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I had several unexplained neurological symptoms before starting enbrel and they got worse after every injection (I only had 4). My rheumy told me to stop using it until I see the neurologist on the 19th and after that he will decide if I can go back on it. I asked about humira etc and he said they all have the same side effect profile so I need to see the neuro first. Anyone else have this happen and go back to using enbrel?
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I had neurological problem (numbness in hands)while taking Humira and I ended up having MS. So now I can't take embral or Humria
Rick how were you diagnosed with MS? Was it from the humira? by Samantha 1 year ago
Hi Samantha I was diagnosed from MRI's and Spinal tap, I do believe that Hunira had something to do with it I wonder if maybe it turned on/ activated it
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What kind of neurological problems? I ask because I have twitching in my legs or movement, not really visible twitching and I've noticed my chin twitches too. I am on Remicade.
Does your dr know about your muscle twitching? Did you have it before the remicade? My symptoms are eyelid twitching, tingling/numbness in hands and feet, heavy/weak feeling in arms and legs, burning sensation on my skin...these symptoms are everyday. The following symptoms are several times a week but not all the time...slurred speech, trouble with handwriting, forgetting what things are called/saying the wrong word for something, speaking a sentence in the wrong order, difficulty swallowing, bladder problems, pain in my eye, blurred vision, can't feel hot/cold on certain areas, etc. I had a nerve conduction study before starting enbrel that showed i have a peripheral neuropathy (they can't tell from what) and had a ton of bloodwork to try and find the cause of all this stuff. Nothing so far. My neuropathy is primarily on my left side but the weak/heavy feeling is on both sides. But since the enbrel has caused the symptoms to get worse with every injection the rheumy said to stop taking it and see the neurologist asap. After i see her he will decide if i can take the enbrel or not. We're both hoping the nerve stuff is unrelated because i can't take nsaids anymore and am running out of options for my as at this point.
My arms feel heavy, my forearms feel strange and my face feels tingly around my temples and upper cheeks. I have had the twitchy creepy crawly feelings in my legs before I started remicade, the other symptoms are new. The twitching in my legs is all the time. So I don't think it is the remicade. Of course I've looked it all up on the internet and scared myself, I worry about MS. Anxiety also comes up when I look up my symptoms, and even though it is easy to think that such symptoms wouldn't happen to this extent with anxiety, I think that we all probably have underlying anxiety about living with a chronic illness and what could go wrong next. My Rheumatologist just says I need to go and see my regular doctor about it but it is probably peripheral neuropathy. My regular Dr. Told me an MRI is very expensive and that it is probably again peripheral neuropathy, so I kind of left it but it is always on my mind. I should probably go ahead with the MRI to rule out other stuff. I have started getting, in the last two years, headaches but not painful ones but the visual ones where every thing goes silver and waivey.
I would definitely get the mri. I am really surprised the said peripheral neuropathy but never tested to confirm. Besides that, peripheral neuropathy can be caused by lots of things other than as (ie lupus, vasculitis, ms, lyme, etc). If they don't want to do an mri because of the cost they could have started with bloodwork or sent you t a neurologist. My rheumatologist is always concerned about the neurological symptoms because enbrel, humira, etc can cause lots of neurological problems, not just ms. Also, it can make an existing nerve problem worse. I don't have anxiety so when I first mentioned these problems they sent me for a nerve conduction study. That confirmed that I do have a peripheral neuropathy they just can't figure out what's causing it. They want to do more bloodwork and possibly mri and spinal tap. My best friend has some similar problems and also has anxiety and they have never tested her, just say its her anxiety. Go figure. Please go see a neurologist. Especially on tnf blockers the neurological symptoms need to be taken seriously.
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