Creative Commons Attribution-ShareAlike 2.0 UK: England & Wales Tue, 07 Feb 2012 00:26:57 +0000 http://answers.ankylosing.org/ Ankylosing Spondylitis webmaster@answers.ankylosing.org webmaster@answers.ankylosing.org en-us I find a firm deep tissue massage very relaxing and it seems to help my neck and lower back pain. Unfortunately massage therapists aren't covered by my health insurance provider and $100 a pop adds up. I've heard that chiropractors use massage and heat as part of their treatment. I'm wondering if they'll do this without trying to "adjust" my fused areas? http://answers.ankylosing.org/117511/i-find-a-firm-deep-tissue-massage-very-relaxing-and-it-seems-to-help-my-neck-and-lower-back-pain-unfortunately/ Tue, 07 Feb 2012 00:00:04 +0000 Asked by Haywood Lawrence 27 minutes ago http://answers.ankylosing.org/117511/i-find-a-firm-deep-tissue-massage-very-relaxing-and-it-seems-to-help-my-neck-and-lower-back-pain-unfortunately/ Hi, I have early stages of AS, 2 bulging discs, and after an MRI found "a bright spot" on the Sarum, had 2nd MRI today, get results tomorrow. I asked the Dr. "are you looking for cancer", he said "lets see what the MRI says, have you ever hear of this? I'm very anxious/scared. http://answers.ankylosing.org/117509/hi-i-have-early-stages-of-as-2-bulging-discs-and-after-an-mri-found-a-bright-spot-on-the-sarum/ Mon, 06 Feb 2012 23:05:32 +0000 Asked by Cheryl 1 hour ago http://answers.ankylosing.org/117509/hi-i-have-early-stages-of-as-2-bulging-discs-and-after-an-mri-found-a-bright-spot-on-the-sarum/ Last week my neighbor picked up my son for after-school activitey. She knows I am not working due to my arthritis being disabling to me. I told her it was a very bad day for me painwise and how much I appreciated it! Today I called and offered to pick up her kids and she says "So, your feeling ALL better!?" I replied, "I will never feel ALL better, but today is a good day and I can drive the kids today. What would you say or do in future situations like this? http://answers.ankylosing.org/117504/last-week-my-neighbor-picked-up-my-son-for-after-school-activitey-she-knows-i-am-not-working-due-to/ Mon, 06 Feb 2012 21:17:52 +0000 Asked by Jenni 3 hours ago http://answers.ankylosing.org/117504/last-week-my-neighbor-picked-up-my-son-for-after-school-activitey-she-knows-i-am-not-working-due-to/ Strange question....has anybody found pain relief from soaking in a hot tub? http://answers.ankylosing.org/117493/strange-questionhas-anybody-found-pain-relief-from-soaking-in-a-hot-tub/ Mon, 06 Feb 2012 19:12:40 +0000 Asked by Jason Ferguson 5 hours ago http://answers.ankylosing.org/117493/strange-questionhas-anybody-found-pain-relief-from-soaking-in-a-hot-tub/ Has anyone started Simponi (or any TNF for that matter) and felt that it was helping only to have it suddenly stop helping? I started taking Simponi in October and really felt like it was making a difference up until this week. Now I am suddenly feeling worse than I did before starting. http://answers.ankylosing.org/117489/has-anyone-started-simponi-or-any-tnf-for-that-matter-and-felt-that-it-was-helping-only-to-have-it/ Mon, 06 Feb 2012 18:09:39 +0000 Asked by Suzy 6 hours ago http://answers.ankylosing.org/117489/has-anyone-started-simponi-or-any-tnf-for-that-matter-and-felt-that-it-was-helping-only-to-have-it/ Very Important, Has anyone had any problems with their livers? I am having some issues and going thru testing. Just wondering if this could be caused by AS? And if so what type of problems others have experienced. As most of you all know the literature never mentions the liver being affected but this disease seems to affect alot of things they fail to mention. http://answers.ankylosing.org/117258/very-important-has-anyone-had-any-problems-with-their-livers-i-am-having-some-issues-and-going-thru/ Sun, 05 Feb 2012 09:23:40 +0000 Asked by La Randa Stout Merlette 2 days ago http://answers.ankylosing.org/117258/very-important-has-anyone-had-any-problems-with-their-livers-i-am-having-some-issues-and-going-thru/ I have just been cleared as been in "remission", which is fantastic! My ESR is right down and immune system totally suppressed. 3 weeks off enbrel and I can feel a lot of my trouble spots weakening. I am guessing if it's just pain and not inflammation that it's permanent damage to the joints? I would like to stay off the meds to start a family but obviously don't want a major flair in pregnancy. Any advice would be appreciated, Thanks http://answers.ankylosing.org/117245/i-have-just-been-cleared-as-been-in-remission-which-is-fantastic-my-esr-is-right-down-and-immune/ Sun, 05 Feb 2012 00:05:13 +0000 Asked by Rachael 2 days ago http://answers.ankylosing.org/117245/i-have-just-been-cleared-as-been-in-remission-which-is-fantastic-my-esr-is-right-down-and-immune/ I filed for disability 2 months ago and just received a packet in the mail asking for more information on the type of work I do. I am a real estate appraiser and while I feel comfortable explaining that the inspection process that is a part of my job is too physically taxing, I am concerned about how to describe the issues I have with sitting for prorogued periods of time. Has anyone filed for ssdi benefits based upon issues with sitting and were you awarded benefits as a result? http://answers.ankylosing.org/117241/i-filed-for-disability-2-months-ago-and-just-received-a-packet-in-the-mail-asking-for-more-information/ Sat, 04 Feb 2012 21:23:03 +0000 Asked by Suzy 2 days ago http://answers.ankylosing.org/117241/i-filed-for-disability-2-months-ago-and-just-received-a-packet-in-the-mail-asking-for-more-information/ Where can I order tramadol or ultram online without scipt to send to canada? http://answers.ankylosing.org/117185/where-can-i-order-tramadol-or-ultram-online-without-scipt-to-send-to-canada/ Sat, 04 Feb 2012 00:41:37 +0000 Asked by Annette Pachauer 3 days ago http://answers.ankylosing.org/117185/where-can-i-order-tramadol-or-ultram-online-without-scipt-to-send-to-canada/ Everyone at home is sick with the flu,It is just a matter of time till I catch the bug,Even my boss was a coughing mess.UGH low immunity sucks? http://answers.ankylosing.org/117171/everyone-at-home-is-sick-with-the-fluit-is-just-a-matter-of-time-till-i-catch-the-bugeven-my-boss-was/ Fri, 03 Feb 2012 19:15:23 +0000 Asked by Maria Rodriguez 3 days ago http://answers.ankylosing.org/117171/everyone-at-home-is-sick-with-the-fluit-is-just-a-matter-of-time-till-i-catch-the-bugeven-my-boss-was/ I am wondering who has a cleaning service come to help you with chores around the house? I am looking to get once-a-month cleaning, to help scrub bathroom, floors, etc. I can not do it - If you do, can you write it off on taxes? http://answers.ankylosing.org/117167/i-am-wondering-who-has-a-cleaning-service-come-to-help-you-with-chores-around-the-house/ Fri, 03 Feb 2012 17:28:07 +0000 Asked by Jenni 3 days ago http://answers.ankylosing.org/117167/i-am-wondering-who-has-a-cleaning-service-come-to-help-you-with-chores-around-the-house/ I read a lot of people talk about finding a good Rheumatologist and having to travel many miles to see them. Are good ones so few and far apart and what qualities make a good one? http://answers.ankylosing.org/117156/i-read-a-lot-of-people-talk-about-finding-a-good-rheumatologist-and-having-to-travel-many-miles-to-see/ Fri, 03 Feb 2012 11:47:25 +0000 Asked by Haywood Lawrence 4 days ago http://answers.ankylosing.org/117156/i-read-a-lot-of-people-talk-about-finding-a-good-rheumatologist-and-having-to-travel-many-miles-to-see/ Ladies, have you had problems when going through a monthly cycle and a Remicade treatment at the same time? http://answers.ankylosing.org/117147/ladies-have-you-had-problems-when-going-through-a-monthly-cycle-and-a-remicade-treatment-at-the-same/ Fri, 03 Feb 2012 06:08:55 +0000 Asked by Jamie 4 days ago http://answers.ankylosing.org/117147/ladies-have-you-had-problems-when-going-through-a-monthly-cycle-and-a-remicade-treatment-at-the-same/ Can anyone recommend any good stretches to help your spine, SI joints, and neck feel less stiff? Some basic yoga like childs pose, cat and cow, etc. Feel good to me. Just curious if anyone else has found relief from physical therapy. http://answers.ankylosing.org/117071/can-anyone-recommend-any-good-stretches-to-help-your-spine-si-joints-and-neck-feel-less-stiff/ Wed, 01 Feb 2012 21:48:52 +0000 Asked by Lauren Livesay 5 days ago http://answers.ankylosing.org/117071/can-anyone-recommend-any-good-stretches-to-help-your-spine-si-joints-and-neck-feel-less-stiff/ Aaah! Humira injection gone wrong! I forgot to squeeze the air out of the syringe before I started injecting, realized what was going on, panicked and pulled the syringe out. The air didn't go into my leg, but I wasted an entire dose. Has this forgetting about the air business happened to anyone else, and what did you do? Keep injecting but stop early so you don't waste the dose or inject air? http://answers.ankylosing.org/117062/aaah-humira-injection-gone-wrong-i-forgot-to-squeeze-the-air-out-of-the-syringe-before-i-started-injecting/ Wed, 01 Feb 2012 19:44:23 +0000 Asked by Kathryn 5 days ago http://answers.ankylosing.org/117062/aaah-humira-injection-gone-wrong-i-forgot-to-squeeze-the-air-out-of-the-syringe-before-i-started-injecting/ Does anyone feel like they are not understood?I have a good supporty sytem I am a single MOm of 2 beautiful kids.But on bad days I can't complain even to my mom who works alot and is very tired nore to my diabetic disabled father .I hold upo the fort at home so I keep the best face I can.They think this disease will go away.I am lost... http://answers.ankylosing.org/117058/does-anyone-feel-like-they-are-not-understood/ Wed, 01 Feb 2012 18:28:36 +0000 Asked by Maria Rodriguez 5 days ago http://answers.ankylosing.org/117058/does-anyone-feel-like-they-are-not-understood/ Sorry everyone! I asked about plaquenil without checking for past questions and of course there's plenty of info on it? http://answers.ankylosing.org/116988/sorry-everyone-i-asked-about-plaquenil-without-checking-for-past-questions-and-of-course-theres-plenty/ Wed, 01 Feb 2012 09:33:26 +0000 Asked by Sari 6 days ago http://answers.ankylosing.org/116988/sorry-everyone-i-asked-about-plaquenil-without-checking-for-past-questions-and-of-course-theres-plenty/ I'm just feeling frustrated. I saw my rheumatologist again today. This is the third visit since I switched Docs, and I was happy to report that I have been doing pretty well and my inflammation has calmed down. SO... She wants to start taking me off of the medications, as if I really don't need the medications. I left the office just feeling depressed and exhausted. I just got some of my life back after seven years of hell! Why would she want to change anything at this point? http://answers.ankylosing.org/116985/im-just-feeling-frustrated-i-saw-my-rheumatologist-again-today-this-is-the-third-visit-since-i-switched/ Wed, 01 Feb 2012 09:04:53 +0000 Asked by Amori99 6 days ago http://answers.ankylosing.org/116985/im-just-feeling-frustrated-i-saw-my-rheumatologist-again-today-this-is-the-third-visit-since-i-switched/ Does anyone have experience with AS related mouth ulcers?I have a very large(approx 1 cm)ulcer near my tonsil that developed a seconday infection.I started antibiotics 2 days ago but still waiting for any kind of improvement.It's so painful I can only eat yogurt and soup.I am using magic mouthwash and saltwater gargling. Any suggestions?I am also just getting over my first case of iritis.I wonder if the Humira isn't doing the job anymore. I've been on it for 1 year.Enbrel and mtx before that. http://answers.ankylosing.org/116980/does-anyone-have-experience-with-as-related-mouth-ulcersi-have-a-very-largeapprox-1-cmulcer-near-my/ Wed, 01 Feb 2012 05:18:16 +0000 Asked by Hallie 6 days ago http://answers.ankylosing.org/116980/does-anyone-have-experience-with-as-related-mouth-ulcersi-have-a-very-largeapprox-1-cmulcer-near-my/ Just had my 3rd Remicade infusion a week ago and still no relief! After the 2nd infusion, dr tested inflamation and labwork says my inflamation has decreased a bit. Why am I not feeling any better? http://answers.ankylosing.org/116975/just-had-my-3rd-remicade-infusion-a-week-ago-and-still-no-relief-after-the-2nd-infusion-dr-tested-inflamation/ Wed, 01 Feb 2012 01:39:12 +0000 Asked by Meg 6 days ago http://answers.ankylosing.org/116975/just-had-my-3rd-remicade-infusion-a-week-ago-and-still-no-relief-after-the-2nd-infusion-dr-tested-inflamation/ Is it true that the biologic meds compromise your immune system leaving you more susceptable to infections? http://answers.ankylosing.org/116973/is-it-true-that-the-biologic-meds-compromise-your-immune-system-leaving-you-more-susceptable-to-infections/ Wed, 01 Feb 2012 01:20:58 +0000 Asked by Haywood Lawrence 6 days ago http://answers.ankylosing.org/116973/is-it-true-that-the-biologic-meds-compromise-your-immune-system-leaving-you-more-susceptable-to-infections/ Has anyone with A.S. Tried the food supplement, Reliv? If so, how long, and what were your results? http://answers.ankylosing.org/116969/has-anyone-with-as-tried-the-food-supplement-reliv/ Tue, 31 Jan 2012 23:15:20 +0000 Asked by Malea Hale Scott 6 days ago http://answers.ankylosing.org/116969/has-anyone-with-as-tried-the-food-supplement-reliv/ Hi, I have yet another question, I saw a Nurse Practitioner today. And the word 'steriods' was used and she is testing my ESR and CRP again. If they are high then she wants me to try a low dose for a week to see if improvemnt in my hands occurs. She also said that it is not typical of AS to have pain and swelling in your fingers. They are also testing for rheumatiod factor, what? I am getting increasingly fed up have another 12 weeks to see rhuematologist. http://answers.ankylosing.org/116964/hi-i-have-yet-another-question-i-saw-a-nurse-practitioner-today-and-the-word-steriods-was-used-and/ Tue, 31 Jan 2012 21:00:14 +0000 Asked by Joanne Leyshon 6 days ago http://answers.ankylosing.org/116964/hi-i-have-yet-another-question-i-saw-a-nurse-practitioner-today-and-the-word-steriods-was-used-and/ I read on this site that people have had AS for like 20 yrs, and I'm having problems that they don't have yet just wondering if anyone is falling apart like I am? My, ribs, knees, neck, elbows, the whole spine, hips, chest, are all effected. I do also have cervical osteoarthritis and thoracic but that wouldn't do anything on my hips, chest, elbows would it? http://answers.ankylosing.org/116951/i-read-on-this-site-that-people-have-had-as-for-like-20-yrs-and-im-having-problems-that-they-dont/ Tue, 31 Jan 2012 19:18:01 +0000 Asked by Geraldine 6 days ago http://answers.ankylosing.org/116951/i-read-on-this-site-that-people-have-had-as-for-like-20-yrs-and-im-having-problems-that-they-dont/ Having a bad day,Little sleep .My eyes hurt today I feel like I have been punched in my face repeatedly.I feel faint and alot of fatigue Bad day with A S..What can help me out of this rutt? http://answers.ankylosing.org/116942/having-a-bad-daylittle-sleep-my-eyes-hurt-today-i-feel-like-i-have-been-punched-in-my-face-repeatedlyi/ Tue, 31 Jan 2012 17:33:47 +0000 Asked by Maria Rodriguez 6 days ago http://answers.ankylosing.org/116942/having-a-bad-daylittle-sleep-my-eyes-hurt-today-i-feel-like-i-have-been-punched-in-my-face-repeatedlyi/ Which biologic should I seek out first? I was diagnosed in 1994. I take a large amount of Iburofen that does not help much. I will have insurance for the 1st time in 14 years... Shortly. My last Rheumy is now the leading one in OKC, OK. I just need some info to give him or another Rheumy once I can make an appt. Is there a good place to find this information>? http://answers.ankylosing.org/116940/which-biologic-should-i-seek-out-first/ Tue, 31 Jan 2012 17:25:55 +0000 Asked by Deanna Barton 6 days ago http://answers.ankylosing.org/116940/which-biologic-should-i-seek-out-first/ Is ankylosing a disability? http://answers.ankylosing.org/116933/is-ankylosing-a-disability/ Tue, 31 Jan 2012 15:27:00 +0000 Asked by Cathy 6 days ago http://answers.ankylosing.org/116933/is-ankylosing-a-disability/ Anyone know of a good rheumatologist in the san diego area? Id really like someone who i can actually talk to about options for treatment http://answers.ankylosing.org/116901/anyone-know-of-a-good-rheumatologist-in-the-san-diego-area/ Tue, 31 Jan 2012 07:44:10 +0000 Asked by Kelly 7 days ago http://answers.ankylosing.org/116901/anyone-know-of-a-good-rheumatologist-in-the-san-diego-area/ Hello,I get dizzy when I feel fatigue sometimes I even think I will faintDoes n e one feel this way? http://answers.ankylosing.org/116891/helloi-get-dizzy-when-i-feel-fatigue-sometimes-i-even-think-i-will-faintdoes-n-e-one-feel-this-way/ Tue, 31 Jan 2012 02:29:29 +0000 Asked by Maria Rodriguez 7 days ago http://answers.ankylosing.org/116891/helloi-get-dizzy-when-i-feel-fatigue-sometimes-i-even-think-i-will-faintdoes-n-e-one-feel-this-way/ Just curious if Cervical Spondylytis could be a precursor to AS? I certainly have all of the symtoms of AS but my rheumy says spondylitis is nothing to worry about and the other pain is "just" fibromyalgia. http://answers.ankylosing.org/116889/just-curious-if-cervical-spondylytis-could-be-a-precursor-to-as/ Tue, 31 Jan 2012 01:52:42 +0000 Asked by Berni Hayes 7 days ago http://answers.ankylosing.org/116889/just-curious-if-cervical-spondylytis-could-be-a-precursor-to-as/ I manage aches and pains of AS now with ibuprofen but my main concern is my lack of mobility in my neck from the bones being fused. Would biologic meds help to increase my range of motion? http://answers.ankylosing.org/116887/i-manage-aches-and-pains-of-as-now-with-ibuprofen-but-my-main-concern-is-my-lack-of-mobility-in-my-neck/ Tue, 31 Jan 2012 00:56:48 +0000 Asked by Haywood Lawrence 7 days ago http://answers.ankylosing.org/116887/i-manage-aches-and-pains-of-as-now-with-ibuprofen-but-my-main-concern-is-my-lack-of-mobility-in-my-neck/ HI. Does anyone have tenderness in their muscles upper arm not shoulder but bicep tricep area. It aches if I carry anything or press on the area. My shins are also sore if I press on them but not if I walk. ? Thanks:-) http://answers.ankylosing.org/116883/hi-does-anyone-have-tenderness-in-their-muscles-upper-arm-not-shoulder-but-bicep-tricep-area-it-aches/ Mon, 30 Jan 2012 22:43:42 +0000 Asked by Joanne Leyshon 1 week ago http://answers.ankylosing.org/116883/hi-does-anyone-have-tenderness-in-their-muscles-upper-arm-not-shoulder-but-bicep-tricep-area-it-aches/ Just wanted to find out what you do to lift your spirits on a bad day? http://answers.ankylosing.org/116853/just-wanted-to-find-out-what-you-do-to-lift-your-spirits-on-a-bad-day/ Mon, 30 Jan 2012 16:11:04 +0000 Asked by Tammy Mcnaught 1 week ago http://answers.ankylosing.org/116853/just-wanted-to-find-out-what-you-do-to-lift-your-spirits-on-a-bad-day/ Hello! I've been suffering with back/chest pain that gets much worse as soon as I lay down and unbearable after just a few hours of sleep. I seem to get set in one position and the initial movement is extremly painful. I feel short of breath all the time and coughing or sneezing are agony. I also get loads of muscle twitching and cramps in my legs(Both together) and this has been going on for around 20 years with a small break in the middle. There are also other things like fatigue? http://answers.ankylosing.org/116848/hello-ive-been-suffering-with-backchest-pain-that-gets-much-worse-as-soon-as-i-lay-down-and-unbearable/ Mon, 30 Jan 2012 14:20:38 +0000 Asked by Janet Shadbolt 1 week ago http://answers.ankylosing.org/116848/hello-ive-been-suffering-with-backchest-pain-that-gets-much-worse-as-soon-as-i-lay-down-and-unbearable/ I have one more question for the ladys, sorry a bit random but do your symptoms and fatigue become a lot worse in the days leading upto and during your period? http://answers.ankylosing.org/116847/i-have-one-more-question-for-the-ladys-sorry-a-bit-random-but-do-your-symptoms-and-fatigue-become-a/ Mon, 30 Jan 2012 14:00:39 +0000 Asked by Samantha Hughes 1 week ago http://answers.ankylosing.org/116847/i-have-one-more-question-for-the-ladys-sorry-a-bit-random-but-do-your-symptoms-and-fatigue-become-a/ My symptoms have come and gone for yrs im finaly waiting to see a rhumy, for the 4-5 months sympoms gone mad, im in agony with my neck and lower back and physically drained everydays a struggle. I relate to so many of your statements and no longer feel like im going mad? http://answers.ankylosing.org/116841/my-symptoms-have-come-and-gone-for-yrs-im-finaly-waiting-to-see-a-rhumy-for-the-4-5-months-sympoms-gone/ Mon, 30 Jan 2012 10:48:47 +0000 Asked by Samantha Hughes 1 week ago http://answers.ankylosing.org/116841/my-symptoms-have-come-and-gone-for-yrs-im-finaly-waiting-to-see-a-rhumy-for-the-4-5-months-sympoms-gone/ Hi i was wondering if i could ask you all what you would ask or tell your rhumatologist at the first appointment? Is there anything you have learnt way down the line and wished you had thought or knowen to mention? Im 27 with 2 children under 6, i'm currently signed of work due to "fatigue and back pain" it doest really explain my life atm! Im only sleeping now this last wk due to the amitripline tablets my dr has put me on, i am on 2x500mg co-codamol 4x a day. http://answers.ankylosing.org/116840/hi-i-was-wondering-if-i-could-ask-you-all-what-you-would-ask-or-tell-your-rhumatologist-at-the-first/ Mon, 30 Jan 2012 09:55:56 +0000 Asked by Samantha Hughes 1 week ago http://answers.ankylosing.org/116840/hi-i-was-wondering-if-i-could-ask-you-all-what-you-would-ask-or-tell-your-rhumatologist-at-the-first/ I've had AS for 20 years but it has only affected from my SI joints down and some mobiliy in my spine. I recently started to feel severe pain in my left shoulder and not sure if it's from the AS. For those of you that suffer from AS that affects your shoulders, how does it feel/affect your shoulders. I'm trying to figure out if it's from AS or a new problem. Also when I look in the mirror my shoulders are not straight across my left shoulder is WAY lower than my right.It looks pretty weird? http://answers.ankylosing.org/116836/ive-had-as-for-20-years-but-it-has-only-affected-from-my-si-joints-down-and-some-mobiliy-in-my-spine/ Mon, 30 Jan 2012 04:48:44 +0000 Asked by Krystle In Ontario, Canada 1 week ago http://answers.ankylosing.org/116836/ive-had-as-for-20-years-but-it-has-only-affected-from-my-si-joints-down-and-some-mobiliy-in-my-spine/ I have AS in my neck mostly, the cervix, which affects my shoulders and head a lot. I've gotten a new symptom lately. When I'm asleep for a while (I never can sleep very long these days anyway) I get these bad neck spasms on the sides of my neck, which are bad enough to make me cry out, uuhhhhhh ! I can only sleep on my sides. I haven't started on any of the drugs yet. My rheumy has mentioned Enbrel. Anyone have any experience with these neck spasms? Any good stuff to do about it? http://answers.ankylosing.org/116834/i-have-as-in-my-neck-mostly-the-cervix-which-affects-my-shoulders-and-head-a-lot-ive-gotten-a-new/ Mon, 30 Jan 2012 03:59:27 +0000 Asked by Highwayman Joe 1 week ago http://answers.ankylosing.org/116834/i-have-as-in-my-neck-mostly-the-cervix-which-affects-my-shoulders-and-head-a-lot-ive-gotten-a-new/ Can you tell me if anyone smokes while on humira? http://answers.ankylosing.org/116827/can-you-tell-me-if-anyone-smokes-while-on-humira/ Sun, 29 Jan 2012 23:18:26 +0000 Asked by Cathy 1 week ago http://answers.ankylosing.org/116827/can-you-tell-me-if-anyone-smokes-while-on-humira/ Does anyone else feel like the skin over their joints is bruised? The skin over my shoulders, lower back, hips, and sternum feels bruised, but they shouldn't be. http://answers.ankylosing.org/116761/does-anyone-else-feel-like-the-skin-over-their-joints-is-bruised/ Sat, 28 Jan 2012 20:43:27 +0000 Asked by Kathryn 1 week ago http://answers.ankylosing.org/116761/does-anyone-else-feel-like-the-skin-over-their-joints-is-bruised/ I will be needing a new car in the next year and was wondering if anyone has found the "perfect" car for comfort and ease getting in and out. I live in the Northeast and need something decent in snow and I also drive an hour each way to work so I need decent gas mileage. What does everyone drive? http://answers.ankylosing.org/116735/i-will-be-needing-a-new-car-in-the-next-year-and-was-wondering-if-anyone-has-found-the-perfect-car/ Sat, 28 Jan 2012 02:14:19 +0000 Asked by Chris Lowthian 1 week ago http://answers.ankylosing.org/116735/i-will-be-needing-a-new-car-in-the-next-year-and-was-wondering-if-anyone-has-found-the-perfect-car/ I am about to start on Humira. For those who have had success with the drug, how soon did you start to see improvements? http://answers.ankylosing.org/116722/i-am-about-to-start-on-humira-for-those-who-have-had-success-with-the-drug-how-soon-did-you-start-to/ Fri, 27 Jan 2012 19:54:18 +0000 Asked by Lauren Livesay 1 week ago http://answers.ankylosing.org/116722/i-am-about-to-start-on-humira-for-those-who-have-had-success-with-the-drug-how-soon-did-you-start-to/ I'm 55 and have been battling AS now for two years without knowing what I had, like Feet, upper and lower back pains, Faciitis, Uvetis, etc. I was going crazy thinking I had so many unrelated problems. I soak in a Hot Tub that has powerful jets that hit my feet and upper and lower back all at the same time. Takes me from a 8/9 pain level down to a 1/2 and I stretch in there. I use it before I go to work and after I come home. We don't use chlorine, we use Soft Soak so it doesn't hurt my skin? http://answers.ankylosing.org/116712/im-55-and-have-been-battling-as-now-for-two-years-without-knowing-what-i-had-like-feet-upper-and-lower/ Fri, 27 Jan 2012 18:46:00 +0000 Asked by Gary Leif 1 week ago http://answers.ankylosing.org/116712/im-55-and-have-been-battling-as-now-for-two-years-without-knowing-what-i-had-like-feet-upper-and-lower/ I've often wondered if JFK had AS. Every time I read something about his back trouble, and the fusion surgery, I have to wonder? http://answers.ankylosing.org/116693/ive-often-wondered-if-jfk-had-as-every-time-i-read-something-about-his-back-trouble-and-the-fusion/ Fri, 27 Jan 2012 14:48:28 +0000 Asked by Amori99 1 week ago http://answers.ankylosing.org/116693/ive-often-wondered-if-jfk-had-as-every-time-i-read-something-about-his-back-trouble-and-the-fusion/ Need advice. I have been experiencing the worst flare I have ever had and my GP (she's a lot closer than my rheumy) had my SED rate checked and it was the same as when I began any form of treatment a year ago. Between the horrible flare and the SED rate, I called for an appt with my rheumy and his nurse said that she talked to him and he would like me to dc methotrexate and remicade and see him in March.WHAT UNTIL THEN? She said, well that is what he said. What do you guys think of that? http://answers.ankylosing.org/116667/need-advice-i-have-been-experiencing-the-worst-flare-i-have-ever-had-and-my-gp-shes-a-lot-closer-than/ Fri, 27 Jan 2012 04:39:35 +0000 Asked by Nikki Sedgwick Bass 2 weeks ago http://answers.ankylosing.org/116667/need-advice-i-have-been-experiencing-the-worst-flare-i-have-ever-had-and-my-gp-shes-a-lot-closer-than/ Is there anyone on any type of TNF blocker for more than 5 years? How good has it been working for your body over time? http://answers.ankylosing.org/116661/is-there-anyone-on-any-type-of-tnf-blocker-for-more-than-5-years/ Fri, 27 Jan 2012 03:11:36 +0000 Asked by Min.s 2 weeks ago http://answers.ankylosing.org/116661/is-there-anyone-on-any-type-of-tnf-blocker-for-more-than-5-years/ I have been wondering if it would be fine to dance (social or just to dance to the music) with problems of the feet with AS? I have had some erosion to the bones to my feet when I was first diagnosed with AS. My last MRI showed no change to the bones of my feet. I will go for my annual MRI in the spring. I used to do dance aerobics and I would love dance . http://answers.ankylosing.org/116655/i-have-been-wondering-if-it-would-be-fine-to-dance-social-or-just-to-dance-to-the-music-with-problems/ Fri, 27 Jan 2012 00:08:44 +0000 Asked by Jamie 2 weeks ago http://answers.ankylosing.org/116655/i-have-been-wondering-if-it-would-be-fine-to-dance-social-or-just-to-dance-to-the-music-with-problems/ Does anyone have heart pulpatations/ skips beats? My rhumetologist noticed this at last weeks visit for my shot of depro medrol. I will also have a lot of pain at times "depending what I do" in the middle of my back. http://answers.ankylosing.org/116653/does-anyone-have-heart-pulpatations-skips-beats/ Thu, 26 Jan 2012 23:43:07 +0000 Asked by Brian Swope 2 weeks ago http://answers.ankylosing.org/116653/does-anyone-have-heart-pulpatations-skips-beats/ This is a question i would like the woman to answer, after wearing a bra for a whole day do your ribs really hurt. If so what do you wear instead of a regular bra? http://answers.ankylosing.org/116635/this-is-a-question-i-would-like-the-woman-to-answer-after-wearing-a-bra-for-a-whole-day-do-your-ribs/ Thu, 26 Jan 2012 16:57:07 +0000 Asked by Cathy 2 weeks ago http://answers.ankylosing.org/116635/this-is-a-question-i-would-like-the-woman-to-answer-after-wearing-a-bra-for-a-whole-day-do-your-ribs/ My 14 year old son was just diagnosed? Does anyone on here have any advice as to things like football vs swimming? Has anyone tried chiropractic care? Was anyone on here diagnosed at a young age? What is the best thing I can do to help him adjust to this diagnosis etc... Any suggestions? http://answers.ankylosing.org/116620/my-14-year-old-son-was-just-diagnosed-does-anyone-on-here-have-any-advice-as-to-things-like-football/ Thu, 26 Jan 2012 09:10:12 +0000 Asked by Melody Dolle-Ducote 2 weeks ago http://answers.ankylosing.org/116620/my-14-year-old-son-was-just-diagnosed-does-anyone-on-here-have-any-advice-as-to-things-like-football/ Hi I went to a NASS organised hydrotherapy session tonight first one. It was a strange old session. 8 others (men) and me. It was intersteing some men had fused upright while others had fused curved. It was amazing meeting others with the condition. It was a positive experience and a good laugh. The excersizes really pushed me and I am acheing now but believe it will really help long term. If anyone has access to this kind of thing a massive thumbs up:-) x? http://answers.ankylosing.org/116601/hi-i-went-to-a-nass-organised-hydrotherapy-session-tonight-first-one-it-was-a-strange-old-session-8/ Wed, 25 Jan 2012 22:59:45 +0000 Asked by Joanne Leyshon 2 weeks ago http://answers.ankylosing.org/116601/hi-i-went-to-a-nass-organised-hydrotherapy-session-tonight-first-one-it-was-a-strange-old-session-8/ I was diagnosed with AS 9 months ago and am wondering if anyone else has had an instance where you stood up to walk and your hips would not move...almost like they were locked or went to sleep...after sitting? I know I have hip pain after driving a to and from work (hour drive each way), but I have had this happen 4 times where I had to just stand there and wait for my hips to decide to move my legs and the pain was terrible. http://answers.ankylosing.org/116566/i-was-diagnosed-with-as-9-months-ago-and-am-wondering-if-anyone-else-has-had-an-instance-where-you-stood/ Wed, 25 Jan 2012 19:36:52 +0000 Asked by Lisa 2 weeks ago http://answers.ankylosing.org/116566/i-was-diagnosed-with-as-9-months-ago-and-am-wondering-if-anyone-else-has-had-an-instance-where-you-stood/ FYI, I have started a support group on facebook for us who live in Ontario, Canada. Here is the link please join, share your story and feel free to ask questions :) www.facebook.com/kpogson2?success=1#!/pages/Ankylosing-Spond http://answers.ankylosing.org/116563/fyi-i-have-started-a-support-group-on-facebook-for-us-who-live-in-ontario-canada-here-is-the-link/ Wed, 25 Jan 2012 19:06:57 +0000 Asked by Krystle In Ontario, Canada 2 weeks ago http://answers.ankylosing.org/116563/fyi-i-have-started-a-support-group-on-facebook-for-us-who-live-in-ontario-canada-here-is-the-link/ I've had a burning sensation in my lungs, high at the base of my throat & it often feels like a weight is sitting on my chest. It's much like when you take that first breath of ice cold air outside in the winter. It is also difficult to take a deep breath due to the pain & tightness in my ribs. The chest x-rays didn't show anything but I'm concerned that the AS is damaging my lungs. Has anyone experienced something like this? http://answers.ankylosing.org/116562/ive-had-a-burning-sensation-in-my-lungs-high-at-the-base-of-my-throat-it-often-feels-like-a-weight/ Wed, 25 Jan 2012 19:06:08 +0000 Asked by Amie Davis 2 weeks ago http://answers.ankylosing.org/116562/ive-had-a-burning-sensation-in-my-lungs-high-at-the-base-of-my-throat-it-often-feels-like-a-weight/ I've asked before, but I try again. Does anybody here know their lp(a) / lipoprotein (a) level ? It not well known, and doctors do not usually test it (because they say it is difficult to reduce it anyway, if it's high). It is related to lipids in the blood, and increases cardivascular risk. Some studies suggest a link between elevated lp(a), autoimmune diseases / inflammation, and certain HLA genotypes (don't know which). http://answers.ankylosing.org/116546/ive-asked-before-but-i-try-again-does-anybody-here-know-their-lpa-lipoprotein-a-level/ Wed, 25 Jan 2012 12:45:37 +0000 Asked by Hanna 2 weeks ago http://answers.ankylosing.org/116546/ive-asked-before-but-i-try-again-does-anybody-here-know-their-lpa-lipoprotein-a-level/ Does anyone take simponi and has it helped you at all? http://answers.ankylosing.org/116541/does-anyone-take-simponi-and-has-it-helped-you-at-all/ Wed, 25 Jan 2012 08:29:26 +0000 Asked by Carmen 2 weeks ago http://answers.ankylosing.org/116541/does-anyone-take-simponi-and-has-it-helped-you-at-all/ After reading many questions and answers here it sounds like very few of you have any outwardly visible symptoms or fusing (screwed up neck for example). How may people here have visible symptoms? Just wondering if I am a rare breed (was 6 feet tall, now 5'8"). http://answers.ankylosing.org/116526/after-reading-many-questions-and-answers-here-it-sounds-like-very-few-of-you-have-any-outwardly-visible/ Wed, 25 Jan 2012 00:42:26 +0000 Asked by Tekboss 2 weeks ago http://answers.ankylosing.org/116526/after-reading-many-questions-and-answers-here-it-sounds-like-very-few-of-you-have-any-outwardly-visible/ Has anyone found that their AS symptoms get weaker (or even stop) as they get older? Mine seemed to for a time but lately have been on a rampage. (Male-56) http://answers.ankylosing.org/116525/has-anyone-found-that-their-as-symptoms-get-weaker-or-even-stop-as-they-get-older/ Wed, 25 Jan 2012 00:21:53 +0000 Asked by Tekboss 2 weeks ago http://answers.ankylosing.org/116525/has-anyone-found-that-their-as-symptoms-get-weaker-or-even-stop-as-they-get-older/ Has anyone that started Humira been able to start excerzing regularly? http://answers.ankylosing.org/116512/has-anyone-that-started-humira-been-able-to-start-excerzing-regularly/ Tue, 24 Jan 2012 20:01:36 +0000 Asked by Shelley 2 weeks ago http://answers.ankylosing.org/116512/has-anyone-that-started-humira-been-able-to-start-excerzing-regularly/ Just want to say when I lived in california, my daughters swimming pool did wonders for me but I live in wa. Its cold all the time and getting out of a tank of water made me stiff all over. They said they didn't think they could help me any more and dropped all appointments, nicely. I don't know if it helped me no change except my knees started to hurt. I felt that other people there needed their help more then I do? http://answers.ankylosing.org/116508/just-want-to-say-when-i-lived-in-california-my-daughters-swimming-pool-did-wonders-for-me-but-i-live/ Tue, 24 Jan 2012 19:34:02 +0000 Asked by Geraldine 2 weeks ago http://answers.ankylosing.org/116508/just-want-to-say-when-i-lived-in-california-my-daughters-swimming-pool-did-wonders-for-me-but-i-live/ I started remicade in Nov 2011. I just had my third infusion but it didn't really last. (450mg). That day I was ok but the next day I didn't feel too hot. I keep reading that it had to get built up in your system. I have digestive troubles and my GI said to try Humira instead of remicade. Do I keep waiting to see if remicade kicks in a little better? It git rid of the stiffness in my neck but I'm still tired and woozy all the time. Even physical therapy isn't doing too much. Any thoughts? http://answers.ankylosing.org/116507/i-started-remicade-in-nov-2011-i-just-had-my-third-infusion-but-it-didnt-really-last-450mg-that/ Tue, 24 Jan 2012 19:06:41 +0000 Asked by Ken Phillips 2 weeks ago http://answers.ankylosing.org/116507/i-started-remicade-in-nov-2011-i-just-had-my-third-infusion-but-it-didnt-really-last-450mg-that/ Why is it people say that people cant see what we have. People ask me, what is wrong with your neck or tell me, you look like your in pain or you look like you were in a different world for a second there. Everyone can see there is something wrong with me but for some reason it took the doctor 18 years to figure it out? http://answers.ankylosing.org/116480/why-is-it-people-say-that-people-cant-see-what-we-have-people-ask-me-what-is-wrong-with-your-neck-or/ Tue, 24 Jan 2012 16:50:24 +0000 Asked by Cathy 2 weeks ago http://answers.ankylosing.org/116480/why-is-it-people-say-that-people-cant-see-what-we-have-people-ask-me-what-is-wrong-with-your-neck-or/ Is there anyone on here from ontario, canada,? http://answers.ankylosing.org/116475/is-there-anyone-on-here-from-ontario-canada/ Tue, 24 Jan 2012 15:49:34 +0000 Asked by Cathy 2 weeks ago http://answers.ankylosing.org/116475/is-there-anyone-on-here-from-ontario-canada/ Anyone here on Remicade ever break out in hives during an infusion? http://answers.ankylosing.org/116459/anyone-here-on-remicade-ever-break-out-in-hives-during-an-infusion/ Tue, 24 Jan 2012 08:12:28 +0000 Asked by Diana Coniglio 2 weeks ago http://answers.ankylosing.org/116459/anyone-here-on-remicade-ever-break-out-in-hives-during-an-infusion/ Hi guys, wondering if anyone else has the same thing - before the tried me on Remicade and now Humira I had two courses of prednisolone and since then my knees hips and ankles hurt all the time (knees are the worst). The Humira seems to be making everything else slightly better but I can't get rid of the other aches. Is this normal of AS or have the steroids done some damage to the joints? My next appointment with my rheumy is in two months.... http://answers.ankylosing.org/116455/hi-guys-wondering-if-anyone-else-has-the-same-thing-before-the-tried-me-on-remicade-and-now-humira/ Tue, 24 Jan 2012 06:01:37 +0000 Asked by Pippo 2 weeks ago http://answers.ankylosing.org/116455/hi-guys-wondering-if-anyone-else-has-the-same-thing-before-the-tried-me-on-remicade-and-now-humira/ Does anyone have pain in the knees and if so what do you do for it. When and sit or stand, pain runs from my knee up to were I bend my thigh or runs down to my knee or just hurts one or the other? http://answers.ankylosing.org/116454/does-anyone-have-pain-in-the-knees-and-if-so-what-do-you-do-for-it-when-and-sit-or-stand-pain-runs/ Tue, 24 Jan 2012 04:16:46 +0000 Asked by Geraldine 2 weeks ago http://answers.ankylosing.org/116454/does-anyone-have-pain-in-the-knees-and-if-so-what-do-you-do-for-it-when-and-sit-or-stand-pain-runs/ Does anyone feel very tired all the time ?I have severe pain I was diagnosed 7 months ago .I feel worse as months go by even though I am on humira.I am lost and I feel alone. http://answers.ankylosing.org/116449/does-anyone-feel-very-tired-all-the-time/ Tue, 24 Jan 2012 01:42:34 +0000 Asked by Maria Rodriguez 2 weeks ago http://answers.ankylosing.org/116449/does-anyone-feel-very-tired-all-the-time/ Anyone experience jaw pain with AS. I find it painful to open my mouth wide to bite and after a short time chewing becomes painful. Wondering if this is related to the AS or something else? http://answers.ankylosing.org/116445/anyone-experience-jaw-pain-with-as-i-find-it-painful-to-open-my-mouth-wide-to-bite-and-after-a-short/ Tue, 24 Jan 2012 00:19:43 +0000 Asked by Haywood Lawrence 2 weeks ago http://answers.ankylosing.org/116445/anyone-experience-jaw-pain-with-as-i-find-it-painful-to-open-my-mouth-wide-to-bite-and-after-a-short/ Has anyone had their doctor tell them they don't have AS but a disease that's in the family of AS? My doctor says I have all the symptoms of AS except my spinal x-ray is normal. I was diagnosed at the age of 20 with a disease in the family of AS. I am 37 now. With a pain tolerance that would make Superman fall to his knees....lol (exaggerated, but you get the point). I have gone weeks, months, without any pain at all then out of know where it will flare up. I take indomethacin for pain. http://answers.ankylosing.org/116407/has-anyone-had-their-doctor-tell-them-they-dont-have-as-but-a-disease-thats-in-the-family-of-as/ Mon, 23 Jan 2012 16:57:54 +0000 Asked by Ted Davis 2 weeks ago http://answers.ankylosing.org/116407/has-anyone-had-their-doctor-tell-them-they-dont-have-as-but-a-disease-thats-in-the-family-of-as/ I'm 29 & have AS,since being diagnosed I joined the hydrotherapy swim class, its the best thing. Keeps my pain down 95% When I come online & read about AS I see alot of people from the usa & canada dont talk about hydrotherapy and I've heard its not so common over that way?Who does to hydrotherapy? http://answers.ankylosing.org/116389/im-29-have-assince-being-diagnosed-i-joined-the-hydrotherapy-swim-class-its-the-best-thing-keeps/ Mon, 23 Jan 2012 14:05:46 +0000 Asked by Nicola Webster 2 weeks ago http://answers.ankylosing.org/116389/im-29-have-assince-being-diagnosed-i-joined-the-hydrotherapy-swim-class-its-the-best-thing-keeps/ I have USpA. Meds are keeping things to a dull roar. However, the heel pain is affecting my mobility. I spoke with my rheumy about a mobility scooter and he wasn't for it. When I asked why, he said "you don't even use a cane or crutches. Scooters are just a pain." Thankfully, I have a husband that runs all of our errands but I can't even take my teenage daughters shopping. Since I can afford to buy the scooter without insurance, should I go forward with it? Or would it do more harm than good? http://answers.ankylosing.org/116388/i-have-uspa-meds-are-keeping-things-to-a-dull-roar-however-the-heel-pain-is-affecting-my-mobility/ Mon, 23 Jan 2012 14:01:56 +0000 Asked by Marie 2 weeks ago http://answers.ankylosing.org/116388/i-have-uspa-meds-are-keeping-things-to-a-dull-roar-however-the-heel-pain-is-affecting-my-mobility/ Any women on here that are on Remicade or another TNF-Blocker that have stopped getting their period or slowed it down? http://answers.ankylosing.org/116358/any-women-on-here-that-are-on-remicade-or-another-tnf-blocker-that-have-stopped-getting-their-period/ Mon, 23 Jan 2012 00:31:57 +0000 Asked by Krystle In Ontario, Canada 2 weeks ago http://answers.ankylosing.org/116358/any-women-on-here-that-are-on-remicade-or-another-tnf-blocker-that-have-stopped-getting-their-period/ Does anyone have know how to start a support group. I really feel alone and I have looked to find one but there is none were I live. They used to have a support group for chronic pain at the hospital but it is no more. I don't even know if there is enough people here to do one. I live in a small community. Any info would be appriciated. Thanks? http://answers.ankylosing.org/116350/does-anyone-have-know-how-to-start-a-support-group-i-really-feel-alone-and-i-have-looked-to-find-one/ Sun, 22 Jan 2012 20:39:35 +0000 Asked by Shelley 2 weeks ago http://answers.ankylosing.org/116350/does-anyone-have-know-how-to-start-a-support-group-i-really-feel-alone-and-i-have-looked-to-find-one/ Is there anyone on here that is from ontario canada and if they have found a support group anywhere for this disease? http://answers.ankylosing.org/116349/is-there-anyone-on-here-that-is-from-ontario-canada-and-if-they-have-found-a-support-group-anywhere-for/ Sun, 22 Jan 2012 20:27:45 +0000 Asked by Cathy 2 weeks ago http://answers.ankylosing.org/116349/is-there-anyone-on-here-that-is-from-ontario-canada-and-if-they-have-found-a-support-group-anywhere-for/ Pregnancy...has anyone gotten pregnant on TNFI, specifically Remicade? If so, everything ok? If you went off the med, how horrible was your pain during pregnancy? http://answers.ankylosing.org/116348/pregnancyhas-anyone-gotten-pregnant-on-tnfi-specifically-remicade-if-so-everything-ok/ Sun, 22 Jan 2012 20:18:16 +0000 Asked by Meg 2 weeks ago http://answers.ankylosing.org/116348/pregnancyhas-anyone-gotten-pregnant-on-tnfi-specifically-remicade-if-so-everything-ok/ Does anyone experience worse back pain in the morning after alcohol? I have reduced my alcohol intake and my back pain in the morning is a lot better. Would be interested to see if anyone else has experienced the same thing? http://answers.ankylosing.org/116343/does-anyone-experience-worse-back-pain-in-the-morning-after-alcohol/ Sun, 22 Jan 2012 19:39:31 +0000 Asked by Rocket 2 weeks ago http://answers.ankylosing.org/116343/does-anyone-experience-worse-back-pain-in-the-morning-after-alcohol/ I'd appreciate some advice. I'm starting to go through the psychological aspect of chronic pain, losing confidence in dealing with people and avoiding situations because of the physical limitations. Thinking it's time to see a shrink? http://answers.ankylosing.org/116324/id-appreciate-some-advice-im-starting-to-go-through-the-psychological-aspect-of-chronic-pain-losing/ Sun, 22 Jan 2012 16:37:11 +0000 Asked by Haywood Lawrence 2 weeks ago http://answers.ankylosing.org/116324/id-appreciate-some-advice-im-starting-to-go-through-the-psychological-aspect-of-chronic-pain-losing/ I heard that april is ankylosing spondylitis month. Is this true and what things go on during that month. I have never heard or seen of this before? http://answers.ankylosing.org/116304/i-heard-that-april-is-ankylosing-spondylitis-month-is-this-true-and-what-things-go-on-during-that-month/ Sun, 22 Jan 2012 10:16:48 +0000 Asked by Cathy 2 weeks ago http://answers.ankylosing.org/116304/i-heard-that-april-is-ankylosing-spondylitis-month-is-this-true-and-what-things-go-on-during-that-month/ Does anyone here travel for vacations and if you do how do you enjoy yourself without having to lay down because of the pain all the time? http://answers.ankylosing.org/116303/does-anyone-here-travel-for-vacations-and-if-you-do-how-do-you-enjoy-yourself-without-having-to-lay-down/ Sun, 22 Jan 2012 10:14:59 +0000 Asked by Cathy 2 weeks ago http://answers.ankylosing.org/116303/does-anyone-here-travel-for-vacations-and-if-you-do-how-do-you-enjoy-yourself-without-having-to-lay-down/ My symptoms debilitatin back pain with surgery in 2007 The last 3 years I've experienced terrible memory loss, excruciating hip pain that wakes me up every night and heel pain. This finally took me to my doctor who ran x rays and blood tests, all to tell me it was nothing...not even osteoarthritis (which runs in my family). She put me on mega doses of vitamin D and Naproxen, which does nothing. Is it common for a regular DR. To miss this diagnosis? http://answers.ankylosing.org/116288/my-symptoms-debilitatin-back-pain-with-surgery-in-2007-the-last-3-years-ive-experienced-terrible-memory/ Sun, 22 Jan 2012 04:03:41 +0000 Asked by Magdalenaa 2 weeks ago http://answers.ankylosing.org/116288/my-symptoms-debilitatin-back-pain-with-surgery-in-2007-the-last-3-years-ive-experienced-terrible-memory/ What do you say to the people who freak out about side effects/precautions/ urge all dietary no medicine type stuff? Personally, Wild horses, earthquakes and blizzards wouldn't stop me from taking TNf inhibitors bc they help a lot, but I never know what to say to the naturalist people I run into. http://answers.ankylosing.org/116283/what-do-you-say-to-the-people-who-freak-out-about-side-effectsprecautions-urge-all-dietary-no-medicine/ Sun, 22 Jan 2012 02:35:26 +0000 Asked by Cara Guikema 2 weeks ago http://answers.ankylosing.org/116283/what-do-you-say-to-the-people-who-freak-out-about-side-effectsprecautions-urge-all-dietary-no-medicine/ How many of you have had full or partial fusing/ossification? How old were you when you fused? What did it feel like - could you tell you were fusing, or did you not realize it until you had a scan? http://answers.ankylosing.org/116251/how-many-of-you-have-had-full-or-partial-fusingossification-how-old-were-you-when-you-fused/ Sat, 21 Jan 2012 17:59:28 +0000 Asked by Kathryn 2 weeks ago http://answers.ankylosing.org/116251/how-many-of-you-have-had-full-or-partial-fusingossification-how-old-were-you-when-you-fused/ Hi im 26yrs old and was diagnosed with AS after I had my 3rd child 10 months ago. My rheumatologist has put me on several anti imflammatories which have all let to mouth ulcars after 3days of use, he now claims that the ulcers could be blood borne which makes it worse by using anti imflammatories. How far into the disease do u have to be to be put on this humira that I here everyone talk about? And does anyone else have this problem with ulcers? http://answers.ankylosing.org/116238/hi-im-26yrs-old-and-was-diagnosed-with-as-after-i-had-my-3rd-child-10-months-ago-my-rheumatologist-has/ Sat, 21 Jan 2012 14:26:09 +0000 Asked by Sarah Samuels 2 weeks ago http://answers.ankylosing.org/116238/hi-im-26yrs-old-and-was-diagnosed-with-as-after-i-had-my-3rd-child-10-months-ago-my-rheumatologist-has/ The tendons in me neck are completely calcified. Is there a way to get back any movement in my neck or help the awkward way my head sits on my shoulders? http://answers.ankylosing.org/116223/the-tendons-in-me-neck-are-completely-calcified-is-there-a-way-to-get-back-any-movement-in-my-neck-or/ Sat, 21 Jan 2012 05:46:29 +0000 Asked by Dede Harrington Vaughn 2 weeks ago http://answers.ankylosing.org/116223/the-tendons-in-me-neck-are-completely-calcified-is-there-a-way-to-get-back-any-movement-in-my-neck-or/ I just want to put this information out there. I recently contracted an enterovirus, and being on a biologic medication (TNFIs), it brought me to the hospital with dehydration. My body just couldn't fight it off (and I'm still struggling five days later). If you suspect that you might have caught a stomach bug, you might consider holding off on a shot. I think that my shot was timed perfectly wrong this last week? http://answers.ankylosing.org/116220/i-just-want-to-put-this-information-out-there-i-recently-contracted-an-enterovirus-and-being-on-a-biologic/ Sat, 21 Jan 2012 02:03:12 +0000 Asked by Amori99 2 weeks ago http://answers.ankylosing.org/116220/i-just-want-to-put-this-information-out-there-i-recently-contracted-an-enterovirus-and-being-on-a-biologic/ Anyone on humira and does it help. What kind of diet do you follow in order to help with the swelling? http://answers.ankylosing.org/116219/anyone-on-humira-and-does-it-help-what-kind-of-diet-do-you-follow-in-order-to-help-with-the-swelling/ Sat, 21 Jan 2012 00:56:27 +0000 Asked by Cathy 2 weeks ago http://answers.ankylosing.org/116219/anyone-on-humira-and-does-it-help-what-kind-of-diet-do-you-follow-in-order-to-help-with-the-swelling/ HI, i have been diagnosed with ankylosing spondylitis and my doctor will be putting me on humira. Anyone else on this needle and has it helped you? Thanks, http://answers.ankylosing.org/116218/hi-i-have-been-diagnosed-with-ankylosing-spondylitis-and-my-doctor-will-be-putting-me-on-humira-anyone/ Sat, 21 Jan 2012 00:55:12 +0000 Asked by Cathy 2 weeks ago http://answers.ankylosing.org/116218/hi-i-have-been-diagnosed-with-ankylosing-spondylitis-and-my-doctor-will-be-putting-me-on-humira-anyone/ Hair loss on Enbrel. Does anyone know if it is permanent? http://answers.ankylosing.org/116191/hair-loss-on-enbrel-does-anyone-know-if-it-is-permanent/ Fri, 20 Jan 2012 17:40:14 +0000 Asked by Cathy 2 weeks ago http://answers.ankylosing.org/116191/hair-loss-on-enbrel-does-anyone-know-if-it-is-permanent/ Anyone on here from Ontario, Canada ? Had a few questions about our Ontario Disability Support Program and also CPP. http://answers.ankylosing.org/116186/anyone-on-here-from-ontario-canada/ Fri, 20 Jan 2012 16:14:43 +0000 Asked by Krystle In Ontario, Canada 2 weeks ago http://answers.ankylosing.org/116186/anyone-on-here-from-ontario-canada/ Just curious ... What type of matress / pillow do you prefer SOFT or FIRM, PILLOW TOP or SPRING? http://answers.ankylosing.org/116185/just-curious-what-type-of-matress-pillow-do-you-prefer-soft-or-firm-pillow-top-or-spring/ Fri, 20 Jan 2012 15:55:44 +0000 Asked by Krystle In Ontario, Canada 2 weeks ago http://answers.ankylosing.org/116185/just-curious-what-type-of-matress-pillow-do-you-prefer-soft-or-firm-pillow-top-or-spring/ I went to a physiotherapy clinic today due to the feeling of rotation and unbalance. They said I have a good range of motion but they were not able to catch the rotation that I have. Does anyone else have a similar experience? And Is there any clinic that observes wrong use of muscles in doing movements requires strength and teaches the right way? http://answers.ankylosing.org/116163/i-went-to-a-physiotherapy-clinic-today-due-to-the-feeling-of-rotation-and-unbalance-they-said-i-have/ Fri, 20 Jan 2012 08:04:12 +0000 Asked by Min.s 3 weeks ago http://answers.ankylosing.org/116163/i-went-to-a-physiotherapy-clinic-today-due-to-the-feeling-of-rotation-and-unbalance-they-said-i-have/ My meds keep switching up every 3-6 weeks, so it's starting to get difficult figuring out which med's having what effect. I'm thinking about keeping a pain journal to help keep me organized, but I have NO idea where to even start. Anyone here have one? What do you do? What do you focus on? How do you keep track of pain throughout the day? Do you rank it? Any advice would be much appreciated! http://answers.ankylosing.org/116082/my-meds-keep-switching-up-every-3-6-weeks-so-its-starting-to-get-difficult-figuring-out-which-meds/ Thu, 19 Jan 2012 11:02:15 +0000 Asked by Laura Smith 3 weeks ago http://answers.ankylosing.org/116082/my-meds-keep-switching-up-every-3-6-weeks-so-its-starting-to-get-difficult-figuring-out-which-meds/ Saw eye Dr and I have Chorioretinitis, macular puckering of my left eye. The inflammation and pressure from the AS in my eyes has caused damage to the retina and loss of vision. I have to go see a specialist. I was wondering if anyone else is suffering from this? I'm scared I'm going to completely lose my vision.. http://answers.ankylosing.org/116041/saw-eye-dr-and-i-have-chorioretinitis-macular-puckering-of-my-left-eye-the-inflammation-and-pressure/ Wed, 18 Jan 2012 21:13:09 +0000 Asked by Brittney Brown 3 weeks ago http://answers.ankylosing.org/116041/saw-eye-dr-and-i-have-chorioretinitis-macular-puckering-of-my-left-eye-the-inflammation-and-pressure/ I have pain and swelling in both my ankles. My right foot specifically is so inflamed that I can barely put any weight on it. I've tried ice and elevation at night and am now trying compression socks during the day. Does anyone else with AS experience this problem and have any solutions for it? Thank you http://answers.ankylosing.org/116038/i-have-pain-and-swelling-in-both-my-ankles-my-right-foot-specifically-is-so-inflamed-that-i-can-barely/ Wed, 18 Jan 2012 20:49:29 +0000 Asked by Lauren Livesay 3 weeks ago http://answers.ankylosing.org/116038/i-have-pain-and-swelling-in-both-my-ankles-my-right-foot-specifically-is-so-inflamed-that-i-can-barely/ Please help. I went to the ER yesterday because the pain was too great, the vicodin was not touching it, and I had new symptoms, and I was scared. Hands were swollen like sausages and shinny. Face, cheeks red and hot. Sore in my nose x 2 mths, drains clear fluid. Morphine 4 cc worked for 30 mins. Blood work came back NEG. ANA will be back 3-5 days. So much sharp stabbing pain, and ESR neg...how? So confused and frustrated. http://answers.ankylosing.org/115994/please-help-i-went-to-the-er-yesterday-because-the-pain-was-too-great-the-vicodin-was-not-touching/ Wed, 18 Jan 2012 13:19:08 +0000 Asked by Carla 3 weeks ago http://answers.ankylosing.org/115994/please-help-i-went-to-the-er-yesterday-because-the-pain-was-too-great-the-vicodin-was-not-touching/ Remistart-anyone taking advantage of this financial assistance? I called them and still not clear as to how this works. What I have clarified is that they will pay for the medication 100% but still not sure what I have to pay and how $$ get placed on this remistart card. 3rd infusion in 1 week and I'm trying to figure out what I pay out of pocket. Any assistance would be great. http://answers.ankylosing.org/115959/remistart-anyone-taking-advantage-of-this-financial-assistance/ Wed, 18 Jan 2012 01:43:53 +0000 Asked by Meg 3 weeks ago http://answers.ankylosing.org/115959/remistart-anyone-taking-advantage-of-this-financial-assistance/ This may be to personal, I'm hoping not. Anyone receiving Remicade infusions and have BCBS PPO insurance plan? If so, what do you pay out of pocket per infusion? I was lucky enough to be diagnosised w/AS at the end of the year and my first 2 infusions were covered 100%. I have 3rd infusion in a week and Im getting different information each time I call BCBS-any info would be great. http://answers.ankylosing.org/115958/this-may-be-to-personal-im-hoping-not-anyone-receiving-remicade-infusions-and-have-bcbs-ppo-insurance/ Wed, 18 Jan 2012 01:41:06 +0000 Asked by Meg 3 weeks ago http://answers.ankylosing.org/115958/this-may-be-to-personal-im-hoping-not-anyone-receiving-remicade-infusions-and-have-bcbs-ppo-insurance/ I have an odd sensation that starts in my neck and runs up past my ears and over my skull. It feels like a numbness and not sure if others experience this feeling. I have some spurs between a couple of the cervical disks in my neck. I suppose that is causing this sensation? It makes me feel disoriented and like i am floating. http://answers.ankylosing.org/115951/i-have-an-odd-sensation-that-starts-in-my-neck-and-runs-up-past-my-ears-and-over-my-skull-it-feels-like/ Tue, 17 Jan 2012 22:10:19 +0000 Asked by Joni 3 weeks ago http://answers.ankylosing.org/115951/i-have-an-odd-sensation-that-starts-in-my-neck-and-runs-up-past-my-ears-and-over-my-skull-it-feels-like/ Hello. I now have lumps on my ankle bone and on the large tendon on the back of my foot. They are very sore to touch! It is a new problem for me. Not the normal joint pain. Is this to be investigated or just more of the same? http://answers.ankylosing.org/115896/hello-i-now-have-lumps-on-my-ankle-bone-and-on-the-large-tendon-on-the-back-of-my-foot-they-are-very/ Tue, 17 Jan 2012 05:55:20 +0000 Asked by Bj 3 weeks ago http://answers.ankylosing.org/115896/hello-i-now-have-lumps-on-my-ankle-bone-and-on-the-large-tendon-on-the-back-of-my-foot-they-are-very/ I thought the cold had nothing to do with my pain and I'm so wrong, its snowing here and I have pain everywhere. Does anyone else have problems with the cold? http://answers.ankylosing.org/115892/i-thought-the-cold-had-nothing-to-do-with-my-pain-and-im-so-wrong-its-snowing-here-and-i-have-pain/ Tue, 17 Jan 2012 04:15:38 +0000 Asked by Geraldine 3 weeks ago http://answers.ankylosing.org/115892/i-thought-the-cold-had-nothing-to-do-with-my-pain-and-im-so-wrong-its-snowing-here-and-i-have-pain/ Has anyone ever had a doctor say "You don't look like you have AS." when they have told a GP that they have it? I dont have a regular Rheumatologist and the medical center my insurance works with in Moscow requires a referral to one each visit... And when I asked the GP for the referral the guy looked at me (not at my medical records or anything else) and said "You don't look like you have it." How I supposed to look? Like a hunchback? Like a granite bust? Come on! http://answers.ankylosing.org/115841/has-anyone-ever-had-a-doctor-say-you-dont-look-like-you-have-as-when-they-have-told-a-gp-that-they/ Mon, 16 Jan 2012 02:09:23 +0000 Asked by Susan Skelly 3 weeks ago http://answers.ankylosing.org/115841/has-anyone-ever-had-a-doctor-say-you-dont-look-like-you-have-as-when-they-have-told-a-gp-that-they/ Quite disturbed at what GPs are saying in the UK, as soon as you are diagnosed with AS you should be referred to a Rheumatologist. I don't understand why you are being put on codine. I have had AS for 13 years but was only diagnosed 7 months ago, far too late to stop the fusion that's happened, but now am under the right care and going in the right direction... I'm not getting why GPs aren't referring people? Also another question, why does noone mention arcoxia (etoricoxib) on this site? http://answers.ankylosing.org/115838/quite-disturbed-at-what-gps-are-saying-in-the-uk-as-soon-as-you-are-diagnosed-with-as-you-should-be/ Mon, 16 Jan 2012 00:24:47 +0000 Asked by Alison 3 weeks ago http://answers.ankylosing.org/115838/quite-disturbed-at-what-gps-are-saying-in-the-uk-as-soon-as-you-are-diagnosed-with-as-you-should-be/ Help! Anyone in Colorado! I moved here in July & have had NO luck finding a GP to help me (or believe me) & my medical issues. I must have a GP on my side to get referrals to specialist. I've changed 2x's already, with no luck. Anyone know of GP, pain docs or rheumy's in state? It's been 6 months & I'm going downhill fast & continuously because no one will help me! http://answers.ankylosing.org/115830/help-anyone-in-colorado-i-moved-here-in-july-have-had-no-luck-finding-a-gp-to-help-me-or-believe/ Sun, 15 Jan 2012 19:27:51 +0000 Asked by Kerry Monique Gaude' 3 weeks ago http://answers.ankylosing.org/115830/help-anyone-in-colorado-i-moved-here-in-july-have-had-no-luck-finding-a-gp-to-help-me-or-believe/ How do you deal with people who just dont understand AS? People who dont know that pain you experiance everyday? Sometime I wish I could reach out and grab someones hand and have the pain transfer to them just for that brief moment so they know what I go thru. Many of my girlfriends simply dont get it..they know the mediciations Im on, they know all of the dr visits I go on each month and when I have to go home early due to my pain I still hear "Meg why are you leaving?" this angers me... http://answers.ankylosing.org/115775/how-do-you-deal-with-people-who-just-dont-understand-as-people-who-dont-know-that-pain-you-experiance/ Sun, 15 Jan 2012 02:32:57 +0000 Asked by Meg 3 weeks ago http://answers.ankylosing.org/115775/how-do-you-deal-with-people-who-just-dont-understand-as-people-who-dont-know-that-pain-you-experiance/ Gp sending me to pain clinc because he wants to put me on morphine the pains so bad even simple things like going to do bodily functions leave me with tears rolling down my face and feeling faint I'am taking three different blood pressure tablets because the pain is causing problems to blood pressure , as anyone else been put on morphine if so for how long and if there was side effects? http://answers.ankylosing.org/115711/gp-sending-me-to-pain-clinc-because-he-wants-to-put-me-on-morphine-the-pains-so-bad-even-simple-things/ Sat, 14 Jan 2012 00:24:16 +0000 Asked by Jean Mace 3 weeks ago http://answers.ankylosing.org/115711/gp-sending-me-to-pain-clinc-because-he-wants-to-put-me-on-morphine-the-pains-so-bad-even-simple-things/ Skin issues around eyes .. . Not uveitis at all. Does anyone else get small fissure in the outer corners of their eyes? It is quite painful and irritating. Generally just before a flare the outer corners of my eyes start to itch. I have opthamalgic ointment and eye drops but even so, deep cracks open up and then crust over and take days to heal. Ouch! Does anyone else get this? http://answers.ankylosing.org/115697/skin-issues-around-eyes-not-uveitis-at-all-does-anyone-else-get-small-fissure-in-the-outer-corners/ Fri, 13 Jan 2012 17:33:28 +0000 Asked by Rose Bigham 3 weeks ago http://answers.ankylosing.org/115697/skin-issues-around-eyes-not-uveitis-at-all-does-anyone-else-get-small-fissure-in-the-outer-corners/ Full time employment and pain meds...anyone have concerns about this combination? I need to work, I need my pain meds in order to function... http://answers.ankylosing.org/115598/full-time-employment-and-pain-medsanyone-have-concerns-about-this-combination/ Thu, 12 Jan 2012 01:18:59 +0000 Asked by Meg 4 weeks ago http://answers.ankylosing.org/115598/full-time-employment-and-pain-medsanyone-have-concerns-about-this-combination/ Hi, all! I was diagnosed with AS two years ago last month. Up until 9 months ago, symptoms were cyclical and fairly predictable; they then went crazy with new stuff happening. My rheumy put me on Enbrel about a year ago. My question is this: Does anyone else have intestinal involvement, and how are you treating it? Is this normal, or am I going crazy? http://answers.ankylosing.org/115593/hi-all-i-was-diagnosed-with-as-two-years-ago-last-month-up-until-9-months-ago-symptoms-were-cyclical/ Wed, 11 Jan 2012 22:08:56 +0000 Asked by Amanda Robbins Bridges 4 weeks ago http://answers.ankylosing.org/115593/hi-all-i-was-diagnosed-with-as-two-years-ago-last-month-up-until-9-months-ago-symptoms-were-cyclical/ Apremilast is a new med in trial right now, mostly for psoriasis. But in the UK, they're also using it in a trial for AS patients. Is anyone here in a trial for Apremilast for AS? If so, how's it going? http://answers.ankylosing.org/115591/apremilast-is-a-new-med-in-trial-right-now-mostly-for-psoriasis-but-in-the-uk-theyre-also-using-it/ Wed, 11 Jan 2012 21:32:44 +0000 Asked by Chapps 4 weeks ago http://answers.ankylosing.org/115591/apremilast-is-a-new-med-in-trial-right-now-mostly-for-psoriasis-but-in-the-uk-theyre-also-using-it/ I am having increased pain in my hands they are swelling and gripping or carrying is really bloody painful. I have not read that it can be a symptom of AS but I'm having a flare up at the moment so it seems weird , could it be related? http://answers.ankylosing.org/115589/i-am-having-increased-pain-in-my-hands-they-are-swelling-and-gripping-or-carrying-is-really-bloody-painful/ Wed, 11 Jan 2012 20:32:13 +0000 Asked by Joanne Leyshon 4 weeks ago http://answers.ankylosing.org/115589/i-am-having-increased-pain-in-my-hands-they-are-swelling-and-gripping-or-carrying-is-really-bloody-painful/ Has anybody on Remicade experienced hair loss? Thank you! http://answers.ankylosing.org/115565/has-anybody-on-remicade-experienced-hair-loss/ Wed, 11 Jan 2012 14:12:37 +0000 Asked by Maria 4 weeks ago http://answers.ankylosing.org/115565/has-anybody-on-remicade-experienced-hair-loss/ Tonight is the first night I really sat down and explored this support community and I must say this site has given me hope. Sitting here and reading the questions and responses, saying to myself "me too!" is encouraging. I'm really glad I found this site. Just wanted to share and say thank you for sharing. New to AS? http://answers.ankylosing.org/115530/tonight-is-the-first-night-i-really-sat-down-and-explored-this-support-community-and-i-must-say-this/ Wed, 11 Jan 2012 02:39:11 +0000 Asked by Meg 4 weeks ago http://answers.ankylosing.org/115530/tonight-is-the-first-night-i-really-sat-down-and-explored-this-support-community-and-i-must-say-this/ What is this MTX (Methotrexate)? I googled the medname but still not clear on what it does. After reading posts, I noticed that people are on this or Sulfasalazine while on Remicade. I started Remicade 5 weeks ago and I'm not on these meds, should I be concerned? http://answers.ankylosing.org/115529/what-is-this-mtx-methotrexate/ Wed, 11 Jan 2012 02:23:42 +0000 Asked by Meg 4 weeks ago http://answers.ankylosing.org/115529/what-is-this-mtx-methotrexate/ Anyone Remicade and getting relief? I've had 2 infusions without any relief. Before the 1st infusion my Doctor insisted that I would feel relief, before the 2nd infusion my Doctor said it might take 2 infusions before we see any inprovements. 3rd infusion in schedule and I'm being told it could take 3 infusions...am I still going to allow thos doctor to convince me for a 4th? Disapointed, stressed and still in pain...how many infusions did it take for you? http://answers.ankylosing.org/115524/anyone-remicade-and-getting-relief-ive-had-2-infusions-without-any-relief-before-the-1st-infusion/ Wed, 11 Jan 2012 01:16:30 +0000 Asked by Meg 4 weeks ago http://answers.ankylosing.org/115524/anyone-remicade-and-getting-relief-ive-had-2-infusions-without-any-relief-before-the-1st-infusion/ Does anyone feel depress nearly every day? Since I was diagnosed in October it has been extremely hard. I got married in September and my whole changed one month later. How do you deal with your life changing and not been able to do the things you use to do? I watched my husband deal with from the time I met him and after we were married and then I found out I had it.. I am finding hard to get my head around. http://answers.ankylosing.org/115469/does-anyone-feel-depress-nearly-every-day-since-i-was-diagnosed-in-october-it-has-been-extremely-hard/ Tue, 10 Jan 2012 09:29:38 +0000 Asked by Michelle Candy 4 weeks ago http://answers.ankylosing.org/115469/does-anyone-feel-depress-nearly-every-day-since-i-was-diagnosed-in-october-it-has-been-extremely-hard/ Does anyone have dizzy spells when they stand up and walk? I also get very tired very quickly when I walk for a certain distance. I have a wheelchair so if I am having a bad day I can go in the wheelchair instead of walking. Also do people have trouble eating their food? Both my husban and I suffer from Ankylosing Spondylitis and we both get tired easily and have trouble eating. http://answers.ankylosing.org/115467/does-anyone-have-dizzy-spells-when-they-stand-up-and-walk-i-also-get-very-tired-very-quickly-when-i/ Tue, 10 Jan 2012 09:19:58 +0000 Asked by Michelle Candy 4 weeks ago http://answers.ankylosing.org/115467/does-anyone-have-dizzy-spells-when-they-stand-up-and-walk-i-also-get-very-tired-very-quickly-when-i/ Does anyone have problems with their sternum (breast bone). When I lay down at night on my side, I have shooting pain in the sternum and it happens some times when I'm sitting up, it stresses me and I have a bit of shortness of breath. Or pain just above the knee cap? http://answers.ankylosing.org/115456/does-anyone-have-problems-with-their-sternum-breast-bone-when-i-lay-down-at-night-on-my-side-i-have/ Tue, 10 Jan 2012 05:09:02 +0000 Asked by Geraldine 4 weeks ago http://answers.ankylosing.org/115456/does-anyone-have-problems-with-their-sternum-breast-bone-when-i-lay-down-at-night-on-my-side-i-have/ I was just diagnosed this past September after 10 years of chronic pain and doctors treating me like I was just some junkie looking for a fix. I started Humaira immediatley after diagnosis, but it doesn't seem to work anymore, and it's only been 4 monthes is this typical? http://answers.ankylosing.org/115440/i-was-just-diagnosed-this-past-september-after-10-years-of-chronic-pain-and-doctors-treating-me-like/ Tue, 10 Jan 2012 00:12:30 +0000 Asked by Jacquie 1 month ago http://answers.ankylosing.org/115440/i-was-just-diagnosed-this-past-september-after-10-years-of-chronic-pain-and-doctors-treating-me-like/ Hello I started humaria a month ago and it is good I feel better then just being on slufferzaline and celibrex, mind you I still take T'3s for moderate pain but i feel better overall. The one thing my wife notices and I do not is that she says I am very irratable and moody does anyone else notice this? http://answers.ankylosing.org/115419/hello-i-started-humaria-a-month-ago-and-it-is-good-i-feel-better-then-just-being-on-slufferzaline-and/ Mon, 09 Jan 2012 16:55:09 +0000 Asked by Ray Manning 1 month ago http://answers.ankylosing.org/115419/hello-i-started-humaria-a-month-ago-and-it-is-good-i-feel-better-then-just-being-on-slufferzaline-and/ Has anyone had extreme weight gain due to AS or noticed weight gain from your TNF blocker? http://answers.ankylosing.org/115413/has-anyone-had-extreme-weight-gain-due-to-as-or-noticed-weight-gain-from-your-tnf-blocker/ Mon, 09 Jan 2012 15:39:39 +0000 Asked by Krystle In Ontario, Canada 1 month ago http://answers.ankylosing.org/115413/has-anyone-had-extreme-weight-gain-due-to-as-or-noticed-weight-gain-from-your-tnf-blocker/ Correlation between flares and specific activities or movements? I moved the coaches last week and I remember moving it with my leg and then that evening and the following days were awful. I had to take codein to relieve me if not I couldn't walk without excrutiationg pain. It also happened after I walk with my daughter in my arms (37 pounds) for like 5 min. Anyone? http://answers.ankylosing.org/115408/correlation-between-flares-and-specific-activities-or-movements/ Mon, 09 Jan 2012 15:17:20 +0000 Asked by Karine 1 month ago http://answers.ankylosing.org/115408/correlation-between-flares-and-specific-activities-or-movements/ Has anyone experienced a correlation between flares and fevers? I've noticed that when I'm hit with severe pain, I will have cold chills and it's impossible to get warm. http://answers.ankylosing.org/115406/has-anyone-experienced-a-correlation-between-flares-and-fevers/ Mon, 09 Jan 2012 14:33:13 +0000 Asked by Laura Guest 1 month ago http://answers.ankylosing.org/115406/has-anyone-experienced-a-correlation-between-flares-and-fevers/ Lifting does radically affect your spine! How can they ask you this, Joanne, when you are disabled. Pressure on the spine is what causes spinal compression and all the baggage that goes with it. A compressed spine is bad for the circulation and nerves from the waist downwards and makes you feel ill everywhere else! http://answers.ankylosing.org/115387/lifting-does-radically-affect-your-spine-how-can-they-ask-you-this-joanne-when-you-are-disabled-pressure/ Mon, 09 Jan 2012 10:59:23 +0000 Asked by Rosalie Jackson 1 month ago http://answers.ankylosing.org/115387/lifting-does-radically-affect-your-spine-how-can-they-ask-you-this-joanne-when-you-are-disabled-pressure/ I don't take any medication as it only causes problems. Your diet may need to be radically changed. Through trial and error, I find that starchy foods, anything with wheat in (and that covers so many products), and milk of any kind, makes me ill & causes itching, rashes, swollen ankles. Foods I can tolerate: Rolled oats (porrige or uncooked with soya 'milk'), honey, nuts (not peanuts), meat & fish of any kind, eggs (but only mornings), veg, fruit, salad, rye biscuits. Trial & error. It works? http://answers.ankylosing.org/115386/i-dont-take-any-medication-as-it-only-causes-problems-your-diet-may-need-to-be-radically-changed-through/ Mon, 09 Jan 2012 10:51:26 +0000 Asked by Rosalie Jackson 1 month ago http://answers.ankylosing.org/115386/i-dont-take-any-medication-as-it-only-causes-problems-your-diet-may-need-to-be-radically-changed-through/ Am feeling bad right now. I've been in an intense flare for about ten days, and I've gone to whole foods only to try to reduce the inflammation. The pain is starting to wear me down, though. I am having terrible Sjogren's symptoms and other glands in my body have begun to fail. I'm so discouraged. Does anyone else have multiglandural autoimmune syndrome? http://answers.ankylosing.org/115364/am-feeling-bad-right-now-ive-been-in-an-intense-flare-for-about-ten-days-and-ive-gone-to-whole-foods/ Mon, 09 Jan 2012 04:46:39 +0000 Asked by Amori99 1 month ago http://answers.ankylosing.org/115364/am-feeling-bad-right-now-ive-been-in-an-intense-flare-for-about-ten-days-and-ive-gone-to-whole-foods/ I see my rhuemmy again tuesday and want to ask about muscle relaxants. I was on flexeril first and that one gave me severe dizzies. I started taking Zanaflex (tizanadine) after that and it worked for awhile, but it hasn't done much lately, I'm still having massive muscle spasms 4 - 5 times a day and they're extremely painful even with the pain medicine i'm taking. What other muscle relaxants are available that I can ask my doctor about? http://answers.ankylosing.org/115354/i-see-my-rhuemmy-again-tuesday-and-want-to-ask-about-muscle-relaxants-i-was-on-flexeril-first-and-that/ Sun, 08 Jan 2012 23:28:02 +0000 Asked by Ryan Davis 1 month ago http://answers.ankylosing.org/115354/i-see-my-rhuemmy-again-tuesday-and-want-to-ask-about-muscle-relaxants-i-was-on-flexeril-first-and-that/ When you switch TNf inhibitors how long does it usually take for the new one to start working? I was on Simponi every two weeks but it completely stopped. So I'm going to start enbrel once a week. http://answers.ankylosing.org/115349/when-you-switch-tnf-inhibitors-how-long-does-it-usually-take-for-the-new-one-to-start-working/ Sun, 08 Jan 2012 22:07:35 +0000 Asked by Cara Guikema 1 month ago http://answers.ankylosing.org/115349/when-you-switch-tnf-inhibitors-how-long-does-it-usually-take-for-the-new-one-to-start-working/ How do you deal with going from a person who was always very active (out doing various things and pushing so much into one day people wonder how you do it all) and who can't sit still even at home to being a person who still can't be still and still wants to do all those million things and be active but can't becaue AS is sapping the life out of you physically? The last couple of years AS has taken me from mildly slower than I was before it hit me to good-luck-doing-even-2%-of-what-you-used-to. http://answers.ankylosing.org/115139/how-do-you-deal-with-going-from-a-person-who-was-always-very-active-out-doing-various-things-and-pushing/ Wed, 04 Jan 2012 18:48:39 +0000 Asked by Susan Skelly 1 month ago http://answers.ankylosing.org/115139/how-do-you-deal-with-going-from-a-person-who-was-always-very-active-out-doing-various-things-and-pushing/ I am looking for documentation on increasing my Humira injections to every 7 to 10 days. I always know when I hit day 10 after my shot...today I am on 9...I talked to my dr and he wanted to change me to Embril, but I am not ready to give up on Humira when it works for the most part. He said that Humira was not approved for weekly dose in AS...Any help for somthing to take to my Dr would be helpful. Thanks? http://answers.ankylosing.org/115135/i-am-looking-for-documentation-on-increasing-my-humira-injections-to-every-7-to-10-days-i-always-know/ Wed, 04 Jan 2012 17:02:04 +0000 Asked by C Langdon 1 month ago http://answers.ankylosing.org/115135/i-am-looking-for-documentation-on-increasing-my-humira-injections-to-every-7-to-10-days-i-always-know/ Hi I had a long term sick interview today, I told them I will find my current job difficult as standing is an issue. I was asked if lifting is an issue. I said I was unsure. Does anyone know if we should avoid lifting or if it adversly affects the spine? http://answers.ankylosing.org/115127/hi-i-had-a-long-term-sick-interview-today-i-told-them-i-will-find-my-current-job-difficult-as-standing/ Wed, 04 Jan 2012 13:20:07 +0000 Asked by Joanne Leyshon 1 month ago http://answers.ankylosing.org/115127/hi-i-had-a-long-term-sick-interview-today-i-told-them-i-will-find-my-current-job-difficult-as-standing/ Has anyone had their DNA sequenced at 23andme and if so did you find anything useful in the information you got back? http://answers.ankylosing.org/115113/has-anyone-had-their-dna-sequenced-at-23andme-and-if-so-did-you-find-anything-useful-in-the-information/ Tue, 03 Jan 2012 19:54:59 +0000 Asked by Todd 1 month ago http://answers.ankylosing.org/115113/has-anyone-had-their-dna-sequenced-at-23andme-and-if-so-did-you-find-anything-useful-in-the-information/ Has anyone experienced worse joint pain after their Humira injection? After my last 2 injections I've felt worse next day and the week following. Since I only inject every two weeks this kinda sucks! I'm also in the position with an unsympathetic dr. (soon to remedied now that I new insurance). He thinks since my blood is fine, I'm fine. What do your drs. Do when your blood is normal but your joints are still aching horribly? http://answers.ankylosing.org/115099/has-anyone-experienced-worse-joint-pain-after-their-humira-injection/ Tue, 03 Jan 2012 17:19:19 +0000 Asked by Stacy 1 month ago http://answers.ankylosing.org/115099/has-anyone-experienced-worse-joint-pain-after-their-humira-injection/ I have to have a whinge, I know you will listen to me, but have you ever said to someone that you have a AS and this means you aren't able to work full time anymore. Then a little while later they say 'Well, aren't you going to look for more work?' I don't think they were listening in the first place. http://answers.ankylosing.org/115060/i-have-to-have-a-whinge-i-know-you-will-listen-to-me-but-have-you-ever-said-to-someone-that-you-have/ Tue, 03 Jan 2012 01:43:50 +0000 Asked by Carmen 1 month ago http://answers.ankylosing.org/115060/i-have-to-have-a-whinge-i-know-you-will-listen-to-me-but-have-you-ever-said-to-someone-that-you-have/ Has anybody else had a spouse leave them because of AS? The reasons being that AS makes you tired and you cannot do the stuff you used to. I guess I missed the part during the wedding where we said "Til death or AS do us part." I hope I am not the only one. Anyone else? http://answers.ankylosing.org/115053/has-anybody-else-had-a-spouse-leave-them-because-of-as/ Mon, 02 Jan 2012 20:16:54 +0000 Asked by Jason Ferguson 1 month ago http://answers.ankylosing.org/115053/has-anybody-else-had-a-spouse-leave-them-because-of-as/ Well, this is a new one. An infrared 'sauna' for patients with RA and AS, et al: www.koreaittimes.com/story/19241/infrared-treatment-detoxify Think it's bad science or possible new treatment option? http://answers.ankylosing.org/115051/well-this-is-a-new-one-an-infrared-sauna-for-patients-with-ra-and-as-et-al-a-hrefhttpwwwkoreaittimescomstory19241infrared-treatment-detoxifying-wonder/ Mon, 02 Jan 2012 19:47:02 +0000 Asked by Chapps 1 month ago http://answers.ankylosing.org/115051/well-this-is-a-new-one-an-infrared-sauna-for-patients-with-ra-and-as-et-al-a-hrefhttpwwwkoreaittimescomstory19241infrared-treatment-detoxifying-wonder/ Hi. Newly diagnosed with AS. Always woozy / dizzy and fatigued. Started Remicade and I am about to get my third treatment. I start to feel better but then it kinda tapers off. I can't drive and usually can't work. I had my colon removed due to Ulcerative Colitis 10 years ago. I thought things were moving ahead but then I collapsed at work this summer. Been all woozy and fatigued ever since. I'm at my wits end. Any1 feel this way too? http://answers.ankylosing.org/115046/hi-newly-diagnosed-with-as-always-woozy-dizzy-and-fatigued-started-remicade-and-i-am-about-to-get/ Mon, 02 Jan 2012 17:53:03 +0000 Asked by Ken Phillips 1 month ago http://answers.ankylosing.org/115046/hi-newly-diagnosed-with-as-always-woozy-dizzy-and-fatigued-started-remicade-and-i-am-about-to-get/ I was reading through old questions on this site regarding neck pain. Several people replied to a year old question about neck pain when leaning head back and several people replied to NEVER lean your head back. Why is that movement so bad we should not do it? http://answers.ankylosing.org/115043/i-was-reading-through-old-questions-on-this-site-regarding-neck-pain-several-people-replied-to-a-year/ Mon, 02 Jan 2012 16:45:16 +0000 Asked by Jennifer Bolyard 1 month ago http://answers.ankylosing.org/115043/i-was-reading-through-old-questions-on-this-site-regarding-neck-pain-several-people-replied-to-a-year/ Is it me? I live in the UK and my GP a sufferer of AS herself has given me Codine and Ibrupofen? The majority of drugs that are mentioned on here I have never heard of. I feel like I am living in the Dark ages. http://answers.ankylosing.org/115029/is-it-me-i-live-in-the-uk-and-my-gp-a-sufferer-of-as-herself-has-given-me-codine-and-ibrupofen/ Mon, 02 Jan 2012 10:25:28 +0000 Asked by Joanne Leyshon 1 month ago http://answers.ankylosing.org/115029/is-it-me-i-live-in-the-uk-and-my-gp-a-sufferer-of-as-herself-has-given-me-codine-and-ibrupofen/ One of the things I've been trying to learn about is whether or not there is a body of research which documents that certain nutrients trigger immune response, as can be measured by biomarkers. I have been reading all I can, and I wanted to share that I have found several sources which point to tocopherols, ascorbates, dietary cystein, and cachetins as inhibiting inflammatory immune response. I'll share more as I learn it. :) Happy 2012? http://answers.ankylosing.org/115024/one-of-the-things-ive-been-trying-to-learn-about-is-whether-or-not-there-is-a-body-of-research-which/ Mon, 02 Jan 2012 02:51:10 +0000 Asked by Amori99 1 month ago http://answers.ankylosing.org/115024/one-of-the-things-ive-been-trying-to-learn-about-is-whether-or-not-there-is-a-body-of-research-which/ Just got my bath measurements from my rheumy basdai 8.4 vas spinal pain 6.3 basmi 6.2 basfi 6.5. My bmi is 25. 183cms tall and my weight 85.1kgs.can anyone shed some light to all of this.happy new year to all as sufferers? http://answers.ankylosing.org/114980/just-got-my-bath-measurements-from-my-rheumy-basdai-84-vas-spinal-pain-63-basmi-62-basfi-65-my-bmi/ Sun, 01 Jan 2012 11:33:21 +0000 Asked by Mick Knox 1 month ago http://answers.ankylosing.org/114980/just-got-my-bath-measurements-from-my-rheumy-basdai-84-vas-spinal-pain-63-basmi-62-basfi-65-my-bmi/ I've had AS for a few years now and I read about all the drugs that people take for it. I'm taking Vicodin for the pain because the Ibuprofen I was taking caused severe Esophagitis. I'm wondering if anyone has explored or knows about any effective Alternative Therapies for this disease? http://answers.ankylosing.org/114967/ive-had-as-for-a-few-years-now-and-i-read-about-all-the-drugs-that-people-take-for-it-im-taking-vicodin/ Sat, 31 Dec 2011 22:37:00 +0000 Asked by Highwayman Joe 1 month ago http://answers.ankylosing.org/114967/ive-had-as-for-a-few-years-now-and-i-read-about-all-the-drugs-that-people-take-for-it-im-taking-vicodin/ I have been taking therapeutic narcotics for the pain for about 12 years. Now I've been told that the narcotics suppress my breathing when I sleep - up to 80% of the time! I am trying out a CPAP machine but am wondering if I should just go off them some how - any thoughts or similar experience? http://answers.ankylosing.org/114927/i-have-been-taking-therapeutic-narcotics-for-the-pain-for-about-12-years-now-ive-been-told-that-the/ Fri, 30 Dec 2011 18:46:42 +0000 Asked by Beckyg 1 month ago http://answers.ankylosing.org/114927/i-have-been-taking-therapeutic-narcotics-for-the-pain-for-about-12-years-now-ive-been-told-that-the/ Has anyone had tingling and numbness down one (or both) legs? Wondering if this is related or separate from AS... http://answers.ankylosing.org/114926/has-anyone-had-tingling-and-numbness-down-one-or-both-legs/ Fri, 30 Dec 2011 18:27:40 +0000 Asked by Joanna Reed 1 month ago http://answers.ankylosing.org/114926/has-anyone-had-tingling-and-numbness-down-one-or-both-legs/ I am interested to find out if any of you struggle with Sjogren's Syndrome. My eyes are so dry, they're developing some additional problems, and I just can't seem to find any relief. I'm allergic to Restasis, so I was never able to use it long enough to get some results? http://answers.ankylosing.org/114922/i-am-interested-to-find-out-if-any-of-you-struggle-with-sjogrens-syndrome-my-eyes-are-so-dry-theyre/ Fri, 30 Dec 2011 17:43:28 +0000 Asked by Amori99 1 month ago http://answers.ankylosing.org/114922/i-am-interested-to-find-out-if-any-of-you-struggle-with-sjogrens-syndrome-my-eyes-are-so-dry-theyre/ Hi everyone! I hope you all had a great Christmas! Just contain yourselves and do not overdo it on New Years Eve. LOL I have been diagnosed wit Lupus also. I have a long list of Auto Immune diseases, Lupus, AS, RA, Inclusion Body Myositis, Sjhogrens (hmm, spelling) and some other less important ones. I was wondering if anyone else here seems to have a lot of other Auto Immune Diseases and not just a couple, I am aware you never seem to have just one. Happy New Year to all of you? http://answers.ankylosing.org/114919/hi-everyone-i-hope-you-all-had-a-great-christmas-just-contain-yourselves-and-do-not-overdo-it-on-new/ Fri, 30 Dec 2011 14:32:07 +0000 Asked by Bonnie Breneman 1 month ago http://answers.ankylosing.org/114919/hi-everyone-i-hope-you-all-had-a-great-christmas-just-contain-yourselves-and-do-not-overdo-it-on-new/ The new RA Dr I saw yesterday seemed well informed and nice. He prescribed Meclofenamate (Meclomen) once a day for the pain and stiffness at the highest dose they offer, as well as told me to increase Tramadol to 3x a day and valume 5mg as needed. Has anyone tried Meclofenamate before? Side effects? Results? Thoughts? http://answers.ankylosing.org/114916/the-new-ra-dr-i-saw-yesterday-seemed-well-informed-and-nice-he-prescribed-meclofenamate-meclomen-once/ Fri, 30 Dec 2011 12:35:44 +0000 Asked by Brittney Brown 1 month ago http://answers.ankylosing.org/114916/the-new-ra-dr-i-saw-yesterday-seemed-well-informed-and-nice-he-prescribed-meclofenamate-meclomen-once/ How is it an auto immune disease? http://answers.ankylosing.org/114905/how-is-it-an-auto-immune-disease/ Fri, 30 Dec 2011 06:51:56 +0000 Asked by Matthew Kelly 1 month ago http://answers.ankylosing.org/114905/how-is-it-an-auto-immune-disease/ Remicade Question: I've been on it for almost a year now, when I go for my infusion, I don't feel I need it, but afterwards, I'll be quite a bit more stiff than I was before, and it will last for about 2 weeks. Has anyone else had anything like this? Think its time to shut'er down? I'm sure my insurance company would appreciate it, heh. http://answers.ankylosing.org/114868/remicade-question-ive-been-on-it-for-almost-a-year-now-when-i-go-for-my-infusion-i-dont-feel-i-need/ Thu, 29 Dec 2011 02:39:46 +0000 Asked by Dave 1 month ago http://answers.ankylosing.org/114868/remicade-question-ive-been-on-it-for-almost-a-year-now-when-i-go-for-my-infusion-i-dont-feel-i-need/ Has anyone had uvulitits from the methotrexate, I woke up yesterday with it. I really need help because I have no idea how I'm going to swollow all my pills. Is there anything I can do to make it better? http://answers.ankylosing.org/114812/has-anyone-had-uvulitits-from-the-methotrexate-i-woke-up-yesterday-with-it-i-really-need-help-because/ Wed, 28 Dec 2011 07:29:25 +0000 Asked by K.E.Spaulding 1 month ago http://answers.ankylosing.org/114812/has-anyone-had-uvulitits-from-the-methotrexate-i-woke-up-yesterday-with-it-i-really-need-help-because/ Do any of you on Humira react almost in the opposite desired fashion - where your body seems to fight back by making your symptoms worse initially? http://answers.ankylosing.org/114809/do-any-of-you-on-humira-react-almost-in-the-opposite-desired-fashion-where-your-body-seems-to-fight/ Wed, 28 Dec 2011 06:13:45 +0000 Asked by Chapps 1 month ago http://answers.ankylosing.org/114809/do-any-of-you-on-humira-react-almost-in-the-opposite-desired-fashion-where-your-body-seems-to-fight/ Does anyone know of a site that recommends good rheumatologists by state? There is only 1 rheumy in my town & I'm not pleased with my treatment. He has absolutely the worst bedside manner but when I go to any site that lists rheumatologists, his is the only name that comes up. It would be very helpful if there was a way for patients that are happy with their physician to refer others. http://answers.ankylosing.org/114807/does-anyone-know-of-a-site-that-recommends-good-rheumatologists-by-state/ Wed, 28 Dec 2011 01:39:58 +0000 Asked by Amie Davis 1 month ago http://answers.ankylosing.org/114807/does-anyone-know-of-a-site-that-recommends-good-rheumatologists-by-state/ Recently I went to my GP and told him that the Rheumatologist diagnosed me with AS and increased my Humira to weekly. It is helping! However, my doctor acted like he didn't believe me and wasn't happy about the dose increase. We have online access to our medical history and he put in my medical record that I have Osteoarthritis and Muscle Inflammation. The muscle inflammation is linked to article about Inclusion Body Myositis! This is not the first time we have argued. What do I do? http://answers.ankylosing.org/114773/recently-i-went-to-my-gp-and-told-him-that-the-rheumatologist-diagnosed-me-with-as-and-increased-my-humira/ Tue, 27 Dec 2011 05:37:17 +0000 Asked by Sunflower 1 month ago http://answers.ankylosing.org/114773/recently-i-went-to-my-gp-and-told-him-that-the-rheumatologist-diagnosed-me-with-as-and-increased-my-humira/ Merry Xmas, I need to regain my ability to cope. I have been fighting AS for a very long time and the scars from living with chronic pain are many. This disease has affected every aspect of my life. Thirty-eight years working, 2 relationships (30+ years) and financially stability are gone. Besides the physical, please be aware of these other damages. Pain can cause me to react poorly (an as#$@h*le). Now, any ideas on how to cope? http://answers.ankylosing.org/114725/merry-xmas-i-need-to-regain-my-ability-to-cope-i-have-been-fighting-as-for-a-very-long-time-and-the/ Mon, 26 Dec 2011 07:34:51 +0000 Asked by Loren Youk 2 months ago http://answers.ankylosing.org/114725/merry-xmas-i-need-to-regain-my-ability-to-cope-i-have-been-fighting-as-for-a-very-long-time-and-the/ Merry Christmas and Happy Holidays to my AS Community. What is everyone doing for the holidays? http://answers.ankylosing.org/114716/merry-christmas-and-happy-holidays-to-my-as-community-what-is-everyone-doing-for-the-holidays/ Sun, 25 Dec 2011 22:09:56 +0000 Asked by Carly Clark Lapp 2 months ago http://answers.ankylosing.org/114716/merry-christmas-and-happy-holidays-to-my-as-community-what-is-everyone-doing-for-the-holidays/ Any AS/PsA sufferers out there also suffer from syringomyelia? My neurological issues keep getting worse, and my neurologist is baffled that I'd have both disorders, is referring me to Mayo Clinic. Anyone else have unexplained tremors/weakness? http://answers.ankylosing.org/114700/any-aspsa-sufferers-out-there-also-suffer-from-syringomyelia/ Sun, 25 Dec 2011 12:01:45 +0000 Asked by Mark Kindy 2 months ago http://answers.ankylosing.org/114700/any-aspsa-sufferers-out-there-also-suffer-from-syringomyelia/ Hello I have a question for everyone. I was diagnosed with AS 10 or so years ago and have just started Humira a month ago and that is going great mind you my apatite has increased 10 fold ( not sure if this is a side affect) But my question is before starting hum aria my shoulders started hurting so bad that I can barely sleep and it has not changed since the hum aria does any one else have problems with their shoulders? http://answers.ankylosing.org/114695/hello-i-have-a-question-for-everyone-i-was-diagnosed-with-as-10-or-so-years-ago-and-have-just-started/ Sun, 25 Dec 2011 02:55:56 +0000 Asked by Ray Manning 2 months ago http://answers.ankylosing.org/114695/hello-i-have-a-question-for-everyone-i-was-diagnosed-with-as-10-or-so-years-ago-and-have-just-started/ I haven' t looked back on older threads. But, does anyone here suffer from As and Scoliosis? It seems where my curve is pain begins so easy when I do anything,from bending,sittingetc. http://answers.ankylosing.org/114694/i-haven-t-looked-back-on-older-threads-but-does-anyone-here-suffer-from-as-and-scoliosis/ Sun, 25 Dec 2011 02:20:25 +0000 Asked by Tammy Mcnaught 2 months ago http://answers.ankylosing.org/114694/i-haven-t-looked-back-on-older-threads-but-does-anyone-here-suffer-from-as-and-scoliosis/ Does anyone here "throw their back out" or neck often? Because of AS? http://answers.ankylosing.org/114682/does-anyone-here-throw-their-back-out-or-neck-often/ Sat, 24 Dec 2011 04:55:28 +0000 Asked by Kelly 2 months ago http://answers.ankylosing.org/114682/does-anyone-here-throw-their-back-out-or-neck-often/ I go see my RA dr next week and he wants to try me on Plaquenil. I was just wondering if anyone has had improvement with their AS pain while on this drug? I also have the option of taking celebrex. He gave me a sample of that to start now until I get the eye exam for the plaquenil. I felt good for about 3 weeks with no pain meds and now the pain is back and I am stiff as a board. Need relief for my lower spine quick! http://answers.ankylosing.org/114672/i-go-see-my-ra-dr-next-week-and-he-wants-to-try-me-on-plaquenil-i-was-just-wondering-if-anyone-has-had/ Fri, 23 Dec 2011 20:42:09 +0000 Asked by Brittney Brown 2 months ago http://answers.ankylosing.org/114672/i-go-see-my-ra-dr-next-week-and-he-wants-to-try-me-on-plaquenil-i-was-just-wondering-if-anyone-has-had/ Has anyone tried acupuncture and got any relief? I am on my 3rd session along with herbs but it is said to take a while longer because my pain is severe and I've had it for a year. My pain is mostly in my feet (heels, ankles, toes) and the back of my upper leg and lower/middle spine sometimes neck. http://answers.ankylosing.org/114657/has-anyone-tried-acupuncture-and-got-any-relief/ Fri, 23 Dec 2011 12:07:06 +0000 Asked by Melissa Wilkinson 2 months ago http://answers.ankylosing.org/114657/has-anyone-tried-acupuncture-and-got-any-relief/ I encourage you all to try a low-starch diet for a few weeks to see what happens. Eliminate all refined flours, such as bread, pasta, etc. Keep other simple starches such as potatoes and rice to a minimum. I've done this on and off and over the past year, my pain and stiffness have been on and off in tandem. Now I really do believe there is a connection. Anyone else try it? http://answers.ankylosing.org/114655/i-encourage-you-all-to-try-a-low-starch-diet-for-a-few-weeks-to-see-what-happens-eliminate-all-refined/ Fri, 23 Dec 2011 11:33:38 +0000 Asked by Pete Carmichael 2 months ago http://answers.ankylosing.org/114655/i-encourage-you-all-to-try-a-low-starch-diet-for-a-few-weeks-to-see-what-happens-eliminate-all-refined/ I am newly diagnosed AS. The Rheum. Put me on Mobid 7.5mg and Sulfasalazin 500mg. I haven't taken them yet, it has been 24 hours since I filled them. I have heard negative things about the medication for the treatment of AS. I have a friend who has Lupus and she is on 40 medications. I don't want to get into a "stacking" of medications to counter side effects. Is there anyone out there that is doing a homeopathic approach? If so, what are you doing and is it helping? http://answers.ankylosing.org/114648/i-am-newly-diagnosed-as-the-rheum-put-me-on-mobid-75mg-and-sulfasalazin-500mg-i-havent-taken-them/ Fri, 23 Dec 2011 01:04:09 +0000 Asked by Carly Clark Lapp 2 months ago http://answers.ankylosing.org/114648/i-am-newly-diagnosed-as-the-rheum-put-me-on-mobid-75mg-and-sulfasalazin-500mg-i-havent-taken-them/ Ive only had 1 rheumy and wondering if he is doing what he should be doing for me. What does your Dr do when you have your check up? I go every 3-months, ask me how I am doing? Feel joints in fingers, toes and look at ankles, nurse takes blood pressure, oxygen levels and temp. I feel like I am havng a hard time breathing adn my eyes are always red and hurt - every time I tell him I dont think Enbrel is working, he wants to put me on Remicade infusions, which I can not afford! Suggestions? http://answers.ankylosing.org/114623/ive-only-had-1-rheumy-and-wondering-if-he-is-doing-what-he-should-be-doing-for-me-what-does-your-dr/ Thu, 22 Dec 2011 13:01:12 +0000 Asked by Jenni 2 months ago http://answers.ankylosing.org/114623/ive-only-had-1-rheumy-and-wondering-if-he-is-doing-what-he-should-be-doing-for-me-what-does-your-dr/ Hey i have had as noe for about 4 years and havnt been able 2 work at all as it not only affects my spine but also makes my feet swell up so i cant hardly walk. Does anybody knw if i can claim dla for this cause im finding it very hard at the mo? http://answers.ankylosing.org/114597/hey-i-have-had-as-noe-for-about-4-years-and-havnt-been-able-2-work-at-all-as-it-not-only-affects-my-spine/ Wed, 21 Dec 2011 19:32:42 +0000 Asked by Lee Joshua 2 months ago http://answers.ankylosing.org/114597/hey-i-have-had-as-noe-for-about-4-years-and-havnt-been-able-2-work-at-all-as-it-not-only-affects-my-spine/ Just saw my Rheumatologist for an Enbrel check up today. I described symptoms of weakness in my arms and legs and drowsiness, for the last two weeks. He has immediately diagnosed me with MS and has halted the Enbrel Treatment immediately. I wonder how many others have had these symptoms from taking Enbrel? http://answers.ankylosing.org/114583/just-saw-my-rheumatologist-for-an-enbrel-check-up-today-i-described-symptoms-of-weakness-in-my-arms/ Wed, 21 Dec 2011 08:04:51 +0000 Asked by Michael Candy 2 months ago http://answers.ankylosing.org/114583/just-saw-my-rheumatologist-for-an-enbrel-check-up-today-i-described-symptoms-of-weakness-in-my-arms/ How often do you get cortisone shots? Not sure of the Rx name - I need to call my rhuemy and see if I can get another this week - its been 4-months adn my ankle and shoulder hurt so bad I can not sleep! http://answers.ankylosing.org/114552/how-often-do-you-get-cortisone-shots/ Tue, 20 Dec 2011 14:24:34 +0000 Asked by Jenni 2 months ago http://answers.ankylosing.org/114552/how-often-do-you-get-cortisone-shots/ Anyone have trouble with dry eyes (more than usual, in my case) on sulfasalazine? I have had some eye pain over one eye that could be migraine/headache from the new sulphur drug (I am on the second week : Two tabs per day), red in corner and one red line to the iris but certainly not the full bloodshot red or iritis. Any ideas? Probably too close to Christmas to get in to the opthalmologist. Some ibuprofen has relieved it but my eye is still sore. http://answers.ankylosing.org/114505/anyone-have-trouble-with-dry-eyes-more-than-usual-in-my-case-on-sulfasalazine-i-have-had-some-eye/ Mon, 19 Dec 2011 01:25:50 +0000 Asked by Sari 2 months ago http://answers.ankylosing.org/114505/anyone-have-trouble-with-dry-eyes-more-than-usual-in-my-case-on-sulfasalazine-i-have-had-some-eye/ Christmas Parties - Do you limit what you do during the holidays? I went to a work xmas party, dinner. We sat in banquet chairs for 3-hours for dinner, awards, etc. Today, I am in such a bad flare, everything hurts and I am so tired. Not like I was dancing or anything! Geeze o'Pete! Anyway, just wondered how others handle social gatherings! Happy Holidays ALL http://answers.ankylosing.org/114474/christmas-parties-do-you-limit-what-you-do-during-the-holidays/ Sat, 17 Dec 2011 23:28:55 +0000 Asked by Jenni 2 months ago http://answers.ankylosing.org/114474/christmas-parties-do-you-limit-what-you-do-during-the-holidays/ Does anyone here get injured often do to AS? http://answers.ankylosing.org/114458/does-anyone-here-get-injured-often-do-to-as/ Sat, 17 Dec 2011 06:33:02 +0000 Asked by Kelly 2 months ago http://answers.ankylosing.org/114458/does-anyone-here-get-injured-often-do-to-as/ Picked up a lung bug of some sorts and have been sick for almost three weeks. I have also been off my methotrexate and humira for that time until I get better. If I had any doubts about those two medicines working they are now gone. I am very sore and swelled up everywhere and feel sick on top of that. I cursed those two medicines a month ago but I miss them now. Anyone else get sick lately and go off meds? http://answers.ankylosing.org/114450/picked-up-a-lung-bug-of-some-sorts-and-have-been-sick-for-almost-three-weeks-i-have-also-been-off-my/ Sat, 17 Dec 2011 02:40:01 +0000 Asked by Jason Ferguson 2 months ago http://answers.ankylosing.org/114450/picked-up-a-lung-bug-of-some-sorts-and-have-been-sick-for-almost-three-weeks-i-have-also-been-off-my/ Has anyone every tried using a SI joint support? I had tried a "belt" type support before but found the pressure on my back, pelvis and SI joints to be too much, lately i've started looking at them again because I really would just like some relief. There is one made by BREG that looks very interesting, I always had great luck with their knee braces when I was younger. I am just not sure because i've heard mixed things about bracing a back that may already be trying to fuse! Anyone? http://answers.ankylosing.org/114355/has-anyone-every-tried-using-a-si-joint-support/ Wed, 14 Dec 2011 00:11:47 +0000 Asked by Lindsay Cairns 2 months ago http://answers.ankylosing.org/114355/has-anyone-every-tried-using-a-si-joint-support/ I am a domestic violence and sexual assault victim advocate and am in a training about helping survivors develop healthy coping skills. Here is the first tip from our (really wonderful) presenter. I think these translate well to developing coping skills for dealing with chronic pain. What do you think? Maybe we could have a chat about each tip and share our techniques? Here's the first one: -Engage entire body and all 5 senses http://answers.ankylosing.org/114342/i-am-a-domestic-violence-and-sexual-assault-victim-advocate-and-am-in-a-training-about-helping-survivors/ Tue, 13 Dec 2011 18:50:46 +0000 Asked by Audra Fullerton 2 months ago http://answers.ankylosing.org/114342/i-am-a-domestic-violence-and-sexual-assault-victim-advocate-and-am-in-a-training-about-helping-survivors/ I just saw my doctor and told her about how much pain im in and how my level of function is declining. Everything is getting worse...my pain, FATIGUE, inflammation. She ordered new blood tests, mris and xrays that I have to get done tomorrow to see if I should be on humira or remicade...which my bloodwork has already indicated. Im. Going to see a pain mgmt doctor soon and I was wondering. If anyone has tried the Fentanyl patch and what is a good dose to start out on for severe pain? Suggestions? http://answers.ankylosing.org/114321/i-just-saw-my-doctor-and-told-her-about-how-much-pain-im-in-and-how-my-level-of-function-is-declining/ Tue, 13 Dec 2011 02:01:28 +0000 Asked by Karly Sevinsky 2 months ago http://answers.ankylosing.org/114321/i-just-saw-my-doctor-and-told-her-about-how-much-pain-im-in-and-how-my-level-of-function-is-declining/ HI, I was diagnosed 10 years ago when I had Iritis and gene tested positive. I have been lucky until now. I felt extreme fatigue and pain in my shoulders and rib cage at first now my back is aching and stiff also. I have been off work a week as my job is physically demanding. On average how long does this last. I'm not on medication but seeing doctor tomorrow? http://answers.ankylosing.org/114251/hi-i-was-diagnosed-10-years-ago-when-i-had-iritis-and-gene-tested-positive-i-have-been-lucky-until/ Sun, 11 Dec 2011 22:24:33 +0000 Asked by Joanne Leyshon 2 months ago http://answers.ankylosing.org/114251/hi-i-was-diagnosed-10-years-ago-when-i-had-iritis-and-gene-tested-positive-i-have-been-lucky-until/ I don't know if this is AS related but it seems to have started about the same time the remission ended. I have an over-sensitive gag reflex for some reason. My dentist couldn't take x-rays, I was gagging on the films. Every time I brush me teeth, I gag for minutes afterwards. Sometimes just thinking about it makes me gag. I do experience nausea quite often but mostly, it's just lack of appetite. Has anyone experienced a similar symptom? http://answers.ankylosing.org/114186/i-dont-know-if-this-is-as-related-but-it-seems-to-have-started-about-the-same-time-the-remission-ended/ Sat, 10 Dec 2011 15:17:31 +0000 Asked by Amie Davis 2 months ago http://answers.ankylosing.org/114186/i-dont-know-if-this-is-as-related-but-it-seems-to-have-started-about-the-same-time-the-remission-ended/ I don't know how to keep my spirits up any more. My best friend who is dealing with cancer saw my meds on my dresser and said it's way more then what he takes. What will AS be like if I reach old age? If it's this bad now how much more worse will it be? http://answers.ankylosing.org/114182/i-dont-know-how-to-keep-my-spirits-up-any-more-my-best-friend-who-is-dealing-with-cancer-saw-my-meds/ Sat, 10 Dec 2011 12:10:19 +0000 Asked by Parker 2 months ago http://answers.ankylosing.org/114182/i-dont-know-how-to-keep-my-spirits-up-any-more-my-best-friend-who-is-dealing-with-cancer-saw-my-meds/ Do any of you feel crooked? My spine started fusing when I was young so I have always been a little crooked but lately I can really tell. When I walk, stand, sit, or lay down. http://answers.ankylosing.org/114169/do-any-of-you-feel-crooked/ Sat, 10 Dec 2011 00:02:13 +0000 Asked by Samantha Peterson 2 months ago http://answers.ankylosing.org/114169/do-any-of-you-feel-crooked/ Whew! My rheumy agreed to double my dosage of Humira, and it's been a huge success. I'm finally getting benefits. Anyone else had similar success with taking Humira weekly? http://answers.ankylosing.org/114159/whew-my-rheumy-agreed-to-double-my-dosage-of-humira-and-its-been-a-huge-success-im-finally-getting/ Fri, 09 Dec 2011 19:46:35 +0000 Asked by Chapps 2 months ago http://answers.ankylosing.org/114159/whew-my-rheumy-agreed-to-double-my-dosage-of-humira-and-its-been-a-huge-success-im-finally-getting/ Insurance change to Nor Cal Kaiser. We will have the $20 co-pay plan. The Kaiser help line couldn't give me an answer on how TFN-blockers will work. Will they be under formulary or do you personally cover a percentage of the meds? I'm going from solid PPO to Kaiser so want to be prepared. http://answers.ankylosing.org/114073/insurance-change-to-nor-cal-kaiser-we-will-have-the-20-co-pay-plan-the-kaiser-help-line-couldnt-give/ Thu, 08 Dec 2011 21:08:28 +0000 Asked by Mark South 2 months ago http://answers.ankylosing.org/114073/insurance-change-to-nor-cal-kaiser-we-will-have-the-20-co-pay-plan-the-kaiser-help-line-couldnt-give/ I am just curious if anyone has, or knows someone you has, had surgical spinal fusion to help with AS? I am not having any luck with Humira, Remicade, Enrbel, and all the others an the pain is getting unbearable. I really DO NOT want surgery but at the rate I am going I won't be able to sit at a desk due to the pain in about a year so I want to start investigating other options. My main concern is that the AS will just move to another joint more quickly than before. http://answers.ankylosing.org/113908/i-am-just-curious-if-anyone-has-or-knows-someone-you-has-had-surgical-spinal-fusion-to-help-with-a/ Wed, 07 Dec 2011 08:25:55 +0000 Asked by Randy Tate 2 months ago http://answers.ankylosing.org/113908/i-am-just-curious-if-anyone-has-or-knows-someone-you-has-had-surgical-spinal-fusion-to-help-with-a/ Can anyone give their experience or success when taking flexeril for muscle pain? I was just given it to help relax my muscles during sleep--it is new for me and just curious of any good/bad reactions or outcomes. http://answers.ankylosing.org/113877/can-anyone-give-their-experience-or-success-when-taking-flexeril-for-muscle-pain/ Tue, 06 Dec 2011 20:50:06 +0000 Asked by Joni 2 months ago http://answers.ankylosing.org/113877/can-anyone-give-their-experience-or-success-when-taking-flexeril-for-muscle-pain/ I have just been recently diagnosed with AS. I was wondering if anyone with AS on here is a vegan? I am reading the book called "The China Study" and I am seeing a lot of relation to certain diets and autoimmune disorders such as AS. Has anyone ever heard of this? http://answers.ankylosing.org/113873/i-have-just-been-recently-diagnosed-with-as-i-was-wondering-if-anyone-with-as-on-here-is-a-vegan/ Tue, 06 Dec 2011 18:13:39 +0000 Asked by Daniel 2 months ago http://answers.ankylosing.org/113873/i-have-just-been-recently-diagnosed-with-as-i-was-wondering-if-anyone-with-as-on-here-is-a-vegan/ My blood test revealed C-reactive protein of 3.47 mg/L, the reference range is from 0-3 mg/L. Is it normal? How high were your levels of c-reactive protein? http://answers.ankylosing.org/113866/my-blood-test-revealed-c-reactive-protein-of-347-mgl-the-reference-range-is-from-0-3-mgl-is-it-norma/ Tue, 06 Dec 2011 15:46:31 +0000 Asked by Jesus22 2 months ago http://answers.ankylosing.org/113866/my-blood-test-revealed-c-reactive-protein-of-347-mgl-the-reference-range-is-from-0-3-mgl-is-it-norma/ I have a crunchy wrist, is that a symptom of AS? http://answers.ankylosing.org/113865/i-have-a-crunchy-wrist-is-that-a-symptom-of-as/ Tue, 06 Dec 2011 15:39:14 +0000 Asked by Jesus22 2 months ago http://answers.ankylosing.org/113865/i-have-a-crunchy-wrist-is-that-a-symptom-of-as/ Do you have to test positive for the gene in your blood to have A.S? My rheumy said i don't have A.S now because i didn't test positive for the gene. But still all the other doctors think he's wrong. What do you guys think? Doesn't that mean I should be and feel better now right? http://answers.ankylosing.org/113862/do-you-have-to-test-positive-for-the-gene-in-your-blood-to-have-as-my-rheumy-said-i-dont-have-as/ Tue, 06 Dec 2011 13:50:04 +0000 Asked by Steffie Jo 2 months ago http://answers.ankylosing.org/113862/do-you-have-to-test-positive-for-the-gene-in-your-blood-to-have-as-my-rheumy-said-i-dont-have-as/ Anyone have an opinion on the following diet related TV program airing right now in the UK foodhospital.channel4.com/conditions/ankylosing-spondylitis/ http://answers.ankylosing.org/113856/anyone-have-an-opinion-on-the-following-diet-related-tv-program-airing-right-now-in-the-uk-a-hrefhttpfoodhospitalchannel4comconditionsankylosing-spondylitislow-starch-diet/ Tue, 06 Dec 2011 12:45:24 +0000 Asked by Kathy 2 months ago http://answers.ankylosing.org/113856/anyone-have-an-opinion-on-the-following-diet-related-tv-program-airing-right-now-in-the-uk-a-hrefhttpfoodhospitalchannel4comconditionsankylosing-spondylitislow-starch-diet/ I recently took an anti-viral medicine called acyclovir and noticed a rapid reduction of my symptoms which include chest pain, rib pain, stiffness and pain along the spine and low back/sciatica pain on one side or the other. Has anyone else experienced this? Could it be that AS is somehow related to a viral infection? http://answers.ankylosing.org/113841/i-recently-took-an-anti-viral-medicine-called-acyclovir-and-noticed-a-rapid-reduction-of-my-symptoms/ Tue, 06 Dec 2011 11:05:17 +0000 Asked by Karen Wolberger 2 months ago http://answers.ankylosing.org/113841/i-recently-took-an-anti-viral-medicine-called-acyclovir-and-noticed-a-rapid-reduction-of-my-symptoms/ Has anyone had pneumonia since being on remicade? I've had a follow up xray and still have a spot on my lung now i have to have a c.t. Scan and possibly see a lung specialist. Anyone else had issues like this http://answers.ankylosing.org/113780/has-anyone-had-pneumonia-since-being-on-remicade/ Mon, 05 Dec 2011 05:29:00 +0000 Asked by Karen Davenport 2 months ago http://answers.ankylosing.org/113780/has-anyone-had-pneumonia-since-being-on-remicade/ Funny Truths: Most people lather in lotion, after a hot shower - I lather in Bengay! Any other funny truths that youll admit to for relief! *just found scentless Bengay* Thank goodness! LOL? http://answers.ankylosing.org/113767/funny-truths-most-people-lather-in-lotion-after-a-hot-shower-i-lather-in-bengay-any-other-funny/ Mon, 05 Dec 2011 03:00:44 +0000 Asked by Jenni 2 months ago http://answers.ankylosing.org/113767/funny-truths-most-people-lather-in-lotion-after-a-hot-shower-i-lather-in-bengay-any-other-funny/ How many here has tried gluten free? www.glutenfreesociety.org/gluten-free-society-blog/ankylosin http://answers.ankylosing.org/113631/how-many-here-has-tried-gluten-free-a-hrefhttpwwwglutenfreesocietyorggluten-free-society-blogankylosing-spondylitis-as-uveitis-and-asthma-resolved-on-gluten-free-die/ Sun, 04 Dec 2011 03:26:42 +0000 Asked by Hanna 2 months ago http://answers.ankylosing.org/113631/how-many-here-has-tried-gluten-free-a-hrefhttpwwwglutenfreesocietyorggluten-free-society-blogankylosing-spondylitis-as-uveitis-and-asthma-resolved-on-gluten-free-die/ Starting to lose vision in my right eye at the moment. Had one Opthalmologist tell me eyes were fine and it was the glasses? A further visit to my Optometrist revealed a marginal deficiency in my right eye. Any one else had loss of vision?, whether it be partial or permanent. http://answers.ankylosing.org/113612/starting-to-lose-vision-in-my-right-eye-at-the-moment-had-one-opthalmologist-tell-me-eyes-were-fine/ Sun, 04 Dec 2011 00:00:42 +0000 Asked by Michael Candy 2 months ago http://answers.ankylosing.org/113612/starting-to-lose-vision-in-my-right-eye-at-the-moment-had-one-opthalmologist-tell-me-eyes-were-fine/ Does any one take Enbrel? Or other TNF blockers? How long and what side effects? I'm sorry I've ready too many accounts of people getting cancer from it. Any thoughts? I told my Rheumy no but she insists I research it more. http://answers.ankylosing.org/113597/does-any-one-take-enbrel-or-other-tnf-blockers-how-long-and-what-side-effects-im-sorry-ive-ready/ Sat, 03 Dec 2011 14:03:14 +0000 Asked by Melissa Wilkinson 2 months ago http://answers.ankylosing.org/113597/does-any-one-take-enbrel-or-other-tnf-blockers-how-long-and-what-side-effects-im-sorry-ive-ready/ I've always had where if my ribs are touched they hurt extremely bad like they were just stabbed or hit really hard. Any one else experience this? http://answers.ankylosing.org/113596/ive-always-had-where-if-my-ribs-are-touched-they-hurt-extremely-bad-like-they-were-just-stabbed-or-hit/ Sat, 03 Dec 2011 13:59:17 +0000 Asked by Melissa Wilkinson 2 months ago http://answers.ankylosing.org/113596/ive-always-had-where-if-my-ribs-are-touched-they-hurt-extremely-bad-like-they-were-just-stabbed-or-hit/ Has anyone here ever had headaches so bad they can't see straight or walk and it feels like your skull is being cracked open? I had to go to the hospital the other night and then to a neurologist who thinks it could be related to AS. http://answers.ankylosing.org/113542/has-anyone-here-ever-had-headaches-so-bad-they-cant-see-straight-or-walk-and-it-feels-like-your-skull/ Fri, 02 Dec 2011 12:04:25 +0000 Asked by Susan Skelly 2 months ago http://answers.ankylosing.org/113542/has-anyone-here-ever-had-headaches-so-bad-they-cant-see-straight-or-walk-and-it-feels-like-your-skull/ How often do you get flare ups and how long do they last? http://answers.ankylosing.org/113496/how-often-do-you-get-flare-ups-and-how-long-do-they-last/ Thu, 01 Dec 2011 23:26:08 +0000 Asked by Kelly 2 months ago http://answers.ankylosing.org/113496/how-often-do-you-get-flare-ups-and-how-long-do-they-last/ I'm being tested for AS. Do these symptoms sound AS-related? Low back stiffness and pain (pain moves around but concentrates at lower spine), stiff hip joints, swollen ankles, sore knees, calf cramps, tendonitis? Going for blood tests tomorrow. Thanks! http://answers.ankylosing.org/113476/im-being-tested-for-as-do-these-symptoms-sound-as-related-low-back-stiffness-and-pain-pain-moves/ Thu, 01 Dec 2011 12:03:40 +0000 Asked by Ouro 2 months ago http://answers.ankylosing.org/113476/im-being-tested-for-as-do-these-symptoms-sound-as-related-low-back-stiffness-and-pain-pain-moves/ New Rheumy (insurance)MRI of the sac joints and low back which came back normal--Showed no AS changes (thankful) but he says active AS is not the cause of my ongoing pain. My other DR (who I loved) told me that I have an aggressive form of AS. I'm a female-45-from what I've read, our sac joints are sometimes the LAST to show AS. My neck, shoulder and knee KILL! Seeing an ortho! Oh, and he said my blood work says no inflammation-my ankles are big as my knees my fingers are swollen? http://answers.ankylosing.org/113462/new-rheumy-insurancemri-of-the-sac-joints-and-low-back-which-came-back-normal-showed-no-as-changes/ Thu, 01 Dec 2011 08:09:05 +0000 Asked by Meloni Thompson-Thompson 2 months ago http://answers.ankylosing.org/113462/new-rheumy-insurancemri-of-the-sac-joints-and-low-back-which-came-back-normal-showed-no-as-changes/ This has been asked before but not many responses. Has anybody tried Low Dose Naltrexone (LDN) or on it now? I have a friend with MS who has been on it for about 2 months and other than a few headaches it is helping tremendously with his tremors. He knew I had AS and was telling about it. Going to bring it up with my Rhemy. To be able to drop the infusion and take a pill would be a dream. http://answers.ankylosing.org/113440/this-has-been-asked-before-but-not-many-responses-has-anybody-tried-low-dose-naltrexone-ldn-or-on/ Wed, 30 Nov 2011 21:56:02 +0000 Asked by D 2 months ago http://answers.ankylosing.org/113440/this-has-been-asked-before-but-not-many-responses-has-anybody-tried-low-dose-naltrexone-ldn-or-on/ What does it feel like, and how do you know if your bones are starting to fuse? http://answers.ankylosing.org/113398/what-does-it-feel-like-and-how-do-you-know-if-your-bones-are-starting-to-fuse/ Tue, 29 Nov 2011 23:00:58 +0000 Asked by Kelly 2 months ago http://answers.ankylosing.org/113398/what-does-it-feel-like-and-how-do-you-know-if-your-bones-are-starting-to-fuse/ Anyone trying to manage without meds? I was diagnosed 2 years ago and have been trying to manage with exercise and some diet modifications.. Its hard, and im wondering if there are other people out there doing the same? http://answers.ankylosing.org/113397/anyone-trying-to-manage-without-meds/ Tue, 29 Nov 2011 22:57:25 +0000 Asked by Kelly 2 months ago http://answers.ankylosing.org/113397/anyone-trying-to-manage-without-meds/ How does pregnacy and Ankylosing Spondylitis affect a healthy pregnancy? http://answers.ankylosing.org/113395/how-does-pregnacy-and-ankylosing-spondylitis-affect-a-healthy-pregnancy/ Tue, 29 Nov 2011 20:35:33 +0000 Asked by Stormy Deal 2 months ago http://answers.ankylosing.org/113395/how-does-pregnacy-and-ankylosing-spondylitis-affect-a-healthy-pregnancy/ My medication is changing yet again. I started on Tramadol but caused me issues with urinating. Then I went to Darvocet, they may as well have just given me M&Ms or Skittles as it did absolutely nothing for the pain. Hydrocodone came next and after building a tolerance to it I was switched to oxycodone which helped but only lasted for 2 - 3 hours and I will not take a pain pill more often than prescribed under any condition. Today I was given MSContin, has anyone had relief with that? http://answers.ankylosing.org/113393/my-medication-is-changing-yet-again-i-started-on-tramadol-but-caused-me-issues-with-urinating-then/ Tue, 29 Nov 2011 18:30:49 +0000 Asked by Ryan Davis 2 months ago http://answers.ankylosing.org/113393/my-medication-is-changing-yet-again-i-started-on-tramadol-but-caused-me-issues-with-urinating-then/ Anyone ever heard of the Bath Ankylosing Spondylitis Disease Activity Index (www.basdai.com/BASDAI.php) or Bath Ankylosing Spondylitis Functional Index (www.basdai.com/BASFI.php). Might be helpful to fill out and take to your doctor, especially if you haven't been diagnosed? http://answers.ankylosing.org/113385/anyone-ever-heard-of-the-bath-ankylosing-spondylitis-disease-activity-index-a-hrefhttpwwwbasdaicombasdaiphp/ Tue, 29 Nov 2011 14:09:48 +0000 Asked by Linda 2 months ago http://answers.ankylosing.org/113385/anyone-ever-heard-of-the-bath-ankylosing-spondylitis-disease-activity-index-a-hrefhttpwwwbasdaicombasdaiphp/ Does anyone know how this ankylosing affects the heart. I have severe heart palpitations and pressure that last for hours. Thanks, Megan? http://answers.ankylosing.org/113380/does-anyone-know-how-this-ankylosing-affects-the-heart-i-have-severe-heart-palpitations-and-pressure/ Tue, 29 Nov 2011 13:03:20 +0000 Asked by Megan Buck 2 months ago http://answers.ankylosing.org/113380/does-anyone-know-how-this-ankylosing-affects-the-heart-i-have-severe-heart-palpitations-and-pressure/ My ankles are swelling up. Below the ankle and above the ankle. Looking rather gross now and I am wondering if anyone else gets this and does it go away? How do you get rid of it? http://answers.ankylosing.org/113336/my-ankles-are-swelling-up-below-the-ankle-and-above-the-ankle-looking-rather-gross-now-and-i-am-wondering/ Mon, 28 Nov 2011 16:26:40 +0000 Asked by Carmen 3 months ago http://answers.ankylosing.org/113336/my-ankles-are-swelling-up-below-the-ankle-and-above-the-ankle-looking-rather-gross-now-and-i-am-wondering/ Hello Everyone, I get my Rhemicade Infusions every 6 weeks. It works like a miracle drug. I have fusions going on in my chest, Neck, hips, knees, and feet. When I get to the end of 5 weeks with one week to go before my infusion, I get Flares in just about all these areas. My question: Does any one out there have any of these same symptons? http://answers.ankylosing.org/113263/hello-everyone-i-get-my-rhemicade-infusions-every-6-weeks-it-works-like-a-miracle-drug-i-have-fusions/ Sun, 27 Nov 2011 12:56:58 +0000 Asked by Gary Purdy 3 months ago http://answers.ankylosing.org/113263/hello-everyone-i-get-my-rhemicade-infusions-every-6-weeks-it-works-like-a-miracle-drug-i-have-fusions/ Please be aware. A positive HLA-B27 test does not mean you have AS or that you will get AS. Most people with this gene do not get symptoms or a diagnosis of AS. As one rheumatologist put it: HLA B27 is part of the ASAS classificatory criteria for axial spondyloarthritis, but it isn't an obligatory item. This means you don't need to have the gene to have the disease. It also means the genetic test is just one of many criteria that point to a diagnosis of ankylosing spondylitis? http://answers.ankylosing.org/113241/please-be-aware-a-positive-hla-b27-test-does-not-mean-you-have-as-or-that-you-will-get-as-most-people/ Sun, 27 Nov 2011 08:31:50 +0000 Asked by Stephen 3 months ago http://answers.ankylosing.org/113241/please-be-aware-a-positive-hla-b27-test-does-not-mean-you-have-as-or-that-you-will-get-as-most-people/ Hey all, I have recently been experiencing neck, throat, and sinus discomfort, Doctor is treating me for Sinitus but my symptoms are getting worse, waiting for appointment from ENT but was curious if it could be AS related, my DR doesn't think so, but I dont 100% trust her as she doesn't know enough about AS. Wake up with burning @ back of throat, sore neck (tingling feeling at top of spine occasionally), Which throughout the day becomes a sore throat, Im only on NSAID's and Codine? http://answers.ankylosing.org/113230/hey-all-i-have-recently-been-experiencing-neck-throat-and-sinus-discomfort-doctor-is-treating-me/ Sun, 27 Nov 2011 06:20:29 +0000 Asked by Peter Sorley 3 months ago http://answers.ankylosing.org/113230/hey-all-i-have-recently-been-experiencing-neck-throat-and-sinus-discomfort-doctor-is-treating-me/ Everytime I eat salty foods at night, I wake up with either hand puffy and tingly, does anyone know why? http://answers.ankylosing.org/113195/everytime-i-eat-salty-foods-at-night-i-wake-up-with-either-hand-puffy-and-tingly-does-anyone-know-why/ Sat, 26 Nov 2011 14:38:45 +0000 Asked by Kirksgal44 3 months ago http://answers.ankylosing.org/113195/everytime-i-eat-salty-foods-at-night-i-wake-up-with-either-hand-puffy-and-tingly-does-anyone-know-why/ Did anyone start off with foot problems before back pain? I have extreme pain on the bottom of my heels and the back of the left heel also my right ankle, etc. My dad has AS and I have HBLA27. I think I might have it. So anyone else feel my foot pain? http://answers.ankylosing.org/113158/did-anyone-start-off-with-foot-problems-before-back-pain/ Sat, 26 Nov 2011 03:20:02 +0000 Asked by Melissa Wilkinson 3 months ago http://answers.ankylosing.org/113158/did-anyone-start-off-with-foot-problems-before-back-pain/ Hi Happy Turkey day Everyone. Big Question here does anyone have MS along wit ur AS? http://answers.ankylosing.org/113005/hi-happy-turkey-day-everyone-big-question-here-does-anyone-have-ms-along-wit-ur-as/ Thu, 24 Nov 2011 00:43:27 +0000 Asked by John Johnson 3 months ago http://answers.ankylosing.org/113005/hi-happy-turkey-day-everyone-big-question-here-does-anyone-have-ms-along-wit-ur-as/ Anyone here have Psoriatic Athritis/ Psoriatic Spondylitis? I am having breathing problems and my toes feel like cardboard! http://answers.ankylosing.org/112977/anyone-here-have-psoriatic-athritis-psoriatic-spondylitis/ Wed, 23 Nov 2011 05:37:49 +0000 Asked by Mary Anna 3 months ago http://answers.ankylosing.org/112977/anyone-here-have-psoriatic-athritis-psoriatic-spondylitis/ Hi, does anyone experience the rib pain around the stomach(organ) area, when you sit for a long time and you eat heavy foods like burgers? And I often feel my body rotating to the right side from the neck to toe especially my right shoulder, chest, rib and hips. http://answers.ankylosing.org/112966/hi-does-anyone-experience-the-rib-pain-around-the-stomachorgan-area-when-you-sit-for-a-long-time/ Tue, 22 Nov 2011 20:22:44 +0000 Asked by Min.s 3 months ago http://answers.ankylosing.org/112966/hi-does-anyone-experience-the-rib-pain-around-the-stomachorgan-area-when-you-sit-for-a-long-time/ Anyone on fentanyl patches? Do they work for you at all? I started at 25 mcg a month ago and I'm in so much pain that suicide is an option! May I ask your dose? http://answers.ankylosing.org/112963/anyone-on-fentanyl-patches-do-they-work-for-you-at-all/ Tue, 22 Nov 2011 18:46:10 +0000 Asked by Amy Picklo 3 months ago http://answers.ankylosing.org/112963/anyone-on-fentanyl-patches-do-they-work-for-you-at-all/ So very frustrated my family doctor retired and the doctor that replaced her said that I was too young to have chronic pain and be on pain medications. Today he pulled all of my pain medication and gave me a seizure drug called gabapentin. I am now lying in bed in agony and there are so few family doctors around accepting new patients in my area not sure what to do? http://answers.ankylosing.org/112959/so-very-frustrated-my-family-doctor-retired-and-the-doctor-that-replaced-her-said-that-i-was-too-young/ Tue, 22 Nov 2011 17:54:17 +0000 Asked by Ruth Anne McGuigan 3 months ago http://answers.ankylosing.org/112959/so-very-frustrated-my-family-doctor-retired-and-the-doctor-that-replaced-her-said-that-i-was-too-young/ Has anyone heard of or tried Yamuna Body Rolling Balls? My cousin is a physical therapist and has recommended i give them a shot. I've had AS for 10 years or so now, and have been really very stiff the last several months. I'm going to try them for a few weeks, but wanted to see if anyone else with AS has had any luck with them. Thanks! http://answers.ankylosing.org/112916/has-anyone-heard-of-or-tried-yamuna-body-rolling-balls/ Tue, 22 Nov 2011 07:04:00 +0000 Asked by Damon Ellis 3 months ago http://answers.ankylosing.org/112916/has-anyone-heard-of-or-tried-yamuna-body-rolling-balls/ Does anyone else find that when they get really stressed that their pain feels so much worse and it becomes harder to move. I have a lot of trouble with my hips and knees especially first thing in the morning and I have had plenty of stress in my life at present and I am finding the pain gets worse in those areas. If you could help me in knowing if that is normal with AS as I have just been diagnosed? http://answers.ankylosing.org/112915/does-anyone-else-find-that-when-they-get-really-stressed-that-their-pain-feels-so-much-worse-and-it-becomes/ Tue, 22 Nov 2011 06:44:02 +0000 Asked by Michelle Candy 3 months ago http://answers.ankylosing.org/112915/does-anyone-else-find-that-when-they-get-really-stressed-that-their-pain-feels-so-much-worse-and-it-becomes/ 2) when i was first having these problems of pain ect my first doc said it was in my head that no one my age 19 could have that much pain and put me on head pills saying i must have been depressed. Any way got a new doc and got diagnosed with AS has any one else had this same problem? http://answers.ankylosing.org/112903/2-when-i-was-first-having-these-problems-of-pain-ect-my-first-doc-said-it-was-in-my-head-that-no-one/ Mon, 21 Nov 2011 23:05:31 +0000 Asked by Janet Thgrate 3 months ago http://answers.ankylosing.org/112903/2-when-i-was-first-having-these-problems-of-pain-ect-my-first-doc-said-it-was-in-my-head-that-no-one/ I have a few questions to ask 1) as of lately i am having some thing almost like a siezure, i have gone to a nurologist and they are doing an mri of head and neck aswell as an eeg, has anyone else had these problems? http://answers.ankylosing.org/112902/i-have-a-few-questions-to-ask-1-as-of-lately-i-am-having-some-thing-almost-like-a-siezure-i-have-gone/ Mon, 21 Nov 2011 23:04:29 +0000 Asked by Janet Thgrate 3 months ago http://answers.ankylosing.org/112902/i-have-a-few-questions-to-ask-1-as-of-lately-i-am-having-some-thing-almost-like-a-siezure-i-have-gone/ My arms and legs have been falling "asleep " more than several times a day. What could this mean? I also think my Rheumatologist is under- treating my AS. Im taking a anti-inflammatory and ultram for pain. Im always tired and in pain in my hips, back. And knees but because im only 30 I think she downplays my pain severity. I don't have many rheumys to choose from on my insurance ...suggestions? http://answers.ankylosing.org/112896/my-arms-and-legs-have-been-falling-asleep-more-than-several-times-a-day-what-could-this-mean/ Mon, 21 Nov 2011 19:59:30 +0000 Asked by Karly Sevinsky 3 months ago http://answers.ankylosing.org/112896/my-arms-and-legs-have-been-falling-asleep-more-than-several-times-a-day-what-could-this-mean/ Okay Im pretty sure this has been asked before, but for my benefit remind me. My arms and legs have been falling "asleep " more than several times a day. What could this mean? I also think my Rheumatologist is under- treating my AS. Im taking a anti-inflammatory, a muscle relaxer, and ultram for pain (which im sure u know isn't a narcotic. Whatsoever ) Im always tired and in pain in my http://answers.ankylosing.org/112895/okay-im-pretty-sure-this-has-been-asked-before-but-for-my-benefit-remind-me-my-arms-and-legs-have-been/ Mon, 21 Nov 2011 19:51:49 +0000 Asked by Karly Sevinsky 3 months ago http://answers.ankylosing.org/112895/okay-im-pretty-sure-this-has-been-asked-before-but-for-my-benefit-remind-me-my-arms-and-legs-have-been/ I'm curious to know if there are any AS sufferers out there in a place which medicinal marijuana is legal and has used it to treat the pain. Unfortunately at this point in time I'm in a state where it isn't available legally? http://answers.ankylosing.org/112893/im-curious-to-know-if-there-are-any-as-sufferers-out-there-in-a-place-which-medicinal-marijuana-is-legal/ Mon, 21 Nov 2011 18:44:03 +0000 Asked by Ryan Davis 3 months ago http://answers.ankylosing.org/112893/im-curious-to-know-if-there-are-any-as-sufferers-out-there-in-a-place-which-medicinal-marijuana-is-legal/ Okay this is the second time this week I have a funky like crack in a mirror in my vision no pain, Annoying it has movement in it too? Anyone have this? http://answers.ankylosing.org/112856/okay-this-is-the-second-time-this-week-i-have-a-funky-like-crack-in-a-mirror-in-my-vision-no-pain-annoying/ Mon, 21 Nov 2011 09:24:23 +0000 Asked by Cindy Clark Barta 3 months ago http://answers.ankylosing.org/112856/okay-this-is-the-second-time-this-week-i-have-a-funky-like-crack-in-a-mirror-in-my-vision-no-pain-annoying/ Okay this is the second time this week I have what is like a crack in a mirror in my vision it has movement in it too? Almost like water or lighting streak? Anybody have suggestions? http://answers.ankylosing.org/112855/okay-this-is-the-second-time-this-week-i-have-what-is-like-a-crack-in-a-mirror-in-my-vision-it-has-movement/ Mon, 21 Nov 2011 09:22:26 +0000 Asked by Cindy Clark Barta 3 months ago http://answers.ankylosing.org/112855/okay-this-is-the-second-time-this-week-i-have-what-is-like-a-crack-in-a-mirror-in-my-vision-it-has-movement/ Anyone had any experience with the gerson institute? They claim a cure with organic juicing. Expensive to get started I am curious to see if anyone can offer any advice. http://answers.ankylosing.org/112820/anyone-had-any-experience-with-the-gerson-institute/ Mon, 21 Nov 2011 03:01:18 +0000 Asked by Paul Antonia 3 months ago http://answers.ankylosing.org/112820/anyone-had-any-experience-with-the-gerson-institute/ Up untill now I have been lucky enough to manage pain through exercise ,acute use of pain killers and steroid injections when needed.I have been trying to avoid any long term use of medication.My problems lay more with issues of fatigue.Does anyone use or know of a medicine suitable just for that ?I figure if I can have enough energy to stay active ,that will be a better solution then any long term AS treatment and the related side effects. Thanks http://answers.ankylosing.org/112781/up-untill-now-i-have-been-lucky-enough-to-manage-pain-through-exercise-acute-use-of-pain-killers-and/ Sun, 20 Nov 2011 09:18:06 +0000 Asked by Garrie Guz Grant 3 months ago http://answers.ankylosing.org/112781/up-untill-now-i-have-been-lucky-enough-to-manage-pain-through-exercise-acute-use-of-pain-killers-and/ Hi - for those who have severe pain in the foot, toe, ankle area as well as hands.... Do paraffin treatments work for you? I want to know before I invest in one. Thanks! http://answers.ankylosing.org/112779/hi-for-those-who-have-severe-pain-in-the-foot-toe-ankle-area-as-well-as-hands-do-paraffin-treatments/ Sun, 20 Nov 2011 07:31:38 +0000 Asked by Amy Picklo 3 months ago http://answers.ankylosing.org/112779/hi-for-those-who-have-severe-pain-in-the-foot-toe-ankle-area-as-well-as-hands-do-paraffin-treatments/ I am having my first humira injection tomorrow. What should I expect? I have AS and crohn's and am taking humira to treat both. I also will continue with methotrexate. Should I expect to be tired? When should I feel better? Does it really cause weight gain? Anything else? http://answers.ankylosing.org/112742/i-am-having-my-first-humira-injection-tomorrow-what-should-i-expect-i-have-as-and-crohns-and-am-taking/ Sat, 19 Nov 2011 15:37:00 +0000 Asked by Lililafond 3 months ago http://answers.ankylosing.org/112742/i-am-having-my-first-humira-injection-tomorrow-what-should-i-expect-i-have-as-and-crohns-and-am-taking/ Does anyone have solutions for predicting barometric pressure drops? Each big pressure drop knocks me on my ass - the day *before* it registers! I need something to tell me when a downward trend is coming so that I can prepare. I'm desperate as I keep losing entire days to fatigue, pain, and being downright unconscious. Any suggestions? http://answers.ankylosing.org/112546/does-anyone-have-solutions-for-predicting-barometric-pressure-drops/ Thu, 17 Nov 2011 01:48:16 +0000 Asked by Rose Bigham 3 months ago http://answers.ankylosing.org/112546/does-anyone-have-solutions-for-predicting-barometric-pressure-drops/ I know this question has been asked before but I haven't found anything recent. I was originally diagnosed with AS in Nov 2010 but symptoms presented themselves years before. I have fusion in my lower spine (4 vertebrae) and in my neck as well as terrible pain in my SI joints. NSAIDs alone never worked for me but the hydrocodone/ibuprofen did for awhile. Now i'm taking oxycodone + OTC ibuprofen 2 - 4 times per day and it's working great for me. Are there others that are being treated this way? http://answers.ankylosing.org/112540/i-know-this-question-has-been-asked-before-but-i-havent-found-anything-recent-i-was-originally-diagnosed/ Wed, 16 Nov 2011 21:31:45 +0000 Asked by Ryan Davis 3 months ago http://answers.ankylosing.org/112540/i-know-this-question-has-been-asked-before-but-i-havent-found-anything-recent-i-was-originally-diagnosed/ Hi everyone, I have my first appointment with a rhuematologist on Friday to hopefully get my final diagnosis with AS after seeing several other specialists and receiving other false diagnosis. I have had symptoms for as long as I can remember, and several people on my Dad's side of the family have had it as well. Can anyway give me insight for what to expect at the appointment. Any advice, or suggestions would be greatly appreciated as I am starting to get anxious? http://answers.ankylosing.org/112538/hi-everyone-i-have-my-first-appointment-with-a-rhuematologist-on-friday-to-hopefully-get-my-final-diagnosis/ Wed, 16 Nov 2011 19:06:58 +0000 Asked by Danielle 3 months ago http://answers.ankylosing.org/112538/hi-everyone-i-have-my-first-appointment-with-a-rhuematologist-on-friday-to-hopefully-get-my-final-diagnosis/ Does anyone experience sharp pain in their ankles when walking or have an ankle "give out" on them? I am trying to figure out if this is AS related or something new. Thanks! http://answers.ankylosing.org/112476/does-anyone-experience-sharp-pain-in-their-ankles-when-walking-or-have-an-ankle-give-out-on-them/ Tue, 15 Nov 2011 22:47:07 +0000 Asked by Daryl Morris 3 months ago http://answers.ankylosing.org/112476/does-anyone-experience-sharp-pain-in-their-ankles-when-walking-or-have-an-ankle-give-out-on-them/ How do you know if you have Ulcerative Colitis/Crohn's Disease? For more than a week now my stomach is having that gurgling splashing feeling and I'm having nausea and stomach cramps. Thought at first was just a virus, but is lasting too long to be that. At what point do you become concerned? http://answers.ankylosing.org/112400/how-do-you-know-if-you-have-ulcerative-colitiscrohns-disease/ Mon, 14 Nov 2011 20:35:50 +0000 Asked by Laura Buxton 3 months ago http://answers.ankylosing.org/112400/how-do-you-know-if-you-have-ulcerative-colitiscrohns-disease/ Flare control: Just wondering if anyone here has a regimen for controlling your flare ups, whether it's prescribed by your Rheumy or just what you've come to rely on? I've had an ongoing flare for well over a week and it's pretty miserable despite pain meds. I'm curious if anyone has their own method for quelling inflammation or if your Rheumy starts you on steroids for particularly bad bouts, etc. Unfortunately, my Rheumy isn't very attuned to treating AS, and my choices are limited. http://answers.ankylosing.org/112398/flare-control-just-wondering-if-anyone-here-has-a-regimen-for-controlling-your-flare-ups-whether-its/ Mon, 14 Nov 2011 20:21:39 +0000 Asked by Tim 3 months ago http://answers.ankylosing.org/112398/flare-control-just-wondering-if-anyone-here-has-a-regimen-for-controlling-your-flare-ups-whether-its/ Could anyone give me some information reguarding early symptoms that women have with this condition.Im interested to hear anything reguarding breast and rib cage, jaw problems and double vision (convergence insufficiency) anything else would be appreciated to and thankyou for any replies? http://answers.ankylosing.org/112381/could-anyone-give-me-some-information-reguarding-early-symptoms-that-women-have-with-this-conditionim/ Mon, 14 Nov 2011 17:37:29 +0000 Asked by Jessie 3 months ago http://answers.ankylosing.org/112381/could-anyone-give-me-some-information-reguarding-early-symptoms-that-women-have-with-this-conditionim/ Question for those living on their own with AS: I'm getting a divorce after 7 years, during which my AS has progressed immensely, and thought of living alone with this disease scares the hell out of me. How do you cope on your worst days when there's simply no one there to help? And have you found it hard to find people who understand and are willing to get into a relationship after finding out that you have AS? http://answers.ankylosing.org/112380/question-for-those-living-on-their-own-with-as-im-getting-a-divorce-after-7-years-during-which-my/ Mon, 14 Nov 2011 16:52:22 +0000 Asked by Susan Skelly 3 months ago http://answers.ankylosing.org/112380/question-for-those-living-on-their-own-with-as-im-getting-a-divorce-after-7-years-during-which-my/ Anyone with AS had gall bladder removed? I had mine out as a teen & now MANY meds upset my stomach & cause bad pains! I have tried vicodin, percocet,& have recently been put on morphine 15mg fast acting & it causes severe belly pain. What can I take that wont kill my stomach & actually help the pain?! I was taking tramadol with tylenol, but it was causing my liver functions to go through the roof since it wasn't being broken down first in gall bladder and going straight to my liver. http://answers.ankylosing.org/112362/anyone-with-as-had-gall-bladder-removed-i-had-mine-out-as-a-teen-now-many-meds-upset-my-stomach/ Mon, 14 Nov 2011 05:24:21 +0000 Asked by Brittney Brown 3 months ago http://answers.ankylosing.org/112362/anyone-with-as-had-gall-bladder-removed-i-had-mine-out-as-a-teen-now-many-meds-upset-my-stomach/ Hello everyone. Been a long time. Not much has changed. Still no Rheumy in our town. I got dx with Iritis and put on fluormetholone drops, return in 3 wks. Also have bumps in my hair and hair line that itch and scab up, and bumpy rash down both legs. Hoping one of my other doctors will put it all together soon. Pain in si joints (and other joints) is horrible, fatigue is worse, rt leg goes out and I fall, but none of them ask why? :( Sorry to vent... http://answers.ankylosing.org/112356/hello-everyone-been-a-long-time-not-much-has-changed-still-no-rheumy-in-our-town-i-got-dx-with-iritis/ Mon, 14 Nov 2011 01:45:12 +0000 Asked by Carla 3 months ago http://answers.ankylosing.org/112356/hello-everyone-been-a-long-time-not-much-has-changed-still-no-rheumy-in-our-town-i-got-dx-with-iritis/ Have not seen a doctor yet. I know I have it. My father has it. His neck is fused. When he lays flat, his head is raised 4 inches as a result. I have had several issues for many years. My question to all: Has anything in treatment helped you sleep for more than 4 hours without the back pain waking you up? http://answers.ankylosing.org/112291/have-not-seen-a-doctor-yet-i-know-i-have-it-my-father-has-it-his-neck-is-fused-when-he-lays-flat/ Sun, 13 Nov 2011 18:52:38 +0000 Asked by Connie Loukinen 3 months ago http://answers.ankylosing.org/112291/have-not-seen-a-doctor-yet-i-know-i-have-it-my-father-has-it-his-neck-is-fused-when-he-lays-flat/ Not diagnosed but have a lot of sx that fit. Anyone else think so? 4 yrs ago, developed bad joint, muscle pain, daily fevers and fatigue. Fast forward to May of this year, have all the above sx but have developed severe low back and SI joint pain that wraps around to my hips, groin and down my thighs. Pain is like a nagging, agonizing, burning toothache. I've also developed bad heel pain. CRP off the charts. Will be seeing my rheumy on Wed. For more testing,etc. http://answers.ankylosing.org/112288/not-diagnosed-but-have-a-lot-of-sx-that-fit-anyone-else-think-so/ Sun, 13 Nov 2011 18:23:51 +0000 Asked by Olivia Wendt Sundby 3 months ago http://answers.ankylosing.org/112288/not-diagnosed-but-have-a-lot-of-sx-that-fit-anyone-else-think-so/ I am scared about seeing the specialist and what he might say about my disease. Like how far along is it? How did other people feel about seeing their specialist for the first time? Did you go in thinking the worst? http://answers.ankylosing.org/112258/i-am-scared-about-seeing-the-specialist-and-what-he-might-say-about-my-disease-like-how-far-along-is/ Sun, 13 Nov 2011 13:38:09 +0000 Asked by Michelle Candy 3 months ago http://answers.ankylosing.org/112258/i-am-scared-about-seeing-the-specialist-and-what-he-might-say-about-my-disease-like-how-far-along-is/ Hi I just found the other day that I have ankylosing spondylitis. It has hit me hard but my husband Michael has been great. He already has the disease, it isn't very often that two people that marry end up having the same disease. I am ringing up my specialist tomorrow to make an appointment.. How did everyone else handle the first time they found out they had the disease? http://answers.ankylosing.org/112257/hi-i-just-found-the-other-day-that-i-have-ankylosing-spondylitis-it-has-hit-me-hard-but-my-husband-michael/ Sun, 13 Nov 2011 13:17:01 +0000 Asked by Michelle Candy 3 months ago http://answers.ankylosing.org/112257/hi-i-just-found-the-other-day-that-i-have-ankylosing-spondylitis-it-has-hit-me-hard-but-my-husband-michael/ Does anyone else notice that at least 80% of the people that you tell you have AS also have comparable "back aches " from lifting a bag of feathers or from overdoing it on the rowing machine at the gym ? It is so good to know I am not alone in my suffering ,and that I should be ashamed of my self pity ,one person even had to CANCEL a pre arranged tennis game because of their terrible afliction. Think I will go away stop milking it and pull myself together ! http://answers.ankylosing.org/112251/does-anyone-else-notice-that-at-least-80-of-the-people-that-you-tell-you-have-as-also-have-comparable/ Sun, 13 Nov 2011 10:47:59 +0000 Asked by Garrie Guz Grant 3 months ago http://answers.ankylosing.org/112251/does-anyone-else-notice-that-at-least-80-of-the-people-that-you-tell-you-have-as-also-have-comparable/ The question about susceptibility to illness while on TNFI medication is often brought up in this forum. This link goes to a study of serious infection rates, and it looks like there is no significant increase while on TNFI medications. Good news for once... jama.ama-assn.org/content/early/2011/11/02/jama.2011.1692.sh http://answers.ankylosing.org/112195/the-question-about-susceptibility-to-illness-while-on-tnfi-medication-is-often-brought-up-in-this-forum/ Fri, 11 Nov 2011 17:49:50 +0000 Asked by Amori99 3 months ago http://answers.ankylosing.org/112195/the-question-about-susceptibility-to-illness-while-on-tnfi-medication-is-often-brought-up-in-this-forum/ I have pain in both my heels all the time i find it hard to walk after half hour and i start struggling to walk. They hurt when i get up after i have been sitting down. Its not so bad in the morning but after half hour of being up the pain is there. It is causing the tops of my legs 2 hurt now cause i cant put pressure on my feet. I have been and got new shoes and the pain is still the same? http://answers.ankylosing.org/112194/i-have-pain-in-both-my-heels-all-the-time-i-find-it-hard-to-walk-after-half-hour-and-i-start-struggling/ Fri, 11 Nov 2011 17:42:18 +0000 Asked by Paula 3 months ago http://answers.ankylosing.org/112194/i-have-pain-in-both-my-heels-all-the-time-i-find-it-hard-to-walk-after-half-hour-and-i-start-struggling/ After 15 + years of intermittent symptoms, was finally diagnosed yesterday. It seems treatment is going to make me go broke. Insurance won't cover until a deductible is met. How do you handle the ongoing cost of care? http://answers.ankylosing.org/112189/after-15-years-of-intermittent-symptoms-was-finally-diagnosed-yesterday-it-seems-treatment-is-going/ Fri, 11 Nov 2011 16:07:03 +0000 Asked by Marcey Bryant 3 months ago http://answers.ankylosing.org/112189/after-15-years-of-intermittent-symptoms-was-finally-diagnosed-yesterday-it-seems-treatment-is-going/ How many of you take more than two doses of Humira per month? My doc is thinking of upping me to maybe even once a week for a while, then maybe scaling back. Care to share any experiences? http://answers.ankylosing.org/112186/how-many-of-you-take-more-than-two-doses-of-humira-per-month/ Fri, 11 Nov 2011 15:34:08 +0000 Asked by Chapps 3 months ago http://answers.ankylosing.org/112186/how-many-of-you-take-more-than-two-doses-of-humira-per-month/ Hi everyone - hope you are all fairly well! I just wanted to ask about chest and rib pain, this seems to be a new feature for me! I get breathless at times and feel like someone is sitting on the top half of my back, sometimes it spreads down the back of my ribs from top to bottom on one side, sometimes both sides but rarely at the front - does anyone else experience this? Thanks :) http://answers.ankylosing.org/112171/hi-everyone-hope-you-are-all-fairly-well-i-just-wanted-to-ask-about-chest-and-rib-pain-this-seems/ Fri, 11 Nov 2011 00:43:13 +0000 Asked by Tanya de Lacy 3 months ago http://answers.ankylosing.org/112171/hi-everyone-hope-you-are-all-fairly-well-i-just-wanted-to-ask-about-chest-and-rib-pain-this-seems/ Has anyone with AS had children via surrogacy? I am 26, disabled & on social security disability. I have a degree in nursing and always dreamed of having multiple children. However I am currently on about 20 meds including methotrexate, all of which I would have to go off of to even trying to get pregnant. It may be unachievable at this point.. But any advice, experiences would really help. http://answers.ankylosing.org/112149/has-anyone-with-as-had-children-via-surrogacy/ Thu, 10 Nov 2011 15:16:04 +0000 Asked by Andrea 3 months ago http://answers.ankylosing.org/112149/has-anyone-with-as-had-children-via-surrogacy/ I start Humara Fri. I am also enrolled in a study that follows how it affects me. I think this is a good thing I hope. Has anyone had any side affects that I should look for or worry about. This means that I start to slowly wean off the meds that i have been on for the last 10 years, which kinda worry's me but on the other hand it will be nice to take less meds? http://answers.ankylosing.org/112121/i-start-humara-fri-i-am-also-enrolled-in-a-study-that-follows-how-it-affects-me-i-think-this-is-a-good/ Thu, 10 Nov 2011 05:38:25 +0000 Asked by Ray Manning 3 months ago http://answers.ankylosing.org/112121/i-start-humara-fri-i-am-also-enrolled-in-a-study-that-follows-how-it-affects-me-i-think-this-is-a-good/ Still waiting on seeing a new RA dr since the one I saw was of NO help and rude! Has anyone else experienced abnormal lab results with AS? My MPV was low, BUN high, GGT high, and ALT high. What is causing this? That RA dr told me all was good, but I got a copy of labs and found flags on all of those things! I know GGT is inflammation and that was very elevated, and ALT has to do with liver and inflammation and was very elevated as well. I am also starting to itch all over, but no rash.. http://answers.ankylosing.org/112120/still-waiting-on-seeing-a-new-ra-dr-since-the-one-i-saw-was-of-no-help-and-rude-has-anyone-else-experienced/ Thu, 10 Nov 2011 05:06:20 +0000 Asked by Brittney Brown 3 months ago http://answers.ankylosing.org/112120/still-waiting-on-seeing-a-new-ra-dr-since-the-one-i-saw-was-of-no-help-and-rude-has-anyone-else-experienced/ Does anyone know why that most of the sites that we research concerning our disease of AS that their prognosis of the disease will "Not cause dehabilitation and can live normal lives with exercise"? This somewhat drives me crazy seeing that I myself have progressively gotten worse and though excercise helps to losen us up, when we can move, it also aggervates the symptoms even more. Am I the only one that reading these type of articles cause frustration? Any insight would be greatly welcomed http://answers.ankylosing.org/112118/does-anyone-know-why-that-most-of-the-sites-that-we-research-concerning-our-disease-of-as-that-their/ Thu, 10 Nov 2011 04:46:49 +0000 Asked by Scott 3 months ago http://answers.ankylosing.org/112118/does-anyone-know-why-that-most-of-the-sites-that-we-research-concerning-our-disease-of-as-that-their/ I did a search and noticed nobody has brought up the topic of headaches for a while. I was one to never get headaches but I sure do get them now. I do not notice a pattern to them on when they hit or things I do to cause them. They hurt so bad that I feel like puking. The only connection I might have is it comes from my neck and shoulder pain. I mentioned it to my doctor, who could moonlight as a mime, but she did not have an answer for me. Anybody else with killer headaches? http://answers.ankylosing.org/112117/i-did-a-search-and-noticed-nobody-has-brought-up-the-topic-of-headaches-for-a-while-i-was-one-to-never/ Thu, 10 Nov 2011 02:17:25 +0000 Asked by Jason Ferguson 3 months ago http://answers.ankylosing.org/112117/i-did-a-search-and-noticed-nobody-has-brought-up-the-topic-of-headaches-for-a-while-i-was-one-to-never/ Hi All, my husband has been diagnosed with AS. Can I ask you at what point were you given your AS diagnosis after xrays, blood tests, MRI's? What can anyone advise to improve his quality of life? I understand that different people react in various way to medication and therapy but any information and advise would be a huge help as we feel so useless. Thank you for any replies http://answers.ankylosing.org/112102/hi-all-my-husband-has-been-diagnosed-with-as-can-i-ask-you-at-what-point-were-you-given-your-as-diagnosis/ Wed, 09 Nov 2011 17:10:02 +0000 Asked by Philippa Howe 3 months ago http://answers.ankylosing.org/112102/hi-all-my-husband-has-been-diagnosed-with-as-can-i-ask-you-at-what-point-were-you-given-your-as-diagnosis/ Irony and AS go together. New studies show that NSAIDs can slow the progression of AS, but my doc wants me off NSAIDs 'cause they're damaging my kidneys. What to do? http://answers.ankylosing.org/112099/irony-and-as-go-together-new-studies-show-that-nsaids-can-slow-the-progression-of-as-but-my-doc-wants/ Wed, 09 Nov 2011 15:56:54 +0000 Asked by Chapps 3 months ago http://answers.ankylosing.org/112099/irony-and-as-go-together-new-studies-show-that-nsaids-can-slow-the-progression-of-as-but-my-doc-wants/ Has anyone tried electrode massage? (or TENs). This provides immediate pain relief for AS and helps my partner (who has AS) sleep at night. http://answers.ankylosing.org/112084/has-anyone-tried-electrode-massage/ Wed, 09 Nov 2011 04:35:24 +0000 Asked by Kristina Pervan-Reid 3 months ago http://answers.ankylosing.org/112084/has-anyone-tried-electrode-massage/ It is time to repeat the radiofrequency procedure on my neck. It hurts to have it done, but I had a lot of relief for 2 years. I refuse to have any type of steroid injections. It just made me fat and made me feel worse? http://answers.ankylosing.org/111949/it-is-time-to-repeat-the-radiofrequency-procedure-on-my-neck-it-hurts-to-have-it-done-but-i-had-a-lot/ Tue, 08 Nov 2011 02:44:53 +0000 Asked by Tina 3 months ago http://answers.ankylosing.org/111949/it-is-time-to-repeat-the-radiofrequency-procedure-on-my-neck-it-hurts-to-have-it-done-but-i-had-a-lot/ For the past month or so when I first get out of bed and after sitting for awhile, i have this awful pain in my right foot & a bit in left). But it is across the top at the widest part. When I have to walk down the stairs in the morning, I cannot place my feet flat on the step - I have to walk down as if I am on tip toe or it kills! After a few minutes of moving around I am good - til the next time. What is that! Never had it before. Related to sciatica maybe? http://answers.ankylosing.org/111927/for-the-past-month-or-so-when-i-first-get-out-of-bed-and-after-sitting-for-awhile-i-have-this-awful/ Tue, 08 Nov 2011 01:27:42 +0000 Asked by Kimberley Harvey Pierce 3 months ago http://answers.ankylosing.org/111927/for-the-past-month-or-so-when-i-first-get-out-of-bed-and-after-sitting-for-awhile-i-have-this-awful/ What is the best way to ask your doctor to run a test for this? I have started to go to a new pain clinic and they are saying that I have Fibromyalgia but I have also tested positive about 2 years ago at the previous pain clinic for Hla B27. The symptoms that I have are exactly what I read about Ankylosing Spondylitis . I don't want this doctor to think I am a hypochondriac because that is how I have made to feel by the previous doctor. http://answers.ankylosing.org/111501/what-is-the-best-way-to-ask-your-doctor-to-run-a-test-for-this/ Sun, 06 Nov 2011 19:06:04 +0000 Asked by Kim Vasek 3 months ago http://answers.ankylosing.org/111501/what-is-the-best-way-to-ask-your-doctor-to-run-a-test-for-this/  I'm not currently on any meds for my as because I am pregnant, but I am experiencing some pain and tenderness in my upper spine (just below my neck) and I'm not sure if I should be concerned just yet. I got a haircut yesterday and I first felt the tenderness/pain in my upper spine. I didn't think much of it, but leaned back in a chair last night and felt it again. It is very tender, but im not able to tell if anything feels swollen or out of place. Anyone experienced anything similar?  http://answers.ankylosing.org/111404/im-not-currently-on-any-meds-for-my-as-because-i-am-pregnant-but-i-am-experiencing-some-pain-and/ Sun, 06 Nov 2011 13:03:24 +0000 Asked by Lenore 3 months ago http://answers.ankylosing.org/111404/im-not-currently-on-any-meds-for-my-as-because-i-am-pregnant-but-i-am-experiencing-some-pain-and/ I know some eye problems come along with AS, but does anyone have constantly dry itchy eyes? It's driving me crazy. Anyone received treatment for it? http://answers.ankylosing.org/111286/i-know-some-eye-problems-come-along-with-as-but-does-anyone-have-constantly-dry-itchy-eyes/ Sun, 06 Nov 2011 03:34:30 +0000 Asked by Amanda 3 months ago http://answers.ankylosing.org/111286/i-know-some-eye-problems-come-along-with-as-but-does-anyone-have-constantly-dry-itchy-eyes/ Hi all as sufferers,my as is getting worse the pain and stiffniss in my fingers is bad.only thing that eases pain is me good old hot water bottle? http://answers.ankylosing.org/111026/hi-all-as-sufferersmy-as-is-getting-worse-the-pain-and-stiffniss-in-my-fingers-is-badonly-thing-that/ Sat, 05 Nov 2011 10:39:56 +0000 Asked by Mick Knox 3 months ago http://answers.ankylosing.org/111026/hi-all-as-sufferersmy-as-is-getting-worse-the-pain-and-stiffniss-in-my-fingers-is-badonly-thing-that/ Recently two discs in my C vertebrae had protruded, one all the way into the spinal cord area. About to get an epidural steroid shot and awaiting if surgery needed, enjoying my collar. Have any of you had disc problems or treatment? My docs say AS complicates it, particularly surgery, but I don't understand why. Did I just get lucky (ha) and have this happen, or have others been through it? The shot, let alone surgery, terrifies me. http://answers.ankylosing.org/110243/recently-two-discs-in-my-c-vertebrae-had-protruded-one-all-the-way-into-the-spinal-cord-area-about/ Thu, 03 Nov 2011 04:39:01 +0000 Asked by Alene 3 months ago http://answers.ankylosing.org/110243/recently-two-discs-in-my-c-vertebrae-had-protruded-one-all-the-way-into-the-spinal-cord-area-about/ Who has Hi Cholesterol not from your diet? "Hypercholesterolemia" Thanks Pete. http://answers.ankylosing.org/110193/who-has-hi-cholesterol-not-from-your-diet/ Thu, 03 Nov 2011 01:13:05 +0000 Asked by Aussie 68 3 months ago http://answers.ankylosing.org/110193/who-has-hi-cholesterol-not-from-your-diet/ Hi how many As positive people have also been diagnosed with Sleep Apnea? Thanks Pete. http://answers.ankylosing.org/110191/hi-how-many-as-positive-people-have-also-been-diagnosed-with-sleep-apnea/ Thu, 03 Nov 2011 01:07:52 +0000 Asked by Aussie 68 3 months ago http://answers.ankylosing.org/110191/hi-how-many-as-positive-people-have-also-been-diagnosed-with-sleep-apnea/ Hi, sorry this is going to be kind of a downer. I am really getting to the stage where i am about to freak out. How do you folk get over being exhausted all the time? Im also getting pretty angry and having to keep my self away from people so that i dont bite their heads off, i am hoping that the humira helps the fatigue but its really getting to me. Anybody got more energy since taking humira? Ill cheer myself up with some big bang theory later by the way. http://answers.ankylosing.org/110138/hi-sorry-this-is-going-to-be-kind-of-a-downer-i-am-really-getting-to-the-stage-where-i-am-about-to/ Wed, 02 Nov 2011 21:57:43 +0000 Asked by Dave Kelly 3 months ago http://answers.ankylosing.org/110138/hi-sorry-this-is-going-to-be-kind-of-a-downer-i-am-really-getting-to-the-stage-where-i-am-about-to/ Does anyone else get spots/weals under their hair and along the hairline? Don't really know how to describe them better than swollen bumps. http://answers.ankylosing.org/109977/does-anyone-else-get-spotsweals-under-their-hair-and-along-the-hairline/ Wed, 02 Nov 2011 10:44:32 +0000 Asked by Sam 3 months ago http://answers.ankylosing.org/109977/does-anyone-else-get-spotsweals-under-their-hair-and-along-the-hairline/ IS anyone that is AS positive got spondylolisthesis in the lumbar spine? If so have you had surgery? Thanks Pete http://answers.ankylosing.org/109480/is-anyone-that-is-as-positive-got-spondylolisthesis-in-the-lumbar-spine-if-so-have-you-had-surgery/ Tue, 01 Nov 2011 01:39:17 +0000 Asked by Aussie 68 3 months ago http://answers.ankylosing.org/109480/is-anyone-that-is-as-positive-got-spondylolisthesis-in-the-lumbar-spine-if-so-have-you-had-surgery/ Fibromyalgia I have been told by a very credible general physican that a diagnosis of Fibromyalgia is made by doctors that don't know what is wrong with you. These doctors are to lazy or don't realy want to spend the time to find out what the problem is The way I see it is you could realy have a serious disease that my never be diagnosed & treated if given this easy Fibromyalgia diagnosis Don't settle for it I didn't & I am happy Pete? http://answers.ankylosing.org/109451/fibromyalgia-i-have-been-told-by-a-very-credible-general-physican-that-a-diagnosis-of-fibromyalgia-is/ Mon, 31 Oct 2011 23:53:19 +0000 Asked by Aussie 68 4 months ago http://answers.ankylosing.org/109451/fibromyalgia-i-have-been-told-by-a-very-credible-general-physican-that-a-diagnosis-of-fibromyalgia-is/ Has anyone ever tried PleoMuc 5X eye drops to treat the iritis? http://answers.ankylosing.org/109416/has-anyone-ever-tried-pleomuc-5x-eye-drops-to-treat-the-iritis/ Mon, 31 Oct 2011 21:34:42 +0000 Asked by Delaney Keating 4 months ago http://answers.ankylosing.org/109416/has-anyone-ever-tried-pleomuc-5x-eye-drops-to-treat-the-iritis/ Off of Methotrexate for 9 mos. With the success of a regimented diet, however, the iritis flares have returned. I am going to try Durezol since I no longer respond to steroids. I am curious to hear from those of you using Restasis and to know if you have had prolonged positive results? http://answers.ankylosing.org/109415/off-of-methotrexate-for-9-mos-with-the-success-of-a-regimented-diet-however-the-iritis-flares-have/ Mon, 31 Oct 2011 21:32:11 +0000 Asked by Delaney Keating 4 months ago http://answers.ankylosing.org/109415/off-of-methotrexate-for-9-mos-with-the-success-of-a-regimented-diet-however-the-iritis-flares-have/ I am beyond frustrated and feeling hopeless. Saw my RA dr on the 18th and then again today (31st) and was less than impressed! He claims there was no inflammation on my MRI though an xray a few weeks ago and a nuclear bone scan both showed inflammation of SI joints. Positive for HLA protein..tested 2x..but says its probably nothing or fibromyalgia.. My pain is SEVERE, CHRONIC..what do I do?! http://answers.ankylosing.org/109394/i-am-beyond-frustrated-and-feeling-hopeless-saw-my-ra-dr-on-the-18th-and-then-again-today-31st-and/ Mon, 31 Oct 2011 20:23:24 +0000 Asked by Brittney Brown 4 months ago http://answers.ankylosing.org/109394/i-am-beyond-frustrated-and-feeling-hopeless-saw-my-ra-dr-on-the-18th-and-then-again-today-31st-and/ Hi all. I'm struggling to get a diagnosis of AS from my rheumatologist despite classic signs (severe back, neck, hip, rib pain, night sweats, HLA B27 positive, family history). This is partly because I happen to have a mildly prolapsed L5 disc and the doc fixates on that. However, I've been in severe pain for a year now and my physio says my neck's not moving well and my ribs have moved closer together. However, my lumbar x-ray and MRI are clear. Anyone have any advice? http://answers.ankylosing.org/109360/hi-all-im-struggling-to-get-a-diagnosis-of-as-from-my-rheumatologist-despite-classic-signs-severe/ Mon, 31 Oct 2011 18:13:18 +0000 Asked by Rebecca Dartnall 4 months ago http://answers.ankylosing.org/109360/hi-all-im-struggling-to-get-a-diagnosis-of-as-from-my-rheumatologist-despite-classic-signs-severe/ Hey world. Suffer from severe AS. I'm 49 and progressed disease of 70-80 yr old. My spine is completely fused except at c1-c2. Fell last week snapped c2 off, only reason alive due to fusion. Stopped Chronic pain I had for 20yrs after surgury and put in halo vest. Dropped from 45 mg Hydromorphcontin evey 8 hrs to almost nothing in a DAY. Has anyone ever heard of such a thing? http://answers.ankylosing.org/109065/hey-world-suffer-from-severe-as-im-49-and-progressed-disease-of-70-80-yr-old-my-spine-is-completely/ Mon, 31 Oct 2011 02:51:03 +0000 Asked by Ryan Magnussen 4 months ago http://answers.ankylosing.org/109065/hey-world-suffer-from-severe-as-im-49-and-progressed-disease-of-70-80-yr-old-my-spine-is-completely/ Recently my jaw has started snapping shut involuntarily while I'm asleep or falling asleep. It is like a snapping turtle and bites whatever in its way - tongue, mouth, lips. Anyone else have this problem? Little background: ANA positive, HLA B27 +, recurring uveitis, arthritis in hands, wrists, toes, knees, upper and lower back. http://answers.ankylosing.org/109064/recently-my-jaw-has-started-snapping-shut-involuntarily-while-im-asleep-or-falling-asleep-it-is-like/ Mon, 31 Oct 2011 02:22:58 +0000 Asked by Anne 4 months ago http://answers.ankylosing.org/109064/recently-my-jaw-has-started-snapping-shut-involuntarily-while-im-asleep-or-falling-asleep-it-is-like/ Hi, my husband was diagnosed with AS 4 years ago and he has only been taking NSAID s so far. He is 34 years old and I noticed many of you are taking some form of immunosuppressants. How long before you started taking them? Do you think he should start right away or hold on as long he can on NSAID s - because they are helping. http://answers.ankylosing.org/108696/hi-my-husband-was-diagnosed-with-as-4-years-ago-and-he-has-only-been-taking-nsaid-s-so-far-he-is-34/ Sun, 30 Oct 2011 07:58:10 +0000 Asked by Nes 4 months ago http://answers.ankylosing.org/108696/hi-my-husband-was-diagnosed-with-as-4-years-ago-and-he-has-only-been-taking-nsaid-s-so-far-he-is-34/ So after reading a few new questions/responses today, can anyone say whether or not they have had any of the following either before or with their AS: MRSA, abdominal issues or problems, fibromyalgia or The Fifth Disease/ or in medical terms-Erythema infectiosum ? (FYI: 1.Measles 2.Scarlet fever 3.Rubella 4.Duke's disease 5.Fifth disease (erythema infectiosum) 6.Roseola) http://answers.ankylosing.org/108638/so-after-reading-a-few-new-questionsresponses-today-can-anyone-say-whether-or-not-they-have-had-any/ Sun, 30 Oct 2011 05:10:11 +0000 Asked by Tracie Wahl 4 months ago http://answers.ankylosing.org/108638/so-after-reading-a-few-new-questionsresponses-today-can-anyone-say-whether-or-not-they-have-had-any/ When you visit your local GP or family doctor, does anybody else find that your doctor knows very little about AS? http://answers.ankylosing.org/108368/when-you-visit-your-local-gp-or-family-doctor-does-anybody-else-find-that-your-doctor-knows-very-little/ Sat, 29 Oct 2011 04:08:57 +0000 Asked by Michael Candy 4 months ago http://answers.ankylosing.org/108368/when-you-visit-your-local-gp-or-family-doctor-does-anybody-else-find-that-your-doctor-knows-very-little/ I met with they rheumy following the bloodwork & bone scan. He agreed that I have some form of spondylarthritis but didn't say AS specifically. (I was diagnosed with AS 20 yrs ago but after a 17 yr remission, I have to start the process all over again). He prescribed Hydroxychlorquine (Plaquenil / Quineprox) but warned that it could take 4-12 weeks to see any results. Has anyone taken that medication & if so, what did you experience? Thanks for any input you may have. ~~~ Blessings http://answers.ankylosing.org/108331/i-met-with-they-rheumy-following-the-bloodwork-bone-scan-he-agreed-that-i-have-some-form-of-spondylarthritis/ Fri, 28 Oct 2011 16:44:41 +0000 Asked by Amie Davis 4 months ago http://answers.ankylosing.org/108331/i-met-with-they-rheumy-following-the-bloodwork-bone-scan-he-agreed-that-i-have-some-form-of-spondylarthritis/ Newly diagnosed with AS. Doc suggests Simponi. My research on this and the other two options (Humira & Enbrel) show the side effects are scary. Always been healthy and prospect of having my immune system compromised and all the associated risks, I don't know which of these drugs I should take. I'm almost willing to live with the pain to avoid the potential awful side effects of the medications. Anyone have a more optimistic outlook on any of these meds? http://answers.ankylosing.org/108321/newly-diagnosed-with-as-doc-suggests-simponi-my-research-on-this-and-the-other-two-options-humira/ Fri, 28 Oct 2011 13:35:18 +0000 Asked by Guylaine J 4 months ago http://answers.ankylosing.org/108321/newly-diagnosed-with-as-doc-suggests-simponi-my-research-on-this-and-the-other-two-options-humira/ Just started to suffer from Migraine's.... Not sure if it's AS related.... I went and had a CT scan on my brain and that came back all clear... Does anyone else have similar symptoms? http://answers.ankylosing.org/108307/just-started-to-suffer-from-migraines-not-sure-if-its-as-related-i-went-and-had-a-ct-scan-on/ Fri, 28 Oct 2011 07:12:38 +0000 Asked by Michael Candy 4 months ago http://answers.ankylosing.org/108307/just-started-to-suffer-from-migraines-not-sure-if-its-as-related-i-went-and-had-a-ct-scan-on/ Hello, I am new to this site and have recently been diagnosed with AS though I have had severe symptoms for the past 10 years without a definitive answer until now. Your post have helped me a lot and I look forward to your support. Is anyone taking Remicaid right now and how is it doing for you? I have gone through Methotrexate, Humira, and Enbrel and have now moved to Remicaid which is set to start next month. Thanks for all of your help http://answers.ankylosing.org/108266/hello-i-am-new-to-this-site-and-have-recently-been-diagnosed-with-as-though-i-have-had-severe-symptoms/ Thu, 27 Oct 2011 15:56:16 +0000 Asked by Scott 4 months ago http://answers.ankylosing.org/108266/hello-i-am-new-to-this-site-and-have-recently-been-diagnosed-with-as-though-i-have-had-severe-symptoms/ Staph infection and Spondylitis: What do I need to know? I have been home with a sinus/ear infection and started antibiotics on Monday. This morning I finagled a dermatology appt, and the doc determined that the lumps and bumps I have all over are a *staph infection*. Swabbed a culture of one of them and we'll get the MRSA results tomorrow. Is there anything special about staph and spondy? Luckily I stopped Enbrel injections about a month ago, so I should have *some* immune system . . http://answers.ankylosing.org/108220/staph-infection-and-spondylitis-what-do-i-need-to-know-i-have-been-home-with-a-sinusear-infection/ Wed, 26 Oct 2011 22:41:15 +0000 Asked by Rose Bigham 4 months ago http://answers.ankylosing.org/108220/staph-infection-and-spondylitis-what-do-i-need-to-know-i-have-been-home-with-a-sinusear-infection/ Does any one have continually high white blood cell counts? & useually the Neutrophils are highest and the rest of the cell count is fairly mormal? This type of reading comes up with an infection but with me I have no infection and slill have the high neutrophils count. So I was thinking that this could be specific to AS? Any thoughts or experience with this please let me know. Thanks http://answers.ankylosing.org/108189/does-any-one-have-continually-high-white-blood-cell-counts-useually-the-neutrophils-are-highest-and/ Wed, 26 Oct 2011 04:00:00 +0000 Asked by Aussie 68 4 months ago http://answers.ankylosing.org/108189/does-any-one-have-continually-high-white-blood-cell-counts-useually-the-neutrophils-are-highest-and/ Hi there, Is any-one on this site from Australia? If so have you heard about and or seen - "Professor Matthew Brown". He is the Director of Immunogenetics @ the university of Queensland, & I am waiting to see him. If you havn't heard about him I suggest you do some reaserch on him as he & his team have made a breakthrough on AS. You can all read about it if you do a google search. I think at present he runs 2 speasialised AS clinic's in Aus one in Brisbane & the other in Sydney. Good Luck. http://answers.ankylosing.org/108188/hi-there-is-any-one-on-this-site-from-australia/ Wed, 26 Oct 2011 03:30:53 +0000 Asked by Aussie 68 4 months ago http://answers.ankylosing.org/108188/hi-there-is-any-one-on-this-site-from-australia/ HI everyone. Is there anyone out there that's got crohn's disease wit the AS and if so do you have cankor sores and inflammed lineing in your Mouth where ur cheeks are? If so tell me what other Symptoms? I am woundering if the AS is the Primary or the secondary Disease I have. http://answers.ankylosing.org/108181/hi-everyone-is-there-anyone-out-there-thats-got-crohns-disease-wit-the-as-and-if-so-do-you-have-cankor/ Wed, 26 Oct 2011 00:06:09 +0000 Asked by John Johnson 4 months ago http://answers.ankylosing.org/108181/hi-everyone-is-there-anyone-out-there-thats-got-crohns-disease-wit-the-as-and-if-so-do-you-have-cankor/ Lower back pain behind kidneys around the cartilage area. Left hip pain (throbs, radiates thru buttock & thigh down 2 knee). Neck pain(always cracking it 2 relieve the pressure) , shoulder(sharp pain when lifting arm overhead) , elbows(burning sensation) , constant headaches. Naproxen helps 4 headaches only. Had several cortizone shots & prednisone, pain comes back. On sulfasalazine 4 one wk so far but read it can take up to 3 months to c results. HLA-B27+ but not diagnosed 4 anything yet. Help? http://answers.ankylosing.org/108176/lower-back-pain-behind-kidneys-around-the-cartilage-area-left-hip-pain-throbs-radiates-thru-buttock/ Tue, 25 Oct 2011 21:15:16 +0000 Asked by Sal Piskorz 4 months ago http://answers.ankylosing.org/108176/lower-back-pain-behind-kidneys-around-the-cartilage-area-left-hip-pain-throbs-radiates-thru-buttock/ I've had painful heels and feet for seven years. Diagnosed with fibromyalgia, osteoarthritis and now possible AS, I'm just wondering if anyone else with AS has sore feet? I ice the heels, do my stretches before walking etc. Apparently it's not actually plantar fasciitis but some tendon problem that comes with AS. Anyone have ideas for some relief? (Of course it's so annoying as my daily morning walk reduces the low back pain and stiffness then I have sore feet for the rest of the day). http://answers.ankylosing.org/108144/ive-had-painful-heels-and-feet-for-seven-years-diagnosed-with-fibromyalgia-osteoarthritis-and-now/ Tue, 25 Oct 2011 02:43:12 +0000 Asked by Sari 4 months ago http://answers.ankylosing.org/108144/ive-had-painful-heels-and-feet-for-seven-years-diagnosed-with-fibromyalgia-osteoarthritis-and-now/ G'day there & Hi I am new to this site & if you hadn't noticed the slang I am from Australia. I have not yet been formally diagnosed as having AS but I realy think I have it. I am HLAB27 positive & I get gout. I also am in so much pain from my lower back & hips that I am on Fentanyl patches, Lyrica & other meds. Does anyone get bad pain in the lower back from standing in one position for more than 5 minutes? Standing at the kitchen bench realy kills me. http://answers.ankylosing.org/108062/gday-there-hi-i-am-new-to-this-site-if-you-hadnt-noticed-the-slang-i-am-from-australia-i-have/ Mon, 24 Oct 2011 00:14:08 +0000 Asked by Aussie 68 4 months ago http://answers.ankylosing.org/108062/gday-there-hi-i-am-new-to-this-site-if-you-hadnt-noticed-the-slang-i-am-from-australia-i-have/ Does anyone have problems with sugar levels?at the docs office they poke you everytime and im always 80 -90s last 2xs 142 and 120.they are now doing a fasting test and i do not have diabetes in my family except step dad http://answers.ankylosing.org/108045/does-anyone-have-problems-with-sugar-levels/ Sun, 23 Oct 2011 18:34:08 +0000 Asked by Shelley Leppaluoto 4 months ago http://answers.ankylosing.org/108045/does-anyone-have-problems-with-sugar-levels/ Does anyone else have extreme tenderness on their back and back of legs? Mine are so bad that my clothes hurt touching me. I had a SI injection in Monday. Things got worse. Any ideas? http://answers.ankylosing.org/107954/does-anyone-else-have-extreme-tenderness-on-their-back-and-back-of-legs/ Sat, 22 Oct 2011 04:25:21 +0000 Asked by Daniel Garcia 4 months ago http://answers.ankylosing.org/107954/does-anyone-else-have-extreme-tenderness-on-their-back-and-back-of-legs/ Looking for suggestions or home remedies. I have had bronchitis now since Oct. 1st. Can't shake it. Have taken 2 antibiotics and tried several cough meds. Today craked a rib coughing. I can't take mush more of this. Have been in a flare for a while with my AS, sed rate 83, CRP 1.20, Comp.182, Remicade not helping, now on prednisone. I know these meds lower my resistance. Just need some advice. Thanks? http://answers.ankylosing.org/107951/looking-for-suggestions-or-home-remedies-i-have-had-bronchitis-now-since-oct-1st-cant-shake-it-have/ Sat, 22 Oct 2011 01:07:36 +0000 Asked by Tami Finch 4 months ago http://answers.ankylosing.org/107951/looking-for-suggestions-or-home-remedies-i-have-had-bronchitis-now-since-oct-1st-cant-shake-it-have/ Thefacesofankylosingspondylitis.wordpress.com, please go and read some of the stories here, and if you feel like it, contribute to it. Thanks? http://answers.ankylosing.org/107913/thefacesofankylosingspondylitiswordpresscom-please-go-and-read-some-of-the-stories-here-and-if-you/ Fri, 21 Oct 2011 15:23:51 +0000 Asked by Jackie Aitchison 4 months ago http://answers.ankylosing.org/107913/thefacesofankylosingspondylitiswordpresscom-please-go-and-read-some-of-the-stories-here-and-if-you/ Does anyone have trouble with dry eyes or problems with contact lenses? I am having a hard time with just my right eye and it is frustrating. My eye seems to get dry a lot and my contact likes to just fall out. Perhaps it is not AS related but it seems that everything else I have wrong is AS related. Eye problems anyone? http://answers.ankylosing.org/107879/does-anyone-have-trouble-with-dry-eyes-or-problems-with-contact-lenses/ Fri, 21 Oct 2011 00:50:55 +0000 Asked by Jason Ferguson 4 months ago http://answers.ankylosing.org/107879/does-anyone-have-trouble-with-dry-eyes-or-problems-with-contact-lenses/ Software for tracking symptoms? Someone mentioned 'Chronica' (an iPhone app) and it's pretty good, but not the perfect thing. What, if anything, do you use to track your pain levels, fatigue, meds, sleep, exercise, food? I am currently trying to correlate barometric pressure and fatigue spells. Is there an app for this? http://answers.ankylosing.org/107862/software-for-tracking-symptoms-someone-mentioned-chronica-an-iphone-app-and-its-pretty-good-but/ Thu, 20 Oct 2011 19:01:40 +0000 Asked by Rose Bigham 4 months ago http://answers.ankylosing.org/107862/software-for-tracking-symptoms-someone-mentioned-chronica-an-iphone-app-and-its-pretty-good-but/ Hi everyone - hope everyone is having a good day! Not a question - just an update really, went back to docs yesterday, so far not all of my blood results are back but my x-rays showed significant thinning of the lumber discs and some damage in the cervical area, so radiologist has ordered a mri scan of the lumber area and x-rays of my middle back - doc has prescribed me folic acid as I was low but no vit D or iron probs - so that's good! Also got some Lansoprazole, so that's the story so far? http://answers.ankylosing.org/107855/hi-everyone-hope-everyone-is-having-a-good-day-not-a-question-just-an-update-really-went-back-to/ Thu, 20 Oct 2011 16:30:08 +0000 Asked by Tanya de Lacy 4 months ago http://answers.ankylosing.org/107855/hi-everyone-hope-everyone-is-having-a-good-day-not-a-question-just-an-update-really-went-back-to/ Does anyone have Crohn's along with AS? Ever since I was diagnosed with AS my stomach has not been the same. I don't want to be gross but I have diarrhea after I eat anything, and I get really bad cramps. http://answers.ankylosing.org/107815/does-anyone-have-crohns-along-with-as/ Thu, 20 Oct 2011 05:36:23 +0000 Asked by Anna Blaszkiewicz 4 months ago http://answers.ankylosing.org/107815/does-anyone-have-crohns-along-with-as/ Does anyone get sharp pain in their wrist every so often? It feels deep in my wrist, and spreads up my hand when I move my hand or pick things up. It usually lasts for a few days. If so, what do you do about it? http://answers.ankylosing.org/107814/does-anyone-get-sharp-pain-in-their-wrist-every-so-often/ Thu, 20 Oct 2011 04:54:24 +0000 Asked by Kathryn 4 months ago http://answers.ankylosing.org/107814/does-anyone-get-sharp-pain-in-their-wrist-every-so-often/ Saw my doc today they say now i have oesteopinia in my spine with T7 deforming and collapsing does anyone else have this? http://answers.ankylosing.org/107806/saw-my-doc-today-they-say-now-i-have-oesteopinia-in-my-spine-with-t7-deforming-and-collapsing-does-anyone/ Thu, 20 Oct 2011 01:05:25 +0000 Asked by Shelley Leppaluoto 4 months ago http://answers.ankylosing.org/107806/saw-my-doc-today-they-say-now-i-have-oesteopinia-in-my-spine-with-t7-deforming-and-collapsing-does-anyone/ Fatigue flares! Just saw my pain doc and he doesn't yet believe that barometric pressure/seasonal changes can cause pain and fatigue flares. He suggested I may have narcolepsy or that I may need a sleep study to explain why these sudden fatigue fits happen and cause me to drop asleep a few times per month. Sigh. We are going to try tapering one of my meds which can cause drowsiness to see if it changes things. My rheumy point-blank said that *all* of his patients react to pressure. Sigh? http://answers.ankylosing.org/107802/fatigue-flares-just-saw-my-pain-doc-and-he-doesnt-yet-believe-that-barometric-pressureseasonal-changes/ Thu, 20 Oct 2011 00:17:53 +0000 Asked by Rose Bigham 4 months ago http://answers.ankylosing.org/107802/fatigue-flares-just-saw-my-pain-doc-and-he-doesnt-yet-believe-that-barometric-pressureseasonal-changes/ I've had AS for 8 yrs now and started out on methotrexate which I would never consider ever again. I just had my first injections of lidocaine in trigger points in my lower/mid/upper back has anyone else had these with any success? I am pretty sore and stiff after getting them scheduled for more next month hoping to hear some good about them http://answers.ankylosing.org/107706/ive-had-as-for-8-yrs-now-and-started-out-on-methotrexate-which-i-would-never-consider-ever-again-i/ Wed, 19 Oct 2011 05:00:46 +0000 Asked by Amanda Hanley 4 months ago http://answers.ankylosing.org/107706/ive-had-as-for-8-yrs-now-and-started-out-on-methotrexate-which-i-would-never-consider-ever-again-i/ Dramatic sinus congestion + fatigue flare. Is this common? I was down most of yesterday, working from the couch and doing very little. About 8pm my sinuses suddenly congested so badly I couldn't breathe through my nose! I sniffed Afrin, took a Mucinex D, put on a Breathe-right strip, and went to bed. I slept for nearly 24 hours (!). If it wasn't for the dog I wouldn't have left the house at all! Has anyone else mapped sinus congestion and fatigue? Is that a thing? http://answers.ankylosing.org/107703/dramatic-sinus-congestion-fatigue-flare-is-this-common-i-was-down-most-of-yesterday-working-from/ Wed, 19 Oct 2011 01:06:33 +0000 Asked by Rose Bigham 4 months ago http://answers.ankylosing.org/107703/dramatic-sinus-congestion-fatigue-flare-is-this-common-i-was-down-most-of-yesterday-working-from/ Has anyone been diagnosed with PUD Peptic Ulcer Disease. I was diagnosed with this a couple weeks ago due to overuse of my NSAIDS (Celebrex) I was told by my Rheumy to take one everyday now I cannot take them at all. At the same time I started Pilates and Yoga and I have to say I have not felt better in a long time! I truly believe everything happens for a reason? http://answers.ankylosing.org/107660/has-anyone-been-diagnosed-with-pud-peptic-ulcer-disease-i-was-diagnosed-with-this-a-couple-weeks-ago/ Tue, 18 Oct 2011 14:29:24 +0000 Asked by Deana Devries 4 months ago http://answers.ankylosing.org/107660/has-anyone-been-diagnosed-with-pud-peptic-ulcer-disease-i-was-diagnosed-with-this-a-couple-weeks-ago/ I've been in an extended flare, had steroid injections in my facet joints and the medical dr. At my job is not ready to let me come back to work. I've been off work approximately 2 months. Thank God i have good benefits, but i'm concerned i may end up on long term disability. Anyone else been faced with this? I've only been diagnosed with undifferentiated spondylitis for 2 yrs. Also wondering if this is common to have a flare last this long? http://answers.ankylosing.org/107614/ive-been-in-an-extended-flare-had-steroid-injections-in-my-facet-joints-and-the-medical-dr-at-my-job/ Mon, 17 Oct 2011 20:20:10 +0000 Asked by Karen Davenport 4 months ago http://answers.ankylosing.org/107614/ive-been-in-an-extended-flare-had-steroid-injections-in-my-facet-joints-and-the-medical-dr-at-my-job/ Hi everyone - hope you are all ok, my doc has put me on 600mg of Ibuprofen x3 per day for now, but it's giving me tummy ache and bad indigestion - am I right in thinking that I can't take an indigestion remedy (Gavisgon etc.) while I'm taking the ibuprofen? http://answers.ankylosing.org/107612/hi-everyone-hope-you-are-all-ok-my-doc-has-put-me-on-600mg-of-ibuprofen-x3-per-day-for-now-but-its/ Mon, 17 Oct 2011 20:04:10 +0000 Asked by Tanya de Lacy 4 months ago http://answers.ankylosing.org/107612/hi-everyone-hope-you-are-all-ok-my-doc-has-put-me-on-600mg-of-ibuprofen-x3-per-day-for-now-but-its/ I started Humira 5 weeks ago and haven't gotten any relief from the pain. My doctor wanted me to go on Simponi but my insurance wouldn't approve it till I tried both Embrell and Humira. When should I be concerned that this isn't working? I havn't been officially diagnoised with AS since my MRI's came out normal but I am HLBA27 poisitive, have hashimotos and my mother has psoratic and ra. My main problem is my feet. I have sever chronic plantar fasciitis in both. I'm so frustrated. http://answers.ankylosing.org/107595/i-started-humira-5-weeks-ago-and-havent-gotten-any-relief-from-the-pain-my-doctor-wanted-me-to-go-on/ Mon, 17 Oct 2011 16:53:32 +0000 Asked by Rita Dapkus Craig 4 months ago http://answers.ankylosing.org/107595/i-started-humira-5-weeks-ago-and-havent-gotten-any-relief-from-the-pain-my-doctor-wanted-me-to-go-on/ I have been diagnosed with A.S for a lil over 10 years. During the time of finding out what was wrong i had quit my weekly excercises due to pain. While i have researched the disease i have found that the most important time of non stooping stance is in the first 5 to 10 yrs of diagnosing. What can i do to get my height back to the close range of what i had? I dont think ive had major fusion yet and i have been on enbrel. To give an idea of my height change, i was almost 6' tall and now maybe5'6 http://answers.ankylosing.org/107534/i-have-been-diagnosed-with-as-for-a-lil-over-10-years-during-the-time-of-finding-out-what-was-wrong/ Sun, 16 Oct 2011 22:15:54 +0000 Asked by Kevin 4 months ago http://answers.ankylosing.org/107534/i-have-been-diagnosed-with-as-for-a-lil-over-10-years-during-the-time-of-finding-out-what-was-wrong/ Please read Dr. Akerkar's blog about diminishing importance of HLA-B27 in diagnosing AS. doctorakerkar.wordpress.com/2011/10/16/ankylosing-spondyliti Comments? http://answers.ankylosing.org/107531/please-read-dr-akerkars-blog-about-diminishing-importance-of-hla-b27-in-diagnosing-as-a-hrefhttpdoctorakerkarwordpresscom20111016ankylosing-spondylitis-have-you-missed-your-diagnosis-as-you-were-hla-b27-negative/ Sun, 16 Oct 2011 21:01:38 +0000 Asked by Stephen 4 months ago http://answers.ankylosing.org/107531/please-read-dr-akerkars-blog-about-diminishing-importance-of-hla-b27-in-diagnosing-as-a-hrefhttpdoctorakerkarwordpresscom20111016ankylosing-spondylitis-have-you-missed-your-diagnosis-as-you-were-hla-b27-negative/ Blah blah blah blah blah blah? http://answers.ankylosing.org/107511/blah-blah-blah-blah-blah-blah/ Sun, 16 Oct 2011 18:39:41 +0000 Asked by Steve 4 months ago http://answers.ankylosing.org/107511/blah-blah-blah-blah-blah-blah/ Sitting here at a pity party (alone of course) thinking how the hell did I get here and wondering what the friggin future holds. Pain meds are starting to become less and less effective. I have lingering pain even with percocet but don't want to take to many and not wake up one day. The pain is still tolerable but the fatigue is horrible and seems to be worse between pills. Is that a sign my body is craving the narcotic? http://answers.ankylosing.org/107465/sitting-here-at-a-pity-party-alone-of-course-thinking-how-the-hell-did-i-get-here-and-wondering-what/ Sun, 16 Oct 2011 06:45:33 +0000 Asked by Michael Rowley 4 months ago http://answers.ankylosing.org/107465/sitting-here-at-a-pity-party-alone-of-course-thinking-how-the-hell-did-i-get-here-and-wondering-what/ Has anyone experimented with different eating plans such as primal, paleo, perricone etc with any success? I am really trying to change my diet just to optimize whatever impact it can have on my symptoms. Please let me know if you have had success with anything like that. Thanks! http://answers.ankylosing.org/107447/has-anyone-experimented-with-different-eating-plans-such-as-primal-paleo-perricone-etc-with-any-succes/ Sun, 16 Oct 2011 01:34:01 +0000 Asked by Bj 4 months ago http://answers.ankylosing.org/107447/has-anyone-experimented-with-different-eating-plans-such-as-primal-paleo-perricone-etc-with-any-succes/ On Enbrel 5 wks now & have burning in my eyes & lips the day after an injection & occasional numbness thru my body. 2 wks ago I had a car accident & ended up with some numbness/tingling on the left side of my body. The left side numbness is improving but after my last injection my eyes/lips were burning & my face felt tingly/numb on both sides. Wondering if it's a result of the accident or Enbrel? Would like some input before my GP appt Tues. http://answers.ankylosing.org/107283/on-enbrel-5-wks-now-have-burning-in-my-eyes-lips-the-day-after-an-injection-occasional-numbness/ Fri, 14 Oct 2011 18:10:30 +0000 Asked by Jennifer Harb 4 months ago http://answers.ankylosing.org/107283/on-enbrel-5-wks-now-have-burning-in-my-eyes-lips-the-day-after-an-injection-occasional-numbness/ I'm thinking about going off of the TNFI medication I currently take, and I'm a little bit afraid. I had an abnormal finding that may indicate nerve problems (which can be exaccerbated by these meds). Not a question, but I had to tell someone who would understand what I'm facing. Scary stuff. :(? http://answers.ankylosing.org/107250/im-thinking-about-going-off-of-the-tnfi-medication-i-currently-take-and-im-a-little-bit-afraid-i/ Fri, 14 Oct 2011 02:19:38 +0000 Asked by Amori99 4 months ago http://answers.ankylosing.org/107250/im-thinking-about-going-off-of-the-tnfi-medication-i-currently-take-and-im-a-little-bit-afraid-i/ I keep on losing my voice. Even if I laugh for long time i'll lose my voice. If i'll eat something cold like ice-cream or when my throat feels cold like in the morning than again I'll lose my voice. Sometime I'll lose my voice for no reason. Sometime it lasts for an hour and sometime for days. Its frustrating, doctor says nothing is wrong. Do anyone have similar problem? Do anyone know what's wrong with me? http://answers.ankylosing.org/107202/i-keep-on-losing-my-voice-even-if-i-laugh-for-long-time-ill-lose-my-voice-if-ill-eat-something-cold/ Thu, 13 Oct 2011 13:29:57 +0000 Asked by Bhumika Sharma 4 months ago http://answers.ankylosing.org/107202/i-keep-on-losing-my-voice-even-if-i-laugh-for-long-time-ill-lose-my-voice-if-ill-eat-something-cold/ Hello i am 30 yr. My test result of HLA- B27 is positive . Is that is curable? http://answers.ankylosing.org/107200/hello-i-am-30-yr-my-test-result-of-hla-b27-is-positive-is-that-is-curable/ Thu, 13 Oct 2011 12:46:20 +0000 Asked by Vivek 4 months ago http://answers.ankylosing.org/107200/hello-i-am-30-yr-my-test-result-of-hla-b27-is-positive-is-that-is-curable/ Hello, I am an 18 year old male. My mother has AS. I read that the condition is usually more prevalent in males (about 3:1 male to female ratio). I have also read that AS is hereditary. I am curious if someone may confirm these two statements. I have no symptoms, but I was curious if there are any precautions I should take since it seems very possible I may develop AS in the future? http://answers.ankylosing.org/107186/hello-i-am-an-18-year-old-male-my-mother-has-as-i-read-that-the-condition-is-usually-more-prevalent/ Thu, 13 Oct 2011 05:52:20 +0000 Asked by Atomicunicorn 4 months ago http://answers.ankylosing.org/107186/hello-i-am-an-18-year-old-male-my-mother-has-as-i-read-that-the-condition-is-usually-more-prevalent/ Are urinary tract infections to be expected because I have a lowered immune system? On my 5th Humira shot. http://answers.ankylosing.org/107174/are-urinary-tract-infections-to-be-expected-because-i-have-a-lowered-immune-system/ Thu, 13 Oct 2011 00:44:25 +0000 Asked by Denise 4 months ago http://answers.ankylosing.org/107174/are-urinary-tract-infections-to-be-expected-because-i-have-a-lowered-immune-system/ What can you guys tell me about Tramadol? http://answers.ankylosing.org/107169/what-can-you-guys-tell-me-about-tramadol/ Thu, 13 Oct 2011 00:05:01 +0000 Asked by Stacy 4 months ago http://answers.ankylosing.org/107169/what-can-you-guys-tell-me-about-tramadol/ Hi AS sufferers,anyone in north east england pay for there humira injections themselfs.how much per year do ye pay.sorry to be so personal? http://answers.ankylosing.org/107096/hi-as-sufferersanyone-in-north-east-england-pay-for-there-humira-injections-themselfshow-much-per-year/ Wed, 12 Oct 2011 07:39:19 +0000 Asked by Mick Knox 4 months ago http://answers.ankylosing.org/107096/hi-as-sufferersanyone-in-north-east-england-pay-for-there-humira-injections-themselfshow-much-per-year/ Has anyone been treated for Grave's disease as well? I had a 17 yr remission from AS but during that time I was diagnosed with Grave's & given radioactive iodine which destroyed my thyroid. After they finally found the right dosage of Synthroid, I was stable for 6 yrs. Now, since January, my required dosage has doubled but my AS is back in full force. With both being autoimmune diseases, I'm thinking there must be a connection. http://answers.ankylosing.org/107094/has-anyone-been-treated-for-graves-disease-as-well/ Wed, 12 Oct 2011 06:57:35 +0000 Asked by Amie Davis 4 months ago http://answers.ankylosing.org/107094/has-anyone-been-treated-for-graves-disease-as-well/ Is it okay to take a tramadol at 2 in the morning? http://answers.ankylosing.org/107091/is-it-okay-to-take-a-tramadol-at-2-in-the-morning/ Wed, 12 Oct 2011 06:06:11 +0000 Asked by John Hernandez 4 months ago http://answers.ankylosing.org/107091/is-it-okay-to-take-a-tramadol-at-2-in-the-morning/ Hi everyone, does anyone have any suggestions on how to boost energy levels and combat some of the tiredness? It's really getting me down! My doc has put me on Ibuprofen so far, but no pain meds as yet, with children to look after it's a real battle for me at the moment! Thanks! http://answers.ankylosing.org/107066/hi-everyone-does-anyone-have-any-suggestions-on-how-to-boost-energy-levels-and-combat-some-of-the-tirednes/ Tue, 11 Oct 2011 21:57:19 +0000 Asked by Tanya de Lacy 4 months ago http://answers.ankylosing.org/107066/hi-everyone-does-anyone-have-any-suggestions-on-how-to-boost-energy-levels-and-combat-some-of-the-tirednes/ Has the Humira stopped working? Feel like i've been run over and haven't noticed a lot of difference after taking the last three shots. I used to get a sense of wellbeing after the jabs for about a week but now nothing. Anybody else experienced this? Thanks all. http://answers.ankylosing.org/107059/has-the-humira-stopped-working-feel-like-ive-been-run-over-and-havent-noticed-a-lot-of-difference/ Tue, 11 Oct 2011 19:10:16 +0000 Asked by Neil Golder 4 months ago http://answers.ankylosing.org/107059/has-the-humira-stopped-working-feel-like-ive-been-run-over-and-havent-noticed-a-lot-of-difference/ So for those of you on Humira, how well do you heal from ordinary cuts, mosquito bites, etc.? I used to have 'super healing powers' before using Humira, and now these ordinary sores/cuts take forever to heal. Any of you have the same issue? http://answers.ankylosing.org/107014/so-for-those-of-you-on-humira-how-well-do-you-heal-from-ordinary-cuts-mosquito-bites-etc/ Tue, 11 Oct 2011 01:57:20 +0000 Asked by Chapps 4 months ago http://answers.ankylosing.org/107014/so-for-those-of-you-on-humira-how-well-do-you-heal-from-ordinary-cuts-mosquito-bites-etc/ Hi fellow AS sufferers. Haven't logged in for a while, just got married and alot of time was spent on preparation. My question is. To the long term unemployed, how do you spend your days, when you have little or no reason to get up in the morning? http://answers.ankylosing.org/107008/hi-fellow-as-sufferers-havent-logged-in-for-a-while-just-got-married-and-alot-of-time-was-spent-on/ Tue, 11 Oct 2011 00:23:43 +0000 Asked by Michael Candy 4 months ago http://answers.ankylosing.org/107008/hi-fellow-as-sufferers-havent-logged-in-for-a-while-just-got-married-and-alot-of-time-was-spent-on/ Hi AS people, haven't been on for quite some time. I just got married and alot of time has been taken with preparation. Anyway here is my question. To the long term unemployed, a year or more. How do you spend your day, when you are in so much pain? http://answers.ankylosing.org/107007/hi-as-people-havent-been-on-for-quite-some-time-i-just-got-married-and-alot-of-time-has-been-taken/ Tue, 11 Oct 2011 00:17:33 +0000 Asked by Michael Candy 4 months ago http://answers.ankylosing.org/107007/hi-as-people-havent-been-on-for-quite-some-time-i-just-got-married-and-alot-of-time-has-been-taken/ Ok so on the recommendation of many i made an appointment with a pain clinic...they called me last week to get me in sooner and my appointment is tomorrow morning. Im kinda nervous because their book of paperwork says their main focus is joint injections and well thanks to you tube and my fear of needles im now terrified! It also says they do not manage narcotics? Huh? (thats what i said) but then the very next page is an opioid contract? What should i expect? http://answers.ankylosing.org/107006/ok-so-on-the-recommendation-of-many-i-made-an-appointment-with-a-pain-clinicthey-called-me-last-week/ Mon, 10 Oct 2011 23:41:57 +0000 Asked by Heather Gamble 4 months ago http://answers.ankylosing.org/107006/ok-so-on-the-recommendation-of-many-i-made-an-appointment-with-a-pain-clinicthey-called-me-last-week/ C-Reactive Protein of .3 is good right? http://answers.ankylosing.org/106997/c-reactive-protein-of-3-is-good-right/ Mon, 10 Oct 2011 20:56:43 +0000 Asked by Joni 4 months ago http://answers.ankylosing.org/106997/c-reactive-protein-of-3-is-good-right/ So my doctor has agreed on sending me for an MRI because the pain in my back and neck are so severe. However, the order was for the cervical neck only. I called and she is on vacation, so I opted to cancel the MRI at this time and wait for her to come back and hopefully order images for neck, thoracic, and lumbar. I feel like doing it all in one shot is much easier and will give me more answers. Thoughts? http://answers.ankylosing.org/106972/so-my-doctor-has-agreed-on-sending-me-for-an-mri-because-the-pain-in-my-back-and-neck-are-so-severe/ Mon, 10 Oct 2011 15:51:45 +0000 Asked by Brittney Brown 4 months ago http://answers.ankylosing.org/106972/so-my-doctor-has-agreed-on-sending-me-for-an-mri-because-the-pain-in-my-back-and-neck-are-so-severe/ An apology... And no I wasn't banned from the site? http://answers.ankylosing.org/106942/an-apology-and-no-i-wasnt-banned-from-the-site/ Sun, 09 Oct 2011 18:59:44 +0000 Asked by Steve 4 months ago http://answers.ankylosing.org/106942/an-apology-and-no-i-wasnt-banned-from-the-site/ Those of you in relationships: Are your sig. Others supportive and understanding, or no? Seems like there are lots of stories of spouses not understanding, to the point of almost emotional cruelty. For those of you less-supportive relationships: Is anyone in counseling? Has it helped? If no to either question: Why not? Us single folk are wondering about how partnership works when AS is in it. Thx! http://answers.ankylosing.org/106932/those-of-you-in-relationships-are-your-sig-others-supportive-and-understanding-or-no-seems-like-there/ Sun, 09 Oct 2011 14:55:00 +0000 Asked by Rose Bigham 4 months ago http://answers.ankylosing.org/106932/those-of-you-in-relationships-are-your-sig-others-supportive-and-understanding-or-no-seems-like-there/ Looks like the no starch nut got blocked and has come in on a fake name....nikki kerr. Please monitor this one? http://answers.ankylosing.org/106926/looks-like-the-no-starch-nut-got-blocked-and-has-come-in-on-a-fake-namenikki-kerr-please-monitor/ Sun, 09 Oct 2011 09:27:30 +0000 Asked by Jerry Grynspan 4 months ago http://answers.ankylosing.org/106926/looks-like-the-no-starch-nut-got-blocked-and-has-come-in-on-a-fake-namenikki-kerr-please-monitor/ Has anyone here ever tried accupuncture for pain relief and how effective was it? I'm allergic/have had ridiculously bad (near death) experiences with most of the medication out there for AS. And my yoga/stretching/diet/rest/physical theraphy/just pushing through it/Celebrex cure is just not enough. http://answers.ankylosing.org/106924/has-anyone-here-ever-tried-accupuncture-for-pain-relief-and-how-effective-was-it/ Sun, 09 Oct 2011 08:16:20 +0000 Asked by Susan Skelly 4 months ago http://answers.ankylosing.org/106924/has-anyone-here-ever-tried-accupuncture-for-pain-relief-and-how-effective-was-it/ I am not a doctor and have also never seen this on-line or elsewhere. What is the difference between AS and Undifferentiated Spondylitis other than statistics, that I lay no claim to believing or disbelieving, that AS is 3:1 males and US is 3:1 females? http://answers.ankylosing.org/106898/i-am-not-a-doctor-and-have-also-never-seen-this-on-line-or-elsewhere-what-is-the-difference-between/ Sat, 08 Oct 2011 22:02:32 +0000 Asked by Jerry Grynspan 4 months ago http://answers.ankylosing.org/106898/i-am-not-a-doctor-and-have-also-never-seen-this-on-line-or-elsewhere-what-is-the-difference-between/ Single people! How do you manage self-care and your healthcare/comfort needs on your own without a partner? Do you have concerns about being single with Spondylitis in the future? Do you have support systems through family, friends . ..? Or are you powering through alone? How about trying to date? http://answers.ankylosing.org/106895/single-people-how-do-you-manage-self-care-and-your-healthcarecomfort-needs-on-your-own-without-a-partner/ Sat, 08 Oct 2011 21:34:54 +0000 Asked by Rose Bigham 4 months ago http://answers.ankylosing.org/106895/single-people-how-do-you-manage-self-care-and-your-healthcarecomfort-needs-on-your-own-without-a-partner/ I hate it when I tell my husband what is wrong and he tells me ...... "I have that two". Ah... No you don't. Does anyone else get that. I just give up and take my meds and hope the pain will let up? http://answers.ankylosing.org/106875/i-hate-it-when-i-tell-my-husband-what-is-wrong-and-he-tells-me-i-have-that-two-ah-no-you/ Sat, 08 Oct 2011 13:05:40 +0000 Asked by Bonnie Breneman 4 months ago http://answers.ankylosing.org/106875/i-hate-it-when-i-tell-my-husband-what-is-wrong-and-he-tells-me-i-have-that-two-ah-no-you/ As much as I hate to admit it the NSD may alleviate pain in as many as 30%, but is far from the perfect cure that its promoter claims.more in message section? http://answers.ankylosing.org/106871/as-much-as-i-hate-to-admit-it-the-nsd-may-alleviate-pain-in-as-many-as-30-but-is-far-from-the-perfect/ Sat, 08 Oct 2011 11:50:41 +0000 Asked by Jerry Grynspan 4 months ago http://answers.ankylosing.org/106871/as-much-as-i-hate-to-admit-it-the-nsd-may-alleviate-pain-in-as-many-as-30-but-is-far-from-the-perfect/ I'm married, with a 3-year-old daughter and 9-year-old stepson. My AS is affecting them more and more. How are families coping with AS? Where and how do partners/spouses find support for themselves? For children of spondy patients? How have you explained AS to a young child? http://answers.ankylosing.org/106868/im-married-with-a-3-year-old-daughter-and-9-year-old-stepson-my-as-is-affecting-them-more-and-more/ Sat, 08 Oct 2011 11:17:52 +0000 Asked by Jessica Hartwell 4 months ago http://answers.ankylosing.org/106868/im-married-with-a-3-year-old-daughter-and-9-year-old-stepson-my-as-is-affecting-them-more-and-more/ What's the oddest thing anyone said to you after you told them you have ankylosing spondylitis? http://answers.ankylosing.org/106849/whats-the-oddest-thing-anyone-said-to-you-after-you-told-them-you-have-ankylosing-spondylitis/ Sat, 08 Oct 2011 00:24:17 +0000 Asked by Stephen 4 months ago http://answers.ankylosing.org/106849/whats-the-oddest-thing-anyone-said-to-you-after-you-told-them-you-have-ankylosing-spondylitis/ WHERE ARE THE MODERATORS?!?!?! I really cant be the only person here who came to ask an AS related question but decided why bother because id rather not wind up with 20 some posts about a miracle diet! This site used to be helpful i used to take solace here in knowing that other people had the same issues. Now i cant even bother to ask a legitimate question for fear ill just get trolled...trolls on every post...lotsa troll questions...somebody fix this please! http://answers.ankylosing.org/106832/where-are-the-moderators/ Fri, 07 Oct 2011 20:13:50 +0000 Asked by Heather Gamble 4 months ago http://answers.ankylosing.org/106832/where-are-the-moderators/ Is it time to get off the INSULIN ROLLERCOASTER? http://answers.ankylosing.org/106828/is-it-time-to-get-off-the-insulin-rollercoaster/ Fri, 07 Oct 2011 19:22:57 +0000 Asked by Steve 4 months ago http://answers.ankylosing.org/106828/is-it-time-to-get-off-the-insulin-rollercoaster/ For the past couple weeks my neck has hurt and been getting sharp pains. Neck xrays came back clear dr said, but the past two days have been unreal with pain. I can barely turn my head to the right side. I can feel a huge knot on the back of neck. I barely slept last night and nothing is helping. I heard seeing a chiropractor is bad when you have AS. HELP?! http://answers.ankylosing.org/106823/for-the-past-couple-weeks-my-neck-has-hurt-and-been-getting-sharp-pains-neck-xrays-came-back-clear-dr/ Fri, 07 Oct 2011 16:44:41 +0000 Asked by Brittney Brown 4 months ago http://answers.ankylosing.org/106823/for-the-past-couple-weeks-my-neck-has-hurt-and-been-getting-sharp-pains-neck-xrays-came-back-clear-dr/ Kiebsella - can someone explain to me what this is please, can it be passed from person to person? How do you get it? What are the implications of having it? I ask because my little girl was born 12 weeks prem, she had a few complications including a severe infection called NEC which causes damage to the bowel. She was treated at Great Ormond Street Hospital before being transferred back to our local hospital and when we returned she had Kiebsella, and put in the infections ward - thanks! http://answers.ankylosing.org/106815/kiebsella-can-someone-explain-to-me-what-this-is-please-can-it-be-passed-from-person-to-person-how/ Fri, 07 Oct 2011 11:01:55 +0000 Asked by Tanya de Lacy 4 months ago http://answers.ankylosing.org/106815/kiebsella-can-someone-explain-to-me-what-this-is-please-can-it-be-passed-from-person-to-person-how/ Hi everyone, could you advise me re-flares - at the moment I seems for have 3-4 days of feeling really unwell, pain in nearly all my joints etc., and then 2-5 days of feeling alot better and not hurting in so many places, less stiffness etc. This has been going on for over two months, is this one large flare? Or flares back to back? What do you guys go through with a flare? Many Thanks http://answers.ankylosing.org/106814/hi-everyone-could-you-advise-me-re-flares-at-the-moment-i-seems-for-have-3-4-days-of-feeling-really/ Fri, 07 Oct 2011 10:26:59 +0000 Asked by Tanya de Lacy 4 months ago http://answers.ankylosing.org/106814/hi-everyone-could-you-advise-me-re-flares-at-the-moment-i-seems-for-have-3-4-days-of-feeling-really/ Hi, Can you please recommend a good pain patch that I can use for severe AS pain in spine SI Joints and hip. I am currently on Enbrel, synap forte, Celebrex, Tylenol, but the pain is still so bad. I am also having stomach ulcers due to the medication. Maybe a pain patch might help me to reduce my pain killers? Please canyou advise me? Thanks alot http://answers.ankylosing.org/106812/hi-can-you-please-recommend-a-good-pain-patch-that-i-can-use-for-severe-as-pain-in-spine-si-joints-and/ Fri, 07 Oct 2011 07:22:33 +0000 Asked by Rosary 4 months ago http://answers.ankylosing.org/106812/hi-can-you-please-recommend-a-good-pain-patch-that-i-can-use-for-severe-as-pain-in-spine-si-joints-and/ Support Group Meeting for Kansas City area is set! Saturday October 29th 9:00am Matt Ross Community Center 8101 Marty St. Overland Park, Kansas THere is carpooling avaiable for those on the Missouri side just give me a shout. This will also be available for the AS website? http://answers.ankylosing.org/106792/support-group-meeting-for-kansas-city-area-is-set-saturday-october-29th-900am-matt-ross-community-center/ Thu, 06 Oct 2011 20:07:09 +0000 Asked by Cindy Clark Barta 4 months ago http://answers.ankylosing.org/106792/support-group-meeting-for-kansas-city-area-is-set-saturday-october-29th-900am-matt-ross-community-center/ NO STARCH DIET: Testimonials... Please have a read through the testimonials in this link. If they don't convince you that the NSD is not bulls**t then nothing will. Some of them mention links to books, but like I said before you don't need to buy them and you can contact me via e mail and I will answer any questions you have.... TAKE CONTROL AND TAKE YOUR LIFE BACK! Bon voyage :) Steve.... www.kickas.org/ubbthreads/ubbthreads.php?ubb=showflat&Number http://answers.ankylosing.org/106765/no-starch-diet-testimonials-please-have-a-read-through-the-testimonials-in-this-link-if-they-dont/ Thu, 06 Oct 2011 11:26:05 +0000 Asked by Steve 4 months ago http://answers.ankylosing.org/106765/no-starch-diet-testimonials-please-have-a-read-through-the-testimonials-in-this-link-if-they-dont/ Anyone have any ideas on supplements for the immune system? I was thinking it might be a good idea to take something since my remicade treatments knock my immune system down. http://answers.ankylosing.org/106730/anyone-have-any-ideas-on-supplements-for-the-immune-system/ Wed, 05 Oct 2011 19:21:23 +0000 Asked by Karen Davenport 4 months ago http://answers.ankylosing.org/106730/anyone-have-any-ideas-on-supplements-for-the-immune-system/ The NO STARCH DIET... Has anyone tried it and if so how successful were you on it? I've joined this site today and had a good look through and not seen it mentioned once! I've been dabbling with it for 2 years and since strictly adhering to it 6 months ago my AS is now in remission. Try it folks! http://answers.ankylosing.org/106724/the-no-starch-diet-has-anyone-tried-it-and-if-so-how-successful-were-you-on-it/ Wed, 05 Oct 2011 17:34:59 +0000 Asked by Steve 4 months ago http://answers.ankylosing.org/106724/the-no-starch-diet-has-anyone-tried-it-and-if-so-how-successful-were-you-on-it/ My dad has been suffering with AS symptoms for years. I am HLAB27 + with AS. Dr told him he has swelling in his back and spurs in his vertebre, he will need to have surgery to remove spurs to take pressure off the nerves or lose mobility in his legs. Dr said nothing about anti-inflamatory meds and sent him home with painkillers. He is waiting for results of blood test for HLAB27 BUT told my dad he does not have AS. Shouldn't he try anti-inflammatory meds before going to surgery? http://answers.ankylosing.org/106681/my-dad-has-been-suffering-with-as-symptoms-for-years-i-am-hlab27-with-as-dr-told-him-he-has-swelling/ Tue, 04 Oct 2011 23:54:33 +0000 Asked by Denise 4 months ago http://answers.ankylosing.org/106681/my-dad-has-been-suffering-with-as-symptoms-for-years-i-am-hlab27-with-as-dr-told-him-he-has-swelling/ Got a letter from the pharmacy (Walgreens). They won't be refilling Humira anymore. Does anyone know what's going on? Is it ALL Walgreens, or just certain ones? Should this be expected? http://answers.ankylosing.org/106646/got-a-letter-from-the-pharmacy-walgreens-they-wont-be-refilling-humira-anymore-does-anyone-know/ Tue, 04 Oct 2011 13:12:36 +0000 Asked by Denise 4 months ago http://answers.ankylosing.org/106646/got-a-letter-from-the-pharmacy-walgreens-they-wont-be-refilling-humira-anymore-does-anyone-know/ Hi I have been on Enbrel (25mx2 weekly) for just over 2 months now. I have not had any improvements yet, and had a bad flare about 2 weeks ago due to stress. Can you please tell me if you think I should also start methotrexate, with the Enbrel, because the Enbrel not yet working:-( I have severe spinal AS pain and SI joint and hip pain. I am 34 years old. Really appreciate your help Thanks Rosary? http://answers.ankylosing.org/106645/hi-i-have-been-on-enbrel-25mx2-weekly-for-just-over-2-months-now-i-have-not-had-any-improvements-yet/ Tue, 04 Oct 2011 12:49:06 +0000 Asked by Rosary 4 months ago http://answers.ankylosing.org/106645/hi-i-have-been-on-enbrel-25mx2-weekly-for-just-over-2-months-now-i-have-not-had-any-improvements-yet/ I also wanted to ask about 'creeking' and 'clicking' in the joints and back, I've always had clicky toes and knees, but I now seem to have clicking in my back and hips especially when I get in and out of the car and creeking in my neck - is this another AS ailment? (Sorry I'm full of questions today as I'm seeing my GP tomorrow!) Thanks! http://answers.ankylosing.org/106631/i-also-wanted-to-ask-about-creeking-and-clicking-in-the-joints-and-back-ive-always-had-clicky-toes/ Tue, 04 Oct 2011 10:15:30 +0000 Asked by Tanya de Lacy 4 months ago http://answers.ankylosing.org/106631/i-also-wanted-to-ask-about-creeking-and-clicking-in-the-joints-and-back-ive-always-had-clicky-toes/ I was just watching the BBC News this morning and they were talking about research into a lack of vitamin D in very fair skinned people - I know people have mentioned it, but what is the link between a lack of vit D and AS and other related conditions? http://answers.ankylosing.org/106626/i-was-just-watching-the-bbc-news-this-morning-and-they-were-talking-about-research-into-a-lack-of-vitamin/ Tue, 04 Oct 2011 09:06:19 +0000 Asked by Tanya de Lacy 4 months ago http://answers.ankylosing.org/106626/i-was-just-watching-the-bbc-news-this-morning-and-they-were-talking-about-research-into-a-lack-of-vitamin/ I was diagnosed 20 years ago with crohn's due to significant colon bleeding but never had typical symptoms of crohn's. I had debilitating back pain and many episodes of iritis. I used high doses of NSAID's, which can cause bleeding. I have been on a drug called 6 MP and the back pain and iritis went away. I've had frequent migraines for 15 years, and my neck is very stiff. My daughter has HLA-B27 genetic factor which causes AS. Should I see a rheumatologist or just stay on the 6 MP? http://answers.ankylosing.org/106571/i-was-diagnosed-20-years-ago-with-crohns-due-to-significant-colon-bleeding-but-never-had-typical-symptoms/ Mon, 03 Oct 2011 13:07:10 +0000 Asked by Gaye Kopas 5 months ago http://answers.ankylosing.org/106571/i-was-diagnosed-20-years-ago-with-crohns-due-to-significant-colon-bleeding-but-never-had-typical-symptoms/ Thought I'd mention another forum where they discuss stuff like what shoes or canes help with RA, etc. Also post articles. Not specific to AS, but definitely an RA site. rachicks.com? http://answers.ankylosing.org/106559/thought-id-mention-another-forum-where-they-discuss-stuff-like-what-shoes-or-canes-help-with-ra-etc/ Mon, 03 Oct 2011 02:25:33 +0000 Asked by Elizabeth Winchell 5 months ago http://answers.ankylosing.org/106559/thought-id-mention-another-forum-where-they-discuss-stuff-like-what-shoes-or-canes-help-with-ra-etc/ Looks like my rheumy has become so popular that he's unavailable for months at a time. I'm not even able to get an appointment. So I'm looking for a new rheumy who specializes in AS and PsA in the Los Angeles area. Any referrals? http://answers.ankylosing.org/106545/looks-like-my-rheumy-has-become-so-popular-that-hes-unavailable-for-months-at-a-time-im-not-even-able/ Sun, 02 Oct 2011 19:24:39 +0000 Asked by Chapps 5 months ago http://answers.ankylosing.org/106545/looks-like-my-rheumy-has-become-so-popular-that-hes-unavailable-for-months-at-a-time-im-not-even-able/ Great tip off someone other week, when injecting use a ice cube to numb area before you take your injection you wont feel a thing,thanks alot.ps it works? http://answers.ankylosing.org/106541/great-tip-off-someone-other-week-when-injecting-use-a-ice-cube-to-numb-area-before-you-take-your-injection/ Sun, 02 Oct 2011 18:18:15 +0000 Asked by Mick Knox 5 months ago http://answers.ankylosing.org/106541/great-tip-off-someone-other-week-when-injecting-use-a-ice-cube-to-numb-area-before-you-take-your-injection/ Has anyone had experience with weakness, numbness, heavy and shaky feeling in their arms or legs? It was just my left arm, but it is now in my left leg as well. I can move it but they feel like they weigh 50lbs a piece. My leg feels like jello and is very shaky. I called on call dr just now and she says go to ER right away, but I went last week for the same thing in my arm and they sent me home with no answers. http://answers.ankylosing.org/106491/has-anyone-had-experience-with-weakness-numbness-heavy-and-shaky-feeling-in-their-arms-or-legs/ Sat, 01 Oct 2011 18:21:09 +0000 Asked by Brittney Brown 5 months ago http://answers.ankylosing.org/106491/has-anyone-had-experience-with-weakness-numbness-heavy-and-shaky-feeling-in-their-arms-or-legs/ Hi guys has anyone got any good tips for swollen ankles? My feet and ankles really hurt by the eve, I'm due to see my doc next week and we have been going through a heatwave here in the UK (due to last for another few days apparently), I've tried elevating them, but it's not making much difference! Thanks http://answers.ankylosing.org/106485/hi-guys-has-anyone-got-any-good-tips-for-swollen-ankles/ Sat, 01 Oct 2011 17:03:57 +0000 Asked by Tanya de Lacy 5 months ago http://answers.ankylosing.org/106485/hi-guys-has-anyone-got-any-good-tips-for-swollen-ankles/ Muscle spams that paralyze you, when would you see a doctor? So I got up this morning and was sore and creaky which is nothing new. However, whilst in the shower my neck, down low where it joins the rest of your back went in paralyzing spasm. My husband had to finish washing my hair for me and dry and it and dress me. I found some Flexeril I had from a similar thing a couple of years ago and took it despite not knowing if it's any good. When would you see a doctor? http://answers.ankylosing.org/106483/muscle-spams-that-paralyze-you-when-would-you-see-a-doctor/ Sat, 01 Oct 2011 12:36:42 +0000 Asked by Lindsay Cairns 5 months ago http://answers.ankylosing.org/106483/muscle-spams-that-paralyze-you-when-would-you-see-a-doctor/ Recently diagnosed with AS. I am awaiting appt with RA dr but in the mean time am seeing my PCP. I am taking tramadol and tylenol every 6 hr for pain..nothing has helped..tried percocet, vicodin, now this..what can i do to get relief? I am 26 and have 3 small children..ive been out of work since end of aug..my symptoms are getting much worse as well..i am actually questioning the possibility of MS instead of AS and think i may request dr to do test. http://answers.ankylosing.org/106472/recently-diagnosed-with-as-i-am-awaiting-appt-with-ra-dr-but-in-the-mean-time-am-seeing-my-pcp-i-am/ Sat, 01 Oct 2011 03:45:52 +0000 Asked by Brittney Brown 5 months ago http://answers.ankylosing.org/106472/recently-diagnosed-with-as-i-am-awaiting-appt-with-ra-dr-but-in-the-mean-time-am-seeing-my-pcp-i-am/ Has anyone ever had to deal with eye pain during a holiday (like Christmas) and could not get to the doctor until several days later? I have had to wait several days to get to the doctor for my uveitis over Labor Day weekend two years ago. It was horrible and I had to wait five days to see my eye doctor. http://answers.ankylosing.org/106470/has-anyone-ever-had-to-deal-with-eye-pain-during-a-holiday-like-christmas-and-could-not-get-to-the/ Sat, 01 Oct 2011 02:36:16 +0000 Asked by Jamie 5 months ago http://answers.ankylosing.org/106470/has-anyone-ever-had-to-deal-with-eye-pain-during-a-holiday-like-christmas-and-could-not-get-to-the/ Do any of you also have Crohn's Disease? If so do you have Infliximab infusions and does it help for both conditions? I'm just waiting to change from Enbrel injections because although they work well for AS, they have no affect on the Crohn's symptoms. http://answers.ankylosing.org/106401/do-any-of-you-also-have-crohns-disease-if-so-do-you-have-infliximab-infusions-and-does-it-help-for/ Thu, 29 Sep 2011 21:01:44 +0000 Asked by Anna Porter 5 months ago http://answers.ankylosing.org/106401/do-any-of-you-also-have-crohns-disease-if-so-do-you-have-infliximab-infusions-and-does-it-help-for/ Has anyone had luck with light therapy or dawn simulators? My rheumy suggested - as sort of a hail-mary idea, I think - that those might help with weather-related symptoms throughout thed changing weather of the Fall here in Seattle (where S.A.D. Is a real thing). Has anyone tried these? http://answers.ankylosing.org/106391/has-anyone-had-luck-with-light-therapy-or-dawn-simulators/ Thu, 29 Sep 2011 15:05:48 +0000 Asked by Rose Bigham 5 months ago http://answers.ankylosing.org/106391/has-anyone-had-luck-with-light-therapy-or-dawn-simulators/ Is hair loss one of AS's symptom? http://answers.ankylosing.org/106388/is-hair-loss-one-of-ass-symptom/ Thu, 29 Sep 2011 12:59:13 +0000 Asked by Davidson 5 months ago http://answers.ankylosing.org/106388/is-hair-loss-one-of-ass-symptom/ Wow we are having an Indian summer here in England - temp reaching 29 Celsius at least until Monday! It's October on Sunday! How do people cope with the heat? Does it affect you or is it the cold that makes symptoms worse? One thing I think that is a plus for hot weather is at least people feel happier in the sunshine! I'm really not looking forward to the cold winter and snow though! http://answers.ankylosing.org/106387/wow-we-are-having-an-indian-summer-here-in-england-temp-reaching-29-celsius-at-least-until-monday/ Thu, 29 Sep 2011 10:25:27 +0000 Asked by Tanya de Lacy 5 months ago http://answers.ankylosing.org/106387/wow-we-are-having-an-indian-summer-here-in-england-temp-reaching-29-celsius-at-least-until-monday/ Another thing, I have always dyed my hair and have been doing so myself for a while, can I continue doing so? I've noticed more hair falling out that usual when I shower. Can I also get tattoos? I have 7 and my mother and I wanted to get one together but wasn't sure what to do? Thanks! http://answers.ankylosing.org/106382/another-thing-i-have-always-dyed-my-hair-and-have-been-doing-so-myself-for-a-while-can-i-continue-doing/ Thu, 29 Sep 2011 08:27:24 +0000 Asked by Sasha 5 months ago http://answers.ankylosing.org/106382/another-thing-i-have-always-dyed-my-hair-and-have-been-doing-so-myself-for-a-while-can-i-continue-doing/ Hey guys! So I'm off to go to UCSF for my 4th MRI of my neck, they found a tumor in my liver that they said to be a hemangioma and they have found two in my neck, what I want to know is why all of these hemangiomas are popping up, what's causing them and what can stop them? I'm also going very numb in my arms and legs and I don't know what to do about that, the Rheumy didn't really give me any help, so I thought I'd turn to you all to help me out with what to ask and what to help! http://answers.ankylosing.org/106381/hey-guys-so-im-off-to-go-to-ucsf-for-my-4th-mri-of-my-neck-they-found-a-tumor-in-my-liver-that-they/ Thu, 29 Sep 2011 08:26:04 +0000 Asked by Sasha 5 months ago http://answers.ankylosing.org/106381/hey-guys-so-im-off-to-go-to-ucsf-for-my-4th-mri-of-my-neck-they-found-a-tumor-in-my-liver-that-they/ I am rather confused as I have been told different things by my doctor. I was told I had Ankylosing spondolitis, after seeing him today he said it was spondolitis I has. Are they both the same thing and if not what is the difference? http://answers.ankylosing.org/106351/i-am-rather-confused-as-i-have-been-told-different-things-by-my-doctor-i-was-told-i-had-ankylosing-spondolitis/ Wed, 28 Sep 2011 18:47:28 +0000 Asked by Carol Byers 5 months ago http://answers.ankylosing.org/106351/i-am-rather-confused-as-i-have-been-told-different-things-by-my-doctor-i-was-told-i-had-ankylosing-spondolitis/ I had read in an earlier posting that people using Humira are prone to getting listeria. The news has been reporting on the listeria outbreaks from cantaloupes. I guess my question is, is this something those of us on Humira should be watching out for? I know what I want to ask and I hope my question makes sense. http://answers.ankylosing.org/106342/i-had-read-in-an-earlier-posting-that-people-using-humira-are-prone-to-getting-listeria-the-news-has/ Wed, 28 Sep 2011 15:37:06 +0000 Asked by Jason Ferguson 5 months ago http://answers.ankylosing.org/106342/i-had-read-in-an-earlier-posting-that-people-using-humira-are-prone-to-getting-listeria-the-news-has/ Hello, I am a 23 year old male. I have been diagnosed with AS and I am currently on week 6 of the Enbrel medicine. About 8 weeks ago I had an arthroscopic hip surgery. I have YET to feel ANY TYPE of relief in my back pain. What makes things more difficult is that I can not exercise a lot because of my hip (not to mention it kills me to do any exercise because of the amount of pain my back is in). My question to everyone is....how important is exercise when taking Enbrel for AS? http://answers.ankylosing.org/106338/hello-i-am-a-23-year-old-male-i-have-been-diagnosed-with-as-and-i-am-currently-on-week-6-of-the-enbrel/ Wed, 28 Sep 2011 14:14:15 +0000 Asked by Kyle Becker 5 months ago http://answers.ankylosing.org/106338/hello-i-am-a-23-year-old-male-i-have-been-diagnosed-with-as-and-i-am-currently-on-week-6-of-the-enbrel/ First, I want to say thank you for the thinning hair suggestions. I have to update my profile pic but I also go it cut short with layers and it looks like I have more hair! When I'm tired, especially at night I have uncontrollable movements in my hands. Right now, as I type this, I'm making terrible mistakes because my other fingers are "revolting". Anyone else have this kind of thing? http://answers.ankylosing.org/106322/first-i-want-to-say-thank-you-for-the-thinning-hair-suggestions-i-have-to-update-my-profile-pic-but/ Wed, 28 Sep 2011 06:19:06 +0000 Asked by Amy Picklo 5 months ago http://answers.ankylosing.org/106322/first-i-want-to-say-thank-you-for-the-thinning-hair-suggestions-i-have-to-update-my-profile-pic-but/ I have had AS for 17 years and in the last year I have been having eye pain ...mostly the right eye. The eye doc says my eye is fine and there is no iritis. He says its the muscles around the eye are swollen, causing pain and he has seen this in several of his auto-immune patients. Anyone ever experienced this eye muscle pain or know of someone? What can be done to alleviate this pain? Any help appreciated! http://answers.ankylosing.org/106311/i-have-had-as-for-17-years-and-in-the-last-year-i-have-been-having-eye-pain-mostly-the-right-eye/ Tue, 27 Sep 2011 23:06:24 +0000 Asked by Lisa Drown 5 months ago http://answers.ankylosing.org/106311/i-have-had-as-for-17-years-and-in-the-last-year-i-have-been-having-eye-pain-mostly-the-right-eye/ Needing some support. I was diagnosed with AS in August, after it felt like my whole body was falling apart. I've been on 2 different NSAIDS and nothing is working. My pain is unbearable that I'm in tears all the time. I go back to the rheumy this Thursday so hopefully we'll find something that helps. Now, I have something new going on. My primary doctor found a lipoma (tumor) on my right side, between my ribs and hip. I have to go see a surgeon to have it removed and biopsied? http://answers.ankylosing.org/106309/needing-some-support-i-was-diagnosed-with-as-in-august-after-it-felt-like-my-whole-body-was-falling/ Tue, 27 Sep 2011 21:49:38 +0000 Asked by LeeAnn Fine 5 months ago http://answers.ankylosing.org/106309/needing-some-support-i-was-diagnosed-with-as-in-august-after-it-felt-like-my-whole-body-was-falling/ I have been reading the group posts and have to say thank you for the support. I am a 35 year ol (female) and have been diagnosed with AS, hypertension, vit. D difficient, left SI joint, L-3 -S1 degeneration and was on Humira May 11- July 11 until it stopped helping and I had horrible site reactions. I am supposed to start Enbrel, but developed bacterial bronchitis this past week, does anyone have any advice as to how to help my immune system deal with all of this? Supplements http://answers.ankylosing.org/106307/i-have-been-reading-the-group-posts-and-have-to-say-thank-you-for-the-support-i-am-a-35-year-ol-female/ Tue, 27 Sep 2011 19:30:17 +0000 Asked by Karla Fernandez 5 months ago http://answers.ankylosing.org/106307/i-have-been-reading-the-group-posts-and-have-to-say-thank-you-for-the-support-i-am-a-35-year-ol-female/ Has anyone on TNf inhibitors and MTX ever had their hair permed/ colored? http://answers.ankylosing.org/106302/has-anyone-on-tnf-inhibitors-and-mtx-ever-had-their-hair-permed-colored/ Tue, 27 Sep 2011 18:59:22 +0000 Asked by Cara Guikema 5 months ago http://answers.ankylosing.org/106302/has-anyone-on-tnf-inhibitors-and-mtx-ever-had-their-hair-permed-colored/ Okay i keep getting reall sharp pains in the top right of my chest my pusle is 83 bpm , any idea's? http://answers.ankylosing.org/106301/okay-i-keep-getting-reall-sharp-pains-in-the-top-right-of-my-chest-my-pusle-is-83-bpm-any-ideas/ Tue, 27 Sep 2011 17:43:51 +0000 Asked by Alex White 5 months ago http://answers.ankylosing.org/106301/okay-i-keep-getting-reall-sharp-pains-in-the-top-right-of-my-chest-my-pusle-is-83-bpm-any-ideas/ Anyone else get one of those horseshoe shaped neck pillows that they sell in airports? It has been a lifesaver for me and even my wife got one. http://answers.ankylosing.org/106296/anyone-else-get-one-of-those-horseshoe-shaped-neck-pillows-that-they-sell-in-airports/ Tue, 27 Sep 2011 16:43:35 +0000 Asked by Jerry Grynspan 5 months ago http://answers.ankylosing.org/106296/anyone-else-get-one-of-those-horseshoe-shaped-neck-pillows-that-they-sell-in-airports/ Hi all as sufferers,has anyone had a bad flare up while taking humira? http://answers.ankylosing.org/106284/hi-all-as-sufferershas-anyone-had-a-bad-flare-up-while-taking-humira/ Tue, 27 Sep 2011 11:36:10 +0000 Asked by Mick Knox 5 months ago http://answers.ankylosing.org/106284/hi-all-as-sufferershas-anyone-had-a-bad-flare-up-while-taking-humira/ I am very new to this site - but I just wanted to say a big 'Thank You' to all of you that have answered my questions and made me feel better! I feel so much better equipped to fight the docs for the right diagnosis and medication - you are a lovely bunch of people! :)? http://answers.ankylosing.org/106272/i-am-very-new-to-this-site-but-i-just-wanted-to-say-a-big-thank-you-to-all-of-you-that-have-answered/ Mon, 26 Sep 2011 23:20:08 +0000 Asked by Tanya de Lacy 5 months ago http://answers.ankylosing.org/106272/i-am-very-new-to-this-site-but-i-just-wanted-to-say-a-big-thank-you-to-all-of-you-that-have-answered/ Hi My Rheumatolgist Suggested that I start taking Humari but the possiable Side Affects worries me. I get sick about 3 to 5 times a year and for the past sevreal years I have been having Hands that Shake alot that is possiable of a Neurological Disorder. Tell me what you Think? http://answers.ankylosing.org/106263/hi-my-rheumatolgist-suggested-that-i-start-taking-humari-but-the-possiable-side-affects-worries-me-i/ Mon, 26 Sep 2011 20:24:51 +0000 Asked by John Johnson 5 months ago http://answers.ankylosing.org/106263/hi-my-rheumatolgist-suggested-that-i-start-taking-humari-but-the-possiable-side-affects-worries-me-i/ My SI joints have been a real problem for a while now. I've had SI injections 3x this year and no relief. Any suggestions? http://answers.ankylosing.org/106229/my-si-joints-have-been-a-real-problem-for-a-while-now-ive-had-si-injections-3x-this-year-and-no-relief/ Mon, 26 Sep 2011 00:48:24 +0000 Asked by Daniel Garcia 5 months ago http://answers.ankylosing.org/106229/my-si-joints-have-been-a-real-problem-for-a-while-now-ive-had-si-injections-3x-this-year-and-no-relief/ Obviously my fixation about alternative medicine has alienated people. I apologize. Are we happy yet? http://answers.ankylosing.org/106228/obviously-my-fixation-about-alternative-medicine-has-alienated-people-i-apologize-are-we-happy-yet/ Sun, 25 Sep 2011 23:39:19 +0000 Asked by Jerry Grynspan 5 months ago http://answers.ankylosing.org/106228/obviously-my-fixation-about-alternative-medicine-has-alienated-people-i-apologize-are-we-happy-yet/ Is there any connection between AS and SPD (Symphysis Pubis Dydfunction) during pregnancy? I would be really interested to know as I am going through tests for AS at the mo and had SPD severely with my 3rd child and had to use crutches - thanks! http://answers.ankylosing.org/106195/is-there-any-connection-between-as-and-spd-symphysis-pubis-dydfunction-during-pregnancy/ Sun, 25 Sep 2011 02:01:43 +0000 Asked by Tanya de Lacy 5 months ago http://answers.ankylosing.org/106195/is-there-any-connection-between-as-and-spd-symphysis-pubis-dydfunction-during-pregnancy/ This sounds a bit odd when I say it to other people, but I'm sure you guys will understand me - I have all the symptoms of AS but am yet to go through tests, I have had chronic back pain for years (I now have many more symptoms) but I question my pain - is it really that bad, am I so used to it that for another person it would be terrible or have I just become over-sensitive to pain and every niggle hurts? What do you think? Thanks http://answers.ankylosing.org/106193/this-sounds-a-bit-odd-when-i-say-it-to-other-people-but-im-sure-you-guys-will-understand-me-i-have/ Sun, 25 Sep 2011 00:50:02 +0000 Asked by Tanya de Lacy 5 months ago http://answers.ankylosing.org/106193/this-sounds-a-bit-odd-when-i-say-it-to-other-people-but-im-sure-you-guys-will-understand-me-i-have/ I have a really red eye - Ive searched it here and find it is a common thing with my AS - however, I could not find advice/tips on what to do for it - anything to help it calm down? Thank you and have a wonderful weekend! http://answers.ankylosing.org/106159/i-have-a-really-red-eye-ive-searched-it-here-and-find-it-is-a-common-thing-with-my-as-however-i/ Sat, 24 Sep 2011 20:15:33 +0000 Asked by Jenni 5 months ago http://answers.ankylosing.org/106159/i-have-a-really-red-eye-ive-searched-it-here-and-find-it-is-a-common-thing-with-my-as-however-i/ A person answers a question with another question instead of using the "ask a question" box. The only way they will be aware of a response is if the person who posted the original question 8 months ago (assuming they are still watching this board) has a response. Is there any way to respond to the new question so that the new questioner is notified of the response? http://answers.ankylosing.org/106156/a-person-answers-a-question-with-another-question-instead-of-using-the-ask-a-question-box-the-only/ Sat, 24 Sep 2011 18:48:34 +0000 Asked by Jerry Grynspan 5 months ago http://answers.ankylosing.org/106156/a-person-answers-a-question-with-another-question-instead-of-using-the-ask-a-question-box-the-only/ Can someone fill me in on what to expect at my first Rheumatology appointment. This is actually my second rheumatologist but apparently the basket case I saw the first go around, over a year ago, didn't really do a work up like a normal Rheumy would. I'm just really nervous so would love anything you could share, on what to expect? Tips on things to ask, do, bring... Anything and everything would be greatly appreciated. They told me to bring all my meds, but that's about it. Thanks http://answers.ankylosing.org/106099/can-someone-fill-me-in-on-what-to-expect-at-my-first-rheumatology-appointment-this-is-actually-my-second/ Fri, 23 Sep 2011 19:24:23 +0000 Asked by Lindsay Cairns 5 months ago http://answers.ankylosing.org/106099/can-someone-fill-me-in-on-what-to-expect-at-my-first-rheumatology-appointment-this-is-actually-my-second/ I have a lot of stomach problems, I had ulcers from taking too many anti-inflammitories. I still get sick, when I have a flare, I feel nauseas, dizzy and headaches. Is this part of AS or something else? http://answers.ankylosing.org/106060/i-have-a-lot-of-stomach-problems-i-had-ulcers-from-taking-too-many-anti-inflammitories-i-still-get/ Fri, 23 Sep 2011 00:16:38 +0000 Asked by Carmen 5 months ago http://answers.ankylosing.org/106060/i-have-a-lot-of-stomach-problems-i-had-ulcers-from-taking-too-many-anti-inflammitories-i-still-get/ I have been gone for a while fractured my spine& broke my foot have been in bed for 2 weeks now im supposed to fly out sat for a wedding dont know what to do so scared my family has not seen me in 2 years and i am afraid of being a burden on them my disease is moving fast i cant stand tall anymore & look like 100yr old lady walking.not sure what to do feel like crying want to see them before i get even worse but traveling scares me and the looks on their faces scares me too? http://answers.ankylosing.org/106045/i-have-been-gone-for-a-while-fractured-my-spine-broke-my-foot-have-been-in-bed-for-2-weeks-now-im-supposed/ Thu, 22 Sep 2011 19:59:17 +0000 Asked by Shelley Leppaluoto 5 months ago http://answers.ankylosing.org/106045/i-have-been-gone-for-a-while-fractured-my-spine-broke-my-foot-have-been-in-bed-for-2-weeks-now-im-supposed/ Does anyone get a bloated tummy with AS? http://answers.ankylosing.org/106043/does-anyone-get-a-bloated-tummy-with-as/ Thu, 22 Sep 2011 17:14:50 +0000 Asked by Tanya de Lacy 5 months ago http://answers.ankylosing.org/106043/does-anyone-get-a-bloated-tummy-with-as/ I have had lower back pain since my twenties, I am now 38 and in the last 3 yrs have had increased hip pain and knee pain, I had a bout of sciatica that lasted for 17 months, I was found to be anemic earlier this year and in the last 3 months has had awful morning stiffness in my back and neck, pains in my feet and heels and also in my hands. Does this sound like AS? I have never had any screening done or tests, but I think I should - I also get bouts of uncontrollable tiredness :( http://answers.ankylosing.org/106014/i-have-had-lower-back-pain-since-my-twenties-i-am-now-38-and-in-the-last-3-yrs-have-had-increased-hip/ Thu, 22 Sep 2011 10:17:27 +0000 Asked by Tanya de Lacy 5 months ago http://answers.ankylosing.org/106014/i-have-had-lower-back-pain-since-my-twenties-i-am-now-38-and-in-the-last-3-yrs-have-had-increased-hip/ I have Cervical and Lumbar Spondylosis and my legs are numb most of the time. I can just about walk about with a stick, but in severe pain. I seem to be allergic to just about every type of medication. I also have two fractured vertebrae in my neck. My doctor will not refer me back to the specialist, as he says there is nothing they can do evey though the pain makes me feel sick. He says I am wasting his time and he has others to see! What can I do? http://answers.ankylosing.org/105972/i-have-cervical-and-lumbar-spondylosis-and-my-legs-are-numb-most-of-the-time-i-can-just-about-walk-about/ Wed, 21 Sep 2011 10:14:28 +0000 Asked by Rosalie Jackson 5 months ago http://answers.ankylosing.org/105972/i-have-cervical-and-lumbar-spondylosis-and-my-legs-are-numb-most-of-the-time-i-can-just-about-walk-about/ Asking for a course of steroids? When is that called for? I have had increasing pain/fatigue flares lately and I'm trying to work full time. I slept 15 hours the other night and was a wreck when I finally woke; fevers, upset stomach, everything hurt AND brain fog. Seeing rheumy later. Is it reasonable to ask for 5-7 days of prednisone to get a boost? http://answers.ankylosing.org/105923/asking-for-a-course-of-steroids-when-is-that-called-for/ Tue, 20 Sep 2011 13:22:50 +0000 Asked by Rose Bigham 5 months ago http://answers.ankylosing.org/105923/asking-for-a-course-of-steroids-when-is-that-called-for/ Does anyone have experience taking leflunomide? It appears to be hard to get excited about. http://answers.ankylosing.org/105918/does-anyone-have-experience-taking-leflunomide/ Tue, 20 Sep 2011 11:40:27 +0000 Asked by Michael Connor 5 months ago http://answers.ankylosing.org/105918/does-anyone-have-experience-taking-leflunomide/ A month ago I noticed in the mirror that on my left side at the base of my neck just above the collar bone it looked swollen compared to the right side. I went to my Doctor, and he sent me for a biopsy. The area was not sore, and had no hard lumps I could feel. It did not go away, and last Thursday I had a biopsy on a lymph node a surgeon removed. It turns out I have Small lymphocytic lymphoma (SLL). I am not sure how the HLA-B27 reacts together. Anyone else had this? http://answers.ankylosing.org/105917/a-month-ago-i-noticed-in-the-mirror-that-on-my-left-side-at-the-base-of-my-neck-just-above-the-collar/ Tue, 20 Sep 2011 11:38:22 +0000 Asked by Bill Holder 5 months ago http://answers.ankylosing.org/105917/a-month-ago-i-noticed-in-the-mirror-that-on-my-left-side-at-the-base-of-my-neck-just-above-the-collar/ Sulfasalazine has gotten me out of bed and decreased my fevers, hip pain, and severe fatigue. However, 50% of my days are still "flare days", where I can't do anything but lay in bed, SI/hip killing me, and generalized aches with low grade fevers. Is this a good result, or can I expect better and demand more aggressive medication management? http://answers.ankylosing.org/105905/sulfasalazine-has-gotten-me-out-of-bed-and-decreased-my-fevers-hip-pain-and-severe-fatigue-however/ Tue, 20 Sep 2011 03:49:31 +0000 Asked by Tricia Carsley 5 months ago http://answers.ankylosing.org/105905/sulfasalazine-has-gotten-me-out-of-bed-and-decreased-my-fevers-hip-pain-and-severe-fatigue-however/ Is anyone having problems with vertigo? http://answers.ankylosing.org/105782/is-anyone-having-problems-with-vertigo/ Sat, 17 Sep 2011 15:50:32 +0000 Asked by Bonnie Breneman 5 months ago http://answers.ankylosing.org/105782/is-anyone-having-problems-with-vertigo/ Hi does anyone else have problems with there Teeth and gums being sore and inflamed from AS? http://answers.ankylosing.org/105770/hi-does-anyone-else-have-problems-with-there-teeth-and-gums-being-sore-and-inflamed-from-as/ Sat, 17 Sep 2011 07:51:31 +0000 Asked by John Johnson 5 months ago http://answers.ankylosing.org/105770/hi-does-anyone-else-have-problems-with-there-teeth-and-gums-being-sore-and-inflamed-from-as/ Anyone on Remicade and Cellcept? Is this something new or just for those that nothing else has worked? http://answers.ankylosing.org/105746/anyone-on-remicade-and-cellcept/ Sat, 17 Sep 2011 00:46:45 +0000 Asked by Becky 5 months ago http://answers.ankylosing.org/105746/anyone-on-remicade-and-cellcept/ "Radiographic progression is associated with resolution of systemic inflammation in patients with axial spondyloarthritis treated with TNF inhibitors. A study of radiographic progression, MRI inflammation and circulating biomarkers of inflammation, angiogenesis, and cartilage and bone turnover." Arthritis & Rheumatism, 09/16/2011? http://answers.ankylosing.org/105703/radiographic-progression-is-associated-with-resolution-of-systemic-inflammation-in-patients-with-axial/ Fri, 16 Sep 2011 11:50:31 +0000 Asked by Amori99 5 months ago http://answers.ankylosing.org/105703/radiographic-progression-is-associated-with-resolution-of-systemic-inflammation-in-patients-with-axial/ "2009, 10 June: Five-Year Data Demonstrate Initial Use of HUMIRA Plus Methotrexate May Prevent Further Joint Damage in Early Rheumatoid Arthritis Patients" but current reports claim it doesn't prevent joint damage. Is that AS vs RA or conflicting test results that need to be resolved? Input anyone? http://answers.ankylosing.org/105664/2009-10-june-five-year-data-demonstrate-initial-use-of-humira-plus-methotrexate-may-prevent-further/ Thu, 15 Sep 2011 20:17:58 +0000 Asked by Jerry Grynspan 5 months ago http://answers.ankylosing.org/105664/2009-10-june-five-year-data-demonstrate-initial-use-of-humira-plus-methotrexate-may-prevent-further/ What kind of foods cause you to flare up? http://answers.ankylosing.org/105650/what-kind-of-foods-cause-you-to-flare-up/ Thu, 15 Sep 2011 15:55:30 +0000 Asked by Susan Skelly 5 months ago http://answers.ankylosing.org/105650/what-kind-of-foods-cause-you-to-flare-up/ Complete this sentence: I know I'm going into a flare when? http://answers.ankylosing.org/105646/complete-this-sentence-i-know-im-going-into-a-flare-when/ Thu, 15 Sep 2011 15:07:07 +0000 Asked by Catherine Terry 5 months ago http://answers.ankylosing.org/105646/complete-this-sentence-i-know-im-going-into-a-flare-when/ I started Humira in June. The pain during injections (pen) seems to be getting worse. I've been injecting in my thighs. Has anyone gone from their thighs to stomach and noticed less pain? http://answers.ankylosing.org/105636/i-started-humira-in-june-the-pain-during-injections-pen-seems-to-be-getting-worse-ive-been-injecting/ Thu, 15 Sep 2011 12:58:48 +0000 Asked by Stacy 5 months ago http://answers.ankylosing.org/105636/i-started-humira-in-june-the-pain-during-injections-pen-seems-to-be-getting-worse-ive-been-injecting/ I often feel very uncomfortable in my clothes and can't tell if it is the AS or I am out of shape/overweight. My weight is in the good range and I go up and down by 2 pounds but I feel so uncomfortable with anything tight. Is this common? http://answers.ankylosing.org/105620/i-often-feel-very-uncomfortable-in-my-clothes-and-cant-tell-if-it-is-the-as-or-i-am-out-of-shapeoverweight/ Thu, 15 Sep 2011 03:33:25 +0000 Asked by Joni 5 months ago http://answers.ankylosing.org/105620/i-often-feel-very-uncomfortable-in-my-clothes-and-cant-tell-if-it-is-the-as-or-i-am-out-of-shapeoverweight/ So my 13 year old 2 day ago started complaining about tail bone pain. Guess this is not a question, but stating a worry? http://answers.ankylosing.org/105616/so-my-13-year-old-2-day-ago-started-complaining-about-tail-bone-pain-guess-this-is-not-a-question-but/ Thu, 15 Sep 2011 01:06:33 +0000 Asked by Rhonda Trimble 5 months ago http://answers.ankylosing.org/105616/so-my-13-year-old-2-day-ago-started-complaining-about-tail-bone-pain-guess-this-is-not-a-question-but/ Pink eye vs. Iritis? My friend keeps getting 'pinkeye' even though she hasn't been exposed. She also gets iritis regularly in one eye when her Spondylitis flares up. Does anyone get eye issues that appear to be pinkeye? I am not sure her opthamalogist knows about Spondy and related issues so maybe he is misdiagnosing? http://answers.ankylosing.org/105604/pink-eye-vs-iritis-my-friend-keeps-getting-pinkeye-even-though-she-hasnt-been-exposed-she-also/ Wed, 14 Sep 2011 19:46:56 +0000 Asked by Rose Bigham 5 months ago http://answers.ankylosing.org/105604/pink-eye-vs-iritis-my-friend-keeps-getting-pinkeye-even-though-she-hasnt-been-exposed-she-also/ Has anyone used the BuTrans patches? I have been on 40mg Oxycontin 1 every 12 hours for about a year but at my visit last week she told me to begin taking 1 oxy per day to "taper off" and start using 5mg BuTrans patches. I'm just wondering how well they would work vs. Taking the pills. http://answers.ankylosing.org/105603/has-anyone-used-the-butrans-patches/ Wed, 14 Sep 2011 19:28:37 +0000 Asked by Christine Farr Fritts 5 months ago http://answers.ankylosing.org/105603/has-anyone-used-the-butrans-patches/ Hi does anyone else have Major flair up's wit there As when under alot of Stress? http://answers.ankylosing.org/105549/hi-does-anyone-else-have-major-flair-ups-wit-there-as-when-under-alot-of-stress/ Wed, 14 Sep 2011 07:08:58 +0000 Asked by John Johnson 5 months ago http://answers.ankylosing.org/105549/hi-does-anyone-else-have-major-flair-ups-wit-there-as-when-under-alot-of-stress/ I just started my Enbrel injections last night & today I feel very run down like I'm coming down with the flu (which I totally expected) but my eyes are also burning like crazy, I'm getting hot flashes & feeling pretty depressed. Has anyone else experienced these symptoms after an injection? http://answers.ankylosing.org/105528/i-just-started-my-enbrel-injections-last-night-today-i-feel-very-run-down-like-im-coming-down-with/ Wed, 14 Sep 2011 01:08:42 +0000 Asked by Jennifer Harb 5 months ago http://answers.ankylosing.org/105528/i-just-started-my-enbrel-injections-last-night-today-i-feel-very-run-down-like-im-coming-down-with/ Can you be on other medicines/vitamins while taking Enbrel? For example, I take a Multi Vitamin every day along with Biotin and another vitamin that helps my hair grow. Is this all safe to be taking while on Enbrel? My Rheumatalogist never clearly answered what Vitamins/medicines I can take. Thanks! http://answers.ankylosing.org/105498/can-you-be-on-other-medicinesvitamins-while-taking-enbrel-for-example-i-take-a-multi-vitamin-every/ Tue, 13 Sep 2011 19:23:21 +0000 Asked by Kyle Becker 5 months ago http://answers.ankylosing.org/105498/can-you-be-on-other-medicinesvitamins-while-taking-enbrel-for-example-i-take-a-multi-vitamin-every/ Just got the best gift a jazzy power chair independence means everything so if AS gets that bad there are things out there to make life easier. My pelvis fused ,spine fused ,neck fused so walking painful and difficult nearly bent double.Spine swollen and bruised, specalist said got to use wheelchair more before I do anymore damage to spine? http://answers.ankylosing.org/105435/just-got-the-best-gift-a-jazzy-power-chair-independence-means-everything-so-if-as-gets-that-bad-there/ Mon, 12 Sep 2011 22:24:38 +0000 Asked by Jean Mace 5 months ago http://answers.ankylosing.org/105435/just-got-the-best-gift-a-jazzy-power-chair-independence-means-everything-so-if-as-gets-that-bad-there/ Has anyone had one of these serious side effects on a TNF Med? I am on Enbrel (for 2+ yrs now) and the recent additional "warnings" besides the increased cancer risk, etc. Are freaking me out! It works great, but I am getting scared. I am 39 and will probably be on this or other meds for my AS for the rest of my life....I am just so worried, they might shorten it :-O :'-( http://answers.ankylosing.org/105428/has-anyone-had-one-of-these-serious-side-effects-on-a-tnf-med/ Mon, 12 Sep 2011 16:45:57 +0000 Asked by Jenn Farrell 5 months ago http://answers.ankylosing.org/105428/has-anyone-had-one-of-these-serious-side-effects-on-a-tnf-med/ FYI - FDA stregthens warnings on TNF Blockers - www.arthritistoday.org/news/anti-tnfs-warning154.php? http://answers.ankylosing.org/105421/fyi-fda-stregthens-warnings-on-tnf-blockers-a-hrefhttpwwwarthritistodayorgnewsanti-tnfs-warning154php/ Mon, 12 Sep 2011 16:14:40 +0000 Asked by Jenni 5 months ago http://answers.ankylosing.org/105421/fyi-fda-stregthens-warnings-on-tnf-blockers-a-hrefhttpwwwarthritistodayorgnewsanti-tnfs-warning154php/ I just want to take a moment and say a big thank you to everyone. My "left eye" issue is a confirmed case of Uveitis. Saw the doctor today and am very glad is only a very mild case. Again, a big thanks to you all? http://answers.ankylosing.org/105282/i-just-want-to-take-a-moment-and-say-a-big-thank-you-to-everyone-my-left-eye-issue-is-a-confirmed/ Sun, 11 Sep 2011 02:36:44 +0000 Asked by Laura Buxton 5 months ago http://answers.ankylosing.org/105282/i-just-want-to-take-a-moment-and-say-a-big-thank-you-to-everyone-my-left-eye-issue-is-a-confirmed/ According to Lester Grinspoon, M.D., in "The Forbidden Medicne," medical marijuana may provide relief from the pain of Ankylosing Spondylitis. It has been shown to reduce inflammation and help prevent tolerance to narcotic medicines. Just curious what, if anything, anyone has heard about medical marijuana and AS? http://answers.ankylosing.org/105280/according-to-lester-grinspoon-md-in-the-forbidden-medicne-medical-marijuana-may-provide-relief/ Sun, 11 Sep 2011 02:28:30 +0000 Asked by As 5 months ago http://answers.ankylosing.org/105280/according-to-lester-grinspoon-md-in-the-forbidden-medicne-medical-marijuana-may-provide-relief/ I am positive for HLA-B27, and dealt with a severe attack of Reactive Arthritis about 2 years ago. My sedimentration rate (Level of inflamation) went to over 100, and the pain was all in my feet and toes with the left foot being considerably worse. I could barely walk and was inches from a wheelchair. It did get better after a couple months. Does having constant inflammation make a person overly warm all the time? I am on hormone replacement for hotflashes but still always HOT ! So unbearable ! http://answers.ankylosing.org/105277/i-am-positive-for-hla-b27-and-dealt-with-a-severe-attack-of-reactive-arthritis-about-2-years-ago-my/ Sun, 11 Sep 2011 01:25:40 +0000 Asked by Laurie Matson 5 months ago http://answers.ankylosing.org/105277/i-am-positive-for-hla-b27-and-dealt-with-a-severe-attack-of-reactive-arthritis-about-2-years-ago-my/ So i went to a DO who thinks i may have AS i made an appointment with a rheumy but oct 12th is the earliest appointment i could get. What can i expect as far as the rheumy appointment goes? I have a major phobia about doctors and im kinda scared. So anyone know what kind of tests to expect and such? Also im still in a lot of pain im taking ibuprofen any suggestions on how to get through it till i can get to the rheumatologist? http://answers.ankylosing.org/105268/so-i-went-to-a-do-who-thinks-i-may-have-as-i-made-an-appointment-with-a-rheumy-but-oct-12th-is-the-earliest/ Sat, 10 Sep 2011 20:55:13 +0000 Asked by Heather Gamble 5 months ago http://answers.ankylosing.org/105268/so-i-went-to-a-do-who-thinks-i-may-have-as-i-made-an-appointment-with-a-rheumy-but-oct-12th-is-the-earliest/ Anyone have tingling, burning.. Lack of feeling in their hands? I started last night with spasm in my neck and thoracic spine and ribs for absolutely no reason what so ever. I had a hard time sleeping, took some pain meds and that helped a bit. Now this morning the spasm seems to have settled from my neck but still in upper back and my hands feel tingly or hot or... Not completely normal. Anyone else have this feeling in their hands when having pain and spasm in thoracic spine? http://answers.ankylosing.org/105244/anyone-have-tingling-burning-lack-of-feeling-in-their-hands/ Sat, 10 Sep 2011 11:25:37 +0000 Asked by Lindsay Cairns 5 months ago http://answers.ankylosing.org/105244/anyone-have-tingling-burning-lack-of-feeling-in-their-hands/ Omg,all a want to do is sleep wake up 2hours lata a want to go to bed .lol? http://answers.ankylosing.org/105221/omgall-a-want-to-do-is-sleep-wake-up-2hours-lata-a-want-to-go-to-bed-lol/ Fri, 09 Sep 2011 23:02:05 +0000 Asked by Mick Knox 5 months ago http://answers.ankylosing.org/105221/omgall-a-want-to-do-is-sleep-wake-up-2hours-lata-a-want-to-go-to-bed-lol/ I have a non blood relative with AS who for the past year or so seems to read into my most innocent remarks or actions, very ill intent. He is on Remicade infusions and could that medication induce paranoid like delusions? Many thanks. http://answers.ankylosing.org/105171/i-have-a-non-blood-relative-with-as-who-for-the-past-year-or-so-seems-to-read-into-my-most-innocent-remarks/ Fri, 09 Sep 2011 05:17:17 +0000 Asked by Metoo 5 months ago http://answers.ankylosing.org/105171/i-have-a-non-blood-relative-with-as-who-for-the-past-year-or-so-seems-to-read-into-my-most-innocent-remarks/ Iv'e been on Remicade since Oct. 2010. Since that time I my Sed Rate has been in normal limits once (23). Presently 63 and as high as 96. My CRP is never normal, present 1.51. My Rheumy wants to increase my dose of Remicade which is already high and causes nausea, tiredness, upset stomach for a least 2-3 days. Don't know what I should do. Recent ANA test was positive w/ nucleolar pattern, further tests on that not back yet. Need Advice? http://answers.ankylosing.org/105163/ive-been-on-remicade-since-oct-2010-since-that-time-i-my-sed-rate-has-been-in-normal-limits-once-23/ Thu, 08 Sep 2011 22:26:50 +0000 Asked by Tami Finch 5 months ago http://answers.ankylosing.org/105163/ive-been-on-remicade-since-oct-2010-since-that-time-i-my-sed-rate-has-been-in-normal-limits-once-23/ A good friend has had a lower back surgery and 3 neck fusions in the last 7 years. She is now 47 and her Dr. Is telling her that she has to have a lumbar fusion. I don't buy it and saw this site, following a dear friends lead....L has chronic pain, and is seeing a pain management Dr., but I now believe that she may be suffering from this problem. Calcium was fine, but that does not indicate uptake levels I realize...if her vertebra are breaking down, what can she do? http://answers.ankylosing.org/105159/a-good-friend-has-had-a-lower-back-surgery-and-3-neck-fusions-in-the-last-7-years-she-is-now-47-and/ Thu, 08 Sep 2011 20:34:20 +0000 Asked by Sue Sturges 5 months ago http://answers.ankylosing.org/105159/a-good-friend-has-had-a-lower-back-surgery-and-3-neck-fusions-in-the-last-7-years-she-is-now-47-and/ Hello Everyone! I have a question for you. I have been on Enbrel since May of this year. When I started taking the injections, I felt great for the first few weeks. I could move again! It was a joyous thing! However, a few weeks later the effect started to wear off, pain started coming back, and I am now allergic to the Enbrel.They are switching me to Humira...which biologic is better? Thanks! http://answers.ankylosing.org/105156/hello-everyone-i-have-a-question-for-you-i-have-been-on-enbrel-since-may-of-this-year-when-i-started/ Thu, 08 Sep 2011 18:57:53 +0000 Asked by Julie Anne Crowley 5 months ago http://answers.ankylosing.org/105156/hello-everyone-i-have-a-question-for-you-i-have-been-on-enbrel-since-may-of-this-year-when-i-started/ How do you know when your eye problems are no longer allergies? My left eye has been driving me nuts for over a week, but it's almost too typical allergy symptom. What is wierd to me is that it is only my left eye...not my right. http://answers.ankylosing.org/105144/how-do-you-know-when-your-eye-problems-are-no-longer-allergies/ Thu, 08 Sep 2011 16:08:05 +0000 Asked by Laura Buxton 5 months ago http://answers.ankylosing.org/105144/how-do-you-know-when-your-eye-problems-are-no-longer-allergies/ Anyone have severe back spasms and/or severe back and hip pain after remicade treatment? I've been on remicade for 1 year and after my most recent treatment i've been in this condition. I'm taking muscle relaxers and norco regularly just to be able to function. My rheumy doesn't feel like its associated with my psoriatic arthritis but more of a spasm. http://answers.ankylosing.org/105143/anyone-have-severe-back-spasms-andor-severe-back-and-hip-pain-after-remicade-treatment/ Thu, 08 Sep 2011 15:22:35 +0000 Asked by Karen 5 months ago http://answers.ankylosing.org/105143/anyone-have-severe-back-spasms-andor-severe-back-and-hip-pain-after-remicade-treatment/ How long does it take until Enbrel starts working? http://answers.ankylosing.org/105141/how-long-does-it-take-until-enbrel-starts-working/ Thu, 08 Sep 2011 15:01:16 +0000 Asked by Kyle Becker 5 months ago http://answers.ankylosing.org/105141/how-long-does-it-take-until-enbrel-starts-working/ Decided, with the Doctor, to do a trial off methotrexate for a month to see if my energy levels increase dramatically. I'm only a week in and while my pain has increased a little, my main symptom is major mood swings, depression and anxiety. Has any one else experienced this? Just to refocus the discussion, this is not a question about depression or depression meds. I am asking about side effects of going off methotrexate. http://answers.ankylosing.org/105124/decided-with-the-doctor-to-do-a-trial-off-methotrexate-for-a-month-to-see-if-my-energy-levels-increase/ Thu, 08 Sep 2011 03:24:17 +0000 Asked by Beckyg 5 months ago http://answers.ankylosing.org/105124/decided-with-the-doctor-to-do-a-trial-off-methotrexate-for-a-month-to-see-if-my-energy-levels-increase/ I'm starting Enbrel injections next week & I'm wondering just how careful I need to be about being around people who have colds or the flu? I have 2 kids in school & already catch everything they come in contact with. My Mom is on Humira & said I need to quit swimming in the river b/c of the possible bacteria & practically quarrantine myself from my kids if they get sick. Do you really become that prone to catching infections? I'm starting to feel like I should be living in a bubble! Advice pls! http://answers.ankylosing.org/105118/im-starting-enbrel-injections-next-week-im-wondering-just-how-careful-i-need-to-be-about-being-around/ Thu, 08 Sep 2011 00:23:20 +0000 Asked by Jennifer Harb 5 months ago http://answers.ankylosing.org/105118/im-starting-enbrel-injections-next-week-im-wondering-just-how-careful-i-need-to-be-about-being-around/ I was wondering if there other HLA-B27+ folks who have a family history of dissecting aortic anuerisyms? http://answers.ankylosing.org/105116/i-was-wondering-if-there-other-hla-b27-folks-who-have-a-family-history-of-dissecting-aortic-anuerisyms/ Thu, 08 Sep 2011 00:00:00 +0000 Asked by Dawn Begun 5 months ago http://answers.ankylosing.org/105116/i-was-wondering-if-there-other-hla-b27-folks-who-have-a-family-history-of-dissecting-aortic-anuerisyms/ I forgot to add my eyes are so dry since starting the injections? http://answers.ankylosing.org/105080/i-forgot-to-add-my-eyes-are-so-dry-since-starting-the-injections/ Wed, 07 Sep 2011 02:35:32 +0000 Asked by Cindy Clark Barta 5 months ago http://answers.ankylosing.org/105080/i-forgot-to-add-my-eyes-are-so-dry-since-starting-the-injections/ Okay AS suffers this has to do with the eyes I feel like I have something in my eyes, not lack matter but like sand or crystals like stuff. Put drops in and it does not go away, I can rinse and rinse it feels some what better but still uncomfortable? http://answers.ankylosing.org/105079/okay-as-suffers-this-has-to-do-with-the-eyes-i-feel-like-i-have-something-in-my-eyes-not-lack-matter/ Wed, 07 Sep 2011 02:31:27 +0000 Asked by Cindy Clark Barta 5 months ago http://answers.ankylosing.org/105079/okay-as-suffers-this-has-to-do-with-the-eyes-i-feel-like-i-have-something-in-my-eyes-not-lack-matter/ For those on Simponi: How many days following the monthly injection do you typically start feeling some effect/relief? Thanks! http://answers.ankylosing.org/105065/for-those-on-simponi-how-many-days-following-the-monthly-injection-do-you-typically-start-feeling-some/ Tue, 06 Sep 2011 18:42:32 +0000 Asked by Catherine Kaplanski-Clyman 5 months ago http://answers.ankylosing.org/105065/for-those-on-simponi-how-many-days-following-the-monthly-injection-do-you-typically-start-feeling-some/ Are there any opinions about Sacroiliac joint block versus Radio frequency rhizotomy I have had a couple of injections. One worked great and the next hardly worked at all. Thinking about rhizotomy. If you have this done could you please share the outcome and how long the pain releif lasted. Thanks? http://answers.ankylosing.org/105048/are-there-any-opinions-about-sacroiliac-joint-block-versus-radio-frequency-rhizotomy-i-have-had-a-couple/ Tue, 06 Sep 2011 16:39:48 +0000 Asked by Darcy Stephens 5 months ago http://answers.ankylosing.org/105048/are-there-any-opinions-about-sacroiliac-joint-block-versus-radio-frequency-rhizotomy-i-have-had-a-couple/ Has anybody here researched the qualifications of naturopathic doctors? In some jurisdictions you can be a grade school dropout and hang a shingle claiming to be a naturopathic doctor. Knowing that, do you still support recommending people see a naturopath? http://answers.ankylosing.org/105046/has-anybody-here-researched-the-qualifications-of-naturopathic-doctors/ Tue, 06 Sep 2011 16:31:34 +0000 Asked by Jerry Grynspan 5 months ago http://answers.ankylosing.org/105046/has-anybody-here-researched-the-qualifications-of-naturopathic-doctors/ Hi i started on Methorexate about 6 weeks ago and as yet have not noticed any difference to the way i feel ...tired , sore, brain fade etc . Can anyone offer advice on their expericences with Methorexate , like what effects you noticed and how long it took to work ? Thanks :) http://answers.ankylosing.org/104975/hi-i-started-on-methorexate-about-6-weeks-ago-and-as-yet-have-not-noticed-any-difference-to-the-way-i/ Tue, 06 Sep 2011 03:59:20 +0000 Asked by Mandy 5 months ago http://answers.ankylosing.org/104975/hi-i-started-on-methorexate-about-6-weeks-ago-and-as-yet-have-not-noticed-any-difference-to-the-way-i/ Wife keeps saying the naturopath can help me with my AS through diet. Has anyone had success with this? Thanks in advance http://answers.ankylosing.org/104973/wife-keeps-saying-the-naturopath-can-help-me-with-my-as-through-diet-has-anyone-had-success-with-thi/ Tue, 06 Sep 2011 03:17:35 +0000 Asked by Steven Forbes 5 months ago http://answers.ankylosing.org/104973/wife-keeps-saying-the-naturopath-can-help-me-with-my-as-through-diet-has-anyone-had-success-with-thi/ How I love this AS community! Just spent time with dad who asks, once again, why it is that my knee has flared up. "Just did." Then he asks what we can do to "fix me"- by which he means energy work/healing. I said: "If there was energy work or remote healing that could "fix me", then one of the 30 million of us would have found it by now." Dad wants me to be healthy but every time he says there is nothing wrong with me, he denies that I am in pain, fatigued, etc. ARGH! Suggestions? http://answers.ankylosing.org/104968/how-i-love-this-as-community-just-spent-time-with-dad-who-asks-once-again-why-it-is-that-my-knee-has/ Tue, 06 Sep 2011 00:05:52 +0000 Asked by Rose Bigham 6 months ago http://answers.ankylosing.org/104968/how-i-love-this-as-community-just-spent-time-with-dad-who-asks-once-again-why-it-is-that-my-knee-has/ Is there any charity org in this wolrd that helping people who has an AS? http://answers.ankylosing.org/104905/is-there-any-charity-org-in-this-wolrd-that-helping-people-who-has-an-as/ Sun, 04 Sep 2011 23:23:01 +0000 Asked by aliyu musa gani 6 months ago http://answers.ankylosing.org/104905/is-there-any-charity-org-in-this-wolrd-that-helping-people-who-has-an-as/ I live in the UK and have recently been diagnosed with AS. I have just been prescribed tramadol and am not seeing any specialists about my condition. My question is should I be seeing someone about AS? http://answers.ankylosing.org/104899/i-live-in-the-uk-and-have-recently-been-diagnosed-with-as-i-have-just-been-prescribed-tramadol-and-am/ Sun, 04 Sep 2011 18:56:43 +0000 Asked by Carol Byers 6 months ago http://answers.ankylosing.org/104899/i-live-in-the-uk-and-have-recently-been-diagnosed-with-as-i-have-just-been-prescribed-tramadol-and-am/ I have trouble straightening my upper back. When I sit at my desk, I hunch over. This was a gradual progression for me. I used to sit and stand very straight. It hurts to straighten my upper back, though it feels good to my internal organs! Is there a stretch or exercise that can help with this? http://answers.ankylosing.org/104835/i-have-trouble-straightening-my-upper-back-when-i-sit-at-my-desk-i-hunch-over-this-was-a-gradual-progression/ Sat, 03 Sep 2011 13:23:25 +0000 Asked by Sunflower 6 months ago http://answers.ankylosing.org/104835/i-have-trouble-straightening-my-upper-back-when-i-sit-at-my-desk-i-hunch-over-this-was-a-gradual-progression/ Hi anyone out there with AS that gets Canker Sore in there mouth that hurts like Hell? http://answers.ankylosing.org/104825/hi-anyone-out-there-with-as-that-gets-canker-sore-in-there-mouth-that-hurts-like-hell/ Sat, 03 Sep 2011 07:00:31 +0000 Asked by John Johnson 6 months ago http://answers.ankylosing.org/104825/hi-anyone-out-there-with-as-that-gets-canker-sore-in-there-mouth-that-hurts-like-hell/ Hi I was recently told that my L4 and sacrum have fused and that i may have ankylosing spondylitis. I am in EXTREME pain! I saw a DO yesterday who said I need a rheumatologist I cant get an appointment till NOVEMBER 16th! I cannot walk, sit or sleep I am in a lot of pain! The DO gave me voltaren and was going to give me tramadol but I have a bad reaction to it. Im still in a lot of pain where can I get help? I cant stay like this till november! http://answers.ankylosing.org/104793/hi-i-was-recently-told-that-my-l4-and-sacrum-have-fused-and-that-i-may-have-ankylosing-spondylitis-i/ Fri, 02 Sep 2011 15:29:25 +0000 Asked by Heather Gamble 6 months ago http://answers.ankylosing.org/104793/hi-i-was-recently-told-that-my-l4-and-sacrum-have-fused-and-that-i-may-have-ankylosing-spondylitis-i/ I was diagnosed with AS 20 yrs ago following the birth of my son. Intense spinal pain, swelling in several joints & large skin lesions on my legs. After several yrs of treatment it seemed to have went away though I'd have occasional flare ups in other joints. Recently I've noticed lack of mobility & pain in my back, neck, shoulders & chest. My dr suspects a bulging cervical disc but with the nausea & extreme fatigue, I believe it's the AS. Has anyone experienced a remission of this length? http://answers.ankylosing.org/104763/i-was-diagnosed-with-as-20-yrs-ago-following-the-birth-of-my-son-intense-spinal-pain-swelling-in-several/ Thu, 01 Sep 2011 22:56:08 +0000 Asked by Amie Davis 6 months ago http://answers.ankylosing.org/104763/i-was-diagnosed-with-as-20-yrs-ago-following-the-birth-of-my-son-intense-spinal-pain-swelling-in-several/ www.the-rheumatologist.org/details/article/868011/No_Clear_C Interesting read. Discussion? http://answers.ankylosing.org/104750/a-hrefhttpwwwthe-rheumatologistorgdetailsarticle868011noclearconnectionbetweeninflammationdiseaseprogressioninashtml/ Thu, 01 Sep 2011 17:51:06 +0000 Asked by Rhonda Trimble 6 months ago http://answers.ankylosing.org/104750/a-hrefhttpwwwthe-rheumatologistorgdetailsarticle868011noclearconnectionbetweeninflammationdiseaseprogressioninashtml/ I have been Procrit dependent bc of anemia for 11 years now. If I choose to not take it, I have to have blood transfusions. Does anyone else have this type of anemia? http://answers.ankylosing.org/104738/i-have-been-procrit-dependent-bc-of-anemia-for-11-years-now-if-i-choose-to-not-take-it-i-have-to-have/ Thu, 01 Sep 2011 09:43:03 +0000 Asked by Tina 6 months ago http://answers.ankylosing.org/104738/i-have-been-procrit-dependent-bc-of-anemia-for-11-years-now-if-i-choose-to-not-take-it-i-have-to-have/ Does anyone else feel like they have the Flu Sometimes and Bruise easy? http://answers.ankylosing.org/104733/does-anyone-else-feel-like-they-have-the-flu-sometimes-and-bruise-easy/ Thu, 01 Sep 2011 06:55:21 +0000 Asked by John Johnson 6 months ago http://answers.ankylosing.org/104733/does-anyone-else-feel-like-they-have-the-flu-sometimes-and-bruise-easy/ Hi I am getting some great Answers. So is there in medicaton out there that stops the Disease in it's tracks or I have had this Disease for over 20 years is the Damage done? http://answers.ankylosing.org/104725/hi-i-am-getting-some-great-answers-so-is-there-in-medicaton-out-there-that-stops-the-disease-in-its/ Thu, 01 Sep 2011 04:13:10 +0000 Asked by John Johnson 6 months ago http://answers.ankylosing.org/104725/hi-i-am-getting-some-great-answers-so-is-there-in-medicaton-out-there-that-stops-the-disease-in-its/ I am on Enbrel and it's been working great for me for 2 year now. I just changed jobs and the one that I have now it's really stressful. Don't have time to eat properly and I am in a continuous stress. I feel like I am starting to have pain again.... Anyone experienced this because of stress? http://answers.ankylosing.org/104723/i-am-on-enbrel-and-its-been-working-great-for-me-for-2-year-now-i-just-changed-jobs-and-the-one-that/ Thu, 01 Sep 2011 02:40:36 +0000 Asked by Diana Dobrescu 6 months ago http://answers.ankylosing.org/104723/i-am-on-enbrel-and-its-been-working-great-for-me-for-2-year-now-i-just-changed-jobs-and-the-one-that/ Has anyone used Sulfazine Befor? If so what r the Pros and Cons? I just Started taking it week and half ago. http://answers.ankylosing.org/104722/has-anyone-used-sulfazine-befor-if-so-what-r-the-pros-and-cons/ Thu, 01 Sep 2011 01:54:01 +0000 Asked by John Johnson 6 months ago http://answers.ankylosing.org/104722/has-anyone-used-sulfazine-befor-if-so-what-r-the-pros-and-cons/ I have this awful pain on the inside of my foot near the heel. Every time I walk or tip toe it really hurts. When I massage my foot the area is so tender I just want to cry. I am not a diabetic nor I do not have any cuts on my foot. I can sit down and raise my foot on my toes and the pain is very harsh? http://answers.ankylosing.org/104707/i-have-this-awful-pain-on-the-inside-of-my-foot-near-the-heel-every-time-i-walk-or-tip-toe-it-really/ Wed, 31 Aug 2011 19:19:24 +0000 Asked by Kj Heaton 6 months ago http://answers.ankylosing.org/104707/i-have-this-awful-pain-on-the-inside-of-my-foot-near-the-heel-every-time-i-walk-or-tip-toe-it-really/ I need help i dont know what to do i fell and fractured my foot i have my cane but i fell 2 times last night i cant hold my weight my balance is so bad crutches come today but not sure that i have the stength or balance to use them dont know what to do crawling is safest i cant take anymore falls depression is so bad cant stop crying? http://answers.ankylosing.org/104705/i-need-help-i-dont-know-what-to-do-i-fell-and-fractured-my-foot-i-have-my-cane-but-i-fell-2-times-last/ Wed, 31 Aug 2011 17:48:35 +0000 Asked by Shelley Leppaluoto 6 months ago http://answers.ankylosing.org/104705/i-need-help-i-dont-know-what-to-do-i-fell-and-fractured-my-foot-i-have-my-cane-but-i-fell-2-times-last/ Hello i have a question concerning my Anklyosing Spodylitus? http://answers.ankylosing.org/104702/hello-i-have-a-question-concerning-my-anklyosing-spodylitus/ Wed, 31 Aug 2011 17:31:41 +0000 Asked by Ronald Swenson 6 months ago http://answers.ankylosing.org/104702/hello-i-have-a-question-concerning-my-anklyosing-spodylitus/ Hello everyone. Seasonal allergies are kicking in and kicking my butt. I used to take Advil Cold & Sinus and knock it out quick but I cannot take this anymore. Does anyone take anything that is not a NSAID that works? I just don't want it to develop into an URI and not be able to take my Humira next week. http://answers.ankylosing.org/104689/hello-everyone-seasonal-allergies-are-kicking-in-and-kicking-my-butt-i-used-to-take-advil-cold-sinus/ Wed, 31 Aug 2011 13:34:43 +0000 Asked by Denise 6 months ago http://answers.ankylosing.org/104689/hello-everyone-seasonal-allergies-are-kicking-in-and-kicking-my-butt-i-used-to-take-advil-cold-sinus/ Hi I have been recently been Diagnose with AS. My Rheumy order a ct scan and sure enough it was clear as day. I can remember far back 16 years ago when I was 27 I was in severe pain I could not walk for over 3 mouths. First I though it was my Prostate wit the Lower back and buttocks and hip pain. Is anyone else have problems wit Yeast infections and memory loss and feeling weak wit shaky hands? http://answers.ankylosing.org/104672/hi-i-have-been-recently-been-diagnose-with-as-my-rheumy-order-a-ct-scan-and-sure-enough-it-was-clear/ Wed, 31 Aug 2011 08:10:43 +0000 Asked by John Johnson 6 months ago http://answers.ankylosing.org/104672/hi-i-have-been-recently-been-diagnose-with-as-my-rheumy-order-a-ct-scan-and-sure-enough-it-was-clear/ Does anybody else have feet going to sleep and numb alot?last night my foot went to sleep i did not really notice got up,my foot rolld over,and then i fell on it. I have a chipped bone and a bad sprain.its usually the left side that sleeps but now the right too. I have never been so afraid to stand up silly i know http://answers.ankylosing.org/104666/does-anybody-else-have-feet-going-to-sleep-and-numb-alot/ Wed, 31 Aug 2011 07:37:00 +0000 Asked by Shelley Leppaluoto 6 months ago http://answers.ankylosing.org/104666/does-anybody-else-have-feet-going-to-sleep-and-numb-alot/ Has any one had any issues with employers not accommodating to your situation? I got hired on a part time job that would other wise be perfect for me however they have a strict rule that employees are not allowed to sit at all. I asked if it would be okay if I sat every once and a while if the situation were appropriate and they said no, they actually write people up for sitting down. I've only worked 2 days (4 hours) a day and I'm in a lot of pain. During my interview, I told them about my disa http://answers.ankylosing.org/104646/has-any-one-had-any-issues-with-employers-not-accommodating-to-your-situation/ Wed, 31 Aug 2011 04:31:24 +0000 Asked by Lorraine Teeter 6 months ago http://answers.ankylosing.org/104646/has-any-one-had-any-issues-with-employers-not-accommodating-to-your-situation/ I am taking Humira, fortnightly. Is it meant to stop the pain or just the inflammation levels? My Rheumy says tests show my Inflammation levels are down, however I still experience a lot of pain and stiffness and have to take pain medication, Tramadol 100mgSR or 50mg ; Endone 5mg. http://answers.ankylosing.org/104639/i-am-taking-humira-fortnightly-is-it-meant-to-stop-the-pain-or-just-the-inflammation-levels/ Wed, 31 Aug 2011 03:45:04 +0000 Asked by Carmen 6 months ago http://answers.ankylosing.org/104639/i-am-taking-humira-fortnightly-is-it-meant-to-stop-the-pain-or-just-the-inflammation-levels/ Hi all as sufferers,hope ye well today,has anyone got problems with there jaw i can only open my mouth 1 inch has as affected my jaw its seems to be getting harder to open my mouth while eating does anyone have same problem? http://answers.ankylosing.org/104519/hi-all-as-sufferershope-ye-well-todayhas-anyone-got-problems-with-there-jaw-i-can-only-open-my-mouth/ Tue, 30 Aug 2011 15:24:40 +0000 Asked by Mick Knox 6 months ago http://answers.ankylosing.org/104519/hi-all-as-sufferershope-ye-well-todayhas-anyone-got-problems-with-there-jaw-i-can-only-open-my-mouth/ Had first infusion of remicade 2weeks ago - 10 days after infusion I came out in rash that seems to be getting worse by the day. All over my chest and neck - very 'allergic reaction' looking. Have postponed my next infusion (due yesterday). Has anyone had this type of reaction before? Also had chronic tiredness, vomiting and stomach pain the first week after infusion but thought this might be normal reaction. Rash doesn't seem normal..? Bit worried! http://answers.ankylosing.org/104396/had-first-infusion-of-remicade-2weeks-ago-10-days-after-infusion-i-came-out-in-rash-that-seems-to-be/ Tue, 30 Aug 2011 06:29:38 +0000 Asked by Jo 6 months ago http://answers.ankylosing.org/104396/had-first-infusion-of-remicade-2weeks-ago-10-days-after-infusion-i-came-out-in-rash-that-seems-to-be/ Looking for some candid answers. Am on Tramadol and Hydrocodone for the pain for about 2 years, since I moved I have to establish care with new docs, but you even mention those drugs and get looked at like a druggy. I tried to do without for 2 1/2 weeks, and was seriously contemplating suicide because of the intense constant pain and some serious life issues. I am also dependant on Sulfasalazine to get out of bed, but have I become too dependant on the meds? Withdrawals weren't bad, just pain . http://answers.ankylosing.org/104390/looking-for-some-candid-answers-am-on-tramadol-and-hydrocodone-for-the-pain-for-about-2-years-since/ Tue, 30 Aug 2011 06:12:59 +0000 Asked by Tricia Carsley 6 months ago http://answers.ankylosing.org/104390/looking-for-some-candid-answers-am-on-tramadol-and-hydrocodone-for-the-pain-for-about-2-years-since/ Does anyone tend to come down with bad colds and other illnesses easily due to immune suppressing drugs like Remicade and Methotrexate? A week and a half ago, I caught a cold and it took me about a week to get over it. http://answers.ankylosing.org/104375/does-anyone-tend-to-come-down-with-bad-colds-and-other-illnesses-easily-due-to-immune-suppressing-drugs/ Tue, 30 Aug 2011 04:36:13 +0000 Asked by Jamie 6 months ago http://answers.ankylosing.org/104375/does-anyone-tend-to-come-down-with-bad-colds-and-other-illnesses-easily-due-to-immune-suppressing-drugs/ Wanted to say hi, haven't posted in awhile. Original dx was AS. Neuro symtoms have gotten much worse and joint pain is now gone. Starting to look less like AS, now looking at Lyme or MS. Anyone else in limboland between all the fun possibilities? http://answers.ankylosing.org/104353/wanted-to-say-hi-havent-posted-in-awhile-original-dx-was-as-neuro-symtoms-have-gotten-much-worse/ Tue, 30 Aug 2011 03:23:16 +0000 Asked by Gullyabb 6 months ago http://answers.ankylosing.org/104353/wanted-to-say-hi-havent-posted-in-awhile-original-dx-was-as-neuro-symtoms-have-gotten-much-worse/ I find that when I say I have AS and it's a form of arthritis people say 'yeah I know what arthritis is'. But they don't know. How do you explain to people it isn't something you can see, that what they think should help arthritis isn't actually going to help or fix it? http://answers.ankylosing.org/104335/i-find-that-when-i-say-i-have-as-and-its-a-form-of-arthritis-people-say-yeah-i-know-what-arthritis/ Tue, 30 Aug 2011 01:54:38 +0000 Asked by Carmen 6 months ago http://answers.ankylosing.org/104335/i-find-that-when-i-say-i-have-as-and-its-a-form-of-arthritis-people-say-yeah-i-know-what-arthritis/ Hi Friends, All of us dealing with this disease need to be there for each other.It's painful and depressing! Try and let your families know how you feel if possible.I'm lucky to have a supportive husband and great kids.One problem I have,I don't look sick! Everyone thinks I look great.Anyone having issues with hair loss,excessive bruising,brittle cracked nails,fatigue,rash on my face-under nasal area and entire chin area..fluid like blisters.Dermat. Said Shingles.? http://answers.ankylosing.org/104292/hi-friends-all-of-us-dealing-with-this-disease-need-to-be-there-for-each-otherits-painful-and-depressing/ Mon, 29 Aug 2011 23:16:14 +0000 Asked by Elaine R. 6 months ago http://answers.ankylosing.org/104292/hi-friends-all-of-us-dealing-with-this-disease-need-to-be-there-for-each-otherits-painful-and-depressing/ Has anyone had problems with low platelet counts while taking Enberal? Just got a call from rhemy and said to stop taking the Enberal and anti-inflammatory (Diclofenac). I'm nervous enough about the platelet count let alone knowing what the pain is going to be like very soon. http://answers.ankylosing.org/104236/has-anyone-had-problems-with-low-platelet-counts-while-taking-enberal/ Mon, 29 Aug 2011 18:22:37 +0000 Asked by Terry Eldred 6 months ago http://answers.ankylosing.org/104236/has-anyone-had-problems-with-low-platelet-counts-while-taking-enberal/ Ok its been over a week now and I have been hurting so bad, my pills dont seem to be working, Any suggestions I am just about done of being in pain? http://answers.ankylosing.org/104184/ok-its-been-over-a-week-now-and-i-have-been-hurting-so-bad-my-pills-dont-seem-to-be-working-any-suggestions/ Mon, 29 Aug 2011 13:33:11 +0000 Asked by Michael Eagle 6 months ago http://answers.ankylosing.org/104184/ok-its-been-over-a-week-now-and-i-have-been-hurting-so-bad-my-pills-dont-seem-to-be-working-any-suggestions/ Do you think physical damage continues even while in remission? http://answers.ankylosing.org/104020/do-you-think-physical-damage-continues-even-while-in-remission/ Sun, 28 Aug 2011 18:22:09 +0000 Asked by Catherine Terry 6 months ago http://answers.ankylosing.org/104020/do-you-think-physical-damage-continues-even-while-in-remission/ Went to hospital last week and was told I was aggravating my back ,hip and pelvis and I need to use my wheelchair and then more and more permently and rest more but don't want to give in yet, walked with crutches for 20 odd years as anyone tried a rollator walker thinking it could next step before having to use my wheelchair? http://answers.ankylosing.org/103978/went-to-hospital-last-week-and-was-told-i-was-aggravating-my-back-hip-and-pelvis-and-i-need-to-use-my/ Sun, 28 Aug 2011 13:50:32 +0000 Asked by Jean Mace 6 months ago http://answers.ankylosing.org/103978/went-to-hospital-last-week-and-was-told-i-was-aggravating-my-back-hip-and-pelvis-and-i-need-to-use-my/ Hi my partner has AS found out Dec 2010 and has been on Methotrexate since finding out but been put on Enbrel about 5 months ago. I do mostly everything for him he cant get off sofa most days only to go toilet and then sits back down, he is always stiff and doesnt do much cause he is always stiff and knees sometimes swell. I just want some info really as to whether you guys think meds are working or not. Is there any other partners on here too or support groups for partners? http://answers.ankylosing.org/103923/hi-my-partner-has-as-found-out-dec-2010-and-has-been-on-methotrexate-since-finding-out-but-been-put-on/ Sun, 28 Aug 2011 08:03:44 +0000 Asked by Dawn Hill 6 months ago http://answers.ankylosing.org/103923/hi-my-partner-has-as-found-out-dec-2010-and-has-been-on-methotrexate-since-finding-out-but-been-put-on/ Here is the restt of the articleThe frequency of atrioventricular block (types I and III) and atrial tachycardia was significantly higher in this group of patients than that found in similar studies of healthy adults. The frequency of psoriasis and cardiac murmurs was increased among the patients with electrocardiographic 'abnormalities' http://answers.ankylosing.org/103880/here-is-the-restt-of-the-articlethe-frequency-of-atrioventricular-block-types-i-and-iii-and-atrial/ Sun, 28 Aug 2011 01:59:13 +0000 Asked by Shelley Leppaluoto 6 months ago http://answers.ankylosing.org/103880/here-is-the-restt-of-the-articlethe-frequency-of-atrioventricular-block-types-i-and-iii-and-atrial/ Of 54 patients with ankylosing spondylitis 48 were found to be HLA B27 positive. Ambulatory 24-hour Holler monitoring revealed electrocardiographic 'abnormalities' in 12 of the 48 HLA B27 positive patients. To our knowledge this is the first ambulatory Holler monitoring of a group of patients with ankylosing spondylitis, and the outcome seems to suggest a relationship between the tissue type HLA B27 and the occurrence of electrocardiographic 'abnormalities'. The frequency of atrioventricular http://answers.ankylosing.org/103879/of-54-patients-with-ankylosing-spondylitis-48-were-found-to-be-hla-b27-positive-ambulatory-24-hour-holler/ Sun, 28 Aug 2011 01:58:28 +0000 Asked by Shelley Leppaluoto 6 months ago http://answers.ankylosing.org/103879/of-54-patients-with-ankylosing-spondylitis-48-were-found-to-be-hla-b27-positive-ambulatory-24-hour-holler/ Is any one else using diet to fight their AS like I am? I have experimented by going off of it for just one meal and as a result will gain my pain and inflammation back until I cleanse myself and go back on it. It has truly gave me my quality of life back an allowed me not to have to go on medication. http://answers.ankylosing.org/103877/is-any-one-else-using-diet-to-fight-their-as-like-i-am/ Sun, 28 Aug 2011 01:54:40 +0000 Asked by Matthew Forti 6 months ago http://answers.ankylosing.org/103877/is-any-one-else-using-diet-to-fight-their-as-like-i-am/ I have conductive problems with arrythmias and a +1 degree heart block and told it was related to AS does anyone else have this i put up an article and was not sure how to do it so it is on 2 questions sorry kinda new at this? http://answers.ankylosing.org/103876/i-have-conductive-problems-with-arrythmias-and-a-1-degree-heart-block-and-told-it-was-related-to-as/ Sun, 28 Aug 2011 01:53:47 +0000 Asked by Shelley Leppaluoto 6 months ago http://answers.ankylosing.org/103876/i-have-conductive-problems-with-arrythmias-and-a-1-degree-heart-block-and-told-it-was-related-to-as/ I get upper and lower back pain if I either sit or stand too long repetitive actions and lifting heavy item cause my back to really hurt and I have suffered from Iritis at least 4 times this year, I also experience bouts of pain in my left knee and ankle and I am fatigued all the time although I also have T2 diabetes so that could be the reason for the fatigue does any of this sound like AS? http://answers.ankylosing.org/103863/i-get-upper-and-lower-back-pain-if-i-either-sit-or-stand-too-long-repetitive-actions-and-lifting-heavy/ Sun, 28 Aug 2011 01:05:38 +0000 Asked by Alan Brunyee 6 months ago http://answers.ankylosing.org/103863/i-get-upper-and-lower-back-pain-if-i-either-sit-or-stand-too-long-repetitive-actions-and-lifting-heavy/ Does anyone have tremors with AS? I seem to have an intention tremor its really embarrassing sometimes, but I'm getting used to it. http://answers.ankylosing.org/103615/does-anyone-have-tremors-with-as/ Sat, 27 Aug 2011 08:08:41 +0000 Asked by Cara Guikema 6 months ago http://answers.ankylosing.org/103615/does-anyone-have-tremors-with-as/ Has anyone had short term memory loss with AS or has anyone had redness to their face with their face being/feeling very hot at times? http://answers.ankylosing.org/103610/has-anyone-had-short-term-memory-loss-with-as-or-has-anyone-had-redness-to-their-face-with-their-face/ Sat, 27 Aug 2011 07:27:23 +0000 Asked by Tracie Wahl 6 months ago http://answers.ankylosing.org/103610/has-anyone-had-short-term-memory-loss-with-as-or-has-anyone-had-redness-to-their-face-with-their-face/ Ladies, I miss my cute sexy high heels! Anyone else out there with me? I'm so sick of looking like a dork with my comfortable shoes. :( http://answers.ankylosing.org/103395/ladies-i-miss-my-cute-sexy-high-heels-anyone-else-out-there-with-me/ Fri, 26 Aug 2011 03:19:46 +0000 Asked by Samantha Peterson 6 months ago http://answers.ankylosing.org/103395/ladies-i-miss-my-cute-sexy-high-heels-anyone-else-out-there-with-me/ Any carnivores out there that converted to vegetarian diet and notice any changes in their AS? http://answers.ankylosing.org/103391/any-carnivores-out-there-that-converted-to-vegetarian-diet-and-notice-any-changes-in-their-as/ Fri, 26 Aug 2011 02:55:14 +0000 Asked by Jykelley 6 months ago http://answers.ankylosing.org/103391/any-carnivores-out-there-that-converted-to-vegetarian-diet-and-notice-any-changes-in-their-as/ Does anyone else get HOT during the night? If I'm not waking up from pain, I'm waking up feeling incredibly hot and thirsty. I sometimes sweat, but I never seem to have an actual fever when this happens. http://answers.ankylosing.org/103390/does-anyone-else-get-hot-during-the-night/ Fri, 26 Aug 2011 02:53:52 +0000 Asked by Taryn Rand 6 months ago http://answers.ankylosing.org/103390/does-anyone-else-get-hot-during-the-night/ Just wondering if some of you guys might let me know what kind of problems you have had w/knees, wrist and hands. I am currently seeing an Orthopedic doc who is putting steroid injections under my knee cap every 6-8 wks. He did a MRI and said it showed excess bone growth under my knee cap w/inflammation. Also having tons of trouble w/my wrist and hands lately. Alot of numbness, pins and needles feelings, pain and alot of stiffness. Loss of grip too? http://answers.ankylosing.org/103365/just-wondering-if-some-of-you-guys-might-let-me-know-what-kind-of-problems-you-have-had-wknees-wrist/ Thu, 25 Aug 2011 23:14:35 +0000 Asked by La Randa Stout Merlette 6 months ago http://answers.ankylosing.org/103365/just-wondering-if-some-of-you-guys-might-let-me-know-what-kind-of-problems-you-have-had-wknees-wrist/ I have started shaking in the mornings every day my in my hands they feel so weak . It used to be once in a while now every morning does this happen to anyone else? http://answers.ankylosing.org/103330/i-have-started-shaking-in-the-mornings-every-day-my-in-my-hands-they-feel-so-weak-it-used-to-be-once/ Thu, 25 Aug 2011 18:50:53 +0000 Asked by Shelley Leppaluoto 6 months ago http://answers.ankylosing.org/103330/i-have-started-shaking-in-the-mornings-every-day-my-in-my-hands-they-feel-so-weak-it-used-to-be-once/ Can you tell me about your stiffness? I am pretty new to all this, and I get days.. Like today. Where honestly I feel like my whole body does not want to move, where i'm so stiff, breathing is hard, walking is hard, standing is hard. BUt it's not like excruciating pain, or anything like that... I just feel stiff all over, head to toe... Anyone? http://answers.ankylosing.org/103320/can-you-tell-me-about-your-stiffness/ Thu, 25 Aug 2011 17:14:38 +0000 Asked by Lindsay Cairns 6 months ago http://answers.ankylosing.org/103320/can-you-tell-me-about-your-stiffness/ Very interesting story about the discovery of additional genes that are related to AS, which might lead someday to a more effective treatment: bit.ly/nGt94U Thoughts? http://answers.ankylosing.org/103314/very-interesting-story-about-the-discovery-of-additional-genes-that-are-related-to-as-which-might-lead/ Thu, 25 Aug 2011 16:37:04 +0000 Asked by Chapps 6 months ago http://answers.ankylosing.org/103314/very-interesting-story-about-the-discovery-of-additional-genes-that-are-related-to-as-which-might-lead/ Going crazy scratching! Extreme itching from small bumps on shins, calfs, elbows and forearms. I remember hearing or being asked if I had had any rashes, possibly related to AS. Well I hadn't, different story now. Any instant remedies? Thanks, Loren http://answers.ankylosing.org/103206/going-crazy-scratching-extreme-itching-from-small-bumps-on-shins-calfs-elbows-and-forearms-i-remember/ Thu, 25 Aug 2011 04:44:34 +0000 Asked by Loren Youk 6 months ago http://answers.ankylosing.org/103206/going-crazy-scratching-extreme-itching-from-small-bumps-on-shins-calfs-elbows-and-forearms-i-remember/ Has anyone (women) had bad flare ups after having a hysyerectomy? I have surgery next week and I just read in article in the Arthritis Today magazine about bad flare ups after surgery due to hormone level changes. I have never had my hormone levels checked or read anything else on this having affects with my AS. I do have my regular appt with my Rheumatologist a few weeks after surgery. I have endometriosis everywhere but they are going to try and keep one ovary. http://answers.ankylosing.org/103035/has-anyone-women-had-bad-flare-ups-after-having-a-hysyerectomy/ Tue, 23 Aug 2011 18:21:35 +0000 Asked by Janet Vorwald 6 months ago http://answers.ankylosing.org/103035/has-anyone-women-had-bad-flare-ups-after-having-a-hysyerectomy/ Hi,all as sufferers anyone from england claiming dla benefit.av tried twice and got nowt.some people get it and there faking.makes me sick? http://answers.ankylosing.org/102997/hiall-as-sufferers-anyone-from-england-claiming-dla-benefitav-tried-twice-and-got-nowtsome-people/ Tue, 23 Aug 2011 15:33:44 +0000 Asked by Mick Knox 6 months ago http://answers.ankylosing.org/102997/hiall-as-sufferers-anyone-from-england-claiming-dla-benefitav-tried-twice-and-got-nowtsome-people/ Has anyone found an effective way of explaining the sudden, dramatic, seemingly irreversible fatigue onslaughts that happen periodically? Mine seem to be barometric pressure-related, and I drop asleep wherever I am for hours. When say that "I crashed on the couch for 10 hours" people invariably say, "Oh, I've had that happen." No, no you have not! Has anyone else had any luck explaining this? http://answers.ankylosing.org/102865/has-anyone-found-an-effective-way-of-explaining-the-sudden-dramatic-seemingly-irreversible-fatigue/ Tue, 23 Aug 2011 04:53:16 +0000 Asked by Rose Bigham 6 months ago http://answers.ankylosing.org/102865/has-anyone-found-an-effective-way-of-explaining-the-sudden-dramatic-seemingly-irreversible-fatigue/ I am 41 yrs old and have been working as a Secretary for the past 18 yrs. For the past week I have been experiencing pain in my fingers and palm on my right hand. Is this something to worry about? Thanks WB http://answers.ankylosing.org/102322/i-am-41-yrs-old-and-have-been-working-as-a-secretary-for-the-past-18-yrs-for-the-past-week-i-have-been/ Sun, 21 Aug 2011 09:19:10 +0000 Asked by Wb 6 months ago http://answers.ankylosing.org/102322/i-am-41-yrs-old-and-have-been-working-as-a-secretary-for-the-past-18-yrs-for-the-past-week-i-have-been/ Does anyone ever feel like their fingers or legs are hyper-extending while sleeping? Wakes me up in the middle of the night. Then I curl up in the fetal position and my arms fall asleep and hips start hurting. Had the falling asleep feeling before but the hyper-extending feeling is new. http://answers.ankylosing.org/101787/does-anyone-ever-feel-like-their-fingers-or-legs-are-hyper-extending-while-sleeping/ Fri, 19 Aug 2011 15:36:08 +0000 Asked by Denise 6 months ago http://answers.ankylosing.org/101787/does-anyone-ever-feel-like-their-fingers-or-legs-are-hyper-extending-while-sleeping/ Does anyone have swelling in their ankles for no reason it was the size of a silver dollar took pictures to show the doc it does not hurt when touched but it goes up and down i dont know why my feet hurt but this does not? http://answers.ankylosing.org/101608/does-anyone-have-swelling-in-their-ankles-for-no-reason-it-was-the-size-of-a-silver-dollar-took-pictures/ Fri, 19 Aug 2011 00:18:33 +0000 Asked by Shelley Leppaluoto 6 months ago http://answers.ankylosing.org/101608/does-anyone-have-swelling-in-their-ankles-for-no-reason-it-was-the-size-of-a-silver-dollar-took-pictures/ Does any one else have trouble with the achilies tendon hurting? Mine is really sensitive and hurts like crazy. Also my feet, at the same time hurt and are red, any suggestions? http://answers.ankylosing.org/101437/does-any-one-else-have-trouble-with-the-achilies-tendon-hurting/ Thu, 18 Aug 2011 11:22:44 +0000 Asked by Brian Root 6 months ago http://answers.ankylosing.org/101437/does-any-one-else-have-trouble-with-the-achilies-tendon-hurting/ Very sad story, and the Telegraph needs to do its homework, because AS is *not* a terminal illness: tinyurl.com/44658yy Wanna help push the Telegraph into getting this man medical help (add comments)? http://answers.ankylosing.org/101258/very-sad-story-and-the-telegraph-needs-to-do-its-homework-because-as-is-not-a-terminal-illness-a/ Wed, 17 Aug 2011 18:23:53 +0000 Asked by Chapps 6 months ago http://answers.ankylosing.org/101258/very-sad-story-and-the-telegraph-needs-to-do-its-homework-because-as-is-not-a-terminal-illness-a/ Does anyone suffer with eye and ear problems? My face swells on the left hand side. My left pupil swells and bursts blood vessels in my eye, I saw optician who feels it is related to AS...My gp prescribes antibiotic eye drops, regularly, also I feel like I'm going deaf in my left ear...Any info would be great! http://answers.ankylosing.org/101215/does-anyone-suffer-with-eye-and-ear-problems/ Wed, 17 Aug 2011 08:57:15 +0000 Asked by Rebecca Bean 6 months ago http://answers.ankylosing.org/101215/does-anyone-suffer-with-eye-and-ear-problems/ How long does it take for Enbrel to start working for severe Ankylosing Sponsilitis of the Spine & SI joints?thanks http://answers.ankylosing.org/101214/how-long-does-it-take-for-enbrel-to-start-working-for-severe-ankylosing-sponsilitis-of-the-spine-si/ Wed, 17 Aug 2011 08:18:11 +0000 Asked by Rosary 6 months ago http://answers.ankylosing.org/101214/how-long-does-it-take-for-enbrel-to-start-working-for-severe-ankylosing-sponsilitis-of-the-spine-si/ Ik heb een vraag heb een langere tyd mtx gespoten ,hem reuma ra maar kreeg hart ritmestoornis dus moest met teen stoppen ,krijg nu humira maar of ik daar blij mee moet zijn hoor en lees dr over dat je op langer termijn dr kanker van krijgt is dit waar of niet? http://answers.ankylosing.org/101209/ik-heb-een-vraag-heb-een-langere-tyd-mtx-gespoten-hem-reuma-ra-maar-kreeg-hart-ritmestoornis-dus-moest/ Wed, 17 Aug 2011 07:35:56 +0000 Asked by Inge 6 months ago http://answers.ankylosing.org/101209/ik-heb-een-vraag-heb-een-langere-tyd-mtx-gespoten-hem-reuma-ra-maar-kreeg-hart-ritmestoornis-dus-moest/ Does anyone have problems with balance, headaches, memory loss, and poor concentration? http://answers.ankylosing.org/101177/does-anyone-have-problems-with-balance-headaches-memory-loss-and-poor-concentration/ Tue, 16 Aug 2011 22:59:23 +0000 Asked by LeeAnn Fine 6 months ago http://answers.ankylosing.org/101177/does-anyone-have-problems-with-balance-headaches-memory-loss-and-poor-concentration/ I know that there have been previous questions about Cymbalta but I never read them because I wasn't on them. I was recently prescribed it for fibromyalgia and it makes me tired. Is this a common thing for everyone else? And do you have any other side effects that you could share? Thanks everyone! http://answers.ankylosing.org/101124/i-know-that-there-have-been-previous-questions-about-cymbalta-but-i-never-read-them-because-i-wasnt/ Tue, 16 Aug 2011 05:07:39 +0000 Asked by Jennifer 6 months ago http://answers.ankylosing.org/101124/i-know-that-there-have-been-previous-questions-about-cymbalta-but-i-never-read-them-because-i-wasnt/ Anyone ever been on Plaquenil? What were your experiences and did you have eye problems? I have many autoimmune abnormalities and 99% sure have AS but since there's no actual fusion yet they won't classify me with it- even though I know I have it. Inflammation w/o fusion just means matter of time. http://answers.ankylosing.org/101114/anyone-ever-been-on-plaquenil-what-were-your-experiences-and-did-you-have-eye-problems/ Mon, 15 Aug 2011 23:46:26 +0000 Asked by Kristin 6 months ago http://answers.ankylosing.org/101114/anyone-ever-been-on-plaquenil-what-were-your-experiences-and-did-you-have-eye-problems/ Does anyone else have heart troubles my doc says the heart block 1 st degree only and arythmias are related to AS my heart is in great shape still though may need a pacemaker later in life which i heard is normal and not a big deal? http://answers.ankylosing.org/101102/does-anyone-else-have-heart-troubles-my-doc-says-the-heart-block-1-st-degree-only-and-arythmias-are-related/ Mon, 15 Aug 2011 19:02:29 +0000 Asked by Shelley Leppaluoto 6 months ago http://answers.ankylosing.org/101102/does-anyone-else-have-heart-troubles-my-doc-says-the-heart-block-1-st-degree-only-and-arythmias-are-related/ Bad day - looking for some feeback - Took my Enbrel shot last night - it bled alot , which it never does, and left an instant bruise at inj. Site. Today, I just cant pull it together - I am so tired and achy and cant get my 'get up and go!' What the heck/ Any one experience this bad day-after-effect/ Thanks? http://answers.ankylosing.org/100879/bad-day-looking-for-some-feeback-took-my-enbrel-shot-last-night-it-bled-alot-which-it-never-does/ Sun, 14 Aug 2011 18:57:13 +0000 Asked by Jenni 6 months ago http://answers.ankylosing.org/100879/bad-day-looking-for-some-feeback-took-my-enbrel-shot-last-night-it-bled-alot-which-it-never-does/ Anyone else get geographic tongue? I know it's common with psoriatic arthritis, but supposedly I don't have that. Usually it doesn't bother me, but it's on the very tip this time and is being quite painful. http://answers.ankylosing.org/100504/anyone-else-get-geographic-tongue/ Sat, 13 Aug 2011 13:10:45 +0000 Asked by Anne 6 months ago http://answers.ankylosing.org/100504/anyone-else-get-geographic-tongue/ I was diagnosed with AS last month & curious to know if there is anyone out there with a quick onset of symptoms. I have always had sore knees, cold legs a night, hands fall asleep, achy back. (Still have these) In '04, had a weird experience of aching joints (hips, knees, ankles, toes - tested negative for rhuematism). BUT, in Apr., after bout with CDiff, feet started hurting, then hips. Diagnosed in July. I know it is genetic, but it hit hard in Apr. Am worried about fast progression? http://answers.ankylosing.org/100467/i-was-diagnosed-with-as-last-month-curious-to-know-if-there-is-anyone-out-there-with-a-quick-onset/ Fri, 12 Aug 2011 18:06:07 +0000 Asked by Denise 6 months ago http://answers.ankylosing.org/100467/i-was-diagnosed-with-as-last-month-curious-to-know-if-there-is-anyone-out-there-with-a-quick-onset/ Hi - I am 34 year Mum of 2 from Australia with ank spond and psoratic arthritis (since I was 14). Booked in for 1st remicade transfusion on Monday. Very worried about side effects and have been postponing appointment but unable to cope any longer without any medication. What are most common sideeffects? Thanks http://answers.ankylosing.org/100445/hi-i-am-34-year-mum-of-2-from-australia-with-ank-spond-and-psoratic-arthritis-since-i-was-14-booked/ Fri, 12 Aug 2011 04:32:48 +0000 Asked by Jo 6 months ago http://answers.ankylosing.org/100445/hi-i-am-34-year-mum-of-2-from-australia-with-ank-spond-and-psoratic-arthritis-since-i-was-14-booked/ I am full of questions today my facet at L5 and SI are begining to degenerate now what does this mean? I was told this is part of AS http://answers.ankylosing.org/100439/i-am-full-of-questions-today-my-facet-at-l5-and-si-are-begining-to-degenerate-now-what-does-this-mea/ Fri, 12 Aug 2011 02:35:51 +0000 Asked by Shelley Leppaluoto 6 months ago http://answers.ankylosing.org/100439/i-am-full-of-questions-today-my-facet-at-l5-and-si-are-begining-to-degenerate-now-what-does-this-mea/ Are swollen lymph nodes related to AS? http://answers.ankylosing.org/100437/are-swollen-lymph-nodes-related-to-as/ Fri, 12 Aug 2011 02:29:04 +0000 Asked by Shelley Leppaluoto 6 months ago http://answers.ankylosing.org/100437/are-swollen-lymph-nodes-related-to-as/ Great blog entry by a woman bent low by AS: www.blogher.com/rough-hewn-kind-beauty?wrap=blogher-topics/h Good read for women and men. Identify? http://answers.ankylosing.org/100431/great-blog-entry-by-a-woman-bent-low-by-as-a-hrefhttpwwwbloghercomrough-hewn-kind-beautywrapblogher-topicshealthbody-imagecrumb175/ Thu, 11 Aug 2011 23:52:04 +0000 Asked by Chapps 6 months ago http://answers.ankylosing.org/100431/great-blog-entry-by-a-woman-bent-low-by-as-a-hrefhttpwwwbloghercomrough-hewn-kind-beautywrapblogher-topicshealthbody-imagecrumb175/ Interesting new research into the link between HLA-B27 and AS: bit.ly/nC3mql Did any of you see this? http://answers.ankylosing.org/100429/interesting-new-research-into-the-link-between-hla-b27-and-as-a-hrefhttpbitlync3mql-targetblank/ Thu, 11 Aug 2011 23:42:35 +0000 Asked by Chapps 6 months ago http://answers.ankylosing.org/100429/interesting-new-research-into-the-link-between-hla-b27-and-as-a-hrefhttpbitlync3mql-targetblank/ Went to see rheumatologist today and he has decided to try Humira! Can anyone give me any info on how good it is and what the side effects are please? I did ask today but he didn't explain it very well. It would be better to hear from people who have experienced it. Any info would be hugely appreciated, thank you all! http://answers.ankylosing.org/100427/went-to-see-rheumatologist-today-and-he-has-decided-to-try-humira-can-anyone-give-me-any-info-on-how/ Thu, 11 Aug 2011 22:14:27 +0000 Asked by David 6 months ago http://answers.ankylosing.org/100427/went-to-see-rheumatologist-today-and-he-has-decided-to-try-humira-can-anyone-give-me-any-info-on-how/ Does any of you have high levels of Lipoprotein (a)? (Those who have ever tested this). http://answers.ankylosing.org/100426/does-any-of-you-have-high-levels-of-lipoprotein-a/ Thu, 11 Aug 2011 21:35:21 +0000 Asked by Hanna 6 months ago http://answers.ankylosing.org/100426/does-any-of-you-have-high-levels-of-lipoprotein-a/ Cindy Clark: You wrote "There is a small percentage of us with AS that have issues with our hands and feet according to a study posted a couple of weeks ago it said on average only 7% of people with AS does it effect our hands and feet." which study is this? http://answers.ankylosing.org/100424/cindy-clark-you-wrote-there-is-a-small-percentage-of-us-with-as-that-have-issues-with-our-hands-and/ Thu, 11 Aug 2011 20:15:41 +0000 Asked by Hanna 6 months ago http://answers.ankylosing.org/100424/cindy-clark-you-wrote-there-is-a-small-percentage-of-us-with-as-that-have-issues-with-our-hands-and/ Legs, arms or other body parts "falling asleep" (or tingling) especially when lying /sleeping - is this common when you have AS? What's the cause? http://answers.ankylosing.org/100423/legs-arms-or-other-body-parts-falling-asleep-or-tingling-especially-when-lying-sleeping-is-this/ Thu, 11 Aug 2011 19:20:46 +0000 Asked by Hanna 6 months ago http://answers.ankylosing.org/100423/legs-arms-or-other-body-parts-falling-asleep-or-tingling-especially-when-lying-sleeping-is-this/ HI Amori99, you sound like me 18 years ago. Metatarsal pain, nerve pain-both feet, dozens of nerve block injections (still) orthotics, otc and several custom pairs. They need recovering now too. Years of epidurals, P.T. , aqua therapy neurontin, lexapro, you name it, regular visits to the podiatrist. I just happened to pass this page and I saw your description. I don't know much about these sites and signing up, but if you want to write me, I'm at Thanks... J.P? http://answers.ankylosing.org/100421/hi-amori99-you-sound-like-me-18-years-ago-metatarsal-pain-nerve-pain-both-feet-dozens-of-nerve-block/ Thu, 11 Aug 2011 18:59:29 +0000 Asked by Jp 6 months ago http://answers.ankylosing.org/100421/hi-amori99-you-sound-like-me-18-years-ago-metatarsal-pain-nerve-pain-both-feet-dozens-of-nerve-block/ Hi,has anyone ever used tumeric as an anti inflammatory.how often do ye use it is it any good for as? http://answers.ankylosing.org/100415/hihas-anyone-ever-used-tumeric-as-an-anti-inflammatoryhow-often-do-ye-use-it-is-it-any-good-for-as/ Thu, 11 Aug 2011 15:58:08 +0000 Asked by Mick Knox 6 months ago http://answers.ankylosing.org/100415/hihas-anyone-ever-used-tumeric-as-an-anti-inflammatoryhow-often-do-ye-use-it-is-it-any-good-for-as/ HI, I just started Remicade treatment (I've had 2 infusions) and noticed that the nurse puts 2 shots in the I.V. Before the Remicade. She said one was Benadryl and the other one was a "chemo type of substance". Does anybody know what that is? Why should they give you that in addition to the Remicade? Thank you! Maria http://answers.ankylosing.org/100349/hi-i-just-started-remicade-treatment-ive-had-2-infusions-and-noticed-that-the-nurse-puts-2-shots/ Wed, 10 Aug 2011 12:40:49 +0000 Asked by Maria 6 months ago http://answers.ankylosing.org/100349/hi-i-just-started-remicade-treatment-ive-had-2-infusions-and-noticed-that-the-nurse-puts-2-shots/ I am so frustrated. I had a nerve conduction test done today, and it didn't give them any information about the pain in my feet. I am so exhausted from the pain, and I just don't understand how my feet can hurt so bad, and it doesn't show up on any imaging or other diagnostics. It's excruciating, how can there not be an obvious reason for the pain? I feel like it could drive me to insanity. http://answers.ankylosing.org/100331/i-am-so-frustrated-i-had-a-nerve-conduction-test-done-today-and-it-didnt-give-them-any-information/ Wed, 10 Aug 2011 04:10:00 +0000 Asked by Amori99 6 months ago http://answers.ankylosing.org/100331/i-am-so-frustrated-i-had-a-nerve-conduction-test-done-today-and-it-didnt-give-them-any-information/ Is there a risk of injury or worsening of symptoms for someone with AS and getting an epidural during childbirth? I'm asking because my symptoms started right after childbirth and I had a spinal-epidural. I'm wondering if next time I should avoid that because I have AS and if this could be the reason for a really bad flare. Any info on that subject will be appreciated. Thanks http://answers.ankylosing.org/100326/is-there-a-risk-of-injury-or-worsening-of-symptoms-for-someone-with-as-and-getting-an-epidural-during/ Wed, 10 Aug 2011 02:39:50 +0000 Asked by Karine 6 months ago http://answers.ankylosing.org/100326/is-there-a-risk-of-injury-or-worsening-of-symptoms-for-someone-with-as-and-getting-an-epidural-during/ Interesting information on the differences in progression of AS in men and women? http://answers.ankylosing.org/100325/interesting-information-on-the-differences-in-progression-of-as-in-men-and-women/ Wed, 10 Aug 2011 02:08:25 +0000 Asked by Samantha Peterson 6 months ago http://answers.ankylosing.org/100325/interesting-information-on-the-differences-in-progression-of-as-in-men-and-women/ I was wondering if anyone was interested in addressing the pharmaceutical companies about doing a research for a drug for AS. I am in the process of drafting a proposal and would like some help if anybody cares to offer advice. Or is someone already working on one? http://answers.ankylosing.org/100250/i-was-wondering-if-anyone-was-interested-in-addressing-the-pharmaceutical-companies-about-doing-a-research/ Mon, 08 Aug 2011 17:20:02 +0000 Asked by Michael Eagle 7 months ago http://answers.ankylosing.org/100250/i-was-wondering-if-anyone-was-interested-in-addressing-the-pharmaceutical-companies-about-doing-a-research/ Hope everyone is doing well, Is anyone on a daily steriod therapy, and if so which one, My Doctor started me on one and I feel a little better, I take tramadol, Neurontin, and Vicodin ES daily, Any suggestion on other forms of pain relief, BTW I also strecth constantly throught out the day. Thanks? http://answers.ankylosing.org/100248/hope-everyone-is-doing-well-is-anyone-on-a-daily-steriod-therapy-and-if-so-which-one-my-doctor-started/ Mon, 08 Aug 2011 17:06:35 +0000 Asked by Michael Eagle 7 months ago http://answers.ankylosing.org/100248/hope-everyone-is-doing-well-is-anyone-on-a-daily-steriod-therapy-and-if-so-which-one-my-doctor-started/ Hi all as sufferers,am new here but had as over 20 years,found out a had as when it was too late spine had already fused .been on humira adalimumab for year and a half is anyone else takin adalimumab injections? http://answers.ankylosing.org/100246/hi-all-as-sufferersam-new-here-but-had-as-over-20-yearsfound-out-a-had-as-when-it-was-too-late-spine/ Mon, 08 Aug 2011 16:49:58 +0000 Asked by Mick Knox 7 months ago http://answers.ankylosing.org/100246/hi-all-as-sufferersam-new-here-but-had-as-over-20-yearsfound-out-a-had-as-when-it-was-too-late-spine/ Has anyone been discharged from the Military for AS? What kind of discharge did you receive and are you getting benefits? http://answers.ankylosing.org/100194/has-anyone-been-discharged-from-the-military-for-as/ Sun, 07 Aug 2011 17:53:48 +0000 Asked by Rod Brandt 7 months ago http://answers.ankylosing.org/100194/has-anyone-been-discharged-from-the-military-for-as/ I moved from Boston to Colorado. I had scripts to cover my pain meds while I got a new Dr. Laws in CO wouldn't except the scripts. Can't see Dr til 17th coz of insurance issues. Keep going to ER, only to get 1-2days of meds & sent home. Advice? Plz! I've never been in so much pain! http://answers.ankylosing.org/100079/i-moved-from-boston-to-colorado-i-had-scripts-to-cover-my-pain-meds-while-i-got-a-new-dr-laws-in-co/ Sun, 07 Aug 2011 04:51:33 +0000 Asked by Kerry Monique Gaude' 7 months ago http://answers.ankylosing.org/100079/i-moved-from-boston-to-colorado-i-had-scripts-to-cover-my-pain-meds-while-i-got-a-new-dr-laws-in-co/ I get really serious itchy rashes, sometimes with enlarged lymph nodes on the back of my head. It seems to affect my nervous system, I get goosebumps, it is horrible. I will have it off and on, but mostly on for years, then it may quiet down for a bit but then it's back. I come undone, it is awful, does anyone have this with flare ups? http://answers.ankylosing.org/100069/i-get-really-serious-itchy-rashes-sometimes-with-enlarged-lymph-nodes-on-the-back-of-my-head-it-seems/ Sat, 06 Aug 2011 18:29:22 +0000 Asked by Jamie Black 7 months ago http://answers.ankylosing.org/100069/i-get-really-serious-itchy-rashes-sometimes-with-enlarged-lymph-nodes-on-the-back-of-my-head-it-seems/ Hi. For those of you who are still working I was just wondering what type of jobs you have & how you are affected by them. My brother was just diagnosed & is not bad enough for disability. But he drives a truck for a living and works a lot of hours. I'm thinking maybe he could try changing careers. But I'm not sure what a person with AS is capable of. I've been on disability myself for years. So I'm no help to him. Thanks? http://answers.ankylosing.org/100013/hi-for-those-of-you-who-are-still-working-i-was-just-wondering-what-type-of-jobs-you-have-how-you/ Sat, 06 Aug 2011 03:27:42 +0000 Asked by Melissa Temple 7 months ago http://answers.ankylosing.org/100013/hi-for-those-of-you-who-are-still-working-i-was-just-wondering-what-type-of-jobs-you-have-how-you/ Just curious..I was only diagnosed a few months ago with AS and believe I must have caught it early. I'm still doing pretty well so long as I take my Sulfasalazine and NSAID. Am I just lucky that my medication is working so well? Or is it that I'm just still in way early stages and will eventually get worse? It seems like so many on here have a far worse case than myself. http://answers.ankylosing.org/100003/just-curiousi-was-only-diagnosed-a-few-months-ago-with-as-and-believe-i-must-have-caught-it-early/ Fri, 05 Aug 2011 17:32:11 +0000 Asked by Laura Buxton 7 months ago http://answers.ankylosing.org/100003/just-curiousi-was-only-diagnosed-a-few-months-ago-with-as-and-believe-i-must-have-caught-it-early/ Hi i guess i am going to try to go to my cousins wedding in arizona my mom is there too. I have not traveled in years between the AS, meneires, and crohns traveling is a nightmare does anyone else find traveling hard and or scarey any tips on traveling? http://answers.ankylosing.org/100000/hi-i-guess-i-am-going-to-try-to-go-to-my-cousins-wedding-in-arizona-my-mom-is-there-too-i-have-not-traveled/ Fri, 05 Aug 2011 17:02:35 +0000 Asked by Shelley Leppaluoto 7 months ago http://answers.ankylosing.org/100000/hi-i-guess-i-am-going-to-try-to-go-to-my-cousins-wedding-in-arizona-my-mom-is-there-too-i-have-not-traveled/ I am in the Kansas City area we are planning a AS support group meeting first Monday in October please contact me if you are interested or know of someone who might be? http://answers.ankylosing.org/99994/i-am-in-the-kansas-city-area-we-are-planning-a-as-support-group-meeting-first-monday-in-october-please/ Fri, 05 Aug 2011 14:01:23 +0000 Asked by Cindy Clark Barta 7 months ago http://answers.ankylosing.org/99994/i-am-in-the-kansas-city-area-we-are-planning-a-as-support-group-meeting-first-monday-in-october-please/ I'm starting to be afraid for my future. I'm a single patent with no family nearby. My symptoms are worsening. So sore and tired all the time. I have a stressful job that I absolutely need. Two kids to get through college. I have no savings. Just got health insurance. Haven't been to the doctor in 6 years in order to do it. Now I need to wait as long as possible so I'm not accused of having a pre-existing condition. Worried about 5 years from now. Wish I had a plan. Anyone else have these fears? http://answers.ankylosing.org/99973/im-starting-to-be-afraid-for-my-future-im-a-single-patent-with-no-family-nearby-my-symptoms-are-worsening/ Fri, 05 Aug 2011 02:34:18 +0000 Asked by Anne 7 months ago http://answers.ankylosing.org/99973/im-starting-to-be-afraid-for-my-future-im-a-single-patent-with-no-family-nearby-my-symptoms-are-worsening/ Is anybody else finding it hard to get life insurance been every time they ask for medical records or get intouch with my gp then thats the end of that .Think I'am going to wait until I'am 50 so I can get a no medical needed insurance? http://answers.ankylosing.org/99965/is-anybody-else-finding-it-hard-to-get-life-insurance-been-every-time-they-ask-for-medical-records-or/ Thu, 04 Aug 2011 21:38:57 +0000 Asked by Jean Mace 7 months ago http://answers.ankylosing.org/99965/is-anybody-else-finding-it-hard-to-get-life-insurance-been-every-time-they-ask-for-medical-records-or/ If I have what I believe to be a moderate case of AS, is it worth getting diagnosed? Assuming that I may need to acquire my own personal health insurance, are the benefits of a diagnosis (doctor treatments, etc) worth the possible difficulty with getting covered in the future? Assuming I try to stay active, etc, how does an official diagnosis benefit me? http://answers.ankylosing.org/99963/if-i-have-what-i-believe-to-be-a-moderate-case-of-as-is-it-worth-getting-diagnosed-assuming-that-i/ Thu, 04 Aug 2011 20:49:22 +0000 Asked by Kyle Jones 7 months ago http://answers.ankylosing.org/99963/if-i-have-what-i-believe-to-be-a-moderate-case-of-as-is-it-worth-getting-diagnosed-assuming-that-i/ Has anyone else had a seizure from Simponi? I had a great deal of body jerking after 1st shot but it went away. Next shot was uncontrollable jerking, manic behavior and couldn't sleep. Next morning I had a full blown seizure. It isn't in the literature as a known effect but I googled it and found it is a possible side effect. My doc had to report it to the FDA and is meeting with the head Simponi rep about it. The sad thing is, Simponi gave me my life back. And now I can't take it anymore. http://answers.ankylosing.org/99902/has-anyone-else-had-a-seizure-from-simponi/ Thu, 04 Aug 2011 03:15:37 +0000 Asked by Holly143 7 months ago http://answers.ankylosing.org/99902/has-anyone-else-had-a-seizure-from-simponi/ I think it would be great to have a list of good Rheumatologists. Anyone interested? Jasen Chi at OrthoArkansas, Little Rock, Arkansas, has been a great one. http://answers.ankylosing.org/99900/i-think-it-would-be-great-to-have-a-list-of-good-rheumatologists-anyone-interested/ Thu, 04 Aug 2011 02:34:01 +0000 Asked by Linda 7 months ago http://answers.ankylosing.org/99900/i-think-it-would-be-great-to-have-a-list-of-good-rheumatologists-anyone-interested/ I have been out of my sulfasalazine for several weeks, and can't get in to a rheumatologist till the 22. I know I should have planned the move better and set it up ahead of time, but I didn't so here I am. My ankles are swelling up the size of watermelons, and my back is killing me. Am already taking NSAIDs so I am looking for suggestions to get by until I see the rheumy. I HAVE to work in the meantime? http://answers.ankylosing.org/99897/i-have-been-out-of-my-sulfasalazine-for-several-weeks-and-cant-get-in-to-a-rheumatologist-till-the/ Thu, 04 Aug 2011 00:39:50 +0000 Asked by Tricia Carsley 7 months ago http://answers.ankylosing.org/99897/i-have-been-out-of-my-sulfasalazine-for-several-weeks-and-cant-get-in-to-a-rheumatologist-till-the/ I am self diagnosed with AS. I have have pain in the SI joints on and off for 10 years and just recently it has become constant. After many visits to the doctor for what was thought to be 'strain' and told to take Advil I finally got a lower SI x-ray that shows hardening in the joints. I am just now getting a follow up with a rheumatologist. What should I expect from here on and what have others done to help from worsening? http://answers.ankylosing.org/99896/i-am-self-diagnosed-with-as-i-have-have-pain-in-the-si-joints-on-and-off-for-10-years-and-just-recently/ Wed, 03 Aug 2011 23:10:02 +0000 Asked by Todd 7 months ago http://answers.ankylosing.org/99896/i-am-self-diagnosed-with-as-i-have-have-pain-in-the-si-joints-on-and-off-for-10-years-and-just-recently/ My SI joints have not fused yet. How can you tell when they are fusing? Is there more pain? Loss of movement? I am on humira and hopefully that will keep fusion at bay but I would like to know what to expect. http://answers.ankylosing.org/99885/my-si-joints-have-not-fused-yet-how-can-you-tell-when-they-are-fusing-is-there-more-pain-loss-of-movemen/ Wed, 03 Aug 2011 19:38:14 +0000 Asked by Marsha Heins 7 months ago http://answers.ankylosing.org/99885/my-si-joints-have-not-fused-yet-how-can-you-tell-when-they-are-fusing-is-there-more-pain-loss-of-movemen/ Has anyone tried diet or naturopathic medicine for treating their Ankylosing Spondylitis? I tried a low starch, low carb (no sugar) diet high in Omega 3 with naturopathic herbal supplements like fish oil, garlic, etc with no luck unfortunately. I was just wondering if it's helped anyone with AS. http://answers.ankylosing.org/99844/has-anyone-tried-diet-or-naturopathic-medicine-for-treating-their-ankylosing-spondylitis/ Wed, 03 Aug 2011 11:00:07 +0000 Asked by Joanna Boyes 7 months ago http://answers.ankylosing.org/99844/has-anyone-tried-diet-or-naturopathic-medicine-for-treating-their-ankylosing-spondylitis/ Dr's say exercise will help with the pain and stiffness from AS, well, I joined a gym, I walk 3 miles almost everyday on treadmill and use 7 different wieght machines. Its been 9 months now, 4-5 days aweek. Pain is still very bad, all over, no relief, and some new pain. What exercise is supposed to help? I won't have insurance for about 4 months yet, so nothing for pain except IB and tylenol. Any suggestions? http://answers.ankylosing.org/99669/drs-say-exercise-will-help-with-the-pain-and-stiffness-from-as-well-i-joined-a-gym-i-walk-3-miles/ Tue, 02 Aug 2011 20:50:40 +0000 Asked by Debby 7 months ago http://answers.ankylosing.org/99669/drs-say-exercise-will-help-with-the-pain-and-stiffness-from-as-well-i-joined-a-gym-i-walk-3-miles/ I've started using an app for my iPhone called Chronica. It's suppose to help track chronic pain, meds, activity, etc. The main reason I chose it was because it will generate charts in PDF (cross your fingers) that I can take to my doctor. I also like that it is on my iPhone and portable, so I can change my pain scale throughout the day and record my meds as I take them. Any one else used this or something similiar? http://answers.ankylosing.org/99642/ive-started-using-an-app-for-my-iphone-called-chronica-its-suppose-to-help-track-chronic-pain-meds/ Tue, 02 Aug 2011 18:30:59 +0000 Asked by Stacy 7 months ago http://answers.ankylosing.org/99642/ive-started-using-an-app-for-my-iphone-called-chronica-its-suppose-to-help-track-chronic-pain-meds/ Hi has anyone had class 4 laser treatments if so did it help? http://answers.ankylosing.org/99624/hi-has-anyone-had-class-4-laser-treatments-if-so-did-it-help/ Tue, 02 Aug 2011 17:54:03 +0000 Asked by Shelley Leppaluoto 7 months ago http://answers.ankylosing.org/99624/hi-has-anyone-had-class-4-laser-treatments-if-so-did-it-help/ I had my first Remicade infusion today and I survived! Thank you for all the support? http://answers.ankylosing.org/99605/i-had-my-first-remicade-infusion-today-and-i-survived-thank-you-for-all-the-support/ Tue, 02 Aug 2011 16:26:22 +0000 Asked by Anna Blaszkiewicz 7 months ago http://answers.ankylosing.org/99605/i-had-my-first-remicade-infusion-today-and-i-survived-thank-you-for-all-the-support/ Good news, no bone cancer. Other news, new doctor said SI joints aren't "completely fused", but he wouldn't even try to get a needle in to do injections. Can't people get one story straight? New MRI in the morning to see if ruptured disc causing groin pain, hip pain, down the leg pain, etc. Maybe it's SI joints, he says, but lets see. Asked if it's AS for sure, now says, "why would you want that label?" SO frustrated! New appointment Friday AM. http://answers.ankylosing.org/99601/good-news-no-bone-cancer-other-news-new-doctor-said-si-joints-arent-completely-fused-but-he-wouldnt/ Tue, 02 Aug 2011 16:10:35 +0000 Asked by Carla 7 months ago http://answers.ankylosing.org/99601/good-news-no-bone-cancer-other-news-new-doctor-said-si-joints-arent-completely-fused-but-he-wouldnt/ At my first flare up I couldnt walk so I saw a chiropractor. After about 6 adjustments and only following his advise have I been able to keep it manageable. No mor.e sleeping on my stomach. Only on my back with legs elevateild with a pillow under my legs, or on my side with my knees bent at almost a90 degree angle usually with a pills between my knees? http://answers.ankylosing.org/99595/at-my-first-flare-up-i-couldnt-walk-so-i-saw-a-chiropractor-after-about-6-adjustments-and-only-following/ Tue, 02 Aug 2011 15:48:30 +0000 Asked by Ben Lewman 7 months ago http://answers.ankylosing.org/99595/at-my-first-flare-up-i-couldnt-walk-so-i-saw-a-chiropractor-after-about-6-adjustments-and-only-following/ I have currently been diagnosed with cervical stenosis. But have had symptoms of AS since age 19. Blood test confirmed the gene for AS. The doctor wantse to start seeing a rumatoid doctor. The pain or flat up hasn't really bothered me for over 2 years now. Small inclines of it but not the debilitating pain I know it can be. He seemed very concerned that I start medicines now for it.should I continue to rack up the medical debt or hold off for as long as possible? http://answers.ankylosing.org/99593/i-have-currently-been-diagnosed-with-cervical-stenosis-but-have-had-symptoms-of-as-since-age-19-blood/ Tue, 02 Aug 2011 15:40:16 +0000 Asked by Ben Lewman 7 months ago http://answers.ankylosing.org/99593/i-have-currently-been-diagnosed-with-cervical-stenosis-but-have-had-symptoms-of-as-since-age-19-blood/ Just wanted to post something positive for a change. My dr. Put me on cymbalta about 5 weeks ago to help with lower back pain and depression. I'm so excited at the difference it has made in my life? http://answers.ankylosing.org/99589/just-wanted-to-post-something-positive-for-a-change-my-dr-put-me-on-cymbalta-about-5-weeks-ago-to-help/ Tue, 02 Aug 2011 15:28:33 +0000 Asked by Karen 7 months ago http://answers.ankylosing.org/99589/just-wanted-to-post-something-positive-for-a-change-my-dr-put-me-on-cymbalta-about-5-weeks-ago-to-help/ My Rheumatologist in Tasmania, Australia is Hilton Frances who is a God send. He has recommended I try the new drug therapy for Ankylosing Spondylitis known as Embrel a TNF blocker but I am so worried about the reported potential side effects such as lymphoma, cancer and congenital heart failure etc. At what point does the benefit out weigh the risk because I'd rather soldier on with NSAID's than end up with Lymphoma or heart failure. I'm so sick of the stomach ulcers from using NSAID's? http://answers.ankylosing.org/99574/my-rheumatologist-in-tasmania-australia-is-hilton-frances-who-is-a-god-send-he-has-recommended-i-try/ Tue, 02 Aug 2011 14:30:44 +0000 Asked by Joanna Boyes 7 months ago http://answers.ankylosing.org/99574/my-rheumatologist-in-tasmania-australia-is-hilton-frances-who-is-a-god-send-he-has-recommended-i-try/ About a month ago, I had read that people who have AS or other spine problems should wear an alert bracelet to let emergency workers know that they have to be careful in moving you to avoid injuring your spine. I recieved my first alert bracelet a few days ago. On one side of it says "Brittle Spine" and "Use caution to avoid spinal injury" In the event of a medical emergency or accident and if you were unconscious and were not able to tell about your AS. Has any one else looked into this? http://answers.ankylosing.org/99412/about-a-month-ago-i-had-read-that-people-who-have-as-or-other-spine-problems-should-wear-an-alert-bracelet/ Tue, 02 Aug 2011 02:57:32 +0000 Asked by Jamie 7 months ago http://answers.ankylosing.org/99412/about-a-month-ago-i-had-read-that-people-who-have-as-or-other-spine-problems-should-wear-an-alert-bracelet/ So has anybody suffered extreme weight loss from AS. If so how did you gain you weight back? And thanks guys for answering my other question it really helped out a lot! http://answers.ankylosing.org/99361/so-has-anybody-suffered-extreme-weight-loss-from-as-if-so-how-did-you-gain-you-weight-back/ Mon, 01 Aug 2011 23:06:50 +0000 Asked by Christoff 7 months ago http://answers.ankylosing.org/99361/so-has-anybody-suffered-extreme-weight-loss-from-as-if-so-how-did-you-gain-you-weight-back/ This article really peaked my interest, pissed me off royally as well. It's all about the bottom line. www.hrreporter.com/articleview?&articleid=10345&headline=spe http://answers.ankylosing.org/99252/this-article-really-peaked-my-interest-pissed-me-off-royally-as-well-its-all-about-the-bottom-line/ Mon, 01 Aug 2011 04:52:36 +0000 Asked by Tammy Martin 7 months ago http://answers.ankylosing.org/99252/this-article-really-peaked-my-interest-pissed-me-off-royally-as-well-its-all-about-the-bottom-line/ Okay, so i've been away from here for a bit. We have been struggling for a few years trying to get a diagnosis.. With not enough proof to get a diagnosis of AS. I had a CT scan 3 weeks ago which finally showed something. Both left and right SI joints are full of osteophytes and both have considerable joint space narrowing, though the right is worse than the left in both cases. Anyway My doc wants me to get SI joint injections... Anyone else have them? Tell me about it, i'm really anxious. http://answers.ankylosing.org/99238/okay-so-ive-been-away-from-here-for-a-bit-we-have-been-struggling-for-a-few-years-trying-to-get-a/ Mon, 01 Aug 2011 00:56:56 +0000 Asked by Lindsay Cairns 7 months ago http://answers.ankylosing.org/99238/okay-so-ive-been-away-from-here-for-a-bit-we-have-been-struggling-for-a-few-years-trying-to-get-a/ Quick one, just curious has anyone notice any changes in their bodies when they're late their treatments? MD forgot to refill my Simponi and now she's on vacation until mid September, mean time ouch! Anyone notice any changes if they're late too? SI is driving me batty. http://answers.ankylosing.org/99234/quick-one-just-curious-has-anyone-notice-any-changes-in-their-bodies-when-theyre-late-their-treatments/ Sun, 31 Jul 2011 23:37:00 +0000 Asked by Tammy Martin 7 months ago http://answers.ankylosing.org/99234/quick-one-just-curious-has-anyone-notice-any-changes-in-their-bodies-when-theyre-late-their-treatments/ Sorry if someone else has already asked this, but is there any type of mattress that seems to help better than others? We are ready to buy and don't know what to get. http://answers.ankylosing.org/99209/sorry-if-someone-else-has-already-asked-this-but-is-there-any-type-of-mattress-that-seems-to-help-better/ Sun, 31 Jul 2011 16:42:13 +0000 Asked by Cheryl Herrington 7 months ago http://answers.ankylosing.org/99209/sorry-if-someone-else-has-already-asked-this-but-is-there-any-type-of-mattress-that-seems-to-help-better/ Also have you heard that if you have history of rare luekimia and lymphoma tnf drugs may not be a option? http://answers.ankylosing.org/99206/also-have-you-heard-that-if-you-have-history-of-rare-luekimia-and-lymphoma-tnf-drugs-may-not-be-a-option/ Sun, 31 Jul 2011 15:11:57 +0000 Asked by Shelley Leppaluoto 7 months ago http://answers.ankylosing.org/99206/also-have-you-heard-that-if-you-have-history-of-rare-luekimia-and-lymphoma-tnf-drugs-may-not-be-a-option/ Does anyone fracture easy i fractured my thoritic spine did not even know i did? http://answers.ankylosing.org/99205/does-anyone-fracture-easy-i-fractured-my-thoritic-spine-did-not-even-know-i-did/ Sun, 31 Jul 2011 15:10:13 +0000 Asked by Shelley Leppaluoto 7 months ago http://answers.ankylosing.org/99205/does-anyone-fracture-easy-i-fractured-my-thoritic-spine-did-not-even-know-i-did/ How long did it take people to get diagnosed with AS? Ive been having pain in my legs and back for 11 yrs (since i was 18) and they have just decided that there is a strong possibility i have AS. Got to have Bloods and xrays now http://answers.ankylosing.org/99204/how-long-did-it-take-people-to-get-diagnosed-with-as/ Sun, 31 Jul 2011 15:01:40 +0000 Asked by Kerry Hart 7 months ago http://answers.ankylosing.org/99204/how-long-did-it-take-people-to-get-diagnosed-with-as/ Does anyone here have problems with inflammation in their collarbones? If I lay down a certain way or move a certain way I feel a lot of pressure in my collarbone and it feels like it is going to snap. I haven't heard of problems with AS in this area of the body. http://answers.ankylosing.org/99136/does-anyone-here-have-problems-with-inflammation-in-their-collarbones/ Sat, 30 Jul 2011 05:51:04 +0000 Asked by Caroline Carlson Abrom 7 months ago http://answers.ankylosing.org/99136/does-anyone-here-have-problems-with-inflammation-in-their-collarbones/ Does anyone notice pain and weakness in their wrists or hands? Some days are worse than others, but often it's hard to make a fist or write... http://answers.ankylosing.org/99092/does-anyone-notice-pain-and-weakness-in-their-wrists-or-hands/ Sat, 30 Jul 2011 03:01:06 +0000 Asked by Kathryn 7 months ago http://answers.ankylosing.org/99092/does-anyone-notice-pain-and-weakness-in-their-wrists-or-hands/ Ive had AS since i was thirteen and now 24 and i have not seen a roomatologist in over a year due to not having insurance. I live in Ga. And i was wondering if there was any help out there for ppl without insurance? http://answers.ankylosing.org/98998/ive-had-as-since-i-was-thirteen-and-now-24-and-i-have-not-seen-a-roomatologist-in-over-a-year-due-to/ Fri, 29 Jul 2011 20:37:02 +0000 Asked by Christoff 7 months ago http://answers.ankylosing.org/98998/ive-had-as-since-i-was-thirteen-and-now-24-and-i-have-not-seen-a-roomatologist-in-over-a-year-due-to/ I was taking Humira since 2006 and I would get a UTI twice a year... Never had one in my life before taking Humira.. Well at the end of January 2011 to the end of May I had 6 UTI's... It lowered my immune system so bad I could not fight off the infection.. I am now on antibiotics for 6 months..I will not take Humira again or the others like it...Anyone else have this problem? http://answers.ankylosing.org/98992/i-was-taking-humira-since-2006-and-i-would-get-a-uti-twice-a-year-never-had-one-in-my-life-before/ Fri, 29 Jul 2011 20:14:36 +0000 Asked by Lorie White 7 months ago http://answers.ankylosing.org/98992/i-was-taking-humira-since-2006-and-i-would-get-a-uti-twice-a-year-never-had-one-in-my-life-before/ I have never been a depressed person now i find myself in tears alot especialy in the mornings when things are the worst dues this happen to anyone else? http://answers.ankylosing.org/98984/i-have-never-been-a-depressed-person-now-i-find-myself-in-tears-alot-especialy-in-the-mornings-when-things/ Fri, 29 Jul 2011 19:42:43 +0000 Asked by Shelley Leppaluoto 7 months ago http://answers.ankylosing.org/98984/i-have-never-been-a-depressed-person-now-i-find-myself-in-tears-alot-especialy-in-the-mornings-when-things/ Me again. Just got a call from the naturopathic doc's office (I know what you think of that Jerry ;) I go for a follow up but in the meantime she mentioned that there was a high reaction to whole wheat and eggs. I've been reading about Celiac, and I can't help but get a little excited. It would explain no fusion, no deterioration, peripheral neuropathy... I know there's a whole lot of discussion about AS and diet, but what if I don't have AS, could it be Celiac? Any thoughts? http://answers.ankylosing.org/98925/me-again-just-got-a-call-from-the-naturopathic-docs-office-i-know-what-you-think-of-that-jerry/ Fri, 29 Jul 2011 15:27:02 +0000 Asked by Gullyabb 7 months ago http://answers.ankylosing.org/98925/me-again-just-got-a-call-from-the-naturopathic-docs-office-i-know-what-you-think-of-that-jerry/ What has it been like switching TNF meds? I have been on Enbrel for 7 years. It has given me my life back. For the last year it seems that it's not working the same. Doc thinks I should think about switching to Humira. What was your experience switching between meds? What should I expect? How long until you realized it was working or not? http://answers.ankylosing.org/98795/what-has-it-been-like-switching-tnf-meds-i-have-been-on-enbrel-for-7-years-it-has-given-me-my-life/ Fri, 29 Jul 2011 06:05:00 +0000 Asked by Mark South 7 months ago http://answers.ankylosing.org/98795/what-has-it-been-like-switching-tnf-meds-i-have-been-on-enbrel-for-7-years-it-has-given-me-my-life/ Spent last week in the hosp after the tingling in my hands/feet moved up my limbs and into my face. Neuro saw weakness in my right side. MRI done for MS, came back clear. Original dx in April was AS, now they're not so sure. So frustrated being in limbo land. All tests are normal, but my health is going downhill. The only good is that Celebrex has completely taken care of my joint pain. (tingling started before celebrex). Anyone heard of a connection between AS and MS? http://answers.ankylosing.org/98640/spent-last-week-in-the-hosp-after-the-tingling-in-my-handsfeet-moved-up-my-limbs-and-into-my-face-neuro/ Thu, 28 Jul 2011 19:54:42 +0000 Asked by Gullyabb 7 months ago http://answers.ankylosing.org/98640/spent-last-week-in-the-hosp-after-the-tingling-in-my-handsfeet-moved-up-my-limbs-and-into-my-face-neuro/ Interesting article on HLA-DPA and DPB.... www.mdlinx.com/rheumatology/newsl-article.cfm/3683917/ZZ4E97 http://answers.ankylosing.org/98639/interesting-article-on-hla-dpa-and-dpb-a-hrefhttpwwwmdlinxcomrheumatologynewsl-articlecfm3683917zz4e971e390d7146a8ace02c57d20cf55b/ Thu, 28 Jul 2011 19:52:30 +0000 Asked by Amori99 7 months ago http://answers.ankylosing.org/98639/interesting-article-on-hla-dpa-and-dpb-a-hrefhttpwwwmdlinxcomrheumatologynewsl-articlecfm3683917zz4e971e390d7146a8ace02c57d20cf55b/ Connect with facebook is not working and as a result I now have 3 accounts? http://answers.ankylosing.org/98576/connect-with-facebook-is-not-working-and-as-a-result-i-now-have-3-accounts/ Thu, 28 Jul 2011 14:25:32 +0000 Asked by Jerry Grynspan 7 months ago http://answers.ankylosing.org/98576/connect-with-facebook-is-not-working-and-as-a-result-i-now-have-3-accounts/ I'm back. Ortho vist went well. MRI w/ injection scheduled for 8/1 for the quarter sized lesion on right proximal femur. 50 mg of prednisone for 5 days, if improved pain by friday, will give more for taper dose. Depending on how I feel friday and results of MRI, will do another full lower body MRI to see if ruptured disc, fractured fused SI joints, etc. Not understanding why couldn't do everything on first MRI? Said something about the predisone and swelling. Ideas? http://answers.ankylosing.org/98356/im-back-ortho-vist-went-well-mri-w-injection-scheduled-for-81-for-the-quarter-sized-lesion-on-right/ Wed, 27 Jul 2011 22:42:50 +0000 Asked by Carla 7 months ago http://answers.ankylosing.org/98356/im-back-ortho-vist-went-well-mri-w-injection-scheduled-for-81-for-the-quarter-sized-lesion-on-right/ Does anybody else get actul brusies some can be realy large that appear on my back on the spine and pelvis and I haven't had a fall or knocked myself this as happened a few times before? http://answers.ankylosing.org/98350/does-anybody-else-get-actul-brusies-some-can-be-realy-large-that-appear-on-my-back-on-the-spine-and-pelvis/ Wed, 27 Jul 2011 22:26:45 +0000 Asked by Jean Mace 7 months ago http://answers.ankylosing.org/98350/does-anybody-else-get-actul-brusies-some-can-be-realy-large-that-appear-on-my-back-on-the-spine-and-pelvis/ Hi, I have had AS for 10 years now and I have not found Anything that works for the pain side of things so far? My doctor is going to put me on Anti-tnf injections? But I am very worried about some of the side effects? I know that everyone is different but I was wondering If I am the only one is worried about it? Hope someone Can help me to understand it a bit more and put my mind At ease. Thank you very much. Garry http://answers.ankylosing.org/98293/hi-i-have-had-as-for-10-years-now-and-i-have-not-found-anything-that-works-for-the-pain-side-of-things/ Wed, 27 Jul 2011 18:54:28 +0000 Asked by Garry Brewer 7 months ago http://answers.ankylosing.org/98293/hi-i-have-had-as-for-10-years-now-and-i-have-not-found-anything-that-works-for-the-pain-side-of-things/ Does anyone use a walking cane on those really sore to walk days? I am thinking about getting one. I'd rather have to use a cane versus falling and breaking a hip. LOL I've found some really cool design ones online. http://answers.ankylosing.org/98277/does-anyone-use-a-walking-cane-on-those-really-sore-to-walk-days/ Wed, 27 Jul 2011 17:54:27 +0000 Asked by Laura Buxton 7 months ago http://answers.ankylosing.org/98277/does-anyone-use-a-walking-cane-on-those-really-sore-to-walk-days/ Okay ladies does anyone else have calcifications in the breast, is this more prevelant with AS patients? The GY dr. Did not if there was any connection I will ask my Rhmy dr. When I go back to see her. Means mamogramm twice a year the GY dr. Said. UUGGHH http://answers.ankylosing.org/98232/okay-ladies-does-anyone-else-have-calcifications-in-the-breast-is-this-more-prevelant-with-as-patient/ Wed, 27 Jul 2011 14:36:48 +0000 Asked by Cindy Clark Barta 7 months ago http://answers.ankylosing.org/98232/okay-ladies-does-anyone-else-have-calcifications-in-the-breast-is-this-more-prevelant-with-as-patient/ Is Spinal decompression effective for treating AS? Has anyone tried those machines? http://answers.ankylosing.org/98087/is-spinal-decompression-effective-for-treating-as/ Wed, 27 Jul 2011 03:51:52 +0000 Asked by Jesus22 7 months ago http://answers.ankylosing.org/98087/is-spinal-decompression-effective-for-treating-as/ Hi all, I have been reading a few questions/answers on here from people who have been prescribed hydrocodone and others like that for pain. I'm curious to know if there are any others here that take the hydrocodone + ibuprofen combination. I have been taking 7.5mg of hydrocodone with 200mg of ibuprofen and it has worked better for me than any of the straight NSAIDS. I'm prone to infection so Humira/Enbrel etc is not an option for me. Anyone else get this? It's called Vicoprofen. Thanks! http://answers.ankylosing.org/98047/hi-all-i-have-been-reading-a-few-questionsanswers-on-here-from-people-who-have-been-prescribed-hydrocodone/ Wed, 27 Jul 2011 00:56:32 +0000 Asked by Ryan Davis 7 months ago http://answers.ankylosing.org/98047/hi-all-i-have-been-reading-a-few-questionsanswers-on-here-from-people-who-have-been-prescribed-hydrocodone/ I am 48age having pain in back portion of the total leg from foot to thi. Unable to walk and stand. Dr. Advised to take rest? http://answers.ankylosing.org/97795/i-am-48age-having-pain-in-back-portion-of-the-total-leg-from-foot-to-thi-unable-to-walk-and-stand-dr/ Tue, 26 Jul 2011 06:23:00 +0000 Asked by Sukesh 7 months ago http://answers.ankylosing.org/97795/i-am-48age-having-pain-in-back-portion-of-the-total-leg-from-foot-to-thi-unable-to-walk-and-stand-dr/ Diagnosed 3 mths ago with AS, 1 mth on Enbrel -does anyone have severe foot/calf pain?It is sooo annoying and sooo intensely painful! I can hardly stand it some days? Anyone have advice? http://answers.ankylosing.org/97715/diagnosed-3-mths-ago-with-as-1-mth-on-enbrel-does-anyone-have-severe-footcalf-painit-is-sooo-annoying/ Tue, 26 Jul 2011 00:57:24 +0000 Asked by Tammy Bliss 7 months ago http://answers.ankylosing.org/97715/diagnosed-3-mths-ago-with-as-1-mth-on-enbrel-does-anyone-have-severe-footcalf-painit-is-sooo-annoying/ This is a sensitive question, but I'm curious. Have any of you made a decision *not* to have children, so as not to possibly pass on issues like AS, Crohn's, PsA, etc? That's a decision I made a long time ago and never regretted it. Anyone else? http://answers.ankylosing.org/97705/this-is-a-sensitive-question-but-im-curious-have-any-of-you-made-a-decision-not-to-have-children/ Tue, 26 Jul 2011 00:17:20 +0000 Asked by Chapps 7 months ago http://answers.ankylosing.org/97705/this-is-a-sensitive-question-but-im-curious-have-any-of-you-made-a-decision-not-to-have-children/ HI i cant use my left hand part of it went numb and cant move 2 fingers. They did a MRI of my neck and it is no worse so they think it is just swelling does this happen to anyone else? http://answers.ankylosing.org/97629/hi-i-cant-use-my-left-hand-part-of-it-went-numb-and-cant-move-2-fingers-they-did-a-mri-of-my-neck-and/ Mon, 25 Jul 2011 18:52:01 +0000 Asked by Shelley Leppaluoto 7 months ago http://answers.ankylosing.org/97629/hi-i-cant-use-my-left-hand-part-of-it-went-numb-and-cant-move-2-fingers-they-did-a-mri-of-my-neck-and/ I've got AS and Crohn's with a illeostomy, I have a 13 yr old daughter and have been with my partner for over 3 years, I've been trying to conceive, no luck so far, but now I'm on Humira, I've been warned not to conceive on anti-TNF's... I think I may have inflamation in the pelvis/womb area.. Is this a possibility? Does anyone else know of difficulties getting pregnant? And is it definatly bad to have a child whilst on Humira as the medical information I've read implies it causes no harm? http://answers.ankylosing.org/97584/ive-got-as-and-crohns-with-a-illeostomy-i-have-a-13-yr-old-daughter-and-have-been-with-my-partner/ Mon, 25 Jul 2011 13:50:31 +0000 Asked by Christine 7 months ago http://answers.ankylosing.org/97584/ive-got-as-and-crohns-with-a-illeostomy-i-have-a-13-yr-old-daughter-and-have-been-with-my-partner/ I am starting a new job in one week. I've decided to declare that I need my service animal 2-3 days/week, but not to elaborate further about my condition just yet. This will be my first new job ever. Any advice? I plan to pace myself as much as I can ... While trying to build a good reputation out of the gate ... Finding that balance will be a challenge. http://answers.ankylosing.org/97548/i-am-starting-a-new-job-in-one-week-ive-decided-to-declare-that-i-need-my-service-animal-2-3-daysweek/ Mon, 25 Jul 2011 04:10:41 +0000 Asked by Rose Bigham 7 months ago http://answers.ankylosing.org/97548/i-am-starting-a-new-job-in-one-week-ive-decided-to-declare-that-i-need-my-service-animal-2-3-daysweek/ I'm going for my first Remicade infusion next week and I'm very nervous. What should I expect? http://answers.ankylosing.org/97544/im-going-for-my-first-remicade-infusion-next-week-and-im-very-nervous-what-should-i-expect/ Mon, 25 Jul 2011 03:41:44 +0000 Asked by Anna Blaszkiewicz 7 months ago http://answers.ankylosing.org/97544/im-going-for-my-first-remicade-infusion-next-week-and-im-very-nervous-what-should-i-expect/ I'm in the middle of my 3rd injection of Humira (every other week). I'm getting sick. Sore throat, ears aching, slight cough (started yesterday). I don't have a PCP, yet. At what point do I go to the doctor? I know I can't take my next injection on Friday if I still feel this way. I don't want to get too sick that this gets out of control. I also, don't want to be the crazy person who runs to the doctor with the sniffles. Any advice? http://answers.ankylosing.org/97530/im-in-the-middle-of-my-3rd-injection-of-humira-every-other-week-im-getting-sick-sore-throat-ears/ Mon, 25 Jul 2011 00:38:20 +0000 Asked by Stacy 7 months ago http://answers.ankylosing.org/97530/im-in-the-middle-of-my-3rd-injection-of-humira-every-other-week-im-getting-sick-sore-throat-ears/ I have been treated for AS for a year and have become dependant on Enbrel and Methotrexate I feel so depressed My Employer has no understanding and I struggle to get to work. I am getting up at 4.30am to get to work for 9.00. My line manager tells me that I have to take leave when I have a hospital appointment and makes refrerence to "cripples". Why can't people understand this awful disease? http://answers.ankylosing.org/97386/i-have-been-treated-for-as-for-a-year-and-have-become-dependant-on-enbrel-and-methotrexate-i-feel-so/ Sat, 23 Jul 2011 12:05:10 +0000 Asked by Helen 7 months ago http://answers.ankylosing.org/97386/i-have-been-treated-for-as-for-a-year-and-have-become-dependant-on-enbrel-and-methotrexate-i-feel-so/ As anyone else suffers from a severely tilted pelvis any hints and tips would be good thank you? http://answers.ankylosing.org/97300/as-anyone-else-suffers-from-a-severely-tilted-pelvis-any-hints-and-tips-would-be-good-thank-you/ Fri, 22 Jul 2011 20:57:34 +0000 Asked by Jean Mace 7 months ago http://answers.ankylosing.org/97300/as-anyone-else-suffers-from-a-severely-tilted-pelvis-any-hints-and-tips-would-be-good-thank-you/ I thought it might be good to list tips that might help others with their disease. These are some of the things that have helped me: Exercise ball(for stretching my back), pepzingi for my stomach, nasaline rinsing system for sinus issues, vitamin supplements especially D and milk thistle, noodle for support on the couch when sitting, pillow in the car for support when riding, muscle relaxants, homedic massager, stool for the kitchen to sit while working and stretching elastics. Hope this helps? http://answers.ankylosing.org/97243/i-thought-it-might-be-good-to-list-tips-that-might-help-others-with-their-disease-these-are-some-of/ Fri, 22 Jul 2011 13:11:44 +0000 Asked by Cathy 7 months ago http://answers.ankylosing.org/97243/i-thought-it-might-be-good-to-list-tips-that-might-help-others-with-their-disease-these-are-some-of/ I'm looking for more information out there, specifically books that reflect the emotional side to arthritis. I bought Kathleen Turner's book when it first came out called "send yourself some roses". She is an inspiration because she is such a public figure and had I not red her review when the book came out I might have not know about her RA, just like Mick Mars from Motley Crüe who has AS. Any good books lately? http://answers.ankylosing.org/97167/im-looking-for-more-information-out-there-specifically-books-that-reflect-the-emotional-side-to-arthritis/ Fri, 22 Jul 2011 00:56:56 +0000 Asked by Tammy Martin 7 months ago http://answers.ankylosing.org/97167/im-looking-for-more-information-out-there-specifically-books-that-reflect-the-emotional-side-to-arthritis/ So, my insurance denied Enbrel and my rheumy started me on indomethicin. I got sick the first couple of times that I took it but then started taking it before bed and it was working great for a few days. Then...I found out I was pregnant. I called my rheumy, who said to stop the indomethicin and that there is nothing I can take now. My pain isnt too bad at the moment, but I'm only about six weeks along so I'm wondering if any of you who have gone through pregnancy with AS have any advice? Thanks http://answers.ankylosing.org/97151/so-my-insurance-denied-enbrel-and-my-rheumy-started-me-on-indomethicin-i-got-sick-the-first-couple/ Thu, 21 Jul 2011 22:24:56 +0000 Asked by Lenore 7 months ago http://answers.ankylosing.org/97151/so-my-insurance-denied-enbrel-and-my-rheumy-started-me-on-indomethicin-i-got-sick-the-first-couple/ Suddenly, I wake up in the AM with both hands stiff. It is painful to close them. No swelling. So far no problems as the day goes on. This has been going on for about a month and the pain to close them is getting little worse each day? http://answers.ankylosing.org/97148/suddenly-i-wake-up-in-the-am-with-both-hands-stiff-it-is-painful-to-close-them-no-swelling-so-far/ Thu, 21 Jul 2011 22:02:43 +0000 Asked by Kathy 7 months ago http://answers.ankylosing.org/97148/suddenly-i-wake-up-in-the-am-with-both-hands-stiff-it-is-painful-to-close-them-no-swelling-so-far/ Does anybody else have trouble with car journeys with the pain every little bump shoots the pain levels up .I use a hot water bottle but still in pain so only go out to hospital , doctors , dentist or very short journeys . Have not been on holiday for 14 years the last time we went to Wales for a week spent 3 days in bed and on the sofa in that much pain was sick in the end we came home early then same again when we got home? http://answers.ankylosing.org/97146/does-anybody-else-have-trouble-with-car-journeys-with-the-pain-every-little-bump-shoots-the-pain-levels/ Thu, 21 Jul 2011 21:54:24 +0000 Asked by Jean Mace 7 months ago http://answers.ankylosing.org/97146/does-anybody-else-have-trouble-with-car-journeys-with-the-pain-every-little-bump-shoots-the-pain-levels/ Would swollen feet be anything to call the doc about? It may sound like a silly question but it is odd for me. I noticed last night when I put on some strappy sandals that the notch I usually fastened them on felt very tight. I didn't think much of it until I got home and had fairly deep grooves where the straps were. I also just noticed the tight feeling in my feel again. I kicked off my flip flops to see that they had also left grooves. I figure that is why I gained 5lbs in 4 days too. http://answers.ankylosing.org/97128/would-swollen-feet-be-anything-to-call-the-doc-about/ Thu, 21 Jul 2011 18:47:18 +0000 Asked by Christine Farr Fritts 7 months ago http://answers.ankylosing.org/97128/would-swollen-feet-be-anything-to-call-the-doc-about/ How much do you pay for Enbrel every month ? If you have coverage through work how much do you still pay for it? Is the Enbrel covered in the USA in any way, if you don't have a job? Can you buy health insurance from a company that covers for pre-existent conditions? I appreciate any comments! Thanks so much ! http://answers.ankylosing.org/97115/how-much-do-you-pay-for-enbrel-every-month-if-you-have-coverage-through-work-how-much-do-you-still/ Thu, 21 Jul 2011 17:45:18 +0000 Asked by Diana Dobrescu 7 months ago http://answers.ankylosing.org/97115/how-much-do-you-pay-for-enbrel-every-month-if-you-have-coverage-through-work-how-much-do-you-still/ I know you have been wondering so I met with the Head Neck Surgeon and she said she cannot feel the lymph node enough because it's too deep I need go to to Interventional Radiology. It is a same day procedure I will be there 5 hours for prep, the biopsy of my lymph node, recovery...they have to inject pain meds into me and all of that. I didn't wait for them to call me so I called them today and as of now I'm scheduled for Monday. Needless to say the freaking out has begun? http://answers.ankylosing.org/97105/i-know-you-have-been-wondering-so-i-met-with-the-head-neck-surgeon-and-she-said-she-cannot-feel-the-lymph/ Thu, 21 Jul 2011 17:03:23 +0000 Asked by Sasha 7 months ago http://answers.ankylosing.org/97105/i-know-you-have-been-wondering-so-i-met-with-the-head-neck-surgeon-and-she-said-she-cannot-feel-the-lymph/ Sometimes the simple tasks of driving a car, housework and just everyday living get us down. I am wondering what people do to combat the depression associated with AS? http://answers.ankylosing.org/97080/sometimes-the-simple-tasks-of-driving-a-car-housework-and-just-everyday-living-get-us-down-i-am-wondering/ Thu, 21 Jul 2011 14:45:31 +0000 Asked by Michael Candy 7 months ago http://answers.ankylosing.org/97080/sometimes-the-simple-tasks-of-driving-a-car-housework-and-just-everyday-living-get-us-down-i-am-wondering/ I found an interesting article on the litany of illnesses that also occur in people who have AS. Passing it on :] www.spondylitis.org/press/news/512.aspx? http://answers.ankylosing.org/96995/i-found-an-interesting-article-on-the-litany-of-illnesses-that-also-occur-in-people-who-have-as-passing/ Thu, 21 Jul 2011 02:20:27 +0000 Asked by Amori99 7 months ago http://answers.ankylosing.org/96995/i-found-an-interesting-article-on-the-litany-of-illnesses-that-also-occur-in-people-who-have-as-passing/ How many sufferers of Ankylosing Spondylitis have had to give up work due to the condition? Also if you do work with the disease, how do you manage and how supportive is your employer to your needs? http://answers.ankylosing.org/96872/how-many-sufferers-of-ankylosing-spondylitis-have-had-to-give-up-work-due-to-the-condition/ Wed, 20 Jul 2011 14:00:45 +0000 Asked by Michael Candy 7 months ago http://answers.ankylosing.org/96872/how-many-sufferers-of-ankylosing-spondylitis-have-had-to-give-up-work-due-to-the-condition/ If the bacteria theory is correct (Some argue that Klebsiella and other bacterias in the intestines/stomach might worsen autoimmune symptoms), does this mean that one should avoid "Probiotics"? Resistent starch is probiotic, and so is yoghurt and various other foods. Do you think this would be correct? I see however that they on some webpages recommend probiotics if you have rheumatism. http://answers.ankylosing.org/96832/if-the-bacteria-theory-is-correct-some-argue-that-klebsiella-and-other-bacterias-in-the-intestinesstomach/ Wed, 20 Jul 2011 09:02:28 +0000 Asked by Hanna 7 months ago http://answers.ankylosing.org/96832/if-the-bacteria-theory-is-correct-some-argue-that-klebsiella-and-other-bacterias-in-the-intestinesstomach/ I had L5 injections done last wk for nerve pain in my legs. For about a wk I've had extream stiffness above my tailbone going up my spine into my neck along w/headaches. This is not normal for me. My stiffness in my spine is normally in my tailbone. Please help... (See more below)? http://answers.ankylosing.org/96815/i-had-l5-injections-done-last-wk-for-nerve-pain-in-my-legs-for-about-a-wk-ive-had-extream-stiffness/ Wed, 20 Jul 2011 06:12:25 +0000 Asked by Kimberly 7 months ago http://answers.ankylosing.org/96815/i-had-l5-injections-done-last-wk-for-nerve-pain-in-my-legs-for-about-a-wk-ive-had-extream-stiffness/ I have just found out I have AS I knew I had hip dysplasia and went back to the specalist after more hip problems and he was reading out a list of conditions I have .I always knew I had spine problems but was told its Degenrative disc disease and Prolapse of discs problems with my neck and top of spine shoulder pain ,lower spine and pelvis severely tilted? http://answers.ankylosing.org/96765/i-have-just-found-out-i-have-as-i-knew-i-had-hip-dysplasia-and-went-back-to-the-specalist-after-more/ Tue, 19 Jul 2011 23:06:12 +0000 Asked by Jean Mace 7 months ago http://answers.ankylosing.org/96765/i-have-just-found-out-i-have-as-i-knew-i-had-hip-dysplasia-and-went-back-to-the-specalist-after-more/ Has anybody else had an increase in oily skin from being on Humira? I've always had somewhat oily skin, but since being on Humira I swear it is much worse. At least it keeps my skin looking good. http://answers.ankylosing.org/96736/has-anybody-else-had-an-increase-in-oily-skin-from-being-on-humira/ Tue, 19 Jul 2011 20:43:33 +0000 Asked by Steve 7 months ago http://answers.ankylosing.org/96736/has-anybody-else-had-an-increase-in-oily-skin-from-being-on-humira/ Has anyone found that either courses of prednisone or regularly taking muscle relaxants like flexeril help? I am in pretty much a constant state of flare due to stress in my overall life. I'm on Enbrel and pain meds, sulfasalazine didn't really seem to help, and Celebrex does nothing for me (any other forms of ibuprofen are too damaging to my stomach to tolerate). I'm trying to find alternatives to get through the "bad" days - anyone have thoughts on these meds and if they work? http://answers.ankylosing.org/96731/has-anyone-found-that-either-courses-of-prednisone-or-regularly-taking-muscle-relaxants-like-flexeril/ Tue, 19 Jul 2011 20:15:34 +0000 Asked by Alene 7 months ago http://answers.ankylosing.org/96731/has-anyone-found-that-either-courses-of-prednisone-or-regularly-taking-muscle-relaxants-like-flexeril/ Hi I have AS, crohns,meinieres& heart problems is it normal to have so many autoimmunes i know they are related to the hla b27 gene is there anyone else out there like me? http://answers.ankylosing.org/96720/hi-i-have-as-crohnsmeinieres-heart-problems-is-it-normal-to-have-so-many-autoimmunes-i-know-they-are/ Tue, 19 Jul 2011 18:37:21 +0000 Asked by Shelley Leppaluoto 7 months ago http://answers.ankylosing.org/96720/hi-i-have-as-crohnsmeinieres-heart-problems-is-it-normal-to-have-so-many-autoimmunes-i-know-they-are/ Can I still donate blood with AS? I don't see a problem, but was just curious if anyone else knew. http://answers.ankylosing.org/96691/can-i-still-donate-blood-with-as/ Tue, 19 Jul 2011 15:25:44 +0000 Asked by Laura Buxton 7 months ago http://answers.ankylosing.org/96691/can-i-still-donate-blood-with-as/ Elevated liver enzymes? My BFF (Fibro, Spondy) has a rheumy who cranked up the MTX for a long time before finally switching to Simponi. They've tested her blood every six weeks and her liver enzymes are 4-5 times normal. (Not anywhere near as high as a case of Hepatitis though). She saw a gastro yesterday who told her 1) she's fat; 2) she might have a fatty liver; 3) could be IBD. He said the IDB could cause all the inflammatory issues?! I think he's nuts and it's prolly the MTX. Thoughts? http://answers.ankylosing.org/96688/elevated-liver-enzymes-my-bff-fibro-spondy-has-a-rheumy-who-cranked-up-the-mtx-for-a-long-time-before/ Tue, 19 Jul 2011 14:54:31 +0000 Asked by Rose Bigham 7 months ago http://answers.ankylosing.org/96688/elevated-liver-enzymes-my-bff-fibro-spondy-has-a-rheumy-who-cranked-up-the-mtx-for-a-long-time-before/ Hello everyone, been along time. Spent yesterday in the ER after leg going out and missing the couch when sitting. Xrays didn't show any fractures, but did show a "lesion" on hip bone. Wouldn't discuss with me, only referred me back to ortho on 26th. Increased meds to Norco 10. Asked if I had any problems with incontinence. Any ideas about Lesions or incontinence? http://answers.ankylosing.org/96686/hello-everyone-been-along-time-spent-yesterday-in-the-er-after-leg-going-out-and-missing-the-couch/ Tue, 19 Jul 2011 13:38:18 +0000 Asked by Carla 7 months ago http://answers.ankylosing.org/96686/hello-everyone-been-along-time-spent-yesterday-in-the-er-after-leg-going-out-and-missing-the-couch/ How many of you out there have supportive partners or family members. These people have a very important role in the day to day living of a person with ankylosing spondylitis. I'm interested to read your stories. Michael Candy? http://answers.ankylosing.org/96684/how-many-of-you-out-there-have-supportive-partners-or-family-members-these-people-have-a-very-important/ Tue, 19 Jul 2011 13:07:22 +0000 Asked by Michael Candy 7 months ago http://answers.ankylosing.org/96684/how-many-of-you-out-there-have-supportive-partners-or-family-members-these-people-have-a-very-important/ I'm planning an OS holiday, ( can't wait!) I am going to the doc to discuss vaccinations & travel with enbrel. However so far I have learnt the the GP and Specialists do contradict each other a LOT! So just wondering if anyone can share. Thanks? http://answers.ankylosing.org/96677/im-planning-an-os-holiday-cant-wait-i-am-going-to-the-doc-to-discuss-vaccinations-travel-with/ Tue, 19 Jul 2011 09:47:43 +0000 Asked by Rachael 7 months ago http://answers.ankylosing.org/96677/im-planning-an-os-holiday-cant-wait-i-am-going-to-the-doc-to-discuss-vaccinations-travel-with/ Is there anyone else out there tired of feral cats in your neighborhood? 1 neighbor has 10 cats living in their garage and there is a "Cat Coloney" nearby with about 20 They kill the baby wild animals, birds we tried to feed, many of our shrubs, and leave poop & urine smell everywhere. Don't wild animals have a right to live as much (or more) than all these cats? Yes, I like cats, but not like this! Any realistic suggestions? Had it in Fredericksburg, VA http://answers.ankylosing.org/96660/is-there-anyone-else-out-there-tired-of-feral-cats-in-your-neighborhood-1-neighbor-has-10-cats-living/ Tue, 19 Jul 2011 06:52:13 +0000 Asked by Jd 7 months ago http://answers.ankylosing.org/96660/is-there-anyone-else-out-there-tired-of-feral-cats-in-your-neighborhood-1-neighbor-has-10-cats-living/ I got a cat from the local Humane Society almost a year ago. It is a Turkish Angora mixed with something else. This cat seems to ignore me on my good AS days and is by my side on my bad days. I did some searching online and found some interesting stuff about how cats can heal or make a person feel better. Any other readers out there with a cat that helps you through the rough days? http://answers.ankylosing.org/96634/i-got-a-cat-from-the-local-humane-society-almost-a-year-ago-it-is-a-turkish-angora-mixed-with-something/ Tue, 19 Jul 2011 02:56:33 +0000 Asked by Jason Ferguson 7 months ago http://answers.ankylosing.org/96634/i-got-a-cat-from-the-local-humane-society-almost-a-year-ago-it-is-a-turkish-angora-mixed-with-something/ I just find out in Dec of 2009 that I had AS.... I was on Humira but this month they started me on Remicade the pain is so bad. I have a hard time breathing. I worry all the time will I be able to play with my grandkids, cause I'm 45 and I already have a hard time getting around. Does it get better over time? http://answers.ankylosing.org/96630/i-just-find-out-in-dec-of-2009-that-i-had-as-i-was-on-humira-but-this-month-they-started-me-on-remicade/ Tue, 19 Jul 2011 02:18:58 +0000 Asked by Lisa Todd 7 months ago http://answers.ankylosing.org/96630/i-just-find-out-in-dec-of-2009-that-i-had-as-i-was-on-humira-but-this-month-they-started-me-on-remicade/ Once you are diagnosed with early stages of Ankylosing Spondylitis...How long do you have mobility? I was only diagnosed a couple months ago and still have full mobility, just have sometimes nasty aches and pains. I am wondering how long before this changes. http://answers.ankylosing.org/96575/once-you-are-diagnosed-with-early-stages-of-ankylosing-spondylitishow-long-do-you-have-mobility/ Mon, 18 Jul 2011 18:40:27 +0000 Asked by Laura Buxton 7 months ago http://answers.ankylosing.org/96575/once-you-are-diagnosed-with-early-stages-of-ankylosing-spondylitishow-long-do-you-have-mobility/ I was diagnosed with Ankylosing Spondylitis in 2004. My Question is. Is there anyone else out there with this degenerative disease that experiences pain in the legs after walking short distances? http://answers.ankylosing.org/96514/i-was-diagnosed-with-ankylosing-spondylitis-in-2004-my-question-is-is-there-anyone-else-out-there-with/ Mon, 18 Jul 2011 14:10:27 +0000 Asked by Michael Candy 7 months ago http://answers.ankylosing.org/96514/i-was-diagnosed-with-ankylosing-spondylitis-in-2004-my-question-is-is-there-anyone-else-out-there-with/ Hi, when playing sport I need to tape my ankle but I think I have damaged my achillies tendon in the process, this was 4 months ago and doesn't seem to be getting any better, I tried RICE, Stair drops, rest.Now it is stopping me running all together, Its tender when i sqeeze it and gives me trouble first thing in the morning, its really anoying now. HELP? http://answers.ankylosing.org/96418/hi-when-playing-sport-i-need-to-tape-my-ankle-but-i-think-i-have-damaged-my-achillies-tendon-in-the/ Sun, 17 Jul 2011 22:27:23 +0000 Asked by Marko 7 months ago http://answers.ankylosing.org/96418/hi-when-playing-sport-i-need-to-tape-my-ankle-but-i-think-i-have-damaged-my-achillies-tendon-in-the/ Supplemental oxygen sometimes? One of the things I'm noticing more is that sometimes it is really difficult to get a deep breath. Between the ribcage not expanding well and the muscles all sore, sometimes I just cannot take a deep breath. I wonder if at times if my pulse oxygen is too low, and if a nice hit of oxygen wouldn't make things feel better in the short term. It would be a limited, band-aid solution I know .. . But I have to imagine it would help a bit. Has anyone tried this? http://answers.ankylosing.org/96387/supplemental-oxygen-sometimes/ Sun, 17 Jul 2011 21:20:38 +0000 Asked by Rose Bigham 7 months ago http://answers.ankylosing.org/96387/supplemental-oxygen-sometimes/ Is anyone tracking barometric pressure changes and resulting flares? I seem to have a superpower where if pressure changes are coming I curl into a fetal position and crash/sleep for 24 hours. I am trying to find a way to predict these events with an obvious alert/alarm. Is anyone doing this? What tools/products are helpful? Thanks! http://answers.ankylosing.org/96384/is-anyone-tracking-barometric-pressure-changes-and-resulting-flares-i-seem-to-have-a-superpower-where/ Sun, 17 Jul 2011 21:16:07 +0000 Asked by Rose Bigham 7 months ago http://answers.ankylosing.org/96384/is-anyone-tracking-barometric-pressure-changes-and-resulting-flares-i-seem-to-have-a-superpower-where/ Anyone have nausea with methotrexate INJECTION? I've been taking the injections after not being able to tolerate the oral pill for a few years now.. But over the course of the last few months (less then 12 but around sixish) i've been getting nauseous within minutes after administering the injection. It can last a few hours- last one lasted a couple days. Even get a "chemical" taste in the mouth. http://answers.ankylosing.org/96292/anyone-have-nausea-with-methotrexate-injection/ Sun, 17 Jul 2011 07:33:23 +0000 Asked by Gail Fetch Hengen 7 months ago http://answers.ankylosing.org/96292/anyone-have-nausea-with-methotrexate-injection/ I have been giving a lot of thought recently to why it's so important to have a diagnosis, and how I can articulate this to someone who doesn't seem to understand. It's important because it informs treatment, such as dealing with iritis, rib fusion, starch free diet, etc. However, it's important psychologically, to the person who suffers and to their family members. How do you go about explaining the latter to someone who isn't sick? Is there some way to help them to understand? http://answers.ankylosing.org/96230/i-have-been-giving-a-lot-of-thought-recently-to-why-its-so-important-to-have-a-diagnosis-and-how-i/ Sat, 16 Jul 2011 22:32:36 +0000 Asked by Amori99 7 months ago http://answers.ankylosing.org/96230/i-have-been-giving-a-lot-of-thought-recently-to-why-its-so-important-to-have-a-diagnosis-and-how-i/ Current drama... See below and any advice is appreciated! Thanks? http://answers.ankylosing.org/96092/current-drama-see-below-and-any-advice-is-appreciated-thanks/ Sat, 16 Jul 2011 03:20:34 +0000 Asked by Kristin 7 months ago http://answers.ankylosing.org/96092/current-drama-see-below-and-any-advice-is-appreciated-thanks/ I am so confused. I am HLA-B27 Positive. I have neck pain, herniated and degenerative disc, (hip, knee, elbow, shoulder, ankle and wrist pain). I am having trouble walking and cutting up my own food due to my knees and wrists. My doctor said its not AS because I have no joint damage or visible swelling. I am in pain constantly and my neck is basically deformed at this point. It leans so far forward it feels like I cant hold my head up. Doctor thought maybe lupus but ANA is negative. Please help? http://answers.ankylosing.org/96087/i-am-so-confused-i-am-hla-b27-positive-i-have-neck-pain-herniated-and-degenerative-disc-hip-knee/ Sat, 16 Jul 2011 02:21:01 +0000 Asked by Kourtenay 7 months ago http://answers.ankylosing.org/96087/i-am-so-confused-i-am-hla-b27-positive-i-have-neck-pain-herniated-and-degenerative-disc-hip-knee/ God i am having a serious bout of depression from this , i just can't cope anymore, i'm cranky and snapping with everyone and i just don't want to carry on... I'm of no use to anyone like this and there is no end to this stupid illness it is there? http://answers.ankylosing.org/96041/god-i-am-having-a-serious-bout-of-depression-from-this-i-just-cant-cope-anymore-im-cranky-and-snapping/ Fri, 15 Jul 2011 18:15:51 +0000 Asked by Sinead Hanrahan 7 months ago http://answers.ankylosing.org/96041/god-i-am-having-a-serious-bout-of-depression-from-this-i-just-cant-cope-anymore-im-cranky-and-snapping/ I think I can deal with years of this, but what kind of scares me is the possibility of my ribs fusing together later on. I am 39 years old. I have only had this for a year. I have had other things in my life before this. This is more consistently painful? http://answers.ankylosing.org/95941/i-think-i-can-deal-with-years-of-this-but-what-kind-of-scares-me-is-the-possibility-of-my-ribs-fusing/ Fri, 15 Jul 2011 05:30:49 +0000 Asked by Tina 7 months ago http://answers.ankylosing.org/95941/i-think-i-can-deal-with-years-of-this-but-what-kind-of-scares-me-is-the-possibility-of-my-ribs-fusing/ www.youtube.com/watch?v=j1aU-9cRg9g&feature=related i want to know how much "Ab Rocket" will be helpful for patients with ankylosing spondylitis? I am suffering from AS and i also need to spend times sitting on computer.Just saw it on tv and thinking of using it to stretch my back. I m not sure if it will be wise to go for these kind of stuffs or not....... http://answers.ankylosing.org/95770/a-hrefhttpwwwyoutubecomwatchvj1au-9crg9gfeaturerelated-targetblank-relnofollowwwwyoutubecomwatchvj1au-9crg9gfeaturerelateda/ Thu, 14 Jul 2011 17:08:52 +0000 Asked by Monjurul Karim 7 months ago http://answers.ankylosing.org/95770/a-hrefhttpwwwyoutubecomwatchvj1au-9crg9gfeaturerelated-targetblank-relnofollowwwwyoutubecomwatchvj1au-9crg9gfeaturerelateda/ So I know I need to calm down. Saw rheumy three days ago and had extensive blood work the same day. Got a message today from his office for a follow up appointment in September! Would the bloodwork be back that quickly? Which would lead me to think all was normal.....? Of course I can't get through to the office. Or would this just be a standard procedure. Opinions? http://answers.ankylosing.org/95748/so-i-know-i-need-to-calm-down-saw-rheumy-three-days-ago-and-had-extensive-blood-work-the-same-day-got/ Thu, 14 Jul 2011 15:38:19 +0000 Asked by Gullyabb 7 months ago http://answers.ankylosing.org/95748/so-i-know-i-need-to-calm-down-saw-rheumy-three-days-ago-and-had-extensive-blood-work-the-same-day-got/ Son who is 10 has meds that dont work, or are not working yet, he will get very weak in the legs?Does anyone else get this. Last night he couldnt get up off the floor. Legs shook and couldnt stand, today he is walking like a penguin, very stiff. Had muscle biopsy, all neg. Doesnt get this when his meds are working. Waiting for Remicade to kick in. Anyone get weakness in legs. Yes his Peeds Rheumy is aware. http://answers.ankylosing.org/95698/son-who-is-10-has-meds-that-dont-work-or-are-not-working-yet-he-will-get-very-weak-in-the-legs/ Wed, 13 Jul 2011 16:19:16 +0000 Asked by Beth Davis 7 months ago http://answers.ankylosing.org/95698/son-who-is-10-has-meds-that-dont-work-or-are-not-working-yet-he-will-get-very-weak-in-the-legs/ I was just recently diagnosed with AS and started taking Sulfasalazine and Etodolac a couple months ago. In just the last couple months I have noticed sudden weight gain, swollen hands and terrible headaches. Should I be concerned? http://answers.ankylosing.org/95678/i-was-just-recently-diagnosed-with-as-and-started-taking-sulfasalazine-and-etodolac-a-couple-months-ago/ Wed, 13 Jul 2011 15:25:05 +0000 Asked by Laura Buxton 7 months ago http://answers.ankylosing.org/95678/i-was-just-recently-diagnosed-with-as-and-started-taking-sulfasalazine-and-etodolac-a-couple-months-ago/ I feel like my own worse advocate! I had a follow up rhum app yesterday and feel like I failed in all of my goals. I took my notebook with questions and I got 2 questions answered and one was misunderstood. I did get the PT asked for, but only to discover that she only wrote it for just my shoulder. I thought I was very clear about wanting to build strength, stamina, flexibility, etc everywhere. When will I get it right? http://answers.ankylosing.org/95676/i-feel-like-my-own-worse-advocate-i-had-a-follow-up-rhum-app-yesterday-and-feel-like-i-failed-in-all/ Wed, 13 Jul 2011 15:09:56 +0000 Asked by Stacy 7 months ago http://answers.ankylosing.org/95676/i-feel-like-my-own-worse-advocate-i-had-a-follow-up-rhum-app-yesterday-and-feel-like-i-failed-in-all/ So we are subject to getting uveitis attacks, but after years of those I am now getting scleritis attacks. This week the doctor told me my pressures were up in the affected eye and now I am glaucoma suspect. Anyone else with these issues, and how do you deal with it? http://answers.ankylosing.org/95675/so-we-are-subject-to-getting-uveitis-attacks-but-after-years-of-those-i-am-now-getting-scleritis-attacks/ Wed, 13 Jul 2011 14:46:12 +0000 Asked by Rhonda Trimble 7 months ago http://answers.ankylosing.org/95675/so-we-are-subject-to-getting-uveitis-attacks-but-after-years-of-those-i-am-now-getting-scleritis-attacks/ How does one relieve muscle spasm? My back is going into spasm - right upper side - that locks me up and sends hot, shooting pain up my neck and down my arm. I've had one for 4 days now. Can't turn my head and the pain is enormous. What relieves this? It's new to me, so not sure what to do. http://answers.ankylosing.org/95670/how-does-one-relieve-muscle-spasm-my-back-is-going-into-spasm-right-upper-side-that-locks-me-up/ Wed, 13 Jul 2011 12:22:59 +0000 Asked by Sam 7 months ago http://answers.ankylosing.org/95670/how-does-one-relieve-muscle-spasm-my-back-is-going-into-spasm-right-upper-side-that-locks-me-up/ I have noticed that if I eat sweets, my pain is worse. I was told to look out for this by a friend that has lupus. I am still convinced that my re last infusion in 2009 might be one of the reasons i have this now. Grr? http://answers.ankylosing.org/95651/i-have-noticed-that-if-i-eat-sweets-my-pain-is-worse-i-was-told-to-look-out-for-this-by-a-friend-that/ Wed, 13 Jul 2011 04:33:42 +0000 Asked by Tina 7 months ago http://answers.ankylosing.org/95651/i-have-noticed-that-if-i-eat-sweets-my-pain-is-worse-i-was-told-to-look-out-for-this-by-a-friend-that/ How do you handle days like today. Today is ugly day with AS the drive into work miserable, the pain is not letting up even with VICODIN just pushing my way thru, I know we have storms moving in but today my attitude is BAD I just dont want to deal with it! I am tired of dealing with it, just need a little lift? http://answers.ankylosing.org/95613/how-do-you-handle-days-like-today-today-is-ugly-day-with-as-the-drive-into-work-miserable-the-pain/ Tue, 12 Jul 2011 14:26:58 +0000 Asked by Cindy Clark Barta 7 months ago http://answers.ankylosing.org/95613/how-do-you-handle-days-like-today-today-is-ugly-day-with-as-the-drive-into-work-miserable-the-pain/ My husband has AS. He is allergic to Motrin and Asprin. What is a good option for pain? He was diagnosed about 14 years ago. He has just dealt with it so far. http://answers.ankylosing.org/95551/my-husband-has-as-he-is-allergic-to-motrin-and-asprin-what-is-a-good-option-for-pain/ Mon, 11 Jul 2011 19:15:10 +0000 Asked by Tmblair 8 months ago http://answers.ankylosing.org/95551/my-husband-has-as-he-is-allergic-to-motrin-and-asprin-what-is-a-good-option-for-pain/ I can't get the excruciating pain in my feet to let up. I'm just exhausted from the pain. Is there any way to get permanent relief, any surgical options, etc. That can end the foot pain? http://answers.ankylosing.org/95482/i-cant-get-the-excruciating-pain-in-my-feet-to-let-up-im-just-exhausted-from-the-pain-is-there-any/ Sun, 10 Jul 2011 21:42:40 +0000 Asked by Amori99 8 months ago http://answers.ankylosing.org/95482/i-cant-get-the-excruciating-pain-in-my-feet-to-let-up-im-just-exhausted-from-the-pain-is-there-any/ Do Any of you take indomethacin (or have you previously)? I got it today because my insurance company said I need to try another non-steroidal med before they'll approve me starting on Enbrel. My pharmacist told me to make sure to take it with food and drink plenty of water. I did this, taking the pill after a fairly big lunch and after drinking a bunch of water, but I'm finding myself feeling very dizzy and wonky now. Is this normal? Will it go away? It is not making work very easy, haha! http://answers.ankylosing.org/95481/do-any-of-you-take-indomethacin-or-have-you-previously-i-got-it-today-because-my-insurance-company/ Sun, 10 Jul 2011 21:30:58 +0000 Asked by Lenore 8 months ago http://answers.ankylosing.org/95481/do-any-of-you-take-indomethacin-or-have-you-previously-i-got-it-today-because-my-insurance-company/ Hi,I was wondering if any of you have some of these symptoms and if so, which ones.I went to the ENT and they did a CT scan and said it was normal! It's on and off a few times a day: Burning in maxilla (upper mouth on left side) ,throat burning, ear burning, ear fullness, and I have a slightly swollen lymph node(right under my ear lobe). I am trying to figure out if this is part of my AS ir something else. I do have a little psoriasis on my scalp and the "fizzy bubbles" I've heard some mention? http://answers.ankylosing.org/95479/hii-was-wondering-if-any-of-you-have-some-of-these-symptoms-and-if-so-which-onesi-went-to-the-ent/ Sun, 10 Jul 2011 20:27:28 +0000 Asked by Shauna 8 months ago http://answers.ankylosing.org/95479/hii-was-wondering-if-any-of-you-have-some-of-these-symptoms-and-if-so-which-onesi-went-to-the-ent/ Does anyone get skin problems around the same time they are noticing a flare up? Or even during a flare. Like excessively dry skin and red rash especially around the eyes and face ? (not talking about the butterfly rash associated with lupus) My husband thinks it's me " stressing" about my pain, he could be right but I just want to see if I'm the only one. Thanks. http://answers.ankylosing.org/95454/does-anyone-get-skin-problems-around-the-same-time-they-are-noticing-a-flare-up-or-even-during-a-flare/ Sun, 10 Jul 2011 01:10:06 +0000 Asked by Megan Braunberger 8 months ago http://answers.ankylosing.org/95454/does-anyone-get-skin-problems-around-the-same-time-they-are-noticing-a-flare-up-or-even-during-a-flare/ I was remicade for about 3 years but had to switch to humira recently because my insurance no longer picks up for remicade and leaves me with over $500 out of pocket. I haven't found humira too effective, it feels like I'm at 60% of what I was on remicade. Has anyone had experience with the remicade assistance program? http://answers.ankylosing.org/95410/i-was-remicade-for-about-3-years-but-had-to-switch-to-humira-recently-because-my-insurance-no-longer/ Sat, 09 Jul 2011 05:29:14 +0000 Asked by Alex 8 months ago http://answers.ankylosing.org/95410/i-was-remicade-for-about-3-years-but-had-to-switch-to-humira-recently-because-my-insurance-no-longer/ Hi, my son is 10 and has been dx with Juv. Spondy but has alot of symptoms like an adult would have w/ AS. He took his 1st Remicade infusion and did well. But has any one moved to a drier state , like Arizona? We live I'n Florida w/ high humidity. Wondering if it helped anyone http://answers.ankylosing.org/95391/hi-my-son-is-10-and-has-been-dx-with-juv-spondy-but-has-alot-of-symptoms-like-an-adult-would-have-w/ Fri, 08 Jul 2011 17:07:59 +0000 Asked by Beth Davis 8 months ago http://answers.ankylosing.org/95391/hi-my-son-is-10-and-has-been-dx-with-juv-spondy-but-has-alot-of-symptoms-like-an-adult-would-have-w/ Just wanted to send hugs to all of you. Went to my GP today with a list of my symptoms and pictures of my nose sores. She's sending me tomorrow for the full gamut of blood work to rule out lupus, lyme disease etc. She also got me into see the invisible rheumy in 4 days! She said she still thinks it rheumatological, but perhaps not AS, maybe lupus. Regardless, I'm thrilled not to be left waiting any longer. She's also given me Celebrex to try? http://answers.ankylosing.org/95315/just-wanted-to-send-hugs-to-all-of-you-went-to-my-gp-today-with-a-list-of-my-symptoms-and-pictures-of/ Thu, 07 Jul 2011 19:50:21 +0000 Asked by Gullyabb 8 months ago http://answers.ankylosing.org/95315/just-wanted-to-send-hugs-to-all-of-you-went-to-my-gp-today-with-a-list-of-my-symptoms-and-pictures-of/ So, my doc just started me on Enbrel and keeping me on sulfazine - and my blood work has some things showing up on it that he wants to follow - red and white blood count things....what should I be concerned about? Any heads ups would be helpful. Thanks. http://answers.ankylosing.org/95313/so-my-doc-just-started-me-on-enbrel-and-keeping-me-on-sulfazine-and-my-blood-work-has-some-things/ Thu, 07 Jul 2011 18:51:55 +0000 Asked by Rachel Luterman 8 months ago http://answers.ankylosing.org/95313/so-my-doc-just-started-me-on-enbrel-and-keeping-me-on-sulfazine-and-my-blood-work-has-some-things/ Just curious, how many of you out there have Kaiser as your Health Insurance and how have they been treating you? Have you gone out for second opinions? What has and hasn't worked for you if you have Kaiser? http://answers.ankylosing.org/95279/just-curious-how-many-of-you-out-there-have-kaiser-as-your-health-insurance-and-how-have-they-been-treating/ Thu, 07 Jul 2011 08:57:22 +0000 Asked by Sasha 8 months ago http://answers.ankylosing.org/95279/just-curious-how-many-of-you-out-there-have-kaiser-as-your-health-insurance-and-how-have-they-been-treating/ Has anyone else tried Elavil (Amitriptyline)? My doctor started me on it three weeks ago to help with the anxiety and to help me sleep. She also said that it has been used for many years to treat nerve pain. I've noticed a big difference in both my mood and pain levels. I still have the usual stiffness and pain up and down the spine, but those annoying little aches and pains are gone. I would say that I feel better overall and it has helped with my energy levels. http://answers.ankylosing.org/95261/has-anyone-else-tried-elavil-amitriptyline/ Thu, 07 Jul 2011 05:51:33 +0000 Asked by Michael Rowley 8 months ago http://answers.ankylosing.org/95261/has-anyone-else-tried-elavil-amitriptyline/ When I see a medical professional, I take a piece of paper with my health information on it. It includes my name and address, a recent photo, all of my diagnoses, a list of all my meds with their dosages, and contact info for all of my doctors. It also includes emergency contact info. This helps when the doctor's assistant asks all those annoying questions before I'm allowed to see the doctor. After the first annoying question I simply hand over the paper? http://answers.ankylosing.org/95259/when-i-see-a-medical-professional-i-take-a-piece-of-paper-with-my-health-information-on-it-it-includes/ Thu, 07 Jul 2011 04:19:23 +0000 Asked by Stephen 8 months ago http://answers.ankylosing.org/95259/when-i-see-a-medical-professional-i-take-a-piece-of-paper-with-my-health-information-on-it-it-includes/ This page www.spondylitis.org/about/complications.aspx# has an illustration that shows the areas of inflammation associated with AS and their percent of patients with these complications. For example sacroiliac association is found in 100% of patients and is common. Wrist and finger association is found in 5% and is very rare. I love this illustration because it shows that all parts of the body can be affected by AS. My aches and pains are real and a product of my disease? http://answers.ankylosing.org/95258/this-page-a-hrefhttpwwwspondylitisorgaboutcomplicationsaspx-targetblank-relnofollowwwwspondylitisorgaboutcomplicationsaspxa/ Thu, 07 Jul 2011 04:09:00 +0000 Asked by Stephen 8 months ago http://answers.ankylosing.org/95258/this-page-a-hrefhttpwwwspondylitisorgaboutcomplicationsaspx-targetblank-relnofollowwwwspondylitisorgaboutcomplicationsaspxa/ I have had awful tenderness/pain in the bottom of my feet when I step off the bed in the morning and after sitting for a period of time. It can be very painful...but also goes away most of the time by walking. I looked on the web and found that it is a common symptom found with Ankylosing Spondylitis. Does anyone know a remedy or anything that may help alleviate this pain in my feet? http://answers.ankylosing.org/95257/i-have-had-awful-tendernesspain-in-the-bottom-of-my-feet-when-i-step-off-the-bed-in-the-morning-and/ Thu, 07 Jul 2011 03:56:57 +0000 Asked by Alleycat123 8 months ago http://answers.ankylosing.org/95257/i-have-had-awful-tendernesspain-in-the-bottom-of-my-feet-when-i-step-off-the-bed-in-the-morning-and/ I have been given the diagnosis that every ASer dreads...Ribcage fusion. I have lost 75% of my ribcage expansion and was told there is nothing that can be done. I was diagnosed with the severe form of AS that progresses very fast even with TNF's. Do any of you have any ideas or have you found anything that helps? I do the ribcage breathing excersizes and the heat, cold, heat packs. I see my rheumy tomorrow and I'm really scared at the outcome of the appt. Help Please! http://answers.ankylosing.org/95256/i-have-been-given-the-diagnosis-that-every-aser-dreadsribcage-fusion-i-have-lost-75-of-my-ribcage/ Thu, 07 Jul 2011 03:43:51 +0000 Asked by Jennifer 8 months ago http://answers.ankylosing.org/95256/i-have-been-given-the-diagnosis-that-every-aser-dreadsribcage-fusion-i-have-lost-75-of-my-ribcage/ Can anyone tell me the difference between AS and cervical spondylosis? I have read about that too in my research; I don't have joint pain but the pain is in my spine. http://answers.ankylosing.org/95252/can-anyone-tell-me-the-difference-between-as-and-cervical-spondylosis/ Thu, 07 Jul 2011 01:19:45 +0000 Asked by Paula 8 months ago http://answers.ankylosing.org/95252/can-anyone-tell-me-the-difference-between-as-and-cervical-spondylosis/ Going to see GP again tomorrow. Starting to feel like I'm annoying her. The rheumy isn't returning her calls. GP made the initial dx of AS, but has offered nothing but NSAIDs and wait. Meanwhile, the tinnitus, and buzzing in feet and hands has gotten worse. Pain in joints is often horrid. I'm at my breaking point. Looking for suggestions as to how to be taken more seriously by GP. Not sure anymore if this is AS... Wondering about seeing a neurologists. Suggestions? http://answers.ankylosing.org/95245/going-to-see-gp-again-tomorrow-starting-to-feel-like-im-annoying-her-the-rheumy-isnt-returning-her/ Wed, 06 Jul 2011 22:16:06 +0000 Asked by Gullyabb 8 months ago http://answers.ankylosing.org/95245/going-to-see-gp-again-tomorrow-starting-to-feel-like-im-annoying-her-the-rheumy-isnt-returning-her/ For those not finding success on biologics, or who are unable to afford them: Have you tried trental? This is a drug from the 1970s that makes red blood cells slipperier. It's called a blood flow enhancer. A friend has tried it with great success. It has similar benefits to the biologics but is not as powerful, but it has only mild side effects. Best of all it's a generic and cheap! Anyone tried trental? http://answers.ankylosing.org/95243/for-those-not-finding-success-on-biologics-or-who-are-unable-to-afford-them-have-you-tried-trental/ Wed, 06 Jul 2011 21:48:55 +0000 Asked by Stephen 8 months ago http://answers.ankylosing.org/95243/for-those-not-finding-success-on-biologics-or-who-are-unable-to-afford-them-have-you-tried-trental/ I have an appointment with Dr on Tuesday and I am hoping to get off TNF's for a while. I am currently on Humira and have been on Enbrel in the past and I feel that both medication are effecting me emotionally. I am keeping a journal and I am finding on day 2 or 3 of med cycle I get very depressed and overly sensitive. Has any one else found this? Anyone else not on TNF's what are you taking to help with AS? http://answers.ankylosing.org/95221/i-have-an-appointment-with-dr-on-tuesday-and-i-am-hoping-to-get-off-tnfs-for-a-while-i-am-currently/ Wed, 06 Jul 2011 13:53:01 +0000 Asked by Amy Arndt 8 months ago http://answers.ankylosing.org/95221/i-have-an-appointment-with-dr-on-tuesday-and-i-am-hoping-to-get-off-tnfs-for-a-while-i-am-currently/ Tools that help Track: I was wondering if anyone else uses any form of tracking to help follow patterns? I was on way to much pills so I made a wellness journal, filled with simple questions, a body chart of front and back to circle the pain areas, sleep / nap schedule, scale of pain, mood, stress, fatigue level, even weather icons to keep track of the weather. All in all at the end of 6 months I was able to stop about 6 types of meds & had an action plan to present to my MD's anyone else? http://answers.ankylosing.org/95180/tools-that-help-track-i-was-wondering-if-anyone-else-uses-any-form-of-tracking-to-help-follow-pattern/ Wed, 06 Jul 2011 08:46:29 +0000 Asked by Tammy Martin 8 months ago http://answers.ankylosing.org/95180/tools-that-help-track-i-was-wondering-if-anyone-else-uses-any-form-of-tracking-to-help-follow-pattern/ Why do I have severe ankle pain after a sprain in feb 2011? Pod said it might be torn ligament. It hurt when I elavate it. Also swell my whole foot and ankle? http://answers.ankylosing.org/95132/why-do-i-have-severe-ankle-pain-after-a-sprain-in-feb-2011/ Tue, 05 Jul 2011 23:29:24 +0000 Asked by Michelle Shelly Harper 8 months ago http://answers.ankylosing.org/95132/why-do-i-have-severe-ankle-pain-after-a-sprain-in-feb-2011/ Just when I think I have AS figured out I find another question to ask. I have been having jaw pain and tightness of muscles in the jaw. No other or previous injury. No change in drugs. Sometimes it feels like it is going to spasm. More painful in the morning. I have my next rheumy appt on the 25th of July. Anyone else with this? http://answers.ankylosing.org/95115/just-when-i-think-i-have-as-figured-out-i-find-another-question-to-ask-i-have-been-having-jaw-pain-and/ Tue, 05 Jul 2011 21:34:22 +0000 Asked by Jason Ferguson 8 months ago http://answers.ankylosing.org/95115/just-when-i-think-i-have-as-figured-out-i-find-another-question-to-ask-i-have-been-having-jaw-pain-and/ Anyone gotten pregnant since diagnosed with AS? Did your symptoms get better during pregnancy? http://answers.ankylosing.org/94988/anyone-gotten-pregnant-since-diagnosed-with-as/ Tue, 05 Jul 2011 05:02:13 +0000 Asked by Jodi 8 months ago http://answers.ankylosing.org/94988/anyone-gotten-pregnant-since-diagnosed-with-as/ What is your sciatic nerve pain like? When does it happen the most? Do you think it can be caused by inflammation of the si joints? I can actually feel it start directly below my si joint on one side and will shoot through the buttock and sometimes down the leg. I also have more "vague" pains in my leg and foot throughout the day in the same areas, but the pain is not sharp...Anyone else? http://answers.ankylosing.org/94968/what-is-your-sciatic-nerve-pain-like-when-does-it-happen-the-most-do-you-think-it-can-be-caused-by/ Tue, 05 Jul 2011 00:11:59 +0000 Asked by Jodi 8 months ago http://answers.ankylosing.org/94968/what-is-your-sciatic-nerve-pain-like-when-does-it-happen-the-most-do-you-think-it-can-be-caused-by/ Barometric agony. There's a thunder storm brewing here, and I have been in agony all day. Both hips are extremely painful. Headache, ears buzzing non-stop. Anyone else find the weather makes symptoms worse? http://answers.ankylosing.org/94967/barometric-agony-theres-a-thunder-storm-brewing-here-and-i-have-been-in-agony-all-day-both-hips-are/ Mon, 04 Jul 2011 23:48:22 +0000 Asked by Gullyabb 8 months ago http://answers.ankylosing.org/94967/barometric-agony-theres-a-thunder-storm-brewing-here-and-i-have-been-in-agony-all-day-both-hips-are/ Has anyone switched from Enbrel to Simponi? I'm interested in learning more about the medication. My sense is that the Enbrel is not keeping pace with my disease. http://answers.ankylosing.org/94928/has-anyone-switched-from-enbrel-to-simponi/ Mon, 04 Jul 2011 16:26:31 +0000 Asked by Amori99 8 months ago http://answers.ankylosing.org/94928/has-anyone-switched-from-enbrel-to-simponi/ Has anyone experienced reduced pain/symptoms wearing a copper bracelet? (those of you in the early stages) http://answers.ankylosing.org/94901/has-anyone-experienced-reduced-painsymptoms-wearing-a-copper-bracelet/ Mon, 04 Jul 2011 11:50:37 +0000 Asked by Hanna 8 months ago http://answers.ankylosing.org/94901/has-anyone-experienced-reduced-painsymptoms-wearing-a-copper-bracelet/ I got this email from my doctor today, he made me go in on Friday for an Emergency CT scan with contrast: The CT scan of your neck shows numerous small lymph nodes in the neck. They said the size of the nodes are not remarkable but the number of nodes are. I think the next step is to get a biopsy of the nodes. I will contact Head and Neck surgery on Tuesday so that they may evaluate you ASAP for a biopsy. Has anyone had this, he is checking for cancers as well? http://answers.ankylosing.org/94855/i-got-this-email-from-my-doctor-today-he-made-me-go-in-on-friday-for-an-emergency-ct-scan-with-contrast/ Mon, 04 Jul 2011 04:31:43 +0000 Asked by Sasha 8 months ago http://answers.ankylosing.org/94855/i-got-this-email-from-my-doctor-today-he-made-me-go-in-on-friday-for-an-emergency-ct-scan-with-contrast/ Looking for Spondylitis 101 materials for parents, partners, and/or friends of a loved one with a form of Spondy. Does such a thing exist? I am looking for a beginner's guide to supporting a Spondy patient. Some of the content out there is so overhelming, even for us patients! Anyone have suggestions on where to start? http://answers.ankylosing.org/94777/looking-for-spondylitis-101-materials-for-parents-partners-andor-friends-of-a-loved-one-with-a-form/ Sun, 03 Jul 2011 07:11:41 +0000 Asked by Rose Bigham 8 months ago http://answers.ankylosing.org/94777/looking-for-spondylitis-101-materials-for-parents-partners-andor-friends-of-a-loved-one-with-a-form/ How bad are hands affected? Im aspiring to become a surgeon so this worries me a lot http://answers.ankylosing.org/94767/how-bad-are-hands-affected/ Sun, 03 Jul 2011 04:41:47 +0000 Asked by Jesus22 8 months ago http://answers.ankylosing.org/94767/how-bad-are-hands-affected/ Hello Everyone! I just thought I would tell everyone I had a good day today. A little stiff and sore this morning but for the most part I was almost pain free today. Got some light yard work done and put the tent up with my boys. Nobody else but the members of this site could begin to understand how big of a deal this is. Anyone else feeling good today? http://answers.ankylosing.org/94738/hello-everyone-i-just-thought-i-would-tell-everyone-i-had-a-good-day-today-a-little-stiff-and-sore/ Sat, 02 Jul 2011 21:53:48 +0000 Asked by Jason Ferguson 8 months ago http://answers.ankylosing.org/94738/hello-everyone-i-just-thought-i-would-tell-everyone-i-had-a-good-day-today-a-little-stiff-and-sore/ Has anyone had a pain pump implanted? Does it work better than all of the freaking pills everyday? http://answers.ankylosing.org/94715/has-anyone-had-a-pain-pump-implanted/ Sat, 02 Jul 2011 18:35:16 +0000 Asked by As Sufferer 8 months ago http://answers.ankylosing.org/94715/has-anyone-had-a-pain-pump-implanted/ Does anyone feel like they are taking a TNF but don't feel any different but the tests say the inflammation levels are down? http://answers.ankylosing.org/94675/does-anyone-feel-like-they-are-taking-a-tnf-but-dont-feel-any-different-but-the-tests-say-the-inflammation/ Sat, 02 Jul 2011 09:30:25 +0000 Asked by Carmen 8 months ago http://answers.ankylosing.org/94675/does-anyone-feel-like-they-are-taking-a-tnf-but-dont-feel-any-different-but-the-tests-say-the-inflammation/ Hi, does spondylitis really gets like this or can it be prevented with actual treatments? Here is the image: tinyurl.com/64ruuqm Im 20 years old, been diagnosed with undiff spondylitis, im currently taking NSAIDs and my rheumy says im not getting treated anti TNF therapy until he is sure that i have this disease. Im scared progression of the disease will be more agressive if i dont take the anti TNF. http://answers.ankylosing.org/94666/hi-does-spondylitis-really-gets-like-this-or-can-it-be-prevented-with-actual-treatments/ Sat, 02 Jul 2011 07:34:06 +0000 Asked by Jesus22 8 months ago http://answers.ankylosing.org/94666/hi-does-spondylitis-really-gets-like-this-or-can-it-be-prevented-with-actual-treatments/ My Humira pens showed up today......... If I could only get past the warnings! Is there anyone else out there that is getting ready to start TNF therapy and scared to death? http://answers.ankylosing.org/94665/my-humira-pens-showed-up-today-if-i-could-only-get-past-the-warnings-is-there-anyone-else-out/ Sat, 02 Jul 2011 06:58:04 +0000 Asked by Michael Rowley 8 months ago http://answers.ankylosing.org/94665/my-humira-pens-showed-up-today-if-i-could-only-get-past-the-warnings-is-there-anyone-else-out/ I just found out today I'm Coming off enbrel and going on remicade. Do you guys like remicade? http://answers.ankylosing.org/94652/i-just-found-out-today-im-coming-off-enbrel-and-going-on-remicade-do-you-guys-like-remicade/ Sat, 02 Jul 2011 03:41:59 +0000 Asked by Zander Dawson 8 months ago http://answers.ankylosing.org/94652/i-just-found-out-today-im-coming-off-enbrel-and-going-on-remicade-do-you-guys-like-remicade/ I have been diagnosed with AS since 1984, and have been tested positive for HLA-B27. I have several fused joints, but the first area that fused was my Sternum which caused me to lose all my chest expansion. I had a bad motorcycle accident when I was about 18, in which I ran into the back of a flatbed truck. The flat edge of the flatbed hit me squarely in the chest, then I went under the truck. Has anyone else had an accident that they feel may have activated their AS? http://answers.ankylosing.org/94648/i-have-been-diagnosed-with-as-since-1984-and-have-been-tested-positive-for-hla-b27-i-have-several-fused/ Sat, 02 Jul 2011 03:16:14 +0000 Asked by Gary Purdy 8 months ago http://answers.ankylosing.org/94648/i-have-been-diagnosed-with-as-since-1984-and-have-been-tested-positive-for-hla-b27-i-have-several-fused/ I don't have a question. I am curious about this disease. These are my same symptoms. I am seeing a rehumatologist next month and am gathering info? http://answers.ankylosing.org/94614/i-dont-have-a-question-i-am-curious-about-this-disease-these-are-my-same-symptoms-i-am-seeing-a-rehumatologist/ Fri, 01 Jul 2011 19:25:03 +0000 Asked by Paula 8 months ago http://answers.ankylosing.org/94614/i-dont-have-a-question-i-am-curious-about-this-disease-these-are-my-same-symptoms-i-am-seeing-a-rehumatologist/ I've been diagnosed with undiff spondyloarthritis. I've been on NSAIDs for years but the last 2 years, my pain has increased exponentially. I'm not on Methotrexate & Celebrex. Recently went off Prednisone. My SED rates are LOW ... But I'm always in pain in different areas of my body with swelling and stiffness. The Dr won't go any further on RX protocols unless SED rates are eleveated but I'm miserable on a daily basis. Any suggestions or has anyone else experienced something similar? http://answers.ankylosing.org/94577/ive-been-diagnosed-with-undiff-spondyloarthritis-ive-been-on-nsaids-for-years-but-the-last-2-years/ Fri, 01 Jul 2011 13:41:10 +0000 Asked by Marie 8 months ago http://answers.ankylosing.org/94577/ive-been-diagnosed-with-undiff-spondyloarthritis-ive-been-on-nsaids-for-years-but-the-last-2-years/ So I started on diclofenac didn't work. Sulfasalazine didn't work. Humira didn't work. Now I am on enbrel and I hqve been for two months, and I am in the worst pain of my life. My doctor says if enbrel doesnt work in a month I will have to move to transfusions. I need some reassurances that I can find meds that work? http://answers.ankylosing.org/94538/so-i-started-on-diclofenac-didnt-work-sulfasalazine-didnt-work-humira-didnt-work-now-i-am-on-enbrel/ Fri, 01 Jul 2011 04:50:04 +0000 Asked by Zander Dawson 8 months ago http://answers.ankylosing.org/94538/so-i-started-on-diclofenac-didnt-work-sulfasalazine-didnt-work-humira-didnt-work-now-i-am-on-enbrel/ I just signed up for ankylosing.org time for my first question. I have been in a two month flare up does anyone else have prolonged flare ups? http://answers.ankylosing.org/94536/i-just-signed-up-for-ankylosingorg-time-for-my-first-question-i-have-been-in-a-two-month-flare-up-does/ Fri, 01 Jul 2011 04:43:51 +0000 Asked by Zander Dawson 8 months ago http://answers.ankylosing.org/94536/i-just-signed-up-for-ankylosingorg-time-for-my-first-question-i-have-been-in-a-two-month-flare-up-does/ I know I've been asking a million questions lately, but here is another one. Do any of you experience tingling in your extremeties? My left hand/fingers/elbow/palms are all tingling. I will say I am typing quite a bit tonight and so that may have something to do with it. I know it is not B12-deficient neuropathy b/c those levels are plenty high, so I am just curious if anyone else has this issue. Thanks! http://answers.ankylosing.org/94524/i-know-ive-been-asking-a-million-questions-lately-but-here-is-another-one-do-any-of-you-experience/ Fri, 01 Jul 2011 02:59:45 +0000 Asked by Lenore 8 months ago http://answers.ankylosing.org/94524/i-know-ive-been-asking-a-million-questions-lately-but-here-is-another-one-do-any-of-you-experience/ MRI results - no evidence of erosive changes, si joint spaces are maintained. "No MRI findings to suggest spondyloarthropathy" But "Linear high signal region within the posterior ilium on the left side near the sacroiliac joint is felt to be a benign vascular lesion of no significant consequence" I have a lot of left hip pain. Anybody heard of 'vascular lesions?' Still waiting for dx.......AAAAAACK http://answers.ankylosing.org/94500/mri-results-no-evidence-of-erosive-changes-si-joint-spaces-are-maintained-no-mri-findings-to-suggest/ Thu, 30 Jun 2011 21:28:06 +0000 Asked by Gullyabb 8 months ago http://answers.ankylosing.org/94500/mri-results-no-evidence-of-erosive-changes-si-joint-spaces-are-maintained-no-mri-findings-to-suggest/ OK. The strangest thing just happened. I went to the Orthopedic Surgeon, and his PA seemed to doubt that I even have AS. The PA for the surgeon asked what made me think I have AS, and I chuckled. Then I realized he was serious, and I tried to explain my treatment history. He then said it's probably not likely that I have AS! My Rheumy has been treating me for several years, an I have a family history three generations of Dx? http://answers.ankylosing.org/94491/ok-the-strangest-thing-just-happened-i-went-to-the-orthopedic-surgeon-and-his-pa-seemed-to-doubt-that/ Thu, 30 Jun 2011 18:40:15 +0000 Asked by Amori99 8 months ago http://answers.ankylosing.org/94491/ok-the-strangest-thing-just-happened-i-went-to-the-orthopedic-surgeon-and-his-pa-seemed-to-doubt-that/ Does anyone have any suggestions as to how to explain AS and similar conditions to friends without sounding like you are looking for pity? I am having issues with friends (that I thought were close) seeming to think that what is going on with me is similar to them "waking up after sleeping the wrong way." They seem baffled when I ask for certain accomodations and understanding (such as "I will try, but I can't promise I will be there" or venues without a lot of stairs). Advice is appreciated! http://answers.ankylosing.org/94418/does-anyone-have-any-suggestions-as-to-how-to-explain-as-and-similar-conditions-to-friends-without-sounding/ Thu, 30 Jun 2011 03:22:30 +0000 Asked by Lenore 8 months ago http://answers.ankylosing.org/94418/does-anyone-have-any-suggestions-as-to-how-to-explain-as-and-similar-conditions-to-friends-without-sounding/ What if any, vitamins are you taking along with your TFN's. I recently started taking Enbrel, and just got over my first cold. I would like to take something to help boost my immune system. Any suggestions would be helpful. Thank you? http://answers.ankylosing.org/94405/what-if-any-vitamins-are-you-taking-along-with-your-tfns-i-recently-started-taking-enbrel-and-just/ Thu, 30 Jun 2011 00:19:52 +0000 Asked by Alice Zeller 8 months ago http://answers.ankylosing.org/94405/what-if-any-vitamins-are-you-taking-along-with-your-tfns-i-recently-started-taking-enbrel-and-just/ Just got approved for disability and it only took two and a half months! Didn't even require independent doctors exam! I've got to bring my rheumatologist a thank you present because what made the difference was his promptness in responding to the requests for info. Any one who wants advice on how to do it, post me a question? http://answers.ankylosing.org/94349/just-got-approved-for-disability-and-it-only-took-two-and-a-half-months-didnt-even-require-independent/ Wed, 29 Jun 2011 12:35:45 +0000 Asked by Jerry Grynspan 8 months ago http://answers.ankylosing.org/94349/just-got-approved-for-disability-and-it-only-took-two-and-a-half-months-didnt-even-require-independent/ I was diagnosed with AS after a lower back fusion was performed in 1984, since then, may areas of my body has become fused. My chest expansion is virtually zero, which creates shortness of breath, and a distinctive bulge just below my sternum when I take a deep breath. Does any one suffer this same symptom . What helps you thru this painful experience? http://answers.ankylosing.org/94328/i-was-diagnosed-with-as-after-a-lower-back-fusion-was-performed-in-1984-since-then-may-areas-of-my/ Wed, 29 Jun 2011 08:35:19 +0000 Asked by Gary Purdy 8 months ago http://answers.ankylosing.org/94328/i-was-diagnosed-with-as-after-a-lower-back-fusion-was-performed-in-1984-since-then-may-areas-of-my/ Does anyone have an answer on how they handle the lack of energy they experience with AS? http://answers.ankylosing.org/94317/does-anyone-have-an-answer-on-how-they-handle-the-lack-of-energy-they-experience-with-as/ Wed, 29 Jun 2011 06:29:31 +0000 Asked by Gary Purdy 8 months ago http://answers.ankylosing.org/94317/does-anyone-have-an-answer-on-how-they-handle-the-lack-of-energy-they-experience-with-as/ Has anyone had success with anything in regard to twitches and muscle spasms on their faces. AS, Mine started in my left eye about 3 years ago. Doctor said ...quite common ...nothing to worry about. Now the facial jerks are happening down the left side to the mouth. It really depresses me? http://answers.ankylosing.org/94312/has-anyone-had-success-with-anything-in-regard-to-twitches-and-muscle-spasms-on-their-faces-as-mine/ Wed, 29 Jun 2011 05:12:55 +0000 Asked by Jean Perry 8 months ago http://answers.ankylosing.org/94312/has-anyone-had-success-with-anything-in-regard-to-twitches-and-muscle-spasms-on-their-faces-as-mine/ Does anyone have recommendations on what pain meds to take?I kinda felt attacked when I said I was on long acting Oxycotin 2x a day and Percocet when needed.I've been on Motrin 800mg every 4 hours, was on Nabutone and on Tramodol. Any suggestions so I don't have to be on narcotics? http://answers.ankylosing.org/94272/does-anyone-have-recommendations-on-what-pain-meds-to-take/ Tue, 28 Jun 2011 23:44:06 +0000 Asked by Sasha 8 months ago http://answers.ankylosing.org/94272/does-anyone-have-recommendations-on-what-pain-meds-to-take/ I am taking 20 mg of Oxycontin in the morning and 20 mg of Oxycontin at night for the pain right now. It's not working as well as it had in the past, but I haven't started the MTX or TNF's yet, can't until 7/25, so controlling the pain.I take 10mg Percocet for the breakthrough pain.When I signed the pain med contract they said I should take 2 Senokot a night (veggie based laxative) to help with the constipation.I have to take 3 or 4 and twice a day to go? http://answers.ankylosing.org/94201/i-am-taking-20-mg-of-oxycontin-in-the-morning-and-20-mg-of-oxycontin-at-night-for-the-pain-right-now/ Tue, 28 Jun 2011 09:48:26 +0000 Asked by Sasha 8 months ago http://answers.ankylosing.org/94201/i-am-taking-20-mg-of-oxycontin-in-the-morning-and-20-mg-of-oxycontin-at-night-for-the-pain-right-now/ Right now they haven't started MTX or TNF's I have a phone appt on Wed, still don't know if I should try MTX or TNF's, which one should I push for?I won't be able to start anything until July 25 when my mother gets back from her Alaskan Cruise, I'm not comfortable nor is she for me to start something without her being here in case there are horrible side effects as I have a dog to take care of (that's going to be hard enough having to walk him). http://answers.ankylosing.org/94200/right-now-they-havent-started-mtx-or-tnfs-i-have-a-phone-appt-on-wed-still-dont-know-if-i-should/ Tue, 28 Jun 2011 09:45:12 +0000 Asked by Sasha 8 months ago http://answers.ankylosing.org/94200/right-now-they-havent-started-mtx-or-tnfs-i-have-a-phone-appt-on-wed-still-dont-know-if-i-should/ Does anyone use Remicade? http://answers.ankylosing.org/94161/does-anyone-use-remicade/ Tue, 28 Jun 2011 03:00:53 +0000 Asked by Bonnie Breneman 8 months ago http://answers.ankylosing.org/94161/does-anyone-use-remicade/ Now for some positiveness, we all know what we lost having arthritis, curious, what is the biggest blessing? I'll be the first to answer, not physically having my own children, yes a little sad, but OMG I ended up with the most special boy in the world and the neatest friend who gave me the privilege of becoming him mom! Yeah, sappy! Dare you to look deep and find the one thing! Tam http://answers.ankylosing.org/94155/now-for-some-positiveness-we-all-know-what-we-lost-having-arthritis-curious-what-is-the-biggest-blessin/ Tue, 28 Jun 2011 01:58:32 +0000 Asked by Tammy Martin 8 months ago http://answers.ankylosing.org/94155/now-for-some-positiveness-we-all-know-what-we-lost-having-arthritis-curious-what-is-the-biggest-blessin/ So here I go again, another night of sciatic nerve pain and I'm driving 600 + miles at some point in the day, will try and hit the site up if I'm not too pooped at the end of the line. Hit me up if any of you are following twitter @miqmak_martin this is how I found this site and you'll find many other supporters out there as well as great links. It's clear we're all more than "just aches and pains" we all stories that may help others. Any idea how to numb SI joints while drivin? http://answers.ankylosing.org/94048/so-here-i-go-again-another-night-of-sciatic-nerve-pain-and-im-driving-600-miles-at-some-point-in/ Mon, 27 Jun 2011 07:10:22 +0000 Asked by Tammy Martin 8 months ago http://answers.ankylosing.org/94048/so-here-i-go-again-another-night-of-sciatic-nerve-pain-and-im-driving-600-miles-at-some-point-in/ I have an AS from past 2 months i have pain in knee and hips . How i free from the pain to continue my job. Is there any possibility of complete cure in early stage of these disease. Please tell me all things which you know about the AS? http://answers.ankylosing.org/94045/i-have-an-as-from-past-2-months-i-have-pain-in-knee-and-hips-how-i-free-from-the-pain-to-continue-my/ Mon, 27 Jun 2011 06:28:53 +0000 Asked by Satish Kumar 8 months ago http://answers.ankylosing.org/94045/i-have-an-as-from-past-2-months-i-have-pain-in-knee-and-hips-how-i-free-from-the-pain-to-continue-my/ Bruce my 10 year has Juvenile Spondylitis w/ Enthesitis related arthritis and Ulcerative Colitis. Been on MTX which made him foggy. Enbrel which only worked for 8 weeks and exacerbated the UC. Now were on Oriencia since Feb and doesnt work, Aug looking at Remicade, any one have bad painin shin/knee? No sleep for him, too http://answers.ankylosing.org/93980/bruce-my-10-year-has-juvenile-spondylitis-w-enthesitis-related-arthritis-and-ulcerative-colitis-been/ Sun, 26 Jun 2011 15:42:59 +0000 Asked by Beth Davis 8 months ago http://answers.ankylosing.org/93980/bruce-my-10-year-has-juvenile-spondylitis-w-enthesitis-related-arthritis-and-ulcerative-colitis-been/ Head count, wondering who has been on Simponi the longest? Looking for long term side effects. Response is well but still not sure what to expect as impact down the road. Also, anyone on another DMARDs while in it? My answer; 16 months now http://answers.ankylosing.org/93977/head-count-wondering-who-has-been-on-simponi-the-longest-looking-for-long-term-side-effects-response/ Sun, 26 Jun 2011 15:28:15 +0000 Asked by Tammy Martin 8 months ago http://answers.ankylosing.org/93977/head-count-wondering-who-has-been-on-simponi-the-longest-looking-for-long-term-side-effects-response/ Wondering how many face sleepless nights but still have to face their daily lives... Been to work countless times not having a wink of sleep. Grueling yes, but necessary. Any thoughts? http://answers.ankylosing.org/93971/wondering-how-many-face-sleepless-nights-but-still-have-to-face-their-daily-lives-been-to-work-countless/ Sun, 26 Jun 2011 14:10:59 +0000 Asked by Tammy Martin 8 months ago http://answers.ankylosing.org/93971/wondering-how-many-face-sleepless-nights-but-still-have-to-face-their-daily-lives-been-to-work-countless/ Had liver biopsy, results are "liver congestion" and specimen being sent to Mayo Clinic for further interpretation. Freaking out. Could AS cause liver inflammation or damage? Online it says this could be heart related. I have fast heart rate but heart doc did tests that show no problems. Help?!? http://answers.ankylosing.org/93905/had-liver-biopsy-results-are-liver-congestion-and-specimen-being-sent-to-mayo-clinic-for-further-interpretation/ Sat, 25 Jun 2011 23:30:00 +0000 Asked by Kristin 8 months ago http://answers.ankylosing.org/93905/had-liver-biopsy-results-are-liver-congestion-and-specimen-being-sent-to-mayo-clinic-for-further-interpretation/ This is one for the ladies....does anybody else have irregular and very painful periods? I'm on the 3rd of the month already and am so physically and mentally drained i feel i'm cracking! http://answers.ankylosing.org/93872/this-is-one-for-the-ladiesdoes-anybody-else-have-irregular-and-very-painful-periods/ Sat, 25 Jun 2011 15:33:41 +0000 Asked by Sinead Hanrahan 8 months ago http://answers.ankylosing.org/93872/this-is-one-for-the-ladiesdoes-anybody-else-have-irregular-and-very-painful-periods/ Just a note of warning, I was called for regular breast screening yesterday, and like most machines, it is pure & utter torture when you have such limited movement as I have in back & neck. I am just one big ache today.The nurse was so upset she advised me not to go again,as too painful? http://answers.ankylosing.org/93863/just-a-note-of-warning-i-was-called-for-regular-breast-screening-yesterday-and-like-most-machines/ Sat, 25 Jun 2011 13:58:53 +0000 Asked by Jackie Aitchison 8 months ago http://answers.ankylosing.org/93863/just-a-note-of-warning-i-was-called-for-regular-breast-screening-yesterday-and-like-most-machines/ My dr. Just prescribed cymbalta to help manage my pain and emotional status while battling this disease. Anyone else taking cymbalta. If so, what type of side effects have you had and how is it working for you. I've read some forums online where many people say it has really helped them except the side effects are tough for the first 2-3 weeks? http://answers.ankylosing.org/93862/my-dr-just-prescribed-cymbalta-to-help-manage-my-pain-and-emotional-status-while-battling-this-disease/ Sat, 25 Jun 2011 13:42:40 +0000 Asked by Karen 8 months ago http://answers.ankylosing.org/93862/my-dr-just-prescribed-cymbalta-to-help-manage-my-pain-and-emotional-status-while-battling-this-disease/ Having a minor meltdown this morning. Had 3 drinks last night which is a lot for me. Felt pain in my hips and knees as soon as I went to bed. Woke up this morning to find several large sore blisters inside my nose. That with my dark eyelids and I'm really starting to wonder about lupus. If I had to pick, I'm still hoping its AS instead of lupus. Just looking for some support. Not on any meds except Aleve at the moment and it's certainly not cutting it? http://answers.ankylosing.org/93854/having-a-minor-meltdown-this-morning-had-3-drinks-last-night-which-is-a-lot-for-me-felt-pain-in-my/ Sat, 25 Jun 2011 12:59:53 +0000 Asked by Gullyabb 8 months ago http://answers.ankylosing.org/93854/having-a-minor-meltdown-this-morning-had-3-drinks-last-night-which-is-a-lot-for-me-felt-pain-in-my/ My daughter is 34 and just diagnosed with Ankylosing Spondylitis. The Dr told her she would eventually be in a wheel chair and that it would affect her ability to breath. She tried Enbrel but developed an infection and had to go off of it. She will go back on it eventually. Does anyone know how rapidly this disease progresses, And does Humeria cause less side effects? I'd appreciate any education I can get on this terrible disease! Thanks! http://answers.ankylosing.org/93825/my-daughter-is-34-and-just-diagnosed-with-ankylosing-spondylitis-the-dr-told-her-she-would-eventually/ Sat, 25 Jun 2011 05:31:06 +0000 Asked by Melicia Gonzalez 8 months ago http://answers.ankylosing.org/93825/my-daughter-is-34-and-just-diagnosed-with-ankylosing-spondylitis-the-dr-told-her-she-would-eventually/ Anyone else sit on their kids floaty rings while lounging at the pool? I blow it up, lay a towel over it and enjoy a more comfortable stay at the pool with my kids. They're a buck at the dollar store! http://answers.ankylosing.org/93814/anyone-else-sit-on-their-kids-floaty-rings-while-lounging-at-the-pool/ Sat, 25 Jun 2011 02:59:25 +0000 Asked by Jodi 8 months ago http://answers.ankylosing.org/93814/anyone-else-sit-on-their-kids-floaty-rings-while-lounging-at-the-pool/ Good news! I don't have Iritis. Bad news, there is an abnormality of my right optic nerve, and I have terribly dry eyes. It's always something isn't it? I guess it's better than Iritis :] http://answers.ankylosing.org/93710/good-news-i-dont-have-iritis-bad-news-there-is-an-abnormality-of-my-right-optic-nerve-and-i-have/ Fri, 24 Jun 2011 04:10:04 +0000 Asked by Amori99 8 months ago http://answers.ankylosing.org/93710/good-news-i-dont-have-iritis-bad-news-there-is-an-abnormality-of-my-right-optic-nerve-and-i-have/ So it's been a long wait. Had my MRI, still waiting. Today I woke up to notice that my eyelids are almost chocolate brown. I've always had dark circles under my eyes when tired, but this is new. It looks similar to when I was pregnant. And I'm certainly not pregnant.... Missing a few parts. Anyone else have dark eyelids. Starting to wonder about lupus? http://answers.ankylosing.org/93680/so-its-been-a-long-wait-had-my-mri-still-waiting-today-i-woke-up-to-notice-that-my-eyelids-are-almost/ Thu, 23 Jun 2011 22:17:53 +0000 Asked by Gullyabb 8 months ago http://answers.ankylosing.org/93680/so-its-been-a-long-wait-had-my-mri-still-waiting-today-i-woke-up-to-notice-that-my-eyelids-are-almost/ My SI joints are severely affected by AS to the point of making it difficult for me to sit and walk. I also have a lot of sciatic like pain I assume is from the inflamed SI joints. Does anyone else have this issue? If so, what test did you have to confirm it? MRI, xray, CT scan...? Also, what is working for you for pain and also to make sitting a little easier? I've tried just about everything. http://answers.ankylosing.org/93632/my-si-joints-are-severely-affected-by-as-to-the-point-of-making-it-difficult-for-me-to-sit-and-walk/ Thu, 23 Jun 2011 13:55:10 +0000 Asked by Marji Page 8 months ago http://answers.ankylosing.org/93632/my-si-joints-are-severely-affected-by-as-to-the-point-of-making-it-difficult-for-me-to-sit-and-walk/ I am starting Enbrel on Friday for AS or Undiff Spondy. I am in the middle of a bit of a flare at the moment already, so am just curious. Did anyone have any issues/side effects when starting Enbrel? I have to work that day and am trying to figure out whether I should just take the day off in advance. Any and all advice is appreciated! http://answers.ankylosing.org/93613/i-am-starting-enbrel-on-friday-for-as-or-undiff-spondy-i-am-in-the-middle-of-a-bit-of-a-flare-at-the/ Thu, 23 Jun 2011 08:23:03 +0000 Asked by Lenore 8 months ago http://answers.ankylosing.org/93613/i-am-starting-enbrel-on-friday-for-as-or-undiff-spondy-i-am-in-the-middle-of-a-bit-of-a-flare-at-the/ Does anyone else get blister-like bumps on their fingers/elbows that are sensitive or even painful to the touch? My rheumatologist thinks they are dry skin patches, but they go away the day I take my Humira and come back a day or two before my next injection... http://answers.ankylosing.org/93596/does-anyone-else-get-blister-like-bumps-on-their-fingerselbows-that-are-sensitive-or-even-painful-to/ Thu, 23 Jun 2011 04:25:25 +0000 Asked by Kathryn 8 months ago http://answers.ankylosing.org/93596/does-anyone-else-get-blister-like-bumps-on-their-fingerselbows-that-are-sensitive-or-even-painful-to/ So I was asking all of you guys about TNF's and after a half an hour phone call with my doc, he's ordered blood work, urine and possibly another MRI of my SI joint since it didn't show it was done and maybe a CT of my neck... He wants to start me off with MTX now instead of jumping to TNF's because there's more risks that come with TNF's, what do you all think? Has MTX worked for you? Did you start with it and then add TNF's? http://answers.ankylosing.org/93594/so-i-was-asking-all-of-you-guys-about-tnfs-and-after-a-half-an-hour-phone-call-with-my-doc-hes-ordered/ Thu, 23 Jun 2011 04:14:48 +0000 Asked by Sasha 8 months ago http://answers.ankylosing.org/93594/so-i-was-asking-all-of-you-guys-about-tnfs-and-after-a-half-an-hour-phone-call-with-my-doc-hes-ordered/ Please help, I have an appt at noon with my Rhem, what TNF is the best, to start out with? I already have headaches and nausea, I see pros and cons for Enbrel, Humira and Remicade and that's what he's considering, any help at all, PLEASE I'M DESPERATE RIGHT NOW. Been up for a day researching this haven't gone to sleep and in a lot of pain. http://answers.ankylosing.org/93522/please-help-i-have-an-appt-at-noon-with-my-rhem-what-tnf-is-the-best-to-start-out-with/ Wed, 22 Jun 2011 12:38:09 +0000 Asked by Sasha 8 months ago http://answers.ankylosing.org/93522/please-help-i-have-an-appt-at-noon-with-my-rhem-what-tnf-is-the-best-to-start-out-with/ This was in an email from my Rhem: The diagnosis of Ankylosing Spondylitis is not definite until there is objective evidence of spine inflammation/damage due to inflammation in the correct clinical setting. You do not have objective evidence of spine inflammation but you have subjective evidence/suggestive evidence of a spondyloarthropathy( of which Ankylosing Spondylitis is included). So what do I do with that now? I have a phone appt with him tomorrow afternoon, he wants to start me on TNF's. http://answers.ankylosing.org/93475/this-was-in-an-email-from-my-rhem-the-diagnosis-of-ankylosing-spondylitis-is-not-definite-until-there/ Wed, 22 Jun 2011 01:29:32 +0000 Asked by Sasha 8 months ago http://answers.ankylosing.org/93475/this-was-in-an-email-from-my-rhem-the-diagnosis-of-ankylosing-spondylitis-is-not-definite-until-there/ Normally I feel like the Tin Man in The Wizard of Oz before Dorothy oils him. Sometimes, though, I feel like the Scarecrow right after he gets down, all wobbly. Anybody else? http://answers.ankylosing.org/93467/normally-i-feel-like-the-tin-man-in-the-wizard-of-oz-before-dorothy-oils-him-sometimes-though-i-feel/ Tue, 21 Jun 2011 22:54:13 +0000 Asked by Stephen 8 months ago http://answers.ankylosing.org/93467/normally-i-feel-like-the-tin-man-in-the-wizard-of-oz-before-dorothy-oils-him-sometimes-though-i-feel/ Ive been so lucky for a few years I could barley function and one day after trying to move my girlfriends furniture I tripped on a rug. It felt like hot shooting pain in my leg where the nerve was pinched. After that about a week later my AS has gone into remission. Ive felt an incling of it since and but nothing like I know it can be. I can only hope that all of us get a break like this and try to enjoy life when we do. Here's hoping it never come's back? http://answers.ankylosing.org/93449/ive-been-so-lucky-for-a-few-years-i-could-barley-function-and-one-day-after-trying-to-move-my-girlfriends/ Tue, 21 Jun 2011 19:26:04 +0000 Asked by Ben Lewman 8 months ago http://answers.ankylosing.org/93449/ive-been-so-lucky-for-a-few-years-i-could-barley-function-and-one-day-after-trying-to-move-my-girlfriends/ 1000 MEMBERS WAHOOOO! I can't help but think that the more exposure we can get and the more education we can share about this disease the more help we will get? http://answers.ankylosing.org/93448/1000-members-wahoooo-i-cant-help-but-think-that-the-more-exposure-we-can-get-and-the-more-education/ Tue, 21 Jun 2011 19:21:28 +0000 Asked by Zorina Dawn 8 months ago http://answers.ankylosing.org/93448/1000-members-wahoooo-i-cant-help-but-think-that-the-more-exposure-we-can-get-and-the-more-education/ We're up to 999 members now. Will we reach 1,000 today? http://answers.ankylosing.org/93438/were-up-to-999-members-now-will-we-reach-1000-today/ Tue, 21 Jun 2011 17:53:06 +0000 Asked by Jeffrey Ritter 8 months ago http://answers.ankylosing.org/93438/were-up-to-999-members-now-will-we-reach-1000-today/ I have had pain in my jaw, a sore on the inside of my cheek, and a sore throat, all only on the right side, off and on for about a week or two. Have any of you had a similar issue related to your AS, or should I see a doc for it as a separate issue? http://answers.ankylosing.org/93434/i-have-had-pain-in-my-jaw-a-sore-on-the-inside-of-my-cheek-and-a-sore-throat-all-only-on-the-right/ Tue, 21 Jun 2011 16:24:19 +0000 Asked by Lenore 8 months ago http://answers.ankylosing.org/93434/i-have-had-pain-in-my-jaw-a-sore-on-the-inside-of-my-cheek-and-a-sore-throat-all-only-on-the-right/ I FINALLY got a diagnosis today from my rheumy (who I swear thought I was crazy until he saw my MRI reports) of most likely AS but possibly undifferentiated spondyloarthropathy. I start Enbrel on Friday and am crossing my fingers that it does the trick, finally! Can anyone give me any advice as to what to expect from it? Also, do any of you use massage therapy as a supplement to medications at all? If so, does it work? http://answers.ankylosing.org/93377/i-finally-got-a-diagnosis-today-from-my-rheumy-who-i-swear-thought-i-was-crazy-until-he-saw-my-mri-reports/ Tue, 21 Jun 2011 03:31:59 +0000 Asked by Lenore 8 months ago http://answers.ankylosing.org/93377/i-finally-got-a-diagnosis-today-from-my-rheumy-who-i-swear-thought-i-was-crazy-until-he-saw-my-mri-reports/ Has anyone had privacy issues about AS and working? http://answers.ankylosing.org/93372/has-anyone-had-privacy-issues-about-as-and-working/ Tue, 21 Jun 2011 02:26:16 +0000 Asked by Zorina Dawn 8 months ago http://answers.ankylosing.org/93372/has-anyone-had-privacy-issues-about-as-and-working/ Hi everyone, just having a bad day, need cheering up! Aching and in pain, trying not to take time off work sick as being threatened with 'capability' procedings! Just feeling a bit low.. So anyone got any good jokes? http://answers.ankylosing.org/93294/hi-everyone-just-having-a-bad-day-need-cheering-up-aching-and-in-pain-trying-not-to-take-time-off/ Mon, 20 Jun 2011 13:07:12 +0000 Asked by Kentishbelle 8 months ago http://answers.ankylosing.org/93294/hi-everyone-just-having-a-bad-day-need-cheering-up-aching-and-in-pain-trying-not-to-take-time-off/ Is anyone here from Brisbane or even just QLD Australia? Is there an AS support network that you know of? Thanks http://answers.ankylosing.org/93282/is-anyone-here-from-brisbane-or-even-just-qld-australia-is-there-an-as-support-network-that-you-know/ Mon, 20 Jun 2011 12:12:31 +0000 Asked by Megan Braunberger 8 months ago http://answers.ankylosing.org/93282/is-anyone-here-from-brisbane-or-even-just-qld-australia-is-there-an-as-support-network-that-you-know/ Lately I noticed that a lot of noise bothers my ears. I'm not sure if it's at all related to AS or it's just me. Anyone else have this problem? http://answers.ankylosing.org/93121/lately-i-noticed-that-a-lot-of-noise-bothers-my-ears-im-not-sure-if-its-at-all-related-to-as-or-its/ Sun, 19 Jun 2011 05:35:13 +0000 Asked by Anna Blaszkiewicz 8 months ago http://answers.ankylosing.org/93121/lately-i-noticed-that-a-lot-of-noise-bothers-my-ears-im-not-sure-if-its-at-all-related-to-as-or-its/ So my Rhem emailed me and said I have hemangiomas, have you had that as a diagnosis? He wants to start me on TNF blockers, what would you suggest as the best one? I get very nauseous and dizzy right now so I don't know what's causing that and I have to take Phenegran and Meclazine. I'd love and appreciate any feedback. Thanks! http://answers.ankylosing.org/93096/so-my-rhem-emailed-me-and-said-i-have-hemangiomas-have-you-had-that-as-a-diagnosis-he-wants-to-start/ Sat, 18 Jun 2011 23:01:38 +0000 Asked by Sasha 8 months ago http://answers.ankylosing.org/93096/so-my-rhem-emailed-me-and-said-i-have-hemangiomas-have-you-had-that-as-a-diagnosis-he-wants-to-start/ OK. I need a little feedback about Iritis symptoms. How did it first present? What are your present symptoms? What can you tell me about the progression? http://answers.ankylosing.org/93077/ok-i-need-a-little-feedback-about-iritis-symptoms-how-did-it-first-present-what-are-your-present-symptom/ Sat, 18 Jun 2011 19:15:10 +0000 Asked by Amori99 8 months ago http://answers.ankylosing.org/93077/ok-i-need-a-little-feedback-about-iritis-symptoms-how-did-it-first-present-what-are-your-present-symptom/ Any one know of any good doctors in the san diego area? http://answers.ankylosing.org/92996/any-one-know-of-any-good-doctors-in-the-san-diego-area/ Sat, 18 Jun 2011 05:01:53 +0000 Asked by Kelly 8 months ago http://answers.ankylosing.org/92996/any-one-know-of-any-good-doctors-in-the-san-diego-area/ Are there any medications with minimal side effects? I have tried a very strict diet, yoga, and herbs but i am afraid that is not enough.. I am scared to take medication though. Any thoughts? http://answers.ankylosing.org/92995/are-there-any-medications-with-minimal-side-effects/ Sat, 18 Jun 2011 04:51:21 +0000 Asked by Kelly 8 months ago http://answers.ankylosing.org/92995/are-there-any-medications-with-minimal-side-effects/ How many of you with AS feel cold most of the time? I have noticed that I'm often cold and wearing a fleece when others are in T-Shirts and I have AS.. Just wondering if this in common In AS sufferers.. http://answers.ankylosing.org/92909/how-many-of-you-with-as-feel-cold-most-of-the-time/ Fri, 17 Jun 2011 13:07:17 +0000 Asked by Neil Mcdonald 8 months ago http://answers.ankylosing.org/92909/how-many-of-you-with-as-feel-cold-most-of-the-time/ My doctor referred me to see a Neurologist and I am going to see her July 11th to go over my symptoms and medication. I told her that I believe my headaches are from the neck pain and I think the muscle relaxant that I am on, baclofen, may be causing the headaches. I have another appt on July 13th to have botox injections in the back of my head to help stop the headaches, as they start pretty bad and develop into migraines for days, has anyone else had this problem, this treatment? http://answers.ankylosing.org/92898/my-doctor-referred-me-to-see-a-neurologist-and-i-am-going-to-see-her-july-11th-to-go-over-my-symptoms/ Fri, 17 Jun 2011 11:39:58 +0000 Asked by Sasha 8 months ago http://answers.ankylosing.org/92898/my-doctor-referred-me-to-see-a-neurologist-and-i-am-going-to-see-her-july-11th-to-go-over-my-symptoms/ Could anyone with Fibromyalgia explain any difficulties with waking up in the morning? http://answers.ankylosing.org/92868/could-anyone-with-fibromyalgia-explain-any-difficulties-with-waking-up-in-the-morning/ Fri, 17 Jun 2011 07:22:04 +0000 Asked by Jessie 8 months ago http://answers.ankylosing.org/92868/could-anyone-with-fibromyalgia-explain-any-difficulties-with-waking-up-in-the-morning/ How does AS affect you in the morning when you wake up? http://answers.ankylosing.org/92867/how-does-as-affect-you-in-the-morning-when-you-wake-up/ Fri, 17 Jun 2011 07:20:14 +0000 Asked by Jessie 8 months ago http://answers.ankylosing.org/92867/how-does-as-affect-you-in-the-morning-when-you-wake-up/ I feel inflammation in my urinary tract when i do not drink water for 8 to 10 hours..i was normal before uti but after i had uti it happens although it cured i do not have uti but feel inflammation ,,i can not bear inflammation after 8 to 10 hours,,why does it happen? http://answers.ankylosing.org/92838/i-feel-inflammation-in-my-urinary-tract-when-i-do-not-drink-water-for-8-to-10-hoursi-was-normal-before/ Fri, 17 Jun 2011 00:51:00 +0000 Asked by Jasmin 8 months ago http://answers.ankylosing.org/92838/i-feel-inflammation-in-my-urinary-tract-when-i-do-not-drink-water-for-8-to-10-hoursi-was-normal-before/ Following up on anyone using Restasis to suppress iritis flares. It's completely halted my chronic iritis (which I had even while on Humira) from the moment that I started. I sincerely didn't think it would work, but loved being proved wrong. How about anyone else? http://answers.ankylosing.org/92830/following-up-on-anyone-using-restasis-to-suppress-iritis-flares-its-completely-halted-my-chronic-iritis/ Thu, 16 Jun 2011 22:17:14 +0000 Asked by Chapps 8 months ago http://answers.ankylosing.org/92830/following-up-on-anyone-using-restasis-to-suppress-iritis-flares-its-completely-halted-my-chronic-iritis/ How many of you are on anti depressants due to the emotional stress of this disease? http://answers.ankylosing.org/92822/how-many-of-you-are-on-anti-depressants-due-to-the-emotional-stress-of-this-disease/ Thu, 16 Jun 2011 20:13:06 +0000 Asked by Karen 8 months ago http://answers.ankylosing.org/92822/how-many-of-you-are-on-anti-depressants-due-to-the-emotional-stress-of-this-disease/ Is there anyone here living in the houston/galveston texas area living with undiff./ankylosing? http://answers.ankylosing.org/92808/is-there-anyone-here-living-in-the-houstongalveston-texas-area-living-with-undiffankylosing/ Thu, 16 Jun 2011 18:06:20 +0000 Asked by Karen 8 months ago http://answers.ankylosing.org/92808/is-there-anyone-here-living-in-the-houstongalveston-texas-area-living-with-undiffankylosing/ My diagnosis has been upgraded from Undiff to Ank. Spondy. I was wondering if anyone who is techy savey might know of an Android app that can be used to track daily pain and medications . I cannot make one, but is hoping that there is something out there that can be used? http://answers.ankylosing.org/92806/my-diagnosis-has-been-upgraded-from-undiff-to-ank-spondy-i-was-wondering-if-anyone-who-is-techy-savey/ Thu, 16 Jun 2011 17:40:15 +0000 Asked by Alice Zeller 8 months ago http://answers.ankylosing.org/92806/my-diagnosis-has-been-upgraded-from-undiff-to-ank-spondy-i-was-wondering-if-anyone-who-is-techy-savey/ Is there anyone with AS who lives in London, UK? I have never met another person with AS. I wanted to join the local NASS group but was told by the physio that I am not capable of doing so at the moment as any exercise at all causes me alot of pain. http://answers.ankylosing.org/92784/is-there-anyone-with-as-who-lives-in-london-uk/ Thu, 16 Jun 2011 15:06:58 +0000 Asked by Carrie 8 months ago http://answers.ankylosing.org/92784/is-there-anyone-with-as-who-lives-in-london-uk/ Probably a dumb question.... I'm going for an MRI on Monday. If I stop my anti-inflammatories now and suffer through the next few days, would that 'show' more on the MRI? If there's no swelling, or edema on the MRI I'm afraid I'll still be waiting for someone to tell me what's going on. If there's swelling in the SI joint, then with everything else, it's a no brainer. Thanks http://answers.ankylosing.org/92768/probably-a-dumb-question-im-going-for-an-mri-on-monday-if-i-stop-my-anti-inflammatories-now-and/ Thu, 16 Jun 2011 10:57:45 +0000 Asked by Gullyabb 8 months ago http://answers.ankylosing.org/92768/probably-a-dumb-question-im-going-for-an-mri-on-monday-if-i-stop-my-anti-inflammatories-now-and/ I have a cyst in the thoracic area of my spine. That sounds pretty serious to me, but my doctors seem to think it's no big deal. It's the size of a walnut. How can that not be a big deal? I'm so frustrated. I feel like the doctors aren't really very concerned about the management of my disease. They don't seem to even be willing to think about the problems I have. http://answers.ankylosing.org/92733/i-have-a-cyst-in-the-thoracic-area-of-my-spine-that-sounds-pretty-serious-to-me-but-my-doctors-seem/ Thu, 16 Jun 2011 02:43:15 +0000 Asked by Amori99 8 months ago http://answers.ankylosing.org/92733/i-have-a-cyst-in-the-thoracic-area-of-my-spine-that-sounds-pretty-serious-to-me-but-my-doctors-seem/ MRI Results today, Degenerative Lumbar Spine worse at right L5-S1, mid thoracic vertebral hemangioma, stenosis, foraminal narrowing, disc bulge, decrease T1 signal showing red marrow, hyperintensity, C spine lordosis, anterolisthesis. Has anyone had anything that sounds familiar? He said there was no inflammation shown, just degeneration, bulging discs and hemangioma...has anyone had this result from and MRI before? No inflammation on MRI but ESR, C-Reactive=inflammation in blood tests. http://answers.ankylosing.org/92723/mri-results-today-degenerative-lumbar-spine-worse-at-right-l5-s1-mid-thoracic-vertebral-hemangioma/ Thu, 16 Jun 2011 00:31:25 +0000 Asked by Sasha 8 months ago http://answers.ankylosing.org/92723/mri-results-today-degenerative-lumbar-spine-worse-at-right-l5-s1-mid-thoracic-vertebral-hemangioma/ How are you feeling today? I really do care and would love to hear from you. :) http://answers.ankylosing.org/92589/how-are-you-feeling-today/ Wed, 15 Jun 2011 03:14:27 +0000 Asked by Kat Carlstrom 8 months ago http://answers.ankylosing.org/92589/how-are-you-feeling-today/ Was dx by dr with AS. Rheumy said it was hip bursitis before he even looked at me. Waiting for an MRI and new rheumy. With strong family history of AS, it's not a huge surprise that I would have it. Yesterday, when I was sitting down, I closed my eyes, and instantly got dizzy. It hasn't gone away and I've been feeling mildly seasick ever since. Add that to the ringing in my ears I've had for weeks, I'm starting to wonder what else could be going on. Any thoughts? http://answers.ankylosing.org/92567/was-dx-by-dr-with-as-rheumy-said-it-was-hip-bursitis-before-he-even-looked-at-me-waiting-for-an-mri/ Tue, 14 Jun 2011 21:36:22 +0000 Asked by Gullyabb 8 months ago http://answers.ankylosing.org/92567/was-dx-by-dr-with-as-rheumy-said-it-was-hip-bursitis-before-he-even-looked-at-me-waiting-for-an-mri/ I have been having shortness of breath for several months now. I had an EKG, chest Xrays, and a pulmonary test done. They all came back good. I then had a CT scan of my lungs last week. The results showed several noduals (spelling) in both lungs. I take 25mg of methotrexate a week. Has anyone else had this happen to them? http://answers.ankylosing.org/92514/i-have-been-having-shortness-of-breath-for-several-months-now-i-had-an-ekg-chest-xrays-and-a-pulmonary/ Tue, 14 Jun 2011 16:14:45 +0000 Asked by Jason Ferguson 8 months ago http://answers.ankylosing.org/92514/i-have-been-having-shortness-of-breath-for-several-months-now-i-had-an-ekg-chest-xrays-and-a-pulmonary/ Wondering if anyone else has problems using household chemicals such as comet, 409, kaboom, ect. I have started to notice on cleaning day that I am at my worst for pain. With AS being an auto-immune disease it makes sense that the chemicals could be a contributing factor? http://answers.ankylosing.org/92476/wondering-if-anyone-else-has-problems-using-household-chemicals-such-as-comet-409-kaboom-ect-i-have/ Tue, 14 Jun 2011 10:28:59 +0000 Asked by Terry Eldred 8 months ago http://answers.ankylosing.org/92476/wondering-if-anyone-else-has-problems-using-household-chemicals-such-as-comet-409-kaboom-ect-i-have/ I am moving to a colder climate, as I cannot stand the heat. I am wondering if anyone has issues with the arthritis and cold weather? http://answers.ankylosing.org/92452/i-am-moving-to-a-colder-climate-as-i-cannot-stand-the-heat-i-am-wondering-if-anyone-has-issues-with/ Tue, 14 Jun 2011 06:11:56 +0000 Asked by Tricia Carsley 8 months ago http://answers.ankylosing.org/92452/i-am-moving-to-a-colder-climate-as-i-cannot-stand-the-heat-i-am-wondering-if-anyone-has-issues-with/ To Jessica Farrell... Funny I have AS and my name is Farrell too, maybe related lol Joanne? http://answers.ankylosing.org/92451/to-jessica-farrell-funny-i-have-as-and-my-name-is-farrell-too-maybe-related-lol-joanne/ Tue, 14 Jun 2011 05:45:06 +0000 Asked by Joanne Cosentini 8 months ago http://answers.ankylosing.org/92451/to-jessica-farrell-funny-i-have-as-and-my-name-is-farrell-too-maybe-related-lol-joanne/ I'm on 15 mg of Morophine 2x a day, 5 mgPercocet 2 pills 4x a day and Muscle Relaxers 3x a day but the Morophine doesn't seem to be working and the Percocet lasts shorter than it did. I have a phone appt with my doc tomorrow, should I increase the MG of Morophine, I'm going to increase the percocet from 5mg to 10mg, and they're considering Oxycontin instead of the Morophine, any suggestions? http://answers.ankylosing.org/92437/im-on-15-mg-of-morophine-2x-a-day-5-mgpercocet-2-pills-4x-a-day-and-muscle-relaxers-3x-a-day-but-the/ Tue, 14 Jun 2011 04:20:23 +0000 Asked by Sasha 8 months ago http://answers.ankylosing.org/92437/im-on-15-mg-of-morophine-2x-a-day-5-mgpercocet-2-pills-4x-a-day-and-muscle-relaxers-3x-a-day-but-the/ RIB PAIN Does anyone have any meaningful way of dealing with the ache in your ribs? I get through about half the day (typically) without much pain and then it starts to ache like i've gone a round in the ring with Tyson. Other than drugs, has anyone found anything that helps allieviate these annoying symptoms. Sometimes it HURTS and it's actual pain but much of the time it's just an ache, a heaviness like i've been squished! http://answers.ankylosing.org/92258/rib-pain-does-anyone-have-any-meaningful-way-of-dealing-with-the-ache-in-your-ribs/ Mon, 13 Jun 2011 18:49:27 +0000 Asked by Lindsay Cairns 9 months ago http://answers.ankylosing.org/92258/rib-pain-does-anyone-have-any-meaningful-way-of-dealing-with-the-ache-in-your-ribs/ I'm going in for a second MRI tomorrow where they have to inject contrast for my cervical and throasic spine, it's going to be open, them having to put a big brace on me and strapping me down to the table so I don't move made me have a panic attack and just break down crying, I have been a wreck all day today, they gave me valium for before the MRI but I can't seem to calm my nerves, can anyone help or does anyone have any suggestions? I'd really appreciate them :( http://answers.ankylosing.org/91356/im-going-in-for-a-second-mri-tomorrow-where-they-have-to-inject-contrast-for-my-cervical-and-throasic/ Mon, 13 Jun 2011 01:11:41 +0000 Asked by Sasha 9 months ago http://answers.ankylosing.org/91356/im-going-in-for-a-second-mri-tomorrow-where-they-have-to-inject-contrast-for-my-cervical-and-throasic/ I had pneumonia a year ago they said i had collapst lung i was verry week for a long time but i am getting aech under right rib find it uncomforting lying down can this be scaring? http://answers.ankylosing.org/91027/i-had-pneumonia-a-year-ago-they-said-i-had-collapst-lung-i-was-verry-week-for-a-long-time-but-i-am-getting/ Sun, 12 Jun 2011 12:59:45 +0000 Asked by Wendy James 9 months ago http://answers.ankylosing.org/91027/i-had-pneumonia-a-year-ago-they-said-i-had-collapst-lung-i-was-verry-week-for-a-long-time-but-i-am-getting/ Please could someone explain if you wish to talk with someone on here is there a way to do this im new to this site an cant work this out. Thanks? http://answers.ankylosing.org/90317/please-could-someone-explain-if-you-wish-to-talk-with-someone-on-here-is-there-a-way-to-do-this-im-new/ Sat, 11 Jun 2011 18:20:21 +0000 Asked by Jessie 9 months ago http://answers.ankylosing.org/90317/please-could-someone-explain-if-you-wish-to-talk-with-someone-on-here-is-there-a-way-to-do-this-im-new/ My husband has AS and is on NASIDs. He has been doing pretty good lately and tries to cut back on the pills when he can (they upset his stomach and he doesn't want to be dependent on them). Today he is having one of the worst flare ups he has had in quite a while - it is in his shoulder and it is debilitating. He has been doing yoga twice a week since Jan and he thinks this flare up is from the yoga. I thought yoga would be great for him but it seems like sometimes it makes things worse? http://answers.ankylosing.org/90295/my-husband-has-as-and-is-on-nasids-he-has-been-doing-pretty-good-lately-and-tries-to-cut-back-on-the/ Sat, 11 Jun 2011 13:57:11 +0000 Asked by Tobi 9 months ago http://answers.ankylosing.org/90295/my-husband-has-as-and-is-on-nasids-he-has-been-doing-pretty-good-lately-and-tries-to-cut-back-on-the/ What do you do for the pain when you're at home and sitting down like watching TV or reading? What do you do in bed to help the pain? I can't lay flat so that's not even an issue but when I do on my side my hip hurts, my chest has started to hurt and not to be graphic but my nipple on that side has started to hurt, and if I'm on the side too long that hand/arm goes numb. What heating packs have you found work for you? Hand held massager recommendations? http://answers.ankylosing.org/90266/what-do-you-do-for-the-pain-when-youre-at-home-and-sitting-down-like-watching-tv-or-reading-what-do/ Sat, 11 Jun 2011 05:15:48 +0000 Asked by Sasha 9 months ago http://answers.ankylosing.org/90266/what-do-you-do-for-the-pain-when-youre-at-home-and-sitting-down-like-watching-tv-or-reading-what-do/ Does anyone else have problems with inflammation of the vocal chords and throat. It makes swallowing difficult and causes change in my voice. It happens to me every so often and I am wondering if AS inflammation can be anywhere in your body, including the throat? http://answers.ankylosing.org/90248/does-anyone-else-have-problems-with-inflammation-of-the-vocal-chords-and-throat-it-makes-swallowing/ Sat, 11 Jun 2011 00:39:46 +0000 Asked by Natalie 9 months ago http://answers.ankylosing.org/90248/does-anyone-else-have-problems-with-inflammation-of-the-vocal-chords-and-throat-it-makes-swallowing/ Are there other symptoms of uveitis other than red eye. I had an episode a few weeks back when my eye became extremely sensative and painfull while in the sun it started to sting, water streamed out and i ended up holding my hand over my eye (only one had this reaction) for the whole day. I could not keep my eye open. Recovered in a few days? http://answers.ankylosing.org/90211/are-there-other-symptoms-of-uveitis-other-than-red-eye-i-had-an-episode-a-few-weeks-back-when-my-eye/ Fri, 10 Jun 2011 17:35:11 +0000 Asked by Jessie 9 months ago http://answers.ankylosing.org/90211/are-there-other-symptoms-of-uveitis-other-than-red-eye-i-had-an-episode-a-few-weeks-back-when-my-eye/ Do any of you ladies have endometriosis?. http://answers.ankylosing.org/90202/do-any-of-you-ladies-have-endometriosis/ Fri, 10 Jun 2011 15:55:50 +0000 Asked by Jessie 9 months ago http://answers.ankylosing.org/90202/do-any-of-you-ladies-have-endometriosis/ Just took my 4th shot yesterday, and this morning I have woken to very little pain upon getting out of bed! This is the first time in many months, I am almost afraid to mention it, in case it stops! I still have pain in hands, feet, neck etc, but it is tolerable. Is there something else I should ask my Rheumy to use? I see him on Tuesday. I have Undiff Spondy, negative HBLA. Thanks! http://answers.ankylosing.org/90179/just-took-my-4th-shot-yesterday-and-this-morning-i-have-woken-to-very-little-pain-upon-getting-out-of/ Fri, 10 Jun 2011 11:57:42 +0000 Asked by Alice Zeller 9 months ago http://answers.ankylosing.org/90179/just-took-my-4th-shot-yesterday-and-this-morning-i-have-woken-to-very-little-pain-upon-getting-out-of/ Just wondering how others treat or handle their rib pain. My ribs on the right side are flaring up now on top of everything else. It hurts to breath, pain is pretty strong. Can also tell my newly diagnosed asthma is acting up too. Been wheezing off & on since early morning. I've never really got a good awnser from my rhuemy how to deal w/this rib pain, he just said to try bio freeze and that doesn't help. Sorry for gripping just very uncomfterble? http://answers.ankylosing.org/90140/just-wondering-how-others-treat-or-handle-their-rib-pain-my-ribs-on-the-right-side-are-flaring-up-now/ Fri, 10 Jun 2011 02:28:45 +0000 Asked by Kimberly 9 months ago http://answers.ankylosing.org/90140/just-wondering-how-others-treat-or-handle-their-rib-pain-my-ribs-on-the-right-side-are-flaring-up-now/ Just wanted to break up my pity party tonight by listing some random things for which I'm grateful at this very minute: -that my clematis is climbing nicely up the trellis I built last Fall -that the kids are sleeping and the house is quiet -that I had tea with a good friend today -that my dh called from work to say goodnight. Care to add your list? http://answers.ankylosing.org/90139/just-wanted-to-break-up-my-pity-party-tonight-by-listing-some-random-things-for-which-im-grateful-at/ Fri, 10 Jun 2011 01:46:03 +0000 Asked by Gullyabb 9 months ago http://answers.ankylosing.org/90139/just-wanted-to-break-up-my-pity-party-tonight-by-listing-some-random-things-for-which-im-grateful-at/ I don't feel like the Methotrexate I'm taking is working for my AS symptoms (been on it for a year). I also take Simponi which I don't think works that great. I want to get off the Methotrexate all together, but I feel like my doctor is going to recommend upping the dose. (3 tabs 2.5MG once a week, currently) Does anyone else feel this way? When you do take Methotrexate, and if it works for you, how long does it take after you take it for you to feel relief? http://answers.ankylosing.org/90102/i-dont-feel-like-the-methotrexate-im-taking-is-working-for-my-as-symptoms-been-on-it-for-a-year/ Thu, 09 Jun 2011 18:47:59 +0000 Asked by Dan 9 months ago http://answers.ankylosing.org/90102/i-dont-feel-like-the-methotrexate-im-taking-is-working-for-my-as-symptoms-been-on-it-for-a-year/ Does AS cause muscle spasm that diazapam or a similar muscle relaxant is used to treat this? http://answers.ankylosing.org/90048/does-as-cause-muscle-spasm-that-diazapam-or-a-similar-muscle-relaxant-is-used-to-treat-this/ Thu, 09 Jun 2011 08:31:27 +0000 Asked by Julie 9 months ago http://answers.ankylosing.org/90048/does-as-cause-muscle-spasm-that-diazapam-or-a-similar-muscle-relaxant-is-used-to-treat-this/ How do palpitations relate to AS if at all.lie a fluttery feeling in the chest? http://answers.ankylosing.org/90043/how-do-palpitations-relate-to-as-if-at-alllie-a-fluttery-feeling-in-the-chest/ Thu, 09 Jun 2011 08:04:46 +0000 Asked by Jessie 9 months ago http://answers.ankylosing.org/90043/how-do-palpitations-relate-to-as-if-at-alllie-a-fluttery-feeling-in-the-chest/ How many of you deal with reaccuring hip bursitis? What have you found to be the best treatment? Seems like my hips flare up with bursitis atleast once a year. Sometimes it gets so bad my stumach even swells. Right side is getting bad again. I've done cortizone injections, but it seems like they miss the spot most of the time. Only helped 2 of the 5 times I've had it done. http://answers.ankylosing.org/90022/how-many-of-you-deal-with-reaccuring-hip-bursitis-what-have-you-found-to-be-the-best-treatment/ Thu, 09 Jun 2011 03:04:48 +0000 Asked by Kimberly 9 months ago http://answers.ankylosing.org/90022/how-many-of-you-deal-with-reaccuring-hip-bursitis-what-have-you-found-to-be-the-best-treatment/ How many deal with migraines with your AS and how do you treat them? http://answers.ankylosing.org/89993/how-many-deal-with-migraines-with-your-as-and-how-do-you-treat-them/ Wed, 08 Jun 2011 19:31:07 +0000 Asked by Cindy Clark Barta 9 months ago http://answers.ankylosing.org/89993/how-many-deal-with-migraines-with-your-as-and-how-do-you-treat-them/ Has anyone tried the invertor table? The one where you hang upside down? http://answers.ankylosing.org/89992/has-anyone-tried-the-invertor-table/ Wed, 08 Jun 2011 19:22:28 +0000 Asked by Cindy Clark Barta 9 months ago http://answers.ankylosing.org/89992/has-anyone-tried-the-invertor-table/ Are there any jaw problems that connect to AS? http://answers.ankylosing.org/89985/are-there-any-jaw-problems-that-connect-to-as/ Wed, 08 Jun 2011 18:44:20 +0000 Asked by Jessie 9 months ago http://answers.ankylosing.org/89985/are-there-any-jaw-problems-that-connect-to-as/ For those still working - anyone else have a boss who is intolerant of your disability almost to the point of discrimination? I wish this guy would put in writing the things he says verbally, but no such luck. He tells me that I suck every single day. Even with my disability I am a strong performer, but this guy just has it out for me. I'm interviewing elsewhere but in the meantime I have Spondy pain AND have to suffer this jerk. Any suggestions for surviving this negativity? http://answers.ankylosing.org/89979/for-those-still-working-anyone-else-have-a-boss-who-is-intolerant-of-your-disability-almost-to-the/ Wed, 08 Jun 2011 18:08:16 +0000 Asked by Rose Bigham 9 months ago http://answers.ankylosing.org/89979/for-those-still-working-anyone-else-have-a-boss-who-is-intolerant-of-your-disability-almost-to-the/ Does anyone have both AS and fibromyalgia. I have a diagnosis for fibromyalgia and the gene HLA B27. MRI shows two protr disks at T1 and L34. My reading of lots of these coments on this great web sight seem to support my thoughts that being told i do not have AS could be wrong as I have been extremely ill for some time with AS symptoms. Could anyone advise me on this thanks. Does anyone beleive Fibro comes with AS? http://answers.ankylosing.org/89905/does-anyone-have-both-as-and-fibromyalgia-i-have-a-diagnosis-for-fibromyalgia-and-the-gene-hla-b27/ Wed, 08 Jun 2011 04:51:45 +0000 Asked by Jessie 9 months ago http://answers.ankylosing.org/89905/does-anyone-have-both-as-and-fibromyalgia-i-have-a-diagnosis-for-fibromyalgia-and-the-gene-hla-b27/ Another book Hi, I've been reading comments here about holistic or alternative therapies, and it certainly gets a rise out of many of us. I've just finished reading When the Body says NO, by Gabor Mate. He does an excellent job in my opinion of covering personality traits/temperaments, and how we respond to stress. He does NOT blame the patient, but offers some interesting insight. IMHO it's an excellent read and is one more tool on the tool belt. He specifically mentions AS? http://answers.ankylosing.org/89817/another-book-hi-ive-been-reading-comments-here-about-holistic-or-alternative-therapies-and-it-certainly/ Tue, 07 Jun 2011 10:58:23 +0000 Asked by Gullyabb 9 months ago http://answers.ankylosing.org/89817/another-book-hi-ive-been-reading-comments-here-about-holistic-or-alternative-therapies-and-it-certainly/ What are your symptoms? Back pain, neck pain, joint pain, body temp rises, hot to touch, sweats, stiffness, headaches, calf pain, heel pain, now I have swelling near my knees and ankles, fatigue, teeth pain and chipping, my back sounds like bubble wrap crunching, joints popping...they said they think this could be spondyloarthropathy which then gets diagnosed to AS later down the line as well as Fibromyalgia or RA. I'm simply trying to be proactive when I see my Rhem. In a week. http://answers.ankylosing.org/89811/what-are-your-symptoms/ Tue, 07 Jun 2011 10:08:25 +0000 Asked by Sasha 9 months ago http://answers.ankylosing.org/89811/what-are-your-symptoms/ So the MRI on my lower back showed degeneration and bulging discs, and my neck showed something there and I have to go back for another neck and middle back MRI in a week. Did anyone else have these results on the MRI? The Rheum called me today and said there was no inflammation shown, so is that his way of telling me that this isn't AS? He's being very stubborn about things and I don't know what else to bring to the table. http://answers.ankylosing.org/89785/so-the-mri-on-my-lower-back-showed-degeneration-and-bulging-discs-and-my-neck-showed-something-there/ Tue, 07 Jun 2011 04:57:34 +0000 Asked by Sasha 9 months ago http://answers.ankylosing.org/89785/so-the-mri-on-my-lower-back-showed-degeneration-and-bulging-discs-and-my-neck-showed-something-there/ Daughter had great visit with doc today & holistic approaches are working for her but wanted to pass on a book he recommended written by Norman Cousins called "Anatomy of an Illness (As Perceived by the Patient)". Cousins tells how he developed a debilitating illness in the 1960's which confines him to bed and he's diagnosed with ankylosing spondylitis and how laughter and non-traditional meds cured him. The book should be in your library or is on Amazon.com. Just wanted to share? http://answers.ankylosing.org/89775/daughter-had-great-visit-with-doc-today-holistic-approaches-are-working-for-her-but-wanted-to-pass/ Tue, 07 Jun 2011 02:26:32 +0000 Asked by Jennifer Crow 9 months ago http://answers.ankylosing.org/89775/daughter-had-great-visit-with-doc-today-holistic-approaches-are-working-for-her-but-wanted-to-pass/ I'm starting my Humira Friday. I'm nervous. What should I expect? What should my family expect? http://answers.ankylosing.org/89722/im-starting-my-humira-friday-im-nervous-what-should-i-expect/ Mon, 06 Jun 2011 15:09:15 +0000 Asked by Stacy 9 months ago http://answers.ankylosing.org/89722/im-starting-my-humira-friday-im-nervous-what-should-i-expect/ I was diagnosed with AS two months ago, I also have Degenerative disk disease with stenosis. I was in a car accident in Feb- I was t-boned- I have had neck issues since. It was recently discovered that I have positive Babinski and Hoffmans reflexes. I have been doing a lot of research and discovered that it is possible that the positive Babinksi and Hoffmans is due to the AS. My question is has anyone experience these issues with their reflexes due to AS? http://answers.ankylosing.org/89717/i-was-diagnosed-with-as-two-months-ago-i-also-have-degenerative-disk-disease-with-stenosis-i-was-in/ Mon, 06 Jun 2011 13:51:32 +0000 Asked by Kasandra Kettenring Fox 9 months ago http://answers.ankylosing.org/89717/i-was-diagnosed-with-as-two-months-ago-i-also-have-degenerative-disk-disease-with-stenosis-i-was-in/ I'm going back to work tomorrow after two months off from what I presume was and still is my first major flare. My doc and I just randomly picked that date presuming I'd be 'better' by now. I am fortunate that I have the sick leave I do. I could easily take a few more weeks off, but I feel too guilty. With anti-inflammatories I am functioning okay around the house. Still pain, but manageable. For those of you still able to work, do you struggle with the guilt when you take sick leave? http://answers.ankylosing.org/89650/im-going-back-to-work-tomorrow-after-two-months-off-from-what-i-presume-was-and-still-is-my-first-major/ Mon, 06 Jun 2011 00:57:16 +0000 Asked by Gullyabb 9 months ago http://answers.ankylosing.org/89650/im-going-back-to-work-tomorrow-after-two-months-off-from-what-i-presume-was-and-still-is-my-first-major/ I'm 33 yrs old, I've had AS for about 9 yrs, and been on Remicade for 2. My hair has been falling out for months, I've developed eczema, and I'm starting to worry about the long term effects of being on this strong of a med for so long (cancer, etc) . I'd like to take a break from the Rem, but am also worried about the possible damage that could be done to my joints if I'm not on anything. Is anyone using any natural methods that are working? Diet, exercise, supplements, I'll try anything! http://answers.ankylosing.org/89629/im-33-yrs-old-ive-had-as-for-about-9-yrs-and-been-on-remicade-for-2-my-hair-has-been-falling-out/ Sun, 05 Jun 2011 21:02:04 +0000 Asked by Marianne 9 months ago http://answers.ankylosing.org/89629/im-33-yrs-old-ive-had-as-for-about-9-yrs-and-been-on-remicade-for-2-my-hair-has-been-falling-out/ Blood test were possitive for HLA-B27. I have all the other symptoms. Rheumatologist says MRI showed no AS at present doctor says just two problem disks. Doctor has told me i do not have AS. Can anyone give me some advice. Many thanks? http://answers.ankylosing.org/89609/blood-test-were-possitive-for-hla-b27-i-have-all-the-other-symptoms-rheumatologist-says-mri-showed/ Sun, 05 Jun 2011 19:13:49 +0000 Asked by Jessie 9 months ago http://answers.ankylosing.org/89609/blood-test-were-possitive-for-hla-b27-i-have-all-the-other-symptoms-rheumatologist-says-mri-showed/ My fingers are so swollen, they get worse when I sleep. My toes also swell. Is this common for All ASers or related to something else?! http://answers.ankylosing.org/89571/my-fingers-are-so-swollen-they-get-worse-when-i-sleep-my-toes-also-swell-is-this-common-for-all-asers/ Sun, 05 Jun 2011 12:58:20 +0000 Asked by Mysti 9 months ago http://answers.ankylosing.org/89571/my-fingers-are-so-swollen-they-get-worse-when-i-sleep-my-toes-also-swell-is-this-common-for-all-asers/ The Rhem. Gave me a suspected DX of spondyloarthropathy. I had a 3 part MRI this week but had a panic attack with the neck so I had the neck and lower back done and have to go back for the middle, what is fusion and what if the MRI doesn't show it? Will Methotrexate help it? He wants me on that? I read that it's for R.A though. What has helped you?I want to make sure I'm educated before I go on anything. What are the uvetitis flares I'm hearing about I see the Eye doc in a week as well. http://answers.ankylosing.org/89557/the-rhem-gave-me-a-suspected-dx-of-spondyloarthropathy-i-had-a-3-part-mri-this-week-but-had-a-panic/ Sun, 05 Jun 2011 09:05:14 +0000 Asked by Sasha 9 months ago http://answers.ankylosing.org/89557/the-rhem-gave-me-a-suspected-dx-of-spondyloarthropathy-i-had-a-3-part-mri-this-week-but-had-a-panic/ Ok so has any one had problems with their ears, jaw, and rash=scaling/blisters on palms of hands, lower leg, bottom of feet, behind ear, tip of finger? If so could you tell me about what is going on? My GP seems to think its a reaction to simponi, my rhumy said it could be serious, its been almost a year of onset and have been off simponi for 2mo now, and no changes. Been tested for Syphilis and its not that, freaked me out when I saw it on the blood draw order. All other test came out normal. http://answers.ankylosing.org/89550/ok-so-has-any-one-had-problems-with-their-ears-jaw-and-rashscalingblisters-on-palms-of-hands-lower/ Sun, 05 Jun 2011 06:09:52 +0000 Asked by Mary 9 months ago http://answers.ankylosing.org/89550/ok-so-has-any-one-had-problems-with-their-ears-jaw-and-rashscalingblisters-on-palms-of-hands-lower/ Just wanted to be sure everyone here knows about google scholar. It's what the doctors use. Google scholar, google it and use to search about your disease. Very helpful tool my rheumy told me about and is free! Let me know if you need help with it and I would be glad to assist! Rich Groben? http://answers.ankylosing.org/89526/just-wanted-to-be-sure-everyone-here-knows-about-google-scholar-its-what-the-doctors-use-google-scholar/ Sun, 05 Jun 2011 01:10:30 +0000 Asked by Rwg Enterprises 9 months ago http://answers.ankylosing.org/89526/just-wanted-to-be-sure-everyone-here-knows-about-google-scholar-its-what-the-doctors-use-google-scholar/ Hello, i was diagnosed with undifferentiated spondylitis and have some questions. First of all, i am taking celebrex and its going good, it makes me feel about an 80% better, should i receive anti-TNF treatment? My doc says i should not if im doing well with celebrex but im worried it wont slow the progression. Also for those with the same disease, why were you diagnosed with it? (what were your symptoms, etc.) And finally, how can i now that the disease has differentiated? Thanks in advance :) http://answers.ankylosing.org/89404/hello-i-was-diagnosed-with-undifferentiated-spondylitis-and-have-some-questions-first-of-all-i-am/ Sat, 04 Jun 2011 01:17:56 +0000 Asked by Jes20 9 months ago http://answers.ankylosing.org/89404/hello-i-was-diagnosed-with-undifferentiated-spondylitis-and-have-some-questions-first-of-all-i-am/ Does any one know what bilateral sacrolitis is and is there any relationship with anklosing spondylitis any feed back would be appreciated thank you? http://answers.ankylosing.org/89402/does-any-one-know-what-bilateral-sacrolitis-is-and-is-there-any-relationship-with-anklosing-spondylitis/ Sat, 04 Jun 2011 00:54:30 +0000 Asked by Conor 9 months ago http://answers.ankylosing.org/89402/does-any-one-know-what-bilateral-sacrolitis-is-and-is-there-any-relationship-with-anklosing-spondylitis/ I am really struggling with the fatigue. I have a very demanding job, and the pain interupts my sleep. Despite being on meds to help with sleep, I just can't shake the fatigue. I am really frustrated that everyone else seems to be able to enjoy their lives, and after work there is nothing left of me. Nothing. Anything that helps? http://answers.ankylosing.org/89398/i-am-really-struggling-with-the-fatigue-i-have-a-very-demanding-job-and-the-pain-interupts-my-sleep/ Sat, 04 Jun 2011 00:16:09 +0000 Asked by Amori99 9 months ago http://answers.ankylosing.org/89398/i-am-really-struggling-with-the-fatigue-i-have-a-very-demanding-job-and-the-pain-interupts-my-sleep/ Not so much of a qustion, but I have my hearing today for disability, I hurt so bad I don't even feel like going. I don't like to wish ill on anyone. Sometimes I wish the people that have been hired to judge people like us would have a week of the pain that we have almost every day of our lives? http://answers.ankylosing.org/89333/not-so-much-of-a-qustion-but-i-have-my-hearing-today-for-disability-i-hurt-so-bad-i-dont-even-feel/ Fri, 03 Jun 2011 13:54:27 +0000 Asked by Tim Cassidy 9 months ago http://answers.ankylosing.org/89333/not-so-much-of-a-qustion-but-i-have-my-hearing-today-for-disability-i-hurt-so-bad-i-dont-even-feel/ Hey everyone, I finally got an appointment with a rheumatologist nearly a year after being diagnosed with AS by my primary care physician. I am SO excited I'm finally getting in to see someone. Any advice for my first rheumy appt? http://answers.ankylosing.org/89286/hey-everyone-i-finally-got-an-appointment-with-a-rheumatologist-nearly-a-year-after-being-diagnosed/ Fri, 03 Jun 2011 05:46:43 +0000 Asked by Taylor Davis 9 months ago http://answers.ankylosing.org/89286/hey-everyone-i-finally-got-an-appointment-with-a-rheumatologist-nearly-a-year-after-being-diagnosed/ Pain medications... I found myself a new physician, yesterday. I meet with him June 27th, he specializes in treating chronic pain. Anyway, I am meeting with him to discuss a second opinion rheumy, pain medication, and just every little question I can think of and write down. I wanted to know what kind of pain meds you are all on. I am not taking anything for pain right now, just Naproxen for inflammation and Nortriptyline to help with sleep. Thanks in advance? http://answers.ankylosing.org/89219/pain-medications-i-found-myself-a-new-physician-yesterday-i-meet-with-him-june-27th-he-specializes/ Thu, 02 Jun 2011 18:20:16 +0000 Asked by Lindsay Cairns 9 months ago http://answers.ankylosing.org/89219/pain-medications-i-found-myself-a-new-physician-yesterday-i-meet-with-him-june-27th-he-specializes/ Anyone here using butrans patches? Just was given this by my rheumatologist and was curious about how well they worked in comparison to percocets (which he gave me a refill for as well) and side effects. http://answers.ankylosing.org/89204/anyone-here-using-butrans-patches/ Thu, 02 Jun 2011 17:22:42 +0000 Asked by Jerry Grynspan 9 months ago http://answers.ankylosing.org/89204/anyone-here-using-butrans-patches/ Has anyone tried "Dry Needling" for the managment of chronic pain in the si joints? My pt has suggested that I give it a try for my si joint pain and tailbone pain. I & my husband are unsure about this new treatment. My pt is a bit fustrated because the pool therapy is not decreasing my pain as much as he would like and he feels the "Dry Needling" is the awnser to reducing or taking away all my back pain. http://answers.ankylosing.org/89153/has-anyone-tried-dry-needling-for-the-managment-of-chronic-pain-in-the-si-joints/ Thu, 02 Jun 2011 04:22:59 +0000 Asked by Kimberly 9 months ago http://answers.ankylosing.org/89153/has-anyone-tried-dry-needling-for-the-managment-of-chronic-pain-in-the-si-joints/ Can someone explain heel pain, what causes it, and what you can do about it? http://answers.ankylosing.org/89146/can-someone-explain-heel-pain-what-causes-it-and-what-you-can-do-about-it/ Thu, 02 Jun 2011 02:31:09 +0000 Asked by Karend 9 months ago http://answers.ankylosing.org/89146/can-someone-explain-heel-pain-what-causes-it-and-what-you-can-do-about-it/ I have just discovered that prior to me there have only been 2 people ever reported to have AS and Deep Vein Thrombosis. I find that hard to believe. Any one else out there who has had both? http://answers.ankylosing.org/89068/i-have-just-discovered-that-prior-to-me-there-have-only-been-2-people-ever-reported-to-have-as-and-deep/ Wed, 01 Jun 2011 14:25:42 +0000 Asked by Jerry Grynspan 9 months ago http://answers.ankylosing.org/89068/i-have-just-discovered-that-prior-to-me-there-have-only-been-2-people-ever-reported-to-have-as-and-deep/ Stress at home, work, and recent personal experience with discrimination has really got me down. I am quickly losing faith in God and humanity. These are the days I really wonder why, and what can be done to change it? It's hard to see anything positive when everything hurts, emotionally, spiritually, and physically. Here's a prayer with what little I have left that a few things go right to change my outlook and find the positive I still hope this life has to offer http://answers.ankylosing.org/89050/stress-at-home-work-and-recent-personal-experience-with-discrimination-has-really-got-me-down-i-am/ Wed, 01 Jun 2011 10:46:13 +0000 Asked by Tricia Carsley 9 months ago http://answers.ankylosing.org/89050/stress-at-home-work-and-recent-personal-experience-with-discrimination-has-really-got-me-down-i-am/ Does anyone know if you can go to college or training while on medicaid and trying to get ssi? http://answers.ankylosing.org/88972/does-anyone-know-if-you-can-go-to-college-or-training-while-on-medicaid-and-trying-to-get-ssi/ Tue, 31 May 2011 19:38:02 +0000 Asked by Tiffany 9 months ago http://answers.ankylosing.org/88972/does-anyone-know-if-you-can-go-to-college-or-training-while-on-medicaid-and-trying-to-get-ssi/ I've been diagnosed as undifferentiated spondylarthritis and i've been on remicade for 1 year. Although i'm better, i still have significant pain....especially in my lower back. I still have to take tramadol 2-3 times daily to maintain the pain. Is this common or is it possible that the remicade isn't working? I usually feel pretty good during the middle 4 weeks, but for 2 weeks after my treatment and 2 weeks before i'm in alot of pain. I'm quite frustrated. http://answers.ankylosing.org/88949/ive-been-diagnosed-as-undifferentiated-spondylarthritis-and-ive-been-on-remicade-for-1-year-although/ Tue, 31 May 2011 16:16:43 +0000 Asked by Karen 9 months ago http://answers.ankylosing.org/88949/ive-been-diagnosed-as-undifferentiated-spondylarthritis-and-ive-been-on-remicade-for-1-year-although/ Arthrotec vs. Vimovo? My dr. Gave me Vimovo samples (waiting to see rheumy). It works okay, bringing pain down quite a bit, with no gut rot. It is causing constipation however which I seldom ever get. Now that the samples are gone, I have to fill a prescription for either Vimovo, or Arthrotec (diclofenac and misoprostol) My doc gave me a prescription for both in case the Vimovo samples bothered my stomach. Anyone use Arthotec before? Thanks http://answers.ankylosing.org/88925/arthrotec-vs-vimovo-my-dr-gave-me-vimovo-samples-waiting-to-see-rheumy-it-works-okay-bringing/ Tue, 31 May 2011 11:05:18 +0000 Asked by Gullyabb 9 months ago http://answers.ankylosing.org/88925/arthrotec-vs-vimovo-my-dr-gave-me-vimovo-samples-waiting-to-see-rheumy-it-works-okay-bringing/ Some Good news about Biologics: arthritis.about.com/b/2011/05/29/biologic-drugs-do-not-incre For those considering biologics, I was worried too. See the above article that essentially states, biologics do NOT cause cancer. Have a good one everyone? http://answers.ankylosing.org/88872/some-good-news-about-biologics-a-hrefhttparthritisaboutcomb20110529biologic-drugs-do-not-increase-overall-risk-of-cancer-in-arthritis-patientshtm/ Tue, 31 May 2011 00:32:56 +0000 Asked by Dave 9 months ago http://answers.ankylosing.org/88872/some-good-news-about-biologics-a-hrefhttparthritisaboutcomb20110529biologic-drugs-do-not-increase-overall-risk-of-cancer-in-arthritis-patientshtm/ What's the difference of a diagnosis between Reiter's Syndrome and AS? What are the difference of symptoms? http://answers.ankylosing.org/88763/whats-the-difference-of-a-diagnosis-between-reiters-syndrome-and-as/ Mon, 30 May 2011 05:07:43 +0000 Asked by Sasha 9 months ago http://answers.ankylosing.org/88763/whats-the-difference-of-a-diagnosis-between-reiters-syndrome-and-as/ Has anyone have the real answer to how i can mentally handle my as . I have had it for 22 years and my brain is tired of dealing it. Tired of talking about the way my body feels. It's hard to stay positive sometimes ! I just want to feel the i was before this all came on to me . That's all, guess this is asking for too much ! :(? http://answers.ankylosing.org/88688/has-anyone-have-the-real-answer-to-how-i-can-mentally-handle-my-as-i-have-had-it-for-22-years-and-my/ Sun, 29 May 2011 19:57:29 +0000 Asked by Dianne Asevedo Alba 9 months ago http://answers.ankylosing.org/88688/has-anyone-have-the-real-answer-to-how-i-can-mentally-handle-my-as-i-have-had-it-for-22-years-and-my/ Are you allowed to do weight trainning by your doctor? Mine allowed me to do pull ups. http://answers.ankylosing.org/88466/are-you-allowed-to-do-weight-trainning-by-your-doctor/ Sat, 28 May 2011 23:48:22 +0000 Asked by Jes20 9 months ago http://answers.ankylosing.org/88466/are-you-allowed-to-do-weight-trainning-by-your-doctor/ My question today is this: If I can show that my job caused or exacerbates my condition, I'm entitled to compensation. I know the disease is of 'unknown etimology', but I am convinced that my onset of symptoms came because of some intense pressure going on at work. I'm in law enforcement and while stress is usual, this was somewhat extreme. Anyone have credible sources/links showing a connection between symptoms and stress triggers? Thanks http://answers.ankylosing.org/88426/my-question-today-is-this-if-i-can-show-that-my-job-caused-or-exacerbates-my-condition-im-entitled/ Sat, 28 May 2011 18:25:59 +0000 Asked by Gullyabb 9 months ago http://answers.ankylosing.org/88426/my-question-today-is-this-if-i-can-show-that-my-job-caused-or-exacerbates-my-condition-im-entitled/ So...I've recently found out that my SI joints are at a fusion 3 (0 being normal and 4 being completely fused). I guess this explains why nothing, not even minimal exercise, helps with my pain. I've tried the "magical diets", TNF drugs, NSAIDS, and I'm trying to get into a clinical trial...Anyone have any wonderful ideas for pain relief? Anyone at this stage in their AS? It's very frustrating. Heat is way too painful...so heating pads are out of the question... http://answers.ankylosing.org/88319/soive-recently-found-out-that-my-si-joints-are-at-a-fusion-3-0-being-normal-and-4-being-completely/ Sat, 28 May 2011 01:31:48 +0000 Asked by Jessica Allen 9 months ago http://answers.ankylosing.org/88319/soive-recently-found-out-that-my-si-joints-are-at-a-fusion-3-0-being-normal-and-4-being-completely/ Hi, I've been on Vimovo (Naproxen) for 3 days now. Initially I was thrilled, because it relieved most of my pain within the first few hours. Now, it seems to have 'faded' and my symptoms are coming back. Is this common with NSAIDS? Thanks http://answers.ankylosing.org/88317/hi-ive-been-on-vimovo-naproxen-for-3-days-now-initially-i-was-thrilled-because-it-relieved-most/ Sat, 28 May 2011 01:01:14 +0000 Asked by Gullyabb 9 months ago http://answers.ankylosing.org/88317/hi-ive-been-on-vimovo-naproxen-for-3-days-now-initially-i-was-thrilled-because-it-relieved-most/ What do you sleep on? My firm mattress is now torture. Looking to buy a new one. Anyone have memory foam and like it? Open to suggestions. Thanks http://answers.ankylosing.org/88168/what-do-you-sleep-on-my-firm-mattress-is-now-torture-looking-to-buy-a-new-one-anyone-have-memory-foam/ Fri, 27 May 2011 00:44:25 +0000 Asked by Gullyabb 9 months ago http://answers.ankylosing.org/88168/what-do-you-sleep-on-my-firm-mattress-is-now-torture-looking-to-buy-a-new-one-anyone-have-memory-foam/ So the doctor today said that I have a suspected diagnosis of spondyloarthropathy, but that's like the large title and AS is under it as well as other inflammation of the spine. One doc said she thinks it's AS and Fibromyalgia, I have another MRI of my spine next week and ESR is still up and HLA-b27 is present. He wanted to start me on Methotrexate and the side effects scared the crap outta me. Is anyone on that or have the been on it and did it help, side effects? How was AS diag? http://answers.ankylosing.org/88038/so-the-doctor-today-said-that-i-have-a-suspected-diagnosis-of-spondyloarthropathy-but-thats-like-the/ Thu, 26 May 2011 07:06:28 +0000 Asked by Sasha 9 months ago http://answers.ankylosing.org/88038/so-the-doctor-today-said-that-i-have-a-suspected-diagnosis-of-spondyloarthropathy-but-thats-like-the/ Just saw my RA today after a 6month span. My A.S. Did not behave during this time frame and he noticed. My hands and feet were the most affected. I'm now going to be changed from my Weekly dose of Humira (most ppl are prescribed it every two weeks) to Simpony? Something like that. Its a once a month self inj. I still have the weekly inj methotrexate till it shows how i'm doing. He said if i improve i may be able to scale back on the meth med. (heh i call it meth) http://answers.ankylosing.org/87968/just-saw-my-ra-today-after-a-6month-span-my-as-did-not-behave-during-this-time-frame-and-he-noticed/ Wed, 25 May 2011 21:47:46 +0000 Asked by Gail Fetch Hengen 9 months ago http://answers.ankylosing.org/87968/just-saw-my-ra-today-after-a-6month-span-my-as-did-not-behave-during-this-time-frame-and-he-noticed/ So, 7 months later, I'm getting into the rheumy here (was supposed to wait another year still). Any tips on what to say/ expect? A little nervous. http://answers.ankylosing.org/87944/so-7-months-later-im-getting-into-the-rheumy-here-was-supposed-to-wait-another-year-still-any-tips/ Wed, 25 May 2011 18:51:42 +0000 Asked by Cara Guikema 9 months ago http://answers.ankylosing.org/87944/so-7-months-later-im-getting-into-the-rheumy-here-was-supposed-to-wait-another-year-still-any-tips/ I have been diagnosed with AS for 8 years. Looking back I am sure I had it way before just couldn't get it diagnosed. RA runs in my family history. I was wondering when and if I should have my children, ages 14 and 10, tested? They are not showing any symptoms. But when I look back to my high school days and when I was in sports I am sure I could have been diagnosed with RA a lot earlier. Any suggestions? http://answers.ankylosing.org/87928/i-have-been-diagnosed-with-as-for-8-years-looking-back-i-am-sure-i-had-it-way-before-just-couldnt-get/ Wed, 25 May 2011 16:27:22 +0000 Asked by Janet Vorwald 9 months ago http://answers.ankylosing.org/87928/i-have-been-diagnosed-with-as-for-8-years-looking-back-i-am-sure-i-had-it-way-before-just-couldnt-get/ We're moving to Mississippi! Any recommendations for a Rheumy there? (This is a long shot, I know) http://answers.ankylosing.org/87926/were-moving-to-mississippi-any-recommendations-for-a-rheumy-there/ Wed, 25 May 2011 16:16:50 +0000 Asked by Catherine Terry 9 months ago http://answers.ankylosing.org/87926/were-moving-to-mississippi-any-recommendations-for-a-rheumy-there/ Good Morning A.S Family! Ok hear it goes, I go to see my rheumy today at 2:40pm and she is a tiger. Last time I went in she said I didn't and couldn't have arthritis in my hands. Well i beg to differ. I need some ideas on how to talk to her. All she has me on is mobic nothing else for my A.S. Please help. Oh did i mention she is one of those doctors who come in sit down and make you feel like your in the principles office? http://answers.ankylosing.org/87918/good-morning-as-family-ok-hear-it-goes-i-go-to-see-my-rheumy-today-at-240pm-and-she-is-a-tiger-last/ Wed, 25 May 2011 15:21:22 +0000 Asked by Steffie Jo 9 months ago http://answers.ankylosing.org/87918/good-morning-as-family-ok-hear-it-goes-i-go-to-see-my-rheumy-today-at-240pm-and-she-is-a-tiger-last/ I've been taken off of weekly Humaira and Methotrexate injections due to chronic infections (Sinus,Thrush,Skin Staph,Iritis) and severe bouts of Colitis. Has anybody else gone through this? What's next? Since being off I've had a horrible AS flare! I'm getting desperate because massive painkillers (180MG Roxicodone and 24MG Zanaflex a day) aren't helping! I'm at my wits end with options. Humaira was my last hope as I've been through all of the others...Remicade,Embrel,etc,etc. Rheumy is baffled! http://answers.ankylosing.org/87895/ive-been-taken-off-of-weekly-humaira-and-methotrexate-injections-due-to-chronic-infections-sinusthrushskin/ Wed, 25 May 2011 12:13:35 +0000 Asked by Rachelle Brown 9 months ago http://answers.ankylosing.org/87895/ive-been-taken-off-of-weekly-humaira-and-methotrexate-injections-due-to-chronic-infections-sinusthrushskin/ Hello everyone, this is not so much as a question more of a warning. I have had AS for 25 years and i have found that long term painkiller use has done a lot of damage to my stomach &i have had serious rectal bleeding, so please be aware of this problem & try to reduce your painkiller use? http://answers.ankylosing.org/87891/hello-everyone-this-is-not-so-much-as-a-question-more-of-a-warning-i-have-had-as-for-25-years-and-i/ Wed, 25 May 2011 11:17:20 +0000 Asked by Kevan Linton 9 months ago http://answers.ankylosing.org/87891/hello-everyone-this-is-not-so-much-as-a-question-more-of-a-warning-i-have-had-as-for-25-years-and-i/ Has anyone been put on VIMOVO™ naproxen and esomeprazole? I was just prescribed it today and was wondering how long until I get some relief. http://answers.ankylosing.org/87862/has-anyone-been-put-on-vimovo-naproxen-and-esomeprazole/ Wed, 25 May 2011 01:15:11 +0000 Asked by Amanda 9 months ago http://answers.ankylosing.org/87862/has-anyone-been-put-on-vimovo-naproxen-and-esomeprazole/ I have a doctor appt with the Rheum tomorrow, I saw him 3 weeks ago and he did an HLA-B27 test which tested positive, ESR is elevated to double the normal rate and the CRP should be at .5 and is at 3.2, shows protein too high. When you were diagnosed with AS what were your symptoms? Did Prednisone help? I can't type all my symptoms it won't allow me to, too many characters so please help me. http://answers.ankylosing.org/87860/i-have-a-doctor-appt-with-the-rheum-tomorrow-i-saw-him-3-weeks-ago-and-he-did-an-hla-b27-test-which/ Wed, 25 May 2011 01:05:29 +0000 Asked by Sasha 9 months ago http://answers.ankylosing.org/87860/i-have-a-doctor-appt-with-the-rheum-tomorrow-i-saw-him-3-weeks-ago-and-he-did-an-hla-b27-test-which/ Trying to find a relationship if there is one. How many routinely have a body temp at 98.6 F or higher? Already have thread about lower than normal temps. http://answers.ankylosing.org/87845/trying-to-find-a-relationship-if-there-is-one-how-many-routinely-have-a-body-temp-at-986-f-or-highe/ Tue, 24 May 2011 21:16:10 +0000 Asked by Jerry Grynspan 9 months ago http://answers.ankylosing.org/87845/trying-to-find-a-relationship-if-there-is-one-how-many-routinely-have-a-body-temp-at-986-f-or-highe/ How many typically run body temps under 98 degrees F? How many have seen that typical temp change with disease progress and/or meds? http://answers.ankylosing.org/87799/how-many-typically-run-body-temps-under-98-degrees-f/ Tue, 24 May 2011 14:54:52 +0000 Asked by Jerry Grynspan 9 months ago http://answers.ankylosing.org/87799/how-many-typically-run-body-temps-under-98-degrees-f/ How long does it usually take for symptoms to subside with Sulfasalazine, for those that have tried the drug. I've been on it for a couple weeks, gradually increasing my dose and have not had any more fevers, and way less lethargic. The swelling in my ankles and severe back pain is still there, but I was able to get out of bed without help today. I am praying the drug is working but skeptical I am just having a good week. I would really like to hear some experiences from others. Thanks? http://answers.ankylosing.org/87727/how-long-does-it-usually-take-for-symptoms-to-subside-with-sulfasalazine-for-those-that-have-tried-the/ Mon, 23 May 2011 23:42:41 +0000 Asked by Tricia Carsley 9 months ago http://answers.ankylosing.org/87727/how-long-does-it-usually-take-for-symptoms-to-subside-with-sulfasalazine-for-those-that-have-tried-the/ Since I was diagnosed with As, reiters and psA, I've been getting kidney stones. I get them in only one kidney and I always pass the painful buggers but my rheumy and nephrologist are baffled as to why I keep making them. They are always calcium oxilate and I do not ingest a high percentage of either. Any one else have similar? http://answers.ankylosing.org/87717/since-i-was-diagnosed-with-as-reiters-and-psa-ive-been-getting-kidney-stones-i-get-them-in-only-one/ Mon, 23 May 2011 21:52:08 +0000 Asked by Rwg Enterprises 9 months ago http://answers.ankylosing.org/87717/since-i-was-diagnosed-with-as-reiters-and-psa-ive-been-getting-kidney-stones-i-get-them-in-only-one/ Hi all, over the last few months i have been suffering quite badly with terrible night sweats. I get that bad i wake up in a puddle of sweat. Is this a symptom of AS or medication.... (i'm on Cymbalta 30 and 60mg and norspan 10mcg). My husband says i get that hot i feel like i am on fire! Please can anyone HELP? http://answers.ankylosing.org/87653/hi-all-over-the-last-few-months-i-have-been-suffering-quite-badly-with-terrible-night-sweats-i-get/ Mon, 23 May 2011 02:33:45 +0000 Asked by Kylie 9 months ago http://answers.ankylosing.org/87653/hi-all-over-the-last-few-months-i-have-been-suffering-quite-badly-with-terrible-night-sweats-i-get/ Hi everyone! Have any of you read the book "The Other Daughter" by Lisa Gardner? One of the main characters has AS and they even describe the symptoms and how life changing it can be. Thought it was interesting to find since I had never heard of AS before June of last year. http://answers.ankylosing.org/87614/hi-everyone-have-any-of-you-read-the-book-the-other-daughter-by-lisa-gardner/ Sun, 22 May 2011 17:42:39 +0000 Asked by Marsha Heins 9 months ago http://answers.ankylosing.org/87614/hi-everyone-have-any-of-you-read-the-book-the-other-daughter-by-lisa-gardner/ Hi all, I am 35 yrs old and recently dx with undif spondylarthritis with bilateral sacrolitis (a bit of a mouthful!). As I am HLA-b27 neg my dr wont say its AS until there is full fusion. Anyway my question is if anyone else uses a stick when walking? I have difficulty walking for more then 5 mins so my OH has talked me into buying a stick to see if this will help. Are there any tips on how best to use it and how to get over the feeling of being weird, and stared at? http://answers.ankylosing.org/87571/hi-all-i-am-35-yrs-old-and-recently-dx-with-undif-spondylarthritis-with-bilateral-sacrolitis-a-bit/ Sun, 22 May 2011 11:21:55 +0000 Asked by Kathy 9 months ago http://answers.ankylosing.org/87571/hi-all-i-am-35-yrs-old-and-recently-dx-with-undif-spondylarthritis-with-bilateral-sacrolitis-a-bit/ I am having a strange problem. I have been running a fever of 100 to 103 with no underlying symptoms. Some times it will drop to 97. My husband read that this could be caused by new meds and it may occur with auto immune diseases. Any one else experience this? http://answers.ankylosing.org/87532/i-am-having-a-strange-problem-i-have-been-running-a-fever-of-100-to-103-with-no-underlying-symptoms/ Sun, 22 May 2011 01:52:21 +0000 Asked by Denise Cornell 9 months ago http://answers.ankylosing.org/87532/i-am-having-a-strange-problem-i-have-been-running-a-fever-of-100-to-103-with-no-underlying-symptoms/ Hi everyone. I am curious to see if anyone has suffered with neurological problems or balance issues associated with AS? I am on a waitlist to see a neurologist but have had some episodes of loss of sensation, tightness and weakness in right arm and leg. I am only 30 but have had AS dx since 24 but it has been thought to have been active since 18. I also have psoriasis. I've had a normal CAT scan and bloodwork/hormone levels. Any idea? http://answers.ankylosing.org/87531/hi-everyone-i-am-curious-to-see-if-anyone-has-suffered-with-neurological-problems-or-balance-issues/ Sun, 22 May 2011 01:04:32 +0000 Asked by Mandyk 9 months ago http://answers.ankylosing.org/87531/hi-everyone-i-am-curious-to-see-if-anyone-has-suffered-with-neurological-problems-or-balance-issues/ Several weeks ago I started getting short of breath walking up the stairs in my house. Then it started when I walked a long distance. When my labored breathing got worse the wife made me call my rheumatologist. The doctored seemed concerned and said I needed chest xrays, EKG, and a pulmonary functions test as soon as possible. Waiting for results. I found out tonight that MTX can cause these symptoms. Anybody else? http://answers.ankylosing.org/87452/several-weeks-ago-i-started-getting-short-of-breath-walking-up-the-stairs-in-my-house-then-it-started/ Sat, 21 May 2011 00:48:34 +0000 Asked by Jason Ferguson 9 months ago http://answers.ankylosing.org/87452/several-weeks-ago-i-started-getting-short-of-breath-walking-up-the-stairs-in-my-house-then-it-started/ Rheumie has me switching from 7 MTX a week to injectible. My cousin's wife is a nurse and is going to help because I have problems inflicting pain on myself. What are the benefits of the injection? The pills make me very nauseous about 2 days after I take them. http://answers.ankylosing.org/87353/rheumie-has-me-switching-from-7-mtx-a-week-to-injectible-my-cousins-wife-is-a-nurse-and-is-going-to/ Thu, 19 May 2011 21:48:48 +0000 Asked by Amy Picklo 9 months ago http://answers.ankylosing.org/87353/rheumie-has-me-switching-from-7-mtx-a-week-to-injectible-my-cousins-wife-is-a-nurse-and-is-going-to/ I tested positive for the HLA-b27 antigen and the Rhem. Said I could have AS. I have horrible lower back pain that has started to radiate to my left buttock and thigh, my knees hurt, my joints pop, I can simply step and feel a shooting pain my foot, have started getting headaches that don't go away, I'm so tired but can't sleep enough, I get night sweats and my body gets so hot yet I'm cold at night (my body is hot to the touch but no fever). Please help with anything, I'm so lost? http://answers.ankylosing.org/87273/i-tested-positive-for-the-hla-b27-antigen-and-the-rhem-said-i-could-have-as-i-have-horrible-lower-back/ Thu, 19 May 2011 07:22:06 +0000 Asked by Sasha 9 months ago http://answers.ankylosing.org/87273/i-tested-positive-for-the-hla-b27-antigen-and-the-rhem-said-i-could-have-as-i-have-horrible-lower-back/ This is a question but information. I tried so many different combinations of pain meds/ muscle relaxers. As of today I have an amazing pain med that has change my life. It is called Nucynta. I take the highest dose of 100mg & it has been great. After a month I had seen such an improvement that I don't have to use a walker anymore. If you are having any problems with pain meds, ask your Dr. To try this one. If you do get it ask your Dr. For the discount card that comes with it? http://answers.ankylosing.org/87187/this-is-a-question-but-information-i-tried-so-many-different-combinations-of-pain-meds-muscle-relaxers/ Wed, 18 May 2011 07:26:15 +0000 Asked by Christee Damron 9 months ago http://answers.ankylosing.org/87187/this-is-a-question-but-information-i-tried-so-many-different-combinations-of-pain-meds-muscle-relaxers/ Does anybody ever have times when there is just no position to lay down in that doesn't hurt? My AS is now in my shoulders, elbows, & wrists. & I think my lower back is fusing on the right side making it impossible to get comfortable. I have tried pain pills, muscle relaxers even ativan & the pain just won't stop. Any suggestions? http://answers.ankylosing.org/87185/does-anybody-ever-have-times-when-there-is-just-no-position-to-lay-down-in-that-doesnt-hurt/ Wed, 18 May 2011 06:36:11 +0000 Asked by Melissa Temple 9 months ago http://answers.ankylosing.org/87185/does-anybody-ever-have-times-when-there-is-just-no-position-to-lay-down-in-that-doesnt-hurt/ Hi Gang! Just wondering if anyone has been diagnosed with Horner's Syndrome. I was diagnosed w/ Horners several years before my AS and now I am wondering if the Horners is related? http://answers.ankylosing.org/87163/hi-gang-just-wondering-if-anyone-has-been-diagnosed-with-horners-syndrome-i-was-diagnosed-w-horners/ Wed, 18 May 2011 00:57:39 +0000 Asked by Marsha Heins 9 months ago http://answers.ankylosing.org/87163/hi-gang-just-wondering-if-anyone-has-been-diagnosed-with-horners-syndrome-i-was-diagnosed-w-horners/ Does anyone have experience with AS and Tarsal Coalition? My son (15) has a lot of symptoms of AS, and has jad 2 ankles surguries for tarsal coalition. Now the bones are fusing again. http://answers.ankylosing.org/87100/does-anyone-have-experience-with-as-and-tarsal-coalition/ Tue, 17 May 2011 14:11:19 +0000 Asked by Wanda Pantano 9 months ago http://answers.ankylosing.org/87100/does-anyone-have-experience-with-as-and-tarsal-coalition/ Fusion makes your mucles still right every one with as on med or no should go to physical therepyand learn how to exercise and move thier body ever hear the song put the lime in the coconut if dr feel good makes u believe you need some kind of med it well be a hold on you and can back fire your own health right am i right every with as has to exercise before they take any kind of med or just give it a try i live by it every day? http://answers.ankylosing.org/87054/fusion-makes-your-mucles-still-right-every-one-with-as-on-med-or-no-should-go-to-physical-therepyand/ Tue, 17 May 2011 00:25:17 +0000 Asked by Ron 10 months ago http://answers.ankylosing.org/87054/fusion-makes-your-mucles-still-right-every-one-with-as-on-med-or-no-should-go-to-physical-therepyand/ Do believe Drs. Give you meds that there isn't any need for? http://answers.ankylosing.org/87052/do-believe-drs-give-you-meds-that-there-isnt-any-need-for/ Tue, 17 May 2011 00:00:35 +0000 Asked by Ron 10 months ago http://answers.ankylosing.org/87052/do-believe-drs-give-you-meds-that-there-isnt-any-need-for/ Do you believe exercise, or physical therapy, can take the place of medicine with A.S? http://answers.ankylosing.org/87048/do-you-believe-exercise-or-physical-therapy-can-take-the-place-of-medicine-with-as/ Mon, 16 May 2011 23:20:42 +0000 Asked by Ron 10 months ago http://answers.ankylosing.org/87048/do-you-believe-exercise-or-physical-therapy-can-take-the-place-of-medicine-with-as/ Just wondering if anyone else suffers with heel pain. I have A.S. I have sooo much pain all over, now in the heel of my left foot, so bad I hate to walk on it. This has been going on now about a month and I feel pain starting in right foot now in same location. I have no insurance coverage until Dec 2011. Any suggestions? http://answers.ankylosing.org/87029/just-wondering-if-anyone-else-suffers-with-heel-pain-i-have-as-i-have-sooo-much-pain-all-over-now/ Mon, 16 May 2011 19:17:44 +0000 Asked by Debby 10 months ago http://answers.ankylosing.org/87029/just-wondering-if-anyone-else-suffers-with-heel-pain-i-have-as-i-have-sooo-much-pain-all-over-now/ Anyone have inflammation in the cricoarytenoid joint? Not well known that it can be affected with AS, but it can. I have it. I was (and am) having serious vocal issues. That is what sent me to the doctor. Saw an ENT and found out that the cricoarytenoid joint in my neck is inflamed. Diagnosed with Spond. In '97. If you have experienced this, what did you do? I am already on Humira. http://answers.ankylosing.org/87019/anyone-have-inflammation-in-the-cricoarytenoid-joint-not-well-known-that-it-can-be-affected-with-as/ Mon, 16 May 2011 17:40:33 +0000 Asked by Kristie Pelletier 10 months ago http://answers.ankylosing.org/87019/anyone-have-inflammation-in-the-cricoarytenoid-joint-not-well-known-that-it-can-be-affected-with-as/ I was wondering if anyone started out with lower back pain psorisis and pacreatitis. I'm tired of the Docs looking at me thinking i'm crazy. Or saying Depression can cause all that. My MRI says the most notable change of disk height between the L5-S1 joint. I have not been diagnosed yet, but have many of the symptoms listed on this site. Any help would be greatly appreciated? http://answers.ankylosing.org/87014/i-was-wondering-if-anyone-started-out-with-lower-back-pain-psorisis-and-pacreatitis-im-tired-of-the/ Mon, 16 May 2011 15:05:27 +0000 Asked by Derek McCarthy 10 months ago http://answers.ankylosing.org/87014/i-was-wondering-if-anyone-started-out-with-lower-back-pain-psorisis-and-pacreatitis-im-tired-of-the/ Does anyone with AS have a rash that itches after being on biologics? If so, What is the best way to keep it under control while staying on the biologics? http://answers.ankylosing.org/87009/does-anyone-with-as-have-a-rash-that-itches-after-being-on-biologics/ Mon, 16 May 2011 14:23:19 +0000 Asked by Julie 10 months ago http://answers.ankylosing.org/87009/does-anyone-with-as-have-a-rash-that-itches-after-being-on-biologics/ Anyone else get an attack after eating Mc D. I notice it preceeded my last couple trips to emerg? http://answers.ankylosing.org/86920/anyone-else-get-an-attack-after-eating-mc-d-i-notice-it-preceeded-my-last-couple-trips-to-emerg/ Sun, 15 May 2011 19:18:34 +0000 Asked by Derek McCarthy 10 months ago http://answers.ankylosing.org/86920/anyone-else-get-an-attack-after-eating-mc-d-i-notice-it-preceeded-my-last-couple-trips-to-emerg/ I traveled from Tx to Rhode Island yesterday, i will be here in Rhode Island for 2wks. I already had a sore throat which is going away and a bit of a cough, however today in the morning i woke up with both my hands being swollen, nothing on them, no itching either. Why is that? http://answers.ankylosing.org/86894/i-traveled-from-tx-to-rhode-island-yesterday-i-will-be-here-in-rhode-island-for-2wks-i-already-had/ Sun, 15 May 2011 14:33:34 +0000 Asked by Judy 10 months ago http://answers.ankylosing.org/86894/i-traveled-from-tx-to-rhode-island-yesterday-i-will-be-here-in-rhode-island-for-2wks-i-already-had/ I've read in many places Ginger helps with nausea and is also an anti inflammatory- i adore ginger tea and with my Methotrexate shots today it made me nauseous so i sliced off some ginger root and made a tea with it. Does anyone know what the "standard dose" for ginger is - so to speak? Or how much is too much etc http://answers.ankylosing.org/86853/ive-read-in-many-places-ginger-helps-with-nausea-and-is-also-an-anti-inflammatory-i-adore-ginger-tea/ Sun, 15 May 2011 05:48:18 +0000 Asked by Gail Fetch Hengen 10 months ago http://answers.ankylosing.org/86853/ive-read-in-many-places-ginger-helps-with-nausea-and-is-also-an-anti-inflammatory-i-adore-ginger-tea/ How does medicine help fusion? http://answers.ankylosing.org/86832/how-does-medicine-help-fusion/ Sun, 15 May 2011 01:52:04 +0000 Asked by Ron 10 months ago http://answers.ankylosing.org/86832/how-does-medicine-help-fusion/ How do i get what i wrote about as into the computer? http://answers.ankylosing.org/86831/how-do-i-get-what-i-wrote-about-as-into-the-computer/ Sun, 15 May 2011 01:50:38 +0000 Asked by Ron 10 months ago http://answers.ankylosing.org/86831/how-do-i-get-what-i-wrote-about-as-into-the-computer/ My rheumetologist has my blood checked for sed rate and crp (among many other things) to watch for side effects of the meds I am on. I have no way to know where my numbers fall in the range of people out there with Spondylitis. Are they horrible, not too bad, or average for someone like us? If anyone is tracking these 2 numbers for themselves, could you share about what your numbers are (crp and sed rate). Thanks to all and hopefully a day filled with less pain than usual! http://answers.ankylosing.org/86644/my-rheumetologist-has-my-blood-checked-for-sed-rate-and-crp-among-many-other-things-to-watch-for-side/ Fri, 13 May 2011 13:26:54 +0000 Asked by Tina Napoli Haller 10 months ago http://answers.ankylosing.org/86644/my-rheumetologist-has-my-blood-checked-for-sed-rate-and-crp-among-many-other-things-to-watch-for-side/ Was diag with AS in december (had it for about 8 yrs and have HLA-B27 gene) and then IBD in feb. I had major flare-up in january of both and my rheumy put me on high dose of the lovely steroids. Am desperate to come off them so am reducing the dose quicker than she's advised me - am sick and tired of the side-effects. I'm currently on 12.5mg a day and rib and back pain is starting to come back - which obviously means my body is getting back to "normal". Has anybody had the same on this dose? http://answers.ankylosing.org/86623/was-diag-with-as-in-december-had-it-for-about-8-yrs-and-have-hla-b27-gene-and-then-ibd-in-feb-i-had/ Fri, 13 May 2011 10:11:15 +0000 Asked by Corinna Scammell 10 months ago http://answers.ankylosing.org/86623/was-diag-with-as-in-december-had-it-for-about-8-yrs-and-have-hla-b27-gene-and-then-ibd-in-feb-i-had/ I am STILL trying to get in to see a rheumatologist after nearly a year. (Aren't insurance companies grand?) Since my regular doctors won't prescribe TNF blockers, they are having me try Celebrex. I have had great results with prednisone, but have never had any relief with over the counter NSAIDS. Has anyone found relief with Celebrex? Did you have any problems with the drug? Thanks in advance :) http://answers.ankylosing.org/86588/i-am-still-trying-to-get-in-to-see-a-rheumatologist-after-nearly-a-year-arent-insurance-companies/ Fri, 13 May 2011 01:39:25 +0000 Asked by Taylor Davis 10 months ago http://answers.ankylosing.org/86588/i-am-still-trying-to-get-in-to-see-a-rheumatologist-after-nearly-a-year-arent-insurance-companies/ Is curious how many on HUMIRA also need to take pain meds on a regular basis? What pain meds do you take? I find that with HUMIRA, Celebrex and Tylenol arthritis I have been doing pretty good. I still have pain but I realize that is never going to go away. I also exercise almost daily because if I don't I get super stiff. http://answers.ankylosing.org/86587/is-curious-how-many-on-humira-also-need-to-take-pain-meds-on-a-regular-basis-what-pain-meds-do-you-tak/ Fri, 13 May 2011 01:34:27 +0000 Asked by Deana Devries 10 months ago http://answers.ankylosing.org/86587/is-curious-how-many-on-humira-also-need-to-take-pain-meds-on-a-regular-basis-what-pain-meds-do-you-tak/ I went to a pain specialist yesterday for the very first time and I think its the best doctor I've been to in a long time. He listened to everything I had to say and helped me learn the difference between pain med addiction and dependence. I am dependant on pain meds to make my day liveable. My question is: He prescribed me a new med called Opana ER. Can anyone give me a lowdown on the side effects and/or whether or not it worked for you? http://answers.ankylosing.org/86582/i-went-to-a-pain-specialist-yesterday-for-the-very-first-time-and-i-think-its-the-best-doctor-ive-been/ Fri, 13 May 2011 01:18:07 +0000 Asked by Jennifer 10 months ago http://answers.ankylosing.org/86582/i-went-to-a-pain-specialist-yesterday-for-the-very-first-time-and-i-think-its-the-best-doctor-ive-been/ I just recently got dental insurance & am having some cavities filled tomorrow. (I've never had a cavitiy filled before). I had taken methotrexate a few yrs ago & just started taking it again by injection. I know that with enbrel and humira you have to be treated with other medication before having dental work. Do you have to with methotrexate injections as well? I ment to call and ask my rhuemy but I forgot. Any advice would be helpfull! http://answers.ankylosing.org/86499/i-just-recently-got-dental-insurance-am-having-some-cavities-filled-tomorrow-ive-never-had-a-cavitiy/ Thu, 12 May 2011 02:43:26 +0000 Asked by Kimberly 10 months ago http://answers.ankylosing.org/86499/i-just-recently-got-dental-insurance-am-having-some-cavities-filled-tomorrow-ive-never-had-a-cavitiy/ My husband has been given the option to have infusion or injection Remicade, we are trying to decide but haven't got a clue as to which is easier on him. Any advice would be helpful. Thanks? http://answers.ankylosing.org/86498/my-husband-has-been-given-the-option-to-have-infusion-or-injection-remicade-we-are-trying-to-decide/ Thu, 12 May 2011 02:05:31 +0000 Asked by Melissa N' Jp 10 months ago http://answers.ankylosing.org/86498/my-husband-has-been-given-the-option-to-have-infusion-or-injection-remicade-we-are-trying-to-decide/ Anyone else trying to switch from a standing/ lifting job to a sitting down job, but having a hard time answering the question "Reason for leaving previous job" ? How do you answer this question? http://answers.ankylosing.org/86494/anyone-else-trying-to-switch-from-a-standing-lifting-job-to-a-sitting-down-job-but-having-a-hard-time/ Thu, 12 May 2011 00:17:09 +0000 Asked by Tiffany 10 months ago http://answers.ankylosing.org/86494/anyone-else-trying-to-switch-from-a-standing-lifting-job-to-a-sitting-down-job-but-having-a-hard-time/ Still waiting on precert for remicade for hubby. What I would like to know is what kind of side affects can we expect? http://answers.ankylosing.org/86475/still-waiting-on-precert-for-remicade-for-hubby-what-i-would-like-to-know-is-what-kind-of-side-affects/ Wed, 11 May 2011 19:49:01 +0000 Asked by Becky 10 months ago http://answers.ankylosing.org/86475/still-waiting-on-precert-for-remicade-for-hubby-what-i-would-like-to-know-is-what-kind-of-side-affects/ My father wants me to go see an 'energy healer' to fix up my Spondylitis issues. He seems to think positive energy - at $180 per session - will cure Spondylitis so that I won't have to keep taking the Enbrel injections and all of the other meds. It feels so dismissive to hear him say a remote healer could (theoretically) do what years of research and medications cannot. Anyone have experience/advice wrt to healers? http://answers.ankylosing.org/86422/my-father-wants-me-to-go-see-an-energy-healer-to-fix-up-my-spondylitis-issues-he-seems-to-think-positive/ Wed, 11 May 2011 07:47:15 +0000 Asked by Rose Bigham 10 months ago http://answers.ankylosing.org/86422/my-father-wants-me-to-go-see-an-energy-healer-to-fix-up-my-spondylitis-issues-he-seems-to-think-positive/ I do not have a formal diagnoses yet, just Spondylitis with disk herniation on the cervical, thoracic, AND lumbar of my back at only 35. Back pain is excrutiating and until I tested positive for the HLA-B27 gene. I also have tendonities and plantar fasciatis. As an RN I make a terrible patient. MD has put me on Sulfasalazine, has anyone had any luck with this drug in thier treatment? I have been miserable for 2 years and just want my life back. Hydroxychloroquine was already tried http://answers.ankylosing.org/86396/i-do-not-have-a-formal-diagnoses-yet-just-spondylitis-with-disk-herniation-on-the-cervical-thoracic/ Wed, 11 May 2011 02:55:12 +0000 Asked by Tricia Carsley 10 months ago http://answers.ankylosing.org/86396/i-do-not-have-a-formal-diagnoses-yet-just-spondylitis-with-disk-herniation-on-the-cervical-thoracic/ Has anyone here had to resort to surgery due to stenosis that was aggravated by AS? I am at that point with persistent acute pain in my neck and shoulders. To complicate matters I am on coumadin due to a personal and family history of pulmonary embolisms. They have to take me off the coumadin and insert a filter before any surgery. http://answers.ankylosing.org/86379/has-anyone-here-had-to-resort-to-surgery-due-to-stenosis-that-was-aggravated-by-as/ Wed, 11 May 2011 00:19:36 +0000 Asked by Jerry Grynspan 10 months ago http://answers.ankylosing.org/86379/has-anyone-here-had-to-resort-to-surgery-due-to-stenosis-that-was-aggravated-by-as/ Hi All, does anyone know which TNF blocker is preffered by the NHS? Ive got an appointment with my consultant in june and i want to read up on it because the last time we discussed the use of biologics to resolve all the various issues i have, iritis, psoriasis and very achy everything! Thx allun http://answers.ankylosing.org/86249/hi-all-does-anyone-know-which-tnf-blocker-is-preffered-by-the-nhs/ Mon, 09 May 2011 21:25:16 +0000 Asked by Allun Edge 10 months ago http://answers.ankylosing.org/86249/hi-all-does-anyone-know-which-tnf-blocker-is-preffered-by-the-nhs/ Remicade Users: Does anyone have any sleep issues with the Remicade? I just had my third infusion and noticed I haven't been able to sleep. Normally it would be the pain keeping me up, but its not this time. Its hard to describe, I just can't sleep... http://answers.ankylosing.org/86248/remicade-users-does-anyone-have-any-sleep-issues-with-the-remicade/ Mon, 09 May 2011 21:09:31 +0000 Asked by Dave 10 months ago http://answers.ankylosing.org/86248/remicade-users-does-anyone-have-any-sleep-issues-with-the-remicade/ Accupnture and homepathic / Chinese medicine. Does anybody use this to compliment their treatment? I've been on Humira, Remicade, Enebrel, and all the TNFs which have stopped working. I take a NSAID, steroid, muscle relaxer and seem to be have lots of issues with thrush. I'm at my wit's end with this crap. http://answers.ankylosing.org/86159/accupnture-and-homepathic-chinese-medicine-does-anybody-use-this-to-compliment-their-treatment/ Sun, 08 May 2011 19:23:20 +0000 Asked by As Sufferer 10 months ago http://answers.ankylosing.org/86159/accupnture-and-homepathic-chinese-medicine-does-anybody-use-this-to-compliment-their-treatment/ Has anybody had their jaw swell and become very painful. Apparently, I'm on the severe side of the disease. I've had pancreatitis, jaw, uvetitis, ankle, wrists, hands, pelvis, of course back all have issues. This jaw thing really bites though. I took extra prednisone (poison) and the swelling went down but now it hurts like hell. I think it might be damaged? http://answers.ankylosing.org/86158/has-anybody-had-their-jaw-swell-and-become-very-painful-apparently-im-on-the-severe-side-of-the-disease/ Sun, 08 May 2011 19:21:31 +0000 Asked by As Sufferer 10 months ago http://answers.ankylosing.org/86158/has-anybody-had-their-jaw-swell-and-become-very-painful-apparently-im-on-the-severe-side-of-the-disease/ My husband was dx with AS about 4 years ago to begin with we couldn't afford any meds exept pain meds until he was put on medicaide so he relied soley on pain meds for years,resulting in addiction. He is now on remicaide and after several diff pain meds is back on oxycodone 5mg which he goes thru in about a week. He doesnt think ne thing can help him exept pain meds, i don't know if his addiction is getting in the way of making him feel better. Is there ne one out there who can make ne sug? http://answers.ankylosing.org/86120/my-husband-was-dx-with-as-about-4-years-ago-to-begin-with-we-couldnt-afford-any-meds-exept-pain-meds/ Sun, 08 May 2011 15:20:14 +0000 Asked by Jason Fulford 10 months ago http://answers.ankylosing.org/86120/my-husband-was-dx-with-as-about-4-years-ago-to-begin-with-we-couldnt-afford-any-meds-exept-pain-meds/ I am finally coming off of a 7-day flare, first real bad one in months. Night sweats, no sleep because neck pain was too severe, knees, feet, right hip all bad. Thank god I got in to see my pain doc who was startled to see how little mobility I had all over. He wrote extra morphine and some valium for short-term use (in addition to long-term low-dose morphine sulfate which I always take). If you do not have a pain specialist amongst your 'staff' I *highly* recommend you get yourself one? http://answers.ankylosing.org/86114/i-am-finally-coming-off-of-a-7-day-flare-first-real-bad-one-in-months-night-sweats-no-sleep-because/ Sun, 08 May 2011 14:57:05 +0000 Asked by Rose Bigham 10 months ago http://answers.ankylosing.org/86114/i-am-finally-coming-off-of-a-7-day-flare-first-real-bad-one-in-months-night-sweats-no-sleep-because/ Good Morning my Friends, Wanted to say Happy Mothers Day to my AS friends here! Also, a note - I joined this site 5 months ago - the member count was less than 600. As of today we are 889 strong. Thanks for being such a great support system and always being "here" when we all need support? http://answers.ankylosing.org/86102/good-morning-my-friends-wanted-to-say-happy-mothers-day-to-my-as-friends-here-also-a-note-i-joined/ Sun, 08 May 2011 13:24:48 +0000 Asked by Jenni 10 months ago http://answers.ankylosing.org/86102/good-morning-my-friends-wanted-to-say-happy-mothers-day-to-my-as-friends-here-also-a-note-i-joined/ My 14-year-old daughter has had severe upper back and joint pain for a couple of years. We were first told it was Scheurmann's Kyphosis, then JA, then AS. We've been through many combos of meds - methotrexate and Humira, then Enbrel, but they didn't help at all. Do they usuallly work for AS or just JA? Now she takes tramadol, gabapentin and a muscle relaxant three times a day, which don't help much. Any advice or experiences to share regarding meds? Afraid of Cymbalta cuz of her age.... http://answers.ankylosing.org/86087/my-14-year-old-daughter-has-had-severe-upper-back-and-joint-pain-for-a-couple-of-years-we-were-first/ Sun, 08 May 2011 03:45:16 +0000 Asked by Erin Hogan 10 months ago http://answers.ankylosing.org/86087/my-14-year-old-daughter-has-had-severe-upper-back-and-joint-pain-for-a-couple-of-years-we-were-first/ Anyone on longterm hydrocodone or oxycodone therapy? Does it work? Any side effects? http://answers.ankylosing.org/86021/anyone-on-longterm-hydrocodone-or-oxycodone-therapy-does-it-work/ Sat, 07 May 2011 10:42:49 +0000 Asked by Stephen 10 months ago http://answers.ankylosing.org/86021/anyone-on-longterm-hydrocodone-or-oxycodone-therapy-does-it-work/ My Dr. Just switched me from Enbrel to Humira. Enbrel was working for me. I wasn't back to pre-AS days, but I was much better. But my bouts with iritis weren't easing up. So he wants to see if Humira will help. My question is this. I am trying to be patient, but I took my first shot 4 days ago and I do not feel any relief. Now that I've been off Enbrel for a while, I'm back to the full pain. How long did it take you to feel something from Humira? http://answers.ankylosing.org/85956/my-dr-just-switched-me-from-enbrel-to-humira-enbrel-was-working-for-me-i-wasnt-back-to-pre-as-days/ Fri, 06 May 2011 16:27:32 +0000 Asked by Karla 10 months ago http://answers.ankylosing.org/85956/my-dr-just-switched-me-from-enbrel-to-humira-enbrel-was-working-for-me-i-wasnt-back-to-pre-as-days/ I'm 40, have AS, HLA B27 positive, + rheumatoid factor, and ACE level is elevated also have hypothyroidism. I am not taking anything for AS yet except over the counter stuff because current rheumy doesn't think it's bad enough yet (looking for a new one). I have been having severe night sweats for the past couple of years. Its every night, and it's drenching. Not menopausal. Anyone else have this with AS, any remedies? I'm so tired of washing all my bed linens every day! Thx for your help! http://answers.ankylosing.org/85953/im-40-have-as-hla-b27-positive-rheumatoid-factor-and-ace-level-is-elevated-also-have-hypothyroidism/ Fri, 06 May 2011 15:18:03 +0000 Asked by Jessica Justice Engel 10 months ago http://answers.ankylosing.org/85953/im-40-have-as-hla-b27-positive-rheumatoid-factor-and-ace-level-is-elevated-also-have-hypothyroidism/ I have AS and I read on here a lot of different meds that I have never heard of like TENS, tramadol and the list goes on. My doc has tried Enbrel and Humira with no luck on either one, so I am on celebrex and sulferzine pills with T3's for the pain which works to a point. My problem is I am very sensitive to meds and I cannot change without bad side effects so i am very limited on what I take. Does any on have any suggestions? http://answers.ankylosing.org/85951/i-have-as-and-i-read-on-here-a-lot-of-different-meds-that-i-have-never-heard-of-like-tens-tramadol-and/ Fri, 06 May 2011 14:46:36 +0000 Asked by Ray Manning 10 months ago http://answers.ankylosing.org/85951/i-have-as-and-i-read-on-here-a-lot-of-different-meds-that-i-have-never-heard-of-like-tens-tramadol-and/ Barry Trotz is advertising a TENS unit on TV. Are TENS units beneficial to AS patients? Is this product effective or how else does one acquire a TENS unit? http://answers.ankylosing.org/85924/barry-trotz-is-advertising-a-tens-unit-on-tv-are-tens-units-beneficial-to-as-patients/ Fri, 06 May 2011 12:37:22 +0000 Asked by Stephen 10 months ago http://answers.ankylosing.org/85924/barry-trotz-is-advertising-a-tens-unit-on-tv-are-tens-units-beneficial-to-as-patients/ Ok VERY frustrated, feel like my doctors think I am a big fat joke, I have continual pain in upper back MRI normal, and SI pain controlled by HUMIRA. Any suggestions? Those with fibro how did you get diagnosis? Thanks http://answers.ankylosing.org/85752/ok-very-frustrated-feel-like-my-doctors-think-i-am-a-big-fat-joke-i-have-continual-pain-in-upper-back/ Thu, 05 May 2011 06:03:39 +0000 Asked by Roman Reid 10 months ago http://answers.ankylosing.org/85752/ok-very-frustrated-feel-like-my-doctors-think-i-am-a-big-fat-joke-i-have-continual-pain-in-upper-back/ Has anyone had experience with an infomercial product called Fit4Life? Or perhaps a similar product? http://answers.ankylosing.org/85717/has-anyone-had-experience-with-an-infomercial-product-called-fit4life/ Wed, 04 May 2011 21:28:43 +0000 Asked by Terry Watson 10 months ago http://answers.ankylosing.org/85717/has-anyone-had-experience-with-an-infomercial-product-called-fit4life/ Swelling... SO this morning I woke up around 1 am with horrible inflammatory pain in the heels of my feet... Not unusual for me... But my back was sore, and my hips and my feet... And my neck was stiff... Anyway my husband was giving me a nice gentle back rub and said my neck was swollen, right at the base where it meets your shoulders, the little bump that's there. I told him he was imagining things.. But it is indeed swollen and hot. Something I should worry about? http://answers.ankylosing.org/85703/swelling-so-this-morning-i-woke-up-around-1-am-with-horrible-inflammatory-pain-in-the-heels-of-my/ Wed, 04 May 2011 19:46:44 +0000 Asked by Lindsay Cairns 10 months ago http://answers.ankylosing.org/85703/swelling-so-this-morning-i-woke-up-around-1-am-with-horrible-inflammatory-pain-in-the-heels-of-my/ I have AS. I went to the rheumotologist today and my white blood count was just over 20%, normally it is between 12-14%. What does this mean? He just said he was sending my blood for further testing to see if anything else was going on. No significant swelling or pain-just my normal amount and I haven't been sick. http://answers.ankylosing.org/85667/i-have-as-i-went-to-the-rheumotologist-today-and-my-white-blood-count-was-just-over-20-normally-it/ Wed, 04 May 2011 15:36:21 +0000 Asked by Janet Vorwald 10 months ago http://answers.ankylosing.org/85667/i-have-as-i-went-to-the-rheumotologist-today-and-my-white-blood-count-was-just-over-20-normally-it/ My doctor is considering putting me on Humira in a few months if my current meds still aren't working for me. I am currently on Enbrel and Methotrexate (pills). From what I've read Humira sounds alot like Enbrel with similar side effects. Has anyone taken both and is Humira more dangerous to take? http://answers.ankylosing.org/85582/my-doctor-is-considering-putting-me-on-humira-in-a-few-months-if-my-current-meds-still-arent-working/ Wed, 04 May 2011 03:26:51 +0000 Asked by Sabrina Griffin 10 months ago http://answers.ankylosing.org/85582/my-doctor-is-considering-putting-me-on-humira-in-a-few-months-if-my-current-meds-still-arent-working/ My husband has severe back pain, this has been consistant for 3-4 years, his consultant strongly beleives its AS, he is HLA-B27 Positive, and his father has diagnosed AS, hes been observed over a year and MRI scans show no degeneration as yet(although some to the lumbar spine), although hes in constant pain with constant stiff back, at his last consultant appointment his flexion to the right had diminised to 10degrees and on the left 20degrees.Is the end with a definate diagnosis in sight? http://answers.ankylosing.org/85537/my-husband-has-severe-back-pain-this-has-been-consistant-for-3-4-years-his-consultant-strongly-beleives/ Tue, 03 May 2011 19:09:07 +0000 Asked by Stephanie Broadley 10 months ago http://answers.ankylosing.org/85537/my-husband-has-severe-back-pain-this-has-been-consistant-for-3-4-years-his-consultant-strongly-beleives/ I have several types of arithritis: Psoriatic in feet and hands, anylosing spondylitis, ostoa and fibermylegia will flare up. Have tried all the injectables, the latest Simponi, inflamination just keeps increasing. Do pain control. I have a 12 year old son, widow always either hurting or tired. Can anything help with tiredness? http://answers.ankylosing.org/85534/i-have-several-types-of-arithritis-psoriatic-in-feet-and-hands-anylosing-spondylitis-ostoa-and-fibermylegia/ Tue, 03 May 2011 18:42:22 +0000 Asked by Glovett 10 months ago http://answers.ankylosing.org/85534/i-have-several-types-of-arithritis-psoriatic-in-feet-and-hands-anylosing-spondylitis-ostoa-and-fibermylegia/ I am on remicade, tramadol & relefin. I'm diagnosed as undifferentiated spondylitis. I've noticed a rash on both forearms that itches really bad and sort of looks like poison ivy with little raised bumps. Anyone else having this problem? http://answers.ankylosing.org/85501/i-am-on-remicade-tramadol-relefin-im-diagnosed-as-undifferentiated-spondylitis-ive-noticed-a-rash/ Tue, 03 May 2011 14:48:00 +0000 Asked by Karen 10 months ago http://answers.ankylosing.org/85501/i-am-on-remicade-tramadol-relefin-im-diagnosed-as-undifferentiated-spondylitis-ive-noticed-a-rash/ Just had a HLA-B27 test, results indicate a 90% chance of Ankylosing spondylitis. However, my back seems fine and I went to the doctor due to aching wrists, ankles, knees. I have booked into see a specialist, but anyone got any thoughts on this? Assuming it is AS, can the effects be reversed to make the aching go away without medication? Im 30yrs old. http://answers.ankylosing.org/85457/just-had-a-hla-b27-test-results-indicate-a-90-chance-of-ankylosing-spondylitis-however-my-back-seems/ Tue, 03 May 2011 03:50:04 +0000 Asked by Simon Jackson 10 months ago http://answers.ankylosing.org/85457/just-had-a-hla-b27-test-results-indicate-a-90-chance-of-ankylosing-spondylitis-however-my-back-seems/ I am on Humira and i am thinking about going on holiday to spain ,we are going to drive down and i was wondering how to keep them cold.we are thinking of going for two weeks? http://answers.ankylosing.org/85415/i-am-on-humira-and-i-am-thinking-about-going-on-holiday-to-spain-we-are-going-to-drive-down-and-i-was/ Mon, 02 May 2011 21:26:09 +0000 Asked by Jenny 10 months ago http://answers.ankylosing.org/85415/i-am-on-humira-and-i-am-thinking-about-going-on-holiday-to-spain-we-are-going-to-drive-down-and-i-was/ Rheumy told me when I started Remicade that it would help inflammation but not help/undo damage that was already done. So how do you tell the difference between 'inflammation' and 'damage?' Current dose for inflammatory arthritis is 6 vials-8mg/kg and I just had 6th infusion. It's helping some-less stiff in morning and slightly better stamina, but pain is largely the same. http://answers.ankylosing.org/85341/rheumy-told-me-when-i-started-remicade-that-it-would-help-inflammation-but-not-helpundo-damage-that/ Mon, 02 May 2011 04:42:15 +0000 Asked by Theresa Morris 10 months ago http://answers.ankylosing.org/85341/rheumy-told-me-when-i-started-remicade-that-it-would-help-inflammation-but-not-helpundo-damage-that/ Anyone have any great healthy recipes. I am looking to change my habits and try to drop some of this weight i have pick up because of the lack of activity due to AS. My goal this week, eat fresh and move more than I have been. We will see. I would love any tips? http://answers.ankylosing.org/85328/anyone-have-any-great-healthy-recipes-i-am-looking-to-change-my-habits-and-try-to-drop-some-of-this/ Mon, 02 May 2011 00:03:47 +0000 Asked by Amy Arndt 10 months ago http://answers.ankylosing.org/85328/anyone-have-any-great-healthy-recipes-i-am-looking-to-change-my-habits-and-try-to-drop-some-of-this/ I always had extremely bad "growing pains" growing up. Now my daughter seems to excessive growing pains. Did any of you experience extreme growth pains? Also, do any of you have fingernails that grow "upward" rather than curving downward as they should? http://answers.ankylosing.org/85181/i-always-had-extremely-bad-growing-pains-growing-up-now-my-daughter-seems-to-excessive-growing-pains/ Sat, 30 Apr 2011 04:42:56 +0000 Asked by Lizzie Darcy 10 months ago http://answers.ankylosing.org/85181/i-always-had-extremely-bad-growing-pains-growing-up-now-my-daughter-seems-to-excessive-growing-pains/ Blood Group & Disease ~ Why almost every study is wrong! The problem with most research studies related to blood type and disease, is that there are so many variables and many fall victim to the fallacy of pooling heterogeneous data. READ MORE > rhnegativeregistry.com/Ankylosing-Spondylitis-AS-Autoimmune- http://answers.ankylosing.org/85098/blood-group-disease-why-almost-every-study-is-wrong-the-problem-with-most-research-studies-related/ Fri, 29 Apr 2011 05:57:43 +0000 Asked by Jessica Farrell 10 months ago http://answers.ankylosing.org/85098/blood-group-disease-why-almost-every-study-is-wrong-the-problem-with-most-research-studies-related/ I had my 4th Enbrel injection on Tuesday, today 2 days later I have a red rash that's hot to touch in the area of injection. Did anyone have that problem? http://answers.ankylosing.org/85092/i-had-my-4th-enbrel-injection-on-tuesday-today-2-days-later-i-have-a-red-rash-thats-hot-to-touch-in/ Fri, 29 Apr 2011 03:57:57 +0000 Asked by Anna Blaszkiewicz 10 months ago http://answers.ankylosing.org/85092/i-had-my-4th-enbrel-injection-on-tuesday-today-2-days-later-i-have-a-red-rash-thats-hot-to-touch-in/ Do some of you find it hard to do the exercises that we are supposed to do to help keep AS from progressing? I have been have some real bad pain in my shoulder and I can not do the exercises, not that I have not tried, without feeling severe pain and making my pain worse. Do you have any suggestions or have you felt the same way? http://answers.ankylosing.org/84986/do-some-of-you-find-it-hard-to-do-the-exercises-that-we-are-supposed-to-do-to-help-keep-as-from-progressin/ Wed, 27 Apr 2011 23:27:47 +0000 Asked by Randy 10 months ago http://answers.ankylosing.org/84986/do-some-of-you-find-it-hard-to-do-the-exercises-that-we-are-supposed-to-do-to-help-keep-as-from-progressin/ Anyone on here finding it hard to keep weight on? I'm 16 & I have chronic juvenile idiopathic (rheumatoid) arthritis, hypermobility, undifferentiated spondyloartheopathy plus a neuropathic pain disorder. I'm on 20mg methotrexate per week, 15mg norspan daily, iron tablets, folic acid tablets, 200 mg ketaprofen daily. I used to weigh 56kg now I'm only 48-49kg and I'm soo skinny I can see my ribs :S nothing I eat helps! I eat so much crap I'm surprised I'm not obese by now lol. Thankyou in advance http://answers.ankylosing.org/84957/anyone-on-here-finding-it-hard-to-keep-weight-on/ Wed, 27 Apr 2011 18:47:15 +0000 Asked by Sarah 10 months ago http://answers.ankylosing.org/84957/anyone-on-here-finding-it-hard-to-keep-weight-on/ I am new on here. Anybody else diagnosed with Undifferentiated Spondy? It means I don't have any fusion at this time, and may never, but I have most all the other symptoms. I have had 2 flares that each lasted over a year, and they were 3 years apart. I do still have a lot of symptoms in between, just not as bad as during a flare.I carry the gene which gives me a higher risk of developing full blown AS. Anybody relate? http://answers.ankylosing.org/84953/i-am-new-on-here-anybody-else-diagnosed-with-undifferentiated-spondy/ Wed, 27 Apr 2011 17:23:50 +0000 Asked by Cheryl Herrington 10 months ago http://answers.ankylosing.org/84953/i-am-new-on-here-anybody-else-diagnosed-with-undifferentiated-spondy/ Accepted Study supports my theory - ABO RhD Incompatibility & Health Issues Proof is starting to rear it's head! OUTCOME OF STUDY - A hypothesis was advanced to the effect that the mother-child incompatibility for Rhesus and ABO antigens may result not only in fetal wastage and haemolytic disease of newborns, but also in the decrease of child's resistance to diseases of different origin. Abstract Article in the Members Area > www.rhnegativeregistry.com/how-rh-negative-body-different.ht http://answers.ankylosing.org/84901/accepted-study-supports-my-theory-abo-rhd-incompatibility-health-issues-proof-is-starting-to-rear/ Wed, 27 Apr 2011 08:21:11 +0000 Asked by Jessica Farrell 10 months ago http://answers.ankylosing.org/84901/accepted-study-supports-my-theory-abo-rhd-incompatibility-health-issues-proof-is-starting-to-rear/ Ok i know this may be a touchy subject, but i was wondering if anyone else runs out of there pain meds before the time they should? I know i sometimes do. http://answers.ankylosing.org/84883/ok-i-know-this-may-be-a-touchy-subject-but-i-was-wondering-if-anyone-else-runs-out-of-there-pain-meds/ Tue, 26 Apr 2011 22:38:55 +0000 Asked by Steffie Jo 10 months ago http://answers.ankylosing.org/84883/ok-i-know-this-may-be-a-touchy-subject-but-i-was-wondering-if-anyone-else-runs-out-of-there-pain-meds/ My 14-year-old has a suspected case of AS. Has anyone found relief, even temporary, in using a TENS unit or an RS stimulator? http://answers.ankylosing.org/84851/my-14-year-old-has-a-suspected-case-of-as-has-anyone-found-relief-even-temporary-in-using-a-tens-unit/ Tue, 26 Apr 2011 15:04:31 +0000 Asked by Cindy Hoffman 10 months ago http://answers.ankylosing.org/84851/my-14-year-old-has-a-suspected-case-of-as-has-anyone-found-relief-even-temporary-in-using-a-tens-unit/ How to get Visiting Visa for USA? http://answers.ankylosing.org/84837/how-to-get-visiting-visa-for-usa/ Tue, 26 Apr 2011 12:17:36 +0000 Asked by Shyam Prasad 10 months ago http://answers.ankylosing.org/84837/how-to-get-visiting-visa-for-usa/ I am just wanting to know how many others w/as deal w/asthma? How do you control your asthma? Asthma is something new for me. I spent 4 days in the hospital due to bronchitis & asthma. Looking for any advise on this asthma stuff. I am curently taking predisone, advir, xopenex neb treatments & abuteral. Having issue's w/increased heart rate as well. http://answers.ankylosing.org/84823/i-am-just-wanting-to-know-how-many-others-was-deal-wasthma-how-do-you-control-your-asthma/ Tue, 26 Apr 2011 01:27:02 +0000 Asked by Kimberly 10 months ago http://answers.ankylosing.org/84823/i-am-just-wanting-to-know-how-many-others-was-deal-wasthma-how-do-you-control-your-asthma/ Roll call- How many here have to have injections- what and when? I'll go first- I have to have Humira once a week (standard dose is once every two weeks) and 10cc's of methotrexate once a week as well. It sucks! http://answers.ankylosing.org/84810/roll-call-how-many-here-have-to-have-injections-what-and-when/ Mon, 25 Apr 2011 22:37:47 +0000 Asked by Gail Fetch Hengen 10 months ago http://answers.ankylosing.org/84810/roll-call-how-many-here-have-to-have-injections-what-and-when/ My daughter is 17 and has MCTD, AS being a major part of her pain. Diagnosed with MCTD almost two years ago and recent AS diagnoses. Most pain meds don't work for her. Does anyone know of a pain med that really works? http://answers.ankylosing.org/84745/my-daughter-is-17-and-has-mctd-as-being-a-major-part-of-her-pain-diagnosed-with-mctd-almost-two-years/ Mon, 25 Apr 2011 01:01:16 +0000 Asked by Aileen 10 months ago http://answers.ankylosing.org/84745/my-daughter-is-17-and-has-mctd-as-being-a-major-part-of-her-pain-diagnosed-with-mctd-almost-two-years/ About once a week, I get a "snapping" feeling between my right ear and collarbone. It feels like an elastic band is being snapped against my skin, or an electric shock. I usually get it when turning my neck, and I recently felt it in my right knee. Does anyone else get this? http://answers.ankylosing.org/84743/about-once-a-week-i-get-a-snapping-feeling-between-my-right-ear-and-collarbone-it-feels-like-an-elastic/ Mon, 25 Apr 2011 00:35:30 +0000 Asked by Kathryn 10 months ago http://answers.ankylosing.org/84743/about-once-a-week-i-get-a-snapping-feeling-between-my-right-ear-and-collarbone-it-feels-like-an-elastic/ Spin-off on nightshade-free / GF diet: "Catherine, I agree with you 90% but there has never been proven any dietary changes that will remedy/alleviate AS. There are instances of related IBD's that make one sensitive to gluten, but those are rare and the treatment is really for the IBD and not the AS." I have a theory on the nightshade-free diet and? http://answers.ankylosing.org/84742/spin-off-on-nightshade-free-gf-diet-catherine-i-agree-with-you-90-but-there-has-never-been-proven/ Mon, 25 Apr 2011 00:29:47 +0000 Asked by Catherine Terry 10 months ago http://answers.ankylosing.org/84742/spin-off-on-nightshade-free-gf-diet-catherine-i-agree-with-you-90-but-there-has-never-been-proven/ I was diagnosed in 2007 after being sick since 2000. My question is this...I have been having trouble with keloids on old scars. Like one on my foot that I have had since I was 3 that is about 37 years old. Also an old tattoo that has keloids on it now. Seems like it is only affecting my old scars. Has anyone else had these? I am in prednisone right now and the keloids seem to be going back down. http://answers.ankylosing.org/84740/i-was-diagnosed-in-2007-after-being-sick-since-2000-my-question-is-thisi-have-been-having-trouble/ Sun, 24 Apr 2011 23:51:52 +0000 Asked by Jennifer Douglas 10 months ago http://answers.ankylosing.org/84740/i-was-diagnosed-in-2007-after-being-sick-since-2000-my-question-is-thisi-have-been-having-trouble/ I keep feeling sad lately. It seems if i have a two to three bad days the blues set in How can I get out of this slump? http://answers.ankylosing.org/84736/i-keep-feeling-sad-lately-it-seems-if-i-have-a-two-to-three-bad-days-the-blues-set-in-how-can-i-get/ Sun, 24 Apr 2011 22:38:16 +0000 Asked by Tammy Mcnaught 10 months ago http://answers.ankylosing.org/84736/i-keep-feeling-sad-lately-it-seems-if-i-have-a-two-to-three-bad-days-the-blues-set-in-how-can-i-get/ I've just been diagnosed with AS, so I'm still on the learning curve about what pain is AS and what isn't. I will occasionally have sudden excruciating pain stem from one joint. Today it was my right knee. I was standing, went to put pressure on my leg and pain shot through my leg. Is this normal? http://answers.ankylosing.org/84733/ive-just-been-diagnosed-with-as-so-im-still-on-the-learning-curve-about-what-pain-is-as-and-what-isnt/ Sun, 24 Apr 2011 21:54:16 +0000 Asked by Stacy 10 months ago http://answers.ankylosing.org/84733/ive-just-been-diagnosed-with-as-so-im-still-on-the-learning-curve-about-what-pain-is-as-and-what-isnt/ There is a strong possibility that my 14-year-old son has AS. He has been suffering from chronic back pain and headaches. Both his dad and grandfather have AS. Any advice on meds for teenagers? He took NSAIDs (Naproxen) for a year, but that put him in the hospital with gastric bleeding. Also, I'd appreciate any advice on keeping him positive. http://answers.ankylosing.org/84717/there-is-a-strong-possibility-that-my-14-year-old-son-has-as-he-has-been-suffering-from-chronic-back/ Sun, 24 Apr 2011 15:20:23 +0000 Asked by Cindy Hoffman 10 months ago http://answers.ankylosing.org/84717/there-is-a-strong-possibility-that-my-14-year-old-son-has-as-he-has-been-suffering-from-chronic-back/ Has anyone tried a low-starch diet to lower inflamation? I heard that by going gluten-free I could help myself? http://answers.ankylosing.org/84669/has-anyone-tried-a-low-starch-diet-to-lower-inflamation/ Sat, 23 Apr 2011 22:17:57 +0000 Asked by Emma 10 months ago http://answers.ankylosing.org/84669/has-anyone-tried-a-low-starch-diet-to-lower-inflamation/ To all those that take MTX... What is your schedule for your regular blood tests? Has anyone had issues with their liver while taking MTX? I have been having pain under my right rib cage radiating to the back and not sure if it could be problems with my AS or with my liver or something else. My latest blood test is about 10 weeks ago. http://answers.ankylosing.org/84665/to-all-those-that-take-mtx-what-is-your-schedule-for-your-regular-blood-tests-has-anyone-had-issues/ Sat, 23 Apr 2011 21:15:07 +0000 Asked by Lililafond 10 months ago http://answers.ankylosing.org/84665/to-all-those-that-take-mtx-what-is-your-schedule-for-your-regular-blood-tests-has-anyone-had-issues/ I was told by my rhumy that MTX does not work for patients with AS and will only prescribe Humira. I see several posts where people are using or have used MTX. My GP does not want me on either and insists that poisoning my immune system is not an option. I know there is no guarantee either will work but would prefer to try MTX first. Anyone having positive results with it? http://answers.ankylosing.org/84659/i-was-told-by-my-rhumy-that-mtx-does-not-work-for-patients-with-as-and-will-only-prescribe-humira-i/ Sat, 23 Apr 2011 20:10:54 +0000 Asked by Michael Rowley 10 months ago http://answers.ankylosing.org/84659/i-was-told-by-my-rhumy-that-mtx-does-not-work-for-patients-with-as-and-will-only-prescribe-humira-i/ I'm having a hard time dealing today. The pain is so severe I cried for hours. Want to scream in anger and physically worn. No one understands and I have no insurance. Any all natural things that help you mentally and physically deal with this torment and pain? Thank You! http://answers.ankylosing.org/84582/im-having-a-hard-time-dealing-today-the-pain-is-so-severe-i-cried-for-hours-want-to-scream-in-anger/ Fri, 22 Apr 2011 23:07:12 +0000 Asked by Kourtenay 10 months ago http://answers.ankylosing.org/84582/im-having-a-hard-time-dealing-today-the-pain-is-so-severe-i-cried-for-hours-want-to-scream-in-anger/ I have a hard time getting my Humira covered. I still end up paying a lot of money every yr. I am on Humira plan too it is a mess! I hear that some get it for $5 a month but it is impossible for me to do that with Health Net. My question is anyone getting Humira for $5 or very low co pay? Can anyome recommend a better insurance company. What insurance works well with Humira? http://answers.ankylosing.org/84570/i-have-a-hard-time-getting-my-humira-covered-i-still-end-up-paying-a-lot-of-money-every-yr-i-am-on/ Fri, 22 Apr 2011 19:19:25 +0000 Asked by Deana Devries 10 months ago http://answers.ankylosing.org/84570/i-have-a-hard-time-getting-my-humira-covered-i-still-end-up-paying-a-lot-of-money-every-yr-i-am-on/ Does anyone put on weight with TNF blockers, or do you lose weight? http://answers.ankylosing.org/84520/does-anyone-put-on-weight-with-tnf-blockers-or-do-you-lose-weight/ Fri, 22 Apr 2011 06:13:49 +0000 Asked by Carmen 10 months ago http://answers.ankylosing.org/84520/does-anyone-put-on-weight-with-tnf-blockers-or-do-you-lose-weight/ Any healthcare professionals here? I'm a clinical fellow and I just got diagnosed with AS, and the rheumatologists are talking about biologics (humira etc). My symptoms are reasonably controlled on moderate dose NSAIDS, and I'm worried about the immunosuppression when I come into contact with patients with MRSA, C diff etc... Any MDs or nurses with experiences in this? http://answers.ankylosing.org/84507/any-healthcare-professionals-here/ Fri, 22 Apr 2011 02:29:15 +0000 Asked by Kye 10 months ago http://answers.ankylosing.org/84507/any-healthcare-professionals-here/ Lately I feel like someone has their hands wrapped around my throat. No pain. Just feels swollen all of the time. Anyone else experience this? http://answers.ankylosing.org/84487/lately-i-feel-like-someone-has-their-hands-wrapped-around-my-throat-no-pain-just-feels-swollen-all/ Thu, 21 Apr 2011 21:21:15 +0000 Asked by Michael Rowley 10 months ago http://answers.ankylosing.org/84487/lately-i-feel-like-someone-has-their-hands-wrapped-around-my-throat-no-pain-just-feels-swollen-all/ I have an MRI early May. My mother had one ages ago, and it made her sick for some time. Q: Is this usually the case? Are there ways to prevent this? Maybe MRI's were more medieval back in the day. UPDATE: Thanks for the feedback. Times have changed. Must have been the 80s. Thank you. http://answers.ankylosing.org/84395/i-have-an-mri-early-may-my-mother-had-one-ages-ago-and-it-made-her-sick-for-some-time-q-is-this-usually/ Wed, 20 Apr 2011 20:14:03 +0000 Asked by J Maruzen 10 months ago http://answers.ankylosing.org/84395/i-have-an-mri-early-may-my-mother-had-one-ages-ago-and-it-made-her-sick-for-some-time-q-is-this-usually/ So I had a bone scan...normal, upper back still hurts rheumy says not inflammation and too see a pyshiotrist (sp) its worst with activity, from my scapula to both ribs, what's next MRI? http://answers.ankylosing.org/84335/so-i-had-a-bone-scannormal-upper-back-still-hurts-rheumy-says-not-inflammation-and-too-see-a-pyshiotrist/ Wed, 20 Apr 2011 06:27:14 +0000 Asked by Roman Reid 10 months ago http://answers.ankylosing.org/84335/so-i-had-a-bone-scannormal-upper-back-still-hurts-rheumy-says-not-inflammation-and-too-see-a-pyshiotrist/ Anyone else here a college student going through the pains of AS? I've not been getting the best grades I used to get, and I'm unsure if its because of AS (lack of sleep, unable to focus...). I feel like it is, but that I'm giving myself excuses for my subpar performance in my academics. http://answers.ankylosing.org/84312/anyone-else-here-a-college-student-going-through-the-pains-of-as/ Tue, 19 Apr 2011 23:09:37 +0000 Asked by Student 10 months ago http://answers.ankylosing.org/84312/anyone-else-here-a-college-student-going-through-the-pains-of-as/ Swelling? I was for a massage last Tuesday afternoon, with my Osteopath/Massage therapist friend, and she expressed concern over the amount of swelling I have over my lumbar spine and SI joints. Anyone else? Mine is so swollen it can be seen with the naked eye without touching me. It's squishy. I've been icing like a crazy person since she brought this up.. Anyone else? http://answers.ankylosing.org/84291/swelling-i-was-for-a-massage-last-tuesday-afternoon-with-my-osteopathmassage-therapist-friend-and/ Tue, 19 Apr 2011 19:22:20 +0000 Asked by Lindsay Cairns 10 months ago http://answers.ankylosing.org/84291/swelling-i-was-for-a-massage-last-tuesday-afternoon-with-my-osteopathmassage-therapist-friend-and/ Long tags for test in question? http://answers.ankylosing.org/84138/long-tags-for-test-in-question/ Mon, 18 Apr 2011 14:04:01 +0000 Asked by Nafi.mostafa 11 months ago http://answers.ankylosing.org/84138/long-tags-for-test-in-question/ For the past four days I have had the worst flare up ever. I'm not sure if it's normal, of if I should go to the ER to be checked out for something more serious. If I cough, the middle of my back has sharp pains. The back of both my legs hurt, and if I bend over to pick something up, I get sharp pains in my legs and back. Is this a normal bad flare up? I appreciate any feedback. http://answers.ankylosing.org/84101/for-the-past-four-days-i-have-had-the-worst-flare-up-ever-im-not-sure-if-its-normal-of-if-i-should/ Sun, 17 Apr 2011 18:39:13 +0000 Asked by RayRay RockChalk Morriss 11 months ago http://answers.ankylosing.org/84101/for-the-past-four-days-i-have-had-the-worst-flare-up-ever-im-not-sure-if-its-normal-of-if-i-should/ I am 37 and just found out i have this painful disease. Is there a certain exercise used for this disease, maybe yoga? http://answers.ankylosing.org/84087/i-am-37-and-just-found-out-i-have-this-painful-disease-is-there-a-certain-exercise-used-for-this-disease/ Sun, 17 Apr 2011 11:47:03 +0000 Asked by Marvette Landrum-Washington 11 months ago http://answers.ankylosing.org/84087/i-am-37-and-just-found-out-i-have-this-painful-disease-is-there-a-certain-exercise-used-for-this-disease/ I get a nagging little headache in the back of my head for the first three days after my humaria injection . Does anyone else get this or is it likely just something else? http://answers.ankylosing.org/84047/i-get-a-nagging-little-headache-in-the-back-of-my-head-for-the-first-three-days-after-my-humaria-injection/ Sat, 16 Apr 2011 19:44:07 +0000 Asked by Sheridan 11 months ago http://answers.ankylosing.org/84047/i-get-a-nagging-little-headache-in-the-back-of-my-head-for-the-first-three-days-after-my-humaria-injection/ Anyone else feel like their bones hurt? My tibia seems to kill me when I over exert myself. Anyone found any all natural ways to help with AS? http://answers.ankylosing.org/84045/anyone-else-feel-like-their-bones-hurt/ Sat, 16 Apr 2011 19:27:10 +0000 Asked by Kourtenay 11 months ago http://answers.ankylosing.org/84045/anyone-else-feel-like-their-bones-hurt/ I was told I have Spondylitis and am hla-b27 positive also told it was called A S. Then i was told by another doctor i was borderline A S. So what is this? http://answers.ankylosing.org/84044/i-was-told-i-have-spondylitis-and-am-hla-b27-positive-also-told-it-was-called-a-s-then-i-was-told-by/ Sat, 16 Apr 2011 19:20:37 +0000 Asked by Mi'chelle' King 11 months ago http://answers.ankylosing.org/84044/i-was-told-i-have-spondylitis-and-am-hla-b27-positive-also-told-it-was-called-a-s-then-i-was-told-by/ I can't seem to control my emotions anymore, it's all too much and I get angry with people too easily, then I cry, then I feel stupid. Then I remember I have AS and it's painful, I seem to push the pain aside until it blows up in my face. Does anyone feel like this and how do you deal with it? http://answers.ankylosing.org/84020/i-cant-seem-to-control-my-emotions-anymore-its-all-too-much-and-i-get-angry-with-people-too-easily/ Sat, 16 Apr 2011 12:52:57 +0000 Asked by Carmen 11 months ago http://answers.ankylosing.org/84020/i-cant-seem-to-control-my-emotions-anymore-its-all-too-much-and-i-get-angry-with-people-too-easily/ Has anyone gotten pancreatitis from methotrexate on this forum? http://answers.ankylosing.org/83999/has-anyone-gotten-pancreatitis-from-methotrexate-on-this-forum/ Sat, 16 Apr 2011 07:33:48 +0000 Asked by Julie 11 months ago http://answers.ankylosing.org/83999/has-anyone-gotten-pancreatitis-from-methotrexate-on-this-forum/ OK, not sure if this allowed on here. I saw an ad for Cystic Fibrosis that states: "Cystic Fibrosis is like drowning on the inside." In a sentence, how would you describe AS by way of analogy or anything? Here's a link to the original post and CS ad: goo.gl/INTNm http://answers.ankylosing.org/83955/ok-not-sure-if-this-allowed-on-here-i-saw-an-ad-for-cystic-fibrosis-that-states-cystic-fibrosis-is/ Fri, 15 Apr 2011 18:43:31 +0000 Asked by J Maruzen 11 months ago http://answers.ankylosing.org/83955/ok-not-sure-if-this-allowed-on-here-i-saw-an-ad-for-cystic-fibrosis-that-states-cystic-fibrosis-is/ Hello. I have not been rx as having AS, however I do have rheumatoid arthritis and have been living with back pain for years. This time, it has become worse. In constant pain everyday. Do have sacroillitis, back is stiff in the mornings, my back stiffens when bending I become stuck & takes a moment to strighten. Back hurts more when just sitting or standing. Also feel like i want to be pulled apart, like i am being crunched. Cervial spine, neck, sterum are painful stiff ..what r ur symptom? http://answers.ankylosing.org/83865/hello-i-have-not-been-rx-as-having-as-however-i-do-have-rheumatoid-arthritis-and-have-been-living-with/ Thu, 14 Apr 2011 23:29:24 +0000 Asked by Painfully 11 months ago http://answers.ankylosing.org/83865/hello-i-have-not-been-rx-as-having-as-however-i-do-have-rheumatoid-arthritis-and-have-been-living-with/ Hi. I had psoriasis for many years, this winter it was so bad that I was too embarrassed to get a hair cut, my legs are also covered so pedicure is out of the question. I started Enbrel 2 weeks ago and don't see any improvement, bit I'm not giving up. I want to ask what else I can use for it? http://answers.ankylosing.org/83804/hi-i-had-psoriasis-for-many-years-this-winter-it-was-so-bad-that-i-was-too-embarrassed-to-get-a-hair/ Thu, 14 Apr 2011 03:47:29 +0000 Asked by Anna Blaszkiewicz 11 months ago http://answers.ankylosing.org/83804/hi-i-had-psoriasis-for-many-years-this-winter-it-was-so-bad-that-i-was-too-embarrassed-to-get-a-hair/ Does mtx tend to eliminate the need for nsaids over time? http://answers.ankylosing.org/83800/does-mtx-tend-to-eliminate-the-need-for-nsaids-over-time/ Thu, 14 Apr 2011 02:51:31 +0000 Asked by Julie 11 months ago http://answers.ankylosing.org/83800/does-mtx-tend-to-eliminate-the-need-for-nsaids-over-time/ Does anyone else still have quite a bit of pain, even if their TNF blockers are preventing joint damage? I'm on Humira and Celebrex (and have been for about a year); my Rheumatologist says they are working, but I'm still in so much pain, I can't focus on school sometimes! Is there any pain meds (I already use heat, ice, stretching, exercise, rest, massage, PT, A535, vitamins, etc.) I could ask my Rheumy about? http://answers.ankylosing.org/83786/does-anyone-else-still-have-quite-a-bit-of-pain-even-if-their-tnf-blockers-are-preventing-joint-damag/ Wed, 13 Apr 2011 22:44:47 +0000 Asked by Kathryn 11 months ago http://answers.ankylosing.org/83786/does-anyone-else-still-have-quite-a-bit-of-pain-even-if-their-tnf-blockers-are-preventing-joint-damag/ I know that fatigue is something we all have to overcome with AS, but I am feeling more tired than ever. I really am not a fan of increasing my caffeine intake any further. Any suggestions for keeping energy throughout the day? Naps just aren't always an option. http://answers.ankylosing.org/83766/i-know-that-fatigue-is-something-we-all-have-to-overcome-with-as-but-i-am-feeling-more-tired-than-ever/ Wed, 13 Apr 2011 18:15:27 +0000 Asked by Megan Lowery 11 months ago http://answers.ankylosing.org/83766/i-know-that-fatigue-is-something-we-all-have-to-overcome-with-as-but-i-am-feeling-more-tired-than-ever/ Has anyone had a bone scan? I asked for an MRI of the upper portion of my spine and the Doc said he wanted a bone scan first. http://answers.ankylosing.org/83729/has-anyone-had-a-bone-scan/ Wed, 13 Apr 2011 04:57:18 +0000 Asked by Roman Reid 11 months ago http://answers.ankylosing.org/83729/has-anyone-had-a-bone-scan/ I finally have a disability hearing, June 3rd please say a prayer that everything goes right. Thank you all for being here when I need ya. You all are so great I thank God for all you and this site? http://answers.ankylosing.org/83707/i-finally-have-a-disability-hearing-june-3rd-please-say-a-prayer-that-everything-goes-right-thank-you/ Tue, 12 Apr 2011 19:41:20 +0000 Asked by Tim Cassidy 11 months ago http://answers.ankylosing.org/83707/i-finally-have-a-disability-hearing-june-3rd-please-say-a-prayer-that-everything-goes-right-thank-you/ I am looking for a pain management journal app for Palm or Android ... Any suggestions/recommendations? http://answers.ankylosing.org/83654/i-am-looking-for-a-pain-management-journal-app-for-palm-or-android-any-suggestionsrecommendations/ Tue, 12 Apr 2011 03:53:07 +0000 Asked by Gail Truesdell 11 months ago http://answers.ankylosing.org/83654/i-am-looking-for-a-pain-management-journal-app-for-palm-or-android-any-suggestionsrecommendations/ Anyone taking Humira, notice that when you take the shot the next few days you feel a flare coming on? I have only taking 2 shots and I don't know if the shots are causing the flares or just my activities. But after each shot that i have taken, I have had horrible flare ups. I even had to go to my Rheumy to get a steroid pack plus a pain shot. Please let me know if you experience this also. http://answers.ankylosing.org/83544/anyone-taking-humira-notice-that-when-you-take-the-shot-the-next-few-days-you-feel-a-flare-coming-o/ Mon, 11 Apr 2011 01:52:05 +0000 Asked by Jenny Loraine 11 months ago http://answers.ankylosing.org/83544/anyone-taking-humira-notice-that-when-you-take-the-shot-the-next-few-days-you-feel-a-flare-coming-o/ For those of you who take pain meds with TNF inhibitors, how do you know the TNFs are working? Fatigue? Additional pain http://answers.ankylosing.org/83543/for-those-of-you-who-take-pain-meds-with-tnf-inhibitors-how-do-you-know-the-tnfs-are-working-fatigu/ Mon, 11 Apr 2011 01:08:36 +0000 Asked by Roman Reid 11 months ago http://answers.ankylosing.org/83543/for-those-of-you-who-take-pain-meds-with-tnf-inhibitors-how-do-you-know-the-tnfs-are-working-fatigu/ I was finally diagnosed with AS about two weeks ago, only because I had to self diagnose myself. My drs all agreed that they miseed the boat. I have been a fitness instructor and personal trainer for over 20 years, I haven't been able to work for almost a year. I am determined to fight this and get back to work at some level. My question is this...am I nuts to think I can do this without the crazy drugs? I have been told to take Enbrel and the possible side effects scare the hell out of me! http://answers.ankylosing.org/83539/i-was-finally-diagnosed-with-as-about-two-weeks-ago-only-because-i-had-to-self-diagnose-myself-my-drs/ Mon, 11 Apr 2011 00:07:07 +0000 Asked by Jeanne Thompson Rohrer 11 months ago http://answers.ankylosing.org/83539/i-was-finally-diagnosed-with-as-about-two-weeks-ago-only-because-i-had-to-self-diagnose-myself-my-drs/ I am in pain and not sure what to do. Naproxen daily until recently and sometimes oxycodone. Major flare 2 wks ago. Rheumy put me on prednisone, which seemed to help some, but then I got sick of it all and decided to try Mtx pills. Wrong choice! I had my 4th dose on Friday. Montezuma's revenge, horrible hurting insides. IBD off the charts. Drinking aloe juice. I wanted to continue vitamins/naproxen as I have for years but not sure I can get back there. What next? Advice? Kaiser pt. http://answers.ankylosing.org/83529/i-am-in-pain-and-not-sure-what-to-do-naproxen-daily-until-recently-and-sometimes-oxycodone-major-flare/ Sun, 10 Apr 2011 20:23:03 +0000 Asked by Julie 11 months ago http://answers.ankylosing.org/83529/i-am-in-pain-and-not-sure-what-to-do-naproxen-daily-until-recently-and-sometimes-oxycodone-major-flare/ Does anyone use chair pads, like Obus Forme etc? To give extra support, and or cushioning. I think if I had one i'd sit better, I hav ehorribly lazy posture which i'm trying to correct... Like my Doctor says, if you're going to fuse, fuse in a good position. Anyway just wondered what you all do? Anyone use a special seat pad or cover in your vehicle? I was thinking about a heated chair pad for my van... Sitting while driving is one of the hardest things. http://answers.ankylosing.org/83525/does-anyone-use-chair-pads-like-obus-forme-etc-to-give-extra-support-and-or-cushioning-i-think-if/ Sun, 10 Apr 2011 18:27:42 +0000 Asked by Lindsay Cairns 11 months ago http://answers.ankylosing.org/83525/does-anyone-use-chair-pads-like-obus-forme-etc-to-give-extra-support-and-or-cushioning-i-think-if/ First time filing disability. 4/5 Called my contact for update and he said he needed more infor.I gathered more Drs info and faxed him 20 pages -- 3 days later! I called to make sure he got them and then he then tells me " I already made a decision on your claim and sent it in, if you have questions, call SS office". Just the sound in his voice = I keep having nighmare and cant sleep. What kind of training do these guys go through? http://answers.ankylosing.org/83508/first-time-filing-disability-45-called-my-contact-for-update-and-he-said-he-needed-more-infori-gathered/ Sun, 10 Apr 2011 13:18:38 +0000 Asked by Jenni 11 months ago http://answers.ankylosing.org/83508/first-time-filing-disability-45-called-my-contact-for-update-and-he-said-he-needed-more-infori-gathered/ For the most part I've managed to maintain a good attitude, tonight I find my self really sad, I've been on TNFs for 5 months now and they have been amazing. But i still have a lot of residual pain and lack of mobility, do you ever get back to been able to run, dance, ski, bend... I am grateful for how far I've come but just feel like i've hit a wave of grief on who I use to be. How do you know what is permanent damage? http://answers.ankylosing.org/83505/for-the-most-part-ive-managed-to-maintain-a-good-attitude-tonight-i-find-my-self-really-sad-ive-been/ Sun, 10 Apr 2011 12:50:46 +0000 Asked by Rachael 11 months ago http://answers.ankylosing.org/83505/for-the-most-part-ive-managed-to-maintain-a-good-attitude-tonight-i-find-my-self-really-sad-ive-been/ I am off to teacher's college in another year. I was diagnosed with AS two years ago, and have some fusion. I would love to teach, but I am afraid that my body isn't cut out for it. Are there any teachers with AS out there? Should I go for it? Or will flare-ups push me out of a job. Alternatives are welcomed. Thinking archivist as a backup plan. Thanks! http://answers.ankylosing.org/83492/i-am-off-to-teachers-college-in-another-year-i-was-diagnosed-with-as-two-years-ago-and-have-some-fusion/ Sun, 10 Apr 2011 01:35:40 +0000 Asked by J Maruzen 11 months ago http://answers.ankylosing.org/83492/i-am-off-to-teachers-college-in-another-year-i-was-diagnosed-with-as-two-years-ago-and-have-some-fusion/ I've had AS since I was 18 years old. I'm 58 now, and I can tell I've gone through a lot of pain over the years. My spine is mostly fused now but I still have problems in my neck. I've added diabetes and some heart problems to the mix, and have come to the point that I think I would like to retire. Has anyone been able to get social security disability from this disease? http://answers.ankylosing.org/83491/ive-had-as-since-i-was-18-years-old-im-58-now-and-i-can-tell-ive-gone-through-a-lot-of-pain-over/ Sun, 10 Apr 2011 01:11:40 +0000 Asked by Chuck Schlattman 11 months ago http://answers.ankylosing.org/83491/ive-had-as-since-i-was-18-years-old-im-58-now-and-i-can-tell-ive-gone-through-a-lot-of-pain-over/ I recently started methotrexate (for AS). I can deal with the mild nausea, but the stomach pain is killing me. Please, any ideas/suggestions/comments? http://answers.ankylosing.org/83408/i-recently-started-methotrexate-for-as-i-can-deal-with-the-mild-nausea-but-the-stomach-pain-is-killing/ Sat, 09 Apr 2011 04:28:32 +0000 Asked by Julie 11 months ago http://answers.ankylosing.org/83408/i-recently-started-methotrexate-for-as-i-can-deal-with-the-mild-nausea-but-the-stomach-pain-is-killing/ Just curious i have been thinking alot about what to do about work and my future i have a somewhat physical job and it does cause some increased pain now but manageable, how has everyone else been dealing with work anyone have to change jobs because of it progressively getting worst or were you able to manage for several years. I just got diagnosed last week? http://answers.ankylosing.org/83348/just-curious-i-have-been-thinking-alot-about-what-to-do-about-work-and-my-future-i-have-a-somewhat-physical/ Fri, 08 Apr 2011 10:41:18 +0000 Asked by John J 11 months ago http://answers.ankylosing.org/83348/just-curious-i-have-been-thinking-alot-about-what-to-do-about-work-and-my-future-i-have-a-somewhat-physical/ After a period of time off Humira and now back on as I cannot function without it, I am finding red patches of itchy skin on my legs - possibly psoriasis- not sure because its new- and the pain in my feet has got worse and I seem to have plantar faciitis- are these common side effect? http://answers.ankylosing.org/83294/after-a-period-of-time-off-humira-and-now-back-on-as-i-cannot-function-without-it-i-am-finding-red-patches/ Fri, 08 Apr 2011 00:35:03 +0000 Asked by Allyson 11 months ago http://answers.ankylosing.org/83294/after-a-period-of-time-off-humira-and-now-back-on-as-i-cannot-function-without-it-i-am-finding-red-patches/ After 8 weeks of no TNFs *was on Humira, they wanted me to go on Remicade, found out I couldnt afford it, now trying Enbrel ----- (ins. Paperwork and approval nighmares) I can barely walk, sleep, stand, etc. It is a hard realization that I need these meds to funtion at all. Anyway, today I am suppose to go to my Dr. Appt for my 1st Enbrel shot - Question is -- I have had a pretty bad sore throat for 2-days now...should I cancel or just go and see what he says? http://answers.ankylosing.org/82423/after-8-weeks-of-no-tnfs-was-on-humira-they-wanted-me-to-go-on-remicade-found-out-i-couldnt-afford/ Tue, 05 Apr 2011 12:56:28 +0000 Asked by Jenni 11 months ago http://answers.ankylosing.org/82423/after-8-weeks-of-no-tnfs-was-on-humira-they-wanted-me-to-go-on-remicade-found-out-i-couldnt-afford/ Hi, I wad diagnosed about 6 weeks ago. My insurance just approved Enbrel because nothing else worked. I would like to know if I should start taking any vitamins or supplements, also what else can I do for my pain? At this point I miss at least 2 days of work. Thank you for any advice. http://answers.ankylosing.org/82260/hi-i-wad-diagnosed-about-6-weeks-ago-my-insurance-just-approved-enbrel-because-nothing-else-worked/ Tue, 05 Apr 2011 03:10:21 +0000 Asked by Anna Blaszkiewicz 11 months ago http://answers.ankylosing.org/82260/hi-i-wad-diagnosed-about-6-weeks-ago-my-insurance-just-approved-enbrel-because-nothing-else-worked/ Hello ppl, i have AS since summer 2010, everything went great, i found it on a early stage and started to make the specific exercises, making some specific blood tests to see if AS is going active or not. The problem is that i stopped doing the specific exercises since 2-3 months, i gained in weight, i also have Seborrhoeic dermatitis and Adult attention deficit disorder, i am sleeping very little 6-7 hours, feeling so tired, i can`t even play soccer, my fav sport? http://answers.ankylosing.org/82200/hello-ppl-i-have-as-since-summer-2010-everything-went-great-i-found-it-on-a-early-stage-and-started/ Mon, 04 Apr 2011 23:19:55 +0000 Asked by Robert Cristian 11 months ago http://answers.ankylosing.org/82200/hello-ppl-i-have-as-since-summer-2010-everything-went-great-i-found-it-on-a-early-stage-and-started/ I need suggestions on good pain meds. What works for people? I've tried: Oxycontin, Oxycodone, Percs, Tylenol 3, Vicodin & Dilaudid; NSAIDs thru Indomethycin; nerve drugs: Neurontin, Lyrica, & Cymbalta; Flexeril for muscle relaxer. Oxycodone works best that I've tried. Suggestions? http://answers.ankylosing.org/81963/i-need-suggestions-on-good-pain-meds-what-works-for-people/ Mon, 04 Apr 2011 09:53:03 +0000 Asked by Kerry Monique Gaude' 11 months ago http://answers.ankylosing.org/81963/i-need-suggestions-on-good-pain-meds-what-works-for-people/ Can anyone recommend a biologic that doesn't cause fatigue and weight gain? My husband is using enbrel at the moment, his pain has decreased dramatically but he has lost all zest for life. Its awful seeing him like this, please help! http://answers.ankylosing.org/81733/can-anyone-recommend-a-biologic-that-doesnt-cause-fatigue-and-weight-gain/ Sun, 03 Apr 2011 18:59:30 +0000 Asked by Maria Carpenter 11 months ago http://answers.ankylosing.org/81733/can-anyone-recommend-a-biologic-that-doesnt-cause-fatigue-and-weight-gain/ Question for people who take Narc's. How do make yourself function during the day if you have to take things like Darvocet, Hydrocodone, or other Narcs? I take a Hydrocodone and I am down for a least one hour. http://answers.ankylosing.org/81652/question-for-people-who-take-narcs-how-do-make-yourself-function-during-the-day-if-you-have-to-take/ Sun, 03 Apr 2011 13:52:02 +0000 Asked by Denise Cornell 11 months ago http://answers.ankylosing.org/81652/question-for-people-who-take-narcs-how-do-make-yourself-function-during-the-day-if-you-have-to-take/ I am currently in a "remission" period, newly pregnant (best reason to go to the Dr in a long time) and want some advice please. Any mum's out there with advice on fares during pregnancy. I have been noticing symptoms and I guess I always fear the worst? http://answers.ankylosing.org/81564/i-am-currently-in-a-remission-period-newly-pregnant-best-reason-to-go-to-the-dr-in-a-long-time-and/ Sun, 03 Apr 2011 09:21:28 +0000 Asked by Megan Braunberger 11 months ago http://answers.ankylosing.org/81564/i-am-currently-in-a-remission-period-newly-pregnant-best-reason-to-go-to-the-dr-in-a-long-time-and/ I was recommended a book called "Enemy within" by Karen Ager, at the beginning of last year. I feel it is my duty to share it with you all. The writer is a sufferer of RA. But I got a lot out of the book, and I highly recommend it. I am passing it round my family and friends now, to give them insight into how I have felt through it all? http://answers.ankylosing.org/81525/i-was-recommended-a-book-called-enemy-within-by-karen-ager-at-the-beginning-of-last-year-i-feel-it/ Sun, 03 Apr 2011 09:18:15 +0000 Asked by Megan Braunberger 11 months ago http://answers.ankylosing.org/81525/i-was-recommended-a-book-called-enemy-within-by-karen-ager-at-the-beginning-of-last-year-i-feel-it/ The Dr. Asked if I would object to start injecting my methotrexate. Anyone have any worse reaction to injection than to oral methotrexate? http://answers.ankylosing.org/81524/the-dr-asked-if-i-would-object-to-start-injecting-my-methotrexate-anyone-have-any-worse-reaction-to/ Sun, 03 Apr 2011 08:58:33 +0000 Asked by Rwg Enterprises 11 months ago http://answers.ankylosing.org/81524/the-dr-asked-if-i-would-object-to-start-injecting-my-methotrexate-anyone-have-any-worse-reaction-to/ I just wondered if anyone has experienced increasing or continuing pain and negative CRP and Sed rate? If so did any of your doctors say anything informative about this enigma? http://answers.ankylosing.org/81440/i-just-wondered-if-anyone-has-experienced-increasing-or-continuing-pain-and-negative-crp-and-sed-rat/ Sun, 03 Apr 2011 05:25:32 +0000 Asked by Roman Reid 11 months ago http://answers.ankylosing.org/81440/i-just-wondered-if-anyone-has-experienced-increasing-or-continuing-pain-and-negative-crp-and-sed-rat/ I have AS and need an idea from someone as to how to lift (hoist) my tires up into the back of my minivan without hurting my back further. I have barely managed to hoist them earlier, but can't manage that any longer. There are no people available to ask for help. Any ideas? http://answers.ankylosing.org/81137/i-have-as-and-need-an-idea-from-someone-as-to-how-to-lift-hoist-my-tires-up-into-the-back-of-my-minivan/ Sat, 02 Apr 2011 16:49:42 +0000 Asked by Julie 11 months ago http://answers.ankylosing.org/81137/i-have-as-and-need-an-idea-from-someone-as-to-how-to-lift-hoist-my-tires-up-into-the-back-of-my-minivan/ Do we ever become pain free? I was diagnosed 2 and a half yrs ago and have tried Humira, Enbrel and Simponi...none have completely worked for me and i am about to start infusions in 2 weeks with Remicade. Im beginning to feel that my life will always consist of living in pain! My pain is mostly in my SI joints, hips, legs and ankles with it starting in my shoulders now! http://answers.ankylosing.org/80802/do-we-ever-become-pain-free/ Sat, 02 Apr 2011 03:30:40 +0000 Asked by Deb 11 months ago http://answers.ankylosing.org/80802/do-we-ever-become-pain-free/ Dr wont write ,fine with me when in pain ill go the nearest hospital , ill be going around sunday night it will be 4 days no fentanyl pain patch , no oxycodone, ill be in good shape by sunday right now im sweating like a fish it's 70 in the room should i not pay the bill from hospital all could be resolved with a script or 2 from dr? http://answers.ankylosing.org/80757/dr-wont-write-fine-with-me-when-in-pain-ill-go-the-nearest-hospital-ill-be-going-around-sunday-night/ Sat, 02 Apr 2011 01:00:31 +0000 Asked by Tim 11 months ago http://answers.ankylosing.org/80757/dr-wont-write-fine-with-me-when-in-pain-ill-go-the-nearest-hospital-ill-be-going-around-sunday-night/ My dr won't write my prescriptions , oxycodone 30mg and fentanyl pain patch got them for years , new law family doctors can't write pain meds any more now what do i do? http://answers.ankylosing.org/80756/my-dr-wont-write-my-prescriptions-oxycodone-30mg-and-fentanyl-pain-patch-got-them-for-years-new/ Sat, 02 Apr 2011 00:55:36 +0000 Asked by Tim 11 months ago http://answers.ankylosing.org/80756/my-dr-wont-write-my-prescriptions-oxycodone-30mg-and-fentanyl-pain-patch-got-them-for-years-new/ I just realized that Voltaren Gel can mess up your stomach as bad as aspirin can! :'-( sigh - is there no anti-inflammatory drug that doesnt? (I was using the gel because I was developing an ulcer on Mobic) http://answers.ankylosing.org/80471/i-just-realized-that-voltaren-gel-can-mess-up-your-stomach-as-bad-as-aspirin-can-sigh-is-there/ Fri, 01 Apr 2011 14:16:02 +0000 Asked by Jenn Farrell 11 months ago http://answers.ankylosing.org/80471/i-just-realized-that-voltaren-gel-can-mess-up-your-stomach-as-bad-as-aspirin-can-sigh-is-there/ Last night I had the worst muscle cramps in both my legs I have ever had. It lasted for a half an hour, with me laying on the bathroom floor. I'm hoping this next doctor visit my Rummy pays attention to my muscle problems. More and more I get spasms all over my back. It would take a car running over me to rub them out. Does anyone else have similar muscle problems? http://answers.ankylosing.org/80470/last-night-i-had-the-worst-muscle-cramps-in-both-my-legs-i-have-ever-had-it-lasted-for-a-half-an-hour/ Fri, 01 Apr 2011 13:36:18 +0000 Asked by RayRay RockChalk Morriss 11 months ago http://answers.ankylosing.org/80470/last-night-i-had-the-worst-muscle-cramps-in-both-my-legs-i-have-ever-had-it-lasted-for-a-half-an-hour/ Is there other drugs than naproxin and luratabs i just get tired of being in a daze all the time is ther anysuggestions on any other things to help pain? http://answers.ankylosing.org/80462/is-there-other-drugs-than-naproxin-and-luratabs-i-just-get-tired-of-being-in-a-daze-all-the-time-is-ther/ Fri, 01 Apr 2011 12:55:04 +0000 Asked by Casey Jay Johnson 11 months ago http://answers.ankylosing.org/80462/is-there-other-drugs-than-naproxin-and-luratabs-i-just-get-tired-of-being-in-a-daze-all-the-time-is-ther/ We need to have doctors that specialize in AS. I have a Rheumy, but she only ask about how bad the pain in my joints feel. No one says anything about other symptoms that could be apart of the disease that I should be aware of. Primary care doctor says that she knows of the disease but can tell me anything about it. Does anyone sometimes feel like we're flying blind with this disease. Sorry, I just had to vent this morning? http://answers.ankylosing.org/80450/we-need-to-have-doctors-that-specialize-in-as-i-have-a-rheumy-but-she-only-ask-about-how-bad-the-pain/ Fri, 01 Apr 2011 11:49:27 +0000 Asked by Tiffany 11 months ago http://answers.ankylosing.org/80450/we-need-to-have-doctors-that-specialize-in-as-i-have-a-rheumy-but-she-only-ask-about-how-bad-the-pain/ Hey guys, just wanted to let you know that after contacted the medical director of my doc office, I have got this mess straightened up. I spoke w/the lab also, made tons of phone calls, and went and spoke w/my doc. Conclusion: There is no way for me to prove that I was truly taking my meds (very frustrating) but they called me in for a pill count and everything was correct. My doc said she would continuing prescribing my meds but I would be called in randomly for pill counts? http://answers.ankylosing.org/80404/hey-guys-just-wanted-to-let-you-know-that-after-contacted-the-medical-director-of-my-doc-office-i-have/ Fri, 01 Apr 2011 09:58:21 +0000 Asked by La Randa Stout Merlette 11 months ago http://answers.ankylosing.org/80404/hey-guys-just-wanted-to-let-you-know-that-after-contacted-the-medical-director-of-my-doc-office-i-have/ One month in to battling severe bronchitis, and the bronchitis is winning. No TNF-blockers for 4 weeks = sore all over, and combined with the cough and the wheezing I am miserable. Got new anti-biotics this morning, and now my boss wants a doctor's note to verify that I am sick! My family doc isn't familiar with AS complications of respiratory infection. Any suggestions on how to describe bronchitis + AS = serious and requires bed rest? http://answers.ankylosing.org/80273/one-month-in-to-battling-severe-bronchitis-and-the-bronchitis-is-winning-no-tnf-blockers-for-4-weeks/ Fri, 01 Apr 2011 05:21:43 +0000 Asked by Rose Bigham 11 months ago http://answers.ankylosing.org/80273/one-month-in-to-battling-severe-bronchitis-and-the-bronchitis-is-winning-no-tnf-blockers-for-4-weeks/ Ive had as sice i was 21 i foud out when i was injured on a job and blew out 3 of my disc and over the years its got worst over the years im on musle relaxers pain pills and naproxen and non of it helps so is ther any options out there besides surgerey? http://answers.ankylosing.org/80271/ive-had-as-sice-i-was-21-i-foud-out-when-i-was-injured-on-a-job-and-blew-out-3-of-my-disc-and-over-the/ Fri, 01 Apr 2011 04:39:13 +0000 Asked by Casey Jay Johnson 11 months ago http://answers.ankylosing.org/80271/ive-had-as-sice-i-was-21-i-foud-out-when-i-was-injured-on-a-job-and-blew-out-3-of-my-disc-and-over-the/ I saw my new family dr today. We were going over my medications, she told me she could write scripts for all but my norco. (my old family dr perscribed all my pain meds) My new dr explained that a law went into effect this month that does not allow family dr's to perscribe narcotic pain meds. She said had I came last month she would of gave me a script. She said that I will have to have my rhuemy write the script for norco. Has anyone else ran into this or heard about the new laws? http://answers.ankylosing.org/80230/i-saw-my-new-family-dr-today-we-were-going-over-my-medications-she-told-me-she-could-write-scripts/ Fri, 01 Apr 2011 03:28:02 +0000 Asked by Kimberly 11 months ago http://answers.ankylosing.org/80230/i-saw-my-new-family-dr-today-we-were-going-over-my-medications-she-told-me-she-could-write-scripts/ I found this site today, i love it, so can i ask anything i need here? http://answers.ankylosing.org/80148/i-found-this-site-today-i-love-it-so-can-i-ask-anything-i-need-here/ Fri, 01 Apr 2011 00:30:49 +0000 Asked by Nawal Ali 11 months ago http://answers.ankylosing.org/80148/i-found-this-site-today-i-love-it-so-can-i-ask-anything-i-need-here/ Long story short.....I did not take my methotrexate last week. I take 10 2.5mg pills every week every Sunday. It is now Thursday and parts of my body that have not hurt for months are really hurting me. On the other hand it was sooooooo nice not to be meth sick. Do you think it is because I missed my dose or am I having a flare? http://answers.ankylosing.org/80100/long-story-shorti-did-not-take-my-methotrexate-last-week-i-take-10-25mg-pills-every-week-every/ Thu, 31 Mar 2011 23:04:49 +0000 Asked by Jason Ferguson 11 months ago http://answers.ankylosing.org/80100/long-story-shorti-did-not-take-my-methotrexate-last-week-i-take-10-25mg-pills-every-week-every/ AS flare for 6 weeks. Pain in spine, shoulder & worse in hip & rib cage. Take methotrexate for crohns disease & no other meds for AS at this time (last Rheumatologist visit was during no symptoms). Only taking tylenol arthritis (no anti-inflammatories allowed for crohn's) when the pain is unbearable at night & morning. Using stretching, massage therapy & physiotherapy to help with the pain & movement. Any similiar situations out there? Any tips on getting through this? http://answers.ankylosing.org/79913/as-flare-for-6-weeks-pain-in-spine-shoulder-worse-in-hip-rib-cage-take-methotrexate-for-crohns/ Thu, 31 Mar 2011 16:51:30 +0000 Asked by Lililafond 11 months ago http://answers.ankylosing.org/79913/as-flare-for-6-weeks-pain-in-spine-shoulder-worse-in-hip-rib-cage-take-methotrexate-for-crohns/ Feeling really flat today. Cortisone injections into hips and shoulder, but the pain doesn't go away. I'm so tired of being sore all the time and being tired all the time. My medical insurance won't cover TNFs and all I'm told is to "find a NSAID that works best and stick to that". I'm really, really despondent? http://answers.ankylosing.org/79688/feeling-really-flat-today-cortisone-injections-into-hips-and-shoulder-but-the-pain-doesnt-go-away/ Thu, 31 Mar 2011 08:00:29 +0000 Asked by Sam 11 months ago http://answers.ankylosing.org/79688/feeling-really-flat-today-cortisone-injections-into-hips-and-shoulder-but-the-pain-doesnt-go-away/ Giving up, letting go & changing outlook on life. I've got multiple conditions, but Dr's only care about their specialty. I've spent 3 yrs (4 operations) dedicating my life to stop the deteriation which started at 8yo. Only definite from dr's is joints are deteriorating & won't stop. Pain mgmt isn't working, sleeping 20hrs/day & barely functioning. Trying to finish 10 yr BS degree & will never work. Decided I'm going to let go & try to enjoy the time I have left. Psych dr's agree. Feedback? http://answers.ankylosing.org/79470/giving-up-letting-go-changing-outlook-on-life-ive-got-multiple-conditions-but-drs-only-care-about/ Wed, 30 Mar 2011 23:15:46 +0000 Asked by Kerry Monique Gaude' 11 months ago http://answers.ankylosing.org/79470/giving-up-letting-go-changing-outlook-on-life-ive-got-multiple-conditions-but-drs-only-care-about/ Ok I worked in my yard all day 3/28/11.. I know as a AS'r it was a BAD idea. I am still sore! Body does not want to bend like it should. OUCH! Now I have started having numbness in my right thumb and then it is in my whole hand. Then my left hand... Prior to doing a major overhaul on our back yard I did have some numbness in my right hand often. About 3 times a week....Does anyone else have numbness? Any suggestions or comments? http://answers.ankylosing.org/79327/ok-i-worked-in-my-yard-all-day-32811-i-know-as-a-asr-it-was-a-bad-idea-i-am-still-sore-body-does/ Wed, 30 Mar 2011 19:03:50 +0000 Asked by Timothea Shurley 11 months ago http://answers.ankylosing.org/79327/ok-i-worked-in-my-yard-all-day-32811-i-know-as-a-asr-it-was-a-bad-idea-i-am-still-sore-body-does/ I am on a taper down of my prednisone after a recent bought of pneumonia(I have asthma and lots of other goodies too). After IV solu-medrol in the hospital for 3 days they sent me home on 5 days of 40mg then bumped me up to 60 mg with a taper down of 5mg a day until done. Usually any steroids are a blessing to my AS, however, at 30 mg I began a flare of my AS! My pain specialist says he has never heard of a flare while on steroids! Anyone? http://answers.ankylosing.org/79225/i-am-on-a-taper-down-of-my-prednisone-after-a-recent-bought-of-pneumoniai-have-asthma-and-lots-of-other/ Wed, 30 Mar 2011 06:04:56 +0000 Asked by Keri Miller 11 months ago http://answers.ankylosing.org/79225/i-am-on-a-taper-down-of-my-prednisone-after-a-recent-bought-of-pneumoniai-have-asthma-and-lots-of-other/ I was very happy with Darvocet for my pain med..it worked quick, helped me sleep when I needed it...I am now trying out Tramadol and not finding it compatiable with sleeping...seems to keep me awake, works fair, but not as well as I would like. Wondering what meds other Darvocet fans are now using? http://answers.ankylosing.org/79220/i-was-very-happy-with-darvocet-for-my-pain-medit-worked-quick-helped-me-sleep-when-i-needed-iti/ Wed, 30 Mar 2011 02:46:16 +0000 Asked by Jim Weatherhead 11 months ago http://answers.ankylosing.org/79220/i-was-very-happy-with-darvocet-for-my-pain-medit-worked-quick-helped-me-sleep-when-i-needed-iti/ I found this site after searching "Can't chew or barely open your mouth". My poor father-in-law went to the dentist for a tooth extraction over two years ago. After that he noticed he was having trouble chewing and opening his mouth. It got worse. He can't open his mouth to eat a small sandwich and now he can barely talk. Does this sound like it might be AS? As far as I know he has no other symptoms. No one can help him...he has seen a variety of doctors. We are very frustrated. http://answers.ankylosing.org/79219/i-found-this-site-after-searching-cant-chew-or-barely-open-your-mouth-my-poor-father-in-law-went/ Wed, 30 Mar 2011 02:41:13 +0000 Asked by Andrea Stotts 11 months ago http://answers.ankylosing.org/79219/i-found-this-site-after-searching-cant-chew-or-barely-open-your-mouth-my-poor-father-in-law-went/ I have had 3 treatments of remicade and it doesn't seem to be helping...on my next infusion, they are going to up the dosage but I'm worried. How long has it takenany of you for the remicade to start working? I'm getting frustrated and a lot more depressed and it's scaring me that I'm in so much pain that isn't letting up at all maybe getting worse. http://answers.ankylosing.org/79206/i-have-had-3-treatments-of-remicade-and-it-doesnt-seem-to-be-helpingon-my-next-infusion-they-are/ Tue, 29 Mar 2011 22:40:33 +0000 Asked by Becki 11 months ago http://answers.ankylosing.org/79206/i-have-had-3-treatments-of-remicade-and-it-doesnt-seem-to-be-helpingon-my-next-infusion-they-are/ I took Serrapeptase years ago for low back pain. I went to get some today (major mid back pain/spine stiffness) & was advised to buy Wobenzym N instead .... Any opinion on either of these 2 enzymes? http://answers.ankylosing.org/79200/i-took-serrapeptase-years-ago-for-low-back-pain-i-went-to-get-some-today-major-mid-back-painspine/ Tue, 29 Mar 2011 21:15:37 +0000 Asked by Gail Truesdell 11 months ago http://answers.ankylosing.org/79200/i-took-serrapeptase-years-ago-for-low-back-pain-i-went-to-get-some-today-major-mid-back-painspine/ Just wondering if anyone else ever has problems with urnine retention when their low back flares up? I had problems a few months ago & now again. My low back is flared up, primarly on my left side (si area). When I try to urinate, it just dribbles out of me. I know I don't have a bladder infection and or kidney stones. When I asked the dr about this last time they kinda blew me off as if there was no conection. But seeing this is the second time I'm thinking there is. http://answers.ankylosing.org/79127/just-wondering-if-anyone-else-ever-has-problems-with-urnine-retention-when-their-low-back-flares-up/ Mon, 28 Mar 2011 23:17:16 +0000 Asked by Kimberly 11 months ago http://answers.ankylosing.org/79127/just-wondering-if-anyone-else-ever-has-problems-with-urnine-retention-when-their-low-back-flares-up/ Is anyone else having a real tough time coping with everything? Here is my story. I am an Unemployed (for 1.5yrs now) single mom, Im forced to live with my parents because I can't support myself and my son, Im overweight, which makes the AS worse, depressed, so it makes wanting to get in shape seem pointless...there are so many mountains to tackle in my life right now, i just need some others here to tell me they have been there too and how you got thru it :-) I know this too shall pass... http://answers.ankylosing.org/79103/is-anyone-else-having-a-real-tough-time-coping-with-everything/ Mon, 28 Mar 2011 17:43:21 +0000 Asked by Jenn Farrell 11 months ago http://answers.ankylosing.org/79103/is-anyone-else-having-a-real-tough-time-coping-with-everything/ The doc never told me how to titrate off the meds or anything and I only have a wk and 1/2 of meds left. Been on them for yrs and concerned about dependence issues. Anyone else had this experience? http://answers.ankylosing.org/78084/the-doc-never-told-me-how-to-titrate-off-the-meds-or-anything-and-i-only-have-a-wk-and-12-of-meds-left/ Sun, 27 Mar 2011 12:35:58 +0000 Asked by La Randa Stout Merlette 11 months ago http://answers.ankylosing.org/78084/the-doc-never-told-me-how-to-titrate-off-the-meds-or-anything-and-i-only-have-a-wk-and-12-of-meds-left/ I am soooo frustrated! I went to doc on 3/1 she did a drug screen, no big deal just normal since she prescribes me narcotics. On 3/15 got letter in mail that said I failed and no more scrips. I was in shock! I went to see her immediately to see what the prob was, come to find out everything had come back negative. The very strange thing is I take my meds exactly as prescribed, and had taken my meds the morning of 3/1 before taking the test. Help please? http://answers.ankylosing.org/78083/i-am-soooo-frustrated-i-went-to-doc-on-31-she-did-a-drug-screen-no-big-deal-just-normal-since-she/ Sun, 27 Mar 2011 12:33:21 +0000 Asked by La Randa Stout Merlette 11 months ago http://answers.ankylosing.org/78083/i-am-soooo-frustrated-i-went-to-doc-on-31-she-did-a-drug-screen-no-big-deal-just-normal-since-she/ I've started to have a great deal of burning pain from my knees down lately. A couple of months ago I lost the feeling of temperatures in my feet and hands. And now there's this weird not hot burning in my calves and feet. One foot is always ice cold. EMG results were negative. They did see something on my MRI in my neck at a V junction of vein and I have to have another scan. The pain is getting really bad. Does anyone have any idea what it could be? I'm starting to get really scared. http://answers.ankylosing.org/77471/ive-started-to-have-a-great-deal-of-burning-pain-from-my-knees-down-lately-a-couple-of-months-ago-i/ Sun, 27 Mar 2011 02:31:40 +0000 Asked by Jennifer Winter 11 months ago http://answers.ankylosing.org/77471/ive-started-to-have-a-great-deal-of-burning-pain-from-my-knees-down-lately-a-couple-of-months-ago-i/ My 47 YO husband was diagnosed with AS just over a year ago and has been on methotrexate weekly and Humira every other week for about 8 months. For two days after he takes these meds, he is in bed sleeping. On the third day he goes back to work, though still tired. And the meds seem to have no effect on his pain. Will he ever adjust to these meds or will he always lose two days a week? http://answers.ankylosing.org/77218/my-47-yo-husband-was-diagnosed-with-as-just-over-a-year-ago-and-has-been-on-methotrexate-weekly-and-humira/ Sat, 26 Mar 2011 20:46:30 +0000 Asked by Jfg 11 months ago http://answers.ankylosing.org/77218/my-47-yo-husband-was-diagnosed-with-as-just-over-a-year-ago-and-has-been-on-methotrexate-weekly-and-humira/ I've been getting a lot of foot cramps lately is this normal with AS? http://answers.ankylosing.org/76964/ive-been-getting-a-lot-of-foot-cramps-lately-is-this-normal-with-as/ Sat, 26 Mar 2011 16:58:44 +0000 Asked by Tiffany 11 months ago http://answers.ankylosing.org/76964/ive-been-getting-a-lot-of-foot-cramps-lately-is-this-normal-with-as/ Not trying to depress anyone, but do you ever just want to give up? You get so tired of the pain, no matter what you do the pain still comes back. Im not one to just sit or lay and do nothing. I get so tired of it. This mess is so expensive I get tired of spending the money on it. Im not depressed just get tired of it. I would rather be fighting cancer, at least you know your fighting for something to get better. Sorry not trying to depress anyone. http://answers.ankylosing.org/75608/not-trying-to-depress-anyone-but-do-you-ever-just-want-to-give-up/ Fri, 25 Mar 2011 15:32:18 +0000 Asked by Tim Cassidy 11 months ago http://answers.ankylosing.org/75608/not-trying-to-depress-anyone-but-do-you-ever-just-want-to-give-up/ Please Print and Carry the New "AS ID Card" for First Responders to be made aware of your condition! www.rhnegativeregistry.com/Ankylosing-Spondylitis-AS-Autoimm Towards Bottom of Page? http://answers.ankylosing.org/75459/please-print-and-carry-the-new-as-id-card-for-first-responders-to-be-made-aware-of-your-condition/ Thu, 24 Mar 2011 22:43:56 +0000 Asked by Jessica Farrell 11 months ago http://answers.ankylosing.org/75459/please-print-and-carry-the-new-as-id-card-for-first-responders-to-be-made-aware-of-your-condition/ Enjoy the new Menu Plan & Recipe Sharing Section I've set up for those attempting Gluten & Starch Free Diets! www.rhnegativeregistry.com/Ankylosing-Spondylitis-AS-Autoimm - bottom of the page? http://answers.ankylosing.org/75458/enjoy-the-new-menu-plan-recipe-sharing-section-ive-set-up-for-those-attempting-gluten-starch-free/ Thu, 24 Mar 2011 22:40:45 +0000 Asked by Jessica Farrell 11 months ago http://answers.ankylosing.org/75458/enjoy-the-new-menu-plan-recipe-sharing-section-ive-set-up-for-those-attempting-gluten-starch-free/ I get cramps anywhere at anytime unless i keep up the proper nutrients and water. It seems to be the way A.S. Is. My advice, good diet and water? http://answers.ankylosing.org/75446/i-get-cramps-anywhere-at-anytime-unless-i-keep-up-the-proper-nutrients-and-water-it-seems-to-be-the/ Thu, 24 Mar 2011 19:15:07 +0000 Asked by Cj Justesen 11 months ago http://answers.ankylosing.org/75446/i-get-cramps-anywhere-at-anytime-unless-i-keep-up-the-proper-nutrients-and-water-it-seems-to-be-the/ Does anyone get awful cramps akin to charlie horses in your sides & especially hands when you use them especially when gripping things firmly? http://answers.ankylosing.org/75359/does-anyone-get-awful-cramps-akin-to-charlie-horses-in-your-sides-especially-hands-when-you-use-them/ Thu, 24 Mar 2011 06:51:44 +0000 Asked by Shanna Joy White 11 months ago http://answers.ankylosing.org/75359/does-anyone-get-awful-cramps-akin-to-charlie-horses-in-your-sides-especially-hands-when-you-use-them/ I keep getting sharp pains on the right side of my body. It will start on my side and then shoot up to my chest. Can anyone tell me what it might be? http://answers.ankylosing.org/75340/i-keep-getting-sharp-pains-on-the-right-side-of-my-body-it-will-start-on-my-side-and-then-shoot-up-to/ Thu, 24 Mar 2011 05:56:37 +0000 Asked by Adriana 11 months ago http://answers.ankylosing.org/75340/i-keep-getting-sharp-pains-on-the-right-side-of-my-body-it-will-start-on-my-side-and-then-shoot-up-to/ Are any of your on a Starch & Gluten Free Diet? Have you seen results? http://answers.ankylosing.org/75152/are-any-of-your-on-a-starch-gluten-free-diet/ Wed, 23 Mar 2011 07:53:51 +0000 Asked by Jessica Farrell 11 months ago http://answers.ankylosing.org/75152/are-any-of-your-on-a-starch-gluten-free-diet/ Two weeks ago I had a tooth pulled, and being the idiot I can sometimes be, I stalled on Mtx by 3 days, and then took it, but 2 days after taking it I had a very bad flare, almost pre-mtx like, that lasted about five days. What I don't understand is, it happened after my normal dose not before? Does stalling by 3 days always do that? http://answers.ankylosing.org/75151/two-weeks-ago-i-had-a-tooth-pulled-and-being-the-idiot-i-can-sometimes-be-i-stalled-on-mtx-by-3-days/ Wed, 23 Mar 2011 07:24:42 +0000 Asked by Cara Guikema 11 months ago http://answers.ankylosing.org/75151/two-weeks-ago-i-had-a-tooth-pulled-and-being-the-idiot-i-can-sometimes-be-i-stalled-on-mtx-by-3-days/ I recently got my MRI results back for my brain and neck. The dr said I have evidence of "run of the mill arthritis" present, which I also have in my hip and it's safe to say my thoracic region. Does the AS cause this arthritis damage? Or is it something else? I'm 32, I don't consider spinal arthritis "run of the mill"! http://answers.ankylosing.org/75134/i-recently-got-my-mri-results-back-for-my-brain-and-neck-the-dr-said-i-have-evidence-of-run-of-the/ Wed, 23 Mar 2011 05:39:11 +0000 Asked by Jennifer Winter 11 months ago http://answers.ankylosing.org/75134/i-recently-got-my-mri-results-back-for-my-brain-and-neck-the-dr-said-i-have-evidence-of-run-of-the/ I started Remicade last week to fight my AS and Crohn's. I noticed a little bit of heart burn the other day and night, but it went away. I am now noticing some pronounced hunger pains. Has anyone else had this? Is this common? I called the nurse about my heartburn, but she hasn't called me back? Am I just paranoid about what the Remicade is doing to my body? http://answers.ankylosing.org/75110/i-started-remicade-last-week-to-fight-my-as-and-crohns-i-noticed-a-little-bit-of-heart-burn-the-other/ Wed, 23 Mar 2011 01:11:27 +0000 Asked by Dave 11 months ago http://answers.ankylosing.org/75110/i-started-remicade-last-week-to-fight-my-as-and-crohns-i-noticed-a-little-bit-of-heart-burn-the-other/ What is the worst arthritis as or ra? http://answers.ankylosing.org/75060/what-is-the-worst-arthritis-as-or-ra/ Tue, 22 Mar 2011 03:26:50 +0000 Asked by Conor 11 months ago http://answers.ankylosing.org/75060/what-is-the-worst-arthritis-as-or-ra/ Are there others out there who suffer from numb hands when you wake up in the morning? I see this might be carpal tunnel syndrome http://answers.ankylosing.org/75050/are-there-others-out-there-who-suffer-from-numb-hands-when-you-wake-up-in-the-morning/ Tue, 22 Mar 2011 00:18:05 +0000 Asked by Jackie Aitchison 12 months ago http://answers.ankylosing.org/75050/are-there-others-out-there-who-suffer-from-numb-hands-when-you-wake-up-in-the-morning/ Anyone else have Raynauds syndrome as well as AS? Apparently I might have Raynauds too, my hands and feet are constantly cold, but apparently the fact that my nail beds turn blue, should have been a clue to me something was wrong. My Father has both AS and Raynauds so it's not a shock.. But I don't know much about it.. Anyone? http://answers.ankylosing.org/75046/anyone-else-have-raynauds-syndrome-as-well-as-as/ Mon, 21 Mar 2011 23:31:55 +0000 Asked by Lindsay Cairns 12 months ago http://answers.ankylosing.org/75046/anyone-else-have-raynauds-syndrome-as-well-as-as/ I recently had a cervical MRI and can add another herniated disk to the list. This is the 3rd - L4/L5, L5/S1, and this one is C4/C5 with bones spurs, pressure on the spinal cord, & 'foraminal narrowing". C3/C4 is bulging with bone spurs and is pushed into the spinal fluid but not pushing on the cord like the other one. Has anyone had the surgery for something like this? If so, what was your experience (pain/downtime/success)? http://answers.ankylosing.org/74962/i-recently-had-a-cervical-mri-and-can-add-another-herniated-disk-to-the-list-this-is-the-3rd-l4l5/ Mon, 21 Mar 2011 13:47:31 +0000 Asked by Christine Farr Fritts 12 months ago http://answers.ankylosing.org/74962/i-recently-had-a-cervical-mri-and-can-add-another-herniated-disk-to-the-list-this-is-the-3rd-l4l5/ I am type 2 diabetic, can I take DMSO/ soothenal? http://answers.ankylosing.org/74929/i-am-type-2-diabetic-can-i-take-dmso-soothenal/ Mon, 21 Mar 2011 11:52:49 +0000 Asked by Tony Wood 12 months ago http://answers.ankylosing.org/74929/i-am-type-2-diabetic-can-i-take-dmso-soothenal/ Hello friends, sorry I have not been on in quite a while have had a lot of personal family problems present in my life. Plus Mother Nature has not been kind to the joints here in Illinois. Recently I have been under severe stress has anyone else noticed if this brings on flare ups if so what do you do for relaxation? I have thought of taking yoga, but am a bit nervous about it. Have you found this to help or release pressure. Thank You for your info hoping everyone a pain free day! =) http://answers.ankylosing.org/74915/hello-friends-sorry-i-have-not-been-on-in-quite-a-while-have-had-a-lot-of-personal-family-problems-present/ Mon, 21 Mar 2011 11:00:48 +0000 Asked by Lindsay 12 months ago http://answers.ankylosing.org/74915/hello-friends-sorry-i-have-not-been-on-in-quite-a-while-have-had-a-lot-of-personal-family-problems-present/ I live in the ohio valley should i take enbrel despite the warnings? http://answers.ankylosing.org/74722/i-live-in-the-ohio-valley-should-i-take-enbrel-despite-the-warnings/ Sun, 20 Mar 2011 23:48:31 +0000 Asked by Tiffany 12 months ago http://answers.ankylosing.org/74722/i-live-in-the-ohio-valley-should-i-take-enbrel-despite-the-warnings/ I have had AS for two years now and have had minimal pain while taking an anti-inflammatory. Last visit my dr. And I discussed me moving to Enbrel because the pain has slowly increased and what used to work no longer does. I am nervous about taking Enbrel. At what point did anyone decide that it was time to make the jump? http://answers.ankylosing.org/74710/i-have-had-as-for-two-years-now-and-have-had-minimal-pain-while-taking-an-anti-inflammatory-last-visit/ Sun, 20 Mar 2011 23:09:00 +0000 Asked by Philip Martinez 12 months ago http://answers.ankylosing.org/74710/i-have-had-as-for-two-years-now-and-have-had-minimal-pain-while-taking-an-anti-inflammatory-last-visit/ Lower Rt. Abdomen pain for months now. All tests are normal except colonoscopy said "inflammation in small intestine and inflammation in colon" but just general. Can you have crohn's without presence of actual ulcers? Doc won't diagnose crohns http://answers.ankylosing.org/74635/lower-rt-abdomen-pain-for-months-now-all-tests-are-normal-except-colonoscopy-said-inflammation-in/ Sun, 20 Mar 2011 18:23:02 +0000 Asked by Kristin 12 months ago http://answers.ankylosing.org/74635/lower-rt-abdomen-pain-for-months-now-all-tests-are-normal-except-colonoscopy-said-inflammation-in/ Has anyone had skin problems while taking Remicade? Have a case of eczema and would like some solutions. http://answers.ankylosing.org/73980/has-anyone-had-skin-problems-while-taking-remicade/ Sat, 19 Mar 2011 00:40:27 +0000 Asked by Marilyn Wren 12 months ago http://answers.ankylosing.org/73980/has-anyone-had-skin-problems-while-taking-remicade/ My 22 yr oldson has had back pain for two and a half years. Blood tests showed raised monocytes, Raised C-reactive protein and HLA27 positive. He suffers from what appears to be irritable bowel, frequent, troublesome mouth ulcers. X-ray and MRI are negative for AS. The Rheumatologist was rude and dismissive and told him he hasn't got 'it'. Could this set of symptoms be something else? Do all AS sufferers have mri evidence? http://answers.ankylosing.org/73931/my-22-yr-oldson-has-had-back-pain-for-two-and-a-half-years-blood-tests-showed-raised-monocytes-raised/ Fri, 18 Mar 2011 21:49:58 +0000 Asked by Ruth 12 months ago http://answers.ankylosing.org/73931/my-22-yr-oldson-has-had-back-pain-for-two-and-a-half-years-blood-tests-showed-raised-monocytes-raised/ Hi all just a big fat hello to everyone hope your all good? http://answers.ankylosing.org/73860/hi-all-just-a-big-fat-hello-to-everyone-hope-your-all-good/ Fri, 18 Mar 2011 17:54:26 +0000 Asked by James 12 months ago http://answers.ankylosing.org/73860/hi-all-just-a-big-fat-hello-to-everyone-hope-your-all-good/ Got my first appointment with a homeopathic doctor in April, just wondering if anyone can tell me what to expect and if any of you guys have seen this type of Doc before? http://answers.ankylosing.org/73799/got-my-first-appointment-with-a-homeopathic-doctor-in-april-just-wondering-if-anyone-can-tell-me-what/ Fri, 18 Mar 2011 06:29:25 +0000 Asked by Roman Reid 12 months ago http://answers.ankylosing.org/73799/got-my-first-appointment-with-a-homeopathic-doctor-in-april-just-wondering-if-anyone-can-tell-me-what/ Has anyone used a "light box" before? They are commonly used for SAD (Seasonal Affective Disorder). If so, did it help? http://answers.ankylosing.org/73721/has-anyone-used-a-light-box-before/ Thu, 17 Mar 2011 04:42:29 +0000 Asked by Kathryn 12 months ago http://answers.ankylosing.org/73721/has-anyone-used-a-light-box-before/ Hi everyone, Hope you are well, my blood work came back ANA+2 positive and Rheumatoid Factor positive, been sick 2 years and I have AS with serum sickness to Remicade and now Humira. What is ANA +2 positive mean? Thank you all x Just wanna be okay again ! http://answers.ankylosing.org/73293/hi-everyone-hope-you-are-well-my-blood-work-came-back-ana2-positive-and-rheumatoid-factor-positive/ Tue, 15 Mar 2011 20:54:30 +0000 Asked by Fiona Carlyle- Sheehan 12 months ago http://answers.ankylosing.org/73293/hi-everyone-hope-you-are-well-my-blood-work-came-back-ana2-positive-and-rheumatoid-factor-positive/ Does anyone else have terrible heartburn on Enbrel? I am living on Prilosec and I'm wondering if Protonix would help me better, but its by Rx which is more $$.......sigh, anyone have experience with these? http://answers.ankylosing.org/73292/does-anyone-else-have-terrible-heartburn-on-enbrel/ Tue, 15 Mar 2011 20:34:58 +0000 Asked by Jenn Farrell 12 months ago http://answers.ankylosing.org/73292/does-anyone-else-have-terrible-heartburn-on-enbrel/ Does anyone have IBD, AS and are taking Humira? Does the Humira help with your IBD symptoms? http://answers.ankylosing.org/73057/does-anyone-have-ibd-as-and-are-taking-humira/ Tue, 15 Mar 2011 14:58:58 +0000 Asked by Jenny Loraine 12 months ago http://answers.ankylosing.org/73057/does-anyone-have-ibd-as-and-are-taking-humira/ I'm going to be seeing a pain management dr for the first time on Wed. My family dr & my physical medicine & rehab dr have refered me due to needing better pain management. I've been on the same pain medication for almost 4 yrs (vicodin & tramadol). This first appointment is a consoltation, I have no idea what to expect... Any advice or info would be appreciated? http://answers.ankylosing.org/72738/im-going-to-be-seeing-a-pain-management-dr-for-the-first-time-on-wed-my-family-dr-my-physical-medicine/ Tue, 15 Mar 2011 03:50:56 +0000 Asked by Kimberly 12 months ago http://answers.ankylosing.org/72738/im-going-to-be-seeing-a-pain-management-dr-for-the-first-time-on-wed-my-family-dr-my-physical-medicine/ Anybody else get both flu shots this last Oct. And still get hit hard by the flu? In the last two months I have had the flu twice so bad each time that I needed to go on azithromycin. I know they say it has nothing to do with getting the shots but everybody including my wife who didn't get the shot hasn't had the flu. Thinking of skipping it later this year. Every year that I have had the shot I have had the flu. http://answers.ankylosing.org/72670/anybody-else-get-both-flu-shots-this-last-oct-and-still-get-hit-hard-by-the-flu/ Tue, 15 Mar 2011 01:58:22 +0000 Asked by D 12 months ago http://answers.ankylosing.org/72670/anybody-else-get-both-flu-shots-this-last-oct-and-still-get-hit-hard-by-the-flu/ For those of you on or considering a Gluten Free or Starch Free Diet, print out your FREE Restricted Food Cards at www.rhnegativeregistry.com/Ankylosing-Spondylitis-AS-Autoimm at the bottom of the page? http://answers.ankylosing.org/72590/for-those-of-you-on-or-considering-a-gluten-free-or-starch-free-diet-print-out-your-free-restricted/ Tue, 15 Mar 2011 00:00:47 +0000 Asked by Jessica Farrell 12 months ago http://answers.ankylosing.org/72590/for-those-of-you-on-or-considering-a-gluten-free-or-starch-free-diet-print-out-your-free-restricted/