Hi Jacqui!

Thanks for making the choice to particpate in the study!  We need soo much more info.  I am an RN and medicine is very cold and clinical during a study,  they cant afford to think of you as a person or it can skew the study and results.  Dont take it personal.....  LOL   Would you keep posting ur experience and anything u learn that might help us?  

Thanks for being a self-less person. Happy Thanksgiving.

Make a decision, help the medical profession and future patients or help yourself. One of the problems with these studies is that they may have you on placebos and I don't think I could tolerate that for any length of time.

Remember that high-faluting doctor things of you as a number, not a person. Once the study is complete, he'll never se you again. You are just the test tube for his experiment.

That's great Jacqui as any research could help those down the line.

The only test of that sort that I have ever done, was for an insurance company, in order to stay on their. Disabilty program. Of course they found other ways down the road to boot my butt off of the program a year later, but that is another story.

The whole "range of movement" hoops did put me into one of my biggest flares as well. Mind you, it was on a cold, snowy February day up here in Canada.

I hope you have a pain-free day.

Thanks everyone . . . I set out to do this to help my siblings, future descendants & to help in any way I can to raise awareness for this mysterious "phantom" disease.  I knew it wasn't a medicine clinical trial or treatment study.  Genetic factors, only.  But it is proving to be more emotional & painful than I anticipated.  Those "Range of Movement" hoops he put me through to get measurements were WOW, pretty gritty & the whole dang trip sent me into a flare possibly unprecedented ~~ I know stress can do it in general.  Thanks for listening everyone & I have to say I LOVE this site & all of you tuning in & your input.  Just the emotional support and humanity on here is soothing.

You don't typically enter a study to help yourself - you enter the study so that your stats and biologicals are available for a wide variety of researchers to study so that a cure for AS can be found more rapidly. If this were a drug trial, that would be different.

I don't even qualify for the recent AS studies, because I don't have enough bone degradation in my SI joints and spine. Ironic.

The only study I ever participated in was for breast cancer, and they won't have any news to tell the world for quite some time, and told me nothing about my own health.  There was no financial compensation.  I just participated in hopes that, down the line, doctors will be able to protect us ladies better.

I answered some question and got 250 bucks.