 03 Jul 2010 12:51:05 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/23171/any-of-you-loose-your-voice-often-or-easily/ Question: New HLA-B27 Findings - Leukemia & Lymphoma HLA-B27 Carries run a higher risk of developing Acute Leukemia & Lymphoma? http://answers.ankylosing.org/23170/new-hla-b27-findings-leukemia-lymphoma-hla-b27-carries-run-a-higher-risk-of-developing-acute-leukemia/ Sat, 03 Jul 2010 12:50:31 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/23170/new-hla-b27-findings-leukemia-lymphoma-hla-b27-carries-run-a-higher-risk-of-developing-acute-leukemia/ Question: Anyone have pectus excavatum deformity - A congenital deformity of the anterior wall of the chest? http://answers.ankylosing.org/23167/anyone-have-pectus-excavatum-deformity-a-congenital-deformity-of-the-anterior-wall-of-the-chest/ Sat, 03 Jul 2010 11:48:39 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/23167/anyone-have-pectus-excavatum-deformity-a-congenital-deformity-of-the-anterior-wall-of-the-chest/ Question: List your course of treatment. Include your medications, treatments, etc. It may help someone who is not improving or feeling relief on their current treatment bring up something new to their doctors? http://answers.ankylosing.org/23166/list-your-course-of-treatment-include-your-medications-treatments-etc-it-may-help-someone-who-is/ Sat, 03 Jul 2010 11:46:36 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/23166/list-your-course-of-treatment-include-your-medications-treatments-etc-it-may-help-someone-who-is/ Question: What kind of experiences have u guys had with neurontin? I was on it for a while but the doc said I could start weening off it because, although it works for pain it makes me feel icky- plus it makes me swell and feel bloated- any opinions? http://answers.ankylosing.org/22751/what-kind-of-experiences-have-u-guys-had-with-neurontin/ Wed, 30 Jun 2010 20:12:54 +0000 Asked by Janet C 3 years ago http://answers.ankylosing.org/22751/what-kind-of-experiences-have-u-guys-had-with-neurontin/ Question: Is sleeping 12 to 16 hours a day with no energy whatsover , desire to get out of bed or eat -systematice of BVVP? 2 or 3 times a year---? Thank you ken Cummings http://answers.ankylosing.org/22219/is-sleeping-12-to-16-hours-a-day-with-no-energy-whatsover-desire-to-get-out-of-bed-or-eat-systematice/ Sat, 26 Jun 2010 20:42:38 +0000 Asked by Ken Cummings 3 years ago http://answers.ankylosing.org/22219/is-sleeping-12-to-16-hours-a-day-with-no-energy-whatsover-desire-to-get-out-of-bed-or-eat-systematice/ Question: I think all of us have had issues with difficult doctors at least once. What do you do when you feel a doctor is being dismissive or even rude about your diagnoses or pain? http://answers.ankylosing.org/20970/i-think-all-of-us-have-had-issues-with-difficult-doctors-at-least-once-what-do-you-do-when-you-feel/ Fri, 25 Jun 2010 20:30:31 +0000 Asked by Christine Farr Fritts 3 years ago http://answers.ankylosing.org/20970/i-think-all-of-us-have-had-issues-with-difficult-doctors-at-least-once-what-do-you-do-when-you-feel/ Question: Has anyone else experienced rapid weight gain? I know I am less active, but I still eat healthy and find myself getting rounder and rounder- what is the average weight gain? How do you burn fat when limited in exercise? http://answers.ankylosing.org/20811/has-anyone-else-experienced-rapid-weight-gain-i-know-i-am-less-active-but-i-still-eat-healthy-and-find/ Thu, 24 Jun 2010 22:16:19 +0000 Asked by Janet C 3 years ago http://answers.ankylosing.org/20811/has-anyone-else-experienced-rapid-weight-gain-i-know-i-am-less-active-but-i-still-eat-healthy-and-find/ Question: Was just curious, since there have been several posts on dietary issues... Has anyone else successfully tried eating healthier, such as the 6 times a day to help balance blood sugars etc., and also gotten off meds? How do you feel? http://answers.ankylosing.org/20544/was-just-curious-since-there-have-been-several-posts-on-dietary-issues-has-anyone-else-successfully/ Tue, 22 Jun 2010 19:50:55 +0000 Asked by Michelle Starks 3 years ago http://answers.ankylosing.org/20544/was-just-curious-since-there-have-been-several-posts-on-dietary-issues-has-anyone-else-successfully/ Question: I recently got a pair of the shape-up shoes- they are supposed to put less stress on joints/ back plus give leg muscles a better work out- so far so good- although my hips still hurt walking- anyone have opinions on orthopedic shoes/special gear? http://answers.ankylosing.org/20468/i-recently-got-a-pair-of-the-shape-up-shoes-they-are-supposed-to-put-less-stress-on-joints-back-plus/ Tue, 22 Jun 2010 07:39:04 +0000 Asked by Janet C 3 years ago http://answers.ankylosing.org/20468/i-recently-got-a-pair-of-the-shape-up-shoes-they-are-supposed-to-put-less-stress-on-joints-back-plus/ Question: I know it can be different for everyone but I am trying to set goals for myself and am curious about how much time does everyone spend a day exercising? Right now I try for at least 20 mins a day- what is too much or too little? http://answers.ankylosing.org/20437/i-know-it-can-be-different-for-everyone-but-i-am-trying-to-set-goals-for-myself-and-am-curious-about/ Tue, 22 Jun 2010 02:40:57 +0000 Asked by Janet C 3 years ago http://answers.ankylosing.org/20437/i-know-it-can-be-different-for-everyone-but-i-am-trying-to-set-goals-for-myself-and-am-curious-about/ Question: How many of you are HLA-B27 Positive? How many of you are Rh-Negative in Blood Type? If your not RH-Neg, did you have a parent, grandparent or child who is? Researching connection, bookmark www.RhNegativeRegistry.com for updates - ! http://answers.ankylosing.org/20267/how-many-of-you-are-hla-b27-positive-how-many-of-you-are-rh-negative-in-blood-type-if-your-not-rh-neg/ Mon, 21 Jun 2010 04:07:04 +0000 Asked by Jessica Farrell 3 years ago http://answers.ankylosing.org/20267/how-many-of-you-are-hla-b27-positive-how-many-of-you-are-rh-negative-in-blood-type-if-your-not-rh-neg/ Question: I've heard if someone is DX with AS. Then it's highly likely another family member also has the condition. Though, wonder why no-one in my family does? Closet to my situation is Sister with MS & Mother with Fiber, Scolio & Chronic Fatigue. http://answers.ankylosing.org/20266/ive-heard-if-someone-is-dx-with-as-then-its-highly-likely-another-family-member-also-has-the-condition/ Mon, 21 Jun 2010 03:40:29 +0000 Asked by Tom Ladner 3 years ago http://answers.ankylosing.org/20266/ive-heard-if-someone-is-dx-with-as-then-its-highly-likely-another-family-member-also-has-the-condition/ Question: Does anyone have experience/feedback on alternative healing or natural medicine for AS and pain management? http://answers.ankylosing.org/20183/does-anyone-have-experiencefeedback-on-alternative-healing-or-natural-medicine-for-as-and-pain-management/ Sun, 20 Jun 2010 05:28:28 +0000 Asked by Janet C 3 years ago http://answers.ankylosing.org/20183/does-anyone-have-experiencefeedback-on-alternative-healing-or-natural-medicine-for-as-and-pain-management/ Question: How about ankle edema with injectibles? I read that edema, in general, is a side effect. I do take lasix to combat it but I have large lumps on both ankles - looks like the joint but isn't. I've been tested for liver and kidney problems - neg. http://answers.ankylosing.org/20173/how-about-ankle-edema-with-injectibles/ Sun, 20 Jun 2010 00:53:52 +0000 Asked by Amy Picklo 3 years ago http://answers.ankylosing.org/20173/how-about-ankle-edema-with-injectibles/ Question: Both of my SI joints have now Fused. My rheumy just told me that I have Fibromyalgia NOT AS. Has anyone else heard that Fibro causes SI joints to fuse? http://answers.ankylosing.org/20166/both-of-my-si-joints-have-now-fused-my-rheumy-just-told-me-that-i-have-fibromyalgia-not-as-has-anyone/ Sat, 19 Jun 2010 22:27:24 +0000 Asked by Carla 3 years ago http://answers.ankylosing.org/20166/both-of-my-si-joints-have-now-fused-my-rheumy-just-told-me-that-i-have-fibromyalgia-not-as-has-anyone/ Question: Finger joints - anyone else have a large problem? My right hand is worse. I can hardly bend my right ring finger. Does anyone else have this problem or any recommendations? Thanks! http://answers.ankylosing.org/20163/finger-joints-anyone-else-have-a-large-problem-my-right-hand-is-worse-i-can-hardly-bend-my-right/ Sat, 19 Jun 2010 19:42:31 +0000 Asked by Amy Picklo 3 years ago http://answers.ankylosing.org/20163/finger-joints-anyone-else-have-a-large-problem-my-right-hand-is-worse-i-can-hardly-bend-my-right/ Question: Has anyone diagnosed with AS had any heart complications as a result of this disease? Thank you and wishing you wellness! http://answers.ankylosing.org/20151/has-anyone-diagnosed-with-as-had-any-heart-complications-as-a-result-of-this-disease/ Sat, 19 Jun 2010 10:46:32 +0000 Asked by Jamie F 3 years ago http://answers.ankylosing.org/20151/has-anyone-diagnosed-with-as-had-any-heart-complications-as-a-result-of-this-disease/ Question: Anyone have tips on dealing with constant fatigue and exhaustion? Are there medications that can help? http://answers.ankylosing.org/20129/anyone-have-tips-on-dealing-with-constant-fatigue-and-exhaustion/ Sat, 19 Jun 2010 01:12:33 +0000 Asked by Janet C 3 years ago http://answers.ankylosing.org/20129/anyone-have-tips-on-dealing-with-constant-fatigue-and-exhaustion/ Question: Hi! Just curious if anyone has tried a special diet to help their AS- I heard that a glutten free diet can help symptoms- would like some feedback before I give up some of my fav foods:)? http://answers.ankylosing.org/19873/hi-just-curious-if-anyone-has-tried-a-special-diet-to-help-their-as-i-heard-that-a-glutten-free-diet/ Fri, 18 Jun 2010 07:41:03 +0000 Asked by Gwen 3 years ago http://answers.ankylosing.org/19873/hi-just-curious-if-anyone-has-tried-a-special-diet-to-help-their-as-i-heard-that-a-glutten-free-diet/ Question: Does anyone have information on Social Security benefits or disability? Are those with AS eligible? I still work but have reduced hours- how long do you have to be diagnosed, how bad etc? What about financial aide for medical bills? Any tips? http://answers.ankylosing.org/19588/does-anyone-have-information-on-social-security-benefits-or-disability-are-those-with-as-eligible-i/ Tue, 15 Jun 2010 08:01:43 +0000 Asked by Janet C 3 years ago http://answers.ankylosing.org/19588/does-anyone-have-information-on-social-security-benefits-or-disability-are-those-with-as-eligible-i/ Question: Does anyone else have sensitivity to temperature? I live in FL and seem to be having a much harder time with the heat and humidity- is this normal? What should I do? http://answers.ankylosing.org/19587/does-anyone-else-have-sensitivity-to-temperature-i-live-in-fl-and-seem-to-be-having-a-much-harder-time/ Tue, 15 Jun 2010 07:47:14 +0000 Asked by Janet C 3 years ago http://answers.ankylosing.org/19587/does-anyone-else-have-sensitivity-to-temperature-i-live-in-fl-and-seem-to-be-having-a-much-harder-time/ Question: Is it okay to get a deep tissue back massage if you have AS? Can massage or acupuncture help? http://answers.ankylosing.org/19411/is-it-okay-to-get-a-deep-tissue-back-massage-if-you-have-as/ Sun, 13 Jun 2010 21:38:30 +0000 Asked by Janet C 3 years ago http://answers.ankylosing.org/19411/is-it-okay-to-get-a-deep-tissue-back-massage-if-you-have-as/ Question: I'm worried about reproduction and AS...has anyone, well females I guess, had any issues? http://answers.ankylosing.org/19377/im-worried-about-reproduction-and-ashas-anyone-well-females-i-guess-had-any-issues/ Sun, 13 Jun 2010 08:51:37 +0000 Asked by Becki 3 years ago http://answers.ankylosing.org/19377/im-worried-about-reproduction-and-ashas-anyone-well-females-i-guess-had-any-issues/ Question: What other diseases accompany AS? My doctor says that along with the spondylitis- I have fibromylagia, neuropathy and possibly edema- is this a result of the AS? http://answers.ankylosing.org/19374/what-other-diseases-accompany-as/ Sun, 13 Jun 2010 08:41:14 +0000 Asked by Janet C 3 years ago http://answers.ankylosing.org/19374/what-other-diseases-accompany-as/