I would just like to say, "thank you" to all of you. I am 32 now, but I have known something was wrong with me since I was about 15 or so. This might sound horrible to say, but I'm glad I'm not in this alone. You all are terrific, and have given me a much better outlook, in just a few short days. I think this is a disease that needs to be brought to the public's attention, because as it would seem to me, research is not properly representing the demographics I am seeing represented here?
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There are lots of groups on Face book which are really worthwhile, where you can chat to lots of other people with AS. This can help just to talk, to swop stories, ask for advise, or just to vent. If you want any more information, pleas get in touch
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I have said the same thing so don't feel bad we already have it and glad to see you here because you do have it, its a lonely feeling. I was so glad to find this site, I had dreams of being the only one in the world like this. I look here often and feel I'm not alone and find that others have the same things going on in their bodys as I do, as to know I'm not going mad.
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I feel the same thing, It's great not feeling so alone! I love that we have somewere to go with our questions. Without it I don't know what I would do. If we didn't have each other, well that's kind of a scary thought.
I agree. If there is one thing that I have learned in the last two years, it's that doctors are just playing educated guessing games. I honestly question how some of them are even able to practice. by Robert D 3 months ago
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Welcome, Robert! I think there's information out there, and it certainly doesn't hurt to create awareness. The money just isn't there for research in the US, though. In this country, we only research diseases that you can make money curing. It's sad, but it's the way business works here. I think we'll get our best research out of one of the nations that doesn't follow our same economic model. Until then, we benefit quite a bit from the research that is done about RA. In any case, I'm glad you found us! Amy
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No it is not horrible to say truthfully we probably all feel the same way. You will find great support and fantastic info on here, and on those days when you just dont want to deal with it you can find some direction here. It has made a huge difference in my attitude too.
Now find a good med treatment that works for you and your life style and be patient it can take a while sometimes to get it to work. Read and research get ideas that different ones of us use to make life more manageable no one thing works for all.
There is some great info on here.
Now find a good med treatment that works for you and your life style and be patient it can take a while sometimes to get it to work. Read and research get ideas that different ones of us use to make life more manageable no one thing works for all.
There is some great info on here.
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Q&A support community for discussing Ankylosing Spondylitis symptoms, treatment, medications, diet, research, back pain and more.
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- Does anyone out there do AS swimming and exercises or do they all just take a heap of piles of drugs and hoping for the wonder pill to take it all away?
- Just had a visit with my Rheumatologist and he informed me that from a recent conference he attended, they are now finding that the injections (ebrel, humira, etc) aren't working for people with AS like they originally thought. It still helps with joint damage and inflammation in the outter joints but doesn't really help with the spine and hips from fusing.. Anybody else hear this and how do you feel about it? This is a scary thought.. Back to square 1?
- Hello All, I'm just wondering how many of us struggle with foot pain. It may be that I've overestimated how common the issue is. Would you take a minute to respond if you experience regular foot pain that corresponds to other symptoms of disease activity? Thanks so much!
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- I know this disease is the just about the very definition of subjective, but does anyone else have problems with their heels? When I wake up in the morning, it's like the tendons and ligaments in my heels have totally atrophied. I dread putting my feet on the floor, because I know how bad it's going to hurt. Does anyone have any advice? EDIT: What about shooting pains, does anyone have them all over their body? I've been told this is an atypical symptom.
