I have shrunk 2.25 inches since I was diagnosed 11 years ago. Is that normal? Do we stop shrking? Or in 20 years will I look like an orangutang? Is there any way to stop yourself from shrinking more?
I too have decreased in height. When I got my drivers license it stated I was 5 ft 8 in. That was in 1960. Today I am barely over 5 ft. If you push on a long balloon it gets progressively rounder....just like me......where will it stop? I am 77 years old and would love to clear 100, I have too much work to do and am having fun with life.
Hi Susan not nice is it and so unfair on us I have lost 4 inches in 43 years I was only 5ft 6inches to start with one thing I do not like is to see my self walking if there no mirrors or sometthing to reflect my image I`m happy I can go about the day as if I`m 6ft tall well I can dream. My physio tell me to lie down flat on your stomach with your arms down your side with your head to one side if you cannot turn your neck due to pain roll a towel up so you can rest your head on it or a pillow under your chest so you can breath lie as long as you canhope it helps all the best.
Hi Susan I also have shrunk at first before I was diagnosed my husband and I would laugh he kept calling me Mrs Pepperpot It was a children's tv series here in England about this incredible shrinking woman, now I have my A.S diagnosis it's not so funny I have shrunk 2 1/2 inches I have begun to get a stoop at the top of my spine. I was told by my pain Doc to stand straight against a wall for a good 10 minutes at a time when I could and to also stretch myself by grabbing the top of a door way and lean forward as though I am going to swing on the frame to help stretch the spine I do this every day and I must admit it has helped a little. I noticed the stoop is not so prominent as before so give it a try it might help.
I have lost 2 inches myself, it is due to the curving of the spine(the stooped forward position) and fusing of the spine. I have been told the most important thing I need to do is exercises to keep my back, chest strong and try to be aware of your posture at all times. It Sucks !!
Laura, I can't reach the top of the doorway but do you think I'd get the same effect hanging on the monkey bars when I take my kids to the playground? Is there any way to stop/prevent shrinking? I am only 5' 0" tall....yes, only 60 inches. My grandmother was 5'1" and shrunk to 4'11" by the time she passed away. My husband was 6'3" and has already shrunk one inch from blowing out a couple discs in his back (he doesn't have AS). If I get any shorter I'm going to have trouble driving my van. I really can't afford to get any shorter!