I feel like my own worse advocate! I had a follow up rhum app yesterday and feel like I failed in all of my goals. I took my notebook with questions and I got 2 questions answered and one was misunderstood. I did get the PT asked for, but only to discover that she only wrote it for just my shoulder. I thought I was very clear about wanting to build strength, stamina, flexibility, etc everywhere. When will I get it right?
Please do not be so hard on yourself. This is a difficult disease to deal with on so many levels. If you have a firm Dx your Rhuemy should be understanding, especially if you are newly diagnosed. This is an excellent format for getting some of your general questions answered. Also www.spondylitis.org is a great web site and has all sorts of information. They even have a dvd available with special exercises just for AS. Swimming or even getting in the water and walking is good for taking the weight off your joints. I hope this helps.