I just had to post a thank you. I was amazed when I logged back on the day after posting my question and saw how many replies I had. It brings me to (happy) tears. As I'm sure many of you know it's so hard to find anyone to empathize with the struggle of living with AS. You are all wonderful, and honestly have given me renewed hope. Thank You?
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Q&A support community for discussing Ankylosing Spondylitis symptoms, treatment, medications, diet, research, back pain and more.
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- Does anyone out there do AS swimming and exercises or do they all just take a heap of piles of drugs and hoping for the wonder pill to take it all away?
- Just had a visit with my Rheumatologist and he informed me that from a recent conference he attended, they are now finding that the injections (ebrel, humira, etc) aren't working for people with AS like they originally thought. It still helps with joint damage and inflammation in the outter joints but doesn't really help with the spine and hips from fusing.. Anybody else hear this and how do you feel about it? This is a scary thought.. Back to square 1?
- Hello All, I'm just wondering how many of us struggle with foot pain. It may be that I've overestimated how common the issue is. Would you take a minute to respond if you experience regular foot pain that corresponds to other symptoms of disease activity? Thanks so much!
- Now that I know what is wrong with me, I feel like I can start re-building my strength. My question is, has anyone else noticed that the pain gets worse when you exercise? I know it is supposed to help, but it seems that the longer I keep trying, the worse it gets. I am doing very simple strengthening and walking around a block with a slight hill. It is killing me! Or is it just that the Humira isn't working any more?
- I know this disease is the just about the very definition of subjective, but does anyone else have problems with their heels? When I wake up in the morning, it's like the tendons and ligaments in my heels have totally atrophied. I dread putting my feet on the floor, because I know how bad it's going to hurt. Does anyone have any advice? EDIT: What about shooting pains, does anyone have them all over their body? I've been told this is an atypical symptom.
